{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,14]],"date-time":"2026-05-14T23:09:28Z","timestamp":1778800168489,"version":"3.51.4"},"reference-count":24,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","ejpn-journal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["European Journal of Paediatric Neurology"],"published-print":{"date-parts":[[2026,3]]},"DOI":"10.1016\/j.ejpn.2026.03.005","type":"journal-article","created":{"date-parts":[[2026,3,19]],"date-time":"2026-03-19T16:48:55Z","timestamp":1773938935000},"page":"58-67","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"special_numbering":"C","title":["Pediatric tuberous sclerosis complex: assessment of multidisciplinary follow-up in an expert center"],"prefix":"10.1016","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0009-0001-0056-4020","authenticated-orcid":false,"given":"Ga\u00eblle","family":"Quentin-Romand","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M\u00e9lodie","family":"Aubart","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nicole","family":"Chemaly","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katarzyna","family":"Kotulska","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5877-4074","authenticated-orcid":false,"given":"Rima","family":"Nabbout","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"9639","key":"10.1016\/j.ejpn.2026.03.005_bib1","doi-asserted-by":"crossref","first-page":"657","DOI":"10.1016\/S0140-6736(08)61279-9","article-title":"Tuberous sclerosis","volume":"372","author":"Curatolo","year":"2008","journal-title":"Lancet (London, England)"},{"issue":"3","key":"10.1016\/j.ejpn.2026.03.005_bib2","doi-asserted-by":"crossref","first-page":"291","DOI":"10.1002\/ajmg.c.31647","article-title":"Central nervous system manifestations of Tuberous sclerosis complex","volume":"178","author":"Lu","year":"2018","journal-title":"Am J Med Genet C Semin Med Genet"},{"issue":"10","key":"10.1016\/j.ejpn.2026.03.005_bib3","doi-asserted-by":"crossref","first-page":"1397","DOI":"10.1007\/s00247-020-04707-z","article-title":"Magnetic resonance imaging diagnosis of subependymal giant cell astrocytomas in follow-up of children with Tuberous sclerosis complex: should we always use contrast enhancement?","volume":"50","author":"Gaillard","year":"2020","journal-title":"Pediatr. Radiol."},{"issue":"12","key":"10.1016\/j.ejpn.2026.03.005_bib4","doi-asserted-by":"crossref","first-page":"e1216","DOI":"10.1212\/WNL.0000000000200027","article-title":"Association of early MRI characteristics with subsequent epilepsy and neurodevelopmental outcomes in children with Tuberous sclerosis complex","volume":"98","author":"Hulshof","year":"2022","journal-title":"Neurology"},{"issue":"4","key":"10.1016\/j.ejpn.2026.03.005_bib5","doi-asserted-by":"crossref","first-page":"243","DOI":"10.1016\/j.pediatrneurol.2013.08.001","article-title":"Tuberous sclerosis complex diagnostic criteria update: recommendations of the 2012 international Tuberous sclerosis complex consensus conference","volume":"49","author":"Northrup","year":"2013","journal-title":"Pediatr. Neurol."},{"key":"10.1016\/j.ejpn.2026.03.005_bib6","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1016\/j.pediatrneurol.2021.07.011","article-title":"Updated international Tuberous sclerosis complex diagnostic criteria and surveillance and management recommendations","volume":"123","author":"Northrup","year":"2021","journal-title":"Pediatr. Neurol."},{"key":"10.1016\/j.ejpn.2026.03.005_bib7","unstructured":"https:\/\/www.has-sante.fr\/jcms\/c_1340879\/fr\/protocoles-nationaux-de-diagnostic-et-de-soins-pnds."},{"issue":"1","key":"10.1016\/j.ejpn.2026.03.005_bib8","doi-asserted-by":"crossref","first-page":"29","DOI":"10.1186\/s42466-024-00323-6","article-title":"A multicenter, matched case-control analysis comparing burden of illness among patients with Tuberous sclerosis complex related epilepsy, generalized idiopathic epilepsy, and focal epilepsy in Germany","volume":"6","author":"Lappe","year":"2024","journal-title":"Neurol Res Pract"},{"issue":"1","key":"10.1016\/j.ejpn.2026.03.005_bib9","doi-asserted-by":"crossref","first-page":"91","DOI":"10.1186\/s13023-019-1072-y","article-title":"A step-wise approach for establishing a multidisciplinary team for the management of Tuberous sclerosis complex: a Delphi consensus report","volume":"14","author":"Auvin","year":"2019","journal-title":"Orphanet J. Rare Dis."},{"key":"10.1016\/j.ejpn.2026.03.005_bib10","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1016\/j.yebeh.2019.04.027","article-title":"Experience of follow-up, quality of life, and transition from pediatric to adult healthcare of patients with Tuberous sclerosis complex","volume":"96","author":"Bar","year":"2019","journal-title":"Epilepsy Behav."},{"issue":"2","key":"10.1016\/j.ejpn.2026.03.005_bib11","doi-asserted-by":"crossref","first-page":"205","DOI":"10.1007\/s11060-014-1429-y","article-title":"Recommendations for the radiological diagnosis and follow-up of neuropathological abnormalities associated with Tuberous sclerosis complex","volume":"118","author":"Rovira","year":"2014","journal-title":"J. Neuro Oncol."},{"key":"10.1016\/j.ejpn.2026.03.005_bib12","doi-asserted-by":"crossref","first-page":"52","DOI":"10.1016\/j.jbi.2018.02.019","article-title":"A clinician friendly data warehouse oriented toward narrative reports: dr. Warehouse","volume":"80","author":"Garcelon","year":"2018","journal-title":"J. Biomed. Inf."},{"key":"10.1016\/j.ejpn.2026.03.005_bib13","unstructured":"https:\/\/www.msdmanuals.com\/professional\/multimedia\/table\/pediatric-cerebral-performance-category-scale."},{"key":"10.1016\/j.ejpn.2026.03.005_bib14","unstructured":"https:\/\/www.ameli.fr\/assure\/remboursements\/rembourse\/frais-transport."},{"key":"10.1016\/j.ejpn.2026.03.005_bib15","unstructured":"https:\/\/www.ameli.fr\/assure\/remboursements\/rembourse\/consultations-telemedecine\/metropole."},{"key":"10.1016\/j.ejpn.2026.03.005_bib16","unstructured":"https:\/\/culture-rh.com\/calcul-taux-absenteisme\/."},{"issue":"1","key":"10.1016\/j.ejpn.2026.03.005_bib17","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1186\/s13023-016-0553-5","article-title":"TuberOus SClerosis registry to increase disease awareness (TOSCA) - baseline data on 2093 patients","volume":"12","author":"Kingswood","year":"2017","journal-title":"Orphanet J. Rare Dis."},{"issue":"1","key":"10.1016\/j.ejpn.2026.03.005_bib18","doi-asserted-by":"crossref","first-page":"430","DOI":"10.1186\/s13023-022-02580-7","article-title":"Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study","volume":"17","author":"Soussand","year":"2022","journal-title":"Orphanet J. Rare Dis."},{"key":"10.1016\/j.ejpn.2026.03.005_bib19","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2020.107376","article-title":"An accelerated shift in the use of remote systems in epilepsy due to the COVID-19 pandemic","volume":"112","author":"Kuchenbuch","year":"2020","journal-title":"Epilepsy Behav."},{"issue":"4","key":"10.1016\/j.ejpn.2026.03.005_bib20","doi-asserted-by":"crossref","first-page":"633","DOI":"10.1002\/epi4.12636","article-title":"Epidemiology and disease burden of Tuberous sclerosis complex in France: a population-based study based on national health insurance data","volume":"7","author":"Fagnani","year":"2022","journal-title":"Epilepsia Open"},{"issue":"5","key":"10.1016\/j.ejpn.2026.03.005_bib21","doi-asserted-by":"crossref","DOI":"10.1088\/1741-2552\/acfcda","article-title":"The future of wearable EEG: a review of ear-EEG technology and its applications","volume":"20","author":"Kaongoen","year":"2023","journal-title":"J. Neural. Eng."},{"issue":"1","key":"10.1016\/j.ejpn.2026.03.005_bib22","doi-asserted-by":"crossref","first-page":"250","DOI":"10.1186\/s13023-021-01838-w","article-title":"Direct and indirect costs and cost-driving factors in adults with Tuberous sclerosis complex: a multicenter cohort study and a review of the literature","volume":"16","author":"Z\u00f6llner","year":"2021","journal-title":"Orphanet J. Rare Dis."},{"key":"10.1016\/j.ejpn.2026.03.005_bib23","unstructured":"RAPPORT IGAS N\u00b02019-074R\/IGESR N\u00b02019-154."},{"key":"10.1016\/j.ejpn.2026.03.005_bib24","unstructured":"https:\/\/www.cnch.fr\/actualites\/demographie-des-cardiologues-les-donnees-du-cnomfr."}],"container-title":["European Journal of Paediatric Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379826000140?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1090379826000140?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,5,14]],"date-time":"2026-05-14T22:36:08Z","timestamp":1778798168000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1090379826000140"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,3]]},"references-count":24,"alternative-id":["S1090379826000140"],"URL":"https:\/\/doi.org\/10.1016\/j.ejpn.2026.03.005","relation":{},"ISSN":["1090-3798"],"issn-type":[{"value":"1090-3798","type":"print"}],"subject":[],"published":{"date-parts":[[2026,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Pediatric tuberous sclerosis complex: assessment of multidisciplinary follow-up in an expert center","name":"articletitle","label":"Article Title"},{"value":"European Journal of Paediatric Neurology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ejpn.2026.03.005","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}