{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,26]],"date-time":"2026-06-26T09:47:28Z","timestamp":1782467248039,"version":"3.54.5"},"reference-count":23,"publisher":"Springer Science and Business Media LLC","issue":"3","license":[{"start":{"date-parts":[[2026,2,9]],"date-time":"2026-02-09T00:00:00Z","timestamp":1770595200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2026,2,9]],"date-time":"2026-02-09T00:00:00Z","timestamp":1770595200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"funder":[{"DOI":"10.13039\/501100000324","name":"Gatsby Charitable Foundation","doi-asserted-by":"publisher","award":["3676"],"award-info":[{"award-number":["3676"]}],"id":[{"id":"10.13039\/501100000324","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Eur Geriatr Med"],"DOI":"10.1007\/s41999-026-01417-x","type":"journal-article","created":{"date-parts":[[2026,2,9]],"date-time":"2026-02-09T06:02:14Z","timestamp":1770616934000},"page":"1665-1670","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Patient activation among patients with Parkinsonism and informal caregivers: results from the PRIME-UK cross-sectional study"],"prefix":"10.1007","volume":"17","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2330-8844","authenticated-orcid":false,"given":"Emma","family":"Tenison","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6648-3007","authenticated-orcid":false,"given":"Yoav","family":"Ben-Shlomo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0016-1870","authenticated-orcid":false,"given":"Emily J.","family":"Henderson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,2,9]]},"reference":[{"issue":"s1","key":"1417_CR1","doi-asserted-by":"publisher","first-page":"S173","DOI":"10.3233\/JPD-230235","volume":"14","author":"S Mathur","year":"2024","unstructured":"Mathur S, Mathur S (2024) Patient empowerment for those living with Parkinson\u2019s disease. J Parkinsons Dis 14(s1):S173\u2013S180","journal-title":"J Parkinsons Dis"},{"key":"1417_CR2","doi-asserted-by":"publisher","DOI":"10.3390\/jcm9092787","author":"J Tennigkeit","year":"2020","unstructured":"Tennigkeit J, Feige T, Haak M, Hellqvist C, Seven \u00dcS, Kalbe E et al (2020) Structured care and self-management education for persons with Parkinson\u2019s disease: why the first does not go without the second\u2014systematic review, experiences and implementation concepts from Sweden and Germany. J Clin Med. https:\/\/doi.org\/10.3390\/jcm9092787","journal-title":"J Clin Med"},{"issue":"10","key":"1417_CR3","doi-asserted-by":"publisher","first-page":"1787","DOI":"10.1016\/j.pec.2017.04.011","volume":"100","author":"D Kessler","year":"2017","unstructured":"Kessler D, Liddy C (2017) Self-management support programs for persons with Parkinson\u2019s disease: an integrative review. Patient Educ Couns 100(10):1787\u20131795","journal-title":"Patient Educ Couns"},{"issue":"2","key":"1417_CR4","doi-asserted-by":"publisher","first-page":"413","DOI":"10.1016\/j.pec.2020.07.025","volume":"104","author":"\u00c5 Audulv","year":"2021","unstructured":"Audulv \u00c5, Hutchinson S, Warner G, Kephart G, Versnel J, Packer TL (2021) Managing everyday life: self-management strategies people use to live well with neurological conditions. Patient Educ Couns 104(2):413\u2013421","journal-title":"Patient Educ Couns"},{"issue":"3","key":"1417_CR5","doi-asserted-by":"publisher","first-page":"337","DOI":"10.1080\/13607863.2017.1421612","volume":"23","author":"A Hand","year":"2019","unstructured":"Hand A, Oates LL, Gray WK, Walker RW (2019) The role and profile of the informal carer in meeting the needs of people with advancing Parkinson\u2019s disease. Aging Ment Health 23(3):337\u2013344","journal-title":"Aging Ment Health"},{"issue":"1","key":"1417_CR6","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-021-02678-w","volume":"21","author":"M Armstrong","year":"2021","unstructured":"Armstrong M, Tuijt R, Read J, Pigott J, Davies N, Manthorpe J et al (2021) Health care professionals\u2019 perspectives on self-management for people with Parkinson\u2019s: qualitative findings from a UK study. BMC Geriatr 21(1):706","journal-title":"BMC Geriatr"},{"issue":"3","key":"1417_CR7","doi-asserted-by":"publisher","first-page":"431","DOI":"10.1377\/hlthaff.2014.0452","volume":"34","author":"J Greene","year":"2015","unstructured":"Greene J, Hibbard JH, Sacks R, Overton V, Parrotta CD (2015) When patient activation levels change, health outcomes and costs change, too. Health Aff (Millwood) 34(3):431\u2013437","journal-title":"Health Aff (Millwood)"},{"issue":"1","key":"1417_CR8","doi-asserted-by":"publisher","first-page":"103","DOI":"10.1177\/1359105320947790","volume":"26","author":"P Newland","year":"2021","unstructured":"Newland P, Lorenz R, Oliver BJ (2021) Patient activation in adults with chronic conditions: a systematic review. J Health Psychol 26(1):103\u2013114","journal-title":"J Health Psychol"},{"issue":"1","key":"1417_CR9","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-021-02656-2","volume":"22","author":"JS Pigott","year":"2022","unstructured":"Pigott JS, Kane EJ, Ambler G, Walters K, Schrag A (2022) Systematic review and meta-analysis of clinical effectiveness of self-management interventions in Parkinson\u2019s disease. BMC Geriatr 22(1):45","journal-title":"BMC Geriatr"},{"issue":"5","key":"1417_CR10","doi-asserted-by":"publisher","first-page":"1355","DOI":"10.1007\/s11136-018-2092-0","volume":"28","author":"D Kessler","year":"2019","unstructured":"Kessler D, Hauteclocque J, Grimes D, Mestre T, Coted D, Liddy C (2019) Development of the integrated Parkinson\u2019s care network (IPCN): using co-design to plan collaborative care for people with Parkinson\u2019s disease. Qual Life Res 28(5):1355\u20131364","journal-title":"Qual Life Res"},{"issue":"1","key":"1417_CR11","doi-asserted-by":"publisher","DOI":"10.1186\/s12883-021-02313-6","volume":"21","author":"G Yogev-Seligmann","year":"2021","unstructured":"Yogev-Seligmann G, Kafri M (2021) COVID-19 social distancing: negative effects on people with Parkinson disease and their associations with confidence for self-management. BMC Neurol 21(1):284","journal-title":"BMC Neurol"},{"issue":"5","key":"1417_CR12","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2021-057947","volume":"12","author":"E Tenison","year":"2022","unstructured":"Tenison E, Lithander FE, Smith MD, Pendry-Brazier D, Ben-Shlomo Y, Henderson EJ (2022) Needs of patients with parkinsonism and their caregivers: a protocol for the PRIME-UK cross-sectional study. BMJ Open 12(5):e057947","journal-title":"BMJ Open"},{"issue":"2","key":"1417_CR13","doi-asserted-by":"publisher","first-page":"457","DOI":"10.1111\/j.1475-6773.2010.01210.x","volume":"46","author":"RL Skolasky","year":"2011","unstructured":"Skolasky RL, Green AF, Scharfstein D, Boult C, Reider L, Wegener ST (2011) Psychometric properties of the patient activation measure among multimorbid older adults. Health Serv Res 46(2):457\u2013478","journal-title":"Health Serv Res"},{"key":"1417_CR14","unstructured":"NHSEngland. Module 1: Patient Activation Measure \u2013 implementation quick guide 2018 [cited 5th January 2026]. Available from: https:\/\/www.england.nhs.uk\/publication\/module-1-patient-activation-measure-implementation-quick-guide\/."},{"key":"1417_CR15","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afae108","author":"E Tenison","year":"2024","unstructured":"Tenison E, Smith MD, Pendry-Brazier D, Cullen A, Lithander FE, Ben-Shlomo Y et al (2024) Enhancing recruitment of individuals living with frailty, multimorbidity and cognitive impairment to Parkinson\u2019s research: experiences from the PRIME-UK cross-sectional study. Age Ageing. https:\/\/doi.org\/10.1093\/ageing\/afae108","journal-title":"Age Ageing"},{"issue":"1","key":"1417_CR16","doi-asserted-by":"publisher","first-page":"7","DOI":"10.1186\/s12877-017-0696-9","volume":"18","author":"A Overbeek","year":"2018","unstructured":"Overbeek A, Rietjens JAC, Jabbarian LJ, Severijnen J, Swart SJ, van der Heide A et al (2018) Low patient activation levels in frail older adults: a cross-sectional study. BMC Geriatr 18(1):7. https:\/\/doi.org\/10.1186\/s12877-017-0696-9","journal-title":"BMC Geriatr"},{"issue":"1","key":"1417_CR17","doi-asserted-by":"publisher","first-page":"582","DOI":"10.1186\/s12913-016-1843-2","volume":"16","author":"A Blakemore","year":"2016","unstructured":"Blakemore A, Hann M, Howells K, Panagioti M, Sidaway M, Reeves D et al (2016) Patient activation in older people with long-term conditions and multimorbidity: correlates and change in a cohort study in the United Kingdom. BMC Health Serv Res 16(1):582","journal-title":"BMC Health Serv Res"},{"issue":"3","key":"1417_CR18","doi-asserted-by":"publisher","first-page":"432","DOI":"10.1016\/j.pec.2013.10.015","volume":"94","author":"R Magnezi","year":"2014","unstructured":"Magnezi R, Glasser S, Shalev H, Sheiber A, Reuveni H (2014) Patient activation, depression and quality of life. Patient Educ Couns 94(3):432\u2013437","journal-title":"Patient Educ Couns"},{"key":"1417_CR19","doi-asserted-by":"publisher","DOI":"10.1016\/j.pecinn.2022.100098","volume":"1","author":"K Carleton-Eagleton","year":"2022","unstructured":"Carleton-Eagleton K, Walker I, Gibson D, Freene N, Semple S (2022) Testing the validation and reliability of the Caregiver-Patient Activation Measure (CG-PAM). PEC Innov 1:100098","journal-title":"PEC Innov"},{"key":"1417_CR20","unstructured":"(2020) Improving inclusion of under-served groups in clinical research: guidance from INCLUDE project. NIHR. https:\/\/www.nihr.ac.uk\/support-and-services\/support-for-delivering-research\/improving-inclusion-under-served-groups-clinical-research-guidance-include-project"},{"issue":"1","key":"1417_CR21","doi-asserted-by":"publisher","first-page":"1196","DOI":"10.1186\/s12913-021-07115-7","volume":"21","author":"F Bu","year":"2021","unstructured":"Bu F, Fancourt D (2021) How is patient activation related to healthcare service utilisation? Evidence from electronic patient records in England. BMC Health Serv Res 21(1):1196","journal-title":"BMC Health Serv Res."},{"key":"1417_CR22","volume-title":"Supporting people to manage their health: an introduction topatient activation","author":"H Judith","year":"2014","unstructured":"Judith H, Helen G (2014) Supporting people to manage their health: an introduction topatient activation. The Kings Fund"},{"key":"1417_CR23","volume-title":"Health, inequality and society","author":"M White","year":"2009","unstructured":"White M, Adams J, Heywood P (2009) How and why do interventions that increase health overall widen inequalities within populations? In: Babones S (ed) Health, inequality and society. Policy Press, Bristol"}],"container-title":["European Geriatric Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s41999-026-01417-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s41999-026-01417-x","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s41999-026-01417-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,26]],"date-time":"2026-06-26T09:12:33Z","timestamp":1782465153000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s41999-026-01417-x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2,9]]},"references-count":23,"journal-issue":{"issue":"3","published-online":{"date-parts":[[2026,6]]}},"alternative-id":["1417"],"URL":"https:\/\/doi.org\/10.1007\/s41999-026-01417-x","relation":{},"ISSN":["1878-7657"],"issn-type":[{"value":"1878-7657","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2,9]]},"assertion":[{"value":"10 November 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"6 January 2026","order":2,"name":"revised","label":"Revised","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"20 January 2026","order":3,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"9 February 2026","order":4,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Emma Tenison has previously received salary support from the National Institute for Health and Care Research (NIHR) and has received a speaker honorarium from the Neurology Academy. Yoav Ben-Shlomo has received funding from Parkinson's UK, Royal Osteoporosis Society, MRC, HQIP, Templeton Foundation, Versus arthritis, Wellcome Trust, NIHR and sits on the Alzheimer\u2019s Society funding panel and ARUK strategy board. Emily Henderson has received funding from NIHR, Engineering and Physical Sciences Research Council, The British Geriatrics Society, The Gatsby Foundation, Royal Osteoporosis Society, The Dunhill Society, Parkinson's UK. She has received honoraria from Kyowa Kirin, Bial, Abbvie, Elsevier, Neurology Academy; consulting fees from Simbec Orion, CME Institute and Luye; travel support from Ever, Bial and Abbvie; a writing fee from Elsevier; and participates in an advisory board for Merz.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interests"}},{"value":"The PRIME-UK cross-sectional study was approved by the London- Brighton & Sussex Research Ethics Committee (REC) on 27 July 2020; REC reference 20\/LO\/0890.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval"}}]}}