{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T14:50:36Z","timestamp":1790952636763,"version":"4.1.0"},"reference-count":39,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2022,3,1]],"date-time":"2022-03-01T00:00:00Z","timestamp":1646092800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2022,1,4]],"date-time":"2022-01-04T00:00:00Z","timestamp":1641254400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100002839","name":"Charit\u00e9 \u2013 Universit\u00e4tsmedizin Berlin","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100002839","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.jp","clinicalkey.com","clinicalkey.es","clinicalkey.com.au","clinicalkey.fr","ejcancer.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["European Journal of Cancer"],"published-print":{"date-parts":[[2022,3]]},"DOI":"10.1016\/j.ejca.2021.12.020","type":"journal-article","created":{"date-parts":[[2022,1,20]],"date-time":"2022-01-20T22:34:09Z","timestamp":1642718049000},"page":"128-139","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":29,"special_numbering":"C","title":["Real-world reference scores for EORTC QLQ-C30 and EORTC QLQ-BR23 in early breast cancer patients"],"prefix":"10.1016","volume":"163","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7587-7550","authenticated-orcid":false,"given":"Maria M.","family":"Karsten","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8130-6524","authenticated-orcid":false,"given":"Robert","family":"Roehle","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Albers","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9942-4182","authenticated-orcid":false,"given":"Therese","family":"Pross","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1612-8052","authenticated-orcid":false,"given":"Anna M.","family":"Hage","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karoline","family":"Weiler","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Felix","family":"Fischer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthias","family":"Rose","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6587-505X","authenticated-orcid":false,"given":"Friedrich","family":"K\u00fchn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7969-250X","authenticated-orcid":false,"given":"Jens-Uwe","family":"Blohmer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.ejca.2021.12.020_bib1","doi-asserted-by":"crossref","first-page":"557","DOI":"10.1200\/JCO.2015.63.0830","article-title":"Symptom monitoring with patient-reported outcomes during routine cancer treatment: a randomized controlled trial","volume":"34","author":"Basch","year":"2016","journal-title":"J Clin Oncol: Off J Am Soc Clin Oncol"},{"key":"10.1016\/j.ejca.2021.12.020_bib2","doi-asserted-by":"crossref","first-page":"306","DOI":"10.1001\/jama.2018.18085","article-title":"Two-year survival comparing web-based symptom monitoring vs routine surveillance following treatment for lung cancer","volume":"321","author":"Denis","year":"2019","journal-title":"JAMA"},{"key":"10.1016\/j.ejca.2021.12.020_bib3","doi-asserted-by":"crossref","first-page":"211","DOI":"10.1186\/1472-6963-13-211","article-title":"A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting","volume":"13","author":"Chen","year":"2013","journal-title":"BMC Health Serv Res"},{"key":"10.1016\/j.ejca.2021.12.020_bib4","doi-asserted-by":"crossref","first-page":"814","DOI":"10.1001\/jama.2013.879","article-title":"Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension","volume":"309","author":"Calvert","year":"2013","journal-title":"JAMA"},{"key":"10.1016\/j.ejca.2021.12.020_bib5","doi-asserted-by":"crossref","first-page":"947","DOI":"10.1200\/CCI.20.00081","article-title":"Clinical utility and user perceptions of a digital system for electronic patient-reported symptom monitoring during routine cancer care: findings from the PRO-TECT trial","volume":"4","author":"Basch","year":"2020","journal-title":"JCO Clin Cancer Inform"},{"key":"10.1016\/j.ejca.2021.12.020_bib6","doi-asserted-by":"crossref","first-page":"186","DOI":"10.1002\/jmrs.421","article-title":"A review of the barriers to using Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in routine cancer care","volume":"68","author":"Nguyen","year":"2021","journal-title":"J Med Radiat Sci"},{"key":"10.1016\/j.ejca.2021.12.020_bib7","doi-asserted-by":"crossref","first-page":"508","DOI":"10.1136\/bmjqs-2013-002524","article-title":"The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research","volume":"23","author":"Boyce","year":"2014","journal-title":"BMJ Qual Saf"},{"key":"10.1016\/j.ejca.2021.12.020_bib8","doi-asserted-by":"crossref","first-page":"5253","DOI":"10.1007\/s00520-021-06052-9","article-title":"Patient-reported outcome measures in oncology: a qualitative study of the healthcare professional\u2019s perspective","volume":"29","author":"Graupner","year":"2021","journal-title":"Support Care Cancer"},{"key":"10.1016\/j.ejca.2021.12.020_bib9","doi-asserted-by":"crossref","first-page":"5253","DOI":"10.1093\/jnci\/85.5.365","article-title":"The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology","volume":"85","author":"Aaronson","year":"1993","journal-title":"J Natl Cancer Inst"},{"key":"10.1016\/j.ejca.2021.12.020_bib10","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.jclinepi.2019.10.003","article-title":"Thresholds for clinical importance were established to improve interpretation of the EORTC QLQ-C30 in clinical practice and research","volume":"118","author":"Giesinger","year":"2020","journal-title":"J Clin Epidemiol"},{"key":"10.1016\/j.ejca.2021.12.020_bib11","doi-asserted-by":"crossref","first-page":"677","DOI":"10.1001\/jamaoncol.2016.4851","article-title":"A standard set of value-based patient-centered outcomes for breast cancer: the International Consortium for Health Outcomes Measurement (ICHOM) initiative","volume":"3","author":"Ong","year":"2017","journal-title":"JAMA Oncol"},{"key":"10.1016\/j.ejca.2021.12.020_bib12","article-title":"Building a value-based care infrastructure in Europe: the health outcomes observatory","author":"Stamm","year":"2021","journal-title":"NEJM Catal"},{"key":"10.1016\/j.ejca.2021.12.020_bib13","unstructured":"European Health Data & Evidence Network (EHDEN). https:\/\/www.ehden.eu\/."},{"key":"10.1016\/j.ejca.2021.12.020_bib14","doi-asserted-by":"crossref","first-page":"161","DOI":"10.1016\/j.ejca.2020.06.002","article-title":"Updated EORTC QLQ-C30 general population norm data for Germany","volume":"137","author":"Nolte","year":"2020","journal-title":"Eur J Cancer"},{"key":"10.1016\/j.ejca.2021.12.020_bib15","doi-asserted-by":"crossref","first-page":"999","DOI":"10.1007\/s11136-018-1785-8","article-title":"Measurement invariance and general population reference values of the PROMIS Profile 29 in the UK, France, and Germany","volume":"27","author":"Fischer","year":"2018","journal-title":"Qual Life Res"},{"key":"10.1016\/j.ejca.2021.12.020_bib16","doi-asserted-by":"crossref","first-page":"1046e","DOI":"10.1097\/PRS.0000000000003241","article-title":"Breast cancer and reconstruction: normative data for interpreting the BREAST-Q","volume":"139","author":"Mundy","year":"2017","journal-title":"Plast Reconstr Surg"},{"key":"10.1016\/j.ejca.2021.12.020_bib17","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1016\/j.ejca.2019.10.031","article-title":"Reference values for the EORTC QLQ-C30 in early and metastatic breast cancer","volume":"125","author":"Mierzynska","year":"2020","journal-title":"Eur J Cancer"},{"key":"10.1016\/j.ejca.2021.12.020_bib18","doi-asserted-by":"crossref","first-page":"e11373","DOI":"10.2196\/11373","article-title":"Web-based patient-reported outcomes using the international consortium for health outcome measurement dataset in a major German University Hospital: observational study","volume":"4","author":"Karsten","year":"2018","journal-title":"JMIR Cancer"},{"key":"10.1016\/j.ejca.2021.12.020_bib19","doi-asserted-by":"crossref","first-page":"2756","DOI":"10.1200\/JCO.1996.14.10.2756","article-title":"The European Organization for Research and Treatment of Cancer breast cancer-specific quality-of-life questionnaire module: first results from a three-country field study","volume":"14","author":"Sprangers","year":"1996","journal-title":"J Clin Oncol"},{"key":"10.1016\/j.ejca.2021.12.020_bib20","series-title":"The EORTC QLQ-C30 scoring manual","author":"Fayers","year":"2001"},{"key":"10.1016\/j.ejca.2021.12.020_bib21","doi-asserted-by":"crossref","first-page":"799","DOI":"10.1080\/0266476042000214501","article-title":"Beta regression for modelling rates and proportions","volume":"31","author":"Ferrari","year":"2004","journal-title":"J Appl Stat"},{"key":"10.1016\/j.ejca.2021.12.020_bib22","doi-asserted-by":"crossref","first-page":"54","DOI":"10.1037\/1082-989X.11.1.54","article-title":"A better lemon squeezer? Maximum-likelihood regression with beta-distributed dependent variables","volume":"11","author":"Smithson","year":"2006","journal-title":"Psychol Methods"},{"key":"10.1016\/j.ejca.2021.12.020_bib23","doi-asserted-by":"crossref","first-page":"348","DOI":"10.1016\/j.csda.2009.08.017","article-title":"Improved estimators for a general class of beta regression models","volume":"54","author":"Simas","year":"2010","journal-title":"Comput Stat Data Anal"},{"key":"10.1016\/j.ejca.2021.12.020_bib24","doi-asserted-by":"crossref","first-page":"1097","DOI":"10.1214\/10-EJS579","article-title":"A generic algorithm for reducing bias in parametric estimation","volume":"4","author":"Kosmidis","year":"2010","journal-title":"Electron J Stat"},{"key":"10.1016\/j.ejca.2021.12.020_bib25","doi-asserted-by":"crossref","first-page":"25","DOI":"10.18637\/jss.v048.i11","article-title":"Extended beta regression in R: Shaken, stirred, mixed, and partitioned","volume":"48","author":"Gr\u00fcn","year":"2012","journal-title":"J Stat Software"},{"key":"10.1016\/j.ejca.2021.12.020_bib26","series-title":"R: a language and environment for statistical computing","year":"2020"},{"key":"10.1016\/j.ejca.2021.12.020_bib27","doi-asserted-by":"crossref","first-page":"24","DOI":"10.18637\/jss.v034.i02","article-title":"Beta regression in R","volume":"34","author":"Cribari-Neto","year":"2010","journal-title":"J Stat Software"},{"key":"10.1016\/j.ejca.2021.12.020_bib28","doi-asserted-by":"crossref","first-page":"1207","DOI":"10.1007\/s11136-014-0853-y","article-title":"Identifying changes in scores on the EORTC-QLQ-C30 representing a change in patients' supportive care needs","volume":"24","author":"Snyder","year":"2015","journal-title":"Qual Life Res"},{"key":"10.1016\/j.ejca.2021.12.020_bib29","doi-asserted-by":"crossref","first-page":"3335","DOI":"10.1002\/cncr.29489","article-title":"Quality of patient-reported outcome reporting across cancer randomized controlled trials according to the CONSORT patient-reported outcome extension: a pooled analysis of 557 trials","volume":"121","author":"Efficace","year":"2015","journal-title":"Cancer"},{"key":"10.1016\/j.ejca.2021.12.020_bib30","doi-asserted-by":"crossref","first-page":"2839","DOI":"10.1245\/s10434-018-6616-1","article-title":"Patient-reported outcomes for breast cancer","volume":"25","author":"Tevis","year":"2018","journal-title":"Ann Surg Oncol"},{"key":"10.1016\/j.ejca.2021.12.020_bib31","first-page":"3047","article-title":"Electronic real-time assessment of patient-reported outcomes in routine care-first findings and experiences from the implementation in a comprehensive cancer center","volume":"24","author":"Trautmann","year":"2016","journal-title":"Support Care Cancer"},{"key":"10.1016\/j.ejca.2021.12.020_bib32","doi-asserted-by":"crossref","first-page":"895","DOI":"10.1002\/pon.3087","article-title":"Feasibility and value of PatientViewpoint: a web system for patient-reported outcomes assessment in clinical practice","volume":"22","author":"Snyder","year":"2013","journal-title":"Psycho Oncol"},{"key":"10.1016\/j.ejca.2021.12.020_bib33","doi-asserted-by":"crossref","first-page":"3255","DOI":"10.1007\/s11136-020-02721-0","article-title":"Feasibility of health-related quality of life (HRQoL) assessment for cancer patients using electronic patient-reported outcome (ePRO) in daily clinical practice","volume":"30","author":"Mouillet","year":"2021","journal-title":"Qual Life Res"},{"key":"10.1016\/j.ejca.2021.12.020_bib34","doi-asserted-by":"crossref","first-page":"1707","DOI":"10.1007\/s11136-014-0903-5","article-title":"Training clinicians in how to use patient-reported outcome measures in routine clinical practice","volume":"24","author":"Santana","year":"2015","journal-title":"Qual Life Res"},{"key":"10.1016\/j.ejca.2021.12.020_bib35","doi-asserted-by":"crossref","first-page":"3563","DOI":"10.1245\/s10434-018-6729-6","article-title":"Patient-reported outcome measures may add value in breast cancer surgery","volume":"25","author":"Lagendijk","year":"2018","journal-title":"Ann Surg Oncol"},{"key":"10.1016\/j.ejca.2021.12.020_bib36","doi-asserted-by":"crossref","first-page":"307","DOI":"10.1017\/S147895150999023X","article-title":"The psychological responses of outpatient breast cancer patients before and during first medical consultation","volume":"7","author":"Okazaki","year":"2009","journal-title":"Palliat Support Care"},{"key":"10.1016\/j.ejca.2021.12.020_bib37","doi-asserted-by":"crossref","first-page":"731","DOI":"10.1200\/JCO.2008.21.7554","article-title":"Role of axillary clearance after a tumor-positive sentinel node in the administration of adjuvant therapy in early breast cancer","volume":"28","author":"Straver","year":"2010","journal-title":"J Clin Oncol"},{"key":"10.1016\/j.ejca.2021.12.020_bib38","doi-asserted-by":"crossref","first-page":"3977","DOI":"10.1111\/bph.15571","article-title":"Tumour brain: pretreatment cognitive and affective disorders caused by peripheral cancers","volume":"178","author":"Mampay","year":"2021","journal-title":"Br J Pharmacol"},{"key":"10.1016\/j.ejca.2021.12.020_bib39","doi-asserted-by":"crossref","first-page":"222","DOI":"10.1037\/a0033425","article-title":"Pretreatment worry and neurocognitive responses in women with breast cancer","volume":"33","author":"Berman","year":"2014","journal-title":"Health Psychol"}],"updated-by":[{"DOI":"10.1016\/j.ejca.2022.06.052","type":"erratum","label":"Erratum","source":"publisher","updated":{"date-parts":[[2022,10,1]],"date-time":"2022-10-01T00:00:00Z","timestamp":1664582400000}}],"container-title":["European Journal of Cancer"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0959804921013010?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0959804921013010?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2022,2,17]],"date-time":"2022-02-17T06:19:41Z","timestamp":1645078781000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0959804921013010"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,3]]},"references-count":39,"alternative-id":["S0959804921013010"],"URL":"https:\/\/doi.org\/10.1016\/j.ejca.2021.12.020","relation":{"erratum":[{"id-type":"doi","id":"10.1016\/j.ejca.2022.06.052","asserted-by":"object"}]},"ISSN":["0959-8049"],"issn-type":[{"value":"0959-8049","type":"print"}],"subject":[],"published":{"date-parts":[[2022,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Real-world reference scores for EORTC QLQ-C30 and EORTC QLQ-BR23 in early breast cancer patients","name":"articletitle","label":"Article Title"},{"value":"European Journal of Cancer","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ejca.2021.12.020","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2022 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}]}}