{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,8]],"date-time":"2025-11-08T10:33:34Z","timestamp":1762598014897,"version":"build-2065373602"},"reference-count":30,"publisher":"Elsevier BV","issue":"3","license":[{"start":{"date-parts":[[2025,7,1]],"date-time":"2025-07-01T00:00:00Z","timestamp":1751328000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,7,1]],"date-time":"2025-07-01T00:00:00Z","timestamp":1751328000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,7,28]],"date-time":"2024-07-28T00:00:00Z","timestamp":1722124800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000016","name":"U.S. Department of Health and Human Services","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000016","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000133","name":"Agency for Healthcare Research and Quality","doi-asserted-by":"publisher","award":["1R01HS028172-01"],"award-info":[{"award-number":["1R01HS028172-01"]}],"id":[{"id":"10.13039\/100000133","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Disability and Health Journal"],"published-print":{"date-parts":[[2025,7]]},"DOI":"10.1016\/j.dhjo.2024.101677","type":"journal-article","created":{"date-parts":[[2024,7,27]],"date-time":"2024-07-27T12:22:46Z","timestamp":1722082966000},"page":"101677","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"special_numbering":"S","title":["Experiences with care coordination and backup plans in home and community based services during the COVID-19 pandemic in Kansas"],"prefix":"10.1016","volume":"18","author":[{"given":"Tracey A.","family":"LaPierre","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7221-5674","authenticated-orcid":false,"given":"Carrie L.","family":"Wendel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jennifer","family":"Babitzke","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Darcy L.","family":"Sullivan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lora","family":"Swartzendruber","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Danielle M.","family":"Olds","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"4","key":"10.1016\/j.dhjo.2024.101677_bib1","doi-asserted-by":"crossref","first-page":"524","DOI":"10.1177\/07334648221143604","article-title":"\u201cAnything that benefits the workers should benefit the client\u201d: opportunities and constraints in self-directed care during the COVID-19 pandemic","volume":"42","author":"Wendel","year":"2023","journal-title":"J Appl Gerontol"},{"journal-title":"United States Department of Health and Human Services, Office of the Secretary for Planning Evaluation","article-title":"Understanding Medicaid home and community services: a primer","year":"2010","key":"10.1016\/j.dhjo.2024.101677_bib2"},{"key":"10.1016\/j.dhjo.2024.101677_bib3","series-title":"Personal Experiences with MaineCare Services from People Who Use Elder and Adults with Disabilities Waiver and Private Duty Nursing\/Personal Care Services","first-page":"1","author":"Fralich","year":"2012"},{"issue":"6","key":"10.1016\/j.dhjo.2024.101677_bib4","doi-asserted-by":"crossref","first-page":"432","DOI":"10.1352\/1934-9556-48.6.432","article-title":"Person-centered planning: analysis of research and effectiveness","volume":"48","author":"Claes","year":"2010","journal-title":"Intellect Dev Disabil"},{"key":"10.1016\/j.dhjo.2024.101677_bib5","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1016\/j.ridd.2016.06.015","article-title":"The effectiveness of person-centred planning for people with intellectual disabilities: a systematic review","volume":"57","author":"Ratti","year":"2016","journal-title":"Res Dev Disabil"},{"issue":"3","key":"10.1016\/j.dhjo.2024.101677_bib6","doi-asserted-by":"crossref","DOI":"10.1016\/j.dhjo.2023.101473","article-title":"Facilitators and barriers to person-centered planning from the perspectives of individuals receiving medicaid home and community-based services and care managers","volume":"16","author":"Caldwell","year":"2023","journal-title":"Disability and Health Journal"},{"issue":"1","key":"10.1016\/j.dhjo.2024.101677_bib7","first-page":"1","article-title":"What do we (still) need to know about long-term care management?","volume":"45","author":"Degenholtz","year":"2021","journal-title":"Generations: Journal of the American Society on Aging"},{"issue":"1","key":"10.1016\/j.dhjo.2024.101677_bib8","doi-asserted-by":"crossref","DOI":"10.1016\/j.dhjo.2020.100975","article-title":"Medicaid managed care in Iowa: experiences of older adults and people with disabilities","volume":"14","author":"Arora","year":"2021","journal-title":"Disability and Health Journal"},{"issue":"3","key":"10.1016\/j.dhjo.2024.101677_bib9","doi-asserted-by":"crossref","first-page":"968","DOI":"10.1353\/hpu.2019.0068","article-title":"Managed care experiences of medicaid enrollees with disabilities: a qualitative analysis of consumer survey responses","volume":"30","author":"Bowers","year":"2019","journal-title":"J Health Care Poor Underserved"},{"issue":"1","key":"10.1016\/j.dhjo.2024.101677_bib10","doi-asserted-by":"crossref","first-page":"130","DOI":"10.1016\/j.dhjo.2014.08.010","article-title":"Medicaid managed care: issues for beneficiaries with disabilities","volume":"8","author":"Hall","year":"2015","journal-title":"Disability and Health Journal"},{"year":"2023","series-title":"The State of America's Direct Support Wiorkforce Crisis 2023","key":"10.1016\/j.dhjo.2024.101677_bib11"},{"issue":"4","key":"10.1016\/j.dhjo.2024.101677_bib12","doi-asserted-by":"crossref","DOI":"10.1001\/jamahealthforum.2022.0371","article-title":"Tracking turnover among health care workers during the COVID-19 pandemic: a cross-sectional study","volume":"3","author":"Frogner","year":"2022","journal-title":"JAMA Health Forum"},{"key":"10.1016\/j.dhjo.2024.101677_bib13","series-title":"US Departmen T of Health and Human Services","first-page":"1","article-title":"COVID-19 intensifies home care workforce challenges","author":"Tyler","year":"2021"},{"key":"10.1016\/j.dhjo.2024.101677_bib14","article-title":"Experiences of individuals self-directing medicaid home and community-based services during COVID-19","volume":"101313","author":"Caldwell","year":"2022","journal-title":"Disability and Health Journal"},{"issue":"5","key":"10.1016\/j.dhjo.2024.101677_bib15","doi-asserted-by":"crossref","first-page":"405","DOI":"10.1370\/afm.2667","article-title":"COVID-19 personal protective equipment in the home: navigating the complexity of donning and doffing","volume":"19","author":"Kerley","year":"2021","journal-title":"Ann Fam Med"},{"issue":"1","key":"10.1016\/j.dhjo.2024.101677_bib16","doi-asserted-by":"crossref","first-page":"1055","DOI":"10.1186\/s12913-021-07076-x","article-title":"\u201cIt changed everything\u201d: the Safe Home Care qualitative study of the COVID-19 pandemic's impact on home care aides, clients, and managers","volume":"21","author":"Markkanen","year":"2021","journal-title":"BMC Health Serv Res"},{"issue":"3","key":"10.1016\/j.dhjo.2024.101677_bib17","doi-asserted-by":"crossref","DOI":"10.1016\/j.dhjo.2021.101103","article-title":"New obstacles and widening gaps: a qualitative study of the effects of the COVID-19 pandemic on U.S. adults with disabilities","volume":"14","author":"Epstein","year":"2021","journal-title":"Disability and Health Journal"},{"issue":"4","key":"10.1016\/j.dhjo.2024.101677_bib18","doi-asserted-by":"crossref","first-page":"1844","DOI":"10.1353\/hpu.2022.0141","article-title":"\u201cEverything is a mess. I'm just trying to survive it.\u201d: impacts of COVID-19 on personal assistance services","volume":"33","author":"Sage","year":"2022","journal-title":"J Health Care Poor Underserved"},{"year":"2020","series-title":"Appendix K: Emergency Preparedness and Response and COVID-19 Addendum","key":"10.1016\/j.dhjo.2024.101677_bib19"},{"key":"10.1016\/j.dhjo.2024.101677_bib20","first-page":"1","article-title":"Medicaid long-term services and support: access and quality problems in managed care demand improved oversight","year":"2020","journal-title":"Report to the Chairman, Committee on Energy and Commerce, House of Representatives GAO-21-49"},{"issue":"2","key":"10.1016\/j.dhjo.2024.101677_bib21","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1352\/1934-9556-55.2.84","article-title":"Implementation of medicaid managed long-term services and supports for adults with intellectual and\/or developmental disabilities in Kansas","volume":"55","author":"Williamson","year":"2017","journal-title":"Intellect Dev Disabil"},{"article-title":"Targeted case management\/care coordination","year":"2014","series-title":"Kansas Department for Aging and Disability Services (KDADS)","key":"10.1016\/j.dhjo.2024.101677_bib22"},{"journal-title":"KDADS","article-title":"Home and community based services (HCBS) programs","year":"2022","key":"10.1016\/j.dhjo.2024.101677_bib24"},{"issue":"6pt2","key":"10.1016\/j.dhjo.2024.101677_bib25","doi-asserted-by":"crossref","first-page":"2134","DOI":"10.1111\/1475-6773.12117","article-title":"Achieving integration in mixed methods designs\u2014principles and practices","volume":"48","author":"Fetters","year":"2013","journal-title":"Health Serv Res"},{"issue":"2","key":"10.1016\/j.dhjo.2024.101677_bib26","doi-asserted-by":"crossref","first-page":"287","DOI":"10.1093\/poq\/nfm006","article-title":"Research synthesis: the practice of cognitive interviewing","volume":"71","author":"Beatty","year":"2007","journal-title":"Publ Opin Q"},{"issue":"2","key":"10.1016\/j.dhjo.2024.101677_bib27","doi-asserted-by":"crossref","first-page":"116","DOI":"10.1177\/1525822X19838237","article-title":"A team-based approach to open coding: considerations for creating intercoder consensus","volume":"31","author":"Cascio","year":"2019","journal-title":"Field Methods"},{"year":"2023","series-title":"Fourth Quarter & Annual Report to CMS Regarding Operation of 1115 Waiver Demonstration Program- Quater Ending 12.31.2022- Year Ending 12.31.2022","key":"10.1016\/j.dhjo.2024.101677_bib28"},{"key":"10.1016\/j.dhjo.2024.101677_bib30","series-title":"Bridging the Gaps: State and Local Strategies for Ensuring Backup Personal Care Services","first-page":"1","author":"Seavey","year":"2006"},{"year":"2013","series-title":"KanCare Coordination Summits","key":"10.1016\/j.dhjo.2024.101677_bib31"},{"key":"10.1016\/j.dhjo.2024.101677_bib32","first-page":"2948","volume":"79","year":"2014","journal-title":"Register"}],"container-title":["Disability and Health Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S193665742400116X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S193665742400116X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,11,8]],"date-time":"2025-11-08T10:30:23Z","timestamp":1762597823000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S193665742400116X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,7]]},"references-count":30,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2025,7]]}},"alternative-id":["S193665742400116X"],"URL":"https:\/\/doi.org\/10.1016\/j.dhjo.2024.101677","relation":{},"ISSN":["1936-6574"],"issn-type":[{"type":"print","value":"1936-6574"}],"subject":[],"published":{"date-parts":[[2025,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Experiences with care coordination and backup plans in home and community based services during the COVID-19 pandemic in Kansas","name":"articletitle","label":"Article Title"},{"value":"Disability and Health Journal","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.dhjo.2024.101677","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 The Authors. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}],"article-number":"101677"}}