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Aim of the study is to evaluate the impact of TEGD on the quality of life (QoL) of both NIC and their caregivers focusing on the parents\u2019 point of view. A retrospective observational study was conducted on all NIC who underwent TEGD in our center between 2012 and 2022. A questionnaire centered on the parents\u2019 point of view and investigating QoL of NIC and their caregivers was administered to all patients\u2019 parents. Data were compared using Fisher exact test and Mann\u2013Whitney test; a <jats:italic>p<\/jats:italic>-value\u2009&lt;\u20090.05 was considered statistically significant. 12 patients were enrolled in the study. Parents reported improvements in weight gain (<jats:italic>p<\/jats:italic>\u2009=\u20090.03), sleep disorders, apnea, regurgitation and vomiting (<jats:italic>p<\/jats:italic>\u2009&lt;\u20090.01). Caregivers also declared a decrease in number of hospitalizations, particularly related to severe respiratory infections and <jats:italic>ab ingestis<\/jats:italic> pneumonia (<jats:italic>p<\/jats:italic>\u2009=\u20090.01). We also documented a reduction of caregivers\u2019 worries during food administration (<jats:italic>p<\/jats:italic>\u2009&lt;\u20090.01). 50% of parents whose children were subjected to both fundoplication and TEGD would suggest TEGD as first line surgical treatment instead of fundoplication. According to parents\u2019 point of view, TEGD improves significantly NIC QoL and 50% of them would enthusiastically suggest TEGD as  first-line surgical approach to GERD in NIC.<\/jats:p>","DOI":"10.1007\/s13304-022-01384-5","type":"journal-article","created":{"date-parts":[[2022,9,21]],"date-time":"2022-09-21T13:04:02Z","timestamp":1663765442000},"page":"1881-1887","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Total esophagogastric dissociation (TEGD) in neurologically impaired children: the floor to parents"],"prefix":"10.1007","volume":"74","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7119-651X","authenticated-orcid":false,"given":"Giovanni","family":"Parente","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sara Maria","family":"Cravano","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marco","family":"Di Mitri","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eduje","family":"Thomas","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chiara","family":"Girella","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Simone","family":"D\u2019Antonio","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tommaso","family":"Gargano","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mario","family":"Lima","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2022,9,21]]},"reference":[{"issue":"11","key":"1384_CR1","doi-asserted-by":"publisher","first-page":"1828","DOI":"10.1016\/j.jpedsurg.2015.06.021","volume":"50","author":"N Lansdale","year":"2015","unstructured":"Lansdale N, McNiff M, Morecroft J, Kauffmann L, Morabito A (2015) Long-term and \u201cpatient-reported\u201d outcomes of total esophagogastric dissociation versus laparoscopic fundoplication for gastroesophageal reflux disease in the severely neurodisabled child. 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Written informed consent has been obtained from the patient(s) to publish this paper.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed Consent"}}]}}