{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,28]],"date-time":"2026-07-28T23:23:49Z","timestamp":1785281029943,"version":"3.55.0"},"reference-count":104,"publisher":"Elsevier BV","issue":"3","license":[{"start":{"date-parts":[[2021,9,1]],"date-time":"2021-09-01T00:00:00Z","timestamp":1630454400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2021,9,1]],"date-time":"2021-09-01T00:00:00Z","timestamp":1630454400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2021,9,1]],"date-time":"2021-09-01T00:00:00Z","timestamp":1630454400000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2021,9,1]],"date-time":"2021-09-01T00:00:00Z","timestamp":1630454400000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2021,9,1]],"date-time":"2021-09-01T00:00:00Z","timestamp":1630454400000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2021,9,1]],"date-time":"2021-09-01T00:00:00Z","timestamp":1630454400000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2021,9,1]],"date-time":"2021-09-01T00:00:00Z","timestamp":1630454400000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"funder":[{"DOI":"10.13039\/501100007949","name":"Reumatikerf\u00f6rbundet","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100007949","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["R01 AR073270"],"award-info":[{"award-number":["R01 AR073270"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000050","name":"NHLBI","doi-asserted-by":"publisher","award":["K23HL150237-02"],"award-info":[{"award-number":["K23HL150237-02"]}],"id":[{"id":"10.13039\/100000050","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000050","name":"NHLBI","doi-asserted-by":"publisher","award":["L30 HL129466"],"award-info":[{"award-number":["L30 HL129466"]}],"id":[{"id":"10.13039\/100000050","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100009389","name":"Stiftelsen Promobilia","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100009389","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100004359","name":"Vetenskapsr\u00e5det","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100004359","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100004737","name":"National Health Research Institutes","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100004737","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Best Practice &amp; Research Clinical Rheumatology"],"published-print":{"date-parts":[[2021,9]]},"DOI":"10.1016\/j.berh.2021.101707","type":"journal-article","created":{"date-parts":[[2021,9,15]],"date-time":"2021-09-15T08:06:11Z","timestamp":1631693171000},"page":"101707","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":41,"title":["A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc"],"prefix":"10.1016","volume":"35","author":[{"given":"Lesley Ann","family":"Saketkoo","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tracy","family":"Frech","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cec\u00edlia","family":"Varj\u00fa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robyn","family":"Domsic","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica","family":"Farrell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica K.","family":"Gordon","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carina","family":"Mihai","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nora","family":"Sandorfi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lee","family":"Shapiro","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janet","family":"Poole","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth R.","family":"Volkmann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monika","family":"Lammi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kendra","family":"McAnally","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helene","family":"Alexanderson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Henrik","family":"Pettersson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Faye","family":"Hant","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Masataka","family":"Kuwana","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ami A.","family":"Shah","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vanessa","family":"Smith","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vivien","family":"Hsu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Otylia","family":"Kowal-Bielecka","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shervin","family":"Assassi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maurizio","family":"Cutolo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cristiane","family":"Kayser","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Victoria K.","family":"Shanmugam","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Madelon C.","family":"Vonk","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kim","family":"Fligelstone","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nancy","family":"Baldwin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kerri","family":"Connolly","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anneliese","family":"Ronnow","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Beata","family":"Toth","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maureen","family":"Suave","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sue","family":"Farrington","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elana J.","family":"Bernstein","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leslie J.","family":"Crofford","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L\u00e1szl\u00f3","family":"Czirj\u00e1k","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kelly","family":"Jensen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monique","family":"Hinchclif","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie","family":"Hudson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthew R.","family":"Lammi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Mansour","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nadia D.","family":"Morgan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fabian","family":"Mendoza","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mandana","family":"Nikpour","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John","family":"Pauling","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gabriela","family":"Riemekasten","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne-Marie","family":"Russell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary Beth","family":"Scholand","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elise","family":"Seigart","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tatiana Sofia","family":"Rodriguez-Reyna","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Hummers","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ulrich","family":"Walker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Virginia","family":"Steen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"18","key":"10.1016\/j.berh.2021.101707_bib1","doi-asserted-by":"crossref","first-page":"419","DOI":"10.15585\/mmwr.mm6818a4","article-title":"Racial disparities in mortality associated with systemic lupus erythematosus - fulton and DeKalb counties, Georgia, 2002-2016","volume":"68","author":"Lim","year":"2019","journal-title":"MMWR Morb Mortal Wkly Rep"},{"issue":"2","key":"10.1016\/j.berh.2021.101707_bib2","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1177\/2397198319869566","article-title":"Geographic disparity in systemic sclerosis mortality in the United States: 1999\u20132017","volume":"6","author":"Rodriguez-Pla","year":"2021","journal-title":"J Scleroderma Relat Disord"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib3","doi-asserted-by":"crossref","first-page":"191","DOI":"10.1097\/MD.0b013e31829be125","article-title":"Race and association with disease manifestations and mortality in scleroderma: a 20-year experience at the Johns Hopkins Scleroderma Center and review of the literature","volume":"92","author":"Gelber","year":"2013","journal-title":"Medicine (Baltim)"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib4","doi-asserted-by":"crossref","first-page":"705","DOI":"10.1016\/j.rdc.2020.07.009","article-title":"Racial disparities in systemic sclerosis","volume":"46","author":"Moore","year":"2020","journal-title":"Rheum Dis Clin N Am"},{"issue":"51","key":"10.1016\/j.berh.2021.101707_bib5","doi-asserted-by":"crossref","DOI":"10.1097\/MD.0000000000008980","article-title":"Clinical and serological features of systemic sclerosis in a multicenter African American cohort: analysis of the genome research in African American scleroderma patients clinical database","volume":"96","author":"Morgan","year":"2017","journal-title":"Medicine (Baltim)"},{"issue":"9","key":"10.1016\/j.berh.2021.101707_bib6","doi-asserted-by":"crossref","first-page":"1154","DOI":"10.1002\/acr.23861","article-title":"Increased Morbidity and Mortality of Scleroderma in African Americans Compared to Non-African Americans","volume":"71","author":"Moore","year":"2019","journal-title":"Arthritis Care Res (Hoboken)"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib7","doi-asserted-by":"crossref","first-page":"614","DOI":"10.1378\/chest.11-0801","article-title":"Correlation of cough with disease activity and treatment with cyclophosphamide in scleroderma interstitial lung disease: findings from the Scleroderma Lung Study","volume":"142","author":"Theodore","year":"2012","journal-title":"Chest"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib8","doi-asserted-by":"crossref","first-page":"813","DOI":"10.1016\/j.chest.2016.11.052","article-title":"Improved cough and cough-specific quality of life in patients treated for scleroderma-related interstitial lung disease: results of scleroderma lung study II","volume":"151","author":"Tashkin","year":"2017","journal-title":"Chest"},{"issue":"9","key":"10.1016\/j.berh.2021.101707_bib9","doi-asserted-by":"crossref","first-page":"708","DOI":"10.1016\/S2213-2600(16)30152-7","article-title":"Mycophenolate mofetil versus oral cyclophosphamide in scleroderma-related interstitial lung disease (SLS II): a randomised controlled, double-blind, parallel group trial","volume":"4","author":"Tashkin","year":"2016","journal-title":"Lancet Respir Med"},{"issue":"25","key":"10.1016\/j.berh.2021.101707_bib10","doi-asserted-by":"crossref","first-page":"2655","DOI":"10.1056\/NEJMoa055120","article-title":"Cyclophosphamide versus placebo in scleroderma lung disease","volume":"354","author":"Tashkin","year":"2006","journal-title":"N\u00a0Engl J Med"},{"issue":"7","key":"10.1016\/j.berh.2021.101707_bib11","doi-asserted-by":"crossref","first-page":"753","DOI":"10.1080\/1744666X.2019.1614915","article-title":"Pathophysiology of systemic sclerosis: current understanding and new insights","volume":"15","author":"Cutolo","year":"2019","journal-title":"Expet Rev Clin Immunol"},{"issue":"6","key":"10.1016\/j.berh.2021.101707_bib12","doi-asserted-by":"crossref","first-page":"516","DOI":"10.1007\/s11926-012-0296-9","article-title":"Is there evidence for vasculitis in systemic sclerosis?","volume":"14","author":"Saketkoo","year":"2012","journal-title":"Curr Rheumatol Rep"},{"issue":"12","key":"10.1016\/j.berh.2021.101707_bib13","doi-asserted-by":"crossref","first-page":"3902","DOI":"10.1002\/art.24038","article-title":"Autoantibodies and microvascular damage are independent predictive factors for the progression of Raynaud's phenomenon to systemic sclerosis: a twenty-year prospective study of 586 patients, with validation of proposed criteria for early systemic sclerosis","volume":"58","author":"Koenig","year":"2008","journal-title":"Arthritis Rheum"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib14","doi-asserted-by":"crossref","first-page":"86","DOI":"10.1016\/j.semarthrit.2017.02.006","article-title":"Sequential nailfold videocapillaroscopy examinations have responsiveness to detect organ progression in systemic sclerosis","volume":"47","author":"Avouac","year":"2017","journal-title":"Semin Arthritis Rheum"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib15","doi-asserted-by":"crossref","first-page":"1747","DOI":"10.1136\/annrheumdis-2013-204424","article-title":"2013 classification criteria for systemic sclerosis: an American college of rheumatology\/European league against rheumatism collaborative initiative","volume":"72","author":"van den Hoogen","year":"2013","journal-title":"Ann Rheum Dis"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib16","doi-asserted-by":"crossref","first-page":"102394","DOI":"10.1016\/j.autrev.2019.102394","article-title":"Fast track algorithm: how to differentiate a \u201cscleroderma pattern\u201d from a \u201cnon-scleroderma pattern","volume":"18","author":"Smith","year":"2019","journal-title":"Autoimmun Rev"},{"issue":"6","key":"10.1016\/j.berh.2021.101707_bib17","doi-asserted-by":"crossref","first-page":"535","DOI":"10.1111\/j.1365-2362.1989.tb00271.x","article-title":"The diagnostic value of several immunological tests for anti-nuclear antibody in predicting the development of connective tissue disease in patients presenting with Raynaud's phenomenon","volume":"19","author":"Wollersheim","year":"1989","journal-title":"Eur J Clin Invest"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib18","first-page":"151","article-title":"Results from an American pilot survey among Scleroderma Clinical Trials Consortium members on capillaroscopy use and how to best implement nailfold capillaroscopy training","volume":"37","author":"Snow","year":"2019","journal-title":"Clin Exp Rheumatol"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib19","doi-asserted-by":"crossref","first-page":"180","DOI":"10.1136\/ard.2010.132431","article-title":"Nailfold capillaroscopy for day-to-day clinical use: construction of a simple scoring modality as a clinical prognostic index for digital trophic lesions","volume":"70","author":"Smith","year":"2011","journal-title":"Ann Rheum Dis"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib20","doi-asserted-by":"crossref","first-page":"681","DOI":"10.1136\/annrheumdis-2014-205897","article-title":"Digital ulcers predict a worse disease course in patients with systemic sclerosis","volume":"75","author":"Mihai","year":"2016","journal-title":"Ann Rheum Dis"},{"issue":"7","key":"10.1016\/j.berh.2021.101707_bib21","doi-asserted-by":"crossref","first-page":"1021","DOI":"10.1002\/acr.22766","article-title":"Skin telangiectasia and the identification of a subset of systemic sclerosis patients with severe vascular disease","volume":"68","author":"Hurabielle","year":"2016","journal-title":"Arthritis Care Res"},{"issue":"8","key":"10.1016\/j.berh.2021.101707_bib22","doi-asserted-by":"crossref","first-page":"1088","DOI":"10.1136\/ard.2005.044602","article-title":"Radiological hand involvement in systemic sclerosis","volume":"65","author":"Avouac","year":"2006","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.berh.2021.101707_bib23","author":"Saketkoo"},{"issue":"7","key":"10.1016\/j.berh.2021.101707_bib24","doi-asserted-by":"crossref","first-page":"675","DOI":"10.1111\/resp.13500","article-title":"Microparticles in systemic sclerosis: potential pro-inflammatory mediators and pulmonary hypertension biomarkers","volume":"24","author":"Lammi","year":"2019","journal-title":"Respirol Carlton Vic"},{"key":"10.1016\/j.berh.2021.101707_bib25","author":"Lammi"},{"key":"10.1016\/j.berh.2021.101707_bib26","doi-asserted-by":"crossref","DOI":"10.1164\/rccm.202009-3481OC","article-title":"Safety and efficacy of B-cell depletion with rituximab for the treatment of systemic sclerosis associated pulmonary arterial hypertension: a multi-center, double-blind, randomized, placebo-controlled trial","author":"Zamanian","year":"2021","journal-title":"Am J Respir Crit Care Med"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib27","doi-asserted-by":"crossref","first-page":"442","DOI":"10.1093\/rheumatology\/kel244","article-title":"Mycophenolate mofetil in diffuse cutaneous systemic sclerosis--a retrospective analysis","volume":"46","author":"Nihtyanova","year":"2007","journal-title":"Rheumatol Oxf Engl"},{"issue":"10","key":"10.1016\/j.berh.2021.101707_bib28","doi-asserted-by":"crossref","first-page":"1029","DOI":"10.1016\/j.autrev.2017.07.019","article-title":"Role of anti-receptor autoantibodies in pathophysiology of scleroderma","volume":"16","author":"Berger","year":"2017","journal-title":"Autoimmun Rev"},{"issue":"21","key":"10.1016\/j.berh.2021.101707_bib30","first-page":"S0012","article-title":"Association between immunosuppressive therapy and incident risk OF interstitial lung disease IN systemic sclerosis","volume":"18","author":"Hoa","year":"2021","journal-title":"Chest"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib31","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1093\/rheumatology\/kex362","article-title":"Work productivity in systemic sclerosis, its economic burden and association with health-related quality of life","volume":"57","author":"Morrisroe","year":"2018","journal-title":"Rheumatol Oxf Engl"},{"issue":"5","key":"10.1016\/j.berh.2021.101707_bib32","first-page":"79","article-title":"Determinants of unemployment amongst Australian systemic sclerosis patients: results from a multicentre cohort study","volume":"34","author":"Morrisroe","year":"2016","journal-title":"Clin Exp Rheumatol"},{"issue":"2","key":"10.1016\/j.berh.2021.101707_bib33","doi-asserted-by":"crossref","first-page":"319","DOI":"10.1093\/rheumatology\/ker324","article-title":"Managing work life with systemic sclerosis","volume":"51","author":"Sandqvist","year":"2012","journal-title":"Rheumatol Oxf Engl"},{"issue":"10","key":"10.1016\/j.berh.2021.101707_bib34","doi-asserted-by":"crossref","first-page":"1794","DOI":"10.3899\/jrheum.150023","article-title":"Work disability in early systemic sclerosis: a longitudinal population-based cohort study","volume":"42","author":"Sandqvist","year":"2015","journal-title":"J\u00a0Rheumatol"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib35","first-page":"923","article-title":"Workplace barriers encountered by employed persons with systemic sclerosis","volume":"55","author":"Poole","year":"2016","journal-title":"Work Read Mass"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib36","first-page":"405","article-title":"Experiencing work as a daily challenge: the case of scleroderma","volume":"44","author":"Mendelson","year":"2013","journal-title":"Work Read Mass"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib37","doi-asserted-by":"crossref","first-page":"2437","DOI":"10.1002\/1529-0131(200011)43:11<2437::AID-ANR10>3.0.CO;2-U","article-title":"Severe organ involvement in systemic sclerosis with diffuse scleroderma","volume":"43","author":"Steen","year":"2000","journal-title":"Arthritis Rheum"},{"issue":"6","key":"10.1016\/j.berh.2021.101707_bib38","doi-asserted-by":"crossref","first-page":"1146","DOI":"10.1002\/art.1780400620","article-title":"The palpable tendon friction rub: an important physical examination finding in patients with systemic sclerosis","volume":"40","author":"Steen","year":"1997","journal-title":"Arthritis Rheum"},{"issue":"6","key":"10.1016\/j.berh.2021.101707_bib39","doi-asserted-by":"crossref","first-page":"1625","DOI":"10.1002\/art.38390","article-title":"Prediction of pulmonary complications and long-term survival in systemic sclerosis","volume":"66","author":"Nihtyanova","year":"2014","journal-title":"Arthritis Rheumatol Hoboken NJ"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib40","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1136\/annrheumdis-2011-200022","article-title":"Predictive role of capillaroscopic skin ulcer risk index in systemic sclerosis: a multicentre validation study","volume":"71","author":"Sebastiani","year":"2012","journal-title":"Ann Rheum Dis"},{"issue":"2","key":"10.1016\/j.berh.2021.101707_bib41","doi-asserted-by":"crossref","first-page":"140","DOI":"10.1016\/j.autrev.2014.10.009","article-title":"A\u00a0PRISMA-driven systematic review for predictive risk factors of digital ulcers in systemic sclerosis patients","volume":"14","author":"Silva","year":"2015","journal-title":"Autoimmun Rev"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib42","doi-asserted-by":"crossref","first-page":"191","DOI":"10.1136\/annrheumdis-2012-202567","article-title":"Expert consensus for performing right heart catheterisation for suspected pulmonary arterial hypertension in systemic sclerosis: a Delphi consensus study with cluster analysis","volume":"73","author":"Avouac","year":"2014","journal-title":"Ann Rheum Dis"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib43","doi-asserted-by":"crossref","first-page":"39","DOI":"10.3109\/03009742.2011.610032","article-title":"Scleroderma renal crisis in a Swedish systemic sclerosis cohort: survival, renal outcome, and RNA polymerase III antibodies as a risk factor","volume":"41","author":"Hesselstrand","year":"2012","journal-title":"Scand J Rheumatol"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib44","doi-asserted-by":"crossref","first-page":"732","DOI":"10.1093\/rheumatology\/key404","article-title":"Constrictive pericarditis as the presenting manifestation of systemic sclerosis","volume":"58","author":"Patel","year":"2019","journal-title":"Rheumatol Oxf Engl"},{"issue":"8","key":"10.1016\/j.berh.2021.101707_bib45","doi-asserted-by":"crossref","first-page":"1375","DOI":"10.1002\/acr.21968","article-title":"Does C-reactive protein predict the long-term progression of interstitial lung disease and survival in patients with early systemic sclerosis?","volume":"65","author":"Liu","year":"2013","journal-title":"Arthritis Care Res"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib46","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1136\/ard.2009.127621","article-title":"Skin thickness progression rate: a predictor of mortality and early internal organ involvement in diffuse scleroderma","volume":"70","author":"Domsic","year":"2011","journal-title":"Ann Rheum Dis"},{"issue":"6","key":"10.1016\/j.berh.2021.101707_bib47","doi-asserted-by":"crossref","first-page":"1060","DOI":"10.1136\/annrheumdis-2012-202849","article-title":"The degree of skin involvement identifies distinct lung disease outcomes and survival in systemic sclerosis","volume":"73","author":"Cottrell","year":"2014","journal-title":"Ann Rheum Dis"},{"issue":"10","key":"10.1016\/j.berh.2021.101707_bib48","doi-asserted-by":"crossref","first-page":"1849","DOI":"10.1093\/rheumatology\/kew246","article-title":"Validation of disease activity indices using the 28 joint counts in systemic sclerosis","volume":"55","author":"L\u00f3r\u00e1nd","year":"2016","journal-title":"Rheumatol Oxf Engl"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib49","doi-asserted-by":"crossref","first-page":"77","DOI":"10.55563\/clinexprheumatol\/cl3bbb","article-title":"Sensitivity to change of joint count composite indices in 72 patients with systemic sclerosis","volume":"39 Suppl 131","author":"L\u00f3r\u00e1nd","year":"2021","journal-title":"Clin Exp Rheumatol"},{"issue":"5","key":"10.1016\/j.berh.2021.101707_bib50","article-title":"Trends in demographics, hospitalization outcomes, comorbidities, and mortality risk among systemic sclerosis patients","volume":"10","author":"Amoda","year":"2018","journal-title":"Cureus"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib51","doi-asserted-by":"crossref","first-page":"197","DOI":"10.1002\/acr2.11126","article-title":"Increased mortality in asians with systemic sclerosis in northern California","volume":"2","author":"Chung","year":"2020","journal-title":"ACR Open Rheumatol"},{"issue":"7","key":"10.1016\/j.berh.2021.101707_bib52","doi-asserted-by":"crossref","first-page":"1684","DOI":"10.1093\/rheumatology\/kez486","article-title":"Racial differences in systemic sclerosis disease presentation: a European Scleroderma Trials and Research group study","volume":"59","author":"Jaeger","year":"2020","journal-title":"Rheumatol Oxf Engl"},{"issue":"6 Suppl 86","key":"10.1016\/j.berh.2021.101707_bib53","first-page":"88","article-title":"Frequency and impact of disease symptoms experienced by patients with systemic sclerosis from five European countries","volume":"32","author":"Willems","year":"2014","journal-title":"Clin Exp Rheumatol"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib54","doi-asserted-by":"crossref","first-page":"441","DOI":"10.1093\/rheumatology\/kex182","article-title":"Functional disability and its predictors in systemic sclerosis: a study from the DeSScipher project within the EUSTAR group","volume":"57","author":"Jaeger","year":"2018","journal-title":"Rheumatol Oxf Engl"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib55","first-page":"158","article-title":"Systemic sclerosis related calcinosis: patients provide what specialists want to learn","volume":"167","author":"Christensen","year":"2015","journal-title":"J\u00a0La State Med Soc Off Organ La State Med Soc"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib56","doi-asserted-by":"crossref","first-page":"410","DOI":"10.1093\/rheumatology\/kex420","article-title":"Wildflowers abundant in the garden of systemic sclerosis research, while hopeful exotics will one day bloom","volume":"57","author":"Saketkoo","year":"2018","journal-title":"Rheumatol Oxf Engl"},{"issue":"Suppl 2","key":"10.1016\/j.berh.2021.101707_bib57","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1136\/annrheumdis-2019-eular.7164","article-title":"OP0065 THE very early diagnosis OF systemic sclerosis (vedoss) project: predictors to develop definite disease from an international multicentre study","volume":"78","author":"Randone","year":"2019","journal-title":"Ann Rheum Dis"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib58","doi-asserted-by":"crossref","first-page":"18","DOI":"10.1093\/rheumatology\/key026","article-title":"The patient experience of Raynaud's phenomenon in systemic sclerosis","volume":"58","author":"Pauling","year":"2019","journal-title":"Rheumatol Oxf Engl"},{"issue":"9","key":"10.1016\/j.berh.2021.101707_bib59","doi-asserted-by":"crossref","first-page":"1373","DOI":"10.1002\/acr.23475","article-title":"Multinational qualitative research study exploring the patient experience of Raynaud's phenomenon in systemic sclerosis","volume":"70","author":"Pauling","year":"2018","journal-title":"Arthritis Care Res"},{"issue":"2","key":"10.1016\/j.berh.2021.101707_bib60","first-page":"150","article-title":"Experiences of physical activity and exercise in individuals with systemic sclerosis: a qualitative study","volume":"18","author":"Pettersson","year":"2020","journal-title":"Muscoskel Care"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib61","first-page":"203","article-title":"[Prevalence and clinical features of fibromyalgia in systemic lupus erythematosus, systemic sclerosis and Sj\u00f6gren\u2019s syndrome]","volume":"93","author":"Ostuni","year":"2002","journal-title":"Minerva Med"},{"issue":"7","key":"10.1016\/j.berh.2021.101707_bib62","doi-asserted-by":"crossref","first-page":"1488","DOI":"10.3899\/jrheum.091165","article-title":"Characteristics of joint involvement and relationships with systemic inflammation in systemic sclerosis: results from the EULAR Scleroderma Trial and Research Group (EUSTAR) database","volume":"37","author":"Avouac","year":"2010","journal-title":"J\u00a0Rheumatol"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib63","doi-asserted-by":"crossref","first-page":"229","DOI":"10.1016\/j.jbspin.2020.01.011","article-title":"Ultrasound prevalence of wrist, hand, ankle and foot synovitis and tenosynovitis in systemic sclerosis, and relationship with disease features and hand disability","volume":"87","author":"Hubac","year":"2020","journal-title":"Joint Bone Spine"},{"issue":"8","key":"10.1016\/j.berh.2021.101707_bib64","doi-asserted-by":"crossref","first-page":"1973","DOI":"10.1007\/s00296-013-2680-9","article-title":"Sleep quality in patients with systemic sclerosis: relationship between the clinical variables, depressive symptoms, functional status, and the quality of life","volume":"33","author":"Sariyildiz","year":"2013","journal-title":"Rheumatol Int"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib65","first-page":"1665","article-title":"Individuals with scleroderma may have increased risk of sleep-disordered breathing","volume":"15","author":"Nokes","year":"2019","journal-title":"J\u00a0Clin Sleep Med JCSM Off Publ Am Acad Sleep Med"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib66","doi-asserted-by":"crossref","first-page":"738","DOI":"10.1378\/chest.106.3.738","article-title":"The effect of nasal CPAP on nocturnal reflux in patients with aperistaltic esophagus","volume":"106","author":"Shoenut","year":"1994","journal-title":"Chest"},{"issue":"2","key":"10.1016\/j.berh.2021.101707_bib67","doi-asserted-by":"crossref","first-page":"163","DOI":"10.2174\/1573398X11666150619183527","article-title":"Outcome measures for clinical trials in interstitial lung diseases","volume":"11","author":"Lammi","year":"2015","journal-title":"Curr Respir Med Rev"},{"issue":"5","key":"10.1016\/j.berh.2021.101707_bib68","doi-asserted-by":"crossref","first-page":"428","DOI":"10.1136\/thoraxjnl-2013-204202","article-title":"Connective tissue disease related interstitial lung diseases and idiopathic pulmonary fibrosis: provisional core sets of domains and instruments for use in clinical trials","volume":"69","author":"Saketkoo","year":"2014","journal-title":"Thorax"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib69","doi-asserted-by":"crossref","first-page":"792","DOI":"10.3899\/jrheum.131251","article-title":"Reconciling healthcare professional and patient perspectives in the development of disease activity and response criteria in connective tissue disease-related interstitial lung diseases","volume":"41","author":"Saketkoo","year":"2014","journal-title":"J\u00a0Rheumatol"},{"issue":"2","key":"10.1016\/j.berh.2021.101707_bib70","doi-asserted-by":"crossref","first-page":"175","DOI":"10.2174\/1573398X11666150619182624","article-title":"Patient perspectives in OMERACT provide an anchor for future metric development and improved approaches to healthcare delivery in connective tissue disease related interstitial lung disease (CTD-ILD)","volume":"11","author":"Mittoo","year":"2015","journal-title":"Curr Respir Med Rev"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib71","doi-asserted-by":"crossref","first-page":"1892","DOI":"10.1002\/art.41415","article-title":"Performance characteristics of pulmonary function tests for the detection of interstitial lung disease in adults with early diffuse cutaneous systemic sclerosis","volume":"72","author":"Bernstein","year":"2020","journal-title":"Arthritis Rheumatol Hoboken NJ"},{"issue":"10","key":"10.1016\/j.berh.2021.101707_bib72","doi-asserted-by":"crossref","first-page":"1802","DOI":"10.1093\/rheumatology\/key175","article-title":"Treatment of small intestinal bacterial overgrowth in systemic sclerosis: a systematic review","volume":"57","author":"Pittman","year":"2018","journal-title":"Rheumatol Oxf Engl"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib73","doi-asserted-by":"crossref","first-page":"459","DOI":"10.1016\/j.rdc.2015.04.007","article-title":"Systemic sclerosis: gastrointestinal disease and its management","volume":"41","author":"Gyger","year":"2015","journal-title":"Rheum Dis Clin N Am"},{"issue":"6 Suppl 86","key":"10.1016\/j.berh.2021.101707_bib74","first-page":"214","article-title":"Consensus best practice pathway of the UK scleroderma study group: gastrointestinal manifestations of systemic sclerosis","volume":"32","author":"Hansi","year":"2014","journal-title":"Clin Exp Rheumatol"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib75","doi-asserted-by":"crossref","first-page":"2061","DOI":"10.1093\/rheumatology\/keq238","article-title":"Proton pump inhibitors interfere with the immunosuppressive potency of mycophenolate mofetil","volume":"49","author":"Schaier","year":"2010","journal-title":"Rheumatol Oxf Engl"},{"issue":"2 Suppl","key":"10.1016\/j.berh.2021.101707_bib76","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1177\/2397198319889549","article-title":"Natural history of systemic sclerosis-related interstitial lung disease: how to identify a progressive fibrosing phenotype","volume":"5","author":"Volkmann","year":"2020","journal-title":"J\u00a0Scleroderma Relat Disord"},{"issue":"7","key":"10.1016\/j.berh.2021.101707_bib77","doi-asserted-by":"crossref","first-page":"765","DOI":"10.1002\/art.1780350709","article-title":"Isolated diffusing capacity reduction in systemic sclerosis","volume":"35","author":"Steen","year":"1992","journal-title":"Arthritis Rheum"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib78","doi-asserted-by":"crossref","first-page":"489","DOI":"10.1002\/acr.22121","article-title":"Survival and predictors of mortality in systemic sclerosis-associated pulmonary arterial hypertension: outcomes from the pulmonary hypertension assessment and recognition of outcomes in scleroderma registry","volume":"66","author":"Chung","year":"2014","journal-title":"Arthritis Care Res"},{"issue":"23","key":"10.1016\/j.berh.2021.101707_bib79","doi-asserted-by":"crossref","first-page":"2865","DOI":"10.1097\/CM9.0000000000000535","article-title":"Cardiac complications in systemic sclerosis: early diagnosis and treatment","volume":"132","author":"Nie","year":"2019","journal-title":"Chin Med J (Engl)."},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib80","doi-asserted-by":"crossref","first-page":"647","DOI":"10.1093\/rheumatology\/keu350","article-title":"Assessment of myocardial fibrosis and microvascular damage in systemic sclerosis by magnetic resonance imaging and coronary angiotomography","volume":"54","author":"Rodr\u00edguez-Reyna","year":"2015","journal-title":"Rheumatol Oxf Engl"},{"issue":"2","key":"10.1016\/j.berh.2021.101707_bib81","doi-asserted-by":"crossref","first-page":"273","DOI":"10.1016\/j.semarthrit.2019.02.005","article-title":"Myocardial fibrosis detected by magnetic resonance imaging, elevated U-CRP and higher mRSS are predictors of cardiovascular complications in systemic sclerosis (SSc) patients","volume":"49","author":"Rodr\u00edguez-Reyna","year":"2019","journal-title":"Semin Arthritis Rheum"},{"issue":"1","key":"10.1016\/j.berh.2021.101707_bib82","doi-asserted-by":"crossref","first-page":"194","DOI":"10.1016\/0002-8703(93)90075-K","article-title":"Cardiac and skeletal muscle disease in systemic sclerosis (scleroderma): a high risk association","volume":"125","author":"Follansbee","year":"1993","journal-title":"Am Heart J"},{"issue":"9","key":"10.1016\/j.berh.2021.101707_bib83","doi-asserted-by":"crossref","first-page":"1474","DOI":"10.1136\/ard.2008.095919","article-title":"A\u00a0descriptive and prognostic study of systemic sclerosis-associated myopathies","volume":"68","author":"Ranque","year":"2009","journal-title":"Ann Rheum Dis"},{"issue":"6","key":"10.1016\/j.berh.2021.101707_bib84","doi-asserted-by":"crossref","first-page":"498","DOI":"10.3109\/03009741003774626","article-title":"Myopathies related to systemic sclerosis: a case-control study of associated clinical and immunological features","volume":"39","author":"Ranque","year":"2010","journal-title":"Scand J Rheumatol"},{"issue":"5","key":"10.1016\/j.berh.2021.101707_bib85","doi-asserted-by":"crossref","first-page":"662","DOI":"10.1002\/art.1780240506","article-title":"Association of myositis and myocarditis in progressive systemic sclerosis","volume":"24","author":"West","year":"1981","journal-title":"Arthritis Rheum"},{"issue":"2","key":"10.1016\/j.berh.2021.101707_bib86","doi-asserted-by":"crossref","first-page":"141","DOI":"10.1080\/03009742.2018.1477990","article-title":"Muscle endurance, strength, and active range of motion in patients with different subphenotypes in systemic sclerosis: a cross-sectional cohort study","volume":"48","author":"Pettersson","year":"2019","journal-title":"Scand J Rheumatol"},{"issue":"Suppl 2","key":"10.1016\/j.berh.2021.101707_bib87","doi-asserted-by":"crossref","first-page":"1136","DOI":"10.1136\/annrheumdis-2015-eular.3605","article-title":"AB0712 Development of a \u201crenal crisis prevention card\u201d as an education tool to improve outcomes in high risk patients with systemic sclerosis (SSC)","volume":"74","author":"Shapiro","year":"2015","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.berh.2021.101707_bib88","doi-asserted-by":"crossref","first-page":"101695","DOI":"10.1016\/j.berh.2021.101695","article-title":"Exercise as a multi-modal disease-modifying medicine in systemic sclerosis: An introduction by The Global Fellowship on Rehabilitation and Exercise in Systemic Sclerosis (G-FoRSS)","author":"Pettersson","year":"2021","journal-title":"Best Pract Res Clin Rheumatol"},{"key":"10.1016\/j.berh.2021.101707_bib89","doi-asserted-by":"crossref","first-page":"86","DOI":"10.1186\/1756-0500-7-86","article-title":"Intensive aerobic and muscle endurance exercise in patients with systemic sclerosis: a pilot study","volume":"7","author":"Alexanderson","year":"2014","journal-title":"BMC Res Notes"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib90","first-page":"316","article-title":"Aerobic and resistance exercise in systemic sclerosis: state of the art","volume":"15","author":"de Oliveira","year":"2017","journal-title":"Muscoskel Care"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib91","doi-asserted-by":"crossref","first-page":"747","DOI":"10.1249\/MSS.0000000000001495","article-title":"Exercise alters gut microbiota composition and function in lean and obese humans","volume":"50","author":"Allen","year":"2018","journal-title":"Med Sci Sports Exerc"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib92","doi-asserted-by":"crossref","first-page":"594","DOI":"10.1002\/acr.21875","article-title":"Need for online information and support of patients with systemic sclerosis","volume":"65","author":"van der Vaart","year":"2013","journal-title":"Arthritis Care Res"},{"issue":"3","key":"10.1016\/j.berh.2021.101707_bib93","doi-asserted-by":"crossref","first-page":"106","DOI":"10.1097\/RHU.0b013e31819dbe83","article-title":"Unmet patient needs in systemic sclerosis","volume":"15","author":"Rubenzik","year":"2009","journal-title":"J\u00a0Clin Rheumatol Pract Rep Rheum Musculoskelet Dis"},{"issue":"6","key":"10.1016\/j.berh.2021.101707_bib94","first-page":"1073","article-title":"Patients with scleroderma may have increased risk of osteoporosis. A comparison to rheumatoid arthritis and noninflammatory musculoskeletal conditions","volume":"35","author":"Yuen","year":"2008","journal-title":"J\u00a0Rheumatol"},{"issue":"4","key":"10.1016\/j.berh.2021.101707_bib95","doi-asserted-by":"crossref","first-page":"1181","DOI":"10.1007\/s10067-019-04847-0","article-title":"A\u00a0meta-analysis of fracture risk and bone mineral density in patients with systemic sclerosis","volume":"39","author":"Chen","year":"2020","journal-title":"Clin Rheumatol"},{"issue":"7","key":"10.1016\/j.berh.2021.101707_bib96","doi-asserted-by":"crossref","DOI":"10.1161\/CIRCOUTCOMES.120.006564","article-title":"Streamlining and reimagining prior authorization under value-based contracts: a call to action from the value in healthcare initiative's prior authorization learning collaborative","volume":"13","author":"Psotka","year":"2020","journal-title":"Circ Cardiovasc Qual Outcomes"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib97","doi-asserted-by":"crossref","first-page":"1543","DOI":"10.1002\/acr.24062","article-title":"Treatment delays associated with prior authorization for infusible medications: a cohort study","volume":"72","author":"Wallace","year":"2020","journal-title":"Arthritis Care Res"},{"issue":"6","key":"10.1016\/j.berh.2021.101707_bib98","doi-asserted-by":"crossref","first-page":"1674","DOI":"10.1016\/j.jaad.2020.06.998","article-title":"Evaluating the effect of prior authorizations in patients with complex dermatologic conditions","volume":"83","author":"Jew","year":"2020","journal-title":"J\u00a0Am Acad Dermatol"},{"issue":"5","key":"10.1016\/j.berh.2021.101707_bib99","first-page":"15","article-title":"Beating the prior authorization blues","volume":"23","author":"Twiddy","year":"2016","journal-title":"Fam Pract Manag"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib100","doi-asserted-by":"crossref","first-page":"2481","DOI":"10.3899\/jrheum.081237","article-title":"Canadian scleroderma research group, baron M. Work disability in systemic sclerosis","volume":"36","author":"Hudson","year":"2009","journal-title":"J\u00a0Rheumatol"},{"issue":"8","key":"10.1016\/j.berh.2021.101707_bib101","doi-asserted-by":"crossref","first-page":"1034","DOI":"10.1164\/rccm.201606-1238LE","article-title":"All authors. Daily home spirometry: a new milestone in the field of pulmonary fibrosis","volume":"194","author":"Russell","year":"2016","journal-title":"Am J Respir Crit Care Med"},{"issue":"12","key":"10.1016\/j.berh.2021.101707_bib102","doi-asserted-by":"crossref","first-page":"e90","DOI":"10.1016\/S2213-2600(20)30466-5","article-title":"An ode to the primal tonic of dance-congratulating the Life of Breath project","volume":"8","author":"Saketkoo","year":"2020","journal-title":"Lancet Respir Med"},{"issue":"5","key":"10.1016\/j.berh.2021.101707_bib103","doi-asserted-by":"crossref","first-page":"778","DOI":"10.1002\/acr.22192","article-title":"Taking charge of systemic sclerosis: a pilot study to assess the effectiveness of an internet self-management program","volume":"66","author":"Poole","year":"2014","journal-title":"Arthritis Care Res"},{"issue":"11","key":"10.1016\/j.berh.2021.101707_bib104","doi-asserted-by":"crossref","first-page":"1653","DOI":"10.1002\/acr.23522","article-title":"Occupational therapy treatment to improve upper extremity function in individuals with early systemic sclerosis: a pilot study","volume":"70","author":"Murphy","year":"2018","journal-title":"Arthritis Care Res"},{"key":"10.1016\/j.berh.2021.101707_bib105","doi-asserted-by":"crossref","first-page":"390","DOI":"10.1016\/j.jbi.2014.11.012","article-title":"Evaluation and selection of open-source EMR software packages based on integrated AHP and TOPSIS","volume":"53","author":"Zaidan","year":"2015","journal-title":"J\u00a0Biomed Inf"}],"container-title":["Best Practice &amp; Research Clinical Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1521694221000498?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1521694221000498?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,26]],"date-time":"2025-10-26T17:22:06Z","timestamp":1761499326000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1521694221000498"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,9]]},"references-count":104,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2021,9]]}},"alternative-id":["S1521694221000498"],"URL":"https:\/\/doi.org\/10.1016\/j.berh.2021.101707","relation":{},"ISSN":["1521-6942"],"issn-type":[{"value":"1521-6942","type":"print"}],"subject":[],"published":{"date-parts":[[2021,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc","name":"articletitle","label":"Article Title"},{"value":"Best Practice & Research Clinical Rheumatology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.berh.2021.101707","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2021 Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}],"article-number":"101707"}}