{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,4]],"date-time":"2026-07-04T15:16:13Z","timestamp":1783178173571,"version":"3.54.6"},"reference-count":168,"publisher":"Elsevier BV","issue":"7","license":[{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.es","elsevier.es","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Archivos de Bronconeumolog\u00eda"],"published-print":{"date-parts":[[2026,7]]},"DOI":"10.1016\/j.arbres.2026.01.014","type":"journal-article","created":{"date-parts":[[2026,1,31]],"date-time":"2026-01-31T00:12:30Z","timestamp":1769818350000},"page":"481-498","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"title":["Consensus Document on the Multidisciplinary Management of Advanced-Stage Respiratory Diseases"],"prefix":"10.1016","volume":"62","author":[{"given":"Javier","family":"de Miguel-D\u00edez","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Manuel","family":"Castillo-Padr\u00f3s","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Juan Marco","family":"Figueira-Gon\u00e7alves","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rodrigo","family":"Torres-Castro","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel","family":"Gainza-Miranda","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rafael","family":"Golpe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Miguel \u00c1ngel","family":"Cuervo-Pinna","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Raquel","family":"P\u00e9rez-Rojo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jes\u00fas","family":"Gonz\u00e1lez-Barboteo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Francisco Javier","family":"Callejas-Gonz\u00e1lez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claudio","family":"Calvo-Espin\u00f3s","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mar\u00eda Teresa","family":"R\u00edo-Ram\u00edrez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M\u00aa \u00c1ngeles","family":"Olalla-Gallo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Miren Bego\u00f1e","family":"Salinas-Lasa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Teresa","family":"Salcedo-Per\u00eds","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib0845","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1016\/j.arbres.2020.07.024","article-title":"Prevalence and determinants of COPD in Spain: EPISCAN II","volume":"57","author":"Soriano","year":"2021","journal-title":"Arch Bronconeumol"},{"key":"10.1016\/j.arbres.2026.01.014_bib0850","unstructured":"Global Initiative for Chronic Obstructive Lung Disease \u2013 GOLD [Internet]. 2025 GOLD Report. Available from: https:\/\/goldcopd.org\/2025-gold-report\/ [cited 7.12.25]."},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib0855","doi-asserted-by":"crossref","first-page":"378","DOI":"10.1186\/s12890-025-03836-1","article-title":"Incidence and prevalence of idiopathic pulmonary fibrosis: a systematic literature review and meta-analysis","volume":"25","author":"Golchin","year":"2025","journal-title":"BMC Pulm Med"},{"key":"10.1016\/j.arbres.2026.01.014_bib0860","unstructured":"Forum of International Respiratory Societies [Internet]. The Global Impact of Respiratory Disease \u2013 3rd Edition. Available from: https:\/\/firsnet.org\/publication\/the-global-impact-of-respiratory-disease-3rd-edition\/ [cited 7.12.25]."},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib0865","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1136\/bmjebm-2022-112068","article-title":"Shared decision-making as a method of care","volume":"28","author":"Montori","year":"2023","journal-title":"BMJ Evid-Based Med"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib0870","doi-asserted-by":"crossref","first-page":"198","DOI":"10.1183\/20734735.0200-2019","article-title":"Improving the quality of life of people with advanced respiratory disease and severe breathlessness","volume":"15","author":"Booth","year":"2019","journal-title":"Breathe Sheff Engl"},{"issue":"10","key":"10.1016\/j.arbres.2026.01.014_bib0875","doi-asserted-by":"crossref","first-page":"1052","DOI":"10.1001\/jama.2014.304","article-title":"Caregiver burden: a clinical review","volume":"311","author":"Adelman","year":"2014","journal-title":"JAMA"},{"key":"10.1016\/j.arbres.2026.01.014_bib0880","doi-asserted-by":"crossref","DOI":"10.1177\/14799731231168897","article-title":"The experience of caregiver burden when being next of kin to a person with severe chronic obstructive pulmonary disease: a qualitative study","volume":"20","author":"Johansson","year":"2023","journal-title":"Chron Respir Dis"},{"key":"10.1016\/j.arbres.2026.01.014_bib0885","doi-asserted-by":"crossref","DOI":"10.1177\/17534666241305497","article-title":"Early, integrated palliative care for people with chronic respiratory disease: lessons learnt from lung cancer","volume":"19","author":"Walker","year":"2025","journal-title":"Ther Adv Respir Dis"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib0890","doi-asserted-by":"crossref","first-page":"e44","DOI":"10.1164\/rccm.202207-1262ST","article-title":"Palliative care early in the care continuum among patients with serious respiratory illness: an official ATS\/AAHPM\/HPNA\/SWHPN policy statement","volume":"206","author":"Sullivan","year":"2022","journal-title":"Am J Respir Crit Care Med"},{"key":"10.1016\/j.arbres.2026.01.014_bib0895","unstructured":"The burden of lung disease [Internet]. Available from: https:\/\/www.ersnet.org\/wp-content\/uploads\/2023\/01\/Overview.pdf [cited 7.12.25]."},{"issue":"11","key":"10.1016\/j.arbres.2026.01.014_bib0900","doi-asserted-by":"crossref","first-page":"1006","DOI":"10.1136\/thorax-2024-221721","article-title":"Consensus palliative care referral criteria for people with chronic obstructive pulmonary disease","volume":"79","author":"Philip","year":"2024","journal-title":"Thorax"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib0905","doi-asserted-by":"crossref","first-page":"993","DOI":"10.1183\/09031936.00082507","article-title":"Definition, epidemiology and natural history of COPD","volume":"30","author":"Viegi","year":"2007","journal-title":"Eur Respir J"},{"key":"10.1016\/j.arbres.2026.01.014_bib0910","series-title":"Management of chronic obstructive pulmonary disease [Internet]","first-page":"430","article-title":"Management of end-stage chronic obstructive pulmonary disease","author":"Klimathianaki","year":"2025"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib0915","doi-asserted-by":"crossref","first-page":"100411","DOI":"10.1016\/j.opresp.2025.100411","article-title":"Delphi consensus on the management of patients with advanced COPD: COPD-Avanz Working Group","volume":"7","author":"Figueira Gon\u00e7alves","year":"2025","journal-title":"Open Respir Arch"},{"key":"10.1016\/j.arbres.2026.01.014_bib0920","article-title":"Criteria for advanced COPD in patients hospitalized due to COPD exacerbation: prevalence and predictive capacity","author":"Fern\u00e1ndez-Villar","year":"2025","journal-title":"Arch Bronconeumol"},{"key":"10.1016\/j.arbres.2026.01.014_bib0925","doi-asserted-by":"crossref","first-page":"c4863","DOI":"10.1136\/bmj.c4863","article-title":"Recognising and managing key transitions in end of life care","volume":"341","author":"Boyd","year":"2010","journal-title":"BMJ"},{"key":"10.1016\/j.arbres.2026.01.014_bib0930","doi-asserted-by":"crossref","first-page":"1721","DOI":"10.2147\/COPD.S135657","article-title":"Palliative care and prognosis in COPD: a systematic review with a validation cohort","volume":"12","author":"Almagro","year":"2017","journal-title":"Int J Chron Obstruct Pulmon Dis"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib0935","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1080\/0742-969X.1996.11882820","article-title":"Medical guidelines for determining prognosis in selected non-cancer diseases. The National Hospice Organization","volume":"11","year":"1996","journal-title":"Hosp J"},{"key":"10.1016\/j.arbres.2026.01.014_bib0940","unstructured":"CCOMS-ICO N. Proyecto NECPAL CCOMS-ICO\u00a9: Instrumento para la identificaci\u00f3n de personas en situaci\u00f3n de enfermedad cr\u00f3nica avanzada y necesidades de atenci\u00f3n paliativa en servicios de salud y social. Centro Colaborador de la OMS para Programas P\u00fablicos de Cuidados Paliativos."},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib0945","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1177\/082585971102700107","article-title":"Palliative care for people with chronic heart failure: when is it time?","volume":"27","author":"Johnson","year":"2011","journal-title":"J Palliat Care"},{"key":"10.1016\/j.arbres.2026.01.014_bib0950","doi-asserted-by":"crossref","first-page":"62","DOI":"10.1016\/S0300-2896(17)30370-8","article-title":"Atenci\u00f3n a la EPOC al final de la vida. Cuidados paliativos","volume":"53","year":"2017","journal-title":"Arch Bronconeumol"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib0955","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.02014-2022","article-title":"European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease","volume":"62","author":"Janssen","year":"2023","journal-title":"Eur Respir J"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib0960","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.04307-2020","article-title":"Referral criteria to palliative care for patients with respiratory disease: a systematic review","volume":"58","author":"Philip","year":"2021","journal-title":"Eur Respir J"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib0965","doi-asserted-by":"crossref","first-page":"418","DOI":"10.1016\/j.arbres.2021.12.006","article-title":"Diagnostic and therapeutic developments in progressive pulmonary fibrosis","volume":"58","author":"Molina-Molina","year":"2022","journal-title":"Arch Bronconeumol"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib0970","doi-asserted-by":"crossref","first-page":"710","DOI":"10.1177\/10499091211040232","article-title":"Palliative care for the interstitial lung disease patient a must and not just a need","volume":"39","author":"Chaaban","year":"2022","journal-title":"Am J Hosp Palliat Care"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib0975","doi-asserted-by":"crossref","first-page":"90","DOI":"10.21037\/apm-24-111","article-title":"Palliative care in the older adult with advanced lung disease","volume":"14","author":"Chen","year":"2025","journal-title":"Ann Palliat Med"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib0980","doi-asserted-by":"crossref","DOI":"10.1089\/jpm.2016.0258","article-title":"Referral to palliative care infrequent in patients with idiopathic pulmonary fibrosis admitted to an intensive care unit","volume":"20","author":"Liang","year":"2017","journal-title":"J Palliat Med"},{"issue":"10","key":"10.1016\/j.arbres.2026.01.014_bib0985","doi-asserted-by":"crossref","first-page":"684","DOI":"10.7326\/0003-4819-156-10-201205150-00004","article-title":"A multidimensional index and staging system for idiopathic pulmonary fibrosis","volume":"156","author":"Ley","year":"2012","journal-title":"Ann Intern Med"},{"issue":"9","key":"10.1016\/j.arbres.2026.01.014_bib0990","doi-asserted-by":"crossref","first-page":"830","DOI":"10.1136\/thoraxjnl-2014-206583","article-title":"Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention","volume":"70","author":"Bajwah","year":"2015","journal-title":"Thorax"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib0995","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1016\/j.hrtlng.2016.10.002","article-title":"The palliative care needs of patients with idiopathic pulmonary fibrosis: a qualitative study of patients and family caregivers","volume":"46","author":"Lindell","year":"2017","journal-title":"Heart Lung J Crit Care"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1000","doi-asserted-by":"crossref","first-page":"1111","DOI":"10.1016\/j.jpainsymman.2016.12.344","article-title":"Early and integrated palliative care to achieve a home death in idiopathic pulmonary fibrosis","volume":"53","author":"Kalluri","year":"2017","journal-title":"J Pain Symptom Manage"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1005","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1177\/003693300505000202","article-title":"The Scottish intercollegiate guidelines network (sign): an update","volume":"50","author":"Lowe","year":"2005","journal-title":"Scott Med J"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1010","first-page":"1043","article-title":"Standard operating procedures for ESPEN guidelines and consensus papers","volume":"34","author":"Bischoff","year":"2015","journal-title":"Clin Nutr Edinb Scotl"},{"issue":"7","key":"10.1016\/j.arbres.2026.01.014_bib1015","doi-asserted-by":"crossref","first-page":"e1000100","DOI":"10.1371\/journal.pmed.1000100","article-title":"The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration","volume":"6","author":"Liberati","year":"2009","journal-title":"PLOS Med"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1020","doi-asserted-by":"crossref","first-page":"743","DOI":"10.3390\/jcm13030743","article-title":"Comorbidities in COPD: current and future treatment challenges","volume":"13","author":"Mariniello","year":"2024","journal-title":"J Clin Med"},{"issue":"143","key":"10.1016\/j.arbres.2026.01.014_bib1025","doi-asserted-by":"crossref","DOI":"10.1183\/16000617.0027-2016","article-title":"Comorbidities in interstitial lung diseases","volume":"26","author":"Margaritopoulos","year":"2017","journal-title":"Eur Respir Rev"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1030","first-page":"137","article-title":"Chronic refractory dyspnoea \u2013 evidence based management","volume":"42","author":"Wiseman","year":"2013","journal-title":"Aust Fam Physician"},{"key":"10.1016\/j.arbres.2026.01.014_bib1035","doi-asserted-by":"crossref","DOI":"10.1016\/j.rmed.2023.107526","article-title":"Frequency and characteristics of refractory dyspnea in idiopathic fibrosing interstitial pneumonia","volume":"222","author":"Bautin","year":"2024","journal-title":"Respir Med"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1040","doi-asserted-by":"crossref","first-page":"1181","DOI":"10.1016\/j.chest.2016.02.646","article-title":"A systematic review with meta-analysis of dual bronchodilation with LAMA\/LABA for the treatment of stable COPD","volume":"149","author":"Calzetta","year":"2016","journal-title":"Chest"},{"issue":"7","key":"10.1016\/j.arbres.2026.01.014_bib1045","doi-asserted-by":"crossref","first-page":"834","DOI":"10.1089\/jpm.2011.0260","article-title":"Dyspnea in palliative care: expanding the role of corticosteroids","volume":"15","author":"Lin","year":"2012","journal-title":"J Palliat Med"},{"issue":"7","key":"10.1016\/j.arbres.2026.01.014_bib1050","doi-asserted-by":"crossref","first-page":"1079","DOI":"10.1513\/AnnalsATS.201501-034OC","article-title":"Effects of opioids on breathlessness and exercise capacity in chronic obstructive pulmonary disease. A systematic review","volume":"12","author":"Ekstr\u00f6m","year":"2015","journal-title":"Ann Am Thorac Soc"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1055","article-title":"Opioids for the palliation of refractory breathlessness in adults with advanced disease and terminal illness","volume":"3","author":"Barnes","year":"2016","journal-title":"Cochrane Database Syst Rev"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1060","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.00335-2024","article-title":"European Respiratory Society clinical practice guideline on symptom management for adults with serious respiratory illness","volume":"63","author":"Holland","year":"2024","journal-title":"Eur Respir J"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1065","doi-asserted-by":"crossref","first-page":"256","DOI":"10.1016\/S0885-3924(98)00157-2","article-title":"How effective are supplementary doses of opioids for dyspnea in terminally ill cancer patients? A randomized continuous sequential clinical trial","volume":"17","author":"Allard","year":"1999","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1070","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1016\/j.jpainsymman.2005.06.009","article-title":"Midazolam as adjunct therapy to morphine in the alleviation of severe dyspnea perception in patients with advanced cancer","volume":"31","author":"Navigante","year":"2006","journal-title":"J Pain Symptom Manage"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1075","doi-asserted-by":"crossref","first-page":"798","DOI":"10.1016\/j.jpainsymman.2017.08.001","article-title":"Effect of prophylactic fentanyl buccal tablet on episodic exertional dyspnea: a pilot double-blind randomized controlled trial","volume":"54","author":"Hui","year":"2017","journal-title":"J Pain Symptom Manage"},{"issue":"10","key":"10.1016\/j.arbres.2026.01.014_bib1080","article-title":"Benzodiazepines for the relief of breathlessness in advanced malignant and non-malignant diseases in adults","volume":"10","author":"Simon","year":"2016","journal-title":"Cochrane Database Syst Rev"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1085","doi-asserted-by":"crossref","first-page":"341","DOI":"10.1016\/0885-3924(94)90193-7","article-title":"The use of chlorpromazine for symptom control in dying cancer patients","volume":"9","author":"McIver","year":"1994","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1090","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1038\/s41533-017-0024-z","article-title":"The Breathing, Thinking, Functioning clinical model: a proposal to facilitate evidence-based breathlessness management in chronic respiratory disease","volume":"27","author":"Spathis","year":"2017","journal-title":"NPJ Prim Care Respir Med"},{"issue":"7","key":"10.1016\/j.arbres.2026.01.014_bib1095","doi-asserted-by":"crossref","first-page":"631","DOI":"10.1136\/thx.2010.158501","article-title":"A randomised trial of domiciliary, ambulatory oxygen in patients with COPD and dyspnoea but without resting hypoxaemia","volume":"66","author":"Garcia-Talavera","year":"2011","journal-title":"Thorax"},{"issue":"9743","key":"10.1016\/j.arbres.2026.01.014_bib1100","doi-asserted-by":"crossref","first-page":"784","DOI":"10.1016\/S0140-6736(10)61115-4","article-title":"Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial","volume":"376","author":"Abernethy","year":"2010","journal-title":"Lancet Lond Engl"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1105","doi-asserted-by":"crossref","first-page":"e237","DOI":"10.1016\/j.jpainsymman.2021.09.016","article-title":"Nasal high flow therapy for symptom management in people receiving palliative care","volume":"63","author":"Huang","year":"2022","journal-title":"J Pain Symptom Manage"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1110","doi-asserted-by":"crossref","first-page":"615","DOI":"10.1016\/j.annemergmed.2019.09.009","article-title":"High-flow nasal cannula versus conventional oxygen therapy in relieving dyspnea in emergency palliative patients with do-not-intubate status: a randomized crossover study","volume":"75","author":"Ruangsomboon","year":"2020","journal-title":"Ann Emerg Med"},{"issue":"10","key":"10.1016\/j.arbres.2026.01.014_bib1115","doi-asserted-by":"crossref","first-page":"2956","DOI":"10.3390\/jcm13102956","article-title":"High-flow nasal cannula system in respiratory failure associated with interstitial lung diseases: a systematic review and narrative synthesis","volume":"13","author":"Pagliaro","year":"2024","journal-title":"J Clin Med"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1120","doi-asserted-by":"crossref","first-page":"701","DOI":"10.4187\/respcare.06618","article-title":"Noninvasive respiratory support at the end of life","volume":"64","author":"Davies","year":"2019","journal-title":"Respir Care"},{"issue":"8","key":"10.1016\/j.arbres.2026.01.014_bib1125","doi-asserted-by":"crossref","first-page":"1209","DOI":"10.1097\/CCM.0000000000003082","article-title":"Noninvasive ventilation in patients with do-not-intubate and comfort-measures-only orders: a systematic review and meta-analysis","volume":"46","author":"Wilson","year":"2018","journal-title":"Crit Care Med"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1130","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1186\/s12904-016-0158-8","article-title":"End-of-life care of patients with idiopathic pulmonary fibrosis","volume":"15","author":"Rajala","year":"2016","journal-title":"BMC Palliat Care"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1135","doi-asserted-by":"crossref","first-page":"219","DOI":"10.1016\/S1470-2045(13)70009-3","article-title":"Palliative use of non-invasive ventilation in end-of-life patients with solid tumours: a randomised feasibility trial","volume":"14","author":"Nava","year":"2013","journal-title":"Lancet Oncol"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1140","doi-asserted-by":"crossref","first-page":"425","DOI":"10.3109\/15412555.2012.758696","article-title":"Impact of pulmonary rehabilitation on the major dimensions of dyspnea in COPD","volume":"10","author":"Wadell","year":"2013","journal-title":"COPD"},{"issue":"9035","key":"10.1016\/j.arbres.2026.01.014_bib1145","doi-asserted-by":"crossref","first-page":"1115","DOI":"10.1016\/S0140-6736(96)04201-8","article-title":"Meta-analysis of respiratory rehabilitation in chronic obstructive pulmonary disease","volume":"348","author":"Lacasse","year":"1996","journal-title":"Lancet Lond Engl"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1150","doi-asserted-by":"crossref","first-page":"e7","DOI":"10.1164\/rccm.202306-1066ST","article-title":"Pulmonary rehabilitation for adults with chronic respiratory disease: an official American Thoracic Society clinical practice guideline","volume":"208","author":"Rochester","year":"2023","journal-title":"Am J Respir Crit Care Med"},{"issue":"10","key":"10.1016\/j.arbres.2026.01.014_bib1155","doi-asserted-by":"crossref","first-page":"1989","DOI":"10.1016\/j.apmr.2021.03.035","article-title":"Effectiveness of pulmonary rehabilitation in interstitial lung disease, including coronavirus diseases: a systematic review and meta-analysis","volume":"102","author":"Reina-Guti\u00e9rrez","year":"2021","journal-title":"Arch Phys Med Rehabil"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1160","doi-asserted-by":"crossref","first-page":"831","DOI":"10.1016\/j.jpainsymman.2009.09.024","article-title":"Does the use of a handheld fan improve chronic dyspnea? A randomized, controlled, crossover trial","volume":"39","author":"Galbraith","year":"2010","journal-title":"J Pain Symptom Manage"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1165","doi-asserted-by":"crossref","first-page":"603","DOI":"10.1016\/j.chest.2022.03.025","article-title":"Cough-specific quality of life predicts disease progression among patients with interstitial lung disease: data from the pulmonary fibrosis foundation patient registry","volume":"162","author":"Lee","year":"2022","journal-title":"Chest"},{"key":"10.1016\/j.arbres.2026.01.014_bib1170","doi-asserted-by":"crossref","first-page":"2091","DOI":"10.2147\/COPD.S106883","article-title":"Impact of current cough on health-related quality of life in patients with COPD","volume":"11","author":"Deslee","year":"2016","journal-title":"Int J Chron Obstruct Pulmon Dis"},{"issue":"12","key":"10.1016\/j.arbres.2026.01.014_bib1175","doi-asserted-by":"crossref","first-page":"1177","DOI":"10.1080\/17476348.2023.2299751","article-title":"Mechanisms and management of cough in interstitial lung disease","volume":"17","author":"Rasheed","year":"2023","journal-title":"Expert Rev Respir Med"},{"issue":"7","key":"10.1016\/j.arbres.2026.01.014_bib1180","article-title":"Speech and language therapy for management of chronic cough","volume":"7","author":"Slinger","year":"2019","journal-title":"Cochrane Database Syst Rev"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1185","doi-asserted-by":"crossref","first-page":"269","DOI":"10.1016\/j.arbres.2024.03.010","article-title":"N-acetylcysteine treatment in chronic obstructive pulmonary disease (COPD) and chronic bronchitis\/pre-COPD: distinct meta-analyses","volume":"60","author":"Papi","year":"2024","journal-title":"Arch Bronconeumol"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1190","doi-asserted-by":"crossref","first-page":"902","DOI":"10.1016\/j.rmed.2008.12.008","article-title":"Inhibition of cough-reflex sensitivity by benzonatate and guaifenesin in acute viral cough","volume":"103","author":"Dicpinigaitis","year":"2009","journal-title":"Respir Med"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1195","doi-asserted-by":"crossref","first-page":"312","DOI":"10.1164\/rccm.200607-892OC","article-title":"Opiate therapy in chronic cough","volume":"175","author":"Morice","year":"2007","journal-title":"Am J Respir Crit Care Med"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1200","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.01136-2019","article-title":"ERS guidelines on the diagnosis and treatment of chronic cough in adults and children","volume":"55","author":"Morice","year":"2020","journal-title":"Eur Respir J"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1205","doi-asserted-by":"crossref","first-page":"1827","DOI":"10.1378\/chest.13-0490","article-title":"Efficacy and tolerability of treatments for chronic cough: a systematic review and meta-analysis","volume":"144","author":"Yancy","year":"2013","journal-title":"Chest"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1210","doi-asserted-by":"crossref","first-page":"89","DOI":"10.1006\/pupt.1997.0083","article-title":"Efficacy and tolerability of levodropropizine in adult patients with non-productive cough. Comparison with dextromethorphan","volume":"10","author":"Catena","year":"1997","journal-title":"Pulm Pharmacol Ther"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1215","doi-asserted-by":"crossref","first-page":"1124","DOI":"10.1016\/j.chest.2024.05.015","article-title":"Benefit\u2013risk profile of P2X3 receptor antagonists for treatment of chronic cough: dose\u2013response model-based network meta-analysis","volume":"166","author":"Yamamoto","year":"2024","journal-title":"Chest"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1220","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1378\/chest.15-1496","article-title":"Treatment of unexplained chronic cough: CHEST guideline and expert panel report","volume":"149","author":"Gibson","year":"2016","journal-title":"Chest"},{"issue":"9853","key":"10.1016\/j.arbres.2026.01.014_bib1225","doi-asserted-by":"crossref","first-page":"1583","DOI":"10.1016\/S0140-6736(12)60776-4","article-title":"Gabapentin for refractory chronic cough: a randomised, double-blind, placebo-controlled trial","volume":"380","author":"Ryan","year":"2012","journal-title":"Lancet Lond Engl"},{"key":"10.1016\/j.arbres.2026.01.014_bib1230","doi-asserted-by":"crossref","DOI":"10.1016\/j.rmed.2023.107396","article-title":"Predictors of treatment response to pregabalin in unexplained or refractory chronic cough","volume":"218","author":"Saint-Pierre","year":"2023","journal-title":"Respir Med"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1235","doi-asserted-by":"crossref","first-page":"425","DOI":"10.1016\/S0954-6111(06)80010-7","article-title":"Chronic persistent cough: use of ipratropium bromide in undiagnosed cases following upper respiratory tract infection","volume":"86","author":"Holmes","year":"1992","journal-title":"Respir Med"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1240","doi-asserted-by":"crossref","first-page":"1060","DOI":"10.1378\/chest.12-1533","article-title":"Long-term safety of nebulized lidocaine for adults with difficult-to-control chronic cough: a case series","volume":"143","author":"Lim","year":"2013","journal-title":"Chest"},{"key":"10.1016\/j.arbres.2026.01.014_bib1245","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1186\/1472-684X-9-17","article-title":"A systematic review of psychosocial interventions for family carers of palliative care patients","volume":"9","author":"Hudson","year":"2010","journal-title":"BMC Palliat Care"},{"issue":"9","key":"10.1016\/j.arbres.2026.01.014_bib1250","first-page":"597","article-title":"Psychosocial interventions for patients with severe COPD \u2013 an up-to-date literature review","volume":"55","author":"Rzadkiewicz","year":"2019","journal-title":"Med Kaunas Lith"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1255","doi-asserted-by":"crossref","first-page":"453","DOI":"10.1016\/j.rmed.2013.12.003","article-title":"A home telehealth program for patients with severe COPD: the PROMETE study","volume":"108","author":"Segrelles Calvo","year":"2014","journal-title":"Respir Med"},{"key":"10.1016\/j.arbres.2026.01.014_bib1260","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1186\/1472-684X-7-5","article-title":"Self-perceived symptoms and care needs of patients with severe to very severe chronic obstructive pulmonary disease, congestive heart failure or chronic renal failure and its consequences for their closest relatives: the research protocol","volume":"7","author":"Janssen","year":"2008","journal-title":"BMC Palliat Care"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1265","doi-asserted-by":"crossref","first-page":"e144","DOI":"10.2196\/jmir.7116","article-title":"Self-management support using a digital health system compared with usual care for chronic obstructive pulmonary disease: randomized controlled trial","volume":"19","author":"Farmer","year":"2017","journal-title":"J Med Internet Res"},{"issue":"12","key":"10.1016\/j.arbres.2026.01.014_bib1270","doi-asserted-by":"crossref","first-page":"979","DOI":"10.1016\/S2213-2600(14)70226-7","article-title":"An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial","volume":"2","author":"Higginson","year":"2014","journal-title":"Lancet Respir Med"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1275","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1186\/s12904-019-0390-0","article-title":"Integrated respiratory and palliative care leads to high levels of satisfaction: a survey of patients and carers","volume":"18","author":"Smallwood","year":"2019","journal-title":"BMC Palliat Care"},{"issue":"7","key":"10.1016\/j.arbres.2026.01.014_bib1280","doi-asserted-by":"crossref","first-page":"1041","DOI":"10.1589\/jpts.26.1041","article-title":"Difference in the effect of outpatient pulmonary rehabilitation due to variation in the intervention frequency: intervention centering on home-based exercise","volume":"26","author":"Chigira","year":"2014","journal-title":"J Phys Ther Sci"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1285","doi-asserted-by":"crossref","first-page":"e000051","DOI":"10.1136\/bmjresp-2014-000051","article-title":"An evaluation of factors associated with completion and benefit from pulmonary rehabilitation in COPD","volume":"1","author":"Boutou","year":"2014","journal-title":"BMJ Open Respir Res"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1290","first-page":"3","article-title":"Non-invasive ventilation as an adjunct to exercise training in chronic ventilatory failure: a narrative review","volume":"97","author":"Vitacca","year":"2019","journal-title":"Respir Int Rev Thorac Dis"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1295","doi-asserted-by":"crossref","first-page":"709","DOI":"10.4187\/respcare.02626","article-title":"Physical training and noninvasive ventilation in COPD patients: a meta-analysis","volume":"59","author":"Ricci","year":"2014","journal-title":"Respir Care"},{"issue":"11","key":"10.1016\/j.arbres.2026.01.014_bib1300","doi-asserted-by":"crossref","first-page":"870","DOI":"10.1089\/tmj.2014.0198","article-title":"In-home pulmonary telerehabilitation for patients with chronic obstructive pulmonary disease: a pre-experimental study on effectiveness, satisfaction, and adherence","volume":"21","author":"Marquis","year":"2015","journal-title":"Telemed J E-Health Off J Am Telemed Assoc"},{"issue":"11","key":"10.1016\/j.arbres.2026.01.014_bib1305","article-title":"Upper limb exercise training for COPD","volume":"11","author":"McKeough","year":"2016","journal-title":"Cochrane Database Syst Rev"},{"key":"10.1016\/j.arbres.2026.01.014_bib1310","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1016\/j.jpsychores.2017.05.013","article-title":"Home-based COPD psychoeducation: a qualitative study of the patients\u2019 experiences","volume":"98","author":"Bove","year":"2017","journal-title":"J Psychosom Res"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1315","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1159\/000367635","article-title":"Efficacy of psychosocial interventions on psychological and physical health outcomes in chronic obstructive pulmonary disease: a systematic review and meta-analysis","volume":"84","author":"Farver-Vestergaard","year":"2015","journal-title":"Psychother Psychosom"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1320","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1186\/2049-6958-8-41","article-title":"A pulmonary rehabilitation program reduces levels of anxiety and depression in COPD patients","volume":"8","author":"Tselebis","year":"2013","journal-title":"Multidiscip Respir Med"},{"key":"10.1016\/j.arbres.2026.01.014_bib1325","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1016\/j.rmed.2016.11.009","article-title":"Efficacy of a minimal home-based psychoeducative intervention in patients with advanced COPD: a randomised controlled trial","volume":"121","author":"Bove","year":"2016","journal-title":"Respir Med"},{"issue":"8","key":"10.1016\/j.arbres.2026.01.014_bib1330","doi-asserted-by":"crossref","first-page":"1043","DOI":"10.4187\/respcare.04984","article-title":"Effect of a motivational interviewing-based health coaching on quality of life in subjects with COPD","volume":"62","author":"Rehman","year":"2017","journal-title":"Respir Care"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1335","doi-asserted-by":"crossref","first-page":"28","DOI":"10.1002\/jcsm.12228","article-title":"Targeted medical nutrition for cachexia in chronic obstructive pulmonary disease: a randomized, controlled trial","volume":"9","author":"Calder","year":"2018","journal-title":"J Cachexia Sarcopenia Muscle"},{"key":"10.1016\/j.arbres.2026.01.014_bib1340","article-title":"SEPAR and SEEN consensus document on nutritional assessment and management in patients with COPD","author":"de Miguel-D\u00edez","year":"2025","journal-title":"Arch Bronconeumol"},{"issue":"160","key":"10.1016\/j.arbres.2026.01.014_bib1345","article-title":"The prevalence and related factors of fatigue in patients with COPD: a systematic review","volume":"30","author":"Ebadi","year":"2021","journal-title":"Eur Respir Rev Off J Eur Respir Soc"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1350","doi-asserted-by":"crossref","first-page":"2026","DOI":"10.1016\/j.chest.2020.04.047","article-title":"Managing fatigue in patients with interstitial lung disease","volume":"158","author":"Kahlmann","year":"2020","journal-title":"Chest"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1355","doi-asserted-by":"crossref","DOI":"10.1183\/23120541.00079-2017","article-title":"Multidimensional fatigue in pulmonary hypertension: prevalence, severity and predictors","volume":"4","author":"Tartavoulle","year":"2018","journal-title":"ERJ Open Res"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1360","doi-asserted-by":"crossref","first-page":"345","DOI":"10.1016\/S0022-3999(02)00392-6","article-title":"Psychometric qualities of a brief self-rated fatigue measure: the Fatigue Assessment Scale","volume":"54","author":"Michielsen","year":"2003","journal-title":"J Psychosom Res"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1365","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.00545-2018","article-title":"Prevalence and impact of WHO group 3 pulmonary hypertension in advanced idiopathic nonspecific interstitial pneumonia","volume":"52","author":"King","year":"2018","journal-title":"Eur Respir J"},{"key":"10.1016\/j.arbres.2026.01.014_bib1370","doi-asserted-by":"crossref","first-page":"871","DOI":"10.2147\/COPD.S49621","article-title":"Epidemiology and clinical impact of major comorbidities in patients with COPD","volume":"9","author":"Smith","year":"2014","journal-title":"Int J Chron Obstruct Pulmon Dis"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1375","first-page":"534","article-title":"Effects of pulmonary rehabilitation on Fatigue Severity Scale in patients with lung disease","volume":"82","author":"Talwar","year":"2014","journal-title":"Pneumonol Alergol Pol"},{"issue":"174","key":"10.1016\/j.arbres.2026.01.014_bib1380","doi-asserted-by":"crossref","first-page":"240027","DOI":"10.1183\/16000617.0027-2024","article-title":"The effect of graded exercise therapy on fatigue in people with serious respiratory illness: a systematic review","volume":"33","author":"Burge","year":"2024","journal-title":"Eur Respir Rev Off J Eur Respir Soc"},{"issue":"174","key":"10.1016\/j.arbres.2026.01.014_bib1385","doi-asserted-by":"crossref","first-page":"240012","DOI":"10.1183\/16000617.0012-2024","article-title":"Breathing techniques to reduce symptoms in people with serious respiratory illness: a systematic review","volume":"33","author":"Burge","year":"2024","journal-title":"Eur Respir Rev Off J Eur Respir Soc"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1390","doi-asserted-by":"crossref","first-page":"355","DOI":"10.1186\/s12890-021-01727-9","article-title":"Impact of high-flow oxygen therapy during exercise in idiopathic pulmonary fibrosis: a pilot crossover clinical trial","volume":"21","author":"Badenes-Bonet","year":"2021","journal-title":"BMC Pulm Med"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1395","doi-asserted-by":"crossref","first-page":"495","DOI":"10.1016\/S0272-5231(05)70397-X","article-title":"Anxiety and depression in advanced lung disease","volume":"18","author":"Wingate","year":"1997","journal-title":"Clin Chest Med"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1400","doi-asserted-by":"crossref","first-page":"900","DOI":"10.21037\/apm-22-1304","article-title":"Interaction of panic and episodic breathlessness among patients with life-limiting diseases: a cross-sectional study","volume":"12","author":"Schloesser","year":"2023","journal-title":"Ann Palliat Med"},{"issue":"18","key":"10.1016\/j.arbres.2026.01.014_bib1405","doi-asserted-by":"crossref","first-page":"2159","DOI":"10.1080\/09638288.2018.1459886","article-title":"The relationship between fear of movement, pain and fatigue severity, dyspnea level and comorbidities in patients with chronic obstructive pulmonary disease","volume":"41","author":"Vardar-Yagli","year":"2019","journal-title":"Disabil Rehabil"},{"key":"10.1016\/j.arbres.2026.01.014_bib1410","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1016\/j.rmed.2018.12.004","article-title":"The impact of disease-specific fears on outcome measures of pulmonary rehabilitation in patients with COPD","volume":"146","author":"Reijnders","year":"2019","journal-title":"Respir Med"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1415","doi-asserted-by":"crossref","first-page":"426","DOI":"10.1378\/chest.15-0027","article-title":"Structural brain changes in patients with COPD","volume":"149","author":"Esser","year":"2016","journal-title":"Chest"},{"key":"10.1016\/j.arbres.2026.01.014_bib1420","doi-asserted-by":"crossref","DOI":"10.1177\/14799731241274785","article-title":"Development and initial validation of the ILD-Anxiety-Questionnaire (IAQ): a new instrument for assessing disease specific fears in interstitial lung disease","volume":"21","author":"Stenzel","year":"2024","journal-title":"Chron Respir Dis"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1425","doi-asserted-by":"crossref","first-page":"137","DOI":"10.5152\/ThoracResPract.2023.22184","article-title":"Breathlessness beliefs and related factors in male patients with chronic obstructive pulmonary disease","volume":"24","author":"Bayraktar","year":"2023","journal-title":"Thorac Res Pract"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1430","doi-asserted-by":"crossref","first-page":"80","DOI":"10.1016\/j.chest.2019.04.009","article-title":"Effect of pulmonary rehabilitation on symptoms of anxiety and depression in COPD: a systematic review and meta-analysis","volume":"156","author":"Gordon","year":"2019","journal-title":"Chest"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1435","doi-asserted-by":"crossref","first-page":"311","DOI":"10.1016\/S0738-3991(02)00004-6","article-title":"The most effective psychologically-based treatments to reduce anxiety and panic in patients with chronic obstructive pulmonary disease (COPD): a systematic review","volume":"47","author":"Rose","year":"2002","journal-title":"Patient Educ Couns"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1440","doi-asserted-by":"crossref","first-page":"e0177081","DOI":"10.1371\/journal.pone.0177081","article-title":"Six key topics informal carers of patients with breathlessness in advanced disease want to learn about and why: MRC phase I study to inform an educational intervention","volume":"12","author":"Farquhar","year":"2017","journal-title":"PLOS ONE"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1445","first-page":"178","article-title":"Helping patients with COPD manage episodes of acute shortness of breath","volume":"9","author":"Truesdell","year":"2000","journal-title":"Medsurg Nurs Off J Acad Med-Surg Nurses"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1450","doi-asserted-by":"crossref","first-page":"2222","DOI":"10.1016\/j.chest.2020.12.055","article-title":"Palliative care needs and integration of palliative care support in COPD: a qualitative study","volume":"159","author":"Fu","year":"2021","journal-title":"Chest"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1455","doi-asserted-by":"crossref","first-page":"486","DOI":"10.1177\/0269216320981294","article-title":"Effectiveness and implementation of palliative care interventions for patients with chronic obstructive pulmonary disease: a systematic review","volume":"35","author":"Broese","year":"2021","journal-title":"Palliat Med"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1460","doi-asserted-by":"crossref","first-page":"183","DOI":"10.1111\/j.1445-5994.2012.02791.x","article-title":"Unmet needs of people with end-stage chronic obstructive pulmonary disease: recommendations for change in Australia","volume":"43","author":"Crawford","year":"2013","journal-title":"Intern Med J"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1465","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1177\/1049909120924995","article-title":"Early integrated palliative care bundle impacts location of death in interstitial lung disease: a pilot retrospective study","volume":"38","author":"Archibald","year":"2021","journal-title":"Am J Hosp Palliat Care"},{"issue":"156","key":"10.1016\/j.arbres.2026.01.014_bib1470","doi-asserted-by":"crossref","first-page":"190125","DOI":"10.1183\/16000617.0125-2019","article-title":"The supportive care needs of people living with pulmonary fibrosis and their caregivers: a systematic review","volume":"29","author":"Lee","year":"2020","journal-title":"Eur Respir Rev Off J Eur Respir Soc"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1475","doi-asserted-by":"crossref","first-page":"328","DOI":"10.1136\/thoraxjnl-2018-211943","article-title":"Cluster-randomised trial of a nurse-led advance care planning session in patients with COPD and their loved ones","volume":"74","author":"Houben","year":"2019","journal-title":"Thorax"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1480","doi-asserted-by":"crossref","first-page":"302","DOI":"10.1634\/theoncologist.5-4-302","article-title":"SPIKES-A six-step protocol for delivering bad news: application to the patient with cancer","volume":"5","author":"Baile","year":"2000","journal-title":"Oncologist"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1485","doi-asserted-by":"crossref","first-page":"165","DOI":"10.5209\/psic.68248","article-title":"Comunicaci\u00f3n consciente para acompa\u00f1ar de forma eficaz: protocolo de 5 pasos","volume":"17","author":"Arranz","year":"2020","journal-title":"Psicooncolog\u00eda"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1490","doi-asserted-by":"crossref","DOI":"10.1183\/23120541.00068-2016","article-title":"Palliative and end-of-life care conversations in COPD: a systematic literature review","volume":"3","author":"Tavares","year":"2017","journal-title":"ERJ Open Res"},{"issue":"9","key":"10.1016\/j.arbres.2026.01.014_bib1495","doi-asserted-by":"crossref","first-page":"830","DOI":"10.1136\/thoraxjnl-2014-206583","article-title":"Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention","volume":"70","author":"Bajwah","year":"2015","journal-title":"Thorax"},{"key":"10.1016\/j.arbres.2026.01.014_bib1500","unstructured":"Programa LagunAdvance \u2013 Fundaci\u00f3n Caredoctors | Formaci\u00f3n e investigaci\u00f3n en geriatr\u00eda y cuidados paliativos [Internet]. 2017. Available from: https:\/\/fundacioncaredoctors.org\/programa-lagunadvance\/ [cited 8.12.25]."},{"key":"10.1016\/j.arbres.2026.01.014_bib1505","series-title":"Chronic and terminal illness: new perspectives on caring and carers [Internet]","article-title":"Who is a carer? Experiences of family caregivers in palliative care","author":"Smith","year":"2001"},{"key":"10.1016\/j.arbres.2026.01.014_bib1510","doi-asserted-by":"crossref","first-page":"1587","DOI":"10.2147\/COPD.S107571","article-title":"Involvement of informal caregivers in supporting patients with COPD: a review of intervention studies","volume":"11","author":"Bryant","year":"2016","journal-title":"Int J Chron Obstruct Pulmon Dis"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1515","doi-asserted-by":"crossref","first-page":"1472","DOI":"10.1183\/13993003.01566-2015","article-title":"The lived experience with idiopathic pulmonary fibrosis: a qualitative study","volume":"47","author":"Overgaard","year":"2016","journal-title":"Eur Respir J"},{"issue":"12","key":"10.1016\/j.arbres.2026.01.014_bib1520","doi-asserted-by":"crossref","first-page":"1768","DOI":"10.1089\/jpm.2018.0010","article-title":"Family caregivers\u2019 heavy and overloaded burden in advanced chronic obstructive pulmonary disease","volume":"21","author":"Strang","year":"2018","journal-title":"J Palliat Med"},{"issue":"9","key":"10.1016\/j.arbres.2026.01.014_bib1525","doi-asserted-by":"crossref","first-page":"869","DOI":"10.1177\/0269216313497226","article-title":"The palliative care needs for fibrotic interstitial lung disease: a qualitative study of patients, informal caregivers and health professionals","volume":"27","author":"Bajwah","year":"2013","journal-title":"Palliat Med"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1530","doi-asserted-by":"crossref","first-page":"382","DOI":"10.1097\/JGP.0b013e3181e9b98d","article-title":"Impact of caregiver burden on adverse health outcomes in community-dwelling dependent older care recipients","volume":"19","author":"Kuzuya","year":"2011","journal-title":"Am J Geriatr Psychiatry Off J Am Assoc Geriatr Psychiatry"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1535","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1186\/s12904-018-0291-7","article-title":"\u2018Never at ease\u2019 \u2013 family carers within integrated palliative care: a multinational, mixed method study","volume":"17","author":"Ate\u015f","year":"2018","journal-title":"BMC Palliat Care"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1540","doi-asserted-by":"crossref","first-page":"157","DOI":"10.1177\/082585970902500302","article-title":"Experiences and needs of bereaved carers during palliative and end-of-life care for people with chronic obstructive pulmonary disease","volume":"25","author":"Hasson","year":"2009","journal-title":"J Palliat Care"},{"issue":"8","key":"10.1016\/j.arbres.2026.01.014_bib1545","doi-asserted-by":"crossref","first-page":"1030","DOI":"10.1177\/0269216320929556","article-title":"Comparison of end-of-life care in people with chronic obstructive pulmonary disease or lung cancer: a systematic review","volume":"34","author":"Butler","year":"2020","journal-title":"Palliat Med"},{"key":"10.1016\/j.arbres.2026.01.014_bib1550","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1016\/j.rmed.2018.12.008","article-title":"Spousal bereavement after fibrotic interstitial lung disease: a qualitative study","volume":"146","author":"Egerod","year":"2019","journal-title":"Respir Med"},{"issue":"5","key":"10.1016\/j.arbres.2026.01.014_bib1555","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1016\/j.jpainsymman.2007.11.008","article-title":"Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness","volume":"36","author":"Gysels","year":"2008","journal-title":"J Pain Symptom Manage"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1560","doi-asserted-by":"crossref","first-page":"264","DOI":"10.1016\/j.hrtlng.2018.03.004","article-title":"Burden, resilience and coping in caregivers of patients with interstitial lung disease","volume":"47","author":"Shah","year":"2018","journal-title":"Heart Lung J Crit Care"},{"key":"10.1016\/j.arbres.2026.01.014_bib1565","series-title":"The hidden victims of Alzheimer's disease: families under stress","author":"Zarit","year":"1985"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1570","doi-asserted-by":"crossref","first-page":"227","DOI":"10.1097\/HNP.0000000000000153","article-title":"Care burden and social support levels of caregivers of patients with chronic obstructive pulmonary disease","volume":"30","author":"G\u00f6ri\u015f","year":"2016","journal-title":"Holist Nurs Pract"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1575","doi-asserted-by":"crossref","first-page":"1627","DOI":"10.1378\/chest.117.6.1627","article-title":"Evaluation of the short-form 36-item questionnaire to measure health-related quality of life in patients with idiopathic pulmonary fibrosis","volume":"117","author":"Martinez","year":"2000","journal-title":"Chest"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1580","doi-asserted-by":"crossref","first-page":"76","DOI":"10.1002\/da.10113","article-title":"Development of a new resilience scale: the Connor\u2013Davidson Resilience Scale (CD-RISC)","volume":"18","author":"Connor","year":"2003","journal-title":"Depress Anxiety"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1585","doi-asserted-by":"crossref","first-page":"893","DOI":"10.1037\/0022-006X.56.6.893","article-title":"An inventory for measuring clinical anxiety: psychometric properties","volume":"56","author":"Beck","year":"1988","journal-title":"J Consult Clin Psychol"},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1590","doi-asserted-by":"crossref","first-page":"1012","DOI":"10.21037\/apm-24-11","article-title":"Provision of palliative care for people with chronic obstructive pulmonary disease: a narrative review","volume":"13","author":"Pascoe","year":"2024","journal-title":"Ann Palliat Med"},{"key":"10.1016\/j.arbres.2026.01.014_bib1595","unstructured":"Strengthening of palliative care as a component of comprehensive care throughout the life course [Internet]. Geneva: World Health Assembly. Available from: https:\/\/apps.who.int\/gb\/ebwha\/pdf_files\/wha67\/a67_r19-en.pdf [cited 7.12.25]."},{"key":"10.1016\/j.arbres.2026.01.014_bib1600","unstructured":"Informe de evaluaci\u00f3n de la Estrategia de Cuidados Paliativos del Sistema Nacional de Salud [Internet]. Available from: https:\/\/www.sanidad.gob.es\/areas\/calidadAsistencial\/estrategias\/cuidadosPaliativos\/docs\/Informe_estrategia_paliativos._Accesible.pdf [cited 7.12.25]."},{"key":"10.1016\/j.arbres.2026.01.014_bib1605","unstructured":"EAPCAtlas [Internet]. EAPC. Available from: https:\/\/eapcnet.eu\/resources\/eapcatlas\/ [cited 7.12.25]."},{"issue":"4","key":"10.1016\/j.arbres.2026.01.014_bib1610","doi-asserted-by":"crossref","first-page":"680","DOI":"10.1177\/02692163221074547","article-title":"Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): a Delphi study","volume":"36","author":"Payne","year":"2022","journal-title":"Palliat Med"},{"issue":"3","key":"10.1016\/j.arbres.2026.01.014_bib1615","doi-asserted-by":"crossref","first-page":"509","DOI":"10.1016\/j.jpainsymman.2016.10.361","article-title":"Comprehensive and integrated palliative care for people with advanced chronic conditions: an update from several European initiatives and recommendations for policy","volume":"53","author":"G\u00f3mez-Batiste","year":"2017","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1620","doi-asserted-by":"crossref","DOI":"10.1183\/23120541.00102-2017","article-title":"Integrated respiratory and palliative care may improve outcomes in advanced lung disease","volume":"4","author":"Smallwood","year":"2018","journal-title":"ERJ Open Res"},{"issue":"2","key":"10.1016\/j.arbres.2026.01.014_bib1625","doi-asserted-by":"crossref","first-page":"206","DOI":"10.1016\/j.jpainsymman.2019.09.012","article-title":"Early integrated palliative home care and standard care for end-stage COPD (EPIC): a phase II pilot RCT testing feasibility, acceptability, and effectiveness","volume":"59","author":"Scheerens","year":"2020","journal-title":"J Pain Symptom Manage"},{"key":"10.1016\/j.arbres.2026.01.014_bib1630","series-title":"NHS England \u00bb Improving access and coordination to palliative care for patients with end stage respiratory disease [Internet]","article-title":"England National Health System","year":"2019"},{"key":"10.1016\/j.arbres.2026.01.014_bib1635","doi-asserted-by":"crossref","DOI":"10.1016\/j.rmed.2025.108034","article-title":"Palliative care education as an integrated component of pulmonary rehabilitation: a real-world mixed-methods feasibility study","volume":"241","author":"Mendes","year":"2025","journal-title":"Respir Med"},{"issue":"1","key":"10.1016\/j.arbres.2026.01.014_bib1640","doi-asserted-by":"crossref","first-page":"76","DOI":"10.1186\/s12904-024-01363-0","article-title":"Integrating palliative care education in pulmonary rehabilitation: a randomized controlled study protocol","volume":"23","author":"Mendes","year":"2024","journal-title":"BMC Palliat Care"},{"issue":"Suppl. 4","key":"10.1016\/j.arbres.2026.01.014_bib1645","first-page":"S54","article-title":"Feasibility and efficacy of a multidisciplinary palliative approach in patients with advanced interstitial lung disease. A pilot randomised controlled trial","volume":"29","author":"Bassi","year":"2023","journal-title":"Pulmonology"},{"issue":"20","key":"10.1016\/j.arbres.2026.01.014_bib1650","doi-asserted-by":"crossref","first-page":"2104","DOI":"10.1001\/jama.2016.16840","article-title":"Association between palliative care and patient and caregiver outcomes: a systematic review and meta-analysis","volume":"316","author":"Kavalieratos","year":"2016","journal-title":"JAMA"},{"key":"10.1016\/j.arbres.2026.01.014_bib1655","unstructured":"Telemedicina aplicada a los cuidados paliativos, implicaciones \u00e9ticas y beneficios: una revisi\u00f3n sistem\u00e1tica [Internet]. Available from: https:\/\/www.medicinapaliativa.es\/telemedicina-aplicada-a-los-cuidados-paliativos-implicaciones-eticas-y-beneficios-una-revision-sistematica722 [cited 7.12.25]."},{"issue":"Suppl. 1","key":"10.1016\/j.arbres.2026.01.014_bib1660","doi-asserted-by":"crossref","first-page":"86","DOI":"10.1258\/1357633054461697","article-title":"Telemedicine-assisted home support for patients with advanced chronic obstructive pulmonary disease: preliminary results after nine-month follow-up","volume":"11","author":"Vontetsianos","year":"2005","journal-title":"J Telemed Telecare"},{"issue":"6","key":"10.1016\/j.arbres.2026.01.014_bib1665","doi-asserted-by":"crossref","first-page":"1216","DOI":"10.1111\/j.1365-2753.2010.01536.x","article-title":"Insufficient evidence of benefit: a systematic review of home telemonitoring for COPD","volume":"17","author":"Bolton","year":"2011","journal-title":"J Eval Clin Pract"},{"key":"10.1016\/j.arbres.2026.01.014_bib1670","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1007\/978-3-319-57348-9_15","article-title":"Utilizing a homecare platform for remote monitoring of patients with idiopathic pulmonary fibrosis","volume":"989","author":"Panagopoulos","year":"2017","journal-title":"Adv Exp Med Biol"},{"issue":"3\u20134","key":"10.1016\/j.arbres.2026.01.014_bib1675","doi-asserted-by":"crossref","first-page":"180","DOI":"10.3109\/21678421.2014.971811","article-title":"Need and value of case management in multidisciplinary ALS care: a qualitative study on the perspectives of patients, spousal caregivers and professionals","volume":"16","author":"Bakker","year":"2015","journal-title":"Amyotroph Lateral Scler Front Degener"},{"issue":"10","key":"10.1016\/j.arbres.2026.01.014_bib1680","doi-asserted-by":"crossref","first-page":"1037","DOI":"10.1080\/17476348.2025.2523501","article-title":"Social determinants of health, early diagnosis, and ageing in patients with interstitial lung disease","volume":"19","author":"Yohannes","year":"2025","journal-title":"Expert Rev Respir Med"}],"container-title":["Archivos de Bronconeumolog\u00eda"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0300289626000426?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0300289626000426?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,7,4]],"date-time":"2026-07-04T14:30:59Z","timestamp":1783175459000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0300289626000426"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7]]},"references-count":168,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2026,7]]}},"alternative-id":["S0300289626000426"],"URL":"https:\/\/doi.org\/10.1016\/j.arbres.2026.01.014","relation":{},"ISSN":["0300-2896"],"issn-type":[{"value":"0300-2896","type":"print"}],"subject":[],"published":{"date-parts":[[2026,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Consensus Document on the Multidisciplinary Management of Advanced-Stage Respiratory Diseases","name":"articletitle","label":"Article Title"},{"value":"Archivos de Bronconeumolog\u00eda","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.arbres.2026.01.014","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 SEPAR. Published by Elsevier Espa\u00f1a, S.L.U. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}