{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T00:55:09Z","timestamp":1790902509975,"version":"4.1.0"},"reference-count":28,"publisher":"Elsevier BV","issue":"2","license":[{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,3,5]],"date-time":"2026-03-05T00:00:00Z","timestamp":1772668800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100020098","name":"Innovative Health Initiative","doi-asserted-by":"publisher","award":["101007757"],"award-info":[{"award-number":["101007757"]}],"id":[{"id":"10.13039\/100020098","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","ero.eular.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["EULAR Rheumatology Open"],"published-print":{"date-parts":[[2026,6]]},"DOI":"10.1016\/j.ero.2026.03.005","type":"journal-article","created":{"date-parts":[[2026,3,30]],"date-time":"2026-03-30T11:25:14Z","timestamp":1774869914000},"page":"100157","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"title":["\u201cI am struggling to find an explicit task\u201d\u2014a midterm evaluation of patient research partner involvement in HIPPOCRATES translational research"],"prefix":"10.1016","volume":"2","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8428-6354","authenticated-orcid":false,"given":"Maarten","family":"de Wit","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6607-6070","authenticated-orcid":false,"given":"Oliver","family":"FitzGerald","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3316-2527","authenticated-orcid":false,"given":"Anne","family":"Barton","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6693-9254","authenticated-orcid":false,"given":"Heidi","family":"Bertheussen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4756-663X","authenticated-orcid":false,"given":"Laura C.","family":"Coates","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Owen","family":"Davies","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0758-2395","authenticated-orcid":false,"given":"Christine","family":"Huppertz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Trigos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3579-5574","authenticated-orcid":false,"given":"Michaela","family":"K\u00f6hm","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sina","family":"Mackay","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Denis","family":"O\u00b4Sullivan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan","family":"Siebert","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7317-7884","authenticated-orcid":false,"given":"Wendy","family":"Wagenaar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7529-1015","authenticated-orcid":false,"given":"Stephen R.","family":"Pennington","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diana","family":"Rodrigues","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8620-8758","authenticated-orcid":false,"given":"Katie I.","family":"Gallacher","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.ero.2026.03.005_bib0001","doi-asserted-by":"crossref","first-page":"k5147","DOI":"10.1136\/bmj.k5147","article-title":"Evaluating patient and public involvement in research","volume":"363","author":"Boivin","year":"2018","journal-title":"BMJ"},{"issue":"3","key":"10.1016\/j.ero.2026.03.005_bib0002","doi-asserted-by":"crossref","first-page":"293","DOI":"10.1136\/annrheumdis-2018-214387","article-title":"Unique role of rheumatology in establishing collaborative relationships in research. Past, present and future of patient engagement","volume":"78","author":"de Wit","year":"2019","journal-title":"Ann Rheum Dis"},{"issue":"9","key":"10.1016\/j.ero.2026.03.005_bib0003","doi-asserted-by":"crossref","first-page":"1208","DOI":"10.1016\/j.healthpol.2021.07.008","article-title":"The impact of patient and public involvement in health research versus healthcare: a scoping review of reviews","volume":"125","author":"Modigh","year":"2021","journal-title":"Health Policy"},{"key":"10.1016\/j.ero.2026.03.005_bib0004","doi-asserted-by":"crossref","first-page":"n2061","DOI":"10.1136\/bmj.n2061","article-title":"A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance","volume":"374","author":"Skivington","year":"2021","journal-title":"BMJ"},{"key":"10.1016\/j.ero.2026.03.005_bib0005","doi-asserted-by":"crossref","first-page":"2139","DOI":"10.1136\/annrheumdis-2019-eular.4543","article-title":"AB1349 Patient involvement in basic rheumatology research is challenging but feasible: a 3 year\u2019s responsive evaluation of added value, pitfalls and conditions for success","volume":"78","author":"de Wit","year":"2019","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.ero.2026.03.005_bib0006","doi-asserted-by":"crossref","DOI":"10.1136\/rmdopen-2023-003566","article-title":"Involving patients as research partners in research in rheumatology: a literature review in 2023","volume":"9","author":"Elhai","year":"2023","journal-title":"RMD Open"},{"key":"10.1016\/j.ero.2026.03.005_bib0007","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1186\/s40900-020-0178-7","article-title":"Development and formative evaluation of patient research partner involvement in a multi-disciplinary European translational research project","volume":"6","author":"Birch","year":"2020","journal-title":"Res Involv Engagem"},{"issue":"3","key":"10.1016\/j.ero.2026.03.005_bib0008","doi-asserted-by":"crossref","first-page":"123","DOI":"10.1038\/s41584-022-00748-w","article-title":"HIPPOCRATES: improving diagnosis and outcomes in psoriatic arthritis","volume":"18","author":"FitzGerald","year":"2022","journal-title":"Nat Rev Rheumatol"},{"issue":"11","key":"10.1016\/j.ero.2026.03.005_bib0009","doi-asserted-by":"crossref","first-page":"1443","DOI":"10.1136\/ard-2024-225566","article-title":"EULAR recommendations for the involvement of patient research partners in rheumatology research: 2023 update","volume":"83","author":"de Wit","year":"2024","journal-title":"Ann Rheum Dis"},{"issue":"11","key":"10.1016\/j.ero.2026.03.005_bib0010","doi-asserted-by":"crossref","first-page":"609","DOI":"10.1038\/s41584-020-00507-9","article-title":"Applying precision medicine to unmet clinical needs in psoriatic disease","volume":"16","author":"Jadon","year":"2020","journal-title":"Nat Rev Rheumatol"},{"issue":"1","key":"10.1016\/j.ero.2026.03.005_bib0011","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1186\/s41927-022-00311-w","article-title":"Patient and public involvement in an international rheumatology translational research project: an evaluation","volume":"6","author":"de Souza","year":"2022","journal-title":"BMC Rheumatol"},{"issue":"4","key":"10.1016\/j.ero.2026.03.005_bib0012","doi-asserted-by":"crossref","first-page":"395","DOI":"10.1002\/msc.1171","article-title":"Patient and researcher perspectives on facilitating patient and public involvement in rheumatology research","volume":"15","author":"Pollock","year":"2017","journal-title":"Musculoskeletal Care"},{"issue":"2","key":"10.1016\/j.ero.2026.03.005_bib0013","doi-asserted-by":"crossref","first-page":"491","DOI":"10.1111\/hex.13191","article-title":"Evaluation of patient engagement in medicine development: a multi-stakeholder framework with metrics","volume":"24","author":"Vat","year":"2021","journal-title":"Health Expect"},{"issue":"1","key":"10.1016\/j.ero.2026.03.005_bib0014","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1177\/1098214005283189","article-title":"The practice and politics of responsive evaluation","volume":"27","author":"Abma","year":"2006","journal-title":"Am J Eval"},{"issue":"3","key":"10.1016\/j.ero.2026.03.005_bib0015","doi-asserted-by":"crossref","first-page":"401","DOI":"10.1177\/1049732309331869","article-title":"Patients as partners in responsive research: methodological notions for collaborations in mixed research teams","volume":"19","author":"Abma","year":"2009","journal-title":"Qual Health Res"},{"issue":"5","key":"10.1016\/j.ero.2026.03.005_bib0016","doi-asserted-by":"crossref","first-page":"583","DOI":"10.1177\/1049732305275169","article-title":"Evolving trends in qualitative research: advances in mixed-method design","volume":"15","author":"Morse","year":"2005","journal-title":"Qual Health Res"},{"key":"10.1016\/j.ero.2026.03.005_bib0017","series-title":"The SAGE handbook of qualitative research","first-page":"285","article-title":"Mixed methods research: contemporary issues in an emerging field","author":"C","year":"2011"},{"issue":"1","key":"10.1016\/j.ero.2026.03.005_bib0018","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1177\/13563890122209504","article-title":"The merits of mixing methods in evaluation","volume":"7","author":"Greene","year":"2001","journal-title":"Evaluation"},{"issue":"4","key":"10.1016\/j.ero.2026.03.005_bib0019","doi-asserted-by":"crossref","first-page":"817","DOI":"10.1111\/hex.12378","article-title":"Supporting quality public and patient engagement in health system organizations: development and usability testing of the public and patient engagement evaluation tool","volume":"19","author":"Abelson","year":"2016","journal-title":"Health Expect"},{"key":"10.1016\/j.ero.2026.03.005_bib0020","doi-asserted-by":"crossref","first-page":"55","DOI":"10.29060\/TAPS.2019-4-1\/SC2000","article-title":"Modified World Caf\u00e9\u201d workshop for a curriculum reform process","volume":"4","author":"Shimizu","year":"2019","journal-title":"Asia Pac Scholar"},{"key":"10.1016\/j.ero.2026.03.005_bib0021","series-title":"The discovery of grounded theory: strategies for qualitative research","author":"Glaser","year":"1967"},{"key":"10.1016\/j.ero.2026.03.005_bib0022","series-title":"Qualitative data analysis \u2014 using the constant comparative technique: beginning qualitative research","author":"Maykut","year":"1994"},{"key":"10.1016\/j.ero.2026.03.005_bib0023","first-page":"18","article-title":"The protocol for a patient-driven online prospective European observational cohort aiming to determine risk factors for the development of psoriatic arthritis among people living with psoriasis: the HIPPOCRATES Prospective Observational Study","author":"Grohmann","year":"2026","journal-title":"Ther Adv Musculoskelet Dis"},{"issue":"1","key":"10.1016\/j.ero.2026.03.005_bib0024","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1186\/s40900-025-00680-9","article-title":"Deliberative dialogue for co-design, co-implementation and co-evaluation of health-promoting interventions: a scoping review protocol","volume":"11","author":"Godhwani","year":"2025","journal-title":"Res Involv Engagem"},{"key":"10.1016\/j.ero.2026.03.005_bib0025","doi-asserted-by":"crossref","first-page":"148","DOI":"10.1186\/s40900-025-00818-9","article-title":"Identifying challenges and enablers to engaging patients in preclinical laboratory research: an interview study","volume":"11","author":"Foster","year":"2025","journal-title":"Res Involv Engagem"},{"key":"10.1016\/j.ero.2026.03.005_bib0026","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1007\/164_2024_730","article-title":"From innovator result-driven to Multi-actor impact-oriented public-private partnerships: integrating the patient perspective","volume":"286","author":"de Vrueh","year":"2024","journal-title":"Handb Exp Pharmacol"},{"key":"10.1016\/j.ero.2026.03.005_bib0027","series-title":"iPREPARE","article-title":"Implementing Patient Research Partner Engagement in Research (iPREPARE): summary of main findings","author":"Stevens","year":"2025"},{"issue":"1","key":"10.1016\/j.ero.2026.03.005_bib0028","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1186\/s40900-023-00454-1","article-title":"Reflections on patient engagement by patient partners: how it can go wrong","volume":"9","author":"Richards","year":"2023","journal-title":"Res Involv Engagem"}],"container-title":["EULAR Rheumatology Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S305070812600042X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S305070812600042X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T00:20:52Z","timestamp":1790900452000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S305070812600042X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6]]},"references-count":28,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2026,6]]}},"alternative-id":["S305070812600042X"],"URL":"https:\/\/doi.org\/10.1016\/j.ero.2026.03.005","relation":{},"ISSN":["3050-7081"],"issn-type":[{"value":"3050-7081","type":"print"}],"subject":[],"published":{"date-parts":[[2026,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"\u201cI am struggling to find an explicit task\u201d\u2014a midterm evaluation of patient research partner involvement in HIPPOCRATES translational research","name":"articletitle","label":"Article Title"},{"value":"EULAR Rheumatology Open","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ero.2026.03.005","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Author(s). Published by Elsevier B.V. on behalf of European Alliance of Associations for Rheumatology (EULAR).","name":"copyright","label":"Copyright"}],"article-number":"100157"}}