{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,9,21]],"date-time":"2025-09-21T18:05:35Z","timestamp":1758477935998},"reference-count":56,"publisher":"Elsevier BV","issue":"5","license":[{"start":{"date-parts":[[2010,9,1]],"date-time":"2010-09-01T00:00:00Z","timestamp":1283299200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["European Journal of Paediatric Neurology"],"published-print":{"date-parts":[[2010,9]]},"DOI":"10.1016\/j.ejpn.2010.03.010","type":"journal-article","created":{"date-parts":[[2010,5,17]],"date-time":"2010-05-17T08:07:37Z","timestamp":1274083657000},"page":"368-379","source":"Crossref","is-referenced-by-count":16,"title":["Developing preschool surveillance tools for adaptive functioning: Lessons for neuro-oncology"],"prefix":"10.1016","volume":"14","author":[{"given":"Michael E.","family":"Msall","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"2","key":"10.1016\/j.ejpn.2010.03.010_bib1","doi-asserted-by":"crossref","first-page":"152","DOI":"10.1093\/neuonc\/1.2.152","article-title":"The treatment of malignant brain tumors in infants and very young children: an update of the pediatric oncology group experience","volume":"1","author":"Duffner","year":"1999","journal-title":"Neuro-oncol"},{"key":"10.1016\/j.ejpn.2010.03.010_bib2","unstructured":"CBTRUS, Central Brain Tumor Registry of the United States (2007\u20132008). Primary brain tumors in the United States, Statistical Report (2000\u20132008), Years of Data Collected. Chicago: Author. Robertson PL, Muraszko KM, Holmes EJ, Sposto."},{"issue":"6 Suppl","key":"10.1016\/j.ejpn.2010.03.010_bib3","first-page":"444","article-title":"Incidence and severity of postoperative cerebellar mutism syndrome in children with medulloblastoma: a prospective study by the children\u2019s oncology group","volume":"105","author":"Packer","year":"2006","journal-title":"J Neurosurg"},{"issue":"11","key":"10.1016\/j.ejpn.2010.03.010_bib4","doi-asserted-by":"crossref","first-page":"1418","DOI":"10.1177\/0883073809341668","article-title":"Medulloblastoma","volume":"24","author":"Dhall","year":"2009","journal-title":"J Child Neurol"},{"issue":"17","key":"10.1016\/j.ejpn.2010.03.010_bib5","doi-asserted-by":"crossref","first-page":"3255","DOI":"10.1200\/JCO.2003.01.202","article-title":"Long-term neurologic and neurosensory sequelae in adult survivors of a childhood brain tumor: childhood cancer survivor study","volume":"21","author":"Packer","year":"2003","journal-title":"J Clin Oncol"},{"key":"10.1016\/j.ejpn.2010.03.010_bib6","doi-asserted-by":"crossref","DOI":"10.1016\/j.ejpn.2009.12.006","article-title":"Long-term survivors of childhood central nervous system malignancies: the experience of the childhood cancer survivor study","author":"Armstrong","year":"2010","journal-title":"Eur J Paediatr Neurol"},{"issue":"5","key":"10.1016\/j.ejpn.2010.03.010_bib7","doi-asserted-by":"crossref","first-page":"1385","DOI":"10.1002\/cncr.24840","article-title":"Long-term outcomes of childhood cancer survivors in Sweden: a population-based study of education, employment, and income","volume":"116","author":"Boman","year":"2010","journal-title":"Cancer"},{"issue":"4","key":"10.1016\/j.ejpn.2010.03.010_bib8","doi-asserted-by":"crossref","first-page":"1115","DOI":"10.1002\/cncr.11117","article-title":"Utilization of special education services and educational attainment among long-term survivors of childhood cancer: a report from the childhood cancer survivor study","volume":"97","author":"Mitby","year":"2003","journal-title":"Cancer"},{"issue":"2","key":"10.1016\/j.ejpn.2010.03.010_bib9","doi-asserted-by":"crossref","first-page":"106","DOI":"10.1016\/j.ejpn.2009.10.005","article-title":"Risk factors for cognitive decline in children treated for brain tumors","volume":"14","author":"Duffner","year":"2010","journal-title":"Eur J Paediatr Neurol"},{"issue":"6","key":"10.1016\/j.ejpn.2010.03.010_bib10","doi-asserted-by":"crossref","first-page":"705","DOI":"10.1037\/a0016674","article-title":"Neurocognitive status in long-term survivors of childhood CNS malignancies: a report from the childhood cancer survivor study","volume":"23","author":"Ellenberg","year":"2009","journal-title":"Neuropsychology"},{"issue":"2","key":"10.1016\/j.ejpn.2010.03.010_bib11","doi-asserted-by":"crossref","first-page":"435","DOI":"10.1158\/1055-9965.EPI-07-2541","article-title":"Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study","volume":"17","author":"Zeltzer","year":"2008","journal-title":"Cancer Epidemiol Biomarkers Prev"},{"key":"10.1016\/j.ejpn.2010.03.010_bib12","doi-asserted-by":"crossref","unstructured":"Palmer SL. Neurodevelopmental impact on children treated for medulloblastoma: a review and propsed conceptual model developmental disabilities research reviews 2008;14:p. 203\u201310.","DOI":"10.1002\/ddrr.32"},{"issue":"24","key":"10.1016\/j.ejpn.2010.03.010_bib13","doi-asserted-by":"crossref","first-page":"1725","DOI":"10.1056\/NEJM199306173282401","article-title":"Postoperative chemotherapy and delayed radiation in children less than three years of age with malignant brain tumors","volume":"328","author":"Duffner","year":"1993","journal-title":"N Engl J Med"},{"issue":"10","key":"10.1016\/j.ejpn.2010.03.010_bib14","doi-asserted-by":"crossref","first-page":"978","DOI":"10.1056\/NEJMoa042176","article-title":"Treatment of early childhood medulloblastoma by postoperative chemotherapy alone","volume":"352","author":"Rutkowski","year":"2005","journal-title":"N Engl J Med"},{"issue":"8","key":"10.1016\/j.ejpn.2010.03.010_bib15","doi-asserted-by":"crossref","first-page":"573","DOI":"10.1016\/S1470-2045(05)70252-7","article-title":"Treatment of medulloblastoma with postoperative chemotherapy alone: an SFOP prospective trial in young children","volume":"6","author":"Grill","year":"2005","journal-title":"Lancet Oncol"},{"issue":"1","key":"10.1016\/j.ejpn.2010.03.010_bib16","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1007\/s11060-009-9799-2","article-title":"Medulloblastoma in children under the age of three years: a retrospective Canadian review","volume":"94","author":"Johnston","year":"2009","journal-title":"J Neurooncol"},{"issue":"2","key":"10.1016\/j.ejpn.2010.03.010_bib17","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1215\/15228517-2008-084","article-title":"Treatment of early childhood medulloblastoma by postoperative chemotherapy and deferred radiotherapy","volume":"11","author":"Rutkowski","year":"2009","journal-title":"Neuro-oncol"},{"issue":"7","key":"10.1016\/j.ejpn.2010.03.010_bib18","doi-asserted-by":"crossref","first-page":"1209","DOI":"10.1016\/j.ejca.2009.01.015","article-title":"Long-term outcome and clinical prognostic factors in children with medulloblastoma treated in the prospective randomised multicentre trial HIT\u201991","volume":"45","author":"von Hoff","year":"2009","journal-title":"Eur J\u00a0Cancer"},{"issue":"1","key":"10.1016\/j.ejpn.2010.03.010_bib19","doi-asserted-by":"crossref","first-page":"120","DOI":"10.1016\/j.ejca.2009.09.013","article-title":"Primary postoperative chemotherapy without radiotherapy for treatment of brain tumours other than ependymoma in children under 3 years: results of the first UKCCSG\/SIOP CNS 9204 trial","volume":"46","author":"Grundy","year":"2010","journal-title":"Eur J\u00a0Cancer"},{"key":"10.1016\/j.ejpn.2010.03.010_bib20","series-title":"International classification of functioning disability and health","year":"2001"},{"key":"10.1016\/j.ejpn.2010.03.010_bib21","series-title":"Capute and Accardo\u2019s neurodevelopmental disabilities in infancy and childhood","first-page":"419","article-title":"Functional assessment in neurodevelopmental disorders","author":"Msall","year":"2007"},{"issue":"3","key":"10.1016\/j.ejpn.2010.03.010_bib22","doi-asserted-by":"crossref","first-page":"263","DOI":"10.1002\/mrdd.20073","article-title":"Measuring functional skills in preschool children at risk for neurodevelopmental disabilities","volume":"11","author":"Msall","year":"2005","journal-title":"Ment Retard Dev Disabil Res Rev"},{"key":"10.1016\/j.ejpn.2010.03.010_bib23","series-title":"Psychoeducational assessment of preschool children","year":"2007"},{"key":"10.1016\/j.ejpn.2010.03.010_bib24","series-title":"Preschool assessments: principles and practices","year":"2007"},{"key":"10.1016\/j.ejpn.2010.03.010_bib25","series-title":"Early childhood assessment","author":"Lidz","year":"2003"},{"key":"10.1016\/j.ejpn.2010.03.010_bib26","series-title":"Bayley scales of infant and toddler development","author":"Bayley","year":"2005"},{"key":"10.1016\/j.ejpn.2010.03.010_bib27","series-title":"Capute and Accardo\u2019s neurodevelopmental disabilities in infancy and childhood II","first-page":"241","article-title":"The spectrum of intellectual disabilities: cognitive adaptive neurodevelopmental disorders and mental retardation","author":"Acharya","year":"2007"},{"key":"10.1016\/j.ejpn.2010.03.010_bib28","series-title":"Measuring health-related quality of life in children and adolescents: implications for research and practice","author":"Drotar","year":"1998"},{"key":"10.1016\/j.ejpn.2010.03.010_bib29","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1186\/1477-7525-1-81","article-title":"Health related quality of life in 3 and 4 year old children and their parents: preliminary findings about a new questionnaire","volume":"1","author":"Klassen","year":"2003","journal-title":"Health Qual Life Outcomes"},{"key":"10.1016\/j.ejpn.2010.03.010_bib30","doi-asserted-by":"crossref","first-page":"843","DOI":"10.1016\/j.pcl.2009.05.016","article-title":"The pediatric qualiity of life inventory: measuring pediatric health related quality of life from the perspective of children and their parents","volume":"56","author":"Varni","year":"2009","journal-title":"Pediatr Clin North Am"},{"key":"10.1016\/j.ejpn.2010.03.010_bib31","series-title":"The child health questionnaire (CHQ): a user\u2019s manual","year":"1996"},{"issue":"3","key":"10.1016\/j.ejpn.2010.03.010_bib32","doi-asserted-by":"crossref","first-page":"445","DOI":"10.1007\/s11136-006-9134-8","article-title":"Reliability and validity of the infant and toddler quality of life questionnaire (ITQOL) in a general population and respiratory disease sample","volume":"16","author":"Raat","year":"2007","journal-title":"Qual Life Res"},{"issue":"2","key":"10.1016\/j.ejpn.2010.03.010_bib33","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/1477-7525-5-1","article-title":"Parent proxy report of their children\u2019s health-related quality of life: an analysis of 13,878 parents\u2019 reliability and validity across age subgroups using the PedsQL\u2122 4.0 Generic Core Scales","volume":"5","author":"Varni","year":"2007","journal-title":"Health Qual Life Outcomes"},{"issue":"3","key":"10.1016\/j.ejpn.2010.03.010_bib34","doi-asserted-by":"crossref","first-page":"287","DOI":"10.1002\/pbc.21026","article-title":"The PedsQL brain tumor module: initial reliability and validity","volume":"49","author":"Palmer","year":"2007","journal-title":"Pediatr Blood Cancer"},{"key":"10.1016\/j.ejpn.2010.03.010_bib35","series-title":"Indicators of child and youth well-being: completing the picture","article-title":"Key indicators for health and safety","author":"Hogan","year":"2007"},{"key":"10.1016\/j.ejpn.2010.03.010_bib36","series-title":"Intellectual disability: definition, classification, and systems of supports","author":"Schalock","year":"2010"},{"key":"10.1016\/j.ejpn.2010.03.010_bib37","doi-asserted-by":"crossref","unstructured":"Squires J, Twombly E, Bricker D, Potter L. Ages and stages questionnaires. 3rd ed. User\u2019s Guide2009. Baltimore MD: Paul H Brookes Publishing Company.","DOI":"10.1037\/t11523-000"},{"key":"10.1016\/j.ejpn.2010.03.010_bib38","series-title":"Capute scales the capute scales cognitive adaptive test and clinical linguistic and auditory milestone scale (CAT\/CLAMS)","author":"Accardo","year":"2005"},{"key":"10.1016\/j.ejpn.2010.03.010_bib39","doi-asserted-by":"crossref","first-page":"940","DOI":"10.1001\/archpedi.1985.02140110094038","article-title":"The motor quotient: a method for the early detection of motor delay","volume":"139","author":"Capute","year":"1985","journal-title":"Am J Dis Child"},{"key":"10.1016\/j.ejpn.2010.03.010_bib40","series-title":"Peabody developmental motor scales examiner\u2019s manual","author":"Folio","year":"2000"},{"issue":"4","key":"10.1016\/j.ejpn.2010.03.010_bib41","doi-asserted-by":"crossref","first-page":"249","DOI":"10.1111\/j.1469-8749.2008.02045.x","article-title":"Development of the gross motor function classification system for cerebral palsy","volume":"50","author":"Rosenbaum","year":"2008","journal-title":"Dev Med Child Neurol"},{"issue":"7","key":"10.1016\/j.ejpn.2010.03.010_bib42","doi-asserted-by":"crossref","first-page":"549","DOI":"10.1017\/S0012162206001162","article-title":"The manual ability classification system (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability","volume":"48","author":"Eliasson","year":"2006","journal-title":"Dev Med Child Neurol"},{"issue":"8","key":"10.1016\/j.ejpn.2010.03.010_bib43","doi-asserted-by":"crossref","first-page":"603","DOI":"10.1111\/j.1469-8749.2007.00603.x","article-title":"The functional mobility scale: ability to detect change following single event multilevel surgery","volume":"49","author":"Harvey","year":"2007","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.ejpn.2010.03.010_bib44","doi-asserted-by":"crossref","first-page":"14","DOI":"10.1002\/(SICI)1098-2779(1998)4:1<14::AID-MRDD4>3.0.CO;2-X","article-title":"The capite scales: CAT\/CLAMS-a pediatric assessment tool for the early detection of mental retardation and communication disorders","volume":"4","author":"Leppert","year":"1998","journal-title":"Ment Retard Dev Disabil Res Rev"},{"issue":"2","key":"10.1016\/j.ejpn.2010.03.010_bib45","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1093\/jpepsy\/jsh017","article-title":"The brief infant-toddler social and emotional assessment:(BITSEA) screening for social-emotional problems and delays in competence","volume":"29","author":"Briggs-Gowan","year":"2004","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.ejpn.2010.03.010_bib46","series-title":"Brief infant-toddler socail and emontional assessment (BITSEA) examiner\u2019s manual","author":"Briggs-Gowan","year":"2006"},{"issue":"11","key":"10.1016\/j.ejpn.2010.03.010_bib47","doi-asserted-by":"crossref","first-page":"1337","DOI":"10.1097\/00004583-200111000-00015","article-title":"Psychometric properties of the strengths and difficulties questionnaire","volume":"40","author":"Goodman","year":"2001","journal-title":"J Am Acad Child Adolesc Psychiatry"},{"key":"10.1016\/j.ejpn.2010.03.010_bib48","series-title":"Assessment of children: behavioral, social, and clinical foundations","author":"Sattler","year":"2006"},{"key":"10.1016\/j.ejpn.2010.03.010_bib49","first-page":"434","article-title":"Developmental and functional outcome following post-operative chemotherapy and conformal radiation in infants with medulloblastoma using a centrally administered phone based interview technique. Initial report","volume":"10","author":"Ashley","year":"2008","journal-title":"Neuro-oncol"},{"key":"10.1016\/j.ejpn.2010.03.010_bib50","unstructured":"Gray L, Lyon N, Roistacher J, Mariano K, Baker CP, McKearnan K, Gray M, Msall ME, Normative sample of the warner initial developmental evaluation of adaptive and functional skills: personal digital assistant network application in early childhood and in child disability. AACPDM Abstracts, Vol. 48, s107, Oct., 2006,DMCN, p. 42."},{"key":"10.1016\/j.ejpn.2010.03.010_bib51","series-title":"Late effects of treatment for brain tumors, cancer treatment and research","first-page":"277","article-title":"Neuropsychological impact of treatment of brain tumors","author":"DeLuca","year":"2009"},{"key":"10.1016\/j.ejpn.2010.03.010_bib52","doi-asserted-by":"crossref","DOI":"10.1177\/000992289403300709","article-title":"WeeFIM: normative sample of an instrument for tracking functional independence in children","volume":"33","author":"Msall","year":"1994","journal-title":"Clin Pediatr"},{"key":"10.1016\/j.ejpn.2010.03.010_bib53","doi-asserted-by":"crossref","first-page":"421","DOI":"10.1177\/000992289403300708","article-title":"The functional independence measure for children (WeeFIM): conceptual basis and pilot use in children with developmental disabilities","volume":"33","author":"Msall","year":"1994","journal-title":"Clin Pediatr"},{"issue":"5","key":"10.1016\/j.ejpn.2010.03.010_bib54","doi-asserted-by":"crossref","first-page":"998","DOI":"10.1542\/peds.106.5.998","article-title":"Severity of neonatal retinopathy of prematurity is predictive\u00a0of neurodevelopmental functional outcome at age 5.5 years. Behalf of the cryotherapy for retinopathy of prematurity cooperative group","volume":"106","author":"Msall","year":"2000","journal-title":"Pediatrics"},{"issue":"4","key":"10.1016\/j.ejpn.2010.03.010_bib55","doi-asserted-by":"crossref","first-page":"790","DOI":"10.1542\/peds.113.4.790","article-title":"Educational and social competencies at 8 years in children with threshold retinopathy of prematurity in the CRYO-ROP multicenter study. Cryotherapy for retinopathy of prematurity cooperative group","volume":"113","author":"Msall","year":"2004","journal-title":"Pediatrics"},{"key":"10.1016\/j.ejpn.2010.03.010_bib56","doi-asserted-by":"crossref","first-page":"311","DOI":"10.1001\/archopht.123.3.311","article-title":"15-year outcomes following threshold retinoapthy of prematurity: final results from the multicenter trial of cryotherapy for retinopathy of prematurity","volume":"123","author":"Cryotherapy for Retinopathy of Prematurity Cooperative Group","year":"2005","journal-title":"Arch Ophthalmol"}],"container-title":["European Journal of Paediatric Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379810000681?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379810000681?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2021,10,27]],"date-time":"2021-10-27T22:13:25Z","timestamp":1635372805000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1090379810000681"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2010,9]]},"references-count":56,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2010,9]]}},"alternative-id":["S1090379810000681"],"URL":"https:\/\/doi.org\/10.1016\/j.ejpn.2010.03.010","relation":{},"ISSN":["1090-3798"],"issn-type":[{"value":"1090-3798","type":"print"}],"subject":[],"published":{"date-parts":[[2010,9]]}}}