{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,6]],"date-time":"2026-05-06T12:14:53Z","timestamp":1778069693803,"version":"3.51.4"},"reference-count":22,"publisher":"Elsevier BV","issue":"5","license":[{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","clinical-lymphoma-myeloma-leukemia.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Clinical Lymphoma Myeloma and Leukemia"],"published-print":{"date-parts":[[2026,5]]},"DOI":"10.1016\/j.clml.2026.01.009","type":"journal-article","created":{"date-parts":[[2026,1,17]],"date-time":"2026-01-17T00:45:27Z","timestamp":1768610727000},"page":"e591-e595","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"title":["A Call for Compassion: How You Can Help Get Multiple Myeloma Added to the Social Security Administration\u2019s Compassionate Allowances List"],"prefix":"10.1016","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0009-0009-3439-3221","authenticated-orcid":false,"given":"Akshay","family":"Mehta","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Matthew","family":"Kaczynski","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah","family":"Addison","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael J.","family":"Slade","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0208-5023","authenticated-orcid":false,"given":"Mark A.","family":"Fiala","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.clml.2026.01.009_bib0001","unstructured":"National Cancer Institute Surveillance, Epidemiology, and End Results Program. Plasma cell neoplasms (including multiple myeloma)\u2014patient version. NCI; 2023. Accessed: December 18, 2025. https:\/\/www.cancer.gov\/types\/myeloma\/patient\/myeloma-treatment-pdq."},{"issue":"10","key":"10.1016\/j.clml.2026.01.009_bib0002","doi-asserted-by":"crossref","first-page":"1154","DOI":"10.6004\/jnccn.2019.0049","article-title":"NCCN Guidelines insights: multiple myeloma, version 1.2020","volume":"17","author":"Kumar","year":"2019","journal-title":"J Natl Compr Canc Netw"},{"issue":"6","key":"10.1016\/j.clml.2026.01.009_bib0003","article-title":"Perspectives on returning to work of multiple myeloma patients: a qualitative interview study","volume":"30","author":"Bennink","year":"2021","journal-title":"Eur J Cancer Care (Engl)"},{"issue":"5","key":"10.1016\/j.clml.2026.01.009_bib0004","doi-asserted-by":"crossref","first-page":"464","DOI":"10.1001\/jama.2022.0003","article-title":"Diagnosis and management of multiple myeloma: a review","volume":"327","author":"Cowan","year":"2022","journal-title":"JAMA"},{"issue":"10","key":"10.1016\/j.clml.2026.01.009_bib0005","doi-asserted-by":"crossref","first-page":"e408","DOI":"10.1016\/S2352-3026(15)00151-9","article-title":"Financial toxicity in insured patients with multiple myeloma: a cross-sectional pilot study","volume":"2","author":"Huntington","year":"2015","journal-title":"Lancet Haematol"},{"key":"10.1016\/j.clml.2026.01.009_sbref0006","series-title":"Cancer Stat Facts: Multiple Myeloma","year":"2023"},{"key":"10.1016\/j.clml.2026.01.009_bib0007","first-page":"1","article-title":"Multiple myeloma in people of working age: a systematic review and evidence synthesis of experiences of paid and unpaid work","volume":"2023","author":"Forbat","year":"2023","journal-title":"Eur J Cancer Care (Engl)"},{"issue":"3","key":"10.1016\/j.clml.2026.01.009_bib0008","doi-asserted-by":"crossref","first-page":"214","DOI":"10.25259\/IJPC_106_2025","article-title":"A holistic insight into the caregivers of patients with multiple myeloma: burden and opportunities for interventions - a scoping review","volume":"31","author":"Thakur","year":"2025","journal-title":"Indian J Palliat Care"},{"issue":"12","key":"10.1016\/j.clml.2026.01.009_bib0009","doi-asserted-by":"crossref","DOI":"10.1001\/jamanetworkopen.2020.25810","article-title":"Assessment of financial toxicity among older adults with advanced cancer","volume":"3","author":"Arastu","year":"2020","journal-title":"JAMA Netw Open"},{"key":"10.1016\/j.clml.2026.01.009_sbref0010","series-title":"Disability Evaluation under Social Security (Blue Book). Section 13.07\u2014Multiple Myeloma","year":"2023"},{"key":"10.1016\/j.clml.2026.01.009_sbref0011","series-title":"Annual Statistical Report on the Social Security Disability Insurance Program","year":"2020"},{"key":"10.1016\/j.clml.2026.01.009_bib0012","unstructured":"Social Security Administration. Compassionate Allowances. https:\/\/www.ssa.gov\/compassionateallowances\/index.htm"},{"key":"10.1016\/j.clml.2026.01.009_sbref0013","series-title":"Program Operations Manual System (POMS) Compassionate Allowances Information: Hematopoietic Stem Cell Transplantation","year":"2025"},{"issue":"11","key":"10.1016\/j.clml.2026.01.009_bib0014","doi-asserted-by":"crossref","first-page":"666","DOI":"10.1016\/j.jtct.2023.08.028","article-title":"Overcoming barriers to autologous stem cell transplantation in multiple myeloma: recommendations from a multidisciplinary roundtable discussion","volume":"29","author":"Bashir","year":"2023","journal-title":"Transplant Cell Ther"},{"issue":"4","key":"10.1016\/j.clml.2026.01.009_bib0015","doi-asserted-by":"crossref","first-page":"393","DOI":"10.1111\/ejh.13298","article-title":"Productivity losses in patients with newly diagnosed multiple myeloma following stem cell transplantation and the impact of maintenance therapy","volume":"103","author":"Jackson","year":"2019","journal-title":"Eur J Haematol"},{"key":"10.1016\/j.clml.2026.01.009_bib0016","article-title":"High-deductible health plans and out-of-pocket health care costs among younger patients with multiple myeloma","author":"Fiala","year":"2025","journal-title":"JCO Oncol Pract."},{"issue":"7","key":"10.1016\/j.clml.2026.01.009_bib0017","doi-asserted-by":"crossref","first-page":"1537","DOI":"10.1038\/leu.2014.34","article-title":"Racial disparities in the prevalence of monoclonal gammopathies: a population-based study of 12 482 persons from the National Health and Nutritional Examination Survey","volume":"28","author":"Landgren","year":"2014","journal-title":"Leukemia"},{"issue":"6","key":"10.1016\/j.clml.2026.01.009_bib0018","doi-asserted-by":"crossref","first-page":"1684","DOI":"10.1182\/bloodadvances.2021005482","article-title":"Analysis of racial and ethnic disparities in multiple myeloma US FDA drug approval trials","volume":"6","author":"Kanapuru","year":"2022","journal-title":"Blood Adv"},{"issue":"10","key":"10.1016\/j.clml.2026.01.009_bib0019","doi-asserted-by":"crossref","first-page":"1691","DOI":"10.1038\/leu.2009.134","article-title":"Patterns of monoclonal gammopathy of undetermined significance and multiple myeloma in various ethnic\/racial groups: support for genetic factors in pathogenesis","volume":"23","author":"Landgren","year":"2009","journal-title":"Leukemia"},{"issue":"11","key":"10.1016\/j.clml.2026.01.009_bib0020","doi-asserted-by":"crossref","first-page":"e420","DOI":"10.1016\/j.clml.2023.08.008","article-title":"Disparities in multiple myeloma treatment patterns in the United States: a systematic review","volume":"23","author":"Gasoyan","year":"2023","journal-title":"Clin Lymphoma Myeloma Leuk"},{"issue":"13","key":"10.1016\/j.clml.2026.01.009_bib0021","doi-asserted-by":"crossref","first-page":"1663","DOI":"10.1080\/14796694.2025.2498878","article-title":"Impact of social determinants of health on treatment patterns and outcomes in multiple myeloma","volume":"21","author":"Boytsov","year":"2025","journal-title":"Future Oncol"},{"key":"10.1016\/j.clml.2026.01.009_bib0022","unstructured":"Social Security Administration. Compassionate allowances: submit the name of a condition for consideration. Accessed: December 18, 2025. https:\/\/www.ssa.gov\/compassionateallowances\/submit_potential_cal.html?tl=0%2C1%2C2."}],"container-title":["Clinical Lymphoma Myeloma and Leukemia"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S215226502600011X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S215226502600011X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,5,6]],"date-time":"2026-05-06T11:37:10Z","timestamp":1778067430000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S215226502600011X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5]]},"references-count":22,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2026,5]]}},"alternative-id":["S215226502600011X"],"URL":"https:\/\/doi.org\/10.1016\/j.clml.2026.01.009","relation":{},"ISSN":["2152-2650"],"issn-type":[{"value":"2152-2650","type":"print"}],"subject":[],"published":{"date-parts":[[2026,5]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"A Call for Compassion: How You Can Help Get Multiple Myeloma Added to the Social Security Administration\u2019s Compassionate Allowances List","name":"articletitle","label":"Article Title"},{"value":"Clinical Lymphoma Myeloma and Leukemia","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.clml.2026.01.009","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"simple-article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}