{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T18:39:40Z","timestamp":1790879980340,"version":"4.1.0"},"reference-count":34,"publisher":"Elsevier BV","issue":"2","license":[{"start":{"date-parts":[[2004,4,1]],"date-time":"2004-04-01T00:00:00Z","timestamp":1080777600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2004,4,1]],"date-time":"2004-04-01T00:00:00Z","timestamp":1080777600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Intensive and Critical Care Nursing"],"published-print":{"date-parts":[[2004,4]]},"DOI":"10.1016\/j.iccn.2003.09.002","type":"journal-article","created":{"date-parts":[[2004,4,13]],"date-time":"2004-04-13T06:22:09Z","timestamp":1081837329000},"page":"93-102","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":14,"title":["Children who require long-term ventilation: staff education and training"],"prefix":"10.1016","volume":"20","author":[{"given":"Jaqui","family":"Hewitt-Taylor","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"2","key":"10.1016\/j.iccn.2003.09.002_BIB1","doi-asserted-by":"crossref","first-page":"112","DOI":"10.1207\/s15326888chc1702_9","article-title":"Home care for ventilator-assisted children: implications for the children, their families, and health policy","volume":"17","author":"Aday","year":"1998","journal-title":"J. Child Health Care"},{"issue":"4","key":"10.1016\/j.iccn.2003.09.002_BIB2","doi-asserted-by":"crossref","first-page":"345","DOI":"10.1046\/j.1460-9592.2002.00856.x","article-title":"Home care for chronic respiratory failure in children: 15 years experience","volume":"12","author":"Appierto","year":"2002","journal-title":"Paediatr. Anaesth."},{"issue":"2","key":"10.1016\/j.iccn.2003.09.002_BIB3","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1053\/jpdn.2001.23157","article-title":"Hospitalized children with chronic illness: parental caregiving needs and valuing parental expertise","volume":"16","author":"Balling","year":"2001","journal-title":"J. Pediatr. Nurs."},{"issue":"8","key":"10.1016\/j.iccn.2003.09.002_BIB4","first-page":"51","article-title":"Quality-of-life in technology-dependent children receiving home care, and their families\u2014a qualitative study","volume":"97","author":"Baumgardner","year":"1998","journal-title":"Western Med. J."},{"issue":"6","key":"10.1016\/j.iccn.2003.09.002_BIB5","doi-asserted-by":"crossref","first-page":"20","DOI":"10.7748\/paed2000.07.12.6.20.c693","article-title":"Technology dependent children: from hospital to home","volume":"12","author":"Boosfeld","year":"2000","journal-title":"Paediatr. Nurs."},{"key":"10.1016\/j.iccn.2003.09.002_BIB6","unstructured":"Burns N, Grove SK. The practice of nursing research, 2nd ed. London: W.B. Saunders; 1993."},{"issue":"1","key":"10.1016\/j.iccn.2003.09.002_BIB7","doi-asserted-by":"crossref","first-page":"31","DOI":"10.12968\/bjon.1995.4.1.31","article-title":"Family-centred care within contemporary British paediatric nursing","volume":"4","author":"Darbyshire","year":"1995","journal-title":"Br. J. Nurs."},{"key":"10.1016\/j.iccn.2003.09.002_BIB8","unstructured":"Department of Health. A bridge to the future-nursing standards, education and workforce planning. In: Paediatric intensive care. London: DoH; 1997."},{"issue":"6","key":"10.1016\/j.iccn.2003.09.002_BIB9","first-page":"581","article-title":"Developing a competency-based curriculum for tracheostomy and ventilator care","volume":"21","author":"Dougherty","year":"1995","journal-title":"Paediatr. Nurs."},{"issue":"6","key":"10.1016\/j.iccn.2003.09.002_BIB10","doi-asserted-by":"crossref","first-page":"25","DOI":"10.7748\/paed2000.07.12.6.25.c694","article-title":"High tech care: high skilled parents","volume":"12","author":"Glendinning","year":"2000","journal-title":"Paediatr. Nurs."},{"issue":"5","key":"10.1016\/j.iccn.2003.09.002_BIB11","doi-asserted-by":"crossref","first-page":"288","DOI":"10.1016\/S0882-5963(05)80062-4","article-title":"Do nurses and parents of children with chronic conditions agree on parental needs?","volume":"11","author":"Graves","year":"1996","journal-title":"J. Pediatr. Nurs."},{"key":"10.1016\/j.iccn.2003.09.002_BIB12","unstructured":"Hewitt-Taylor J. Nurse managers\u2019 priorities in purchasing paediatric intensive care education. Nurs Crit Care 1999;4(4)."},{"issue":"12","key":"10.1016\/j.iccn.2003.09.002_BIB13","doi-asserted-by":"crossref","first-page":"782","DOI":"10.12968\/bjon.2001.10.12.5304","article-title":"Review of home paediatric parenteral nutrition on the UK","volume":"10","author":"Holden","year":"2001","journal-title":"Br. J. Nurs."},{"key":"10.1016\/j.iccn.2003.09.002_BIB14","doi-asserted-by":"crossref","first-page":"295","DOI":"10.1136\/bmj.318.7179.295","article-title":"Current status of long-term ventilation of children in the United Kingdom: a questionnaire survey","volume":"318","author":"Jardine","year":"1999","journal-title":"Br. Med. J."},{"issue":"5","key":"10.1016\/j.iccn.2003.09.002_BIB15","doi-asserted-by":"crossref","first-page":"593","DOI":"10.1046\/j.1365-2648.2001.01788.x","article-title":"Negotiating lay and professional roles in the care of children with complex health care needs","volume":"34","author":"Kirk","year":"2001","journal-title":"J. Adv. Nurs."},{"issue":"6","key":"10.1016\/j.iccn.2003.09.002_BIB16","doi-asserted-by":"crossref","first-page":"625","DOI":"10.1016\/S0020-7489(01)00069-4","article-title":"Supporting \u2018expert\u2019 parents-professional support and families caring for a child with complex health care needs in the community","volume":"39","author":"Kirk","year":"2002","journal-title":"Int. J. Nurs. Studies"},{"key":"10.1016\/j.iccn.2003.09.002_BIB17","unstructured":"Le May A. Making use of research. London: South Bank University; 2001."},{"issue":"2","key":"10.1016\/j.iccn.2003.09.002_BIB18","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1080\/136384999289586","article-title":"Perinatal spinal cord injury requiring long-term home mechanical ventilation: a report of four cases","volume":"3","author":"Lumeng","year":"1999","journal-title":"Paediatr. Rehabil."},{"key":"10.1016\/j.iccn.2003.09.002_BIB19","doi-asserted-by":"crossref","unstructured":"Malim T, Birch A. Research methods and statistics. London: McMillan; 1997.","DOI":"10.1007\/978-1-349-13865-4"},{"issue":"4","key":"10.1016\/j.iccn.2003.09.002_BIB20","doi-asserted-by":"crossref","first-page":"234","DOI":"10.1053\/jpdn.2001.24183","article-title":"Respite care users who have children with chronic conditions: are they getting a break?","volume":"16","author":"Neufeld","year":"2001","journal-title":"J. Pediatr. Nurs."},{"key":"10.1016\/j.iccn.2003.09.002_BIB21","unstructured":"National Health Service Executive. Evaluation of the Pilot Project Programme for Children with Life Threatening Illness. London: NHSE; 1997."},{"issue":"1","key":"10.1016\/j.iccn.2003.09.002_BIB22","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1046\/j.1365-2702.2002.00565.x","article-title":"Barriers that delay children and young people who are dependent on mechanical ventilators from being discharged from hospital","volume":"11","author":"Noyes","year":"2002","journal-title":"J. Clin. Nurs."},{"issue":"1","key":"10.1016\/j.iccn.2003.09.002_BIB23","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1053\/jpdn.2001.20548","article-title":"Living in a house of cards: family experiences with long-term childhood technology dependence","volume":"16","author":"O\u2019Brien","year":"2001","journal-title":"J. Pediatr. Nurs."},{"issue":"1","key":"10.1016\/j.iccn.2003.09.002_BIB24","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1111\/j.1744-6155.2002.tb00143.x","article-title":"Rearing the child who is technology dependent: perceptions of parents and home care nurses","volume":"7","author":"O\u2019Brien","year":"2002","journal-title":"J. Specialist Pediatr. Nurs."},{"issue":"5","key":"10.1016\/j.iccn.2003.09.002_BIB25","doi-asserted-by":"crossref","first-page":"603","DOI":"10.1046\/j.1365-2648.2001.01789.x","article-title":"Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: evidence from an evaluation","volume":"34","author":"Olsen","year":"2001","journal-title":"J. Adv. Nurs."},{"key":"10.1016\/j.iccn.2003.09.002_BIB26","unstructured":"Paediatric Intensive Care Society. Standards for Paediatric Intensive Care, London, PICS; 2002."},{"key":"10.1016\/j.iccn.2003.09.002_BIB27","unstructured":"Prewlett B. Committed to caring: the views of short break carers for children who are hard to place. London: YPS; 2000."},{"key":"10.1016\/j.iccn.2003.09.002_BIB28","unstructured":"Robinson C, Jackson P. Children\u2019s Hospices: a lifeline for families? London: National Children\u2019s Bureau; 1999."},{"issue":"1","key":"10.1016\/j.iccn.2003.09.002_BIB29","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1046\/j.1365-2206.2001.00185.x","article-title":"Short breaks for families caring for a disabled child with complex health needs","volume":"6","author":"Robinson","year":"2001","journal-title":"Child Family Social Work"},{"issue":"8","key":"10.1016\/j.iccn.2003.09.002_BIB30","doi-asserted-by":"crossref","first-page":"796","DOI":"10.1016\/S0387-7604(01)00317-5","article-title":"Mechanical ventilation care in severe childhood neurological disorders","volume":"23","author":"Sasaki","year":"2001","journal-title":"Brain Dev."},{"issue":"5","key":"10.1016\/j.iccn.2003.09.002_BIB31","doi-asserted-by":"crossref","first-page":"28","DOI":"10.7748\/paed2000.06.12.5.28.c688","article-title":"Partnership in the community and hospital: a comparison","volume":"12","author":"Taylor","year":"2000","journal-title":"Paediatr. Nurs."},{"issue":"1","key":"10.1016\/j.iccn.2003.09.002_BIB32","first-page":"87","article-title":"Mothers\u2019 perspectives of an in-home nursing respite service: coping and control","volume":"34","author":"Valkenier","year":"2002","journal-title":"Can. J. Nurs. Res."},{"issue":"3","key":"10.1016\/j.iccn.2003.09.002_BIB33","doi-asserted-by":"crossref","first-page":"367","DOI":"10.1046\/j.1365-2702.2002.00623.x","article-title":"Exploring multi-agency working in services to disabled children with complex healthcare needs and their families","volume":"11","author":"Watson","year":"2002","journal-title":"J. Clin. Nurs."},{"key":"10.1016\/j.iccn.2003.09.002_BIB34","unstructured":"Wellington JJ. Methods and issues in educational research. Sheffield: Division of Education, Sheffield University; 1996."}],"container-title":["Intensive and Critical Care Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0964339703000909?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0964339703000909?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,18]],"date-time":"2025-10-18T14:19:42Z","timestamp":1760797182000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0964339703000909"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2004,4]]},"references-count":34,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2004,4]]}},"alternative-id":["S0964339703000909"],"URL":"https:\/\/doi.org\/10.1016\/j.iccn.2003.09.002","relation":{},"ISSN":["0964-3397"],"issn-type":[{"value":"0964-3397","type":"print"}],"subject":[],"published":{"date-parts":[[2004,4]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Children who require long-term ventilation: staff education and training","name":"articletitle","label":"Article Title"},{"value":"Intensive and Critical Care Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.iccn.2003.09.002","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"converted-article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2003 Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}]}}