{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T10:58:10Z","timestamp":1777978690420,"version":"3.51.4"},"reference-count":32,"publisher":"Elsevier BV","issue":"6","license":[{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,2,14]],"date-time":"2025-02-14T00:00:00Z","timestamp":1739491200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100011772","name":"Novartis Farmac\u00e9utica SA","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100011772","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100020975","name":"UCB Pharma SA","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100020975","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.es","elsevier.es","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Actas Dermo-Sifiliogr\u00e1ficas"],"published-print":{"date-parts":[[2025,6]]},"DOI":"10.1016\/j.ad.2024.12.018","type":"journal-article","created":{"date-parts":[[2025,2,17]],"date-time":"2025-02-17T07:18:58Z","timestamp":1739776738000},"page":"567-574","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":4,"title":["Registro Espa\u00f1ol de Hidradenitis Supurativa (REHS) de la Academia Espa\u00f1ola de Dermatolog\u00eda y Venereolog\u00eda: descripci\u00f3n y datos del primer a\u00f1o de funcionamiento"],"prefix":"10.1016","volume":"116","author":[{"given":"L.","family":"Carnero Gonz\u00e1lez","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.G.","family":"Garcias-Ladaria","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"R.","family":"Rivera-D\u00edaz","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Bassas Vila","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.","family":"Salgado-Boquete","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Masferrer","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Molina-Leyva","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"H.","family":"Perandones-Gonz\u00e1lez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Mu\u00f1iz de Lucas","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.C.","family":"Pascual","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Mendieta-Eckert","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"G.","family":"Mart\u00edn-Ezquerra","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"P.","family":"Garbayo-Salmons","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.M.","family":"Nieto-Benito","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Roman\u00ed","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"B.","family":"Escutia","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Herrera-Acosta","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Vilarrasa","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Luque-Luna","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.M.","family":"Pericet Fern\u00e1ndez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"F.","family":"Rodr\u00edguez Garc\u00eda","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"N.","family":"No P\u00e9rez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"I.","family":"Gracia-Darder","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"D.","family":"Falkenhain-L\u00f3pez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"V.","family":"Mora-Fern\u00e1ndez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Oro-Ayude","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"O.","family":"Corral-Maga\u00f1a","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7628-3495","authenticated-orcid":false,"given":"M.","family":"Grau-P\u00e9rez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Martorell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.ad.2024.12.018_bib0165","doi-asserted-by":"crossref","first-page":"2277","DOI":"10.3390\/biomedicines11082277","article-title":"Skin and Gut Microbiome in Hidradenitis Suppurativa: A Systematic Review Biomedicines2023","volume":"11","author":"Lelonek","year":"2023","journal-title":"Biomedicines"},{"key":"10.1016\/j.ad.2024.12.018_bib0170","first-page":"868","article-title":"S2k guideline for the treatment of hidradenitis suppurativa \/acne inversa - Short version","volume":"22","author":"Zouboulis","year":"2024","journal-title":"J Dtsch Dermatol Ges"},{"key":"10.1016\/j.ad.2024.12.018_bib0175","first-page":"821","article-title":"Increased suicide risk in patients with hidradenitis suppurativa","volume":"8","author":"Thorlacius","year":"2020","journal-title":"Ann Transl Med"},{"key":"10.1016\/j.ad.2024.12.018_bib0180","doi-asserted-by":"crossref","first-page":"924","DOI":"10.1001\/jamadermatol.2021.1677","article-title":"Prevalence of Hidradenitis Suppurativa: A Systematic Review and Meta-regression Analysis","volume":"157","author":"Jfri","year":"2021","journal-title":"JAMA Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0185","doi-asserted-by":"crossref","first-page":"703","DOI":"10.1016\/j.ad.2015.06.004","article-title":"Actualizaci\u00f3n en hidradenitis supurativa (I): epidemiolog\u00eda, aspectos cl\u00ednicos y definici\u00f3n de severidad de la enfermedad","volume":"106","author":"Garc\u00eda-Mart\u00ednez","year":"2015","journal-title":"Actas Dermosifiliogr"},{"key":"10.1016\/j.ad.2024.12.018_bib0190","doi-asserted-by":"crossref","first-page":"1045","DOI":"10.1016\/j.jaad.2019.08.090","article-title":"Hidradenitis suppurativa Epidemiology, clinical presentation, and pathogenesis","volume":"82","author":"Goldburg","year":"2020","journal-title":"J Am Acad Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0195","doi-asserted-by":"crossref","first-page":"433","DOI":"10.1016\/j.ad.2023.12.001","article-title":"Topical and Intralesional Therapies for Hidradenitis Suppurativa: A Systematic Literature Review","volume":"115","author":"Pascual","year":"2024","journal-title":"Actas Dermosifiliogr"},{"key":"10.1016\/j.ad.2024.12.018_bib0200","doi-asserted-by":"crossref","first-page":"408","DOI":"10.1016\/j.ad.2019.12.001","article-title":"Comit\u00e9 quir\u00fargico para la hidradenitis suppurativa: nuestra experiencia","volume":"111","author":"Garbayo-Salmons","year":"2020","journal-title":"Actas Dermosifiliogr"},{"key":"10.1016\/j.ad.2024.12.018_bib0205","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1016\/j.ad.2022.12.005","article-title":"\u00bfPodemos mejorar el pron\u00f3stico de la hidradenitis supurativa? Definiendo a los pacientes en la \u00abventana de oportunidad\u00bb","volume":"115","author":"Melgosa Ramos","year":"2024","journal-title":"Actas Dermo-Sifiliogr\u00e1ficas"},{"key":"10.1016\/j.ad.2024.12.018_bib0210","doi-asserted-by":"crossref","first-page":"587","DOI":"10.1111\/bjd.16261","article-title":"Tobacco smoking and hidradenitis suppurativa: Associated disease and an important modifiable risk factor","volume":"178","author":"Micheletti","year":"2018","journal-title":"Br J Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0215","doi-asserted-by":"crossref","first-page":"2311","DOI":"10.3390\/jcm11092311","article-title":"Surgical Treatment in Hidradenitis Suppurativa","volume":"11","author":"Shukla","year":"2022","journal-title":"J Clin Med"},{"key":"10.1016\/j.ad.2024.12.018_bib0220","doi-asserted-by":"crossref","first-page":"e14885","DOI":"10.1111\/iwj.14885","article-title":"Is there a surgical window of opportunity in hidradenitis suppurativa?","volume":"21","author":"Mu\u00f1oz-Barba","year":"2024","journal-title":"Int Wound J"},{"key":"10.1016\/j.ad.2024.12.018_bib0225","unstructured":"James Lind Alliance. Priority Setting Partnerships [accessed 15 Aug 2024] Available from: http:\/\/www.jla.nihr.ac.uk\/priority-setting-partnerships\/hidradenitis-suppurativa\/top-10-priorities"},{"key":"10.1016\/j.ad.2024.12.018_bib0230","unstructured":"Centro Nacional de Informaci\u00f3n Geogr\u00e1fica (CNIG). Proyecto CartoCiudad [consultado 1 Sep 2024]. Disponible en: http:\/\/www.cartociudad.es\/web\/portal"},{"key":"10.1016\/j.ad.2024.12.018_bib0235","doi-asserted-by":"crossref","first-page":"1261","DOI":"10.1007\/s10552-022-01614-6","article-title":"Assessing the effect of environmental and socio-economic factor son skin melanoma incidence: An island-wide-spatial study in Gran Canaria (Spain), 2007-2018","volume":"33","author":"Grau","year":"2022","journal-title":"Cancer Causes Control"},{"key":"10.1016\/j.ad.2024.12.018_bib0240","first-page":"c1066","article-title":"Rethinking pragmatic randomised controlled trials: Introducing the \u201ccohort multiple randomised controlled trial\u201d design","volume":"340","author":"Relton","year":"2010","journal-title":"Br J Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0245","doi-asserted-by":"crossref","first-page":"377","DOI":"10.1016\/j.jbi.2008.08.010","article-title":"Research electronic data capture (REDCap) - A metadata-driven methodology and workflow process for providing translational research informatics support","volume":"42","author":"Harris","year":"2009","journal-title":"J Biomed Inform"},{"key":"10.1016\/j.ad.2024.12.018_bib0250","doi-asserted-by":"crossref","first-page":"S23","DOI":"10.1016\/j.jaad.2015.07.047","article-title":"New insights into the diagnosis of hidradenitis suppurativa: Clinical presentations and phenotypes","volume":"73","author":"Van der Zee","year":"2015","journal-title":"J Am Acad Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0255","unstructured":"HiSTORIC: Hidradenitis Suppurativa Core Outcomes Set International Collaboration [accessed 1 Oct 2024] Available from: https:\/\/www.c3outcomes.org\/historic"},{"key":"10.1016\/j.ad.2024.12.018_bib0260","doi-asserted-by":"crossref","first-page":"340","DOI":"10.1111\/bjd.18692","article-title":"The Hidradenitis Suppurativa Quality of Life (HiSQOL) score: Development and validation of a measure for clinical trials","volume":"183","author":"Kirby","year":"2020","journal-title":"Br J Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0265","unstructured":"Ministerio de Sanidad, Servicios Sociales e Igualdad. H\u00e1bitos de vida. Informe Anual del Sistema Nacional de Salud 2016 [consultado 20 Sep 2022]. Disponible en: https:\/\/www.sanidad.gob.es\/estadEstudios\/estadisticas\/sisInfSanSNS\/tablasEstadisticas\/InfAnualSNS2016\/2Hab_vida.pdf"},{"key":"10.1016\/j.ad.2024.12.018_bib0270","doi-asserted-by":"crossref","first-page":"642","DOI":"10.1111\/bjd.16672","article-title":"A core domain set for hidradenitis suppurativa trial outcomes: An international Delphi process","volume":"179","author":"Thorlacius","year":"2018","journal-title":"Br J Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0275","article-title":"Determination of Ranges of HiSQOL Scores Defining Clinically Meaningful Within-Patient Improvement Thresholds and Severity Levels","volume":"12-15","author":"Kirby","year":"2023","journal-title":"Poster presentado en ISPOR Europa 2023, Copenhague, Dinamarca"},{"issue":"Suppl 6","key":"10.1016\/j.ad.2024.12.018_bib0280","doi-asserted-by":"crossref","first-page":"4","DOI":"10.1111\/jdv.15826","article-title":"Hidradenitis suppurativa epidemiology: from the first Italian registry in 2009 to the most recent epidemiology aupdates Italian Registry Hidradenitis Suppurativa project 2","volume":"33","author":"Bettoli","year":"2019","journal-title":"J Eur Acad Dermatol Venereol."},{"key":"10.1016\/j.ad.2024.12.018_bib0285","doi-asserted-by":"crossref","first-page":"95","DOI":"10.1007\/s00403-020-02065-2","article-title":"Prevalence and cutaneous comorbidities of hidradenitis suppurativa in the German working population","volume":"313","author":"Kirsten","year":"2021","journal-title":"Arch Dermatol Res"},{"key":"10.1016\/j.ad.2024.12.018_bib0290","doi-asserted-by":"crossref","first-page":"981","DOI":"10.1111\/jdv.15353","article-title":"Evaluation of medical, surgical treatments for hidradenitis suppurativa using real-life data from the Scandinavian registry (HISREG)","volume":"33","author":"Grimstad","year":"2019","journal-title":"J Eur Acad Dermatol Venereol"},{"key":"10.1016\/j.ad.2024.12.018_bib0295","doi-asserted-by":"crossref","first-page":"e29","DOI":"10.1016\/j.jaad.2021.02.075","article-title":"Late-onset hidradenitis suppurativa: A cluster analysis of the National Italian registry IRIHS","volume":"85","author":"Cazzaniga","year":"2021","journal-title":"J Am Acad Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0300","doi-asserted-by":"crossref","first-page":"e274","DOI":"10.1111\/jdv.17023","article-title":"European registry for hidradenitis suppurativa: State of play","volume":"35","author":"Daxhelet","year":"2021","journal-title":"J Eur Acad Dermatol Venereol"},{"key":"10.1016\/j.ad.2024.12.018_bib0305","doi-asserted-by":"crossref","first-page":"553","DOI":"10.1159\/000538804","article-title":"Belgian Patients of the European Registry for Hidradenitis Suppurativa (ERHS-Be): Data Scores, and Phenotypes since 2015","volume":"240","author":"Heudens","year":"2024","journal-title":"Dermatology"},{"key":"10.1016\/j.ad.2024.12.018_bib0310","doi-asserted-by":"crossref","first-page":"2137","DOI":"10.1111\/jdv.15710","article-title":"Ultrasound as a diagnostic and management tool in hidradenitis suppurativa patients: A multicentre study","volume":"33","author":"Martorell","year":"2019","journal-title":"J Eur Acad Dermatol"},{"key":"10.1016\/j.ad.2024.12.018_bib0315","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1016\/j.jdin.2024.08.002","article-title":"Demographics and lifestyle factors of hidradenitis suppurativa patients: An all of us database analysis","volume":"3","author":"Pathak","year":"2024","journal-title":"JAAD Int"},{"key":"10.1016\/j.ad.2024.12.018_bib0320","doi-asserted-by":"crossref","first-page":"32","DOI":"10.1016\/S0001-7310(17)30007-8","article-title":"Manejo del paciente con hidradenitis supurativa","volume":"107","author":"Martorell","year":"2016","journal-title":"Actas Derm Sifiliogr"}],"container-title":["Actas Dermo-Sifiliogr\u00e1ficas"],"original-title":[],"language":"es","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0001731025000973?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0001731025000973?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,6,3]],"date-time":"2025-06-03T17:45:46Z","timestamp":1748972746000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0001731025000973"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6]]},"references-count":32,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2025,6]]}},"alternative-id":["S0001731025000973"],"URL":"https:\/\/doi.org\/10.1016\/j.ad.2024.12.018","relation":{},"ISSN":["0001-7310"],"issn-type":[{"value":"0001-7310","type":"print"}],"subject":[],"published":{"date-parts":[[2025,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Registro Espa\u00f1ol de Hidradenitis Supurativa (REHS) de la Academia Espa\u00f1ola de Dermatolog\u00eda y Venereolog\u00eda: descripci\u00f3n y datos del primer a\u00f1o de funcionamiento","name":"articletitle","label":"Article Title"},{"value":"Actas Dermo-Sifiliogr\u00e1ficas","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ad.2024.12.018","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 AEDV. Published by Elsevier Espa\u00f1a, S.L.U.","name":"copyright","label":"Copyright"}]}}