{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,9]],"date-time":"2026-11-09T23:35:39Z","timestamp":1794267339256,"version":"4.9.0"},"reference-count":36,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,5,21]],"date-time":"2025-05-21T00:00:00Z","timestamp":1747785600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["thelancet.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["eClinicalMedicine"],"published-print":{"date-parts":[[2025,6]]},"DOI":"10.1016\/j.eclinm.2025.103287","type":"journal-article","created":{"date-parts":[[2025,5,28]],"date-time":"2025-05-28T10:04:16Z","timestamp":1748426656000},"page":"103287","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":36,"special_numbering":"C","title":["Polycystic ovary syndrome perspectives from patients and health professionals on clinical features, current name, and renaming: a longitudinal international online survey"],"prefix":"10.1016","volume":"84","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7609-577X","authenticated-orcid":false,"given":"Helena J.","family":"Teede","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa J.","family":"Moran","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Morman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melanie","family":"Gibson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anuja","family":"Dokras","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lorna","family":"Berry","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joop S.E.","family":"Laven","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anju","family":"Joham","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Terhi T.","family":"Piltonen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7340-1356","authenticated-orcid":false,"given":"Michael F.","family":"Costello","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert J.","family":"Norman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5955-1283","authenticated-orcid":false,"given":"Mahnaz","family":"Bahri Khomami","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.eclinm.2025.103287_bib1","doi-asserted-by":"crossref","first-page":"767","DOI":"10.1016\/j.fertnstert.2023.07.025","article-title":"Recommendations from the 2023 international evidence-based guideline for the assessment and management of polycystic ovary syndrome\u2020","volume":"120","author":"Teede","year":"2023","journal-title":"Fertil Steril"},{"key":"10.1016\/j.eclinm.2025.103287_bib2","doi-asserted-by":"crossref","first-page":"389","DOI":"10.5694\/mja2.52432","article-title":"Summary of the 2023 international evidence-based guideline for the assessment and management of polycystic ovary syndrome: an Australian perspective","volume":"221","author":"Teede","year":"2024","journal-title":"Med J Aust"},{"issue":"1","key":"10.1016\/j.eclinm.2025.103287_bib3","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1038\/s41572-024-00511-3","article-title":"Polycystic ovary syndrome","volume":"10","author":"Stener-Victorin","year":"2024","journal-title":"Nat Rev Dis Primers"},{"issue":"1","key":"10.1016\/j.eclinm.2025.103287_bib4","doi-asserted-by":"crossref","DOI":"10.1186\/s12916-020-01516-x","article-title":"Adolescent polycystic ovary syndrome according to the international evidence-based guideline","volume":"18","author":"Pe\u00f1a","year":"2020","journal-title":"BMC Med"},{"issue":"9","key":"10.1016\/j.eclinm.2025.103287_bib5","doi-asserted-by":"crossref","first-page":"668","DOI":"10.1016\/S2213-8587(22)00163-2","article-title":"Polycystic ovary syndrome","volume":"10","author":"Joham","year":"2022","journal-title":"Lancet Diabetes Endocrinol"},{"issue":"16","key":"10.1016\/j.eclinm.2025.103287_bib6","doi-asserted-by":"crossref","DOI":"10.1161\/JAHA.123.033572","article-title":"2023 International evidence-based polycystic ovary syndrome guideline update: insights from a systematic review and meta-analysis on elevated clinical cardiovascular disease in polycystic ovary syndrome","volume":"13","author":"Tay","year":"2024","journal-title":"J Am Heart Assoc"},{"issue":"1","key":"10.1016\/j.eclinm.2025.103287_bib7","doi-asserted-by":"crossref","first-page":"5592","DOI":"10.1038\/s41467-024-49752-6","article-title":"Systematic review and meta-analysis of birth outcomes in women with polycystic ovary syndrome","volume":"15","author":"Bahri Khomami","year":"2024","journal-title":"Nat Commun"},{"issue":"6","key":"10.1016\/j.eclinm.2025.103287_bib8","doi-asserted-by":"crossref","first-page":"409","DOI":"10.1093\/ejendo\/lvae057","article-title":"Polycystic ovary syndrome presents as a multimorbid condition by age 50: birth cohort linkage to national register data","volume":"190","author":"Kujanp\u00e4\u00e4","year":"2024","journal-title":"Eur J Endocrinol"},{"issue":"5","key":"10.1016\/j.eclinm.2025.103287_bib9","doi-asserted-by":"crossref","first-page":"627","DOI":"10.1530\/EJE-14-1108","article-title":"Morbidity and medicine prescriptions in a nationwide Danish population of patients diagnosed with polycystic ovary syndrome","volume":"172","author":"Glintborg","year":"2015","journal-title":"Eur J Endocrinol"},{"issue":"3","key":"10.1016\/j.eclinm.2025.103287_bib10","doi-asserted-by":"crossref","first-page":"911","DOI":"10.1210\/jc.2014-3886","article-title":"The potential implications of a PCOS diagnosis on a woman's long-term health using data linkage","volume":"100","author":"Hart","year":"2015","journal-title":"J Clin Endocrinol Metab"},{"issue":"2","key":"10.1016\/j.eclinm.2025.103287_bib11","doi-asserted-by":"crossref","first-page":"575","DOI":"10.1210\/clinem\/dgab613","article-title":"Health care-related economic burden of polycystic ovary syndrome in the United States: pregnancy-related and long-term health consequences","volume":"107","author":"Riestenberg","year":"2022","journal-title":"J Clin Endocrinol Metab"},{"key":"10.1016\/j.eclinm.2025.103287_bib12","doi-asserted-by":"crossref","DOI":"10.7554\/eLife.85338","article-title":"Direct economic burden of mental health disorders associated with polycystic ovary syndrome: systematic review and meta-analysis","volume":"12","author":"Yadav","year":"2023","journal-title":"Elife"},{"issue":"10","key":"10.1016\/j.eclinm.2025.103287_bib13","first-page":"752","article-title":"Polycystic ovary syndrome - an update","volume":"41","author":"Boyle","year":"2012","journal-title":"Aust Fam Physician"},{"issue":"1","key":"10.1016\/j.eclinm.2025.103287_bib14","doi-asserted-by":"crossref","first-page":"E107","DOI":"10.1210\/jc.2013-2978","article-title":"Polycystic ovary syndrome: perceptions and attitudes of women and primary health care physicians on features of PCOS and renaming the syndrome","volume":"99","author":"Teede","year":"2014","journal-title":"J Clin Endocrinol Metab"},{"issue":"2","key":"10.1016\/j.eclinm.2025.103287_bib15","first-page":"604","article-title":"Delayed diagnosis and a lack of information associated with dissatisfaction in women with polycystic ovary syndrome","volume":"102","author":"Gibson-Helm","year":"2017","journal-title":"J Clin Endocrinol Metab"},{"issue":"6","key":"10.1016\/j.eclinm.2025.103287_bib16","doi-asserted-by":"crossref","first-page":"1380","DOI":"10.1016\/j.fertnstert.2017.04.011","article-title":"Gaps in knowledge among physicians regarding diagnostic criteria and management of polycystic ovary syndrome","volume":"107","author":"Dokras","year":"2017","journal-title":"Fertil Steril"},{"key":"10.1016\/j.eclinm.2025.103287_bib17","series-title":"Evidence-based methodology workshop on polycystic ovary syndrome (PCOS)","year":"2025"},{"issue":"6","key":"10.1016\/j.eclinm.2025.103287_bib18","doi-asserted-by":"crossref","first-page":"1158","DOI":"10.1016\/S0015-0282(16)57589-X","article-title":"A disorder without identity: \"HCA,\" \"PCO,\" \"PCOD,\" \"PCOS,\" \"SLS\". what are we to call it?!","volume":"63","author":"Lobo","year":"1995","journal-title":"Fertil Steril"},{"issue":"5","key":"10.1016\/j.eclinm.2025.103287_bib19","doi-asserted-by":"crossref","first-page":"1292","DOI":"10.1016\/j.fertnstert.2006.06.048","article-title":"Estrogenic ovulatory dysfunction or functional female hyperandrogenism: an argument to discard the term polycystic ovary syndrome","volume":"86","author":"Behera","year":"2006","journal-title":"Fertil Steril"},{"issue":"11","key":"10.1016\/j.eclinm.2025.103287_bib20","doi-asserted-by":"crossref","first-page":"4325","DOI":"10.1210\/jc.2013-2040","article-title":"Renaming PCOS--a two-state solution","volume":"98","author":"Dunaif","year":"2013","journal-title":"J Clin Endocrinol Metab"},{"issue":"4","key":"10.1016\/j.eclinm.2025.103287_bib21","doi-asserted-by":"crossref","first-page":"1142","DOI":"10.1210\/jc.2013-3996","article-title":"Polycystic ovary syndrome: what's in a name?","volume":"99","author":"Azziz","year":"2014","journal-title":"J Clin Endocrinol Metab"},{"issue":"2","key":"10.1016\/j.eclinm.2025.103287_bib22","doi-asserted-by":"crossref","first-page":"249","DOI":"10.1016\/j.fertnstert.2023.03.028","article-title":"\"Tis but thy name that is my enemy\"-the problem with the naming of polycystic ovary syndrome","volume":"120","author":"Norman","year":"2023","journal-title":"Fertil Steril"},{"issue":"22","key":"10.1016\/j.eclinm.2025.103287_bib23","doi-asserted-by":"crossref","DOI":"10.3390\/ijerph192215202","article-title":"Using a modified delphi approach and nominal group technique for organisational priority setting of evidence-based interventions that advance women in healthcare leadership","volume":"19","author":"Mousa","year":"2022","journal-title":"Int J Environ Res Public Health"},{"issue":"1","key":"10.1016\/j.eclinm.2025.103287_bib24","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1016\/j.im.2003.11.002","article-title":"The Delphi method as a research tool: an example, design considerations and applications","volume":"42","author":"Okoli","year":"2004","journal-title":"Inf Manag"},{"issue":"2","key":"10.1016\/j.eclinm.2025.103287_bib25","doi-asserted-by":"crossref","first-page":"188","DOI":"10.1111\/j.1440-172X.2012.02017.x","article-title":"Nominal group technique: an effective method for obtaining group consensus","volume":"18","author":"Harvey","year":"2012","journal-title":"Int J Nurs Pract"},{"issue":"11","key":"10.1016\/j.eclinm.2025.103287_bib26","doi-asserted-by":"crossref","first-page":"494","DOI":"10.5694\/mja2.50409","article-title":"Australian Health Research Alliance: national priorities in data-driven health care improvement","volume":"211","author":"Teede","year":"2019","journal-title":"Med J Aust"},{"issue":"5","key":"10.1016\/j.eclinm.2025.103287_bib27","doi-asserted-by":"crossref","first-page":"625","DOI":"10.1007\/s10459-010-9222-y","article-title":"Likert scales, levels of measurement and the \"laws\" of statistics","volume":"15","author":"Norman","year":"2010","journal-title":"Adv Health Sci Educ Theory Pract"},{"issue":"3","key":"10.1016\/j.eclinm.2025.103287_bib28","first-page":"312","article-title":"Lack of adequate counseling about pregnancy complications in patients with polycystic ovary syndrome: a cross-sectional survey study","volume":"5","author":"Kim","year":"2024","journal-title":"F S Rep"},{"issue":"6","key":"10.1016\/j.eclinm.2025.103287_bib31","doi-asserted-by":"crossref","first-page":"1510","DOI":"10.1016\/j.fertnstert.2016.07.1121","article-title":"Phenotypes and body mass in women with polycystic ovary syndrome identified in referral versus unselected populations: systematic review and meta-analysis","volume":"106","author":"Lizneva","year":"2016","journal-title":"Fertil Steril"},{"key":"10.1016\/j.eclinm.2025.103287_bib32","series-title":"Final statement on \"diagnosing gestational diabetes\"","year":"2013"},{"issue":"12","key":"10.1016\/j.eclinm.2025.103287_bib33","doi-asserted-by":"crossref","first-page":"4421","DOI":"10.1210\/jc.2017-01415","article-title":"Perspectives on polycystic ovary syndrome: is polycystic ovary syndrome research underfunded?","volume":"102","author":"Brakta","year":"2017","journal-title":"J Clin Endocrinol Metab"},{"issue":"n\/a","key":"10.1016\/j.eclinm.2025.103287_bib34","article-title":"Polycystic ovary syndrome as a key risk factor in pregnancy outcomes: a midwifery perspective from the international guideline","volume":"n\/a","author":"Bahri Khomami","year":"2024","journal-title":"J Midwifery Womens Health"},{"issue":"10","key":"10.1016\/j.eclinm.2025.103287_bib35","doi-asserted-by":"crossref","first-page":"854","DOI":"10.1080\/09513590.2020.1746761","article-title":"Knowledge of PCOS in physicians-in-training: identifying gaps and educational opportunities","volume":"36","author":"Chemerinski","year":"2020","journal-title":"Gynecol Endocrinol"},{"issue":"3","key":"10.1016\/j.eclinm.2025.103287_bib36","doi-asserted-by":"crossref","DOI":"10.1111\/hex.14096","article-title":"Overarching priorities for health and care research in the United Kingdom: a coproduced synthesis of James Lind Alliance \u2018top 10s\u2019","volume":"27","author":"Crocker","year":"2024","journal-title":"Health Expect"},{"issue":"3","key":"10.1016\/j.eclinm.2025.103287_bib37","first-page":"89","article-title":"The heated debate over NAFLD renaming: an ongoing saga","volume":"4","author":"Yilmaz","year":"2023","journal-title":"Hepatol Forum"},{"issue":"11","key":"10.1016\/j.eclinm.2025.103287_bib38","doi-asserted-by":"crossref","first-page":"1281","DOI":"10.1507\/endocrj.EJ20220831","article-title":"Changing the name of diabetes insipidus: a position statement of the working group for renaming diabetes insipidus","volume":"69","author":"Arima","year":"2022","journal-title":"Endocr J"}],"container-title":["eClinicalMedicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2589537025002196?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2589537025002196?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T20:53:17Z","timestamp":1760215997000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2589537025002196"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6]]},"references-count":36,"alternative-id":["S2589537025002196"],"URL":"https:\/\/doi.org\/10.1016\/j.eclinm.2025.103287","relation":{},"ISSN":["2589-5370"],"issn-type":[{"value":"2589-5370","type":"print"}],"subject":[],"published":{"date-parts":[[2025,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Polycystic ovary syndrome perspectives from patients and health professionals on clinical features, current name, and renaming: a longitudinal international online survey","name":"articletitle","label":"Article Title"},{"value":"eClinicalMedicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.eclinm.2025.103287","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"103287"}}