{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T02:52:38Z","timestamp":1790131958357,"version":"4.0.1"},"reference-count":28,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,3,11]],"date-time":"2026-03-11T00:00:00Z","timestamp":1773187200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100018707","name":"European Commission Reforming and enhancing the European Research and Innovation system","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100018707","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010661","name":"Horizon 2020 Framework Programme","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010661","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100020655","name":"European Health and Digital Executive Agency","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100020655","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","ejcancer.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["European Journal of Cancer"],"published-print":{"date-parts":[[2026,5]]},"DOI":"10.1016\/j.ejca.2026.116677","type":"journal-article","created":{"date-parts":[[2026,3,13]],"date-time":"2026-03-13T00:26:46Z","timestamp":1773361606000},"page":"116677","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":3,"special_numbering":"C","title":["The development of the European Toolkit for the self-assessment of quality of life across the cancer care continuum (EUonQoL-Kit)"],"prefix":"10.1016","volume":"238","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6683-8098","authenticated-orcid":false,"given":"Emma","family":"Nicklin","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-9577-1463","authenticated-orcid":false,"given":"Christopher","family":"Bedding","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2183-240X","authenticated-orcid":false,"given":"Sara","family":"Alfieri","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Giovanni","family":"Apolone","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9320-8684","authenticated-orcid":false,"given":"Volker","family":"Arndt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nanne","family":"Bos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1864-5371","authenticated-orcid":false,"given":"Anne","family":"Bredart","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3905-1289","authenticated-orcid":false,"given":"Cinzia","family":"Brunelli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7058-7570","authenticated-orcid":false,"given":"Luana","family":"Caselli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gennaro","family":"Ciliberto","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6814-7426","authenticated-orcid":false,"given":"Leslye","family":"Rojas-Concha","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Norbert","family":"Couespel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Doege","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9867-7391","authenticated-orcid":false,"given":"Montse","family":"Ferrer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria Alice","family":"Franzoi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0203-3298","authenticated-orcid":false,"given":"Laura","family":"Gangeri","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olatz","family":"Garin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emma","family":"Gillanders","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3153-780X","authenticated-orcid":false,"given":"Mogens","family":"Groenvold","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caitriona","family":"Higgins","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Esther C.E.","family":"de Jongh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tapani","family":"Kalmi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stein","family":"Kaasa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claudio","family":"Lombardo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9679-7226","authenticated-orcid":false,"given":"Elise","family":"Martin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3570-5372","authenticated-orcid":false,"given":"Helle","family":"Pappot","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ricardo","family":"Pietrobon","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gabriella","family":"Pravettoni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3543-6176","authenticated-orcid":false,"given":"Bianca","family":"Scacciati","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aude","family":"Sirven","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maike G.","family":"Sweegers","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6987-705X","authenticated-orcid":false,"given":"Melissa S.Y.","family":"Thong","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1259-649X","authenticated-orcid":false,"given":"Hugo","family":"Vachon","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lonneke V.","family":"van de Poll-Franse","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ines","family":"Vaz-Luis","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Augusto","family":"Caraceni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1899-5942","authenticated-orcid":false,"given":"Galina","family":"Velikova","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9142-1227","authenticated-orcid":false,"given":"Alexandra","family":"Gilbert","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"1","key":"10.1016\/j.ejca.2026.116677_bib1","doi-asserted-by":"crossref","first-page":"E29","DOI":"10.1097\/NCC.0000000000000135","article-title":"Symptom burden and quality of life in survivorship: a review of the literature","volume":"38","author":"Wu","year":"2015","journal-title":"Cancer Nurs"},{"issue":"4","key":"10.1016\/j.ejca.2026.116677_bib2","first-page":"1089","article-title":"The persistence of symptom burden: symptom experience and quality of life of cancer patients across one year","volume":"22","author":"Deshields","year":"2014","journal-title":"Support Care Cancer"},{"key":"10.1016\/j.ejca.2026.116677_bib3","unstructured":"European Commission. EU Mission: Cancer. Scope of the Mission. 2025 [cited 2025 July]; Available from: https:\/\/research-and-innovation.ec.europa.eu\/funding\/funding-opportunities\/funding-programmes-and-open-calls\/horizon-europe\/eu-missions-horizon-europe\/eu-mission-cancer_en."},{"key":"10.1016\/j.ejca.2026.116677_bib4","doi-asserted-by":"crossref","DOI":"10.1016\/j.healthpol.2022.12.010","article-title":"The use of patient-reported outcome and experience measures for health policy purposes: a scoping review in oncology","volume":"129","author":"Minvielle","year":"2023","journal-title":"Health Policy"},{"key":"10.1016\/j.ejca.2026.116677_bib5","unstructured":"U.S. Food and Drug Administration. Core Patient-Reported Outcomes in Cancer Clinical Trials: Guidance for Industry. 2024 [cited Feb 2026 27]; Available from: https:\/\/www.fda.gov\/regulatory-information\/search-fda-guidance-documents\/core-patient-reported-outcomes-cancer-clinical-trials."},{"issue":"1","key":"10.1016\/j.ejca.2026.116677_bib6","doi-asserted-by":"crossref","first-page":"101","DOI":"10.1186\/s12955-024-02312-4","article-title":"The use of patient-reported outcome measures to improve patient-related outcomes\u2013a systematic review","volume":"22","author":"Bonsel","year":"2024","journal-title":"Health Qual Life Outcomes"},{"issue":"8","key":"10.1016\/j.ejca.2026.116677_bib7","doi-asserted-by":"crossref","first-page":"299","DOI":"10.1177\/0141076815579896","article-title":"Putting patient-reported outcomes on the \u2018Big Data Road Map","volume":"108","author":"Calvert","year":"2015","journal-title":"J R Soc Med"},{"issue":"2","key":"10.1016\/j.ejca.2026.116677_bib8","doi-asserted-by":"crossref","first-page":"98066","DOI":"10.5662\/wjm.v15.i2.98066","article-title":"Voices that matter: the impact of patient-reported outcome measures on clinical decision-making","volume":"15","author":"Jeyaraman","year":"2025","journal-title":"World J Methodol"},{"issue":"5","key":"10.1016\/j.ejca.2026.116677_bib9","doi-asserted-by":"crossref","first-page":"365","DOI":"10.1093\/jnci\/85.5.365","article-title":"The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology","volume":"85","author":"Aaronson","year":"1993","journal-title":"JNCI Journal National Cancer Institute"},{"issue":"3","key":"10.1016\/j.ejca.2026.116677_bib10","doi-asserted-by":"crossref","first-page":"570","DOI":"10.1200\/JCO.1993.11.3.570","article-title":"The Functional Assessment of Cancer Therapy scale: development and validation of the general measure","volume":"11","author":"Cella","year":"1993","journal-title":"J Clin Oncol"},{"issue":"10","key":"10.1016\/j.ejca.2026.116677_bib11","doi-asserted-by":"crossref","first-page":"2179","DOI":"10.1093\/annonc\/mdq721","article-title":"Choosing between the EORTC QLQ-C30 and FACT-G for measuring health-related quality of life in cancer clinical research: issues, evidence and recommendations","volume":"22","author":"Luckett","year":"2011","journal-title":"Ann Oncol"},{"key":"10.1016\/j.ejca.2026.116677_bib12","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1016\/j.ejca.2018.04.016","article-title":"The EORTC CAT Core\u2014The computer adaptive version of the EORTC QLQ-C30 questionnaire","volume":"100","author":"Petersen","year":"2018","journal-title":"Eur J Cancer"},{"issue":"5","key":"10.1016\/j.ejca.2026.116677_bib13","doi-asserted-by":"crossref","first-page":"1405","DOI":"10.1007\/s11136-020-02421-9","article-title":"International validation of the EORTC CAT Core: a new adaptive instrument for measuring core quality of life domains in cancer","volume":"29","author":"Petersen","year":"2020","journal-title":"Qual Life Res"},{"issue":"3","key":"10.1016\/j.ejca.2026.116677_bib14","doi-asserted-by":"crossref","first-page":"330","DOI":"10.1016\/j.jclinepi.2012.09.010","article-title":"The EORTC computer-adaptive tests measuring physical functioning and fatigue exhibited high levels of measurement precision and efficiency","volume":"66","author":"Petersen","year":"2013","journal-title":"J Clin Epidemiol"},{"issue":"5","key":"10.1016\/j.ejca.2026.116677_bib15","doi-asserted-by":"crossref","first-page":"S22","DOI":"10.1097\/01.mlr.0000250483.85507.04","article-title":"Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS)","volume":"45","author":"Reeve","year":"2007","journal-title":"Med care"},{"key":"10.1016\/j.ejca.2026.116677_bib16","unstructured":"Gilbert, A., et al., The EUonQoL project: Report on patient priorities and preferences. \u3008https:\/\/euonqol.eu\/docs\/results\/D4_1_Report_on_patient_priorities_and_preferences.pdf\u3009. 2023. 2024(01 May)."},{"key":"10.1016\/j.ejca.2026.116677_bib17","unstructured":"Gilbert, A., et al. The EUonQoL project: Report on usability tests with patients. https:\/\/euonqol.eu\/docs\/results\/D4_2_Report_on_usability_tests_with_patients.pdf. 2023 [cited 2024 01 May]."},{"key":"10.1016\/j.ejca.2026.116677_bib18","unstructured":"Gilbert, A., et al. The EUonQoL project: Final set of questionnaires of the EUonQoL-Kit. https:\/\/euonqol.eu\/docs\/results\/D4_3_Final_set_of_questionnaires_of_the_EUonQoL-Kit.pdf. 2024 [cited 2024 01 May]; Available from: https:\/\/euonqol.eu\/results."},{"issue":"1","key":"10.1016\/j.ejca.2026.116677_bib19","doi-asserted-by":"crossref","first-page":"3517","DOI":"10.1186\/s12889-024-21008-4","article-title":"Validation of the European Oncology toolkit for the self-assessment of Quality of Life (EUonQoL-Kit) in cancer patients and survivors: study protocol of a pan European survey","volume":"24","author":"Apolone","year":"2024","journal-title":"BMC Public Health"},{"key":"10.1016\/j.ejca.2026.116677_bib20","unstructured":"World Health Organization, International Classification of Functioning, Disability, and Health: Children & Youth Version: ICF-CY. 2007: World Health Organization."},{"issue":"1","key":"10.1016\/j.ejca.2026.116677_bib21","doi-asserted-by":"crossref","first-page":"59","DOI":"10.1001\/jama.1995.03520250075037","article-title":"Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes","volume":"273","author":"Wilson","year":"1995","journal-title":"Jama"},{"issue":"4","key":"10.1016\/j.ejca.2026.116677_bib22","doi-asserted-by":"crossref","first-page":"336","DOI":"10.1111\/j.1547-5069.2005.00058.x","article-title":"Conceptual model of health-related quality of life","volume":"37","author":"Ferrans","year":"2005","journal-title":"J Nurs Scholarsh"},{"issue":"1","key":"10.1016\/j.ejca.2026.116677_bib23","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1186\/s41687-025-00907-z","article-title":"Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains","volume":"9","author":"Sweegers","year":"2025","journal-title":"J PatientRep Outcomes"},{"issue":"8","key":"10.1016\/j.ejca.2026.116677_bib24","doi-asserted-by":"crossref","first-page":"652","DOI":"10.1177\/1744987120927206","article-title":"Purposive sampling: complex or simple? Research case examples","volume":"25","author":"Campbell","year":"2020","journal-title":"J Res Nurs"},{"key":"10.1016\/j.ejca.2026.116677_bib25","unstructured":"Bjordal K, B.A., Gilbert A., Martinelli F., Pe M., Sztankay M., et al. EORTC Quality of Life Group Module Development Guidelines [Internet]. 2021; 5th ed.:[Available from: \u3008https:\/\/qol.eortc.org\/manuals\/\u3009."},{"issue":"1","key":"10.1016\/j.ejca.2026.116677_bib26","doi-asserted-by":"crossref","DOI":"10.1136\/bmjspcare-2015-001032","article-title":"Evaluating the experiences and support needs of people living with chronic cancer: development and initial validation of the Chronic Cancer Experiences Questionnaire (CCEQ)","volume":"9","author":"Harley","year":"2019","journal-title":"BMJ Support Palliat care"},{"issue":"1","key":"10.1016\/j.ejca.2026.116677_bib27","doi-asserted-by":"crossref","first-page":"28","DOI":"10.1186\/s12955-024-02244-z","article-title":"Acceptability and usefulness of the EORTC \u2018Write In three Symptoms\/Problems\u2019(WISP): a brief open-ended instrument for symptom assessment in cancer patients","volume":"22","author":"Rojas-Concha","year":"2024","journal-title":"Health Qual Life Outcomes"},{"key":"10.1016\/j.ejca.2026.116677_bib28","unstructured":"Luana Caselli, C.B., Montse Ferrer For\u00e9s, Olatz Garin, \u00c0ngels Pont Acu\u00f1a, Morten Aagaard Petersen, Mogens Gr\u00f8nvold, Leslye Alejandra Rojas Concha. Quality of Life in Oncology: measuring what matters for cancer patients and survivors in Europe. Report on psychometric data analysis 2023 [cited 2025 Aug]; Deliverable 7.4]. Available from: https:\/\/euonqol.eu\/results."}],"container-title":["European Journal of Cancer"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0959804926004570?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0959804926004570?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,4,14]],"date-time":"2026-04-14T14:27:32Z","timestamp":1776176852000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0959804926004570"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5]]},"references-count":28,"alternative-id":["S0959804926004570"],"URL":"https:\/\/doi.org\/10.1016\/j.ejca.2026.116677","relation":{},"ISSN":["0959-8049"],"issn-type":[{"value":"0959-8049","type":"print"}],"subject":[],"published":{"date-parts":[[2026,5]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The development of the European Toolkit for the self-assessment of quality of life across the cancer care continuum (EUonQoL-Kit)","name":"articletitle","label":"Article Title"},{"value":"European Journal of Cancer","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ejca.2026.116677","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Crown Copyright \u00a9 2026 Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"116677"}}