{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T23:12:48Z","timestamp":1787872368897,"version":"build-2784847793"},"reference-count":66,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2021,1,1]],"date-time":"2021-01-01T00:00:00Z","timestamp":1609459200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2021,1,1]],"date-time":"2021-01-01T00:00:00Z","timestamp":1609459200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","ejpn-journal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["European Journal of Paediatric Neurology"],"published-print":{"date-parts":[[2021,1]]},"DOI":"10.1016\/j.ejpn.2020.10.008","type":"journal-article","created":{"date-parts":[[2020,10,21]],"date-time":"2020-10-21T02:16:58Z","timestamp":1603246618000},"page":"134-143","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":18,"special_numbering":"C","title":["Adaptive skills and mental health in children and adolescents with neuromuscular diseases"],"prefix":"10.1016","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5289-3459","authenticated-orcid":false,"given":"David","family":"Gosar","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lejla","family":"Ko\u0161mrlj","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Petra Le\u0161nik","family":"Musek","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tamara","family":"Me\u0161ko","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sta\u0161a","family":"Stropnik","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vesna","family":"Krko\u010d","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7437-617X","authenticated-orcid":false,"given":"Tanja","family":"Golli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tita","family":"Butenko","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8689-6159","authenticated-orcid":false,"given":"Tanja","family":"Loboda","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2188-420X","authenticated-orcid":false,"given":"Damjan","family":"Osredkar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"4","key":"10.1016\/j.ejpn.2020.10.008_bib1","doi-asserted-by":"crossref","first-page":"497","DOI":"10.1016\/j.nurt.2008.08.010","article-title":"New treatments for neuromuscular disease: optimism and obstacles","volume":"5","author":"Lochm\u00fcller","year":"2008","journal-title":"Neurotherapeutics"},{"issue":"3","key":"10.1016\/j.ejpn.2020.10.008_bib2","doi-asserted-by":"crossref","first-page":"495","DOI":"10.1016\/j.pmr.2012.06.011","article-title":"Clinical approach to the diagnostic evaluation of hereditary and acquired neuromuscular diseases","volume":"23","author":"McDonald","year":"2012","journal-title":"Phys. Med. Rehabil. Clin"},{"issue":"14","key":"10.1016\/j.ejpn.2020.10.008_bib3","doi-asserted-by":"crossref","first-page":"1676","DOI":"10.1080\/09638288.2018.1446188","article-title":"The prevalence and severity of disease-related disabilities and their impact on quality of life in neuromuscular diseases","volume":"41","author":"Bos","year":"2019","journal-title":"Disabil. Rehabil."},{"issue":"5","key":"10.1016\/j.ejpn.2020.10.008_bib4","doi-asserted-by":"crossref","first-page":"853","DOI":"10.1017\/S135561770808106X","article-title":"Cognitive and adaptive deficits in young children with Duchenne muscular dystrophy (DMD)","volume":"14","author":"Cyrulnik","year":"2008","journal-title":"J.\u00a0Int. Neuropsychol. Soc."},{"issue":"2","key":"10.1016\/j.ejpn.2020.10.008_bib5","doi-asserted-by":"crossref","first-page":"113","DOI":"10.1046\/j.1600-0404.2003.00185.x","article-title":"Quality of life in hereditary neuromuscular diseases","volume":"109","author":"Piccininni","year":"2004","journal-title":"Acta Neurol. Scand."},{"issue":"6","key":"10.1016\/j.ejpn.2020.10.008_bib6","doi-asserted-by":"crossref","first-page":"470","DOI":"10.1097\/00004703-200612000-00003","article-title":"Social behavior problems in boys with duchenne muscular dystrophy","volume":"27","author":"Hinton","year":"2006","journal-title":"J.\u00a0Dev. Behav. Pediatr."},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib7","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1093\/jpepsy\/jsn067","article-title":"Psychosocial adjustment in males with duchenne muscular dystrophy: psychometric properties and clinical utility of a parent-report questionnaire","volume":"34","author":"Hendriksen","year":"2008","journal-title":"J.\u00a0Pediatr. Psychol."},{"issue":"4","key":"10.1016\/j.ejpn.2020.10.008_bib8","doi-asserted-by":"crossref","first-page":"296","DOI":"10.1016\/j.pediatrneurol.2005.08.029","article-title":"Are males with duchenne muscular dystrophy at risk for reading disabilities?","volume":"34","author":"Hendriksen","year":"2006","journal-title":"Pediatr. Neurol."},{"issue":"3","key":"10.1016\/j.ejpn.2020.10.008_bib9","first-page":"145","article-title":"Hard ways towards adulthood: the transition phase in young people with myotonic dystrophy","volume":"35","author":"Baldanzi","year":"2016","journal-title":"Acta Myol."},{"issue":"11","key":"10.1016\/j.ejpn.2020.10.008_bib10","doi-asserted-by":"crossref","first-page":"986","DOI":"10.1016\/j.nmd.2007.06.465","article-title":"Behavior patterns in Duchenne muscular dystrophy: Report on the Parent Project Muscular Dystrophy behavior workshop 8\u20139 of December 2006, Philadelphia, USA","volume":"17","author":"Poysky","year":"2007","journal-title":"Neuromuscular Disorders"},{"issue":"12","key":"10.1016\/j.ejpn.2020.10.008_bib11","doi-asserted-by":"crossref","first-page":"705","DOI":"10.1007\/s00787-009-0037-4","article-title":"Psychiatric and cognitive phenotype in children and adolescents with myotonic dystrophy","volume":"18","author":"Douniol","year":"2009","journal-title":"Eur. Child Adolesc. Psychiatr."},{"issue":"7","key":"10.1016\/j.ejpn.2020.10.008_bib12","doi-asserted-by":"crossref","first-page":"983","DOI":"10.1177\/0883073813484804","article-title":"The impact of congenital and childhood myotonic dystrophy on quality of life:A qualitative study of associated symptoms","volume":"29","author":"Johnson","year":"2014","journal-title":"J.\u00a0Child Neurol."},{"issue":"12","key":"10.1016\/j.ejpn.2020.10.008_bib13","doi-asserted-by":"crossref","first-page":"982","DOI":"10.1111\/j.1469-8749.2009.03300.x","article-title":"Cognition and adaptive skills in myotonic dystrophy type 1: a study of 55 individuals with congenital and childhood forms","volume":"51","author":"Ekstr\u00f6m","year":"2009","journal-title":"Dev. Med. Child Neurol."},{"issue":"3","key":"10.1016\/j.ejpn.2020.10.008_bib14","doi-asserted-by":"crossref","first-page":"210","DOI":"10.1016\/j.ejpn.2007.07.014","article-title":"Myotonic dystrophy type I in childhood: long-term evolution in patients surviving the neonatal period","volume":"12","author":"Echenne","year":"2008","journal-title":"Eur. J. Paediatr. Neurol."},{"key":"10.1016\/j.ejpn.2020.10.008_bib15","series-title":"Myotonic Dystrophy: Present Management, Future Therapy","article-title":"Congenital and childhood-onset myotonic dystrophy","author":"De Die-Smulders","year":"2004"},{"issue":"4","key":"10.1016\/j.ejpn.2020.10.008_bib16","first-page":"317","article-title":"Emotional and behavioral profile and child psychiatric diagnosis in the childhood type of myotonic dystrophy","volume":"11","author":"Goossens","year":"2000","journal-title":"Genet. Counsel."},{"issue":"3","key":"10.1016\/j.ejpn.2020.10.008_bib17","doi-asserted-by":"crossref","first-page":"135","DOI":"10.1111\/j.1399-0004.1997.tb02533.x","article-title":"A\u00a0study of the cognitive and psychological profile in 16 children with congenital or juvenile myotonic dystrophy","volume":"52","author":"Steyaert","year":"1997","journal-title":"Clin. Genet."},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib18","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0008803","article-title":"Dystrophin gene mutation location and the risk of cognitive impairment in duchenne muscular dystrophy","volume":"5","author":"Taylor","year":"2010","journal-title":"PloS One"},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib19","doi-asserted-by":"crossref","first-page":"21","DOI":"10.2478\/bjmg-2013-0014","article-title":"Association between loss of dp140 and cognitive impairment in duchenne and becker dystrophies","volume":"16","author":"Chamova","year":"2013","journal-title":"Balkan J. Med. Genet."},{"issue":"7","key":"10.1016\/j.ejpn.2020.10.008_bib20","first-page":"497","article-title":"Intelligence and duchenne muscular dystrophy: full-scale, verbal, and performance intelligence quotients","volume":"43","author":"Cotton","year":"2001","journal-title":"Dev. Med. Child Neurol."},{"issue":"11","key":"10.1016\/j.ejpn.2020.10.008_bib21","doi-asserted-by":"crossref","first-page":"1472","DOI":"10.1177\/0883073815570154","article-title":"Cognitive and neurobehavioral profile in boys with duchenne muscular dystrophy","volume":"30","author":"Banihani","year":"2015","journal-title":"J.\u00a0Child Neurol."},{"issue":"2","key":"10.1016\/j.ejpn.2020.10.008_bib22","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1177\/0883073807307975","article-title":"Cognitive and psychological profile of males with becker muscular dystrophy","volume":"23","author":"Young","year":"2008","journal-title":"J.\u00a0Child Neurol."},{"issue":"3","key":"10.1016\/j.ejpn.2020.10.008_bib23","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1016\/j.ejpn.2006.04.004","article-title":"Survey of behaviour problems in children with neuromuscular diseases","volume":"10","author":"Darke","year":"2006","journal-title":"Eur. J. Paediatr. Neurol."},{"issue":"7","key":"10.1016\/j.ejpn.2020.10.008_bib24","doi-asserted-by":"crossref","first-page":"663","DOI":"10.1177\/0883073817701368","article-title":"Secondary conditions among males with duchenne or becker muscular dystrophy","volume":"32","author":"Latimer","year":"2017","journal-title":"J.\u00a0Child Neurol."},{"issue":"5","key":"10.1016\/j.ejpn.2020.10.008_bib25","doi-asserted-by":"crossref","first-page":"477","DOI":"10.1177\/0883073807309775","article-title":"Neuropsychiatric disorders in males with duchenne muscular dystrophy: frequency rate of attention-deficit hyperactivity disorder (ADHD), autism spectrum disorder, and obsessive\u2014compulsive disorder","volume":"23","author":"Hendriksen","year":"2008","journal-title":"J.\u00a0Child Neurol."},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib26","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1111\/dmcn.12922","article-title":"Neurodevelopmental, emotional, and behavioural problems in Duchenne muscular dystrophy in relation to underlying dystrophin gene mutations","volume":"58","author":"Ricotti","year":"2016","journal-title":"Dev. Med. Child Neurol."},{"issue":"5","key":"10.1016\/j.ejpn.2020.10.008_bib27","doi-asserted-by":"crossref","first-page":"743","DOI":"10.1016\/j.neubiorev.2013.03.016","article-title":"Neuropsychological and neurobehavioral functioning in Duchenne muscular dystrophy: a review","volume":"37","author":"Snow","year":"2013","journal-title":"Neurosci. Biobehav. Rev."},{"issue":"2","key":"10.1016\/j.ejpn.2020.10.008_bib28","doi-asserted-by":"crossref","first-page":"130","DOI":"10.1016\/S0960-8966(01)00274-7","article-title":"Intelligence and cognitive function in children and adolescents with spinal muscular atrophy","volume":"12","author":"von Gontard","year":"2002","journal-title":"Neuromuscul. Disord."},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib29","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1111\/j.1469-8749.1998.tb15351.x","article-title":"Reading ability and processing in Duchenne muscular dystrophy and spinal muscular atrophy","volume":"40","author":"Billard","year":"1998","journal-title":"Dev. Med. Child Neurol."},{"issue":"5\u20136","key":"10.1016\/j.ejpn.2020.10.008_bib30","doi-asserted-by":"crossref","first-page":"371","DOI":"10.1016\/S0960-8966(06)80008-8","article-title":"Cognitive functions in Duchenne muscular dystrophy: a reappraisal and comparison with spinal muscular atrophy","volume":"2","author":"Billard","year":"1992","journal-title":"Neuromuscul. Disord. : NMD"},{"issue":"5","key":"10.1016\/j.ejpn.2020.10.008_bib31","doi-asserted-by":"crossref","first-page":"e548","DOI":"10.1542\/peds.2004-0668","article-title":"Spinal muscular atrophy: survival pattern and functional status","volume":"114","author":"Chung","year":"2004","journal-title":"Pediatrics"},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib32","doi-asserted-by":"crossref","first-page":"44","DOI":"10.1111\/j.1469-8749.2003.tb00858.x","article-title":"Behavioural problems in children and adolescents with spinal muscular atrophy and their siblings","volume":"45","author":"Laufersweiler-Plass","year":"2003","journal-title":"Dev. Med. Child Neurol."},{"issue":"7","key":"10.1016\/j.ejpn.2020.10.008_bib33","doi-asserted-by":"crossref","first-page":"949","DOI":"10.1111\/1469-7610.00098","article-title":"Psychopathology and familial stress \u2013 comparison of boys with Fragile X syndrome and Spinal Muscular Atrophy","volume":"43","author":"Von Gontard","year":"2002","journal-title":"JCPP (J. Child Psychol. Psychiatry)"},{"key":"10.1016\/j.ejpn.2020.10.008_bib34","series-title":"Adaptive Behavior Assessment System","author":"Harrison","year":"2015"},{"key":"10.1016\/j.ejpn.2020.10.008_bib35","series-title":"Manual for the ASEBA Preschool Forms and Profiles","author":"Achenbach","year":"2000"},{"key":"10.1016\/j.ejpn.2020.10.008_bib36","series-title":"Manual for the ASEBA School-Age Forms & Profiles: an Integrated System of Multi-Informant Assessment","author":"Achenbach","year":"2001"},{"key":"10.1016\/j.ejpn.2020.10.008_bib37","series-title":"Sistem Za Ocenjevanje Prilagoditvenega Vedenja, Tretja Izdaja (ABAS-3). Priro\u010dnik","author":"Harrison","year":"2020"},{"issue":"8","key":"10.1016\/j.ejpn.2020.10.008_bib38","doi-asserted-by":"crossref","first-page":"647","DOI":"10.1016\/j.jaac.2016.05.012","article-title":"Internalizing\/externalizing problems: review and recommendations for clinical and research applications","volume":"55","author":"Achenbach","year":"2016","journal-title":"J.\u00a0Am. Acad. Child Adolesc. Psychiatr."},{"issue":"7","key":"10.1016\/j.ejpn.2020.10.008_bib39","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1037\/h0093906","article-title":"The classification of children's psychiatric symptoms: a factor-analytic study","volume":"80","author":"Achenbach","year":"1966","journal-title":"Psychol. Monogr.: General and Applied."},{"key":"10.1016\/j.ejpn.2020.10.008_bib40","series-title":"Multicultural Supplement to the Manual for the ASEBA Preschool Forms & Profiles: Child Behavior Checklist for Ages 1 1\/2-5, Language Development Survey, Caregiver-Teacher Report Form ; an Integrated System of Multi-Informant Assessment","author":"Achenbach","year":"2010"},{"key":"10.1016\/j.ejpn.2020.10.008_bib41","series-title":"A\u00a0Language and Environment for Statistical Computing","author":"Team","year":"2019"},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib42","first-page":"28","article-title":"An R package for bayesian multilevel models using stan","volume":"80","author":"brms","year":"2017"},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib43","first-page":"395","article-title":"Advanced bayesian multilevel modeling with the R package brms","volume":"10","author":"B\u00fcrkner","year":"2018","journal-title":"Rice J."},{"key":"10.1016\/j.ejpn.2020.10.008_bib44","doi-asserted-by":"crossref","first-page":"1541","DOI":"10.21105\/joss.01541","article-title":"bayestestR: describing effects and their uncertainty, existence and significance within the bayesian framework","volume":"4","author":"Makowski","year":"2019","journal-title":"J\u00a0Open Source Software"},{"key":"10.1016\/j.ejpn.2020.10.008_bib45","doi-asserted-by":"crossref","first-page":"2767","DOI":"10.3389\/fpsyg.2019.02767","article-title":"Indices of effect existence and significance in the bayesian framework","volume":"10","author":"Makowski","year":"2019","journal-title":"Front. Psychol."},{"issue":"8","key":"10.1016\/j.ejpn.2020.10.008_bib46","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0104697","article-title":"Cognitive impairment in myotonic dystrophy type 1 is associated with white matter damage","volume":"9","author":"Caso","year":"2014","journal-title":"PloS One"},{"issue":"2","key":"10.1016\/j.ejpn.2020.10.008_bib47","doi-asserted-by":"crossref","first-page":"89","DOI":"10.1016\/j.nmd.2010.11.013","article-title":"White matter abnormalities and neurocognitive correlates in children and adolescents with myotonic dystrophy type 1: a diffusion tensor imaging study","volume":"21","author":"Wozniak","year":"2011","journal-title":"Neuromuscul. Disord."},{"issue":"4","key":"10.1016\/j.ejpn.2020.10.008_bib48","doi-asserted-by":"crossref","first-page":"291","DOI":"10.1352\/1944-7558-117.4.291","article-title":"The construct of adaptive behavior: its conceptualization, measurement, and use in the field of intellectual disability","volume":"117","author":"Tass\u00e9","year":"2012","journal-title":"Am. J. Intellect. Dev. Disabil."},{"issue":"9","key":"10.1016\/j.ejpn.2020.10.008_bib49","doi-asserted-by":"crossref","first-page":"1116","DOI":"10.1177\/0883073810371004","article-title":"Change in natural history of duchenne muscular dystrophy with long-term corticosteroid treatment: implications for management","volume":"25","author":"Moxley","year":"2010","journal-title":"J.\u00a0Child Neurol."},{"issue":"8","key":"10.1016\/j.ejpn.2020.10.008_bib50","doi-asserted-by":"crossref","first-page":"946","DOI":"10.1177\/0883073807305673","article-title":"Spinal muscular atrophy: clinical classification and disease heterogeneity","volume":"22","author":"Russman","year":"2007","journal-title":"J.\u00a0Child Neurol."},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib51","doi-asserted-by":"crossref","first-page":"11","DOI":"10.3390\/bs8010011","article-title":"The application of adaptive behaviour models: a systematic review","volume":"8","author":"Price","year":"2018","journal-title":"Behav. Sci."},{"issue":"4","key":"10.1016\/j.ejpn.2020.10.008_bib52","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1023\/A:1022124900328","article-title":"Parent vs. Self-report: contributions toward diagnosis of adolescent psychopathology","volume":"21","author":"Hope","year":"1999","journal-title":"J.\u00a0Psychopathol. Behav. Assess."},{"issue":"2","key":"10.1016\/j.ejpn.2020.10.008_bib53","first-page":"103","article-title":"Anxious by maternal - versus self-report: are they the same children?","volume":"18","author":"Manassis","year":"2009","journal-title":"J.\u00a0Can. Acad. Child Adolesc Psychiat."},{"key":"10.1016\/j.ejpn.2020.10.008_bib54","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1080\/15374416.2011.533405","article-title":"Introduction to the special section: more than measurement error: discovering meaning behind informant discrepancies in clinical assessments of children and adolescents","volume":"40","author":"De Los Reyes","year":"2011","journal-title":"J.\u00a0Clin. Child Adolesc. Psychol. : Off. J. Soc. Clin. Child Adolsec. Psychol. Am. Psychol. Assoc."},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib55","doi-asserted-by":"crossref","first-page":"42","DOI":"10.1177\/1359104516689586","article-title":"Parent\u2013youth informant disagreement: implications for youth anxiety treatment","volume":"23","author":"Becker-Haimes","year":"2017","journal-title":"Clin. Child Psychol. Psychiatr."},{"issue":"5","key":"10.1016\/j.ejpn.2020.10.008_bib56","doi-asserted-by":"crossref","first-page":"401","DOI":"10.1016\/j.jaac.2017.02.007","article-title":"Accuracy of Achenbach scales in the screening of attention-deficit\/hyperactivity disorder in a community mental health clinic","volume":"56","author":"Raiker","year":"2017","journal-title":"J.\u00a0Am. Acad. Child Adolesc. Psychiatry"},{"issue":"4","key":"10.1016\/j.ejpn.2020.10.008_bib57","doi-asserted-by":"crossref","first-page":"893","DOI":"10.1037\/a0020703","article-title":"Cross-informant symptoms from CBCL, TRF, and YSR: trait and method variance in a normative sample of Russian youths","volume":"22","author":"Grigorenko","year":"2010","journal-title":"Psychol. Assess."},{"key":"10.1016\/j.ejpn.2020.10.008_bib58","doi-asserted-by":"crossref","first-page":"80","DOI":"10.1080\/15374416.2011.533416","article-title":"Commentary: definitely more than measurement error: but how should we understand and deal with informant discrepancies?","volume":"40","author":"Achenbach","year":"2011","journal-title":"J.\u00a0Clin. Child Adolesc. Psychol. : Off. J. Soc. Clin. Child Adolsec. Psychol. Am. Psychol. Assoc."},{"key":"10.1016\/j.ejpn.2020.10.008_bib59","doi-asserted-by":"crossref","first-page":"23","DOI":"10.3389\/fpubh.2013.00023","article-title":"Beyond misconceptions: assessing pain in children with mild to moderate intellectual disability","volume":"1","author":"Zabalia","year":"2013","journal-title":"Front Public Health"},{"issue":"12","key":"10.1016\/j.ejpn.2020.10.008_bib60","doi-asserted-by":"crossref","first-page":"2047","DOI":"10.1016\/j.apmr.2009.07.019","article-title":"Rating scale use by children with disabilities on a self-report of everyday activities","volume":"90","author":"Kramer","year":"2009","journal-title":"Arch. Phys. Med. Rehabil."},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib61","doi-asserted-by":"crossref","first-page":"80","DOI":"10.1186\/s12874-018-0539-1","article-title":"Self-reported measures in health research for people with intellectual disabilities: an inclusive pilot study on suitability and reliability","volume":"18","author":"Vlot-van Anrooij","year":"2018","journal-title":"BMC Med. Res. Methodol."},{"issue":"1","key":"10.1016\/j.ejpn.2020.10.008_bib62","doi-asserted-by":"crossref","first-page":"12575","DOI":"10.1038\/s41598-017-12981-5","article-title":"Timing and localization of human dystrophin isoform expression provide insights into the cognitive phenotype of Duchenne muscular dystrophy","volume":"7","author":"Doorenweerd","year":"2017","journal-title":"Sci. Rep."},{"issue":"101","key":"10.1016\/j.ejpn.2020.10.008_bib63","article-title":"Myotonic dystrophies: state of the art of new therapeutic developments for the CNS","volume":"11","author":"Gourdon","year":"2017","journal-title":"Front. Cell. Neurosci."},{"issue":"Supplement 2","key":"10.1016\/j.ejpn.2020.10.008_bib64","doi-asserted-by":"crossref","first-page":"S99","DOI":"10.1542\/peds.2018-0333L","article-title":"Psychosocial management of the patient with duchenne muscular dystrophy","volume":"142","author":"Colvin","year":"2018","journal-title":"Pediatrics"},{"issue":"5","key":"10.1016\/j.ejpn.2020.10.008_bib65","doi-asserted-by":"crossref","first-page":"443","DOI":"10.1212\/CPJ.0000000000000646","article-title":"Consensus-based care recommendations for congenital and childhood-onset myotonic dystrophy type 1","volume":"9","author":"Johnson","year":"2019","journal-title":"Neurol Clin Pract"},{"issue":"2","key":"10.1016\/j.ejpn.2020.10.008_bib66","doi-asserted-by":"crossref","first-page":"112","DOI":"10.1016\/j.eurpsy.2010.08.006","article-title":"Modelling psychiatric measures using Skew-Normal distributions","volume":"26","author":"Counsell","year":"2011","journal-title":"Eur. Psychiatr."}],"container-title":["European Journal of Paediatric Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379820302014?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379820302014?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T18:37:59Z","timestamp":1761071879000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1090379820302014"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,1]]},"references-count":66,"alternative-id":["S1090379820302014"],"URL":"https:\/\/doi.org\/10.1016\/j.ejpn.2020.10.008","relation":{},"ISSN":["1090-3798"],"issn-type":[{"value":"1090-3798","type":"print"}],"subject":[],"published":{"date-parts":[[2021,1]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Adaptive skills and mental health in children and adolescents with neuromuscular diseases","name":"articletitle","label":"Article Title"},{"value":"European Journal of Paediatric Neurology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ejpn.2020.10.008","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2020 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}]}}