{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T23:17:17Z","timestamp":1788304637802,"version":"build-2803163510"},"reference-count":24,"publisher":"Elsevier BV","issue":"9","license":[{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,3,12]],"date-time":"2026-03-12T00:00:00Z","timestamp":1773273600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","heartlungcirc.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Heart, Lung and Circulation"],"published-print":{"date-parts":[[2026,9]]},"DOI":"10.1016\/j.hlc.2025.12.030","type":"journal-article","created":{"date-parts":[[2026,6,2]],"date-time":"2026-06-02T19:57:57Z","timestamp":1780430277000},"page":"1357-1365","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"title":["Perspectives on Advance Care Planning in Adult Congenital Heart Disease: An Australian Sample"],"prefix":"10.1016","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4264-3277","authenticated-orcid":false,"given":"Pasangi Madhuka","family":"Wijayarathne","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6915-2040","authenticated-orcid":false,"given":"Samuel","family":"Menahem","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"14","key":"10.1016\/j.hlc.2025.12.030_bib1","doi-asserted-by":"crossref","DOI":"10.1161\/JAHA.119.016400","article-title":"Causes of death and cardiovascular comorbidities in adults with congenital heart disease","volume":"9","author":"Goldstein","year":"2020","journal-title":"J Am Heart Assoc"},{"issue":"22","key":"10.1016\/j.hlc.2025.12.030_bib2","doi-asserted-by":"crossref","first-page":"2118","DOI":"10.1161\/CIRCULATIONAHA.115.017202","article-title":"Survival prospects and circumstances of death in contemporary adult congenital heart disease patients under follow-up at a large tertiary centre","volume":"132","author":"Diller","year":"2015","journal-title":"Circulation"},{"issue":"5","key":"10.1016\/j.hlc.2025.12.030_bib3","doi-asserted-by":"crossref","first-page":"721","DOI":"10.1111\/chd.12638","article-title":"Hospital resource utilization and presence of advance directives at the end of life for adults with congenital heart disease","volume":"13","author":"Steiner","year":"2018","journal-title":"Congenit Heart Dis"},{"issue":"12","key":"10.1016\/j.hlc.2025.12.030_bib4","doi-asserted-by":"crossref","first-page":"1797","DOI":"10.1016\/j.amjcard.2012.02.027","article-title":"Knowledge of and preference for advance care planning by adults with congenital heart disease","volume":"109","author":"Tobler","year":"2012","journal-title":"Am J Cardiol"},{"key":"10.1016\/j.hlc.2025.12.030_bib5","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1016\/j.ijcard.2018.10.078","article-title":"Advanced care planning in adult congenital heart disease: Transitioning from repair to palliation and end-of-life care","volume":"279","author":"Troost","year":"2019","journal-title":"Int J Cardiol"},{"issue":"1","key":"10.1016\/j.hlc.2025.12.030_bib6","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1177\/0269216311407694","article-title":"End of life care in hospitalized adults with complex congenital heart disease: care delayed, care denied","volume":"26","author":"Tobler","year":"2012","journal-title":"Palliat Med"},{"issue":"43","key":"10.1016\/j.hlc.2025.12.030_bib8","doi-asserted-by":"crossref","first-page":"4200","DOI":"10.1093\/eurheartj\/ehaa614","volume":"41","author":"Schwerzmann M Goossens","year":"2020","journal-title":"Eur Heart J"},{"issue":"12","key":"10.1016\/j.hlc.2025.12.030_bib9","doi-asserted-by":"crossref","first-page":"1494","DOI":"10.1016\/j.jacc.2018.08.1028","article-title":"2018 AHA\/ACC Guideline for the management of adults with congenital heart disease: Executive Summary: A report of the American College of Cardiology\/American Heart Association Task Force on Clinical Practice Guidelines","volume":"73","author":"Stout","year":"2019","journal-title":"J Am Coll Cardiol"},{"issue":"8","key":"10.1016\/j.hlc.2025.12.030_bib11","doi-asserted-by":"crossref","first-page":"997","DOI":"10.1177\/0269216314526272","article-title":"The effects of advance care planning on end-of-life care: A systematic review","volume":"28","author":"Brinkman-Stoppelenburg","year":"2014","journal-title":"Palliat Med"},{"issue":"5","key":"10.1016\/j.hlc.2025.12.030_bib12","doi-asserted-by":"crossref","first-page":"891","DOI":"10.1016\/j.jpainsymman.2019.07.025","article-title":"Palliative care opportunities among adults with congenital heart disease-A Systematic Review","volume":"58","author":"Ludmir","year":"2019","journal-title":"J Pain Sympt Manage"},{"key":"10.1016\/j.hlc.2025.12.030_bib13","article-title":"Advance care planning in adults with congenital heart diseases: current practices, preferences and needs ot 8281 adults from 32 countries","author":"Van Bulck","year":"2026","journal-title":"Can J Cardiol"},{"key":"10.1016\/j.hlc.2025.12.030_bib14","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1016\/j.ijcard.2022.06.064","article-title":"Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease","volume":"363","author":"Van Bulck","year":"2022","journal-title":"Int J Cardiol"},{"key":"10.1016\/j.hlc.2025.12.030_bib15","doi-asserted-by":"crossref","first-page":"1170","DOI":"10.1016\/S0735-1097(01)01272-4","article-title":"Task Force 1: The changing profile of congenital heart disease in adult life","volume":"37","author":"Warnes","year":"2001","journal-title":"J Am Coll Cardiol"},{"issue":"11-Suppl","key":"10.1016\/j.hlc.2025.12.030_bib16","doi-asserted-by":"crossref","first-page":"608","DOI":"10.1016\/S0735-1097(17)33997-9","article-title":"Factors associated with completion of advanced directives in adults with congenital heart disease","volume":"69","author":"Klein","year":"2017","journal-title":"J Am Coll Cardiol"},{"issue":"3","key":"10.1016\/j.hlc.2025.12.030_bib17","doi-asserted-by":"crossref","first-page":"403","DOI":"10.1111\/chd.12735","article-title":"Perspectives on advance care planning and palliative care among adults with congenital heart disease","volume":"14","author":"Steiner","year":"2019","journal-title":"Congenit Heart Dis"},{"key":"10.1016\/j.hlc.2025.12.030_bib18","doi-asserted-by":"crossref","first-page":"105","DOI":"10.1016\/j.ijcard.2016.12.185","article-title":"Advance care planning in adults with congenital heart disease: A patient priority","volume":"231","author":"Deng","year":"2017","journal-title":"Int J Cardiol"},{"issue":"3","key":"10.1016\/j.hlc.2025.12.030_bib19","doi-asserted-by":"crossref","first-page":"383","DOI":"10.1016\/j.ijcard.2010.10.050","article-title":"End of life in adults with congenital heart disease: a call for early communication","volume":"155","author":"Tobler","year":"2012","journal-title":"Int J Cardiol"},{"issue":"4","key":"10.1016\/j.hlc.2025.12.030_bib20","doi-asserted-by":"crossref","first-page":"281","DOI":"10.1111\/chd.12025","article-title":"Facilitators of and barriers to advance care planning in adultcongenital heart disease","volume":"8","author":"Greutmann","year":"2013","journal-title":"Congenit Heart Dis"},{"issue":"12","key":"10.1016\/j.hlc.2025.12.030_bib21","doi-asserted-by":"crossref","first-page":"173","DOI":"10.1007\/s11886-020-01428-5","article-title":"Approaching end-of-life decisions in adults with congenital heart disease","volume":"22","author":"Krasuski","year":"2020","journal-title":"Curr Cardiol Rep"},{"issue":"3","key":"10.1016\/j.hlc.2025.12.030_bib22","doi-asserted-by":"crossref","first-page":"497","DOI":"10.1017\/S1047951123002524","article-title":"Towards improving the lived experience of adult congenital heart patients: suggestions for health care practitioners","volume":"34","author":"Mackley","year":"2024","journal-title":"Cardiol Young"},{"issue":"1","key":"10.1016\/j.hlc.2025.12.030_bib23","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1177\/21501351221127895","article-title":"How do adults with congenital heart disease evaluate their clinical care?","volume":"14","author":"Wijayarathne","year":"2023","journal-title":"World J Pediatr Congenit Heart Surg"},{"issue":"9","key":"10.1016\/j.hlc.2025.12.030_bib24","doi-asserted-by":"crossref","first-page":"811","DOI":"10.1016\/j.hlc.2014.03.019","article-title":"Case studies of the perceptions of women with high risk congenital heart disease successfully completing a pregnancy","volume":"23","author":"Ngu","year":"2014","journal-title":"Heart Lung Circ"},{"issue":"3","key":"10.1016\/j.hlc.2025.12.030_bib25","doi-asserted-by":"crossref","first-page":"343","DOI":"10.1111\/chd.12579","article-title":"Improving outpatient advance care planning for adults with congenital or pediatric heart disease followed in a pediatric heart failure and transplant clinic","volume":"13","author":"Edwards","year":"2018","journal-title":"Congenit Heart Dis"},{"issue":"3","key":"10.1016\/j.hlc.2025.12.030_bib26","doi-asserted-by":"crossref","first-page":"331","DOI":"10.1016\/j.jacc.2017.05.030","article-title":"Palliative care in heart failure: The PAL-HF randomized, controlled clinical trial","volume":"70","author":"Rogers","year":"2017","journal-title":"J Am Coll Cardiol"}],"container-title":["Heart, Lung and Circulation"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S144395062600096X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S144395062600096X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T22:54:49Z","timestamp":1788303289000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S144395062600096X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9]]},"references-count":24,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["S144395062600096X"],"URL":"https:\/\/doi.org\/10.1016\/j.hlc.2025.12.030","relation":{},"ISSN":["1443-9506"],"issn-type":[{"value":"1443-9506","type":"print"}],"subject":[],"published":{"date-parts":[[2026,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Perspectives on Advance Care Planning in Adult Congenital Heart Disease: An Australian Sample","name":"articletitle","label":"Article Title"},{"value":"Heart, Lung and Circulation","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.hlc.2025.12.030","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Authors. Published by Elsevier B.V. on behalf of Australian and New Zealand Society of Cardiac and Thoracic Surgeons (ANZSCTS) and the Cardiac Society of Australia and New Zealand (CSANZ).","name":"copyright","label":"Copyright"}]}}