{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,21]],"date-time":"2026-04-21T00:12:54Z","timestamp":1776730374541,"version":"3.51.2"},"reference-count":21,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2019,2,1]],"date-time":"2019-02-01T00:00:00Z","timestamp":1548979200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2019,2,1]],"date-time":"2019-02-01T00:00:00Z","timestamp":1548979200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2020,1,17]],"date-time":"2020-01-17T00:00:00Z","timestamp":1579219200000},"content-version":"am","delay-in-days":350,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","clinicalnutritionespen.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Clinical Nutrition ESPEN"],"published-print":{"date-parts":[[2019,2]]},"DOI":"10.1016\/j.clnesp.2018.11.009","type":"journal-article","created":{"date-parts":[[2018,12,4]],"date-time":"2018-12-04T01:44:43Z","timestamp":1543887883000},"page":"119-124","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":18,"special_numbering":"C","title":["How good is quality-of-life for children receiving home parenteral nutrition? \u2013 A pilot study"],"prefix":"10.1016","volume":"29","author":[{"given":"L\u00e9a Chantal","family":"Tran","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gill","family":"Lazonby","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Remy","family":"Morello","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dominique","family":"Pham","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Donna","family":"Ellis","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jenny","family":"Goldthorpe","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Natalia","family":"Iglesias","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julie","family":"Steele","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Veena","family":"Zamvar","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John William Lambert","family":"Puntis","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1849-2280","authenticated-orcid":false,"given":"Rakesh","family":"Vora","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"5","key":"10.1016\/j.clnesp.2018.11.009_bib1","first-page":"705","article-title":"Home parenteral nutrition in children: procedures, experiences and reflections","volume":"25","author":"Pedr\u00f3n-Giner","year":"2010","journal-title":"Nutr Hosp"},{"issue":"5","key":"10.1016\/j.clnesp.2018.11.009_bib2","article-title":"Parenteral nutrition and intestinal failure","volume":"9","author":"Bielawska","year":"2017","journal-title":"Nutr Int"},{"issue":"3","key":"10.1016\/j.clnesp.2018.11.009_bib3","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1079\/PNS2006502","article-title":"Managing children and adolescents on parenteral nutrition: challenges for the nutritional support team","volume":"65","author":"Johnson","year":"2006","journal-title":"Proc Nutr Soc"},{"issue":"3","key":"10.1016\/j.clnesp.2018.11.009_bib4","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1136\/adc.66.3.335","article-title":"Staff training: a key factor in reducing intravascular catheter sepsis","volume":"66","author":"Puntis","year":"1991","journal-title":"Arch Dis Child"},{"issue":"Suppl.\u00a02","key":"10.1016\/j.clnesp.2018.11.009_bib5","first-page":"S57","article-title":"Home parenteral nutrition in children","volume":"22","author":"Colomb","year":"2003","journal-title":"Clin Nutr Edinb Scotl"},{"issue":"2","key":"10.1016\/j.clnesp.2018.11.009_bib6","doi-asserted-by":"crossref","first-page":"186","DOI":"10.1136\/adc.72.2.186","article-title":"Home parenteral nutrition","volume":"72","author":"Puntis","year":"1995","journal-title":"Arch Dis Child"},{"issue":"6","key":"10.1016\/j.clnesp.2018.11.009_bib7","doi-asserted-by":"crossref","first-page":"793","DOI":"10.1016\/j.jpeds.2005.01.034","article-title":"Satisfaction in different life domains in children receiving home parenteral nutrition and their families","volume":"146","author":"Gottrand","year":"2005","journal-title":"J\u00a0Pediatr"},{"issue":"4","key":"10.1016\/j.clnesp.2018.11.009_bib8","first-page":"543","article-title":"A\u00a0review of the quality of life of adult patients treated with long-term parenteral nutrition","volume":"25","author":"Baxter","year":"2006","journal-title":"Clin Nutr Edinb Scotl"},{"issue":"2 Suppl 1","key":"10.1016\/j.clnesp.2018.11.009_bib9","doi-asserted-by":"crossref","first-page":"S52","DOI":"10.1053\/j.gastro.2005.09.065","article-title":"Home parenteral nutrition: survival, cost, and quality of life","volume":"130","author":"Howard","year":"2006","journal-title":"Gastroenterology"},{"issue":"2","key":"10.1016\/j.clnesp.2018.11.009_bib10","doi-asserted-by":"crossref","first-page":"131","DOI":"10.1177\/0148607109348612","article-title":"The clinical and psychometric validation of a questionnaire to assess the quality of life of adult patients treated with long-term parenteral nutrition","volume":"34","author":"Baxter","year":"2010","journal-title":"JPEN J Parenter Enteral Nutr"},{"issue":"3","key":"10.1016\/j.clnesp.2018.11.009_bib11","first-page":"246","article-title":"Psychological distress associated with home parenteral nutrition in Swedish children, adolescents, and their parents: preliminary results","volume":"37","author":"Engstr\u00f6m","year":"2003","journal-title":"J\u00a0Pediatr Gastroenterol Nutr"},{"issue":"4","key":"10.1016\/j.clnesp.2018.11.009_bib12","doi-asserted-by":"crossref","first-page":"431","DOI":"10.1097\/MPG.0b013e3181afd541","article-title":"A\u00a0qualitative study of the quality of life of children receiving intravenous nutrition at home","volume":"50","author":"Emedo","year":"2010","journal-title":"J\u00a0Pediatr Gastroenterol Nutr"},{"issue":"3","key":"10.1016\/j.clnesp.2018.11.009_bib13","first-page":"275","article-title":"The impact of home parenteral nutrition on daily life-a review","volume":"26","author":"Huisman-de Waal","year":"2007","journal-title":"Clin Nutr Edinb Scotl"},{"issue":"7\u20138","key":"10.1016\/j.clnesp.2018.11.009_bib14","first-page":"988","article-title":"Parenteral nutrition mixtures prepared at home by trained parents are as safe as pharmacy-made mixtures: a 3-y prospective study","volume":"29","author":"Friedman-Gruszczy\u0144ska","year":"2013","journal-title":"Nutr Burbank Los Angel Cty Calif"},{"issue":"Suppl 2","key":"10.1016\/j.clnesp.2018.11.009_bib15","first-page":"S1","volume":"41","author":"Koletzko","year":"2005","journal-title":"J\u00a0Pediatr Gastroenterol Nutr"},{"key":"10.1016\/j.clnesp.2018.11.009_bib16","unstructured":"Patients On Intravenous & Nasogastric Nutrition Therapy PINNT [Internet]. [cited 2018 Feb 4]. Available from: http:\/\/pinnt.com\/Home.aspx."},{"key":"10.1016\/j.clnesp.2018.11.009_bib17","unstructured":"True DC. Children\u2019s Charity in the UK [Internet]. Dreams Come True. [cited 2018 Feb 4]. Available from: https:\/\/www.dreamscometrue.uk.com\/1\/1\/childrens-charity-in-the-uk."},{"key":"10.1016\/j.clnesp.2018.11.009_bib18","unstructured":"Destination Florida home page [Internet]. Destination Florida home page. [cited 2018 Feb 4]. Available from: https:\/\/www.destinationflorida.org.uk."},{"issue":"1","key":"10.1016\/j.clnesp.2018.11.009_bib19","doi-asserted-by":"crossref","first-page":"145","DOI":"10.1097\/MPG.0000000000000896","article-title":"Travelling with children on home parenteral nutrition","volume":"62","author":"Mantegazza","year":"2016","journal-title":"J\u00a0Pediatr Gastroenterol Nutr"},{"issue":"5","key":"10.1016\/j.clnesp.2018.11.009_bib20","first-page":"445","article-title":"Quality of life and concerns in patients with short bowel syndrome","volume":"22","author":"Carlsson","year":"2003","journal-title":"Clin Nutr Edinb Scotl"},{"key":"10.1016\/j.clnesp.2018.11.009_bib21","doi-asserted-by":"crossref","first-page":"336","DOI":"10.1136\/archdischild-2013-304482","article-title":"Social circumstances and medical complications in children with intestinal failure","volume":"99","author":"Zamvar","year":"2014","journal-title":"Arch Dis Child"}],"container-title":["Clinical Nutrition ESPEN"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2405457718302559?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2405457718302559?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,11,7]],"date-time":"2025-11-07T06:55:33Z","timestamp":1762498533000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2405457718302559"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,2]]},"references-count":21,"alternative-id":["S2405457718302559"],"URL":"https:\/\/doi.org\/10.1016\/j.clnesp.2018.11.009","relation":{},"ISSN":["2405-4577"],"issn-type":[{"value":"2405-4577","type":"print"}],"subject":[],"published":{"date-parts":[[2019,2]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"How good is quality-of-life for children receiving home parenteral nutrition? \u2013 A pilot study","name":"articletitle","label":"Article Title"},{"value":"Clinical Nutrition ESPEN","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.clnesp.2018.11.009","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Crown Copyright \u00a9 2018 Published by Elsevier Ltd on behalf of European Society for Clinical Nutrition and Metabolism. All rights reserved.","name":"copyright","label":"Copyright"}]}}