{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,3]],"date-time":"2026-07-03T02:20:52Z","timestamp":1783045252516,"version":"3.54.6"},"reference-count":31,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,6,5]],"date-time":"2026-06-05T00:00:00Z","timestamp":1780617600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100004334","name":"Merck &amp; Co Inc","doi-asserted-by":"publisher","award":["CLEM_CONTR_FIN_19_01"],"award-info":[{"award-number":["CLEM_CONTR_FIN_19_01"]}],"id":[{"id":"10.13039\/100004334","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["International Journal of Medical Informatics"],"published-print":{"date-parts":[[2026,9]]},"DOI":"10.1016\/j.ijmedinf.2026.106534","type":"journal-article","created":{"date-parts":[[2026,6,7]],"date-time":"2026-06-07T22:08:15Z","timestamp":1780870095000},"page":"106534","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["Web-based family-reported outcomes to assess family functioning in multiple sclerosis: an Italian multicenter digital survey"],"prefix":"10.1016","volume":"218","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9311-1778","authenticated-orcid":false,"given":"Luigi","family":"Lavorgna","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Giuseppina","family":"Miele","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4091-4686","authenticated-orcid":false,"given":"Marta","family":"Ponzano","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elisabetta","family":"Maida","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gianmarco","family":"Abbadessa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Floriana","family":"Bile","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Girolama Alessandra","family":"Marfia","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Doriana","family":"Landi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Francesca","family":"Proietti","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matilde","family":"Inglese","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alice","family":"Laroni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ilaria","family":"Poir\u00e8","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Giuseppe","family":"Romano","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elisabetta","family":"Signoriello","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Giacomo","family":"Lus","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eleonora","family":"Ruocco","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Francesca","family":"Lauro","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Rosa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Roberta","family":"Lanzillo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Virginia","family":"Perutelli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria Laura","family":"Di Tella","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lidia Mislin","family":"Streito","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria Pia","family":"Sormani","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8561-9720","authenticated-orcid":false,"given":"Simona","family":"Bonavita","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5009-2271","authenticated-orcid":false,"given":"Lorys","family":"Castelli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marinella","family":"Clerico","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"1","key":"10.1016\/j.ijmedinf.2026.106534_b0005","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1111\/ene.13819","article-title":"Multiple sclerosis \u2013 A review","volume":"26","author":"Dobson","year":"2019","journal-title":"Eur. J. Neurol."},{"issue":"5","key":"10.1016\/j.ijmedinf.2026.106534_b0010","doi-asserted-by":"crossref","first-page":"2935","DOI":"10.1007\/s10072-022-05917-z","article-title":"Association between relapses, stress, and depression in people with multiple sclerosis during the COVID-19 pandemic","volume":"43","author":"Sparaco","year":"2022","journal-title":"Neurol. Sci."},{"issue":"8","key":"10.1016\/j.ijmedinf.2026.106534_b0015","doi-asserted-by":"crossref","first-page":"1551","DOI":"10.1007\/s10072-019-03889-1","article-title":"A complex relation between depression and multiple sclerosis: a descriptive review","volume":"40","author":"Corallo","year":"2019","journal-title":"Neurol. Sci."},{"key":"10.1016\/j.ijmedinf.2026.106534_b0020","doi-asserted-by":"crossref","first-page":"35","DOI":"10.1016\/j.msard.2017.11.003","article-title":"The prevalence of anxiety and associated factors in persons with multiple sclerosis","volume":"19","author":"Pham","year":"2018","journal-title":"Mult. Scler. Relat. Disord."},{"issue":"8","key":"10.1016\/j.ijmedinf.2026.106534_b0025","doi-asserted-by":"crossref","first-page":"1106","DOI":"10.1177\/1352458508093678","article-title":"Neuropsychological dysfunction, depression, physical disability, and coping processes in families with a parent affected by multiple sclerosis","volume":"14","author":"Ehrensperger","year":"2008","journal-title":"Mult. Scler."},{"issue":"1","key":"10.1016\/j.ijmedinf.2026.106534_b0030","doi-asserted-by":"crossref","first-page":"83","DOI":"10.3109\/09540261003589588","article-title":"The family of the multiple sclerosis patient: a psychosocial perspective","volume":"22","author":"Kouzoupis","year":"2010","journal-title":"Int. Rev. Psychiatry"},{"issue":"2","key":"10.1016\/j.ijmedinf.2026.106534_b0035","doi-asserted-by":"crossref","first-page":"63","DOI":"10.7224\/1537-2073.2021-075","article-title":"The psychosocial impact of parental multiple sclerosis on children and adolescents: a systematic review","volume":"25","author":"Haker","year":"2023","journal-title":"Int J MS Care."},{"issue":"2","key":"10.1016\/j.ijmedinf.2026.106534_b0040","doi-asserted-by":"crossref","first-page":"177","DOI":"10.2217\/nmt.14.6","article-title":"The impact of multiple sclerosis on family members: a review of the literature","volume":"4","author":"Uccelli","year":"2014","journal-title":"Neurodegener Dis Manag."},{"key":"10.1016\/j.ijmedinf.2026.106534_b0045","doi-asserted-by":"crossref","DOI":"10.2196\/51872","article-title":"Effects of a digital care pathway for multiple sclerosis: observational study","volume":"11","author":"Vesinurm","year":"2024","journal-title":"JMIR Hum. Factors"},{"issue":"2","key":"10.1016\/j.ijmedinf.2026.106534_b0050","doi-asserted-by":"crossref","first-page":"404","DOI":"10.1089\/tmj.2023.0106","article-title":"Cost-analysis of telemedicine interventions compared with traditional care in the management of chronic neurological diseases: a systematic review","volume":"30","author":"Maida","year":"2024","journal-title":"Telemed. J. E Health"},{"issue":"6","key":"10.1016\/j.ijmedinf.2026.106534_b0055","doi-asserted-by":"crossref","first-page":"805","DOI":"10.1097\/EDE.0b013e3181577511","article-title":"STROBE initiative. Strengthening the reporting of observational studies in epidemiology (STROBE): explanation and elaboration","volume":"18","author":"Vandenbroucke","year":"2007","journal-title":"Epidemiology"},{"key":"10.1016\/j.ijmedinf.2026.106534_b0060","doi-asserted-by":"crossref","first-page":"173","DOI":"10.1016\/j.msard.2017.09.027","article-title":"Validity and reproducibility of the Italian version of the patient determined disease steps scale in people with multiple sclerosis","volume":"18","author":"Lavorgna","year":"2017","journal-title":"Mult. Scler. Relat. Disord."},{"key":"10.1016\/j.ijmedinf.2026.106534_b0065","doi-asserted-by":"crossref","first-page":"108","DOI":"10.1016\/j.msard.2018.02.014","article-title":"Online validation of the Italian version of the patient determined disease steps scale (PDDS) in people with multiple sclerosis","volume":"21","author":"Lavorgna","year":"2018","journal-title":"Mult. Scler. Relat. Disord."},{"key":"10.1016\/j.ijmedinf.2026.106534_b0070","doi-asserted-by":"crossref","DOI":"10.3389\/fneur.2021.620772","article-title":"Family planning decision making in people with multiple sclerosis","volume":"12","author":"Bonavita","year":"2021","journal-title":"Front. Neurol."},{"issue":"9","key":"10.1016\/j.ijmedinf.2026.106534_b0075","doi-asserted-by":"crossref","first-page":"866","DOI":"10.3390\/brainsci14090866","article-title":"Impact of coping strategies on health-related quality of life in young adults with multiple sclerosis","volume":"14","author":"Lo Buono","year":"2024","journal-title":"Brain Sci."},{"issue":"8","key":"10.1016\/j.ijmedinf.2026.106534_b0080","doi-asserted-by":"crossref","first-page":"964","DOI":"10.1080\/13548506.2018.1437277","article-title":"Management of multiple sclerosis: the role of coping self-efficacy and self-esteem","volume":"23","author":"Mikula","year":"2018","journal-title":"Psychol. Health Med."},{"issue":"2","key":"10.1016\/j.ijmedinf.2026.106534_b0085","doi-asserted-by":"crossref","first-page":"465","DOI":"10.1007\/s13760-019-01212-5","article-title":"Coping strategies in relapsing-remitting multiple sclerosis non-depressed patients and their associations with disease activity","volume":"121","author":"Santangelo","year":"2021","journal-title":"Acta Neurol. Belg."},{"issue":"1","key":"10.1016\/j.ijmedinf.2026.106534_b0090","article-title":"Coping strategies: seeking personalized care in relapsing-remitting multiple sclerosis. A patient reported measure-coping responses inventory","volume":"7","author":"Vanotti","year":"2021","journal-title":"Mult Scler J Exp Transl Clin."},{"key":"10.1016\/j.ijmedinf.2026.106534_b0095","doi-asserted-by":"crossref","first-page":"214","DOI":"10.1016\/j.msard.2018.10.016","article-title":"TONiC study group. Use of coping strategies in multiple sclerosis: Association with demographic and disease-related characteristics","volume":"27","author":"Holland","year":"2019","journal-title":"Mult. Scler. Relat. Disord."},{"key":"10.1016\/j.ijmedinf.2026.106534_b0100","article-title":"Perceived usefulness of digital self-tracking among people with multiple sclerosis","volume":"10","author":"Skovgaard","year":"2024","journal-title":"Digit Health."},{"key":"10.1016\/j.ijmedinf.2026.106534_b0105","doi-asserted-by":"crossref","first-page":"3703","DOI":"10.1007\/s11135-025-02127-5","article-title":"Social media and multiple sclerosis: measuring narrations and Italian community users","volume":"59","author":"Iezzi","year":"2025","journal-title":"Qual. Quant."},{"issue":"6","key":"10.1016\/j.ijmedinf.2026.106534_b0110","doi-asserted-by":"crossref","first-page":"1515","DOI":"10.1111\/hsc.12822","article-title":"On the path together: Experiences of partners of people with multiple sclerosis of the impact of lifestyle modification on their relationship","volume":"27","author":"Neate","year":"2019","journal-title":"Health Soc. Care Community"},{"issue":"12","key":"10.1016\/j.ijmedinf.2026.106534_b0115","doi-asserted-by":"crossref","first-page":"2811","DOI":"10.1111\/jan.12758","article-title":"The experiences of support persons of people newly diagnosed with multiple sclerosis: an interpretative phenomenological study","volume":"71","author":"Strickland","year":"2015","journal-title":"J. Adv. Nurs."},{"key":"10.1016\/j.ijmedinf.2026.106534_b0120","article-title":"Family factors to predict adolescents' emotional health by decision tree model: a comparison between normally developed group and chronic-condition group","volume":"11","author":"Huang","year":"2023","journal-title":"Front. Public Health"},{"key":"10.1016\/j.ijmedinf.2026.106534_b0125","article-title":"Parental chronic illness, internalizing problems in young adulthood and the mediating role of adolescent attachment to parents: a prospective cohort study","volume":"12","author":"Kaasb\u00f8ll","year":"2021","journal-title":"Front. Psych."},{"issue":"6","key":"10.1016\/j.ijmedinf.2026.106534_b0130","doi-asserted-by":"crossref","first-page":"591","DOI":"10.1007\/s10882-012-9291-3","article-title":"Stress in adolescents with a chronically ill parent: inspiration from Rolland's family systems-illness model","volume":"24","author":"Sieh","year":"2012","journal-title":"J. Dev. Phys. Disabil."},{"issue":"1","key":"10.1016\/j.ijmedinf.2026.106534_b0135","doi-asserted-by":"crossref","DOI":"10.1016\/j.dhjo.2019.100835","article-title":"Spousal support and self-determined physical activity in individuals with multiple sclerosis: a theory-informed qualitative exploration","volume":"13","author":"Wood","year":"2020","journal-title":"Disabil. Health J."},{"issue":"1","key":"10.1016\/j.ijmedinf.2026.106534_b0140","doi-asserted-by":"crossref","first-page":"173","DOI":"10.1186\/s40359-024-01678-w","article-title":"Profile and burden of the family caregiver: the caring experience in multiple sclerosis. An observational study","volume":"12","author":"Ponzio","year":"2024","journal-title":"BMC Psychol."},{"issue":"4","key":"10.1016\/j.ijmedinf.2026.106534_b0145","doi-asserted-by":"crossref","first-page":"179","DOI":"10.7224\/1537-2073-14.4.179","article-title":"Self-reported burden among caregivers of patients with multiple sclerosis","volume":"14","author":"Gupta","year":"2012","journal-title":"Int. J. MS Care."},{"issue":"10","key":"10.1016\/j.ijmedinf.2026.106534_b0150","doi-asserted-by":"crossref","first-page":"1097","DOI":"10.1136\/jnnp.2006.104216","article-title":"Caregiver burden in multiple sclerosis: the impact of neuropsychiatric symptoms","volume":"78","author":"Figved","year":"2007","journal-title":"J. Neurol. Neurosurg. Psychiatry"},{"key":"10.1016\/j.ijmedinf.2026.106534_b0155","doi-asserted-by":"crossref","first-page":"132","DOI":"10.1016\/j.chb.2009.10.015","article-title":"Factors affecting response rates of the web survey: a systematic review","volume":"26","author":"Fan","year":"2010","journal-title":"Comput. Hum. Behav."}],"container-title":["International Journal of Medical Informatics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1386505626002741?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1386505626002741?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,7,3]],"date-time":"2026-07-03T02:02:16Z","timestamp":1783044136000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1386505626002741"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9]]},"references-count":31,"alternative-id":["S1386505626002741"],"URL":"https:\/\/doi.org\/10.1016\/j.ijmedinf.2026.106534","relation":{},"ISSN":["1386-5056"],"issn-type":[{"value":"1386-5056","type":"print"}],"subject":[],"published":{"date-parts":[[2026,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Web-based family-reported outcomes to assess family functioning in multiple sclerosis: an Italian multicenter digital survey","name":"articletitle","label":"Article Title"},{"value":"International Journal of Medical Informatics","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ijmedinf.2026.106534","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Author(s). Published by Elsevier B.V.","name":"copyright","label":"Copyright"}],"article-number":"106534"}}