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It is not known how hypoPT is managed in Germany or whether patients have unmet information needs or impairments in their daily living.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>HypoPT patients at a minimum of 6\u00a0months\u2019 post-diagnosis were invited to participate in an online survey through their treating physician or through patient organizations. An extensive questionnaire, which was developed and pilot-tested with hypoPT patients, was administered.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>A total of 264 patients with a mean age of 54.5\u00a0years (SD: 13.3), 85.2% female and 92% with postsurgical hypoPT, participated in the study. In total, 74% of the patients reported regular monitoring of serum calcium at least every 6\u00a0months, with lower control frequencies for phosphate (47%), magnesium (36%), creatinine (54%), and parathyroid hormone (50%), and 24-h urine calcium excretion (36%) on a yearly basis. Information on symptoms of hypo- and hypercalcemia was available in 72 and 45% of the patients. Information needs were related to the disease and its treatment as well as to nutrition, physical activities\/sports, and support opportunities. Statistically significant differences for all information needs in association with symptom burden were observed. Hospitalization for hypocalcemia was reported by 32%, nutritional impairments (38%) or impact on work ability (52%) was available among patients with hypoPT.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>HypoPT patients experience impairments in daily living and report unmet information needs. Patient and physician education regarding hypoPT is one of the key concepts for improving the management of patients with hypoPT.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1007\/s42000-023-00459-1","type":"journal-article","created":{"date-parts":[[2023,6,28]],"date-time":"2023-06-28T20:36:49Z","timestamp":1687984609000},"page":"467-476","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Hypoparathyroidism \u2013 management, information needs, and impact on daily living from the patients\u2019 perspective: results from a population-based survey"],"prefix":"10.1007","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7000-8257","authenticated-orcid":false,"given":"Matthias","family":"B\u00fcttner","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dieter","family":"Krogh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dagmar","family":"F\u00fchrer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carmina Teresa","family":"Fu\u00df","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Holger Sven","family":"Willenberg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Markus","family":"Luster","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susanne","family":"Singer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heide","family":"Siggelkow","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2023,6,28]]},"reference":[{"issue":"4","key":"459_CR1","doi-asserted-by":"publisher","first-page":"391","DOI":"10.1056\/NEJMcp0803050","volume":"359","author":"D Shoback","year":"2008","unstructured":"Shoback D (2008) Clinical practice. 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Hormones (Athens) 20(2):323\u201332","journal-title":"Hormones (Athens)"}],"container-title":["Hormones"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s42000-023-00459-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s42000-023-00459-1\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s42000-023-00459-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,24]],"date-time":"2023-08-24T07:26:10Z","timestamp":1692861970000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s42000-023-00459-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,6,28]]},"references-count":49,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2023,9]]}},"alternative-id":["459"],"URL":"https:\/\/doi.org\/10.1007\/s42000-023-00459-1","relation":{},"ISSN":["1109-3099","2520-8721"],"issn-type":[{"value":"1109-3099","type":"print"},{"value":"2520-8721","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,6,28]]},"assertion":[{"value":"12 December 2022","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"9 June 2023","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"28 June 2023","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Matthias B\u00fcttner reports speaker fees from Lilly and Takeda outside the submitted work.Dieter Krogh has nothing to disclose.Heide Siggelkow <b>Advisory boards:<\/b> MSD, Lilly, Amgen, Servier, Takeda, UCB, Kyowa Kirin<b>. Speaker fees:<\/b> MSD, Lilly, Amgen, GSK, Servier, Takeda, Alexion, Kyowa Kirin, UCB, Sandoz, Sanofi Aventis. Research support: Takeda.Susanne Singer received lecture fees from Lilly and Pfizer, all outside the submitted work.Dagmar F\u00fchrer received lecture fees and honoraria for advisory boards from Eisai, Novartis, Lilly, Ipsen, MERCK, Bayer, Sanofi-Genzyme, all outside the submitted work.Carmina Teresa Fu\u00df has nothing to disclose.Holger Sven Willenberg all support outside the submitted work\u2014Speaker fees: Allergan, Amgen, Astra-Zeneca, Berlin-Chemie, Boeringer-Ingelheim, DEXCOM, Ipsen GmbH, Merck, Novartis, Sanofi-Genzyme, Shire \/ Takeda; Advisory boards: Bayer Vital GmbH, Eisei, Kyowa Kirin; Research Support: HRA pharma.Markus Luster received contracts or grants from Sanofi, Merck, Elsai and Takeda outside the submitted work.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflicts of interest"}},{"value":"In accordance with the design of the study, no Ethics Committee approval was needed (confirmed by the Ethics-Committee of the Landes\u00e4rztekammer Rhineland-Palatinate).","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"Due to the anonymity of the survey, no individual informed consent was needed.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}}]}}