{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,23]],"date-time":"2025-10-23T06:54:21Z","timestamp":1761202461078,"version":"build-2065373602"},"publisher-location":"Cham","reference-count":40,"publisher":"Springer Nature Switzerland","isbn-type":[{"value":"9783031772818","type":"print"},{"value":"9783031772825","type":"electronic"}],"license":[{"start":{"date-parts":[[2025,1,1]],"date-time":"2025-01-01T00:00:00Z","timestamp":1735689600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2025,1,1]],"date-time":"2025-01-01T00:00:00Z","timestamp":1735689600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025]]},"DOI":"10.1007\/978-3-031-77282-5_37","type":"book-chapter","created":{"date-parts":[[2025,10,23]],"date-time":"2025-10-23T06:51:49Z","timestamp":1761202309000},"page":"576-591","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Motivations of Informal Caregivers and Palliative Patients to Care at Home: Grounded Theory"],"prefix":"10.1007","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0278-7532","authenticated-orcid":false,"given":"Sandra","family":"Batista","sequence":"first","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6667-2326","authenticated-orcid":false,"given":"Paula","family":"Sapeta","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8090-5429","authenticated-orcid":false,"given":"C\u00e9lia","family":"Oliveira","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3394-3235","authenticated-orcid":false,"given":"Isabel Ferraz","family":"Pereira","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2025,10,24]]},"reference":[{"key":"37_CR1","unstructured":"OCDE\/Observat\u00f3rio Europeu dos Sistemas e Pol\u00edticas de Sa\u00fade. Perfil de Sa\u00fade do Pa\u00eds 2021, Estado da Sa\u00fade na Uni\u00e3o Europeia. Bruxelas (2021)"},{"key":"37_CR2","unstructured":"INE. INE PORDATA. \u00cdndice de envelhecimento e outros indicadores de envelhecimento (2022). https:\/\/www.pordata.pt\/db\/portugal\/ambiente+de+consulta\/tabela"},{"key":"37_CR3","unstructured":"CNCP. Plano Estrat\u00e9gico para o Desenvolvimento dos Cuidados Paliativos. Bi\u00e9nio 2021\u20132022 (2021). https:\/\/www.acss.min-saude.pt\/wp-content\/uploads\/2017\/01\/PEDCP-2021_2022.pdf"},{"key":"37_CR4","doi-asserted-by":"crossref","unstructured":"Anthierens, S., Willemse, E., Remmen, R., Schmitz, O., Macq, J., Declercq, A., et al.: Support for informal caregivers\u2014an exploratory analysis. Brussels (2014). www.kce.fgov.be","DOI":"10.57598\/R223C"},{"issue":"24","key":"37_CR5","doi-asserted-by":"publisher","first-page":"1","DOI":"10.3390\/ijerph17249531","volume":"17","author":"A Tur-Sinai","year":"2020","unstructured":"Tur-Sinai, A., Teti, A., Rommel, A., Hlebec, V., Lamura, G.: How many older informal caregivers are there in europe? Comparison of estimates of their prevalence from three european surveys. Int. J. Environ. Res. Public Health 17(24), 1\u201317 (2020)","journal-title":"Int. J. Environ. Res. Public Health"},{"key":"37_CR6","volume-title":"Informal care in Europe: exploring formalisation","author":"V Zigante","year":"2018","unstructured":"Zigante, V.: Informal care in Europe: exploring formalisation. Availability and Quality, London (2018)"},{"key":"37_CR7","unstructured":"Eurocarers. About Carers (2023). https:\/\/eurocarers.org\/about-carers\/"},{"key":"37_CR8","unstructured":"Lei no 100\/2019 de 6 de setembro. Di\u00e1rio da Rep\u00fablica, No171, 1.a s\u00e9rie. Assembleia da rep\u00fablica, pp. 3\u201316 (2019). https:\/\/dre.pt\/dre\/detalhe\/lei\/100-2019-124500714"},{"key":"37_CR9","unstructured":"Razavi, S.: Long-term care for older people: the role of unpaid care work. In: Expert Group Meeting on Care and Older Persons: Links to Decent Work, Migration and Gender. New York: United Nations Department of Economic and Social Affairs, pp. 10\u20137 (2017)"},{"issue":"1","key":"37_CR10","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s12877-019-1185-0","volume":"19","author":"N Greenwood","year":"2019","unstructured":"Greenwood, N., Smith, R.: Motivations for being informal carers of people living with dementia: a systematic review of qualitative literature. BMC Geriatr. 19(1), 1\u201318 (2019)","journal-title":"BMC Geriatr."},{"key":"37_CR11","doi-asserted-by":"crossref","unstructured":"Zarzycki, M., Morrison, V., Bei, E., Seddon, D.: Cultural and societal motivations for being informal caregivers: a qualitative systematic review and meta-synthesis. Health Psychol. Rev. (2022)","DOI":"10.1080\/17437199.2022.2032259"},{"key":"37_CR12","unstructured":"INE. Instituto Nacional de Estat\u00edstica. Popula\u00e7\u00e3o residente com 15 e mais anos de idade que presta cuidados informais (2020). https:\/\/www.ine.pt\/xportal\/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008933&selTab=tab0&xlang=pt"},{"key":"37_CR13","doi-asserted-by":"crossref","unstructured":"Batista, S., Sapeta, P.: Processo de cuidados entre cuidador informal e doente com necessidades paliativas no domic\u00edlio: Metass\u00edntese. Revista de Enfermagem Refer\u00eancia. VI S\u00e9rie(No2):1\u201310 (2023). https:\/\/revistas.rcaap.pt\/referencia\/article\/view\/31570\/version\/28046","DOI":"10.12707\/RVI22074"},{"key":"37_CR14","doi-asserted-by":"publisher","unstructured":"Zarzycki, M., Morrison, V., Bei, E., Seddon, D.: Why do they care? A qualitative systematic review and meta-synthesis of personal and relational motivations for providing informal care. Health Psychol. Rev. 0(0):1\u201333 (2022). https:\/\/doi.org\/10.1080\/17437199.2022.2058581","DOI":"10.1080\/17437199.2022.2058581"},{"key":"37_CR15","doi-asserted-by":"publisher","DOI":"10.4135\/9781452230153","volume-title":"Basics of Qualitative Research\u2014Techniques and Procedures for Developing Grounded Theory","author":"J Corbin","year":"2008","unstructured":"Corbin, J., Strauss, A.: Basics of Qualitative Research\u2014Techniques and Procedures for Developing Grounded Theory, 3rd edn. Sage Publications, London (2008)","edition":"3"},{"key":"37_CR16","unstructured":"Strauss, A., Corbin, J.: Basics of qualitative research\u2014techiniques and procedures for devolping Grounded Theory. 2a. Publications S, editor. Thousand Oaks, California (1998)"},{"key":"37_CR17","doi-asserted-by":"crossref","unstructured":"Charmaz, K.: Constructing grounded theory: a practical guide through qualitative analysis. Vol. 10, Book. SAGE, PuUblications ltd, London, p. 208 (2006)","DOI":"10.1177\/1363459306067319"},{"key":"37_CR18","volume-title":"Basics of qualitative research: techniques and procedures for developing grounded theory (4th edition)","author":"J Corbin","year":"2015","unstructured":"Corbin, J., Strauss, A.: Basics of qualitative research: techniques and procedures for developing grounded theory (4th edition). Sage Publications, Inc., Thousand Oaks, CA (2015)"},{"key":"37_CR19","volume-title":"The discovery of grounded theory: strategies for qualitative research","author":"B Glaser","year":"1967","unstructured":"Glaser, B., Strauss, A.: The discovery of grounded theory: strategies for qualitative research, 1st edn. Aldine, Chicago (1967)","edition":"1"},{"key":"37_CR20","doi-asserted-by":"publisher","unstructured":"Singh, S., Estefan, A.: Selecting a grounded theory approach for nursing research. Glob. Qual. Nurs. Res. 5:1\u20139 (2018). https:\/\/doi.org\/10.1177\/2333393618799571","DOI":"10.1177\/2333393618799571"},{"key":"37_CR21","doi-asserted-by":"crossref","unstructured":"Hunstad, I., Svindseth, M.: Challenges in home-based palliative care in Norway: a qualitative study of spouses\u2019 experiences. Int. J. Palliat. Nurs. 17(8):398\u2013404 (2011). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=22067680&lang=pt-br&site=ehost-live","DOI":"10.12968\/ijpn.2011.17.8.398"},{"key":"37_CR22","doi-asserted-by":"crossref","unstructured":"Lerum, S.V., Solbr\u00e6kke, K.N., Frich, J.C.: Family caregivers\u2019 accounts of caring for a family member with motor neurone disease in Norway: a qualitative study. BMC Palliat. Care 15(22):1\u20139 (2016). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=26911713&lang=pt-br&site=ehost-live","DOI":"10.1186\/s12904-016-0097-4"},{"key":"37_CR23","doi-asserted-by":"crossref","unstructured":"Hwang, A.S., Rosenberg, L., Kontos, P., Cameron, J.I., Mihailidis, A., Nyg\u00e5rd, L.: Sustaining care for a parent with dementia: an indefinite and intertwined process. Int. J. Qual. Stud. Health Well-being 12(sup2):1389578 (2017). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=29050539&lang=pt-br&site=ehost-live","DOI":"10.1080\/17482631.2017.1389578"},{"key":"37_CR24","doi-asserted-by":"publisher","unstructured":"Ehrlich, K., Emami, A., Heikkil\u00e4, K.: The relationship between geographical and social space and approaches to care among rural and urban caregivers caring for a family member with Dementia: a qualitative study. Int. J. Qual. Stud. Health Well-being 12(1):1\u201311 (2017). https:\/\/doi.org\/10.1080\/17482631.2016.1275107","DOI":"10.1080\/17482631.2016.1275107"},{"issue":"1533","key":"37_CR25","first-page":"21","volume":"134","author":"E McKinlay","year":"2021","unstructured":"McKinlay, E., Vaipuna, K., O\u2019Toole, T., Golds, H., Adams, A.: Doing what it takes: a qualitative study of New Zealand carers\u2019 experiences of giving home-based palliative care to loved ones. N. Z. Med. J. 134(1533), 21\u201332 (2021)","journal-title":"N. Z. Med. J."},{"key":"37_CR26","doi-asserted-by":"publisher","unstructured":"Al-Rawashdeh, S., Ashour, A., Alshraifeen, A., Rababa, M.: Experiences on providing home care for a relative with heart failure: a qualitative study. J. Community Health Nurs. 37(3):129\u201340 (2020). https:\/\/doi.org\/10.1080\/07370016.2020.1780043","DOI":"10.1080\/07370016.2020.1780043"},{"issue":"3","key":"37_CR27","doi-asserted-by":"publisher","first-page":"120","DOI":"10.1891\/1540-4153.12.3.120","volume":"12","author":"G Juarez","year":"2014","unstructured":"Juarez, G., Branin, J.J., Rosales, M.: The cancer caregiving experience of caregivers of Mexican ancestry. Hisp. Health Care Int. 12(3), 120\u2013129 (2014)","journal-title":"Hisp. Health Care Int."},{"key":"37_CR28","doi-asserted-by":"crossref","unstructured":"Kontrimiene, A., Sauseriene, J., Blazeviciene, A., Raila, G., Jaruseviciene, L.: Qualitative research of informal caregivers\u2019 personal experiences caring for older adults with dementia in Lithuania. Int. J. Ment. Health Syst. 15(12):1\u201310 (2021). https:\/\/www.researchgate.net\/publication\/348636264_Qualitative_research_of_informal_caregivers\u2019_personal_experiences_caring_for_older_adults_with_dementia_in_Lithuania","DOI":"10.1186\/s13033-020-00428-w"},{"key":"37_CR29","doi-asserted-by":"crossref","unstructured":"McKenzie, J., McConkey, R.: Caring for adults with intellectual disability: the perspectives of family carers in South Africa. J. Appl. Res. Intellect Disabil. 29(6):531\u201341 (2016). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=26358760&lang=pt-br&site=ehost-live","DOI":"10.1111\/jar.12209"},{"key":"37_CR30","doi-asserted-by":"crossref","unstructured":"Williams, A.M., Wang, L., Kitchen, P.: Impacts of caregiving and sources of support: a comparison of end-of-life and non-end-of-life caregivers in Canada. Health Soc. Care Community 24(2):214\u201324 (2016). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=25727849&lang=pt-br&site=ehost-live","DOI":"10.1111\/hsc.12205"},{"key":"37_CR31","doi-asserted-by":"crossref","unstructured":"Williams, A., Sethi, B., Duggleby, W., Ploeg, J., Markle-Reid, M., Peacock, S., et al.: A Canadian qualitative study exploring the diversity of the experience of family caregivers of older adults with multiple chronic conditions using a social location perspective. Int. J. Equity Health 15(40), 1\u201316 (2016). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=26936057&lang=pt-br&site=ehost-live","DOI":"10.1186\/s12939-016-0328-6"},{"key":"37_CR32","doi-asserted-by":"crossref","unstructured":"Totman, J., Pistrang, N., Smith, S., Hennessey, S., Martin, J.: You only have one chance to get it right: a qualitative study of relatives\u2019 experiences of caring at home for a family member with terminal cancer. Palliat. Med. 29(6):496\u2013507 (2015). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=25634637&lang=pt-br&site=ehost-live","DOI":"10.1177\/0269216314566840"},{"key":"37_CR33","doi-asserted-by":"crossref","unstructured":"Appleton, L., Perkins, E.: The construction of help during radiotherapy: redefining informal care. Psychooncology 26:2057\u201362 (2017). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=28294461&lang=pt-br&site=ehost-live","DOI":"10.1002\/pon.4420"},{"key":"37_CR34","unstructured":"Silva, M.C., Honra-Vergonha.: C\u00f3digo cultural mediterr\u00e2nico ou forma de controlo patrimonial e Socio-pol\u00edtico de mulheres? In: Trabalhos De Antropologia E Etnologia, pp. 125\u201344 (2021). https:\/\/ojs.letras.up.pt\/index.php\/tae\/article\/view\/10912"},{"key":"37_CR35","doi-asserted-by":"crossref","unstructured":"Jonasson, L.L., Lind\u00f6, P., Lindh, T., Josefsson, K.: Life situation and participation as experienced by adult patients in palliative home care. Nurs Palliat Care 4(3):1\u20138 (2019). file:\/\/\/C:\/Users\/Sandra\/Downloads\/JonassonLindLindhJosefsson2019Lifesituationandparticipationasexperiencedbyadultpatientsinpalliativehomecare (1).pdfhttps:\/\/www.oatext.com\/life-situation-and-participation-as-experienced-by-adult-patients-in-palliative-home-care.php","DOI":"10.15761\/NPC.1000203"},{"key":"37_CR36","doi-asserted-by":"publisher","unstructured":"Robinson, C.A., Bottorff, J.L., McFee, E., Bissell, L.J., Fyles, G.: Caring at home until death: enabled determination. Support. Care Cancer 25(4):1229\u201336 (2017). https:\/\/doi.org\/10.1007\/s00520-016-3515-5","DOI":"10.1007\/s00520-016-3515-5"},{"key":"37_CR37","doi-asserted-by":"crossref","unstructured":"Sakakibara, K., Kabayama, M., Ito, M.: Experiences of \u201cendless\u201d caregiving of impaired elderly at home by family caregivers: a qualitative study. BMC Res. Notes 8, 827 (2015). http:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdc&AN=26711084&lang=pt-br&site=ehost-live","DOI":"10.1186\/s13104-015-1829-x"},{"key":"37_CR38","doi-asserted-by":"publisher","unstructured":"Jeyathevan, G., Catharine Craven, B., Cameron, J.I., Jaglal, S.B.: Facilitators and barriers to supporting individuals with spinal cord injury in the community: experiences of family caregivers and care recipients. Disabil Rehabil 42(13):1844\u201354 (2019). https:\/\/doi.org\/10.1080\/09638288.2018.1541102","DOI":"10.1080\/09638288.2018.1541102"},{"key":"37_CR39","doi-asserted-by":"crossref","unstructured":"Oliveira, S., Quintana, A.M., Denardin-Bud\u00f3, M.D.L., Moraes N.D.A., L\u00fcdtke, M.F., Cassel, P.A.: Interna\u00e7\u00e3o domiciliar do paciente terminal: o olhar do cuidador familiar. Rev Gaucha Enferm. 33(3), 104\u201310 (2012)","DOI":"10.1590\/S1983-14472012000300014"},{"issue":"11","key":"37_CR40","doi-asserted-by":"publisher","first-page":"1649","DOI":"10.1017\/S1041610218000364","volume":"30","author":"L Cole","year":"2018","unstructured":"Cole, L., Samsi, K., Manthorpe, J.: Is there an optimal time to move to a care home for a person with dementia? A systematic review of the literature. Int. Psychogeriatr. 30(11), 1649\u20131670 (2018)","journal-title":"Int. Psychogeriatr."}],"container-title":["Lecture Notes in Bioengineering","Sustainability in Aging"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/978-3-031-77282-5_37","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,23]],"date-time":"2025-10-23T06:52:06Z","timestamp":1761202326000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/978-3-031-77282-5_37"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025]]},"ISBN":["9783031772818","9783031772825"],"references-count":40,"URL":"https:\/\/doi.org\/10.1007\/978-3-031-77282-5_37","relation":{},"ISSN":["2195-271X","2195-2728"],"issn-type":[{"value":"2195-271X","type":"print"},{"value":"2195-2728","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025]]},"assertion":[{"value":"24 October 2025","order":1,"name":"first_online","label":"First Online","group":{"name":"ChapterHistory","label":"Chapter History"}}]}}