{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,5]],"date-time":"2026-07-05T00:13:06Z","timestamp":1783210386895,"version":"3.54.6"},"reference-count":40,"publisher":"Elsevier BV","issue":"8","license":[{"start":{"date-parts":[[2022,8,1]],"date-time":"2022-08-01T00:00:00Z","timestamp":1659312000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2022,8,1]],"date-time":"2022-08-01T00:00:00Z","timestamp":1659312000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,8,1]],"date-time":"2023-08-01T00:00:00Z","timestamp":1690848000000},"content-version":"vor","delay-in-days":365,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/100007904","name":"Texas A and M University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100007904","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["gimjournal.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Genetics in Medicine"],"published-print":{"date-parts":[[2022,8]]},"DOI":"10.1016\/j.gim.2022.04.012","type":"journal-article","created":{"date-parts":[[2022,5,18]],"date-time":"2022-05-18T01:46:35Z","timestamp":1652838395000},"page":"1644-1652","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":8,"title":["Pregnant Latinas\u2019 views of adopting exome sequencing into newborn screening: A qualitative study"],"prefix":"10.1016","volume":"24","author":[{"given":"Haocen","family":"Wang","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robin","family":"Page","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Lopez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Samruddhi","family":"Arkatkar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christine","family":"Young","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Denise","family":"Martinez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia","family":"Robbins-Furman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nora","family":"Montalvo-Liendo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5320-6350","authenticated-orcid":false,"given":"Lei-Shih","family":"Chen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.gim.2022.04.012_bib1","unstructured":"Advisory Committees on Heritable Disorders in Newborns and Children. Recommended uniform screening panel. Updated February 2020. Accessed November 4, 2021. https:\/\/www.hrsa.gov\/advisory-committees\/heritable-disorders\/rusp\/index.html."},{"issue":"4","key":"10.1016\/j.gim.2022.04.012_bib2","doi-asserted-by":"crossref","first-page":"350","DOI":"10.1002\/bdr2.1653","article-title":"Mandatory newborn screening in the United States: history, current status, and existential challenges","volume":"112","author":"McCandless","year":"2020","journal-title":"Birth Defects Res"},{"issue":"3","key":"10.1016\/j.gim.2022.04.012_bib3","doi-asserted-by":"crossref","first-page":"206","DOI":"10.1097\/GIM.0b013e31821024ca","article-title":"Public health genomics: the end of the beginning","volume":"13","author":"Khoury","year":"2011","journal-title":"Genet Med"},{"issue":"1","key":"10.1016\/j.gim.2022.04.012_bib4","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1186\/s12920-017-0247-4","article-title":"Genomic newborn screening: public health policy considerations and recommendations","volume":"10","author":"Friedman","year":"2017","journal-title":"BMC Med Genomics"},{"issue":"2","key":"10.1016\/j.gim.2022.04.012_bib5","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2016-2252","article-title":"Newborn sequencing in genomic medicine and public health","volume":"139","author":"Berg","year":"2017","journal-title":"Pediatrics"},{"issue":"4","key":"10.1016\/j.gim.2022.04.012_bib6","doi-asserted-by":"crossref","first-page":"767","DOI":"10.1038\/s41436-020-01058-w","article-title":"Methods and feasibility study for exome sequencing as a universal second-tier test in newborn screening","volume":"23","author":"Ruiz-Schultz","year":"2021","journal-title":"Genet Med"},{"issue":"4","key":"10.1016\/j.gim.2022.04.012_bib7","doi-asserted-by":"crossref","first-page":"809","DOI":"10.1038\/s41436-019-0707-7","article-title":"When should genomic and exome sequencing be implemented in newborns? A call for an update to newborn screening guidelines","volume":"22","author":"Hendricks-Sturrup","year":"2020","journal-title":"Genet Med"},{"issue":"1","key":"10.1016\/j.gim.2022.04.012_bib8","doi-asserted-by":"crossref","first-page":"344","DOI":"10.1186\/s13063-018-2686-4","article-title":"Evaluating parents\u2019 decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: a randomized controlled trial protocol","volume":"19","author":"Milko","year":"2018","journal-title":"Trials"},{"issue":"7","key":"10.1016\/j.gim.2022.04.012_bib9","doi-asserted-by":"crossref","first-page":"1372","DOI":"10.1038\/s41436-021-01146-5","article-title":"Discordant results between conventional newborn screening and genomic sequencing in the BabySeq Project","volume":"23","author":"Wojcik","year":"2021","journal-title":"Genet Med"},{"issue":"1","key":"10.1016\/j.gim.2022.04.012_bib10","doi-asserted-by":"crossref","first-page":"14","DOI":"10.1016\/j.jpeds.2013.07.028","article-title":"Genomics in newborn screening","volume":"164","author":"Landau","year":"2014","journal-title":"J\u00a0Pediatr"},{"issue":"2","key":"10.1016\/j.gim.2022.04.012_bib11","doi-asserted-by":"crossref","first-page":"369","DOI":"10.1016\/j.pcl.2018.12.007","article-title":"The current state of newborn screening in the United States","volume":"66","author":"Fabie","year":"2019","journal-title":"Pediatr Clin North Am"},{"issue":"Suppl 2","key":"10.1016\/j.gim.2022.04.012_bib12","first-page":"S2","article-title":"Sequencing newborns: a call for nuanced use of genomic technologies","volume":"48","author":"Johnston","year":"2018","journal-title":"Hastings Cent Rep"},{"issue":"1","key":"10.1016\/j.gim.2022.04.012_bib13","doi-asserted-by":"crossref","first-page":"93","DOI":"10.1111\/cge.13828","article-title":"Ethical questions concerning newborn genetic screening","volume":"99","author":"Esquerda","year":"2021","journal-title":"Clin Genet"},{"key":"10.1016\/j.gim.2022.04.012_bib14","doi-asserted-by":"crossref","first-page":"663752","DOI":"10.3389\/fped.2021.663752","article-title":"The use of whole genome and exome sequencing for newborn screening: challenges and opportunities for population health","volume":"9","author":"Woerner","year":"2021","journal-title":"Front Pediatr"},{"key":"10.1016\/j.gim.2022.04.012_bib15","doi-asserted-by":"crossref","first-page":"e21","DOI":"10.1017\/S0016672315000178","article-title":"Challenges of using next generation sequencing in newborn screening","volume":"97","author":"Reinstein","year":"2015","journal-title":"Genet Res (Camb)"},{"issue":"Suppl 1","key":"10.1016\/j.gim.2022.04.012_bib16","doi-asserted-by":"crossref","first-page":"S24","DOI":"10.1542\/peds.2015-3731F","article-title":"Potential psychosocial risks of sequencing newborns","volume":"137","author":"Frankel","year":"2016","journal-title":"Pediatrics"},{"issue":"9","key":"10.1016\/j.gim.2022.04.012_bib17","doi-asserted-by":"crossref","first-page":"1392","DOI":"10.1038\/s41591-020-0966-5","article-title":"The role of exome sequencing in newborn screening for inborn errors of metabolism","volume":"26","author":"Adhikari","year":"2020","journal-title":"Nat Med"},{"issue":"Suppl 1","key":"10.1016\/j.gim.2022.04.012_bib18","doi-asserted-by":"crossref","first-page":"S6","DOI":"10.1542\/peds.2018-1099C","article-title":"Perceived benefits, risks, and utility of newborn genomic sequencing in the BabySeq project","volume":"143","author":"Pereira","year":"2019","journal-title":"Pediatrics"},{"issue":"5","key":"10.1016\/j.gim.2022.04.012_bib19","doi-asserted-by":"crossref","first-page":"587","DOI":"10.1038\/s41431-019-0553-8","article-title":"Exome sequencing in infants with congenital hearing impairment: a population-based cohort study","volume":"28","author":"Downie","year":"2020","journal-title":"Eur J Hum Genet"},{"issue":"11","key":"10.1016\/j.gim.2022.04.012_bib20","doi-asserted-by":"crossref","first-page":"1248","DOI":"10.1038\/ejhg.2014.22","article-title":"Public views on participating in newborn screening using genome sequencing","volume":"22","author":"Bombard","year":"2014","journal-title":"Eur J Hum Genet"},{"issue":"Suppl 1","key":"10.1016\/j.gim.2022.04.012_bib21","doi-asserted-by":"crossref","first-page":"S30","DOI":"10.1542\/peds.2015-3731G","article-title":"Psychosocial factors influencing parental interest in genomic sequencing of newborns","volume":"137","author":"Waisbren","year":"2016","journal-title":"Pediatrics"},{"issue":"7","key":"10.1016\/j.gim.2022.04.012_bib22","doi-asserted-by":"crossref","first-page":"856","DOI":"10.1007\/s10995-020-02953-z","article-title":"Parental views on newborn next generation sequencing: implications for decision support","volume":"24","author":"Moultrie","year":"2020","journal-title":"Matern Child Health J"},{"key":"10.1016\/j.gim.2022.04.012_bib23","unstructured":"United States Census Bureau. QuickFacts. Updated July 1, 2021. Accessed November 4, 2021. https:\/\/www.census.gov\/quickfacts\/fact\/table\/US\/PST045219."},{"key":"10.1016\/j.gim.2022.04.012_bib24","unstructured":"Martin JA, Hamilton BE, Osterman MJK. Births in the United States, 2018. Centers for Disease Control and Prevention. National Center for Health Statistics. Published July 2019. Accessed November 4, 2021. https:\/\/www.cdc.gov\/nchs\/products\/databriefs\/db346.htm#:\u223c:text=In%202018%2C%20the%20fertility%20rate,Hispanic%20white%20(56.3)%20women."},{"key":"10.1016\/j.gim.2022.04.012_bib25","series-title":"Kids Count Data Center. Total births by race in the United States","year":"2022"},{"key":"10.1016\/j.gim.2022.04.012_bib26","unstructured":"Lopez MH, Krogstad JM, Flores A. Key facts about young Latinos, one of the nation\u2019s fastest-growing populations. Pew Research Center. Published September 13, 2018. Accessed November 4, 2021. https:\/\/www.pewresearch.org\/fact-tank\/2018\/09\/13\/key-facts-about-young-latinos\/."},{"key":"10.1016\/j.gim.2022.04.012_bib27","doi-asserted-by":"crossref","first-page":"658","DOI":"10.3389\/fgene.2019.00658","article-title":"Motivations for participation in Parkinson disease genetic research among Hispanics versus non-Hispanics","volume":"10","author":"Nuytemans","year":"2019","journal-title":"Front Genet"},{"key":"10.1016\/j.gim.2022.04.012_bib28","series-title":"Maternal and child health epidemiology. 2020 healthy Texas mother and babies data book","year":"2022"},{"key":"10.1016\/j.gim.2022.04.012_bib29","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1016\/j.jclinepi.2018.04.024","article-title":"Qualitative research is a fundamental scientific process","volume":"102","author":"Sale","year":"2018","journal-title":"J\u00a0Clin Epidemiol"},{"issue":"2","key":"10.1016\/j.gim.2022.04.012_bib30","doi-asserted-by":"crossref","first-page":"183","DOI":"10.1177\/07399863870092005","article-title":"Development of a short acculturation scale for Hispanics","volume":"9","author":"Marin","year":"1987","journal-title":"Hisp J Behav Sci"},{"issue":"12","key":"10.1016\/j.gim.2022.04.012_bib31","doi-asserted-by":"crossref","first-page":"a023150","DOI":"10.1101\/cshperspect.a023150","article-title":"Potential uses and inherent challenges of using genome-scale sequencing to augment current newborn screening","volume":"5","author":"Berg","year":"2015","journal-title":"Cold Spring Harb Perspect Med"},{"key":"10.1016\/j.gim.2022.04.012_bib32","first-page":"1","article-title":"An overview of content analysis","volume":"7","author":"Stemler","year":"2000","journal-title":"Pract Assess Res Eval"},{"issue":"1","key":"10.1016\/j.gim.2022.04.012_bib33","doi-asserted-by":"crossref","first-page":"106","DOI":"10.1097\/AOG.0000000000004412","article-title":"Rural, low-income, pregnant Latina women\u2019s perspectives on carrier screening","volume":"138","author":"Young","year":"2021","journal-title":"Obstet Gynecol"},{"issue":"5","key":"10.1016\/j.gim.2022.04.012_bib34","doi-asserted-by":"crossref","first-page":"550","DOI":"10.1007\/s11684-017-0567-y","article-title":"Clinical characterization and diagnosis of cystic fibrosis through exome sequencing in Chinese infants with Bartter-syndrome-like hypokalemia alkalosis","volume":"12","author":"Qiu","year":"2018","journal-title":"Front Med"},{"issue":"5","key":"10.1016\/j.gim.2022.04.012_bib35","doi-asserted-by":"crossref","first-page":"1529","DOI":"10.1210\/jc.2016-3414","article-title":"Whole-exome sequencing for diagnosis of Turner syndrome: toward next-generation sequencing and newborn screening","volume":"102","author":"Murdock","year":"2017","journal-title":"J\u00a0Clin Endocrinol Metab"},{"issue":"3","key":"10.1016\/j.gim.2022.04.012_bib36","doi-asserted-by":"crossref","first-page":"595","DOI":"10.1016\/j.pec.2018.10.019","article-title":"Women\u2019s preferences for and experiences with prenatal genetic testing decision making: sociodemographic disparities in preference-concordant decision making","volume":"102","author":"Molina","year":"2019","journal-title":"Patient Educ Couns"},{"issue":"3","key":"10.1016\/j.gim.2022.04.012_bib37","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1089\/10906570152742236","article-title":"Genetic counseling issues in Latinos","volume":"5","author":"Penchaszadeh","year":"2001","journal-title":"Genet Test"},{"issue":"1","key":"10.1016\/j.gim.2022.04.012_bib38","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1007\/s10897-007-9134-z","article-title":"Ethnic differences in parental perceptions of genetic testing for deaf infants","volume":"17","author":"Palmer","year":"2008","journal-title":"J\u00a0Genet Couns"},{"issue":"1","key":"10.1016\/j.gim.2022.04.012_bib39","doi-asserted-by":"crossref","first-page":"34","DOI":"10.1159\/000441552","article-title":"Genetic testing awareness and attitudes among Latinos: exploring shared perceptions and gender-based differences","volume":"19","author":"Hamilton","year":"2016","journal-title":"Public Health Genomics"},{"issue":"2","key":"10.1016\/j.gim.2022.04.012_bib40","doi-asserted-by":"crossref","first-page":"103644","DOI":"10.1016\/j.ejmg.2019.04.001","article-title":"Next generation sequencing in recurrent pregnancy loss-approaches and outcomes","volume":"63","author":"Rajcan-Separovic","year":"2020","journal-title":"Eur J Med Genet"}],"container-title":["Genetics in Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1098360022007419?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1098360022007419?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,12,17]],"date-time":"2024-12-17T06:46:14Z","timestamp":1734417974000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1098360022007419"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,8]]},"references-count":40,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2022,8]]}},"alternative-id":["S1098360022007419"],"URL":"https:\/\/doi.org\/10.1016\/j.gim.2022.04.012","relation":{},"ISSN":["1098-3600"],"issn-type":[{"value":"1098-3600","type":"print"}],"subject":[],"published":{"date-parts":[[2022,8]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Pregnant Latinas\u2019 views of adopting exome sequencing into newborn screening: A qualitative study","name":"articletitle","label":"Article Title"},{"value":"Genetics in Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.gim.2022.04.012","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2022 American College of Medical Genetics and Genomics. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}]}}