{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,7]],"date-time":"2025-11-07T13:25:15Z","timestamp":1762521915331,"version":"3.37.3"},"reference-count":29,"publisher":"Elsevier BV","issue":"10","license":[{"start":{"date-parts":[[2016,12,1]],"date-time":"2016-12-01T00:00:00Z","timestamp":1480550400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2016,4,1]],"date-time":"2016-04-01T00:00:00Z","timestamp":1459468800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["clinicalkey.es","elsevier.es","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Atenci\u00f3n Primaria"],"published-print":{"date-parts":[[2016,12]]},"DOI":"10.1016\/j.aprim.2016.02.008","type":"journal-article","created":{"date-parts":[[2016,6,8]],"date-time":"2016-06-08T17:27:57Z","timestamp":1465406877000},"page":"665-673","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":12,"title":["Vivir con la enfermedad pulmonar obstructiva cr\u00f3nica avanzada: el impacto de la disnea en los pacientes y cuidadores"],"prefix":"10.1016","volume":"48","author":[{"given":"Xavier","family":"Costa","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Xavier","family":"G\u00f3mez-Batiste","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Margarida","family":"Pla","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marisa","family":"Mart\u00ednez-Mu\u00f1oz","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Carles","family":"Blay","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura","family":"Vila","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.aprim.2016.02.008_bib0150","doi-asserted-by":"crossref","first-page":"54","DOI":"10.1016\/S2213-2600(13)70232-7","article-title":"Mortality trends in chronic obstructive pulmonary disease in Europe, 1994-2010: A joinpoint regression analysis","volume":"2","author":"L\u00f3pez-Campos","year":"2014","journal-title":"Lancet Respir Med."},{"key":"10.1016\/j.aprim.2016.02.008_bib0155","doi-asserted-by":"crossref","first-page":"1007","DOI":"10.1136\/bmj.330.7498.1007","article-title":"Illness trajectories and palliative care","volume":"330","author":"Murray","year":"2005","journal-title":"BMJ."},{"key":"10.1016\/j.aprim.2016.02.008_bib0160","doi-asserted-by":"crossref","first-page":"106","DOI":"10.1016\/S0885-3924(02)00468-2","article-title":"A model to guide patient and family care: Based on nationally accepted principles and norms of practice","volume":"24","author":"Ferris","year":"2002","journal-title":"J Pain Symptom Manage."},{"key":"10.1016\/j.aprim.2016.02.008_bib0165","doi-asserted-by":"crossref","first-page":"b4122","DOI":"10.1136\/bmj.b4122","article-title":"Use of multiperspective qualitative interviews to understand patients\u2019 and carers\u2019 beliefs, experiences, and needs","volume":"339","author":"Kendall","year":"2009","journal-title":"BMJ."},{"key":"10.1016\/j.aprim.2016.02.008_bib0170","doi-asserted-by":"crossref","first-page":"b3702","DOI":"10.1136\/bmj.b3702","article-title":"Use of serial qualitative interviews to understand patients\u2019 evolving experiences and needs","volume":"339","author":"Murray","year":"2009","journal-title":"BMJ"},{"key":"10.1016\/j.aprim.2016.02.008_bib0175","series-title":"Principios de la Educaci\u00f3n M\u00e9dica. Desde el grado hasta el desarrollo profesional","first-page":"701","article-title":"La investigaci\u00f3n cualitativa en Educaci\u00f3n M\u00e9dica","author":"Pla","year":"2015"},{"key":"10.1016\/j.aprim.2016.02.008_bib0180","doi-asserted-by":"crossref","first-page":"d142","DOI":"10.1136\/bmj.d142","article-title":"Living and dying with severe chronic obstructive pulmonary disease: Multi-perspective longitudinal qualitative study","volume":"342","author":"Pinnock","year":"2011","journal-title":"BMJ."},{"key":"10.1016\/j.aprim.2016.02.008_bib0185","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1016\/j.rmed.2009.09.007","article-title":"Exploring the care needs of patients with advanced COPD: An overview of the literature","volume":"104","author":"Gardiner","year":"2010","journal-title":"Respir Med."},{"key":"10.1016\/j.aprim.2016.02.008_bib0190","first-page":"1","article-title":"Experiences of living and dying with COPD: A systematic review and synthesis of the qualitative empirical literature","volume":"12","author":"Giacomini","year":"2012","journal-title":"Ont Health Technol Assess Ser."},{"key":"10.1016\/j.aprim.2016.02.008_bib0195","doi-asserted-by":"crossref","first-page":"121","DOI":"10.1016\/j.pec.2007.05.011","article-title":"Health care needs in end-stage COPD: A structured literature review","volume":"68","author":"Habraken","year":"2007","journal-title":"Patient Educ Couns."},{"key":"10.1016\/j.aprim.2016.02.008_bib0200","doi-asserted-by":"crossref","first-page":"1182","DOI":"10.1016\/j.jpainsymman.2014.03.009","article-title":"Experience of advanced chronic obstructive pulmonary disease: Metasynthesis of qualitative research","volume":"48","author":"Disler","year":"2014","journal-title":"J Pain Symptom Manage."},{"key":"10.1016\/j.aprim.2016.02.008_bib0205","doi-asserted-by":"crossref","first-page":"241","DOI":"10.1016\/j.medcli.2012.06.027","article-title":"Identification of people with chronic advanced diseases and need of palliative care in sociosanitary services: elaboration of the NECPAL CCOMS-ICO(tool]","volume":"140","author":"G\u00f3mez-Batiste","year":"2013","journal-title":"Med Clin (Barc)."},{"year":"2002","series-title":"Bases de la investigaci\u00f3n cualitativa: t\u00e9cnicas y procedimientos para desarrollar la teor\u00eda fundamentada","author":"Strauss","key":"10.1016\/j.aprim.2016.02.008_bib0210"},{"key":"10.1016\/j.aprim.2016.02.008_bib0215","doi-asserted-by":"crossref","first-page":"439","DOI":"10.1016\/j.rmed.2003.11.006","article-title":"The last year of life of COPD: A qualitative study of symptoms and services","volume":"98","author":"Elkington","year":"2004","journal-title":"Respir Med."},{"key":"10.1016\/j.aprim.2016.02.008_bib0220","doi-asserted-by":"crossref","first-page":"485","DOI":"10.1191\/0269216305pm1056oa","article-title":"The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life","volume":"19","author":"Elkington","year":"2005","journal-title":"Palliat Med."},{"issue":"5 Suppl","key":"10.1016\/j.aprim.2016.02.008_bib0225","doi-asserted-by":"crossref","first-page":"91","DOI":"10.1111\/j.1532-5415.2000.tb03147.x","article-title":"Living and dying with chronic obstructive pulmonary disease","volume":"48","author":"Lynn","year":"2000","journal-title":"J Am Geriatr Soc."},{"key":"10.1016\/j.aprim.2016.02.008_bib0230","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1016\/j.jpainsymman.2008.07.006","article-title":"Symptom distress and quality of life in patients with advanced chronic obstructive pulmonary disease","volume":"38","author":"Blinderman","year":"2009","journal-title":"J Pain Symptom Manage."},{"key":"10.1016\/j.aprim.2016.02.008_bib0235","doi-asserted-by":"crossref","first-page":"619","DOI":"10.1191\/0269216304pm928oa","article-title":"Living with severe chronic obstructive pulmonary disease (COPD): Perceptions of patients and their carers. An interpretative phenomenological analysis","volume":"18","author":"Seamark","year":"2004","journal-title":"Palliative Med."},{"key":"10.1016\/j.aprim.2016.02.008_bib0240","doi-asserted-by":"crossref","first-page":"310","DOI":"10.1093\/fampra\/cmh317","article-title":"The needs of patients dying of chronic obstructive pulmonary disease in the community","volume":"21","author":"Jones","year":"2004","journal-title":"Fam Pract."},{"key":"10.1016\/j.aprim.2016.02.008_bib0245","doi-asserted-by":"crossref","first-page":"760","DOI":"10.1177\/1049732304265973","article-title":"The dyspnea-anxiety-dyspnea cycle\u2013COPD patients\u2019 stories of breathlessness: It's scary\/when you can\u2019t breathe","volume":"14","author":"Bailey","year":"2004","journal-title":"Qual Health Res."},{"key":"10.1016\/j.aprim.2016.02.008_bib0250","doi-asserted-by":"crossref","first-page":"451","DOI":"10.12968\/ijpn.2010.16.9.78640","article-title":"Dying means suffocating: perceptions of people living with severe COPD facing the end of life","volume":"16","author":"Hall","year":"2010","journal-title":"Int J Palliat Nurs."},{"key":"10.1016\/j.aprim.2016.02.008_bib0255","doi-asserted-by":"crossref","first-page":"601","DOI":"10.1089\/jpm.2007.0236","article-title":"Transitions regarding palliative and end-of-life care in severe chronic obstructive pulmonary disease or advanced cancer: Themes identified by patients, families, and clinicians","volume":"11","author":"Reinke","year":"2008","journal-title":"J Palliat Med."},{"key":"10.1016\/j.aprim.2016.02.008_bib0260","doi-asserted-by":"crossref","first-page":"1480","DOI":"10.1111\/j.1365-2648.2010.05604.x","article-title":"Struggling to retain living space: Patients\u2019 stories about living with advanced chronic obstructive pulmonary disease","volume":"67","author":"Ek","year":"2011","journal-title":"J Adv Nurs."},{"key":"10.1016\/j.aprim.2016.02.008_bib0265","first-page":"38","article-title":"Living with severe hypoxic COPD: The patients\u2019 experience","volume":"101","author":"Robinson","year":"2005","journal-title":"Nurs Times."},{"key":"10.1016\/j.aprim.2016.02.008_bib0270","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1186\/1471-2466-11-9","article-title":"Ambulatory oxygen: Why do COPD patients not use their portable systems as prescribed? A qualitative study","volume":"11","author":"Arnold","year":"2011","journal-title":"BMC Pulm Med."},{"key":"10.1016\/j.aprim.2016.02.008_bib0275","doi-asserted-by":"crossref","first-page":"844","DOI":"10.3399\/bjgp08X376186","article-title":"The silence of patients with end-stage COPD: A qualitative study","volume":"58","author":"Habraken","year":"2008","journal-title":"Br J Gen Pract."},{"key":"10.1016\/j.aprim.2016.02.008_bib0280","doi-asserted-by":"crossref","first-page":"470","DOI":"10.1111\/j.1365-2648.2008.04611.x","article-title":"Living with chronic obstructive pulmonary disease at the end of life: A phenomenological study","volume":"62","author":"Ek","year":"2008","journal-title":"J Adv Nurs."},{"key":"10.1016\/j.aprim.2016.02.008_bib0285","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1016\/j.jpainsymman.2007.11.008","article-title":"Access to services for patients with chronic obstructive pulmonary disease: The invisibility of breathlessness","volume":"36","author":"Gysels","year":"2008","journal-title":"J Pain Symptom Manage."},{"key":"10.1016\/j.aprim.2016.02.008_bib0290","first-page":"295","article-title":"El rigor en la investigaci\u00f3n cualitativa","volume":"24","author":"Pla","year":"1999","journal-title":"Aten Prim."}],"container-title":["Atenci\u00f3n Primaria"],"original-title":[],"language":"es","link":[{"URL":"http:\/\/api.elsevier.com\/content\/article\/PII:S021265671630097X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/api.elsevier.com\/content\/article\/PII:S021265671630097X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2017,6,24]],"date-time":"2017-06-24T11:59:10Z","timestamp":1498305550000},"score":1,"resource":{"primary":{"URL":"http:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S021265671630097X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,12]]},"references-count":29,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2016,12]]}},"alternative-id":["S021265671630097X"],"URL":"https:\/\/doi.org\/10.1016\/j.aprim.2016.02.008","relation":{},"ISSN":["0212-6567"],"issn-type":[{"type":"print","value":"0212-6567"}],"subject":[],"published":{"date-parts":[[2016,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Vivir con la enfermedad pulmonar obstructiva cr\u00f3nica avanzada: el impacto de la disnea en los pacientes y cuidadores","name":"articletitle","label":"Article Title"},{"value":"Atenci\u00f3n Primaria","name":"journaltitle","label":"Journal Title"},{"value":"http:\/\/dx.doi.org\/10.1016\/j.aprim.2016.02.008","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2016 Elsevier Espa\u00f1a, S.L.U.","name":"copyright","label":"Copyright"}]}}