{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,18]],"date-time":"2026-03-18T04:39:57Z","timestamp":1773808797153,"version":"3.50.1"},"reference-count":27,"publisher":"Elsevier BV","issue":"4","license":[{"start":{"date-parts":[[2018,10,1]],"date-time":"2018-10-01T00:00:00Z","timestamp":1538352000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"funder":[{"name":"International Federation of Spina Bifida and Hydrocephalus"}],"content-domain":{"domain":["clinicalkey.jp","clinicalkey.com","clinicalkey.es","clinicalkey.com.au","clinicalkey.fr","disabilityandhealthjnl.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Disability and Health Journal"],"published-print":{"date-parts":[[2018,10]]},"DOI":"10.1016\/j.dhjo.2018.03.008","type":"journal-article","created":{"date-parts":[[2018,4,3]],"date-time":"2018-04-03T15:11:51Z","timestamp":1522768311000},"page":"650-654","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":9,"title":["Health related quality of life in children with spina bifida in Uganda"],"prefix":"10.1016","volume":"11","author":[{"given":"Femke","family":"Bannink","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Richard","family":"Idro","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Geert","family":"Van Hove","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.dhjo.2018.03.008_bib1","first-page":"313","article-title":"Spina bifida and other neural tube defects","volume":"30","author":"Northrup","year":"2000","journal-title":"Curr Probl Pediatr"},{"key":"10.1016\/j.dhjo.2018.03.008_bib2","doi-asserted-by":"crossref","first-page":"310","DOI":"10.3171\/PED.2008.2.11.310","article-title":"Combined endoscopic third ventriculostomy and choroid plexus cauterization as primary treatment of hydrocephalus for infants with myelomeningocele: long-term results of a prospective intent-to-treat study in 115 East African infants","volume":"2","author":"Warf","year":"2008","journal-title":"J\u00a0Neurosurg Pediatr"},{"key":"10.1016\/j.dhjo.2018.03.008_bib3","series-title":"Spina Bifida - Fact Sheet","author":"IFSBH","year":"2014"},{"key":"10.1016\/j.dhjo.2018.03.008_bib4","doi-asserted-by":"crossref","first-page":"358","DOI":"10.3171\/ped.2005.102.4.0358","article-title":"Comparison of 1-year outcomes for the Chhabra and Codman-Hakim Micro Precision shunt systems in Uganda: a prospective study in 195 children","volume":"102","author":"Warf","year":"2005","journal-title":"J\u00a0Neurosurg"},{"key":"10.1016\/j.dhjo.2018.03.008_bib5","doi-asserted-by":"crossref","first-page":"127","DOI":"10.3171\/2010.11.PEDS10428","article-title":"Factors affecting survival of infants with myelomeningocele in southeastern Uganda","volume":"7","author":"Warf","year":"2011","journal-title":"J\u00a0Neurosurg Pediatr"},{"key":"10.1016\/j.dhjo.2018.03.008_bib6","series-title":"Demographic and Health Survey","author":"UBOS","year":"2016"},{"key":"10.1016\/j.dhjo.2018.03.008_bib7","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1007\/s12682-012-0126-x","article-title":"Interdisciplinary care for children with spina bifida in east and southern Africa","volume":"10","author":"Mertens","year":"2012","journal-title":"Journal of Medicine and the Person"},{"key":"10.1016\/j.dhjo.2018.03.008_bib8","first-page":"343","article-title":"How should we define health?","author":"Huber","year":"2011","journal-title":"BMJ Br Med J (Clin Res Ed)"},{"key":"10.1016\/j.dhjo.2018.03.008_bib9","series-title":"International Classification of Functioning, Disability and Health","author":"WHO","year":"2001"},{"key":"10.1016\/j.dhjo.2018.03.008_bib10","doi-asserted-by":"crossref","first-page":"1487","DOI":"10.1007\/s11136-010-9706-5","article-title":"Reliability, construct and criterion validity of the KIDSCREEN-10 score: a short measure for children and adolescents' well-being and health-related quality of life","volume":"19","author":"Ravens-Sieberer","year":"2010","journal-title":"Qual Life Res"},{"key":"10.1016\/j.dhjo.2018.03.008_bib11","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0040628","article-title":"Measuring health-related quality of life of HIV-positive adolescents in resource-constrained settings","volume":"7","author":"Masquillier","year":"2012","journal-title":"PLoS One"},{"key":"10.1016\/j.dhjo.2018.03.008_bib12","doi-asserted-by":"crossref","first-page":"249","DOI":"10.17583\/ijep.2016.2075","article-title":"Cognitive abilities of pre- and primary school children with spina bifida in Uganda","volume":"5","author":"Bannink","year":"2016","journal-title":"International Journal of Educational Psychology"},{"key":"10.1016\/j.dhjo.2018.03.008_bib13","series-title":"Vineland adaptive Behavior Scales : Interview Edition, Expanded Form Manual. Circle Pines, Minn","author":"Sparrow","year":"1984"},{"key":"10.1016\/j.dhjo.2018.03.008_bib14","series-title":"Parenting Stress Index, Professional Manual","author":"Abidin","year":"1995"},{"key":"10.1016\/j.dhjo.2018.03.008_bib15","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1002\/ddrr.96","article-title":"Quality of life in individuals with spina bifida: a research update","volume":"16","author":"Sawin","year":"2010","journal-title":"Dev Disabil Res Rev"},{"key":"10.1016\/j.dhjo.2018.03.008_bib16","series-title":"Chronic Poverty and Disability in Uganda","author":"Lwanga-Ntale","year":"2003"},{"key":"10.1016\/j.dhjo.2018.03.008_bib17","series-title":"Situational Analysis on the Rights of Children with Disabilities in Uganda","author":"UNICEF","year":"2014"},{"issue":"11","key":"10.1016\/j.dhjo.2018.03.008_bib18","doi-asserted-by":"crossref","first-page":"1057","DOI":"10.1136\/archdischild-2016-312307","article-title":"Quality of life among children with spina bifida in Uganda","volume":"102","author":"Sims-Williams","year":"2017","journal-title":"Arch Dis Child"},{"key":"10.1016\/j.dhjo.2018.03.008_bib19","doi-asserted-by":"crossref","first-page":"317","DOI":"10.1111\/j.1469-8749.2002.tb00818.x","article-title":"Disability and quality of life in spina bifida and hydrocephalus","volume":"44","author":"Cate","year":"2002","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.dhjo.2018.03.008_bib20","doi-asserted-by":"crossref","first-page":"143","DOI":"10.3171\/2009.9.PEDS09196","article-title":"Endoscopic third ventriculostomy in the treatment of childhood hydrocephalus in Uganda: report of a scoring system that predicts success","volume":"5","author":"Warf","year":"2010","journal-title":"J\u00a0Neurosurg Pediatr"},{"issue":"11","key":"10.1016\/j.dhjo.2018.03.008_bib21","doi-asserted-by":"crossref","first-page":"886","DOI":"10.1111\/j.1469-8749.2009.03293.x","article-title":"Lifestyle, participation, and health-related quality of life in adolescents and young adults with myelomeningocele","volume":"51","author":"Buffart","year":"2009","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.dhjo.2018.03.008_bib22","doi-asserted-by":"crossref","first-page":"1481","DOI":"10.1007\/s11136-006-0032-x","article-title":"Quality of life and continence in patients with spina bifida","volume":"15","author":"Lemelle","year":"2006","journal-title":"Qual Life Res"},{"key":"10.1016\/j.dhjo.2018.03.008_bib23","doi-asserted-by":"crossref","DOI":"10.4102\/ajod.v5i1.225","article-title":"Parental stress and support of parents of children with spina bifida in Uganda","volume":"5","author":"Bannink","year":"2016","journal-title":"African Journal of Disability"},{"key":"10.1016\/j.dhjo.2018.03.008_bib24","doi-asserted-by":"crossref","first-page":"7","DOI":"10.21825\/af.v30i1.4984","article-title":"Social inclusion, care and belonging of children with spina bifida: perspectives from Uganda","volume":"30","author":"Bannink","year":"2017","journal-title":"Afr Focus"},{"key":"10.1016\/j.dhjo.2018.03.008_bib25","doi-asserted-by":"crossref","first-page":"182","DOI":"10.1080\/1034912X.2014.998174","article-title":"Community knowledge, beliefs, attitudes, and practices towards children with spina bifida and hydrocephalus in Uganda","volume":"62","author":"Bannink","year":"2015","journal-title":"Int J Disabil Dev Educ"},{"key":"10.1016\/j.dhjo.2018.03.008_bib26","doi-asserted-by":"crossref","first-page":"993","DOI":"10.1016\/j.jpeds.2012.10.042","article-title":"Health outcomes among youths and adults with spina bifida","volume":"162","author":"Young","year":"2013","journal-title":"J\u00a0Pediatr"},{"key":"10.1016\/j.dhjo.2018.03.008_bib27","doi-asserted-by":"crossref","first-page":"144","DOI":"10.3171\/2014.10.PEDS1441","article-title":"Assessing health-related quality of life in children with spina bifida","volume":"15","author":"Rocque","year":"2015","journal-title":"J\u00a0Neurosurg Pediatr"}],"container-title":["Disability and Health Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1936657418300505?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1936657418300505?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2022,8,17]],"date-time":"2022-08-17T22:41:33Z","timestamp":1660776093000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1936657418300505"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,10]]},"references-count":27,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2018,10]]}},"alternative-id":["S1936657418300505"],"URL":"https:\/\/doi.org\/10.1016\/j.dhjo.2018.03.008","relation":{},"ISSN":["1936-6574"],"issn-type":[{"value":"1936-6574","type":"print"}],"subject":[],"published":{"date-parts":[[2018,10]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Health related quality of life in children with spina bifida in Uganda","name":"articletitle","label":"Article Title"},{"value":"Disability and Health Journal","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.dhjo.2018.03.008","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2018 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}