{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,18]],"date-time":"2026-07-18T03:52:03Z","timestamp":1784346723195,"version":"3.55.0"},"reference-count":39,"publisher":"Elsevier BV","issue":"2","license":[{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Best Practice & Research Clinical Rheumatology"],"published-print":{"date-parts":[[2026,5]]},"DOI":"10.1016\/j.berh.2026.102118","type":"journal-article","created":{"date-parts":[[2026,1,31]],"date-time":"2026-01-31T12:11:18Z","timestamp":1769861478000},"page":"102118","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":2,"title":["Improving quality of care in systemic sclerosis"],"prefix":"10.1016","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2468-4171","authenticated-orcid":false,"given":"Aos","family":"Aboabat","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.berh.2026.102118_bib1","doi-asserted-by":"crossref","first-page":"1878","DOI":"10.1093\/rheumatology\/kez532","article-title":"The clinical and economic burden of systemic sclerosis related interstitial lung disease","volume":"59","author":"Morrisroe","year":"2020","journal-title":"Rheumatology (Oxford)"},{"key":"10.1016\/j.berh.2026.102118_bib2","article-title":"Quality measures in systemic sclerosis","volume":"13","author":"Aboabat","year":"2023","journal-title":"Diagnostics (Basel)"},{"key":"10.1016\/j.berh.2026.102118_bib3","first-page":"64","article-title":"Health care use and patients' perceptions on quality of care in systemic sclerosis","volume":"31","author":"Willems","year":"2013","journal-title":"Clin Exp Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib4","doi-asserted-by":"crossref","first-page":"1170","DOI":"10.1093\/rheumatology\/keac474","article-title":"Survival in Swedish patients with systemic sclerosis: a nationwide population-based matched cohort study","volume":"62","author":"Bairkdar","year":"2023","journal-title":"Rheumatology (Oxford)"},{"key":"10.1016\/j.berh.2026.102118_bib5","doi-asserted-by":"crossref","first-page":"257","DOI":"10.2147\/CLEP.S191418","article-title":"Epidemiology of systemic sclerosis and systemic sclerosis-associated interstitial lung disease","volume":"11","author":"Bergamasco","year":"2019","journal-title":"Clin Epidemiol"},{"key":"10.1016\/j.berh.2026.102118_bib6","doi-asserted-by":"crossref","first-page":"403","DOI":"10.1002\/art.1780340405","article-title":"Predictors of survival in systemic sclerosis (scleroderma)","volume":"34","author":"Altman","year":"1991","journal-title":"Arthritis Rheum"},{"key":"10.1016\/j.berh.2026.102118_bib7","doi-asserted-by":"crossref","first-page":"1809","DOI":"10.1136\/ard.2009.114264","article-title":"Causes and risk factors for death in systemic sclerosis: a study from the EULAR Scleroderma Trials and Research (EUSTAR) database","volume":"69","author":"Tyndall","year":"2010","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.berh.2026.102118_bib8","doi-asserted-by":"crossref","first-page":"1067","DOI":"10.1002\/art.40027","article-title":"Early mortality in a multinational systemic sclerosis inception cohort","volume":"69","author":"Hao","year":"2017","journal-title":"Arthritis Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib9","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1177\/2397198320920422","article-title":"Mortality and morbidity in scleroderma renal crisis: a systematic literature review","volume":"6","author":"Kim","year":"2021","journal-title":"J Scleroderma Relat Disord"},{"key":"10.1016\/j.berh.2026.102118_bib10","doi-asserted-by":"crossref","first-page":"762","DOI":"10.1093\/rheumatology\/keq310","article-title":"Frequency and impact of symptoms experienced by patients with systemic sclerosis: results from a Canadian national survey","volume":"50","author":"Bassel","year":"2011","journal-title":"Rheumatology (Oxford)"},{"key":"10.1016\/j.berh.2026.102118_bib11","doi-asserted-by":"crossref","first-page":"94","DOI":"10.1002\/art.22468","article-title":"Assessing disability and quality of life in systemic sclerosis: construct validities of the cochin hand function scale, health assessment questionnaire (HAQ), systemic sclerosis HAQ, and medical outcomes Study 36-Item short form health survey","volume":"57","author":"Rannou","year":"2007","journal-title":"Arthritis Rheum"},{"key":"10.1016\/j.berh.2026.102118_bib12","doi-asserted-by":"crossref","DOI":"10.1590\/1806-9282.20231254","article-title":"Quality of sleep in individuals with systemic sclerosis and its correlation with functional disability and quality of life: a cross-sectional study","volume":"70","author":"Santos","year":"2024","journal-title":"Rev Assoc Med Bras"},{"key":"10.1016\/j.berh.2026.102118_bib13","first-page":"1117","article-title":"Quality of life and functional status in systemic sclerosis compared to other rheumatic diseases","volume":"33","author":"Johnson","year":"2006","journal-title":"J Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib14","doi-asserted-by":"crossref","first-page":"130","DOI":"10.1016\/j.ejim.2024.07.040","article-title":"Towards a comprehensive approach to the management and prognosis of systemic sclerosis's patients: the role of comorbidities in the SPRING-SIR registry","volume":"130","author":"Orlandi","year":"2024","journal-title":"Eur J Intern Med"},{"key":"10.1016\/j.berh.2026.102118_bib15","doi-asserted-by":"crossref","first-page":"1706","DOI":"10.1002\/acr.25000","article-title":"Perceived cognitive function in people with systemic sclerosis: associations with symptoms and daily life functioning","volume":"75","author":"Chen","year":"2023","journal-title":"Arthritis Care Res (Hoboken)"},{"key":"10.1016\/j.berh.2026.102118_bib16","doi-asserted-by":"crossref","DOI":"10.1016\/j.berh.2021.101667","article-title":"Employment outcomes in systemic sclerosis","volume":"35","author":"Lee","year":"2021","journal-title":"Best Pract Res Clin Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib17","doi-asserted-by":"crossref","first-page":"423","DOI":"10.1002\/acr.24123","article-title":"Unmet workplace support needs and lost productivity of workers with systemic sclerosis: a path analysis study","volume":"73","author":"Jetha","year":"2021","journal-title":"Arthritis Care Res (Hoboken)"},{"key":"10.1016\/j.berh.2026.102118_bib18","first-page":"1123","article-title":"Scleroderma: health services utilization from patients' perspective","volume":"33","author":"Johnson","year":"2006","journal-title":"J Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib19","doi-asserted-by":"crossref","first-page":"598","DOI":"10.3899\/jrheum.2024-0752","article-title":"Improving systemic sclerosis quality of care","volume":"52","author":"Aboabat","year":"2025","journal-title":"J Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib20","first-page":"S38","article-title":"Best practices in scleroderma: an analysis of practice variability in SSc centres within the Canadian Scleroderma research group (CSRG)","volume":"30","author":"Harding","year":"2012","journal-title":"Clin Exp Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib21","series-title":"Crossing the quality chasm: a new health system for the 21st century","year":"2001"},{"key":"10.1016\/j.berh.2026.102118_bib22","doi-asserted-by":"crossref","first-page":"1743","DOI":"10.1001\/jama.1988.03410120089033","article-title":"The quality of care. How can it be assessed?","volume":"260","author":"Donabedian","year":"1988","journal-title":"JAMA"},{"key":"10.1016\/j.berh.2026.102118_bib23","series-title":"The learning healthcare system: workshop summary","year":"2007"},{"key":"10.1016\/j.berh.2026.102118_bib24","doi-asserted-by":"crossref","first-page":"1226","DOI":"10.1093\/rheumatology\/kez417","article-title":"How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?","volume":"59","author":"Spierings","year":"2020","journal-title":"Rheumatology (Oxford)"},{"key":"10.1016\/j.berh.2026.102118_bib25","doi-asserted-by":"crossref","first-page":"620","DOI":"10.1136\/ard.2008.096677","article-title":"EULAR recommendations for the treatment of systemic sclerosis: a report from the EULAR scleroderma trials and research group (EUSTAR)","volume":"68","author":"Kowal-Bielecka","year":"2009","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.berh.2026.102118_bib26","doi-asserted-by":"crossref","first-page":"524","DOI":"10.3899\/jrheum.110121","article-title":"Agreement with guidelines from a large database for management of systemic sclerosis: results from the Canadian Scleroderma research group","volume":"39","author":"Pope","year":"2012","journal-title":"J Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib27","doi-asserted-by":"crossref","DOI":"10.3390\/jcm14144994","article-title":"Rheumatologists' adherence to EULAR recommendations for systemic sclerosis treatment: experience of a single center in Serbia","volume":"14","author":"Pavlov-Dolijanovic","year":"2025","journal-title":"J Clin Med"},{"key":"10.1016\/j.berh.2026.102118_bib28","first-page":"S40","article-title":"A comparison between general rheumatologists and scleroderma experts with respect to following systemic sclerosis guidelines","volume":"33","author":"Reed","year":"2015","journal-title":"Clin Exp Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib29","doi-asserted-by":"crossref","DOI":"10.1177\/1759720X221116408","article-title":"Open questions on the management of targeted therapies for the treatment of systemic sclerosis-interstitial lung disease: results of a EUSTAR survey based on a systemic literature review","volume":"14","author":"Campochiaro","year":"2022","journal-title":"Ther Adv Musculoskelet Dis"},{"key":"10.1016\/j.berh.2026.102118_bib30","doi-asserted-by":"crossref","first-page":"447","DOI":"10.1016\/j.amjms.2016.02.021","article-title":"Systemic sclerosis and perceptions of quality in primary care","volume":"351","author":"Toci","year":"2016","journal-title":"Am J Med Sci"},{"key":"10.1016\/j.berh.2026.102118_bib31","doi-asserted-by":"crossref","first-page":"1605","DOI":"10.3899\/jrheum.181130","article-title":"Physical or occupational therapy use in systemic sclerosis: a scleroderma patient-centered intervention network cohort study","volume":"46","author":"Becetti","year":"2019","journal-title":"J Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib32","first-page":"S153","article-title":"Content of non-pharmacological care for systemic sclerosis and educational needs of European health professionals: a EUSHNet survey","volume":"33","author":"Willems","year":"2015","journal-title":"Clin Exp Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib33","article-title":"Recognition of pulmonary hypertension in the rheumatology community: lessons from a quality enhancement research initiative","volume":"32","author":"Khanna","year":"2014","journal-title":"Clin Exp Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib34","doi-asserted-by":"crossref","first-page":"392","DOI":"10.31138\/mjr.211224.alf","article-title":"Interstitial lung disease and pulmonary arterial hypertension screening practices in systemic sclerosis: survey insights of rheumatologists in the Middle East and North Africa region","volume":"36","author":"Namas","year":"2025","journal-title":"Mediterr J Rheumatol"},{"key":"10.1016\/j.berh.2026.102118_bib36","doi-asserted-by":"crossref","first-page":"219","DOI":"10.1177\/2397198320913686","article-title":"Improving adherence to pulmonary hypertension screening in patients with systemic sclerosis: overcoming the provider-level barriers","volume":"5","author":"Wigger","year":"2020","journal-title":"J Scleroderma Relat Disord"},{"key":"10.1016\/j.berh.2026.102118_bib35","doi-asserted-by":"crossref","DOI":"10.1136\/rmdopen-2015-000159","article-title":"Therapeutic and diagnostic outcomes of a standardised, comprehensive care pathway for patients with systemic sclerosis","volume":"2","author":"Meijs","year":"2016","journal-title":"RMD Open"},{"key":"10.1016\/j.berh.2026.102118_bib37","doi-asserted-by":"crossref","first-page":"815","DOI":"10.2147\/JMDH.S295478","article-title":"The role of the multidisciplinary health care team in the management of patients with systemic sclerosis","volume":"15","author":"Farina","year":"2022","journal-title":"J Multidiscip Healthc"},{"key":"10.1016\/j.berh.2026.102118_bib38","doi-asserted-by":"crossref","first-page":"1897","DOI":"10.1136\/annrheumdis-2017-211448","article-title":"Mapping and predicting mortality from systemic sclerosis","volume":"76","author":"Elhai","year":"2017","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.berh.2026.102118_bib39","doi-asserted-by":"crossref","first-page":"264","DOI":"10.4081\/reumatismo.2014.794","article-title":"Adherence to recommendations for cervical and breast cancer screening in systemic sclerosis","volume":"66","author":"Caramaschi","year":"2015","journal-title":"Reumatismo"}],"container-title":["Best Practice & Research Clinical Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1521694226000033?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1521694226000033?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,6,15]],"date-time":"2026-06-15T07:46:47Z","timestamp":1781509607000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1521694226000033"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5]]},"references-count":39,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2026,5]]}},"alternative-id":["S1521694226000033"],"URL":"https:\/\/doi.org\/10.1016\/j.berh.2026.102118","relation":{},"ISSN":["1521-6942"],"issn-type":[{"value":"1521-6942","type":"print"}],"subject":[],"published":{"date-parts":[[2026,5]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Improving quality of care in systemic sclerosis","name":"articletitle","label":"Article Title"},{"value":"Best Practice & Research Clinical Rheumatology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.berh.2026.102118","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 Elsevier Ltd. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}],"article-number":"102118"}}