{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,18]],"date-time":"2026-02-18T23:44:12Z","timestamp":1771458252162,"version":"3.50.1"},"reference-count":26,"publisher":"Springer Science and Business Media LLC","issue":"3","license":[{"start":{"date-parts":[[2018,11,15]],"date-time":"2018-11-15T00:00:00Z","timestamp":1542240000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0"}],"funder":[{"name":"Merck Sharp & Dohme, Spain"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Patient"],"published-print":{"date-parts":[[2019,6]]},"DOI":"10.1007\/s40271-018-0345-1","type":"journal-article","created":{"date-parts":[[2018,11,15]],"date-time":"2018-11-15T02:29:31Z","timestamp":1542248971000},"page":"307-317","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":27,"title":["Healthcare Experience and their Relationship with Demographic, Disease and Healthcare-Related Variables: A Cross-Sectional Survey of Patients with Chronic Diseases Using the IEXPAC Scale"],"prefix":"10.1007","volume":"12","author":[{"given":"Domingo","family":"Orozco-Beltr\u00e1n","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Javier","family":"de Toro","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda J.","family":"Galindo","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ignacio","family":"Mar\u00edn-Jim\u00e9nez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Francesc","family":"Casellas","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda J.","family":"Fuster-RuizdeApodaca","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda L.","family":"Garc\u00eda-Vivar","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Antonio","family":"Hormigo-Pozo","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mercedes","family":"Guilabert","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nuria","family":"S\u00e1nchez-Vega","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gonzalo","family":"Fern\u00e1ndez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Luis","family":"Cea-Calvo","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2018,11,15]]},"reference":[{"issue":"1","key":"345_CR1","doi-asserted-by":"publisher","first-page":"e001570","DOI":"10.1136\/bmjopen-2012-001570","volume":"3","author":"C Doyle","year":"2013","unstructured":"Doyle C, Lennox L, Bell D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open. 2013;3(1):e001570.","journal-title":"BMJ Open"},{"issue":"3","key":"345_CR2","doi-asserted-by":"publisher","first-page":"13","DOI":"10.5334\/ijic.2443","volume":"16","author":"JJ Mira","year":"2016","unstructured":"Mira JJ, Nuno-Solinis R, Guilabert-Mora M, et al. Development and validation of an instrument for assessing patient experience of chronic illness care. Int J Integr Care. 2016;16(3):13.","journal-title":"Int J Integr Care"},{"issue":"1","key":"345_CR3","doi-asserted-by":"publisher","first-page":"75","DOI":"10.1377\/hlthaff.28.1.75","volume":"28","author":"K Coleman","year":"2009","unstructured":"Coleman K, Austin BT, Brach C, Wagner EH. Evidence on the chronic care model in the new millennium. Health Aff (Millwood). 2009;28(1):75\u201385.","journal-title":"Health Aff (Millwood)"},{"issue":"5","key":"345_CR4","doi-asserted-by":"publisher","first-page":"561","DOI":"10.1093\/intqhc\/mzu071","volume":"26","author":"NA Martinez-Gonzalez","year":"2014","unstructured":"Martinez-Gonzalez NA, Berchtold P, Ullman K, et al. Integrated care programmes for adults with chronic conditions: a meta-review. Int J Qual Health Care. 2014;26(5):561\u201370.","journal-title":"Int J Qual Health Care"},{"key":"345_CR5","doi-asserted-by":"publisher","first-page":"194","DOI":"10.1186\/s12913-015-0854-8","volume":"15","author":"C Davy","year":"2015","unstructured":"Davy C, Bleasel J, Liu H, et al. Effectiveness of chronic care models: opportunities for improving healthcare practice and health outcomes: a systematic review. BMC Health Serv Res. 2015;15:194.","journal-title":"BMC Health Serv Res"},{"issue":"2","key":"345_CR6","doi-asserted-by":"publisher","first-page":"134","DOI":"10.1097\/HMR.0b013e318208cd31","volume":"36","author":"C Rathert","year":"2011","unstructured":"Rathert C, Huddleston N, Pak Y. Acute care patients discuss the patient role in patient safety. Health Care Manag Rev. 2011;36(2):134\u201344.","journal-title":"Health Care Manag Rev"},{"issue":"6","key":"345_CR7","doi-asserted-by":"publisher","first-page":"689","DOI":"10.1093\/intqhc\/mzt065","volume":"25","author":"JM Cramm","year":"2013","unstructured":"Cramm JM, Nieboer AP. High-quality chronic care delivery improves experiences of chronically ill patients receiving care. Int J Qual Health Care. 2013;25(6):689\u201395.","journal-title":"Int J Qual Health Care"},{"issue":"5","key":"345_CR8","doi-asserted-by":"publisher","first-page":"436","DOI":"10.1097\/01.mlr.0000160375.47920.8c","volume":"43","author":"RE Glasgow","year":"2005","unstructured":"Glasgow RE, Wagner EH, Schaefer J, et al. Development and validation of the Patient Assessment of Chronic Illness Care (PACIC). Med Care. 2005;43(5):436\u201344.","journal-title":"Med Care"},{"issue":"2","key":"345_CR9","doi-asserted-by":"publisher","first-page":"143","DOI":"10.1177\/1077558712465654","volume":"70","author":"SJ Singer","year":"2013","unstructured":"Singer SJ, Friedberg MW, Kiang MV, et al. Development and preliminary validation of the Patient Perceptions of Integrated Care survey. Med Care Res Rev. 2013;70(2):143\u201364.","journal-title":"Med Care Res Rev"},{"issue":"1","key":"345_CR10","doi-asserted-by":"publisher","first-page":"112","DOI":"10.1177\/1077558710371485","volume":"68","author":"SJ Singer","year":"2011","unstructured":"Singer SJ, Burgers J, Friedberg M, et al. Defining and measuring integrated patient care: promoting the next frontier in health care delivery. Med Care Res Rev. 2011;68(1):112\u201327.","journal-title":"Med Care Res Rev"},{"issue":"4","key":"345_CR11","doi-asserted-by":"publisher","first-page":"417","DOI":"10.1111\/j.1369-7625.2009.00557.x","volume":"12","author":"HJ Vrijhoef","year":"2009","unstructured":"Vrijhoef HJ, Berbee R, Wagner EH, Steuten LM. Quality of integrated chronic care measured by patient survey: identification, selection and application of most appropriate instruments. Health Expect. 2009;12(4):417\u201329.","journal-title":"Health Expect"},{"issue":"3","key":"345_CR12","doi-asserted-by":"publisher","first-page":"759","DOI":"10.1377\/hlthaff.27.3.759","volume":"27","author":"DM Berwick","year":"2008","unstructured":"Berwick DM, Nolan TW, Whittington J. The triple aim: care, health, and cost. Health Aff (Millwood). 2008;27(3):759\u201369.","journal-title":"Health Aff (Millwood)"},{"issue":"8","key":"345_CR13","doi-asserted-by":"publisher","first-page":"703","DOI":"10.1016\/0895-4356(89)90065-6","volume":"42","author":"S Shah","year":"1989","unstructured":"Shah S, Vanclay F, Cooper B. Improving the sensitivity of the Barthel Index for stroke rehabilitation. J Clin Epidemiol. 1989;42(8):703\u20139.","journal-title":"J Clin Epidemiol"},{"issue":"5","key":"345_CR14","doi-asserted-by":"publisher","first-page":"e0126400","DOI":"10.1371\/journal.pone.0126400","volume":"10","author":"I Bos-Touwen","year":"2015","unstructured":"Bos-Touwen I, Schuurmans M, Monninkhof EM, et al. Patient and disease characteristics associated with activation for self-management in patients with diabetes, chronic obstructive pulmonary disease, chronic heart failure and chronic renal disease: a cross-sectional survey study. PLoS One. 2015;10(5):e0126400.","journal-title":"PLoS One"},{"issue":"1","key":"345_CR15","doi-asserted-by":"publisher","first-page":"104","DOI":"10.1007\/s12160-014-9638-3","volume":"49","author":"J Fan","year":"2015","unstructured":"Fan J, McCoy RG, Ziegenfuss JY, et al. Evaluating the structure of the Patient Assessment of Chronic Illness Care (PACIC) survey from the patient\u2019s perspective. Ann Behav Med. 2015;49(1):104\u201311.","journal-title":"Ann Behav Med"},{"issue":"3","key":"345_CR16","doi-asserted-by":"publisher","first-page":"200","DOI":"10.1179\/1753807611Y.0000000010","volume":"4","author":"D Smith","year":"2011","unstructured":"Smith D. Health care consumer\u2019s use and trust of health information sources. J Commun Healthc. 2011;4(3):200\u201310.","journal-title":"J Commun Healthc"},{"issue":"3","key":"345_CR17","doi-asserted-by":"publisher","first-page":"643","DOI":"10.1111\/hex.12395","volume":"19","author":"AM Fage-Butler","year":"2016","unstructured":"Fage-Butler AM, Nisbeth Jensen M. Medical terminology in online patient-patient communication: evidence of high health literacy? Health Expect. 2016;19(3):643\u201353.","journal-title":"Health Expect"},{"key":"345_CR18","first-page":"244","volume":"183","author":"M Househ","year":"2013","unstructured":"Househ M. The use of social media in healthcare: organizational, clinical, and patient perspectives. Stud Health Technol Inform. 2013;183:244\u20138.","journal-title":"Stud Health Technol Inform"},{"issue":"9782","key":"345_CR19","doi-asserted-by":"publisher","first-page":"2031","DOI":"10.1016\/S0140-6736(11)60702-2","volume":"377","author":"B Schwartl\u00e4nder","year":"2011","unstructured":"Schwartl\u00e4nder B, Stover J, Hallett T, et al. Towards an improved investment approach for an effective response to HIV\/AIDS. Lancet. 2011;377(9782):2031\u201341.","journal-title":"Lancet"},{"issue":"11","key":"345_CR20","doi-asserted-by":"publisher","first-page":"e111956","DOI":"10.1371\/journal.pone.0111956","volume":"9","author":"J Stover","year":"2014","unstructured":"Stover J, Hallett TB, Wu Z, et al. How can we get close to zero? The potential contribution of biomedical prevention and the investment framework towards an effective response to HIV. PLoS One. 2014;9(11):e111956.","journal-title":"PLoS One"},{"issue":"5","key":"345_CR21","doi-asserted-by":"publisher","first-page":"e0154893","DOI":"10.1371\/journal.pone.0154893","volume":"11","author":"J Stover","year":"2016","unstructured":"Stover J, Bollinger L, Izazola JA, et al. What is required to end the AIDS epidemic as a public health threat by 2030? The cost and impact of the Fast-Track approach. PLoS One. 2016;11(5):e0154893.","journal-title":"PLoS One"},{"issue":"9","key":"345_CR22","doi-asserted-by":"publisher","first-page":"967","DOI":"10.1097\/00042737-200012090-00001","volume":"12","author":"AJ Nightingale","year":"2000","unstructured":"Nightingale AJ, Middleton W, Middleton SJ, Hunter JO. Evaluation of the effectiveness of a specialist nurse in the management of inflammatory bowel disease (IBD). Eur J Gastroenterol Hepatol. 2000;12(9):967\u201373.","journal-title":"Eur J Gastroenterol Hepatol"},{"issue":"7492","key":"345_CR23","doi-asserted-by":"publisher","first-page":"612","DOI":"10.1136\/bmj.330.7492.612","volume":"330","author":"T Bodenheimer","year":"2005","unstructured":"Bodenheimer T, MacGregor K, Stothart N. Nurses as leaders in chronic care: their role is pivotal in improving care for chronic diseases. BMJ. 2005;330(7492):612\u20133.","journal-title":"BMJ"},{"issue":"2","key":"345_CR24","doi-asserted-by":"publisher","first-page":"43","DOI":"10.1016\/j.colegn.2010.05.001","volume":"17","author":"PM Davidson","year":"2010","unstructured":"Davidson PM, De Geest S, Hill MN. Nurses addressing the challenges of chronic illness: from primary to palliative care. Collegian. 2010;17(2):43\u20135.","journal-title":"Collegian"},{"issue":"6","key":"345_CR25","doi-asserted-by":"publisher","first-page":"611","DOI":"10.1016\/j.crohns.2010.08.009","volume":"4","author":"P Hern\u00e1ndez-Sampelayo","year":"2010","unstructured":"Hern\u00e1ndez-Sampelayo P, Seoane M, Oltra L, et al. Contribution of nurses to the quality of care in management of inflammatory bowel disease: a synthesis of the evidence. J Crohns Colitis. 2010;4(6):611\u201322.","journal-title":"J Crohns Colitis"},{"issue":"38","key":"345_CR26","doi-asserted-by":"publisher","first-page":"42","DOI":"10.7748\/ns.2017.e10742","volume":"31","author":"V Coates","year":"2017","unstructured":"Coates V. Role of nurses in supporting patients to self-manage chronic conditions. Nurs Stand. 2017;31(38):42\u20136.","journal-title":"Nurs Stand"}],"container-title":["The Patient - Patient-Centered Outcomes Research"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s40271-018-0345-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s40271-018-0345-1\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s40271-018-0345-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,11,15]],"date-time":"2019-11-15T00:22:41Z","timestamp":1573777361000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s40271-018-0345-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,11,15]]},"references-count":26,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2019,6]]}},"alternative-id":["345"],"URL":"https:\/\/doi.org\/10.1007\/s40271-018-0345-1","relation":{},"ISSN":["1178-1653","1178-1661"],"issn-type":[{"value":"1178-1653","type":"print"},{"value":"1178-1661","type":"electronic"}],"subject":[],"published":{"date-parts":[[2018,11,15]]},"assertion":[{"value":"15 November 2018","order":1,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with Ethical Standards"}},{"value":"This project was funded by Merck Sharp and Dohme, Spain.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Funding"}},{"value":"Domingo Orozco-Beltr\u00e1n has provided consultancy services to MSD and Novartis and has lectured for Novartis, Mundipharma, Novo, Sanofi Aventis and Lilly. Mar\u00eda J. Galindo has provided consultancy services to Viiv, Abbie, MSD, Gilead and Janssen; her institution has received grants from MSD, Janssen and Gilead and payments for travel to meetings from MSD and for lectures or educational presentations from MSD, Janssen, Gilead and Viiv. Ignacio Mar\u00edn-Jim\u00e9nez has received research funding (to his institution) and payment for acting as a consultant, advisory member or speaker from AbbVie, Chiesi, Faes Farma, Falk-Pharma, Ferring, Gebro Pharma, Hospira, Janssen, MSD, Otsuka Pharmaceutical, Pfizer, Shire, Takeda, Tillots and UCB Pharma. Francesc Casellas has received research funding (to his institution) from AbbVie, MSD, Shire, Ferring and Zambon and speaker fees from AbbVie, MSD, Shire, Ferring and Zambon. Mar\u00eda J. Fuster-RuizdeApodaca has received research funding (to her institution) from ViiV Healthcare, MSD, Janssen and Gilead and payments for consultancy services (to her institution) from Gilead, ViiV Healthcare and Janssen and for lectures (to her institution) from Gilead and ViiV Healthcare. Mar\u00eda L. Garc\u00eda-Vivar has provided consultancy services to MSD, BMS and Janssen and expert testimony for AbbVie and Pfizer and has received grants (to her institution) from Roche, MSD and UCB and payments for lectures from Novartis, GSK, Celgene, Lilly, Janssen, AbbVie and Pfizer. Mercedes Guilabert has received consultancy and travel\/meeting expenses from MSD. Nuria S\u00e1nchez-Vega, Gonzalo Fern\u00e1ndez and Luis Cea-Calvo are full-time employees of MSD Spain. Javier de Toro and Antonio Hormigo-Pozo have no conflicts of interest that are directly related to the content of this article.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}}]}}