{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,16]],"date-time":"2026-10-16T08:37:05Z","timestamp":1792139825559,"version":"4.4.0"},"reference-count":59,"publisher":"Springer Science and Business Media LLC","issue":"9","license":[{"start":{"date-parts":[[2025,6,28]],"date-time":"2025-06-28T00:00:00Z","timestamp":1751068800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0"},{"start":{"date-parts":[[2025,6,28]],"date-time":"2025-06-28T00:00:00Z","timestamp":1751068800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0"}],"funder":[{"DOI":"10.13039\/501100006419","name":"EuroQol Research Foundation","doi-asserted-by":"publisher","award":["1481-PHD"],"award-info":[{"award-number":["1481-PHD"]}],"id":[{"id":"10.13039\/501100006419","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Australian Government Research Training Program Scholarship"},{"DOI":"10.13039\/501100001779","name":"Monash University","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001779","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["PharmacoEconomics"],"published-print":{"date-parts":[[2025,9]]},"DOI":"10.1007\/s40273-025-01509-9","type":"journal-article","created":{"date-parts":[[2025,6,28]],"date-time":"2025-06-28T05:44:00Z","timestamp":1751089440000},"page":"1065-1082","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["The Psychometric Performance of Generic Preference-Based Measures in Informal Carers: A Systematic Review of Validation Studies"],"prefix":"10.1007","volume":"43","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7645-2079","authenticated-orcid":false,"given":"Jan","family":"Faller","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7335-4852","authenticated-orcid":false,"given":"Valeriia","family":"Sokolova","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5473-3857","authenticated-orcid":false,"given":"Yared Belete","family":"Belay","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8385-5965","authenticated-orcid":false,"given":"Gang","family":"Chen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7127-9462","authenticated-orcid":false,"given":"Cathrine","family":"Mihalopoulos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3656-8063","authenticated-orcid":false,"given":"Brendan","family":"Mulhern","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7959-3149","authenticated-orcid":false,"given":"Lidia","family":"Engel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,6,28]]},"reference":[{"issue":"10","key":"1509_CR1","doi-asserted-by":"publisher","first-page":"1093","DOI":"10.1001\/jama.2016.12195","volume":"316","author":"GD Sanders","year":"2016","unstructured":"Sanders GD, Neumann PJ, Basu A, Brock DW, Feeny D, Krahn M, et al. Recommendations for conduct, methodological practices, and reporting of cost-effectiveness analyses: Second Panel on Cost-Effectiveness in Health and Medicine. JAMA. 2016;316(10):1093\u2013103.","journal-title":"JAMA"},{"issue":"3","key":"1509_CR2","doi-asserted-by":"publisher","first-page":"343","DOI":"10.1007\/s40273-023-01321-3","volume":"42","author":"E Henry","year":"2024","unstructured":"Henry E, Al-Janabi H, Brouwer W, Cullinan J, Engel L, Griffin S, et al. Recommendations for emerging good practice and future research in relation to family and caregiver health spillovers in health economic evaluations: a report of the SHEER Task Force. Pharmacoeconomics. 2024;42(3):343\u201362.","journal-title":"Pharmacoeconomics"},{"issue":"4","key":"1509_CR3","doi-asserted-by":"publisher","first-page":"558","DOI":"10.1016\/j.jval.2022.01.010","volume":"25","author":"PJ Neumann","year":"2022","unstructured":"Neumann PJ, Garrison LP, Willke RJ. The history and future of the \u201cISPOR Value Flower\u201d: addressing limitations of conventional cost-effectiveness analysis. Value Health. 2022;25(4):558\u201365.","journal-title":"Value Health."},{"issue":"4","key":"1509_CR4","doi-asserted-by":"publisher","first-page":"751","DOI":"10.1016\/j.jhealeco.2004.12.002","volume":"24","author":"A Basu","year":"2005","unstructured":"Basu A, Meltzer D. Implications of spillover effects within the family for medical cost-effectiveness analysis. J Health Econ. 2005;24(4):751\u201373.","journal-title":"J Health Econ"},{"issue":"1","key":"1509_CR5","doi-asserted-by":"publisher","first-page":"25","DOI":"10.1007\/BF03256163","volume":"8","author":"T Davidson","year":"2010","unstructured":"Davidson T, Levin L-\u00c5. Is the societal approach wide enough to include relatives? Appl Health Econ Health Policy. 2010;8(1):25\u201335.","journal-title":"Appl Health Econ Health Policy"},{"issue":"11","key":"1509_CR6","doi-asserted-by":"publisher","first-page":"2601","DOI":"10.1007\/s11136-015-1011-x","volume":"24","author":"SE Rand","year":"2015","unstructured":"Rand SE, Malley JN, Netten AP, Forder JE. Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer). Qual Life Res. 2015;24(11):2601\u201314.","journal-title":"Qual Life Res"},{"issue":"6","key":"1509_CR7","doi-asserted-by":"publisher","first-page":"1005","DOI":"10.1007\/s11136-005-5994-6","volume":"15","author":"WB Brouwer","year":"2006","unstructured":"Brouwer WB, van Exel NJ, van Gorp B, Redekop WK. The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Qual Life Res. 2006;15(6):1005\u201321.","journal-title":"Qual Life Res"},{"issue":"3","key":"1509_CR8","doi-asserted-by":"publisher","first-page":"458","DOI":"10.1177\/0272989X10381280","volume":"31","author":"H Al-Janabi","year":"2011","unstructured":"Al-Janabi H, Flynn TN, Coast J. Estimation of a preference-based carer experience scale. Med Decis Making. 2011;31(3):458\u201368.","journal-title":"Med Decis Making"},{"key":"1509_CR9","unstructured":"National Institute for Health and Care Excellence (NICE). NICE health technology evaluations: the manual. 2022. https:\/\/www.nice.org.uk\/process\/pmg36\/chapter\/introduction-to-health-technology-evaluation. Accessed 17 May 2025."},{"issue":"7","key":"1509_CR10","doi-asserted-by":"publisher","first-page":"2167","DOI":"10.1007\/s11136-022-03101-6","volume":"31","author":"D Dawoud","year":"2022","unstructured":"Dawoud D, Lamb A, Moore A, Bregman C, Rupniewska E, Paling T, et al. Capturing what matters: updating NICE methods guidance on measuring and valuing health. Qual Life Res. 2022;31(7):2167\u201373.","journal-title":"Qual Life Res"},{"issue":"12","key":"1509_CR11","doi-asserted-by":"publisher","first-page":"3209","DOI":"10.1007\/s11136-016-1337-z","volume":"25","author":"A Maxwell","year":"2016","unstructured":"Maxwell A, \u00d6zmen M, Iezzi A, Richardson J. Deriving population norms for the AQoL-6D and AQoL-8D multi-attribute utility instruments from web-based data. Qual Life Res. 2016;25(12):3209\u201319.","journal-title":"Qual Life Res"},{"issue":"11","key":"1509_CR12","doi-asserted-by":"publisher","first-page":"4007","DOI":"10.1167\/iovs.04-1389","volume":"46","author":"R Misajon","year":"2005","unstructured":"Misajon R, Hawthorne G, Richardson J, Barton J, Peacock S, Iezzi A, et al. Vision and quality of life: the development of a utility measure. Investig Ophthalmol Vis Sci. 2005;46(11):4007\u201315.","journal-title":"Investig Ophthalmol Vis Sci"},{"key":"1509_CR13","first-page":"343","volume":"85","author":"J Richardson","year":"1998","unstructured":"Richardson J, Hawthorne G. The Australian Quality of Life (AQOL) instrument: psychometric properties of the descriptive system and initial validation. Aust Stud Health Serv Admin. 1998;85:343\u20136.","journal-title":"Aust Stud Health Serv Admin."},{"issue":"1","key":"1509_CR14","doi-asserted-by":"publisher","first-page":"85","DOI":"10.1007\/s40271-013-0036-x","volume":"7","author":"J Richardson","year":"2014","unstructured":"Richardson J, Iezzi A, Khan MA, Maxwell A. Validity and reliability of the Assessment of Quality of Life (AQoL)-8D multi-attribute utility instrument. Patient. 2014;7(1):85\u201396.","journal-title":"Patient"},{"issue":"3","key":"1509_CR15","doi-asserted-by":"publisher","first-page":"172","DOI":"10.3109\/09286586.2012.674613","volume":"19","author":"J Richardson","year":"2012","unstructured":"Richardson J, Iezzi A, Peacock S, Sinha K, Khan M, Misajon R, et al. Utility weights for the vision-related Assessment of Quality of Life (AQoL)-7D instrument. Ophthalmol Epidemiol. 2012;19(3):172\u201382.","journal-title":"Ophthalmol Epidemiol."},{"issue":"1","key":"1509_CR16","doi-asserted-by":"publisher","first-page":"38","DOI":"10.1186\/1477-7525-10-38","volume":"10","author":"JRJ Richardson","year":"2012","unstructured":"Richardson JRJ, Peacock SJ, Hawthorne G, Iezzi A, Elsworth G, Day NA. Construction of the descriptive system for the assessment of quality of life AQoL-6D utility instrument. Health Qual Life Outcomes. 2012;10(1):38.","journal-title":"Health Qual Life Outcomes"},{"key":"1509_CR17","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-89289-0","volume-title":"Value sets for EQ-5D-5L: a compendium, comparative review & user guide","author":"N Devlin","year":"2022","unstructured":"Devlin N, Roudijk B, Ludwig K. Value sets for EQ-5D-5L: a compendium, comparative review & user guide. 1st ed. Cham: Springer; 2022.","edition":"1"},{"key":"1509_CR18","doi-asserted-by":"publisher","DOI":"10.1007\/1-4020-5511-0","volume-title":"EQ-5D value sets: inventory, comparative review and user guide. 1. Aufl. ed","author":"A Szende","year":"2007","unstructured":"Szende A, Devlin N, Oppe M. EQ-5D value sets: inventory, comparative review and user guide. 1. Aufl. ed. Dordrecht: Springer; 2007."},{"issue":"7","key":"1509_CR19","doi-asserted-by":"publisher","first-page":"1073","DOI":"10.1016\/j.jval.2023.02.008","volume":"26","author":"C Mukuria","year":"2023","unstructured":"Mukuria C, Peasgood T, McDool E, Norman R, Rowen D, Brazier J. Valuing the EQ Health and Wellbeing Short using time trade-off and a discrete choice experiment: a feasibility study. Value Health. 2023;26(7):1073\u201384.","journal-title":"Value Health."},{"issue":"1","key":"1509_CR20","doi-asserted-by":"publisher","first-page":"54","DOI":"10.1186\/1477-7525-1-54","volume":"1","author":"J Horsman","year":"2003","unstructured":"Horsman J, Furlong W, Feeny D, Torrance G. The Health Utilities Index (HUI\u00ae): concepts, measurement properties and applications. Health Qual Life Outcomes. 2003;1(1):54.","journal-title":"Health Qual Life Outcomes"},{"issue":"6","key":"1509_CR21","doi-asserted-by":"publisher","first-page":"683","DOI":"10.1177\/0272989X18776637","volume":"38","author":"B Dewitt","year":"2018","unstructured":"Dewitt B, Feeny D, Fischhoff B, Cella D, Hays RD, Hess R, et al. Estimation of a preference-based summary score for the patient-reported outcomes measurement information system: the PROMIS(\u00ae)-Preference (PROPr) scoring system. Med Decis Making. 2018;38(6):683\u201398.","journal-title":"Med Decis Making"},{"issue":"2","key":"1509_CR22","doi-asserted-by":"publisher","first-page":"271","DOI":"10.1016\/S0167-6296(01)00130-8","volume":"21","author":"J Brazier","year":"2002","unstructured":"Brazier J, Roberts J, Deverill M. The estimation of a preference-based measure of health from the SF-36. J Health Econ. 2002;21(2):271\u201392.","journal-title":"J Health Econ"},{"issue":"6","key":"1509_CR23","doi-asserted-by":"publisher","first-page":"557","DOI":"10.1097\/MLR.0000000000001325","volume":"58","author":"JE Brazier","year":"2020","unstructured":"Brazier JE, Mulhern BJ, Bjorner JB, Gandek B, Rowen D, Alonso J, et al. Developing a new version of the SF-6D health state classification system from the SF-36v2: SF-6Dv2. Med Care. 2020;58(6):557\u201365.","journal-title":"Med Care"},{"issue":"9","key":"1509_CR24","doi-asserted-by":"publisher","first-page":"851","DOI":"10.1097\/01.mlr.0000135827.18610.0d","volume":"42","author":"JE Brazier","year":"2004","unstructured":"Brazier JE, Roberts J. The estimation of a preference-based measure of health From the SF-12. Med Care. 2004;42(9):851\u20139.","journal-title":"Med Care"},{"issue":"6","key":"1509_CR25","doi-asserted-by":"publisher","first-page":"783","DOI":"10.1080\/08870449708406739","volume":"12","author":"RM Kaplan","year":"1997","unstructured":"Kaplan RM, Sieber WJ, Ganiats TG. The quality of well-being scale: comparison of the interviewer-administered version with a self-administered questionnaire. Psychol Health. 1997;12(6):783\u201391.","journal-title":"Psychol Health"},{"issue":"5","key":"1509_CR26","doi-asserted-by":"publisher","first-page":"328","DOI":"10.3109\/07853890109002086","volume":"33","author":"H Sintonen","year":"2001","unstructured":"Sintonen H. The 15D instrument of health-related quality of life: properties and applications. Ann Med. 2001;33(5):328\u201336.","journal-title":"Ann Med"},{"key":"1509_CR27","unstructured":"Covidence systematic review software. Melbourne (VIC): Veritas Health Innovation."},{"issue":"7","key":"1509_CR28","doi-asserted-by":"publisher","first-page":"737","DOI":"10.1016\/j.jclinepi.2010.02.006","volume":"63","author":"LB Mokkink","year":"2010","unstructured":"Mokkink LB, Terwee CB, Patrick DL, Alonso J, Stratford PW, Knol DL, et al. The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. J Clin Epidemiol. 2010;63(7):737\u201345.","journal-title":"J Clin Epidemiol"},{"issue":"3","key":"1509_CR29","doi-asserted-by":"publisher","first-page":"91","DOI":"10.1016\/j.tjem.2018.08.001","volume":"18","author":"H Akoglu","year":"2018","unstructured":"Akoglu H. User\u2019s guide to correlation coefficients. Turk J Emerg Med. 2018;18(3):91\u20133.","journal-title":"Turk J Emerg Med."},{"issue":"1","key":"1509_CR30","doi-asserted-by":"publisher","first-page":"34","DOI":"10.1016\/j.jclinepi.2006.03.012","volume":"60","author":"CB Terwee","year":"2007","unstructured":"Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60(1):34\u201342.","journal-title":"J Clin Epidemiol"},{"issue":"4","key":"1509_CR31","doi-asserted-by":"publisher","first-page":"284","DOI":"10.1037\/1040-3590.6.4.284","volume":"6","author":"DV Cicchetti","year":"1994","unstructured":"Cicchetti DV. Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology. Psychol Assess. 1994;6(4):284\u201390.","journal-title":"Psychol Assess"},{"issue":"1","key":"1509_CR32","doi-asserted-by":"publisher","first-page":"159","DOI":"10.2307\/2529310","volume":"33","author":"JR Landis","year":"1977","unstructured":"Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics. 1977;33(1):159\u201374.","journal-title":"Biometrics"},{"issue":"5","key":"1509_CR33","doi-asserted-by":"publisher","first-page":"1171","DOI":"10.1007\/s11136-017-1765-4","volume":"27","author":"LB Mokkink","year":"2018","unstructured":"Mokkink LB, de Vet HCW, Prinsen CAC, Patrick DL, Alonso J, Bouter LM, et al. COSMIN risk of bias checklist for systematic reviews of patient-reported outcome measures. Qual Life Res. 2018;27(5):1171\u20139.","journal-title":"Qual Life Res"},{"key":"1509_CR34","doi-asserted-by":"publisher","DOI":"10.1002\/alz.083961","author":"E Choi","year":"2024","unstructured":"Choi E, Seo HJ, Choo IH, Kim SM, Park JM, Choi YM. Health-related quality of life instrument with 8 items to measure health-related quality of life among family caregivers of people with dementia: a pilot validation study. Public Health Nurs. 2024. https:\/\/doi.org\/10.1002\/alz.083961.","journal-title":"Public Health Nurs"},{"issue":"3","key":"1509_CR35","doi-asserted-by":"publisher","first-page":"955","DOI":"10.1007\/s11482-015-9413-z","volume":"11","author":"CD Wagner","year":"2016","unstructured":"Wagner CD, Bigatti SM. A comparison of quality of life measures in husbands of women with breast cancer. Appl Res Qual Life. 2016;11(3):955\u201369.","journal-title":"Appl Res Qual Life"},{"issue":"1","key":"1509_CR36","doi-asserted-by":"publisher","first-page":"7","DOI":"10.1007\/s10198-024-01688-w","volume":"26","author":"C Bailey","year":"2025","unstructured":"Bailey C, Dalziel K, Constable L, Devlin NJ, Hiscock H, Skouteris H, et al. The performance of the EQ-HWB-9 as a measure of quality-of-life of caregivers in families that have experienced adverse events. Eur J Health Econ. 2025;26(1):7\u201321.","journal-title":"Eur J Health Econ"},{"key":"1509_CR37","doi-asserted-by":"publisher","first-page":"163","DOI":"10.1007\/s40273-024-01351-5","volume":"42","author":"C Bailey","year":"2024","unstructured":"Bailey C, Dalziel K, Jones R, Hiscock H, Devlin NJ, Peasgood T, et al. The validity of the EuroQol Health and Wellbeing Short Version (EQ-HWB-9) instrument in parents of children with and without health conditions. Pharmacoeconomics. 2024;42:163\u201372.","journal-title":"Pharmacoeconomics"},{"issue":"3","key":"1509_CR38","doi-asserted-by":"publisher","first-page":"129","DOI":"10.1097\/00002093-200107000-00004","volume":"15","author":"CM Bell","year":"2001","unstructured":"Bell CM, Araki SS, Neumann PJ. The association between caregiver burden and caregiver health-related quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord. 2001;15(3):129\u201336.","journal-title":"Alzheimer Dis Assoc Disord"},{"issue":"10","key":"1509_CR39","doi-asserted-by":"publisher","first-page":"2909","DOI":"10.1007\/s11136-013-0423-8","volume":"22","author":"R Khanna","year":"2013","unstructured":"Khanna R, Jariwala K, Bentley JP. Psychometric properties of the EuroQol Five Dimensional Questionnaire (EQ-5D-3L) in caregivers of autistic children. Qual Life Res. 2013;22(10):2909\u201320.","journal-title":"Qual Life Res"},{"issue":"1","key":"1509_CR40","doi-asserted-by":"publisher","first-page":"522","DOI":"10.1186\/s12885-019-5721-2","volume":"19","author":"L Li","year":"2019","unstructured":"Li L, Liu C, Cai X, Yu H, Zeng X, Sui M, et al. Validity and reliability of the EQ-5D-5 L in family caregivers of leukemia patients. BMC Cancer. 2019;19(1):522.","journal-title":"BMC Cancer"},{"issue":"6","key":"1509_CR41","doi-asserted-by":"publisher","first-page":"782","DOI":"10.1016\/j.jval.2020.01.015","volume":"23","author":"C McLoughlin","year":"2020","unstructured":"McLoughlin C, Goranitis I, Al-Janabi H. Validity and responsiveness of preference-based quality-of-life measures in informal carers: a comparison of 5 measures across 4 conditions. Value Health. 2020;23(6):782\u201390.","journal-title":"Value Health."},{"issue":"1","key":"1509_CR42","doi-asserted-by":"publisher","first-page":"184","DOI":"10.1186\/s12955-019-1254-2","volume":"17","author":"S Rand","year":"2019","unstructured":"Rand S, Malley J, Vadean F, Forder J. Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3 L. Health Qual Life Outcomes. 2019;17(1):184.","journal-title":"Health Qual Life Outcomes"},{"issue":"1","key":"1509_CR43","doi-asserted-by":"publisher","first-page":"16","DOI":"10.1186\/s12955-017-0591-2","volume":"15","author":"C Reed","year":"2017","unstructured":"Reed C, Barrett A, Lebrec J, Dodel R, Jones RW, Vellas B, et al. How useful is the EQ-5D in assessing the impact of caring for people with Alzheimer\u2019s disease? Health Qual Life Outcomes. 2017;15(1):16.","journal-title":"Health Qual Life Outcomes"},{"issue":"7","key":"1509_CR44","doi-asserted-by":"publisher","first-page":"875","DOI":"10.1017\/S1041610220000605","volume":"32","author":"S Vatter","year":"2020","unstructured":"Vatter S, McDonald KR, Stanmore E, McCormick SA, Clare L, Leroi I. A brief psychometric and clinimetric evaluation of self-report burden and mental health measures completed by care partners of people with Parkinson\u2019s-related dementia. Int Psychogeriatr. 2020;32(7):875\u201380.","journal-title":"Int Psychogeriatr"},{"key":"1509_CR45","doi-asserted-by":"publisher","DOI":"10.3389\/fonc.2022.983704","volume":"12","author":"LF Sun","year":"2022","unstructured":"Sun LF, Huang S, Li YF, Yang ZQ, Yang XJ, Zou JY, et al. Health-related quality of life measured by EQ-5D-3L for the spouses of breast cancer patients. Front Oncol. 2022;12: 983704.","journal-title":"Front Oncol"},{"issue":"10","key":"1509_CR46","doi-asserted-by":"publisher","first-page":"2693","DOI":"10.1007\/s11136-024-03737-6","volume":"33","author":"V Sokolova","year":"2024","unstructured":"Sokolova V, Faller J, Asfia S, Engel L. Assessing the psychometric performance of the EQ-5D-5L among informal caregivers of people with dementia. Qual Life Res. 2024;33(10):2693\u2013704.","journal-title":"Qual Life Res"},{"issue":"8","key":"1509_CR47","doi-asserted-by":"publisher","first-page":"882","DOI":"10.1177\/0272989X17706355","volume":"37","author":"A Bhadhuri","year":"2017","unstructured":"Bhadhuri A, Jowett S, Jolly K, Al-Janabi H. A comparison of the validity and responsiveness of the EQ-5D-5L and SF-6D for measuring health spillovers: a study of the family impact of meningitis. Med Decis Making. 2017;37(8):882\u201393.","journal-title":"Med Decis Making"},{"issue":"4","key":"1509_CR48","doi-asserted-by":"publisher","first-page":"609","DOI":"10.1007\/s40273-019-00789-2","volume":"37","author":"CC Brown","year":"2019","unstructured":"Brown CC, Tilford JM, Payakachat N, Williams DK, Kuhlthau KA, Pyne JM, et al. Measuring health spillover effects in caregivers of hildren with autism spectrum disorder: a comparison of the EQ-5D-3L and SF-6D. Pharmacoeconomics. 2019;37(4):609\u201320.","journal-title":"Pharmacoeconomics"},{"key":"1509_CR49","doi-asserted-by":"publisher","first-page":"49","DOI":"10.1016\/j.vhri.2023.08.008","volume":"39","author":"H Faraji","year":"2024","unstructured":"Faraji H, Soleymani F, Yaseri M, Sahraian MA, Abdollahiasl A, Meftah A, et al. Choosing the best instrument for measuring health spillover effect in caregivers of patients with multiple sclerosis. Value Health Reg Issues. 2024;39:49\u201356.","journal-title":"Value Health Reg Issues."},{"key":"1509_CR50","doi-asserted-by":"publisher","first-page":"967","DOI":"10.1016\/j.jval.2024.03.003","volume":"27","author":"M Kuharic","year":"2024","unstructured":"Kuharic M, Mulhern B, Sharp LK, Turpin RS, Pickard AS. Comparison of EQ Health and Well-Being Long and Short with other preference-based measures among United States informal caregivers. Value Health. 2024;27:967\u201377.","journal-title":"Value Health."},{"key":"1509_CR51","doi-asserted-by":"publisher","first-page":"955","DOI":"10.1016\/j.jval.2024.03.002","volume":"27","author":"M Kuhari\u0107","year":"2024","unstructured":"Kuhari\u0107 M, Pickard AS, Mukuria C, Finch AP. The measurement properties of the EQ Health and Well-being and EQ Health and Well-Being Short Form in Italian population: a comparative study with EQ-5D-5L. Value Health. 2024;27:955\u201366.","journal-title":"Value Health."},{"issue":"9","key":"1509_CR52","doi-asserted-by":"publisher","first-page":"1487","DOI":"10.1007\/s11136-011-9870-2","volume":"20","author":"N Payakachat","year":"2011","unstructured":"Payakachat N, Tilford JM, Brouwer WB, van Exel NJ, Grosse SD. Measuring health and well-being effects in family caregivers of children with craniofacial malformations. Qual Life Res. 2011;20(9):1487\u201395.","journal-title":"Qual Life Res"},{"key":"1509_CR53","doi-asserted-by":"publisher","DOI":"10.3389\/fpubh.2021.742332","author":"CY Sun","year":"2021","unstructured":"Sun CY, Liu Y, Zhou LR, Wang MS, Zhao XM, Huang WD, et al. Comparison of EuroQol-5D-3L and Short Form-6D utility scores in family caregivers of colorectal cancer patients: a cross-sectional survey in China. Front Public Health. 2021. https:\/\/doi.org\/10.3389\/fpubh.2021.742332.","journal-title":"Front Public Health"},{"issue":"1","key":"1509_CR54","first-page":"14","volume":"32","author":"H Zhang","year":"2023","unstructured":"Zhang H, Liu B, Gu W, Cao Y, Xu J, Tan RL, et al. A head-to-head comparison of the measurement properties of EQ-5D-3L and EQ-5D-5L in Chinese family caregivers of cancer patients. Support Care Cancer. 2023;32(1):14.","journal-title":"Support Care Cancer"},{"issue":"10","key":"1509_CR55","doi-asserted-by":"publisher","first-page":"1349","DOI":"10.1016\/j.jval.2020.05.017","volume":"23","author":"BM Pennington","year":"2020","unstructured":"Pennington BM. Inclusion of carer health-related quality of life in National Institute for Health and Care Excellence appraisals. Value Health. 2020;23(10):1349\u201357.","journal-title":"Value Health."},{"issue":"2","key":"1509_CR56","doi-asserted-by":"publisher","first-page":"123","DOI":"10.1007\/s40273-014-0218-y","volume":"33","author":"M Krol","year":"2015","unstructured":"Krol M, Papenburg J, van Exel J. Does including informal care in economic evaluations matter? A systematic review of inclusion and impact of informal care in cost-effectiveness studies. Pharmacoeconomics. 2015;33(2):123\u201335.","journal-title":"Pharmacoeconomics"},{"key":"1509_CR57","unstructured":"Pharmacuical Benefits Advisory Committee (PBAC). The pharmaceutical benefits advisory committee guidelines. 2016. https:\/\/pbac.pbs.gov.au\/information\/about-the-guidelines.html. Accessed 17 May 2025."},{"issue":"4","key":"1509_CR58","doi-asserted-by":"publisher","first-page":"482","DOI":"10.1016\/j.jval.2022.01.009","volume":"25","author":"J Brazier","year":"2022","unstructured":"Brazier J, Peasgood T, Mukuria C, Marten O, Kreimeier S, Luo N, et al. The EQ-HWB: overview of the development of a measure of health and wellbeing and key results. Value Health. 2022;25(4):482\u201391.","journal-title":"Value Health."},{"issue":"4","key":"1509_CR59","doi-asserted-by":"publisher","first-page":"492","DOI":"10.1016\/j.jval.2021.11.1371","volume":"25","author":"C Mukuria","year":"2022","unstructured":"Mukuria C, Connell J, Carlton J, Peasgood T, Scope A, Clowes M, et al. Qualitative review on domains of quality of life important for patients, social care users, and informal carers to inform the development of the EQ-HWB. Value Health. 2022;25(4):492\u2013511.","journal-title":"Value Health."}],"container-title":["PharmacoEconomics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s40273-025-01509-9.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s40273-025-01509-9\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s40273-025-01509-9.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,9,7]],"date-time":"2025-09-07T01:00:22Z","timestamp":1757206822000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s40273-025-01509-9"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6,28]]},"references-count":59,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2025,9]]}},"alternative-id":["1509"],"URL":"https:\/\/doi.org\/10.1007\/s40273-025-01509-9","relation":{},"ISSN":["1170-7690","1179-2027"],"issn-type":[{"value":"1170-7690","type":"print"},{"value":"1179-2027","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,6,28]]},"assertion":[{"value":"8 May 2025","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"28 June 2025","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Open Access funding enabled and organized by CAUL and its Member Institutions. Jan Faller and this work is supported by an Australian Government Research Training Program (RTP) Scholarship and the EuroQol Foundation (1481-PHD) through a grant awarded to Lidia Engel.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Funding"}},{"value":"Jan Faller, Valeriia Sokolova, Yared Belete Belay, Brendan Mulhern and Lidia Engel have received previous or current funding from the EuroQol Research Foundation, who is the developer and copyright holder of the EQ-5D and EQ-HWB-9 instruments included in this study. Lidia Engel and Brendan Mulhern are members of the EuroQol Group, developers of the EQ-5D and the EQ-HWB-9. Gang Chen and Cathrine Mihalopoulos have no conflicts of interest that are directly relevant to the content of this article. Views expressed in this paper are those of the authors and are not necessarily those of the EuroQol Research Foundation.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflicts of Interest"}},{"value":"The current review was registered with the International Prospective Register of Systematic Reviews (PROSPERO) under registration number CRD42023434651. The protocol was amended broadening the scope of the review to include other GPBMs.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Review Registration"}},{"value":"Not applicable.","order":5,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent to Participate"}},{"value":"Not applicable.","order":6,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for Publication"}},{"value":"All data and materials are available within the article and supplementary resources. Further information may be available by request to the corresponding author.","order":7,"name":"Ethics","group":{"name":"EthicsHeading","label":"Availability of Data and Material"}},{"value":"Not applicable.","order":8,"name":"Ethics","group":{"name":"EthicsHeading","label":"Code Availability"}},{"value":"Jan Faller and Lidia Engel designed the study and wrote the protocol. Lidia Engel acquired funding. Jan Faller performed the literature search. Jan Faller, Valeriia Sokolova, Yared Belete Belay and Lidia Engel contributed to article screening, extraction and quality assessment. All authors contributed to the interpretation of the data. Jan Faller and Lidia Engel produced the first draft of the manuscript. All authors read, edited and approved the final version of the manuscript.","order":9,"name":"Ethics","group":{"name":"EthicsHeading","label":"Authors\u2019 Contributions"}}]}}