{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,3]],"date-time":"2026-10-03T10:33:33Z","timestamp":1791023613905,"version":"4.1.0"},"reference-count":30,"publisher":"Elsevier BV","issue":"3","license":[{"start":{"date-parts":[[2013,3,1]],"date-time":"2013-03-01T00:00:00Z","timestamp":1362096000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2013,3,1]],"date-time":"2013-03-01T00:00:00Z","timestamp":1362096000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"funder":[{"DOI":"10.13039\/501100004564","name":"Ministarstvo Prosvete, Nauke i Tehnolo\u0161kog Razvoja","doi-asserted-by":"publisher","award":["175083"],"award-info":[{"award-number":["175083"]}],"id":[{"id":"10.13039\/501100004564","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Clinical Neurology and Neurosurgery"],"published-print":{"date-parts":[[2013,3]]},"DOI":"10.1016\/j.clineuro.2012.05.015","type":"journal-article","created":{"date-parts":[[2012,6,13]],"date-time":"2012-06-13T00:15:22Z","timestamp":1339546522000},"page":"270-275","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":46,"title":["Influence of multisystemic affection on health-related quality of life in patients with myotonic dystrophy type 1"],"prefix":"10.1016","volume":"115","author":[{"given":"S.","family":"Peric","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"V. Rakocevic","family":"Stojanovic","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"I.","family":"Basta","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Peric","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Milicev","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Pavlovic","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"D.","family":"Lavrnic","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.clineuro.2012.05.015_bib0005","doi-asserted-by":"crossref","first-page":"1658","DOI":"10.1212\/WNL.52.8.1658","article-title":"A 10-year study of mortality in a cohort of patients with myotonic dystrophy","volume":"52","author":"Mathieu","year":"1999","journal-title":"Neurology"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0010","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1111\/j.1468-1331.2006.01261.x","article-title":"Survival and mortality of myotonic dystrophy type 1 (Steinert's disease) in the population of Belgrade","volume":"13","author":"Mladenovic","year":"2006","journal-title":"European Journal of Neurology"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0015","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1080\/16501970500477967","article-title":"Health-related quality of life in myotonic dystrophy type 1 and its relationship with cognitive and emotional functioning","volume":"38","author":"Antonini","year":"2006","journal-title":"Journal of Rehabilitation Medicine"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0020","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1186\/1477-7525-5-31","article-title":"Living with muscular dystrophy: health related quality of life consequences for children and adults","volume":"5","author":"Groothenius","year":"2007","journal-title":"Health and Quality of Life Outcomes"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0025","doi-asserted-by":"crossref","first-page":"695","DOI":"10.2340\/16501977-0833","article-title":"Feasibility and effects of a physical exercise programme in adults with myotonic dystrophy type 1: a randomized controlled pilot study","volume":"43","author":"Kierkegard","year":"2011","journal-title":"Journal of Rehabilitation Medicine"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0030","doi-asserted-by":"crossref","first-page":"1246","DOI":"10.1016\/j.apmr.2007.10.049","article-title":"Predictors of disrupted social participation in myotonic dystrophy type 1","volume":"89","author":"Gagnon","year":"2008","journal-title":"Archives of Physical Medicine and Rehabilitation"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0035","doi-asserted-by":"crossref","first-page":"847","DOI":"10.1016\/j.nmd.2010.08.006","article-title":"Health supervision and anticipatory guidance in adult myotonic dystrophy type 1","volume":"20","author":"Gagnon","year":"2010","journal-title":"Neuromuscular Disorders"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0040","doi-asserted-by":"crossref","first-page":"813","DOI":"10.1016\/S0960-8966(03)00137-8","article-title":"Executive dysfunction and avoidant personality trait in myotonic dystrophy type 1 (DM-1) and in proximal myotonic myopathy (PROMM\/DM-2)","volume":"13","author":"Meola","year":"2003","journal-title":"Neuromuscular Disorders"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0045","doi-asserted-by":"crossref","first-page":"294","DOI":"10.1002\/mus.20800","article-title":"Cerebral involvement in myotonic dystrophies","volume":"36","author":"Meola","year":"2007","journal-title":"Muscle and Nerve"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0050","series-title":"International classification of functioning, disability and health: ICF","author":"World Health Organization","year":"2001"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0055","doi-asserted-by":"crossref","first-page":"200","DOI":"10.1002\/mus.21308","article-title":"Quality of life and pain in patients with facioscapulohumeral muscular dystrophy","volume":"40","author":"Padua","year":"2009","journal-title":"Muscle and Nerve"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0060","doi-asserted-by":"crossref","first-page":"552","DOI":"10.1097\/GIM.0b013e3181abce0f","article-title":"Technical standards and guidelines for myotonic dystrophy type 1 testing","volume":"11","author":"Prior","year":"2009","journal-title":"Genetics in Medicine"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0065","doi-asserted-by":"crossref","first-page":"610","DOI":"10.1207\/s15327752jpa5503&4_17","article-title":"Psychometric characteristics of the MSPSS","volume":"55","author":"Zimet","year":"1990","journal-title":"Journal of Personality Assessment"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0070","doi-asserted-by":"crossref","first-page":"336","DOI":"10.1212\/WNL.56.3.336","article-title":"Assessment of a disease-specific muscular impairment rating scale in myotonic dystrophy","volume":"56","author":"Mathieu","year":"2001","journal-title":"Neurology"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0075","doi-asserted-by":"crossref","first-page":"343","DOI":"10.1037\/0022-006X.52.3.343","article-title":"Coping with chronic illness: a study of illness controllability and influence of coping strategies on psychological adjustment","volume":"2","author":"Felton","year":"1984","journal-title":"Journal of Consulting and Clinical Psychology"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0080","doi-asserted-by":"crossref","first-page":"56","DOI":"10.1136\/jnnp.23.1.56","article-title":"A rating scale for depression","volume":"23","author":"Hamilton","year":"1960","journal-title":"Journal of Neurology, Neurosurgery and Psychiatry"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0085","doi-asserted-by":"crossref","first-page":"1121","DOI":"10.1001\/archneur.1989.00520460115022","article-title":"The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus","volume":"46","author":"Krupp","year":"1989","journal-title":"Archives of Neurology"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0090","doi-asserted-by":"crossref","first-page":"1403","DOI":"10.1136\/jnnp.2004.043455","article-title":"Fatigue and daytime sleepiness rating scales in myotonic dystrophy: a study of reliability","volume":"76","author":"Laberge","year":"2005","journal-title":"Journal of Neurology, Neurosurgery and Psychiatry"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0100","doi-asserted-by":"crossref","first-page":"1406","DOI":"10.1136\/jnnp.2004.050005","article-title":"Experienced fatigue in facioscapulohumeral dystrophy, myotonic dystrophy, and HMSN-I","volume":"76","author":"Kalkman","year":"2005","journal-title":"Journal of Neurology, Neurosurgery and Psychiatry"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0105","doi-asserted-by":"crossref","first-page":"1820","DOI":"10.1007\/s00415-011-6027-8","article-title":"High disease impact of myotonic dystrophy type 2 on physical and mental functioning","volume":"258","author":"Tieleman","year":"2011","journal-title":"Journal of Neurology"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0110","first-page":"71","article-title":"Health-related quality of life in patients with myotonic dystrophy type 1 and amyotrophic lateral sclerosis","volume":"110","author":"Peric","year":"2010","journal-title":"Acta Neurologica Belgica"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0115","doi-asserted-by":"crossref","first-page":"1178","DOI":"10.1111\/j.1468-1331.2010.02992.x","article-title":"Italian validation of INQoL, a quality of life questionnaire for adults with muscle diseases","volume":"17","author":"Sansone","year":"2010","journal-title":"European Journal of Neurology"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0120","doi-asserted-by":"crossref","first-page":"60","DOI":"10.2340\/16501977-0482","article-title":"Employment status of patients with neuromuscular diseases in relation to personal factors, fatigue and health status: a secondary analysis","volume":"40","author":"Minis","year":"2010","journal-title":"Journal of Rehabilitation Medicine"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0125","doi-asserted-by":"crossref","first-page":"823","DOI":"10.2340\/16501977-0598","article-title":"Myotonic dystrophy: the burden for patients and their partners","volume":"42","author":"Timman","year":"2010","journal-title":"Journal of Rehabilitation Medicine"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0130","doi-asserted-by":"crossref","first-page":"191","DOI":"10.1097\/CRD.0b013e318070d1a7","article-title":"Cardiovascular manifestations of myotonic dystrophy-1","volume":"15","author":"Sovari","year":"2007","journal-title":"Cardiology in Review"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0135","doi-asserted-by":"crossref","first-page":"1094","DOI":"10.1136\/hrt.2010.214197","article-title":"Mechanism and management of the heart in myotonic dystrophy","volume":"97","author":"McNally","year":"2011","journal-title":"Heart"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0140","doi-asserted-by":"crossref","first-page":"1139","DOI":"10.1111\/j.1468-1331.2011.03352.x","article-title":"Sleep disorders in adult-onset myotonic dystrophy type 1: a controlled polysomnographic study","volume":"18","author":"Romigi","year":"2011","journal-title":"European Journal of Neurology"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0145","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1186\/1744-9081-6-25","article-title":"Depression in myotonic dystrophy type 1: clinical and neuronal correlates","volume":"6","author":"Winblad","year":"2010","journal-title":"Behavioral and Brain Functions"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0150","series-title":"Fatigue","author":"Krupp","year":"2003"},{"key":"10.1016\/j.clineuro.2012.05.015_bib0155","doi-asserted-by":"crossref","first-page":"145","DOI":"10.1177\/1049909109358420","article-title":"Assessment and management of fatigue in neuromuscular disease","volume":"27","author":"Lou","year":"2010","journal-title":"American Journal of Hospice and Palliative Care"}],"container-title":["Clinical Neurology and Neurosurgery"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0303846712002752?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0303846712002752?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,4]],"date-time":"2025-10-04T14:28:25Z","timestamp":1759588105000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0303846712002752"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,3]]},"references-count":30,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2013,3]]}},"alternative-id":["S0303846712002752"],"URL":"https:\/\/doi.org\/10.1016\/j.clineuro.2012.05.015","relation":{},"ISSN":["0303-8467"],"issn-type":[{"value":"0303-8467","type":"print"}],"subject":[],"published":{"date-parts":[[2013,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Influence of multisystemic affection on health-related quality of life in patients with myotonic dystrophy type 1","name":"articletitle","label":"Article Title"},{"value":"Clinical Neurology and Neurosurgery","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.clineuro.2012.05.015","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2012 Elsevier B.V. All rights reserved.","name":"copyright","label":"Copyright"}]}}