{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T02:52:18Z","timestamp":1790736738591,"version":"4.1.0"},"reference-count":35,"publisher":"Elsevier BV","issue":"5","license":[{"start":{"date-parts":[[2015,9,1]],"date-time":"2015-09-01T00:00:00Z","timestamp":1441065600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":["clinicalkey.jp","clinicalkey.com","ejpn-journal.com","clinicalkey.es","clinicalkey.com.au","clinicalkey.fr","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["European Journal of Paediatric Neurology"],"published-print":{"date-parts":[[2015,9]]},"DOI":"10.1016\/j.ejpn.2015.04.005","type":"journal-article","created":{"date-parts":[[2015,5,2]],"date-time":"2015-05-02T16:54:40Z","timestamp":1430585680000},"page":"537-546","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":48,"title":["Pain in adolescents with spinal muscular atrophy and Duchenne and Becker muscular dystrophy"],"prefix":"10.1016","volume":"19","author":[{"given":"Christina","family":"Lager","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna-Karin","family":"Kroksmark","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"12","key":"10.1016\/j.ejpn.2015.04.005_bib1","doi-asserted-by":"crossref","first-page":"1028","DOI":"10.1016\/j.nmd.2013.06.370","article-title":"184th ENMC international workshop: pain and fatigue in neuromuscular disorders: 20\u201322 May 2011, Naarden, The Netherlands","volume":"23","author":"de Groot","year":"2013","journal-title":"Neuromuscul Disord"},{"key":"10.1016\/j.ejpn.2015.04.005_bib2","series-title":"Muscle disorders in childhood","first-page":"34","article-title":"The muscular dystrophies","author":"Dubowitz","year":"1995"},{"issue":"1","key":"10.1016\/j.ejpn.2015.04.005_bib3","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/S0960-8966(99)00055-3","article-title":"Neuromuscular disorders in childhood: a descriptive epidemiological study from western Sweden","volume":"10","author":"Darin","year":"2000","journal-title":"Neuromuscul Disord"},{"issue":"2","key":"10.1016\/j.ejpn.2015.04.005_bib4","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1177\/0009922809347777","article-title":"Duchenne muscular dystrophy: a 30-year population-based incidence study","volume":"49","author":"Dooley","year":"2010","journal-title":"Clin Pediatr (Phila)"},{"issue":"1","key":"10.1016\/j.ejpn.2015.04.005_bib5","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1016\/0960-8966(91)90039-U","article-title":"Population frequencies of inherited neuromuscular diseases \u2013 a world survey","volume":"1","author":"Emery","year":"1991","journal-title":"Neuromuscul Disord NMD"},{"issue":"1","key":"10.1016\/j.ejpn.2015.04.005_bib6","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1016\/S1474-4422(09)70271-6","article-title":"Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management","volume":"9","author":"Bushby","year":"2010","journal-title":"Lancet Neurol"},{"issue":"2","key":"10.1016\/j.ejpn.2015.04.005_bib7","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1016\/S1474-4422(09)70272-8","article-title":"Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care","volume":"9","author":"Bushby","year":"2010","journal-title":"Lancet Neurol"},{"issue":"8748","key":"10.1016\/j.ejpn.2015.04.005_bib8","doi-asserted-by":"crossref","first-page":"1022","DOI":"10.1016\/0140-6736(91)92671-N","article-title":"Prevalence and incidence of Becker muscular dystrophy","volume":"337","author":"Bushby","year":"1991","journal-title":"Lancet"},{"issue":"9156","key":"10.1016\/j.ejpn.2015.04.005_bib9","doi-asserted-by":"crossref","first-page":"897","DOI":"10.1016\/S0140-6736(98)05801-2","article-title":"Absence of brain Dp140 isoform and cognitive impairment in Becker muscular dystrophy","volume":"353","author":"Bardoni","year":"1999","journal-title":"Lancet"},{"issue":"5","key":"10.1016\/j.ejpn.2015.04.005_bib10","doi-asserted-by":"crossref","first-page":"865","DOI":"10.1111\/j.1651-2227.2008.01201.x","article-title":"A population-based study of genotypic and phenotypic variability in children with spinal muscular atrophy","volume":"98","author":"Arkblad","year":"2009","journal-title":"Acta Paediatr"},{"key":"10.1016\/j.ejpn.2015.04.005_bib11","doi-asserted-by":"crossref","first-page":"1608","DOI":"10.1002\/ajmg.a.33474","article-title":"Newborn and carrier screening for spinal muscular atrophy","volume":"152A","author":"Prior","year":"2010","journal-title":"Am J Med Genet A"},{"issue":"1","key":"10.1016\/j.ejpn.2015.04.005_bib12","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1016\/S0022-510X(96)00284-5","article-title":"A collaborative study on the natural history of childhood and juvenile onset proximal spinal muscular atrophy (type II and III SMA): 569 patients","volume":"146","author":"Zerres","year":"1997","journal-title":"J Neurol Sci"},{"issue":"5\u20136","key":"10.1016\/j.ejpn.2015.04.005_bib13","doi-asserted-by":"crossref","first-page":"423","DOI":"10.1016\/S0960-8966(06)80015-5","article-title":"International SMA consortium meeting (26\u201328 June 1992, Bonn, Germany)","volume":"2","author":"Munsat","year":"1992","journal-title":"Neuromuscul Disord"},{"issue":"8","key":"10.1016\/j.ejpn.2015.04.005_bib14","doi-asserted-by":"crossref","first-page":"1027","DOI":"10.1177\/0883073807305788","article-title":"Consensus statement for standard of care in spinal muscular atrophy","volume":"22","author":"Wang","year":"2007","journal-title":"J Child Neurol"},{"key":"10.1016\/j.ejpn.2015.04.005_bib15","series-title":"Muscle disorders in childhood","first-page":"325","article-title":"Disorders of the lower motor neuron: the spinal muscular atrophies","author":"Dubowitz","year":"1995"},{"issue":"12","key":"10.1016\/j.ejpn.2015.04.005_bib16","doi-asserted-by":"crossref","first-page":"1069","DOI":"10.1016\/j.nmd.2012.06.352","article-title":"Change in muscle strength over time in spinal muscular atrophy types II and III. A long-term follow-up study","volume":"22","author":"Werlauff","year":"2012","journal-title":"Neuromuscul Disord"},{"issue":"4","key":"10.1016\/j.ejpn.2015.04.005_bib17","doi-asserted-by":"crossref","first-page":"1113","DOI":"10.1016\/j.pmr.2005.08.003","article-title":"Exploring chronic pain in youths with Duchenne muscular dystrophy: a model for pediatric neuromuscular disease","volume":"16","author":"Engel","year":"2005","journal-title":"Phys Med Rehabil Clin N Am"},{"issue":"1","key":"10.1016\/j.ejpn.2015.04.005_bib18","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1177\/104990910201900109","article-title":"Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease","volume":"19","author":"Abresch","year":"2002","journal-title":"Am J Hosp Palliat Care"},{"issue":"1","key":"10.1016\/j.ejpn.2015.04.005_bib19","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1016\/j.jpainsymman.2007.02.041","article-title":"Pain in hereditary neuromuscular disorders and myasthenia gravis: a national survey of frequency, characteristics and impact","volume":"35","author":"Guy-Coichard","year":"2008","journal-title":"J Pain Symptom Manag"},{"issue":"6","key":"10.1016\/j.ejpn.2015.04.005_bib20","doi-asserted-by":"crossref","first-page":"1155","DOI":"10.1016\/j.apmr.2004.11.028","article-title":"Chronic pain in persons with neuromuscular disease","volume":"86","author":"Jensen","year":"2005","journal-title":"Arch Phys Med Rehabil"},{"issue":"9","key":"10.1016\/j.ejpn.2015.04.005_bib21","doi-asserted-by":"crossref","first-page":"756","DOI":"10.1097\/01.phm.0000228518.26673.23","article-title":"Pain and neuromuscular disease: the results of a survey","volume":"85","author":"Tiffreau","year":"2006","journal-title":"Am J Phys Med Rehabil"},{"issue":"5","key":"10.1016\/j.ejpn.2015.04.005_bib22","doi-asserted-by":"crossref","first-page":"405","DOI":"10.1177\/1049909109346165","article-title":"Pain in youths with neuromuscular disease","volume":"26","author":"Engel","year":"2009","journal-title":"Am J Hosp Palliat Care"},{"issue":"7","key":"10.1016\/j.ejpn.2015.04.005_bib23","doi-asserted-by":"crossref","first-page":"546","DOI":"10.1111\/j.1469-8749.2008.03005.x","article-title":"Pain and activity limitations in children with Duchenne or Becker muscular dystrophy","volume":"50","author":"Zebracki","year":"2008","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.ejpn.2015.04.005_bib24","series-title":"Classification of chronic pain: descriptions of chronic pain syndromes and definitions of pain terms","author":"Merskey","year":"1994"},{"issue":"12","key":"10.1016\/j.ejpn.2015.04.005_bib25","doi-asserted-by":"crossref","first-page":"2729","DOI":"10.1016\/j.pain.2011.07.016","article-title":"The epidemiology of chronic pain in children and adolescents revisited: a systematic review","volume":"152","author":"King","year":"2011","journal-title":"Pain"},{"issue":"5","key":"10.1016\/j.ejpn.2015.04.005_bib26","doi-asserted-by":"crossref","first-page":"307","DOI":"10.1002\/nur.4770120506","article-title":"Pain location: validity and reliability of body outline markings by hospitalized children and adolescents","volume":"12","author":"Savedra","year":"1989","journal-title":"Res Nurs Health"},{"issue":"1\u20132","key":"10.1016\/j.ejpn.2015.04.005_bib27","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1016\/j.pain.2006.05.006","article-title":"Systematic review of the psychometric properties, interpretability and feasibility of self-report pain intensity measures for use in clinical trials in children and adolescents","volume":"125","author":"Stinson","year":"2006","journal-title":"Pain"},{"issue":"3","key":"10.1016\/j.ejpn.2015.04.005_bib28","doi-asserted-by":"crossref","first-page":"297","DOI":"10.1016\/0304-3959(87)90065-0","article-title":"Sensory-affective relationships among different types of clinical and experimental pain","volume":"28","author":"Price","year":"1987","journal-title":"Pain"},{"issue":"12","key":"10.1016\/j.ejpn.2015.04.005_bib29","doi-asserted-by":"crossref","first-page":"2626","DOI":"10.1016\/j.pain.2013.05.048","article-title":"Cut points for mild, moderate, and severe pain on the VAS for children and adolescents: what can be learned from 10 million ANOVAs?","volume":"154","author":"Hirschfeld","year":"2013","journal-title":"Pain"},{"issue":"3","key":"10.1016\/j.ejpn.2015.04.005_bib30","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1016\/j.jpainsymman.2006.03.008","article-title":"The reliability and validity of pain interference measures in persons with multiple sclerosis","volume":"32","author":"Osborne","year":"2006","journal-title":"J Pain Symptom Manag"},{"issue":"3","key":"10.1016\/j.ejpn.2015.04.005_bib31","doi-asserted-by":"crossref","first-page":"179","DOI":"10.1016\/j.jpain.2005.10.007","article-title":"The reliability and validity of pain interference measures in persons with spinal cord injury","volume":"7","author":"Raichle","year":"2006","journal-title":"J Pain"},{"issue":"2","key":"10.1016\/j.ejpn.2015.04.005_bib32","doi-asserted-by":"crossref","first-page":"197","DOI":"10.1016\/0304-3959(83)90143-4","article-title":"Development of the Wisconsin brief pain questionnaire to assess pain in cancer and other diseases","volume":"17","author":"Daut","year":"1983","journal-title":"Pain"},{"key":"10.1016\/j.ejpn.2015.04.005_bib33","series-title":"Statistical methods for health care research","first-page":"235","author":"Munro","year":"1997"},{"issue":"6","key":"10.1016\/j.ejpn.2015.04.005_bib34","doi-asserted-by":"crossref","first-page":"434","DOI":"10.1136\/archdischild-2012-303482","article-title":"Pain in young people aged 13 to 17 years with cerebral palsy: cross-sectional, multicentre European study","volume":"98","author":"Parkinson","year":"2013","journal-title":"Arch Dis Child"},{"issue":"1","key":"10.1016\/j.ejpn.2015.04.005_bib35","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1097\/AJP.0b013e31822019b1","article-title":"Changes in pain-related beliefs, coping, and catastrophizing predict changes in pain intensity, pain interference, and psychological functioning in individuals with myotonic muscular dystrophy and facioscapulo-humeral dystrophy","volume":"28","author":"Nieto","year":"2012","journal-title":"Clin J Pain"}],"container-title":["European Journal of Paediatric Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379815000793?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379815000793?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2018,9,22]],"date-time":"2018-09-22T19:54:26Z","timestamp":1537646066000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1090379815000793"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,9]]},"references-count":35,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2015,9]]}},"alternative-id":["S1090379815000793"],"URL":"https:\/\/doi.org\/10.1016\/j.ejpn.2015.04.005","relation":{},"ISSN":["1090-3798"],"issn-type":[{"value":"1090-3798","type":"print"}],"subject":[],"published":{"date-parts":[[2015,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Pain in adolescents with spinal muscular atrophy and Duchenne and Becker muscular dystrophy","name":"articletitle","label":"Article Title"},{"value":"European Journal of Paediatric Neurology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ejpn.2015.04.005","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2015 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}]}}