{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T06:59:07Z","timestamp":1780556347498,"version":"3.54.1"},"reference-count":25,"publisher":"Elsevier BV","issue":"4","license":[{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","theclinics.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Immunology and Allergy Clinics of North America"],"published-print":{"date-parts":[[2023,11]]},"DOI":"10.1016\/j.iac.2023.04.003","type":"journal-article","created":{"date-parts":[[2023,5,21]],"date-time":"2023-05-21T06:56:53Z","timestamp":1684652213000},"page":"751-762","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":14,"title":["Measuring Symptom Severity and Quality of Life in Mastocytosis"],"prefix":"10.1016","volume":"43","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5520-2900","authenticated-orcid":false,"given":"Polina","family":"Pyatilova","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4532-1644","authenticated-orcid":false,"given":"Frank","family":"Siebenhaar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.iac.2023.04.003_bib1","doi-asserted-by":"crossref","first-page":"361","DOI":"10.1146\/annurev-pathmechdis-031521-042618","article-title":"New insights into the pathogenesis of mastocytosis: emerging concepts in diagnosis and therapy","volume":"18","author":"Valent","year":"2023","journal-title":"Annu Rev Pathol"},{"issue":"11","key":"10.1016\/j.iac.2023.04.003_bib2","doi-asserted-by":"crossref","first-page":"e646","DOI":"10.1097\/HS9.0000000000000646","article-title":"Updated diagnostic criteria and classification of mast cell disorders: a consensus proposal","volume":"5","author":"Valent","year":"2021","journal-title":"Hemasphere"},{"issue":"5","key":"10.1016\/j.iac.2023.04.003_bib3","doi-asserted-by":"crossref","first-page":"602","DOI":"10.2340\/00015555-2325","article-title":"Multidisciplinary management of mastocytosis: Nordic Expert Group Consensus","volume":"96","author":"Broesby-Olsen","year":"2016","journal-title":"Acta Derm Venereol"},{"issue":"12","key":"10.1016\/j.iac.2023.04.003_bib4","doi-asserted-by":"crossref","DOI":"10.3390\/ijms20122976","article-title":"Multidisciplinary challenges in mastocytosis and how to address with personalized medicine approaches","volume":"20","author":"Valent","year":"2019","journal-title":"Int J Mol Sci"},{"issue":"7","key":"10.1016\/j.iac.2023.04.003_bib5","doi-asserted-by":"crossref","first-page":"1719","DOI":"10.1016\/j.jid.2020.12.030","article-title":"Clinical impact of skin lesions in mastocytosis: a multicenter study of the European Competence Network on Mastocytosis","volume":"141","author":"Aberer","year":"2021","journal-title":"J\u00a0Invest Dermatol"},{"issue":"5","key":"10.1016\/j.iac.2023.04.003_bib6","doi-asserted-by":"crossref","first-page":"1248","DOI":"10.1016\/j.jaip.2017.02.008","article-title":"Risk factor analysis of anaphylactic reactions in patients with systemic mastocytosis","volume":"5","author":"Gulen","year":"2017","journal-title":"J\u00a0Allergy Clin Immunol Pract"},{"issue":"2","key":"10.1016\/j.iac.2023.04.003_bib7","doi-asserted-by":"crossref","first-page":"520","DOI":"10.1016\/j.jaci.2013.06.020","article-title":"Nonaggressive systemic mastocytosis (SM) without skin lesions associated with insect-induced anaphylaxis shows unique features versus other indolent SM","volume":"133","author":"Alvarez-Twose","year":"2014","journal-title":"J\u00a0Allergy Clin Immunol"},{"issue":"8","key":"10.1016\/j.iac.2023.04.003_bib8","doi-asserted-by":"crossref","first-page":"1999","DOI":"10.1016\/j.jaip.2022.03.007","article-title":"Personalized management strategies in mast cell disorders: ECNM-AIM user's guide for daily clinical practice","volume":"10","author":"Valent","year":"2022","journal-title":"J\u00a0Allergy Clin Immunol Pract"},{"issue":"2","key":"10.1016\/j.iac.2023.04.003_bib9","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1097\/MOH.0b013e3283366c59","article-title":"Systemic mastocytosis in adults: a review on prognosis and treatment based on 342 Mayo Clinic patients and current literature","volume":"17","author":"Pardanani","year":"2010","journal-title":"Curr Opin Hematol"},{"issue":"6","key":"10.1016\/j.iac.2023.04.003_bib10","first-page":"22","article-title":"Response criteria in advanced systemic mastocytosis: evolution in the era of KIT inhibitors","author":"Shomali","year":"2021","journal-title":"Int J Mol Sci"},{"issue":"5","key":"10.1016\/j.iac.2023.04.003_bib11","doi-asserted-by":"crossref","first-page":"e2266","DOI":"10.1371\/journal.pone.0002266","article-title":"Case-control cohort study of patients' perceptions of disability in mastocytosis","volume":"3","author":"Hermine","year":"2008","journal-title":"PLoS One"},{"issue":"7\u20138","key":"10.1016\/j.iac.2023.04.003_bib12","doi-asserted-by":"crossref","first-page":"1114","DOI":"10.1111\/jocn.14676","article-title":"Everyday life and mastocytosis from a patient perspective-a qualitative study","volume":"28","author":"Jensen","year":"2019","journal-title":"J\u00a0Clin Nurs"},{"issue":"4","key":"10.1016\/j.iac.2023.04.003_bib13","doi-asserted-by":"crossref","first-page":"373","DOI":"10.1016\/j.anai.2019.12.020","article-title":"Psychological functioning and quality of life in patients with mastocytosis: a cross-sectional study","volume":"124","author":"Vermeiren","year":"2020","journal-title":"Ann Allergy Asthma Immunol"},{"issue":"11","key":"10.1016\/j.iac.2023.04.003_bib14","doi-asserted-by":"crossref","first-page":"1585","DOI":"10.1111\/all.12920","article-title":"Patient-reported disease-specific quality-of-life and symptom severity in systemic mastocytosis","volume":"71","author":"van Anrooij","year":"2016","journal-title":"Allergy"},{"issue":"4","key":"10.1016\/j.iac.2023.04.003_bib15","doi-asserted-by":"crossref","first-page":"688","DOI":"10.5114\/ada.2021.108433","article-title":"The role of the clinical and psychological symptoms of mastocytosis in the patient's quality of life","volume":"39","author":"Spolak-Bobryk","year":"2022","journal-title":"Postepy Dermatol Alergol"},{"issue":"8","key":"10.1016\/j.iac.2023.04.003_bib16","doi-asserted-by":"crossref","first-page":"3166","DOI":"10.1016\/j.jaip.2021.04.059","article-title":"Health-related quality of life and influencing factors in adults with nonadvanced mastocytosis: a cross-sectional study and qualitative approach","volume":"9","author":"Pulfer","year":"2021","journal-title":"J\u00a0Allergy Clin Immunol Pract"},{"issue":"6","key":"10.1016\/j.iac.2023.04.003_bib17","doi-asserted-by":"crossref","first-page":"435","DOI":"10.1111\/j.1365-2362.2007.01807.x","article-title":"Standards and standardization in mastocytosis: consensus statements on diagnostics, treatment recommendations and response criteria","volume":"37","author":"Valent","year":"2007","journal-title":"Eur J Clin Invest"},{"issue":"7","key":"10.1016\/j.iac.2023.04.003_bib18","doi-asserted-by":"crossref","first-page":"1489","DOI":"10.1111\/all.13425","article-title":"Development and validation of the mastocytosis activity score","volume":"73","author":"Siebenhaar","year":"2018","journal-title":"Allergy"},{"issue":"1","key":"10.1016\/j.iac.2023.04.003_bib19","doi-asserted-by":"crossref","first-page":"414","DOI":"10.1186\/s13023-021-02035-5","article-title":"Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF((c))","volume":"16","author":"Taylor","year":"2021","journal-title":"Orphanet J Rare Dis"},{"issue":"6","key":"10.1016\/j.iac.2023.04.003_bib20","doi-asserted-by":"crossref","first-page":"869","DOI":"10.1111\/all.12842","article-title":"Development and validation of the mastocytosis quality of life questionnaire: MC-QoL","volume":"71","author":"Siebenhaar","year":"2016","journal-title":"Allergy"},{"key":"10.1016\/j.iac.2023.04.003_bib21","doi-asserted-by":"crossref","first-page":"106606","DOI":"10.1016\/j.leukres.2021.106606","article-title":"Psychometric evaluation of the Advanced Systemic Mastocytosis Symptom Assessment Form (AdvSM-SAF)","volume":"108","author":"Taylor","year":"2021","journal-title":"Leuk Res"},{"issue":"1","key":"10.1016\/j.iac.2023.04.003_bib22","doi-asserted-by":"crossref","first-page":"434","DOI":"10.1186\/s13023-021-02037-3","article-title":"Psychometric evaluation of the Indolent Systemic Mastocytosis Symptom Assessment Form (ISM-SAF) in a phase 2 clinical study","volume":"16","author":"Padilla","year":"2021","journal-title":"Orphanet J Rare Dis"},{"issue":"S106","key":"10.1016\/j.iac.2023.04.003_bib23","first-page":"910","article-title":"Safety and efficacy data of AK002, an anti-siglec-8 monoclonal antibody, in patients with indolent systemic mastocytosis (ISM): Results from a first-in-human, open-label phase 1 study. Abstracts LB TPS","volume":"74","author":"Siebenhaar","year":"2019","journal-title":"Allergy"},{"issue":"13","key":"10.1016\/j.iac.2023.04.003_bib24","doi-asserted-by":"crossref","DOI":"10.3390\/cancers13133316","article-title":"Gastrointestinal manifestations in systemic mastocytosis: the need of a multidisciplinary approach","volume":"13","author":"Zanelli","year":"2021","journal-title":"Cancers"},{"issue":"4","key":"10.1016\/j.iac.2023.04.003_bib25","doi-asserted-by":"crossref","first-page":"866","DOI":"10.1016\/j.jaci.2013.05.026","article-title":"Gastrointestinal manifestations in mastocytosis: a study of 83 patients","volume":"132","author":"Sokol","year":"2013","journal-title":"J\u00a0Allergy Clin Immunol"}],"container-title":["Immunology and Allergy Clinics of North America"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0889856123000310?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0889856123000310?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T10:53:11Z","timestamp":1760179991000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0889856123000310"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,11]]},"references-count":25,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2023,11]]}},"alternative-id":["S0889856123000310"],"URL":"https:\/\/doi.org\/10.1016\/j.iac.2023.04.003","relation":{},"ISSN":["0889-8561"],"issn-type":[{"value":"0889-8561","type":"print"}],"subject":[],"published":{"date-parts":[[2023,11]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Measuring Symptom Severity and Quality of Life in Mastocytosis","name":"articletitle","label":"Article Title"},{"value":"Immunology and Allergy Clinics of North America","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.iac.2023.04.003","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}