{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,30]],"date-time":"2026-08-30T06:31:52Z","timestamp":1788071512686,"version":"build-2784847793"},"reference-count":85,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2021,6,25]],"date-time":"2021-06-25T00:00:00Z","timestamp":1624579200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springer.com\/tdm"},{"start":{"date-parts":[[2021,6,25]],"date-time":"2021-06-25T00:00:00Z","timestamp":1624579200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Monash Bioeth. Rev."],"published-print":{"date-parts":[[2021,7]]},"DOI":"10.1007\/s40592-021-00130-8","type":"journal-article","created":{"date-parts":[[2021,6,25]],"date-time":"2021-06-25T11:02:34Z","timestamp":1624618954000},"page":"94-114","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Human research ethics committees members: ethical review personal perceptions"],"prefix":"10.1007","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4745-6390","authenticated-orcid":false,"given":"Boris","family":"Handal","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chris","family":"Campbell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kevin","family":"Watson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marguerite","family":"Maher","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Keagan","family":"Brewer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne-Marie","family":"Irwin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marc","family":"Fellman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2021,6,25]]},"reference":[{"issue":"1","key":"130_CR1","doi-asserted-by":"publisher","first-page":"56","DOI":"10.1108\/JFC-01-2016-0003","volume":"24","author":"A Adeyeye","year":"2017","unstructured":"Adeyeye, A. 2017. Bribery: Cost of doing business in Africa. Journal of Financial Crime 24 (1): 56\u201364. https:\/\/doi.org\/10.1108\/JFC-01-2016-0003.","journal-title":"Journal of Financial Crime"},{"issue":"3","key":"130_CR2","doi-asserted-by":"publisher","first-page":"180","DOI":"10.1080\/13668250600876400","volume":"31","author":"M Aman","year":"2006","unstructured":"Aman, M., and B. Handen. 2006. Reactions to ethical challenges and complexities of including people with intellectual disability as participants in research by Dr Teresa Iacono. Journal of Intellectual & Developmental Disability 31 (3): 180\u2013180. https:\/\/doi.org\/10.1080\/13668250600876400.","journal-title":"Journal of Intellectual & Developmental Disability"},{"issue":"4","key":"130_CR3","doi-asserted-by":"publisher","first-page":"186","DOI":"10.1111\/j.1467-8519.2011.01943.x","volume":"27","author":"A Asai","year":"2013","unstructured":"Asai, A., and Y. Kadooka. 2013. Re-examination of the ethics of placebo use in clinical practice. Bioethics 27 (4): 186\u2013193. https:\/\/doi.org\/10.1111\/j.1467-8519.2011.01943.x.","journal-title":"Bioethics"},{"issue":"1","key":"130_CR4","doi-asserted-by":"publisher","first-page":"44","DOI":"10.1258\/ce.2008.008047","volume":"4","author":"N Athanassoulis","year":"2009","unstructured":"Athanassoulis, N., and J. Wilson. 2009. When is deception in research ethical? Clinical Ethics 4 (1): 44\u201349. https:\/\/doi.org\/10.1258\/ce.2008.008047.","journal-title":"Clinical Ethics"},{"issue":"1","key":"130_CR5","doi-asserted-by":"publisher","first-page":"44","DOI":"10.1186\/1745-6215-13-44","volume":"13","author":"AL Avins","year":"2012","unstructured":"Avins, A.L., D.C. Cherkin, K.J. Sherman, H. Goldberg, and A. Pressman. 2012. Should we reconsider the routine use of placebo controls in clinical research? Trials 13 (1): 44\u201344. https:\/\/doi.org\/10.1186\/1745-6215-13-44.","journal-title":"Trials"},{"issue":"1","key":"130_CR6","doi-asserted-by":"publisher","first-page":"3","DOI":"10.1080\/10888691.2012.642771","volume":"16","author":"PL Benson","year":"2012","unstructured":"Benson, P.L., N. Leffert, P.C. Scales, and D.A. Blyth. 2012. Beyond the \u201cvillage\u201d rhetoric: Creating healthy communities for children and adolescents. Applied Developmental Science 16 (1): 3.","journal-title":"Applied Developmental Science"},{"issue":"4","key":"130_CR7","doi-asserted-by":"publisher","first-page":"186","DOI":"10.1046\/j.1445-5994.2003.00373.x","volume":"33","author":"KJ Breen","year":"2003","unstructured":"Breen, K.J. 2003. Misconduct in medical research: Whose responsibility? International Medicine Journal 33 (4): 186\u2013191. https:\/\/doi.org\/10.1046\/j.1445-5994.2003.00373.x.","journal-title":"International Medicine Journal"},{"issue":"2","key":"130_CR8","doi-asserted-by":"publisher","first-page":"217","DOI":"10.1016\/S0306-4603(99)00041-6","volume":"25","author":"JL Brody","year":"2000","unstructured":"Brody, J.L., and H.B. Waldron. 2000. Ethical issues in research on the treatment of adolescent substance abuse disorders. Addictive Behaviors 25 (2): 217\u2013228. https:\/\/doi.org\/10.1016\/S0306-4603(99)00041-6.","journal-title":"Addictive Behaviors"},{"key":"130_CR9","doi-asserted-by":"publisher","first-page":"233","DOI":"10.1037\/11878-011","volume-title":"Research with high-risk populations: Balancing science, ethics, and law","author":"DR Buchanan","year":"2009","unstructured":"Buchanan, D.R., L. Gable, and C.B. Fisher. 2009. Best practices for responding to threats of violence in research ethically and legally. In Research with high-risk populations: Balancing science, ethics, and law, ed. D.R. Buchanan, C.B. Fisher, and L. Gable, 233\u2013252. Washington, D.C: American Psychological Association."},{"issue":"1","key":"130_CR10","doi-asserted-by":"publisher","first-page":"30","DOI":"10.1177\/1090198102029001005","volume":"29","author":"D Buchanan","year":"2002","unstructured":"Buchanan, D., K. Khoshnood, T. Stopka, S. Shaw, C. Santelices, and M. Singer. 2002. Ethical dilemmas created by the criminalization of status behaviors: Case examples from ethnographic field research with injection drug users. Health Education & Behavior 29 (1): 30\u201342. https:\/\/doi.org\/10.1177\/1090198102029001005.","journal-title":"Health Education & Behavior"},{"key":"130_CR11","doi-asserted-by":"crossref","unstructured":"Carpenter, D. (2008). Research ethics relating to cancer. In J. Gabriel (Ed.), The Biology of Cancer (pp. 153\u2013165). West Sussex, England: John Wiley & Sons Ltd.","DOI":"10.1002\/9780470988121.ch13"},{"key":"130_CR12","doi-asserted-by":"publisher","first-page":"S53","DOI":"10.1016\/j.actatropica.2009.08.004","volume":"112","author":"R Chilengi","year":"2009","unstructured":"Chilengi, R. 2009. An ethics perspective on responsibilities of investigators, sponsors and research participants. Acta Tropica 112: S53\u2013S62. https:\/\/doi.org\/10.1016\/j.actatropica.2009.08.004.","journal-title":"Acta Tropica"},{"issue":"3","key":"130_CR13","doi-asserted-by":"publisher","first-page":"43","DOI":"10.1007\/BF03351300","volume":"27","author":"J Daly","year":"2008","unstructured":"Daly, J., M. Bandyopadhyay, E. Riggs, and L. Williamson. 2008. Ethical review and the assessment of research proposals using qualitative research methods. Monash Bioethics Review 27 (3): 43\u201353.","journal-title":"Monash Bioethics Review"},{"issue":"2","key":"130_CR14","doi-asserted-by":"publisher","first-page":"79","DOI":"10.1177\/104973202129119793","volume":"12","author":"D Davies","year":"2002","unstructured":"Davies, D., and J. Dodd. 2002. Qualitative research and the question of rigor. Qualitative Health Research 12 (2): 79\u201389. https:\/\/doi.org\/10.1177\/104973202129119793.","journal-title":"Qualitative Health Research"},{"issue":"2","key":"130_CR15","doi-asserted-by":"publisher","first-page":"33","DOI":"10.4066\/AMJ.2015.2587","volume":"9","author":"E De Smit","year":"2016","unstructured":"De Smit, E., L.S. Kearns, L. Clarke, J. Dick, C.L. Hill, and A.W. Hewitt. 2016. Heterogeneity of human research ethics committees and research governance offices across Australia: An observational study. Australasian Medical Journal 9 (2): 33\u201339. https:\/\/doi.org\/10.4066\/AMJ.2015.2587.","journal-title":"Australasian Medical Journal"},{"issue":"2","key":"130_CR16","doi-asserted-by":"publisher","first-page":"89","DOI":"10.3928\/00485713-20140205-07","volume":"44","author":"N Devdutt","year":"2014","unstructured":"Devdutt, N., and C. Vicky. 2014. Use of placebos poses ethical dilemma. Psychiatric Annals 44 (2): 89. https:\/\/doi.org\/10.3928\/00485713-20140205-07.","journal-title":"Psychiatric Annals"},{"issue":"6","key":"130_CR17","doi-asserted-by":"publisher","first-page":"576","DOI":"10.1111\/j.1467-842X.2005.tb00254.x","volume":"29","author":"V Dickson-Swift","year":"2005","unstructured":"Dickson-Swift, V., E.L. James, and S. Kippen. 2005. Do university ethics committees adequately protect public health researchers? Australian and New Zealand Journal of Public Health 29 (6): 576\u2013579. https:\/\/doi.org\/10.1111\/j.1467-842X.2005.tb00254.x.","journal-title":"Australian and New Zealand Journal of Public Health"},{"issue":"1","key":"130_CR18","doi-asserted-by":"publisher","first-page":"133","DOI":"10.1177\/1049732307309007","volume":"18","author":"V Dickson-Swift","year":"2008","unstructured":"Dickson-Swift, V., E.L. James, S. Kippen, and P. Liamputtong. 2008. Risk to researchers in qualitative research on sensitive topics: Issues and strategies. Qualitative Health Research 18 (1): 133\u2013144. https:\/\/doi.org\/10.1177\/1049732307309007.","journal-title":"Qualitative Health Research"},{"issue":"4","key":"130_CR19","doi-asserted-by":"publisher","first-page":"762","DOI":"10.1093\/bjc\/42.4.762","volume":"42","author":"D Feenan","year":"2002","unstructured":"Feenan, D. 2002. Legal issues in acquiring information about illegal behaviour through criminological research. British Journal of Criminology 42 (4): 762\u2013781. https:\/\/doi.org\/10.1093\/bjc\/42.4.762.","journal-title":"British Journal of Criminology"},{"issue":"1","key":"130_CR20","doi-asserted-by":"publisher","first-page":"6","DOI":"10.1177\/1558689809349691","volume":"4","author":"MY Feilzer","year":"2010","unstructured":"Feilzer, M.Y. 2010. Doing mixed methods research pragmatically: Implications for the rediscovery of pragmatism as a research paradigm. Journal of Mixed Methods Research 4 (1): 6\u201316. https:\/\/doi.org\/10.1177\/1558689809349691.","journal-title":"Journal of Mixed Methods Research"},{"key":"130_CR21","doi-asserted-by":"publisher","first-page":"25","DOI":"10.1037\/11878-001","volume-title":"Research with high-risk populations: Balancing science, ethics, and law","author":"CB Fisher","year":"2009","unstructured":"Fisher, C.B., and S.J. Goodman. 2009. Goodness-of-fit ethics for nonintervention research involving dangerous and illegal behaviours. In Research with high-risk populations: Balancing science, ethics, and law, vol. 8, ed. D.R. Buchanan, C.B. Fisher, and L. Gable, 25\u201346. Washington, DC, US: American Psychological Association."},{"issue":"5","key":"130_CR22","doi-asserted-by":"publisher","first-page":"2086","DOI":"10.2307\/1131611","volume":"67","author":"CB Fisher","year":"1996","unstructured":"Fisher, C.B., A. Higgins-D\u2019Alessandro, J.M. Rau, T.L. Kuther, and S. Belanger. 1996. Referring and reporting research participants at risk: Views from urban adolescents. Child Development 67 (5): 2086\u20132100. https:\/\/doi.org\/10.2307\/1131611.","journal-title":"Child Development"},{"issue":"4","key":"130_CR23","doi-asserted-by":"publisher","first-page":"21","DOI":"10.1525\/jer.2006.1.4.21","volume":"1","author":"CL Fry","year":"2006","unstructured":"Fry, C.L., W. Hall, A. Ritter, and R. Jenkinson. 2006. The ethics of paying drug users who participate in research: A review and practical recommendations. Journal of Empirical Research on Human Research Ethics: an International Journal 1 (4): 21\u201336. https:\/\/doi.org\/10.1525\/jer.2006.1.4.21.","journal-title":"Journal of Empirical Research on Human Research Ethics: an International Journal"},{"issue":"9","key":"130_CR24","doi-asserted-by":"publisher","first-page":"542","DOI":"10.1136\/jme.2004.009290","volume":"31","author":"CL Fry","year":"2005","unstructured":"Fry, C.L., A. Ritter, S. Baldwin, K.J. Bowen, P. Gardiner, T. Holt, R. Henkinson, and J. Johnston. 2005. Paying research participants: A study of current practices in Australia. Journal of Medical Ethics 31 (9): 542\u2013547. https:\/\/doi.org\/10.1136\/jme.2004.009290.","journal-title":"Journal of Medical Ethics"},{"issue":"9","key":"130_CR25","doi-asserted-by":"publisher","first-page":"1319","DOI":"10.1080\/09652140120070373","volume":"96","author":"C Fry","year":"2001","unstructured":"Fry, C., and R. Dwyer. 2001. For love or money? An exploratory study of why injecting drug users participate in research. Addiction 96 (9): 1319\u20131325. https:\/\/doi.org\/10.1080\/09652140120070373.","journal-title":"Addiction"},{"issue":"4","key":"130_CR26","doi-asserted-by":"publisher","first-page":"175","DOI":"10.1177\/014107680609900413","volume":"99","author":"A Gaw","year":"2006","unstructured":"Gaw, A. 2006. Beyond consent: The potential for atrocity. Journal of the Royal Society of Medicine 99 (4): 175\u2013177.","journal-title":"Journal of the Royal Society of Medicine"},{"issue":"6","key":"130_CR27","doi-asserted-by":"publisher","first-page":"580","DOI":"10.1111\/j.1467-842X.2005.tb00255.x","volume":"29","author":"L Gillam","year":"2005","unstructured":"Gillam, L. 2005. Protecting researchers is not the role of HRECs. Australian and New Zealand Journal of Public Health 29 (6): 580\u2013581. https:\/\/doi.org\/10.1111\/j.1467-842X.2005.tb00255.x.","journal-title":"Australian and New Zealand Journal of Public Health"},{"issue":"1","key":"130_CR29","doi-asserted-by":"publisher","first-page":"214","DOI":"10.1111\/j.1475-6773.2005.00458.x","volume":"41","author":"LA Green","year":"2006","unstructured":"Green, L.A., J.C. Lowery, C.P. Kowalski, and L. Wyszewianski. 2006. Impact of institutional review board practice variation on observational health services research. Health Services Research 41 (1): 214\u2013230. https:\/\/doi.org\/10.1111\/j.1475-6773.2005.00458.x.","journal-title":"Health Services Research"},{"issue":"1","key":"130_CR30","doi-asserted-by":"publisher","first-page":"8","DOI":"10.1016\/S1322-7696(08)60396-0","volume":"8","author":"J Greenwood","year":"2001","unstructured":"Greenwood, J., C. Holmes, and J. Bidewell. 2001. Mission impossible? Developing best practice guidelines for institutional ethics committees (IECs) in Greater Sydney. Collegian 8 (1): 8.","journal-title":"Collegian"},{"issue":"2","key":"130_CR31","doi-asserted-by":"publisher","first-page":"38","DOI":"10.1525\/jer.2012.7.3.38","volume":"7","author":"M Guillemin","year":"2012","unstructured":"Guillemin, M., L. Gillam, D. Rosenthal, and A. Bolitho. 2012. Human research ethics committees: Examining their roles and practices. Journal of Empirical Research on Human Research Ethics 7 (2): 38\u201349. https:\/\/doi.org\/10.1525\/jer.2012.7.3.38.","journal-title":"Journal of Empirical Research on Human Research Ethics"},{"issue":"4","key":"130_CR32","doi-asserted-by":"publisher","first-page":"391","DOI":"10.1023\/B:QUAS.0000049239.15922.a3","volume":"27","author":"KD Haggerty","year":"2004","unstructured":"Haggerty, K.D. 2004. Ethics creep: Governing social science research in the name of ethics. Qualitative Sociology. 27 (4): 391\u2013414.","journal-title":"Qualitative Sociology."},{"issue":"11\u201312","key":"130_CR33","doi-asserted-by":"publisher","first-page":"619","DOI":"10.5694\/j.1326-5377.2006.tb00731.x","volume":"185","author":"BM Hall","year":"2006","unstructured":"Hall, B.M. 2006. Australia needs an office of academic integrity. The Medical Journal of Australia 185 (11\u201312): 619.","journal-title":"The Medical Journal of Australia"},{"key":"130_CR34","first-page":"71","volume-title":"Conducting research in a changing and challenging world","author":"R Hall","year":"2013","unstructured":"Hall, R. 2013. Mixed methods: In search of a paradigm. In Conducting research in a changing and challenging world, ed. T. Le and Q. Le, 71\u201378. New York: Nova Science Publishers."},{"issue":"13","key":"130_CR35","doi-asserted-by":"publisher","first-page":"139","DOI":"10.1108\/S1529-209620150000013009","volume":"9","author":"B Handal","year":"2015","unstructured":"Handal, B., K. Watson, M. Fellman, M. Maher, and M. White. 2015. Unpacking the beliefs and attitudes of Australian HREC members: An examination of influences on reviewer decision-making. Research in Ethical Issues in Organizations 9 (13): 139\u2013152. https:\/\/doi.org\/10.1108\/S1529-209620150000013009.","journal-title":"Research in Ethical Issues in Organizations"},{"issue":"3","key":"130_CR36","first-page":"405","volume":"24","author":"B Handal","year":"2017","unstructured":"Handal, B., K. Watson, B. Brewer, M. Fellman, M. Maher, H. Ianniello, and M. White. 2017. Personal views of HREC members on contested issues: Possible influences on reviewer decision-making. Ethical Perspectives 24 (3): 405\u2013439.","journal-title":"Ethical Perspectives"},{"key":"130_CR37","unstructured":"Handal, B., Lynch, S., Watson, K., Maher, M. & Hellyer, G. (2016). Teaching digital citizenship in higher education. In L.E. Dyson, W. Ng & J. Fergusson (Eds.), Mobile Learning Futures \u2013 Sustaining Quality Research Practice in Mobile Learning, 15th World Conference on Mobile and Contextual Learning mLearn (pp. 112\u2013121). Sydney, Australia, October 24\u201326, 2016."},{"issue":"2","key":"130_CR38","doi-asserted-by":"publisher","first-page":"103","DOI":"10.1177\/1558689813483987","volume":"7","author":"SN Hesse-Biber","year":"2013","unstructured":"Hesse-Biber, S.N., and B. Johnson. 2013. Coming at things differently: Future directions of possible engagement with mixed methods research. Journal of Mixed Methods Research 7 (2): 103\u2013109. https:\/\/doi.org\/10.1177\/1558689813483987.","journal-title":"Journal of Mixed Methods Research"},{"issue":"12","key":"130_CR39","doi-asserted-by":"publisher","first-page":"1417","DOI":"10.1111\/j.1553-2712.2002.tb01612.x","volume":"9","author":"JM Hirshon","year":"2002","unstructured":"Hirshon, J.M., S.D. Krugman, M.D. Witting, J.P. Furuno, M.R. Limcangco, A.R. Perisse, and E.K. Rasch. 2002. Variability in institutional review board assessment of minimal-risk research. Academic Emergency Medicine: Official Journal of the Society for Academic Emergency Medicine 9 (12): 1417\u20131420. https:\/\/doi.org\/10.1111\/j.1553-2712.2002.tb01612.x.","journal-title":"Academic Emergency Medicine: Official Journal of the Society for Academic Emergency Medicine"},{"issue":"2","key":"130_CR40","first-page":"449","volume":"33","author":"S Hoffman","year":"2001","unstructured":"Hoffman, S. 2001. The use of placebos in clinical trials: Responsible research or unethical practice? Connecticut Law Review 33 (2): 449.","journal-title":"Connecticut Law Review"},{"issue":"3","key":"130_CR41","doi-asserted-by":"publisher","first-page":"173","DOI":"10.1080\/13668250600876392","volume":"31","author":"T Iacono","year":"2006","unstructured":"Iacono, T. 2006. Ethical challenges and complexities of including people with intellectual disability as participants in research. Journal of Intellectual & Developmental Disability 31 (3): 173\u2013173. https:\/\/doi.org\/10.1080\/13668250600876392.","journal-title":"Journal of Intellectual & Developmental Disability"},{"key":"130_CR42","first-page":"259","volume-title":"The BERA\/SAGE handbook of educational research","author":"RB Johnson","year":"2016","unstructured":"Johnson, R.B., A.J. Onwuegbuzie, C. de Waal, T. Stefurak, and D. Hildebrand. 2016. Unpacking pragmatism for mixed methods research. In The BERA\/SAGE handbook of educational research, vol. 2, ed. D. Wyse, N. Selwyn, E. Smith, and L.E. Suter, 259\u2013279. London: SAGE Publications."},{"issue":"3","key":"130_CR43","first-page":"323","volume":"86","author":"S Justman","year":"2013","unstructured":"Justman, S. 2013. Deceit and transparency in placebo research. The Yale Journal of Biology and Medicine 86 (3): 323\u2013331.","journal-title":"The Yale Journal of Biology and Medicine"},{"issue":"6","key":"130_CR44","doi-asserted-by":"publisher","first-page":"1041","DOI":"10.1111\/j.1365-2753.2009.01246.x","volume":"16","author":"M Kottow","year":"2010","unstructured":"Kottow, M. 2010. The improper use of research placebos. Journal of Evaluation in Clinical Practice 16 (6): 1041\u20131044. https:\/\/doi.org\/10.1111\/j.1365-2753.2009.01246.x.","journal-title":"Journal of Evaluation in Clinical Practice"},{"issue":"2","key":"130_CR45","doi-asserted-by":"publisher","first-page":"114","DOI":"10.1111\/j.1741-1130.2006.00062.x","volume":"3","author":"R Lai","year":"2006","unstructured":"Lai, R., D. Elliott, and H. Ouellette-Kuntz. 2006. Attitudes of research ethics committee members toward individuals with intellectual disabilities: The need for more research. Journal of Policy and Practice in Intellectual Disabilities 3 (2): 114\u2013118. https:\/\/doi.org\/10.1111\/j.1741-1130.2006.00062.x.","journal-title":"Journal of Policy and Practice in Intellectual Disabilities"},{"issue":"1","key":"130_CR46","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1027\/0227-5910.30.1.13","volume":"30","author":"R Lakeman","year":"2009","unstructured":"Lakeman, R., and M. Fitzgerald. 2009. The ethics of suicide research. Crisis 30 (1): 13.","journal-title":"Crisis"},{"issue":"1","key":"130_CR47","doi-asserted-by":"publisher","first-page":"85","DOI":"10.1136\/jme.2003.005900","volume":"30","author":"C Lenk","year":"2004","unstructured":"Lenk, C., K. Radenbach, M. Dahl, and C. Wiesemann. 2004. Non-therapeutic research with minors: How do chairpersons of German research ethics committees decide? Journal of Medical Ethics 30 (1): 85\u201387. https:\/\/doi.org\/10.1136\/jme.2003.005900.","journal-title":"Journal of Medical Ethics"},{"issue":"5","key":"130_CR48","doi-asserted-by":"publisher","first-page":"385","DOI":"10.1016\/S1054-139X(03)00184-8","volume":"33","author":"C Lothen-Kline","year":"2003","unstructured":"Lothen-Kline, C., D.E. Howard, E.K. Hamburger, K.D. Worrell, and B.O. Boekeloo. 2003. Truth and consequences: Ethics, confidentiality, and disclosure in adolescent longitudinal prevention research. The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine 33 (5): 385\u2013394. https:\/\/doi.org\/10.1016\/S1054-139X(03)00184-8.","journal-title":"The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine"},{"key":"130_CR49","doi-asserted-by":"publisher","first-page":"93","DOI":"10.1037\/11878-004","volume-title":"Research with high-risk populations: Balancing science, ethics, and law","author":"L Ma","year":"2009","unstructured":"Ma, L., E. Phelps, J.V. Lerner, and R.M. Lerner. 2009. Longitudinal research in school bullying: Adolescents who bully and who are bullied. In Research with high-risk populations: Balancing science, ethics, and law, ed. D.R. Buchanan, C.B. Fisher, and L. Gable, 93\u2013108. Washington, DC, US: American Psychological Association."},{"issue":"3","key":"130_CR50","doi-asserted-by":"publisher","first-page":"381","DOI":"10.1111\/taja.12109_4","volume":"25","author":"M Macintyre","year":"2014","unstructured":"Macintyre, M. 2014. Problems with ethics committees. The Australian Journal of Anthropology 25 (3): 381\u2013383. https:\/\/doi.org\/10.1111\/taja.12109_4.","journal-title":"The Australian Journal of Anthropology"},{"issue":"4","key":"130_CR51","doi-asserted-by":"publisher","first-page":"377","DOI":"10.1197\/j.aem.2006.11.031","volume":"14","author":"J Mansbach","year":"2007","unstructured":"Mansbach, J., U. Acholonu, S. Clark, and C.A. Camargo. 2007. Variation in institutional review board responses to a standard, observational, pediatric research protocol. Academic Emergency Medicine 14 (4): 377\u2013380. https:\/\/doi.org\/10.1197\/j.aem.2006.11.031.","journal-title":"Academic Emergency Medicine"},{"issue":"22","key":"130_CR52","doi-asserted-by":"publisher","first-page":"2669","DOI":"10.1001\/jama.2008.803","volume":"300","author":"AL McGuire","year":"2008","unstructured":"McGuire, A.L., and W. Burke. 2008. An unwelcome side effect of direct-to-consumer personal genome testing: Raiding the medical commons. The Journal of the American Medical Association 300 (22): 2669\u20132671. https:\/\/doi.org\/10.1001\/jama.2008.803.","journal-title":"The Journal of the American Medical Association"},{"issue":"5","key":"130_CR53","doi-asserted-by":"publisher","first-page":"199","DOI":"10.1016\/j.tig.2009.12.007","volume":"26","author":"AL McGuire","year":"2010","unstructured":"McGuire, A.L., and J.R. Lupinski. 2010. Personal genome research: what should the participant be told? Trends in Genetics: TIG 26 (5): 199\u2013201. https:\/\/doi.org\/10.1016\/j.tig.2009.12.007.","journal-title":"Trends in Genetics: TIG"},{"issue":"5","key":"130_CR54","doi-asserted-by":"publisher","first-page":"390","DOI":"10.1111\/1467-8519.00079","volume":"11","author":"P McNeill","year":"1997","unstructured":"McNeill, P. 1997. Paying people to participate in research: Why not? Bioethics 11 (5): 390\u2013390. https:\/\/doi.org\/10.1111\/1467-8519.00079.","journal-title":"Bioethics"},{"issue":"3","key":"130_CR55","doi-asserted-by":"publisher","first-page":"360","DOI":"10.1001\/jama.290.3.360","volume":"290","author":"R McWilliams","year":"2003","unstructured":"McWilliams, R., J. Hoover-Fong, A. Hamosh, S. Beck, T. Beaty, and G. Cutting. 2003. Problematic variation in local institutional review of a multicenter genetic epidemiology study. The Journal of the American Medical Association 290 (3): 360\u2013366. https:\/\/doi.org\/10.1001\/jama.290.3.360.","journal-title":"The Journal of the American Medical Association"},{"issue":"6","key":"130_CR56","doi-asserted-by":"publisher","first-page":"409","DOI":"10.1016\/S1054-139X(02)00365-8","volume":"30","author":"ET Moolchan","year":"2002","unstructured":"Moolchan, E.T., and R. Mermelstein. 2002. Research on tobacco use among teenagers: ethical challenges. The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine 30 (6): 409\u2013417.","journal-title":"The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine"},{"key":"130_CR57","doi-asserted-by":"publisher","DOI":"10.1177\/1747016116677636","author":"J Mooney-Somers","year":"2016","unstructured":"Mooney-Somers, J., and A. Olsen. 2016. Ethical review and qualitative research competence: Guidance for reviewers and applicants. Research Ethics. https:\/\/doi.org\/10.1177\/1747016116677636.","journal-title":"Research Ethics"},{"key":"130_CR58","unstructured":"National Health and Medical Research Council (2007a). Australian code for the responsible conduct of research. Canberra. Retrieved from: https:\/\/www.nhmrc.gov.au\/guidelines-publications\/r39"},{"key":"130_CR59","unstructured":"National Health and Medical Research Centre, Australian Research Council. (2007b). National Statement on Ethical Conduct in Human Research. Available at https:\/\/www.nhmrc.gov.au."},{"issue":"1","key":"130_CR60","doi-asserted-by":"publisher","first-page":"12","DOI":"10.1111\/j.1445-5994.2006.01234.x","volume":"37","author":"JP Newcombe","year":"2007","unstructured":"Newcombe, J.P., and I.H. Kerridge. 2007. Assessment by human research ethics committees of potential conflicts of interest arising from pharmaceutical sponsorship of clinical research. Internal Medicine Journal 37 (1): 12\u201317. https:\/\/doi.org\/10.1111\/j.1445-5994.2006.01234.x.","journal-title":"Internal Medicine Journal"},{"issue":"4","key":"130_CR61","doi-asserted-by":"publisher","first-page":"15","DOI":"10.1007\/BF03351329","volume":"29","author":"I Pieper","year":"2011","unstructured":"Pieper, I., and C.J. Thomson. 2011. Contextualising merit and integrity within human research. Monash Bioethics Review 29 (4): 15\u201321. https:\/\/doi.org\/10.1007\/BF03351329.","journal-title":"Monash Bioethics Review"},{"key":"130_CR62","unstructured":"Rabkin, J. & Small, E. (2001). Rights and responsibilities of research participants. Body Positive. Available at: http:\/\/www.thebody.com\/content\/art31134.html"},{"issue":"12","key":"130_CR63","doi-asserted-by":"publisher","first-page":"746","DOI":"10.1136\/medethics-2011-100319","volume":"38","author":"DB Resnik","year":"2012","unstructured":"Resnik, D.B., and E. Ness. 2012. Participants\u2019 responsibilities in clinical research. Journal of Medical Ethics 38 (12): 746. https:\/\/doi.org\/10.1136\/medethics-2011-100319.","journal-title":"Journal of Medical Ethics"},{"issue":"6","key":"130_CR64","doi-asserted-by":"publisher","first-page":"1115","DOI":"10.1177\/0038038507082318","volume":"41","author":"S Richardson","year":"2007","unstructured":"Richardson, S., and M. McMullan. 2007. Research ethics in the UK: What can sociology learn from health? Sociology 41 (6): 1115\u20131132. https:\/\/doi.org\/10.1177\/0038038507082318.","journal-title":"Sociology"},{"issue":"1","key":"130_CR65","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1016\/S0955-3959(02)00094-4","volume":"14","author":"AJ Ritter","year":"2003","unstructured":"Ritter, A.J., C.L. Fry, and A. Swan. 2003. The ethics of reimbursing injecting drug users for public health research interviews: What price are we prepared to pay? International Journal of Drug Policy 14 (1): 1\u20133. https:\/\/doi.org\/10.1016\/S0955-3959(02)00094-4.","journal-title":"International Journal of Drug Policy"},{"issue":"4","key":"130_CR66","doi-asserted-by":"publisher","first-page":"476","DOI":"10.1001\/jama.291.4.476","volume":"291","author":"S Shah","year":"2004","unstructured":"Shah, S., A. Whittle, B. Wilfond, G. Gensler, and D. Wendler. 2004. How do institutional review boards apply the federal risk and benefit standards for pediatric research? JAMA 291 (4): 476\u2013482. https:\/\/doi.org\/10.1001\/jama.291.4.476.","journal-title":"JAMA"},{"issue":"1","key":"130_CR67","doi-asserted-by":"publisher","first-page":"351","DOI":"10.1177\/002204260803800115","volume":"38","author":"M Singer","year":"2008","unstructured":"Singer, M., G. Mirhej, D. Hodge, H. Saleheen, C.B. Fisher, and M. Mahadevan. 2008. Ethical issues in research with Hispanic drug users: Participant perspectives on risks and benefits. Journal of Drug Issues 38 (1): 351\u2013372.","journal-title":"Journal of Drug Issues"},{"key":"130_CR68","doi-asserted-by":"publisher","first-page":"248","DOI":"10.1111\/j.1365-2648.2007.04567.x","volume":"62","author":"LJ Smith","year":"2008","unstructured":"Smith, L.J. 2008. How ethical is ethical research? Recruiting marginalized, vulnerable groups into health services research. Journal of Advanced Nursing 62: 248\u2013257. https:\/\/doi.org\/10.1111\/j.1365-2648.2007.04567.x.","journal-title":"Journal of Advanced Nursing"},{"issue":"5","key":"130_CR69","doi-asserted-by":"publisher","first-page":"232","DOI":"10.1258\/jrsm.99.5.232","volume":"99","author":"R Smith","year":"2006","unstructured":"Smith, R. 2006. Research misconduct: The poisoning of the well. Journal of the Royal Society of Medicine 99 (5): 232\u2013237. https:\/\/doi.org\/10.1258\/jrsm.99.5.232.","journal-title":"Journal of the Royal Society of Medicine"},{"key":"130_CR70","unstructured":"Stanford University, Department of Psychology. (2011). Paid participants' rights and responsibilities. Retrieved from https:\/\/psychology.stanford.edu\/paidparticipantrights"},{"issue":"14","key":"130_CR71","doi-asserted-by":"publisher","first-page":"1367","DOI":"10.1056\/NEJMsb1006120","volume":"363","author":"CM Stein","year":"2010","unstructured":"Stein, C.M., and W.A. Ray. 2010. The ethics of placebo in studies with fracture end points in osteoporosis. The New England Journal of Medicine 363 (14): 1367\u20131370. https:\/\/doi.org\/10.1056\/NEJMsb1006120.","journal-title":"The New England Journal of Medicine"},{"issue":"2","key":"130_CR73","doi-asserted-by":"publisher","first-page":"151","DOI":"10.1111\/j.1744-6155.2011.00283.x","volume":"16","author":"E Thomas","year":"2011","unstructured":"Thomas, E., and J.K. Magilvy. 2011. Qualitative rigor or research validity in qualitative research. Journal for Specialists in Pediatric Nursing 16 (2): 151\u2013155. https:\/\/doi.org\/10.1111\/j.1744-6155.2011.00283.x.","journal-title":"Journal for Specialists in Pediatric Nursing"},{"issue":"6","key":"130_CR74","doi-asserted-by":"publisher","first-page":"584","DOI":"10.1111\/j.1467-842X.2004.tb00052.x","volume":"28","author":"JW Toumbourou","year":"2004","unstructured":"Toumbourou, J.W., T. Evans-Whipp, J. Clements, B.J. McMorris, M. Mathers, and R.F. Catalano. 2004. Ethical guidelines for the payment of research participants should be clarified: Reflections from cross-national research. Australian and New Zealand Journal of Public Health 28 (6): 584\u2013585. https:\/\/doi.org\/10.1111\/j.1467-842X.2004.tb00052.x.","journal-title":"Australian and New Zealand Journal of Public Health"},{"key":"130_CR75","unstructured":"University of Texas. (2011). Subject responsibilities. Retrieved 28th March, 2014, from http:\/\/www.utexas.edu\/research\/rsc\/humansubjects\/participants\/subject_responsibilities.html"},{"issue":"9","key":"130_CR76","doi-asserted-by":"publisher","first-page":"430","DOI":"10.5694\/j.1326-5377.2006.tb00312.x","volume":"184","author":"MB Van Der Weyden","year":"2006","unstructured":"Van Der Weyden, M.B. 2006. Preventing and processing research misconduct: A new Australian code for responsible research. The Medical Journal of Australia 184 (9): 430.","journal-title":"The Medical Journal of Australia"},{"issue":"2","key":"130_CR77","doi-asserted-by":"publisher","first-page":"63","DOI":"10.5694\/j.1326-5377.2004.tb05800.x","volume":"180","author":"GL Van Essen","year":"2004","unstructured":"Van Essen, G.L., D.A. Story, S.J. Poustie, M.M.J. Griffiths, and C.L. Marwood. 2004. Natural justice and human research ethics committees: An Australia-wide survey. The Medical Journal of Australia 180 (2): 63\u201366.","journal-title":"The Medical Journal of Australia"},{"issue":"1","key":"130_CR78","doi-asserted-by":"publisher","first-page":"36","DOI":"10.1080\/03055698.2016.1148582","volume":"42","author":"K Vanlommel","year":"2016","unstructured":"Vanlommel, K., J. Vanhoof, and P. van Petegem. 2016. Data use by teachers: The impact of motivation, decision-making style, supportive relationships and reflective capacity. Educational Studies 42 (1): 36\u201353.","journal-title":"Educational Studies"},{"issue":"8","key":"130_CR79","doi-asserted-by":"publisher","first-page":"1307","DOI":"10.1093\/annonc\/mdf209","volume":"13","author":"HEM Van Luijn","year":"2002","unstructured":"Van Luijn, H.E.M., A.W. Musschenga, R.B. Keus, W.M. Robinson, and N.K. Aaronson. 2002. Assessment of the risk\/benefit ratio of phase II cancer clinical trials by Institutional Review Board (IRB) members. Annals of Oncology: Official Journal of the European Society for Medical Oncology \/ ESMO 13 (8): 1307\u20131313. https:\/\/doi.org\/10.1093\/annonc\/mdf209.","journal-title":"Annals of Oncology: Official Journal of the European Society for Medical Oncology \/ ESMO"},{"issue":"3","key":"130_CR80","doi-asserted-by":"publisher","first-page":"170","DOI":"10.1136\/jme.2002.001503","volume":"32","author":"HEM Van Luijn","year":"2006","unstructured":"Van Luijn, H.E.M., N.K. Aaronson, R.B. Keus, and A.W. Musschenga. 2006. The evaluation of the risks and benefits of phase II cancer clinical trials by institutional review board (IRB) members: a case study. Journal of Medical Ethics 32 (3): 170\u2013176.","journal-title":"Journal of Medical Ethics"},{"issue":"2","key":"130_CR81","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1162\/152651601300169202","volume":"1","author":"AM Viens","year":"2001","unstructured":"Viens, A.M. 2001. Socio-economic status and inducement to participate. American Journal of Bioethics 1 (2): 1\u20132f. https:\/\/doi.org\/10.1162\/152651601300169202.","journal-title":"American Journal of Bioethics"},{"issue":"1","key":"130_CR82","doi-asserted-by":"publisher","first-page":"87","DOI":"10.2307\/3350434","volume":"74","author":"D Wendler","year":"1996","unstructured":"Wendler, D. 1996. Deception in medical and behavioral research: Is it ever acceptable? The Milbank Quarterly 74 (1): 87\u2013114.","journal-title":"The Milbank Quarterly"},{"issue":"4","key":"130_CR83","doi-asserted-by":"publisher","first-page":"203","DOI":"10.1111\/j.1467-8519.2008.00632.x","volume":"22","author":"D Wendler","year":"2008","unstructured":"Wendler, D., and C. Grady. 2008. What should research participants understand to understand they are participants in research? Bioethics 22 (4): 203\u2013208. https:\/\/doi.org\/10.1111\/j.1467-8519.2008.00632.x.","journal-title":"Bioethics"},{"issue":"9","key":"130_CR84","doi-asserted-by":"publisher","first-page":"1023","DOI":"10.1111\/imj.13191","volume":"46","author":"VM White","year":"2016","unstructured":"White, V.M., H. Bibby, M. Green, A. Anazodo, W. Nicholls, R. Pinkerton, M. Phillips, R. Harrup, M. Osborn, L.M. Orme, R. Conyers, K. Thompson, and M. Coory. 2016. Inconsistencies and time delays in site-specific research approvals hinder collaborative clinical research in Australia. Internal Medicine Journal 46 (9): 1023\u20131029. https:\/\/doi.org\/10.1111\/imj.13191.","journal-title":"Internal Medicine Journal"},{"issue":"1","key":"130_CR85","doi-asserted-by":"publisher","first-page":"44","DOI":"10.1037\/a0022612","volume":"31","author":"BJ Wiggins","year":"2011","unstructured":"Wiggins, B.J. 2011. Confronting the dilemma of mixed methods. Journal of Theoretical and Philosophical Psychology 31 (1): 44\u201360. https:\/\/doi.org\/10.1037\/a0022612.","journal-title":"Journal of Theoretical and Philosophical Psychology"},{"issue":"5","key":"130_CR86","doi-asserted-by":"publisher","first-page":"373","DOI":"10.1111\/1467-8519.00078","volume":"11","author":"M Wilkinson","year":"1997","unstructured":"Wilkinson, M., and A. Moore. 1997. Inducement in research. Bioethics 11 (5): 373\u2013373. https:\/\/doi.org\/10.1111\/1467-8519.00078.","journal-title":"Bioethics"},{"issue":"1","key":"130_CR87","first-page":"25","volume":"6","author":"R Wolff-Michael","year":"2005","unstructured":"Wolff-Michael, R. 2005. Ethics a social practice: Introducing the debate on qualitative research and ethics. Forum Qualitative Social Research 6 (1): 25\u201330.","journal-title":"Forum Qualitative Social Research"}],"container-title":["Monash Bioethics Review"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s40592-021-00130-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s40592-021-00130-8\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s40592-021-00130-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,7,29]],"date-time":"2021-07-29T08:31:57Z","timestamp":1627547517000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s40592-021-00130-8"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,6,25]]},"references-count":85,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2021,7]]}},"alternative-id":["130"],"URL":"https:\/\/doi.org\/10.1007\/s40592-021-00130-8","relation":{},"ISSN":["1321-2753","1836-6716"],"issn-type":[{"value":"1321-2753","type":"print"},{"value":"1836-6716","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,6,25]]},"assertion":[{"value":"14 May 2021","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"25 June 2021","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}}]}}