{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T08:05:59Z","timestamp":1789632359004,"version":"build-2803163510"},"reference-count":34,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T00:00:00Z","timestamp":1784592000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000065","name":"National Institute of Neurological Disorders and Stroke","doi-asserted-by":"publisher","award":["5R01NS129041"],"award-info":[{"award-number":["5R01NS129041"]}],"id":[{"id":"10.13039\/100000065","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy & Behavior Reports"],"published-print":{"date-parts":[[2026,9]]},"DOI":"10.1016\/j.ebr.2026.100889","type":"journal-article","created":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T16:03:35Z","timestamp":1784736215000},"page":"100889","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["Lived experiences that influence the quality of life among patients with epilepsy at Mulago National Referral Hospital"],"prefix":"10.1016","volume":"35","author":[{"given":"Humphrey","family":"Atwijukiire","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Juliana","family":"Namutundu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Lubogo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark","family":"Kaddumukasa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martha","family":"Sajatovic","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"2","key":"10.1016\/j.ebr.2026.100889_bb0005","doi-asserted-by":"crossref","first-page":"185","DOI":"10.1159\/000503831","article-title":"The epidemiology of epilepsy","volume":"54","author":"Beghi","year":"2020","journal-title":"Neuroepidemiology"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0010","doi-asserted-by":"crossref","first-page":"28","DOI":"10.1186\/s12962-025-00635-7","article-title":"Global, regional, and national burden of epilepsy, 1990\u20132021: a systematic analysis for the global burden of disease study in 2021","volume":"23","author":"Sun","year":"2025","journal-title":"Cost Eff Resour Alloc"},{"issue":"jan20 2","key":"10.1016\/j.ebr.2026.100889_bb0015","doi-asserted-by":"crossref","first-page":"h176","DOI":"10.1136\/bmj.h176","article-title":"Managing patients with multimorbidity in primary care","volume":"350","author":"Wallace","year":"2015","journal-title":"BMJ"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0020","doi-asserted-by":"crossref","first-page":"74","DOI":"10.1186\/s12916-019-1305-x","article-title":"Relationship between multimorbidity, demographic factors and mortality: findings from the UK biobank cohort","volume":"17","author":"Jani","year":"2019","journal-title":"BMC Med"},{"key":"10.1016\/j.ebr.2026.100889_bb0025","doi-asserted-by":"crossref","first-page":"136","DOI":"10.1016\/j.seizure.2023.03.021","article-title":"Multimorbidity in people with epilepsy","volume":"107","author":"Gaitatzis","year":"2023","journal-title":"Seizure"},{"key":"10.1016\/j.ebr.2026.100889_bb0030","doi-asserted-by":"crossref","DOI":"10.7860\/JCDR\/2016\/23151.8979","article-title":"A cross-sectional study of quality of life among subjects with epilepsy attending a tertiary care hospital","author":"Anu","year":"2016","journal-title":"J Clin Diagn Res"},{"issue":"3","key":"10.1016\/j.ebr.2026.100889_bb0035","doi-asserted-by":"crossref","DOI":"10.3390\/brainsci14030241","article-title":"Determinants of the quality of life in patients with drug-resistant temporal lobe epilepsy: a comparison of the results before and after surgery","volume":"14","author":"Bala","year":"2024","journal-title":"Brain Sci"},{"key":"10.1016\/j.ebr.2026.100889_bb0040","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1155\/2020\/8714768","article-title":"Assessment of quality of life of epileptic patients in Ethiopia","volume":"2020","author":"Muche","year":"2020","journal-title":"International Journal of Chronic Diseases"},{"issue":"6","key":"10.1016\/j.ebr.2026.100889_bb0045","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1007\/s11910-019-0947-6","article-title":"Global Health and epilepsy: update and future directions","volume":"19","author":"Spiciarich","year":"2019","journal-title":"Curr Neurol Neurosci Rep"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0050","doi-asserted-by":"crossref","first-page":"1529","DOI":"10.1186\/s12889-024-19018-3","article-title":"Quality of life and associated factors among people with epilepsy in Ethiopia: a systematic review and meta-analysis","volume":"24","author":"Andualem","year":"2024","journal-title":"BMC Public Health"},{"key":"10.1016\/j.ebr.2026.100889_bb0055","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2020.107314","article-title":"Stakeholder views of the practical and cultural barriers to epilepsy care in Uganda","volume":"114","author":"Sanchez","year":"2021","journal-title":"Epilepsy Behav"},{"issue":"7","key":"10.1016\/j.ebr.2026.100889_bb0060","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0274373","article-title":"Lived experiences of caregivers of persons with epilepsy attending an epilepsy clinic at a tertiary hospital, eastern Uganda: a phenomenological approach","volume":"18","author":"Okiah","year":"2023","journal-title":"PLoS One"},{"key":"10.1016\/j.ebr.2026.100889_bb0065","doi-asserted-by":"crossref","DOI":"10.1016\/j.jns.2023.121564","article-title":"Health systems capacity for epilepsy care in Uganda: a survey of health facilities in Western Uganda","volume":"455","author":"Njeru","year":"2023","journal-title":"J Neurol Sci"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0070","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1186\/s12888-016-1008-1","article-title":"Pathways and access to mental health care services by persons living with severe mental disorders and epilepsy in Uganda, Liberia and Nepal: a qualitative study","volume":"16","author":"Kisa","year":"2016","journal-title":"BMC Psychiatry"},{"issue":"s6","key":"10.1016\/j.ebr.2026.100889_bb0075","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1046\/j.1528-1157.43.s.6.13.x","article-title":"The treatment gap","volume":"43","author":"Kale","year":"2002","journal-title":"Epilepsia"},{"key":"10.1016\/j.ebr.2026.100889_bb0080","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1016\/j.yebeh.2019.04.033","article-title":"Seizure severity is associated with poor quality of life in people living with epilepsy (PLWE) in Uganda: a cross-sectional study","volume":"96","author":"Kaddumukasa","year":"2019","journal-title":"Epilepsy Behav"},{"issue":"5","key":"10.1016\/j.ebr.2026.100889_bb0085","doi-asserted-by":"crossref","first-page":"633","DOI":"10.1177\/0883073813482974","article-title":"Children with epilepsy in Africa: recommendations from the international child neurology association\/African child neurology association workshop","volume":"28","author":"Wilmshurst","year":"2013","journal-title":"J Child Neurol"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0090","doi-asserted-by":"crossref","first-page":"252","DOI":"10.4314\/ahs.v22i1.32","article-title":"A mixed-methods, cross-sectional study of perceived stigma among Ugandans with epilepsy","volume":"22","author":"M. Kaddumukasakaddumark@yahoo.co.uk","year":"2022","journal-title":"Afr Health Sci"},{"key":"10.1016\/j.ebr.2026.100889_bb0095","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2021.114523","article-title":"Sample sizes for saturation in qualitative research: a systematic review of empirical tests","volume":"292","author":"Hennink","year":"2022","journal-title":"Soc Sci Med"},{"issue":"4","key":"10.1016\/j.ebr.2026.100889_bb0100","doi-asserted-by":"crossref","first-page":"438","DOI":"10.1016\/0147-1767(85)90062-8","article-title":"Naturalistic inquiry","volume":"9","author":"Lincoln","year":"1985","journal-title":"Int J Intercult Relat"},{"issue":"6","key":"10.1016\/j.ebr.2026.100889_bb0105","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"Int J Qual Health Care"},{"key":"10.1016\/j.ebr.2026.100889_bb0110","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2020.106900","article-title":"Experience of epilepsy: coping strategies and health outcomes among Ghanaians living with epilepsy","volume":"104","author":"Deegbe","year":"2020","journal-title":"Epilepsy Behav"},{"issue":"5","key":"10.1016\/j.ebr.2026.100889_bb0115","doi-asserted-by":"crossref","first-page":"1057","DOI":"10.1111\/epi.16856","article-title":"The road to a World Health Organization global action plan on epilepsy and other neurological disorders","volume":"62","author":"Guekht","year":"2021","journal-title":"Epilepsia"},{"key":"10.1016\/j.ebr.2026.100889_bb0120","doi-asserted-by":"crossref","first-page":"101","DOI":"10.1016\/j.yebeh.2018.07.025","article-title":"Experiences and perspectives of stigmatization and discrimination against people with epilepsy in Accra, Ghana","volume":"87","author":"Dako-Gyeke","year":"2018","journal-title":"Epilepsy Behav"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0125","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0278936","article-title":"Lived experience of young people with epilepsy in Bahir Dar city government hospitals, Ethiopia, a qualitative interview study","volume":"18","author":"Ayele","year":"2023","journal-title":"PLoS One"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0130","doi-asserted-by":"crossref","first-page":"80","DOI":"10.1002\/epi4.12374","article-title":"Knowledge and attitudes about sudden death in epilepsy among people living with epilepsy and their healthcare providers in Mulago hospital, Uganda: a cross-sectional study","volume":"5","author":"Kaddumukasa","year":"2020","journal-title":"Epilepsia Open"},{"key":"10.1016\/j.ebr.2026.100889_bb0135","article-title":"Perceived stigma, discrimination and psychological problems among patients with epilepsy","volume":"13","author":"Malik","year":"2022","journal-title":"Front Psychol"},{"issue":"2","key":"10.1016\/j.ebr.2026.100889_bb0140","doi-asserted-by":"crossref","first-page":"374","DOI":"10.3329\/bjms.v20i2.51551","article-title":"Perspective of people with epilepsy about epilepsy","volume":"20","author":"Reza","year":"2021","journal-title":"Bangladesh J Med Sci"},{"key":"10.1016\/j.ebr.2026.100889_bb0145","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2020.107729","article-title":"Insights into the real-life experiences of people living with epilepsy: a qualitative netnographic study","volume":"116","author":"Fazekas","year":"2021","journal-title":"Epilepsy Behav"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0150","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2023-079165","article-title":"Health-related quality of life in epilepsy and its associated factors among adult patients with epilepsy attending Mizan Tepi university teaching hospital, Southwest Ethiopia: a cross-sectional study","volume":"14","author":"Yesuf","year":"2024","journal-title":"BMJ Open"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0155","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1186\/s41687-021-00292-3","article-title":"Epilepsy and quality of life in Iranian epileptic patients","volume":"5","author":"Honari","year":"2021","journal-title":"J Patient Rep Outcomes"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0160","doi-asserted-by":"crossref","DOI":"10.1186\/s42466-023-00265-5","article-title":"Determinants of quality of life in adults with epilepsy: a multicenter, cross-sectional study from Germany","volume":"5","author":"Siebenbrodt","year":"2023","journal-title":"Neurol Res Pract"},{"issue":"1","key":"10.1016\/j.ebr.2026.100889_bb0165","doi-asserted-by":"crossref","first-page":"679","DOI":"10.1186\/s13104-019-4720-3","article-title":"Health-related quality of life and associated factors among epileptic patients on treatment follow up at public hospitals of Wollega zones, Ethiopia, 2018","volume":"12","author":"Abadiga","year":"2019","journal-title":"BMC Res Notes"},{"key":"10.1016\/j.ebr.2026.100889_bb0170","doi-asserted-by":"crossref","first-page":"165","DOI":"10.1016\/j.yebeh.2016.04.003","article-title":"Epilepsy misconceptions and stigma reduction: current status in Western countries","volume":"60","author":"Herrmann","year":"2016","journal-title":"Epilepsy Behav"}],"container-title":["Epilepsy & Behavior Reports"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2589986426000432?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2589986426000432?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T07:47:35Z","timestamp":1789631255000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2589986426000432"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9]]},"references-count":34,"alternative-id":["S2589986426000432"],"URL":"https:\/\/doi.org\/10.1016\/j.ebr.2026.100889","relation":{},"ISSN":["2589-9864"],"issn-type":[{"value":"2589-9864","type":"print"}],"subject":[],"published":{"date-parts":[[2026,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Lived experiences that influence the quality of life among patients with epilepsy at Mulago National Referral Hospital","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior Reports","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ebr.2026.100889","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 Published by Elsevier Inc.","name":"copyright","label":"Copyright"}],"article-number":"100889"}}