{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T09:37:42Z","timestamp":1790761062049,"version":"4.1.0"},"reference-count":25,"publisher":"Elsevier BV","issue":"5","license":[{"start":{"date-parts":[[2013,9,1]],"date-time":"2013-09-01T00:00:00Z","timestamp":1377993600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":["ejpn-journal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["European Journal of Paediatric Neurology"],"published-print":{"date-parts":[[2013,9]]},"DOI":"10.1016\/j.ejpn.2013.04.002","type":"journal-article","created":{"date-parts":[[2013,5,11]],"date-time":"2013-05-11T17:45:30Z","timestamp":1368294330000},"page":"515-521","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":6,"title":["Caregiver's burden and psychosocial issues in alternating hemiplegia of childhood"],"prefix":"10.1016","volume":"17","author":[{"given":"Jessica","family":"Save","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dominique","family":"Poncelin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"St\u00e9phane","family":"Auvin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.ejpn.2013.04.002_bib1","doi-asserted-by":"crossref","first-page":"675","DOI":"10.1542\/peds.47.4.675","article-title":"Alternating hemiplegia in childhood: a report of eight patients with complicated migraine beginning in infancy","volume":"47","author":"Verret","year":"1971","journal-title":"Pediatrics"},{"key":"10.1016\/j.ejpn.2013.04.002_bib2","doi-asserted-by":"crossref","first-page":"3598","DOI":"10.1093\/brain\/awq295","article-title":"Evidence of a non-progressive course of alternating hemiplegia of childhood: study of a large cohort of children and adults","volume":"133","author":"Panagiotakaki","year":"2010","journal-title":"Brain"},{"key":"10.1016\/j.ejpn.2013.04.002_bib3","doi-asserted-by":"crossref","first-page":"1030","DOI":"10.1038\/ng.2358","article-title":"De novo mutations in ATP1A3 cause alternating hemiplegia of childhood","volume":"44","author":"Heinzen","year":"2012","journal-title":"Nat Genet"},{"key":"10.1016\/j.ejpn.2013.04.002_bib4","doi-asserted-by":"crossref","first-page":"191","DOI":"10.1055\/s-2008-1052478","article-title":"Flunarizine in alternating hemiplegia in childhood. An international study in 12 children","volume":"18","author":"Casaer","year":"1987","journal-title":"Neuropediatrics"},{"key":"10.1016\/j.ejpn.2013.04.002_bib5","doi-asserted-by":"crossref","first-page":"303","DOI":"10.1016\/S0387-7604(01)00229-7","article-title":"Long-term effect of flunarizine on patients with alternating hemiplegia of childhood in Japan","volume":"23","author":"Sasaki","year":"2001","journal-title":"Brain Dev"},{"key":"10.1016\/j.ejpn.2013.04.002_bib6","doi-asserted-by":"crossref","first-page":"146","DOI":"10.1177\/104345429301000405","article-title":"Waiting and not knowing: the diagnosis of cancer in a child","volume":"10","author":"Clarke-Steffen","year":"1993","journal-title":"J Pediatr Oncol Nurs"},{"key":"10.1016\/j.ejpn.2013.04.002_bib7","doi-asserted-by":"crossref","first-page":"S72","DOI":"10.1067\/mpd.2001.111839","article-title":"Psychosocial issues and coping strategies in families affected by urea cycle disorders","volume":"138","author":"Cederbaum","year":"2001","journal-title":"J Pediatr"},{"key":"10.1016\/j.ejpn.2013.04.002_bib8","doi-asserted-by":"crossref","first-page":"516","DOI":"10.1067\/mpd.2002.123663","article-title":"Quality of life and psychologic adjustment in children and adolescents with early treated phenylketonuria can be normal","volume":"140","author":"Landolt","year":"2002","journal-title":"J Pediatr"},{"key":"10.1016\/j.ejpn.2013.04.002_bib9","doi-asserted-by":"crossref","first-page":"29","DOI":"10.1017\/S0021963097001741","article-title":"Effects of pediatric chronic physical disorders on child and family adjustment","volume":"39","author":"Wallander","year":"1998","journal-title":"J Child Psychol.Psychiatry"},{"key":"10.1016\/j.ejpn.2013.04.002_bib10","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1097\/00003727-199610000-00010","article-title":"Families carong for chronically ill children with tuberous sclerosis complex","volume":"19","author":"Parker","year":"1996","journal-title":"Fam Community Health"},{"key":"10.1016\/j.ejpn.2013.04.002_bib11","doi-asserted-by":"crossref","first-page":"e477","DOI":"10.1542\/peds.2004-0240","article-title":"Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers","volume":"114","author":"Rahi","year":"2004","journal-title":"Pediatrics"},{"key":"10.1016\/j.ejpn.2013.04.002_bib12","doi-asserted-by":"crossref","first-page":"59","DOI":"10.3917\/rsi.092.0059","article-title":"Information needs of families of children with a disability: the viewpoint of parents and health professionals","author":"Pelchat","year":"2008","journal-title":"Rech Soins Infirm"},{"key":"10.1016\/j.ejpn.2013.04.002_bib13","doi-asserted-by":"crossref","first-page":"41","DOI":"10.3917\/rsi.096.0041","article-title":"The experience of uncertainty of fathers and mothers in the process of the announcement of cerebral palsy of their children","author":"Pelchat","year":"2009","journal-title":"Rech Soins Infirm."},{"key":"10.1016\/j.ejpn.2013.04.002_bib14","doi-asserted-by":"crossref","first-page":"231","DOI":"10.1177\/13674935030074001","article-title":"Differences and similarities between mothers' and fathers' experiences of parenting a child with a disability","volume":"7","author":"Pelchat","year":"2003","journal-title":"J Child Health Care"},{"key":"10.1016\/j.ejpn.2013.04.002_bib15","doi-asserted-by":"crossref","first-page":"e626","DOI":"10.1542\/peds.2004-1689","article-title":"The health and well-being of caregivers of children with cerebral palsy","volume":"115","author":"Raina","year":"2005","journal-title":"Pediatrics"},{"key":"10.1016\/j.ejpn.2013.04.002_bib16","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/1477-7525-4-1","article-title":"Health-related quality of life in parents of school-age children with asperger syndrome or high-functioning autism","volume":"4","author":"Allik","year":"2006","journal-title":"Health Qual Life Outcomes"},{"key":"10.1016\/j.ejpn.2013.04.002_bib17","doi-asserted-by":"crossref","first-page":"415","DOI":"10.1023\/A:1008910527481","article-title":"Self-perceived health in Swedish parents of children with Down's syndrome","volume":"9","author":"Hedov","year":"2000","journal-title":"Qual Life Res"},{"key":"10.1016\/j.ejpn.2013.04.002_bib18","first-page":"565","article-title":"Differences in stress and coping for mothers and fathers of children with Asperger's syndrome and nonverbal learning disorders","volume":"28","author":"Little","year":"2002","journal-title":"Pediatr.Nurs."},{"key":"10.1016\/j.ejpn.2013.04.002_bib19","doi-asserted-by":"crossref","first-page":"112","DOI":"10.1177\/1367493507076064","article-title":"Gender differences and similarities in the experience of parenting a child with a health problem: current state of knowledge","volume":"11","author":"Pelchat","year":"2007","journal-title":"J Child Health Care"},{"key":"10.1016\/j.ejpn.2013.04.002_bib20","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1111\/j.1365-2214.2006.00591.x","article-title":"The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base","volume":"32","author":"Barlow","year":"2006","journal-title":"Child Care Health Dev"},{"key":"10.1016\/j.ejpn.2013.04.002_bib21","doi-asserted-by":"crossref","first-page":"699","DOI":"10.1093\/jpepsy\/27.8.699","article-title":"Siblings of children with a chronic illness: a meta-analysis","volume":"27","author":"Sharpe","year":"2002","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.ejpn.2013.04.002_bib22","doi-asserted-by":"crossref","first-page":"312","DOI":"10.1016\/S0020-7489(97)00019-9","article-title":"Siblings and pediatric chronic illness: a review of the literature","volume":"34","author":"Williams","year":"1997","journal-title":"Int J Nurs Stud"},{"key":"10.1016\/j.ejpn.2013.04.002_bib23","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1093\/jpepsy\/25.4.279","article-title":"Brief report: psychological symptoms in healthy female siblings of adolescents with and without chronic conditions","volume":"25","author":"Silver","year":"2000","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.ejpn.2013.04.002_bib24","doi-asserted-by":"crossref","first-page":"917","DOI":"10.1111\/j.1365-2788.2006.00922.x","article-title":"Adjustment of children who have a sibling with Down syndrome: perspectives of mothers, fathers and children","volume":"50","author":"Cuskelly","year":"2006","journal-title":"J Intellect Disabil Res"},{"key":"10.1016\/j.ejpn.2013.04.002_bib25","doi-asserted-by":"crossref","first-page":"862","DOI":"10.1111\/j.1365-2788.2006.00900.x","article-title":"Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities","volume":"50","author":"Emerson","year":"2006","journal-title":"J Intellect Disabil Res"}],"container-title":["European Journal of Paediatric Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379813000597?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379813000597?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2022,2,16]],"date-time":"2022-02-16T20:00:00Z","timestamp":1645041600000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1090379813000597"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,9]]},"references-count":25,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2013,9]]}},"alternative-id":["S1090379813000597"],"URL":"https:\/\/doi.org\/10.1016\/j.ejpn.2013.04.002","relation":{},"ISSN":["1090-3798"],"issn-type":[{"value":"1090-3798","type":"print"}],"subject":[],"published":{"date-parts":[[2013,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Caregiver's burden and psychosocial issues in alternating hemiplegia of childhood","name":"articletitle","label":"Article Title"},{"value":"European Journal of Paediatric Neurology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ejpn.2013.04.002","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2013 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}]}}