{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,25]],"date-time":"2026-02-25T06:59:43Z","timestamp":1772002783733,"version":"3.50.1"},"reference-count":50,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2018,7,1]],"date-time":"2018-07-01T00:00:00Z","timestamp":1530403200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":["clinicalkey.jp","clinicalkey.com","clinicalkey.es","clinicalkey.fr","clinicalkey.com.au","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Best Practice & Research Clinical Obstetrics & Gynaecology"],"published-print":{"date-parts":[[2018,7]]},"DOI":"10.1016\/j.bpobgyn.2018.01.009","type":"journal-article","created":{"date-parts":[[2018,2,7]],"date-time":"2018-02-07T22:46:23Z","timestamp":1518043583000},"page":"11-17","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":38,"special_numbering":"C","title":["Patient-centeredness and endometriosis: Definition, measurement, and current status"],"prefix":"10.1016","volume":"50","author":[{"given":"E.I.","family":"Geukens","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.","family":"Apers","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C.","family":"Meuleman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"T.M.","family":"D'Hooghe","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.A.F.","family":"Dancet","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.bpobgyn.2018.01.009_bib1","doi-asserted-by":"crossref","first-page":"2698","DOI":"10.1093\/humrep\/dei135","article-title":"ESHRE guideline for the diagnosis and treatment of endometriosis","volume":"20","author":"Kennedy","year":"2005","journal-title":"Hum Reprod"},{"issue":"1","key":"10.1016\/j.bpobgyn.2018.01.009_bib2","doi-asserted-by":"crossref","first-page":"68","DOI":"10.1016\/j.fertnstert.2008.04.056","article-title":"High prevalence of endometriosis in infertile women with normal ovulation and normospermic partners","volume":"92","author":"Meuleman","year":"2009","journal-title":"Fertil Steril"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib3","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1016\/j.ejogrb.2008.09.003","article-title":"Depressive symptoms, anxiety, and quality of life in women with pelvic endometriosis","volume":"1","author":"Sepulcri","year":"2009","journal-title":"Eur J Obstet Gynecol Reprod Biol"},{"issue":"7","key":"10.1016\/j.bpobgyn.2018.01.009_bib4","doi-asserted-by":"crossref","first-page":"2424","DOI":"10.1016\/j.fertnstert.2009.09.017","article-title":"Patients' report on how endometriosis affects health, work, and daily life","volume":"93","author":"Fourquet","year":"2010","journal-title":"Fertil Steril"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib5","doi-asserted-by":"crossref","first-page":"625","DOI":"10.1093\/humupd\/dmt027","article-title":"The social and psychological impact of endometriosis on women's lives: a critical narrative review","volume":"6","author":"Culley","year":"2013","journal-title":"Hum Reprod Update"},{"issue":"4","key":"10.1016\/j.bpobgyn.2018.01.009_bib6","doi-asserted-by":"crossref","first-page":"441","DOI":"10.1093\/humupd\/dmp007","article-title":"Recurrence of endometriosis and its control","volume":"15","author":"Guo","year":"2009","journal-title":"Hum Reprod Update"},{"issue":"2","key":"10.1016\/j.bpobgyn.2018.01.009_bib7","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1093\/humupd\/dmn062","article-title":"The effect of surgery for symptomatic endometriosis: the other side of the story","volume":"15","author":"Vercellini","year":"2009","journal-title":"Hum Reprod Update"},{"issue":"3","key":"10.1016\/j.bpobgyn.2018.01.009_bib8","doi-asserted-by":"crossref","first-page":"555","DOI":"10.1016\/j.fertnstert.2016.12.025","article-title":"New developments in the medical treatment of endometriosis","volume":"107","author":"Bedaiwy","year":"2017","journal-title":"Fertil Steril"},{"issue":"8","key":"10.1016\/j.bpobgyn.2018.01.009_bib9","doi-asserted-by":"crossref","first-page":"619","DOI":"10.1001\/jama.1994.03520080061045","article-title":"A\u00a0critical appraisal of the quality of quality-of-life measurements","volume":"272","author":"Gill","year":"1994","journal-title":"JAMA"},{"issue":"7","key":"10.1016\/j.bpobgyn.2018.01.009_bib10","doi-asserted-by":"crossref","first-page":"891","DOI":"10.1016\/j.ijnurstu.2006.03.015","article-title":"Critique on the conceptualisation of quality of life: a review and evaluation of different conceptual approaches","volume":"43","author":"Moons","year":"2006","journal-title":"Int J Nurs Stud"},{"issue":"6","key":"10.1016\/j.bpobgyn.2018.01.009_bib11","doi-asserted-by":"crossref","first-page":"502","DOI":"10.1177\/1474515113512735","article-title":"Is quality of life the ultimate outcome parameter?","volume":"12","author":"Apers","year":"2013","journal-title":"Eur J Cardiovasc Nurs"},{"issue":"2","key":"10.1016\/j.bpobgyn.2018.01.009_bib12","doi-asserted-by":"crossref","first-page":"197","DOI":"10.1016\/j.rbmo.2017.10.106","article-title":"The association between experiences with patient-centered care and health-related quality of life in women with endometriosis","volume":"36","author":"Apers","year":"2018","journal-title":"Reprod Biomed Online"},{"issue":"2","key":"10.1016\/j.bpobgyn.2018.01.009_bib13","doi-asserted-by":"crossref","first-page":"488","DOI":"10.1093\/humrep\/der386","article-title":"How patient-centred care relates to patients' quality of life and distress: a study in 427 women experiencing infertility","volume":"27","author":"Aarts","year":"2012","journal-title":"Hum Reprod"},{"issue":"3","key":"10.1016\/j.bpobgyn.2018.01.009_bib14","doi-asserted-by":"crossref","first-page":"646","DOI":"10.1016\/j.pec.2013.08.015","article-title":"Patient centred care in infertility health care: direct and indirect associations with wellbeing during treatment","volume":"93","author":"Gameiro","year":"2013","journal-title":"Patient Educ Couns"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib15","series-title":"Crossing the quality chasm: a new health system for the 21st century","author":"Corrigan","year":"2001"},{"issue":"8","key":"10.1016\/j.bpobgyn.2018.01.009_bib16","doi-asserted-by":"crossref","first-page":"1489","DOI":"10.1016\/j.socscimed.2009.01.032","article-title":"Negotiating science and experience in medical knowledge: gynaecologists on endometriosis","volume":"68","author":"Whelan","year":"2009","journal-title":"Soc Sci Med"},{"issue":"2","key":"10.1016\/j.bpobgyn.2018.01.009_bib17","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1159\/000358392","article-title":"The patient-centeredness of endometriosis care and targets for improvement: a systematic review","volume":"78","author":"Dancet","year":"2014","journal-title":"Gynecol Obstet Invest"},{"issue":"11","key":"10.1016\/j.bpobgyn.2018.01.009_bib18","doi-asserted-by":"crossref","first-page":"2988","DOI":"10.1093\/humrep\/der277","article-title":"The ENDOCARE questionnaire (ECQ): a valid and reliable instrument to measure the patient-centeredness of endometriosis care in Europe","volume":"26","author":"Dancet","year":"2011","journal-title":"Hum Reprod"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib19","series-title":"Through the patient's eyes: understanding and promoting patient-centered care","first-page":"309","author":"Gerteis","year":"1993"},{"issue":"5","key":"10.1016\/j.bpobgyn.2018.01.009_bib20","doi-asserted-by":"crossref","first-page":"1348","DOI":"10.1542\/peds.2009-0495","article-title":"Development of a new patient-based measure of pediatric ambulatory care","volume":"124","author":"Gallagher","year":"2009","journal-title":"Pediatrics"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib21","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1186\/1471-230X-8-25","article-title":"Quality of health care and patient satisfaction in liver disease: the development and preliminary results of the QUOTE-Liver questionnaire","volume":"8","author":"Gutteling","year":"2008","journal-title":"BMC Gastroenterol"},{"issue":"9","key":"10.1016\/j.bpobgyn.2018.01.009_bib22","doi-asserted-by":"crossref","first-page":"1569","DOI":"10.1016\/j.ejca.2008.12.011","article-title":"Towards more patient centred healthcare: a new consumer quality index instrument to assess patients' experiences with breast care","volume":"45","author":"Damman","year":"2009","journal-title":"Eur J Cancer"},{"issue":"11","key":"10.1016\/j.bpobgyn.2018.01.009_bib23","doi-asserted-by":"crossref","first-page":"3168","DOI":"10.1093\/humrep\/des299","article-title":"The ENDOCARE questionnaire guides European endometriosis clinics to improve the patient-centeredness of their care","volume":"27","author":"Dancet","year":"2012","journal-title":"Hum Reprod"},{"issue":"3","key":"10.1016\/j.bpobgyn.2018.01.009_bib24","doi-asserted-by":"crossref","first-page":"244","DOI":"10.1377\/hlthaff.20.3.244","article-title":"Patients' experiences with hospital care in five countries, patients' assessments of hospital care are essential to improving its quality","volume":"20","author":"Coulter","year":"2001","journal-title":"Health Aff"},{"issue":"1","key":"10.1016\/j.bpobgyn.2018.01.009_bib25","doi-asserted-by":"crossref","first-page":"86","DOI":"10.1093\/aje\/kwf011","article-title":"Sources of bias in studies among infertility clients","volume":"156","author":"Tielemans","year":"2002","journal-title":"Am J Epidemiol"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib26","doi-asserted-by":"crossref","first-page":"2162","DOI":"10.1111\/j.1475-6773.2005.00470.x","article-title":"Case-mix adjustment of the CAHPS hospital survey","volume":"40","author":"O'Malley","year":"2005","journal-title":"Health Serv Res"},{"issue":"5","key":"10.1016\/j.bpobgyn.2018.01.009_bib27","doi-asserted-by":"crossref","first-page":"573","DOI":"10.1111\/j.1471-0528.2011.03220.x","article-title":"Understanding regional differences in maternal mortality: a national case-control study in France","volume":"119","author":"Saucedo","year":"2011","journal-title":"BJOG"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib28","article-title":"Targets for improvement in endometriosis care in a secondary and tertiary clinic","author":"Nelen","year":"2017","journal-title":"Abstr Only"},{"issue":"5","key":"10.1016\/j.bpobgyn.2018.01.009_bib29","doi-asserted-by":"crossref","first-page":"1296","DOI":"10.1016\/j.fertnstert.2006.04.054","article-title":"What's the delay? A qualitative study of women's experiences of reaching a diagnosis of endometriosis","volume":"86","author":"Ballard","year":"2006","journal-title":"Fertil Steril"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib30","doi-asserted-by":"crossref","first-page":"641","DOI":"10.1111\/j.1365-2648.2004.03055.x","article-title":"Women's experience of endometriosis","volume":"46","author":"Denny","year":"2004","journal-title":"J\u00a0Adv Nurs"},{"issue":"1","key":"10.1016\/j.bpobgyn.2018.01.009_bib31","first-page":"39","article-title":"\u2018You are one of the unlucky ones': delay in the diagnosis of endometriosis","volume":"1","author":"Denny","year":"2004","journal-title":"Divers Health Soc Care"},{"issue":"3","key":"10.1016\/j.bpobgyn.2018.01.009_bib32","doi-asserted-by":"crossref","first-page":"189","DOI":"10.1783\/147118907781004831","article-title":"Endometriosis-associated dyspareunia: the impact on women's lives","volume":"33","author":"Denny","year":"2007","journal-title":"J\u00a0Fam Plann Reprod Health Care"},{"issue":"1","key":"10.1016\/j.bpobgyn.2018.01.009_bib33","doi-asserted-by":"crossref","first-page":"32","DOI":"10.1016\/j.fertnstert.2007.11.020","article-title":"Diagnostic experience among 4,334 women reporting surgically diagnosed endometriosis","volume":"91","author":"Greene","year":"2009","journal-title":"Fertil Steril"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib34","doi-asserted-by":"crossref","first-page":"500","DOI":"10.1080\/01443610120072081","article-title":"The management of endometriosis: a survey of patients\u2019 aspirations","volume":"21","author":"Hirsh","year":"2001","journal-title":"J\u00a0Obstet Gynaecol"},{"issue":"9","key":"10.1016\/j.bpobgyn.2018.01.009_bib35","doi-asserted-by":"crossref","first-page":"1124","DOI":"10.1111\/j.1365-2702.2005.01231.x","article-title":"A\u00a0life shaped by pain: women and endometriosis","volume":"14","author":"Huntington","year":"2005","journal-title":"J\u00a0Clin Nurs"},{"issue":"2","key":"10.1016\/j.bpobgyn.2018.01.009_bib36","doi-asserted-by":"crossref","first-page":"123","DOI":"10.1080\/01674820400002279","article-title":"The impact of endometriosis upon quality of life: a qualitative analysis","volume":"25","author":"Jones","year":"2004","journal-title":"J\u00a0Psychosom Obstet Gynaecol"},{"issue":"4","key":"10.1016\/j.bpobgyn.2018.01.009_bib37","doi-asserted-by":"crossref","first-page":"522","DOI":"10.1177\/1049732308315432","article-title":"Circuit breaking: pathways of treatment seeking for women with endometriosis in Australia","volume":"18","author":"Manderson","year":"2008","journal-title":"Qual Health Res"},{"issue":"6","key":"10.1016\/j.bpobgyn.2018.01.009_bib38","doi-asserted-by":"crossref","first-page":"1702","DOI":"10.1093\/humrep\/des061","article-title":"Patients from across Europe have similar views on patient-centred care: an international multilingual qualitative study in infertility care","volume":"27","author":"Dancet","year":"2012","journal-title":"Hum Reprod"},{"issue":"1","key":"10.1016\/j.bpobgyn.2018.01.009_bib39","doi-asserted-by":"crossref","first-page":"4","DOI":"10.1093\/fampra\/16.1.4","article-title":"Patients' priorities with respect to general practice care: an international comparison. European Task Force on Patient Evaluations of General Practice (EUROPEP)","volume":"16","author":"Grol","year":"1999","journal-title":"Fam Pract"},{"issue":"1","key":"10.1016\/j.bpobgyn.2018.01.009_bib40","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1186\/1472-6963-5-16","article-title":"What is important in evaluating health care quality? An international comparison of user views","volume":"5","author":"Groenewegen","year":"2005","journal-title":"BMC Health Serv Res"},{"issue":"14","key":"10.1016\/j.bpobgyn.2018.01.009_bib41","doi-asserted-by":"crossref","first-page":"1866","DOI":"10.1001\/jama.283.14.1866","article-title":"The public release of performance data: what do we expect to gain? A review of the evidence","volume":"283","author":"Marshall","year":"2000","journal-title":"JAMA"},{"issue":"2","key":"10.1016\/j.bpobgyn.2018.01.009_bib42","doi-asserted-by":"crossref","first-page":"111","DOI":"10.7326\/0003-4819-148-2-200801150-00006","article-title":"Systematic review: the evidence that publishing patient care performance data improves quality of care","volume":"148","author":"Fung","year":"2008","journal-title":"Ann Intern Med"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib43","doi-asserted-by":"crossref","first-page":"78","DOI":"10.1016\/j.ejogrb.2015.08.024","article-title":"Fertility preservation: a challenge for IVF-clinics","volume":"194","author":"Dahhan","year":"2015","journal-title":"Eur J Obstet Gynecol Reprod Biol"},{"issue":"5","key":"10.1016\/j.bpobgyn.2018.01.009_bib44","doi-asserted-by":"crossref","first-page":"1137","DOI":"10.1093\/humrep\/dev041","article-title":"Improving patient-centredness in partnership with female patients: a cluster RCT in fertility care","volume":"30","author":"Huppelschoten","year":"2015","journal-title":"Hum Reprod"},{"key":"10.1016\/j.bpobgyn.2018.01.009_bib45","first-page":"4","article-title":"Decision aids for people facing health treatment or screening decisions","volume":"12","author":"Stacey","year":"2017","journal-title":"Cochrane Database Syst Rev"},{"issue":"4","key":"10.1016\/j.bpobgyn.2018.01.009_bib46","first-page":"438","article-title":"Informed and shared decision-making: the crux of patient-centered care","volume":"165","author":"Weston","year":"2001","journal-title":"CMAJ"},{"issue":"5","key":"10.1016\/j.bpobgyn.2018.01.009_bib47","doi-asserted-by":"crossref","first-page":"475","DOI":"10.1177\/1474515113477955","article-title":"Sense of coherence and perceived physical health explain the better quality of life in adolescents with congenital heart disease","volume":"12","author":"Apers","year":"2013","journal-title":"Eur J Cardiovasc Nurs"},{"issue":"11","key":"10.1016\/j.bpobgyn.2018.01.009_bib48","doi-asserted-by":"crossref","first-page":"938","DOI":"10.1136\/jech.2006.056028","article-title":"Antonovsky's sense of coherence scale and its relation with quality of life: a systematic review","volume":"61","author":"Eriksson","year":"2007","journal-title":"J\u00a0Epidemiol Community Health"},{"issue":"4","key":"10.1016\/j.bpobgyn.2018.01.009_bib49","doi-asserted-by":"crossref","first-page":"316","DOI":"10.1097\/DBP.0b013e31821102ee","article-title":"Sense of coherence as a predictor of quality of life in adolescents with congenital heart defects: a register-based 1-year follow-up study","volume":"32","author":"Neuner","year":"2011","journal-title":"J\u00a0Dev Behav Pediatr"},{"issue":"2","key":"10.1016\/j.bpobgyn.2018.01.009_bib50","doi-asserted-by":"crossref","first-page":"122","DOI":"10.1016\/j.jadohealth.2011.11.007","article-title":"i-DETACH Investigators. Individual and contextual determinants of quality of life in adolescents with congenital heart disease","volume":"51","author":"Luyckx","year":"2012","journal-title":"J\u00a0Adolesc Health"}],"container-title":["Best Practice & Research Clinical Obstetrics & Gynaecology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1521693418300270?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1521693418300270?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2018,7,31]],"date-time":"2018-07-31T23:56:32Z","timestamp":1533081392000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1521693418300270"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,7]]},"references-count":50,"alternative-id":["S1521693418300270"],"URL":"https:\/\/doi.org\/10.1016\/j.bpobgyn.2018.01.009","relation":{},"ISSN":["1521-6934"],"issn-type":[{"value":"1521-6934","type":"print"}],"subject":[],"published":{"date-parts":[[2018,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Patient-centeredness and endometriosis: Definition, measurement, and current status","name":"articletitle","label":"Article Title"},{"value":"Best Practice & Research Clinical Obstetrics & Gynaecology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.bpobgyn.2018.01.009","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2018 Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}]}}