{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T12:47:00Z","timestamp":1790254020492,"version":"4.1.0"},"reference-count":49,"publisher":"Elsevier BV","issue":"6","license":[{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,4,9]],"date-time":"2026-04-09T00:00:00Z","timestamp":1775692800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["2014633"],"award-info":[{"award-number":["2014633"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["international-journal-of-gynecological-cancer.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["International Journal of Gynecological Cancer"],"published-print":{"date-parts":[[2026,6]]},"DOI":"10.1016\/j.ijgc.2026.104687","type":"journal-article","created":{"date-parts":[[2026,4,8]],"date-time":"2026-04-08T23:20:48Z","timestamp":1775690448000},"page":"104687","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"title":["Women\u2019s lived experiences of being diagnosed with early-stage endometrial cancer and making treatment decisions: A systematic review and thematic synthesis"],"prefix":"10.1016","volume":"36","author":[{"given":"Nienke","family":"Zomerdijk","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monika","family":"Janda","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ella","family":"Mulcahy","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7685-8036","authenticated-orcid":false,"given":"Eva","family":"Baxter","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0534-8084","authenticated-orcid":false,"given":"Natasha","family":"Roberts","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"3","key":"10.1016\/j.ijgc.2026.104687_bib1","first-page":"229","article-title":"Global cancer statistics 2022: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries","volume":"74","author":"Bray","year":"2024","journal-title":"CA Cancer J Clin"},{"issue":"7","key":"10.1016\/j.ijgc.2026.104687_bib2","doi-asserted-by":"crossref","first-page":"1363","DOI":"10.1158\/2159-8290.CD-24-1678","article-title":"Trends in cancer incidence and mortality rates in early-onset and older-onset age groups in the United States, 2010-2019","volume":"15","author":"Shiels","year":"2025","journal-title":"Cancer Discov"},{"issue":"3","key":"10.1016\/j.ijgc.2026.104687_bib3","doi-asserted-by":"crossref","first-page":"e107","DOI":"10.1097\/AOG.0000000000005814","article-title":"Associated trends in obesity and endometrioid endometrial cancer in the United States","volume":"145","author":"Francoeur","year":"2025","journal-title":"Obstet Gynecol"},{"issue":"5","key":"10.1016\/j.ijgc.2026.104687_bib4","doi-asserted-by":"crossref","first-page":"1028","DOI":"10.3390\/cancers16051028","article-title":"Recent advances in endometrial cancer prevention, early diagnosis and treatment","volume":"16","author":"Baker-Rand","year":"2024","journal-title":"Cancers"},{"issue":"9","key":"10.1016\/j.ijgc.2026.104687_bib5","doi-asserted-by":"crossref","first-page":"e420","DOI":"10.1016\/S1470-2045(24)00192-X","article-title":"Clinical research in endometrial cancer: consensus recommendations from the Gynecologic Cancer Intergroup","volume":"25","author":"Creutzberg","year":"2024","journal-title":"Lancet Oncol"},{"key":"10.1016\/j.ijgc.2026.104687_bib6","article-title":"Patient experiences of conservative treatment for early stage endometrial cancer and endometrial hyperplasia with atypia using levonorgestrel intrauterine device: a qualitative study","volume":"39","author":"O\u2018Hara","year":"2022","journal-title":"Gynecol Oncol Rep"},{"issue":"1","key":"10.1016\/j.ijgc.2026.104687_bib7","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s40661-016-0023-8","article-title":"Surgical safety and personal costs in morbidly obese, multimorbid patients diagnosed with early-stage endometrial cancer having a hysterectomy","volume":"3","author":"Obermair","year":"2016","journal-title":"Gynecol Oncol Res Pract"},{"issue":"4","key":"10.1016\/j.ijgc.2026.104687_bib8","doi-asserted-by":"crossref","first-page":"417","DOI":"10.5468\/ogs.19169","article-title":"Fertility-sparing treatment in early endometrial cancer: current state and future strategies","volume":"63","author":"Obermair","year":"2020","journal-title":"Obstet Gynecol Sci"},{"issue":"1","key":"10.1016\/j.ijgc.2026.104687_bib9","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1016\/j.ygyno.2021.01.029","article-title":"Complete pathological response following levonorgestrel intrauterine device in clinically stage 1 endometrial adenocarcinoma: results of a randomized clinical trial","volume":"161","author":"Janda","year":"2021","journal-title":"Gynecol Oncol"},{"issue":"2","key":"10.1016\/j.ijgc.2026.104687_bib10","doi-asserted-by":"crossref","first-page":"191.e1","DOI":"10.1016\/j.ajog.2020.08.032","article-title":"Prospective phase II trial of levonorgestrel intrauterine device: nonsurgical approach for complex atypical hyperplasia and early-stage endometrial cancer","volume":"224","author":"Westin","year":"2021","journal-title":"Am J Obstet Gynecol"},{"key":"10.1016\/j.ijgc.2026.104687_bib11","doi-asserted-by":"crossref","first-page":"4005","DOI":"10.2147\/CMAR.S194607","article-title":"Weight control is vital for patients with early-stage endometrial cancer or complex atypical hyperplasia who have received progestin therapy to spare fertility: a systematic review and meta-analysis","volume":"11","author":"Li","year":"2019","journal-title":"Cancer Manag Res"},{"key":"10.1016\/j.ijgc.2026.104687_bib12","article-title":"Insulin resistance and metabolic syndrome increase the risk of relapse for fertility preserving treatment in atypical endometrial hyperplasia and early endometrial cancer patients","volume":"11","author":"Li","year":"2021","journal-title":"Front Oncol"},{"issue":"10","key":"10.1016\/j.ijgc.2026.104687_bib13","doi-asserted-by":"crossref","first-page":"1361","DOI":"10.1007\/s11606-012-2077-6","article-title":"Shared decision making: a model for clinical practice","volume":"27","author":"Elwyn","year":"2012","journal-title":"J Gen Intern Med"},{"issue":"12","key":"10.1016\/j.ijgc.2026.104687_bib14","doi-asserted-by":"crossref","first-page":"1865","DOI":"10.1016\/S0277-9536(00)00303-8","article-title":"Sharing decisions in cancer care","volume":"52","author":"Gattellari","year":"2001","journal-title":"Soc Sci Med"},{"issue":"5","key":"10.1016\/j.ijgc.2026.104687_bib15","doi-asserted-by":"crossref","first-page":"336","DOI":"10.1016\/j.ijsu.2010.02.007","article-title":"Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement","volume":"8","author":"Moher","year":"2010","journal-title":"Int J Surg"},{"key":"10.1016\/j.ijgc.2026.104687_bib16","series-title":"Cochrane Handbook for Systematic Reviews of Interventions","article-title":"Chapter 21: Qualitative evidence","author":"Noyes","year":"2024"},{"issue":"1","key":"10.1016\/j.ijgc.2026.104687_bib17","doi-asserted-by":"crossref","first-page":"45","DOI":"10.1186\/1471-2288-8-45","article-title":"Methods for the thematic synthesis of qualitative research in systematic reviews","volume":"8","author":"Thomas","year":"2008","journal-title":"BMC Med Res Methodol"},{"key":"10.1016\/j.ijgc.2026.104687_bib18","doi-asserted-by":"crossref","DOI":"10.1016\/j.edurev.2021.100424","article-title":"Moving qualitative synthesis research forward in education: a methodological systematic review","volume":"35","author":"Maeda","year":"2022","journal-title":"Educ Res Rev"},{"issue":"10","key":"10.1016\/j.ijgc.2026.104687_bib19","doi-asserted-by":"crossref","first-page":"1435","DOI":"10.1177\/1049732312452938","article-title":"Beyond PICO: the SPIDER tool for qualitative evidence synthesis","volume":"22","author":"Cooke","year":"2012","journal-title":"Qual Health Res"},{"issue":"3","key":"10.1016\/j.ijgc.2026.104687_bib20","doi-asserted-by":"crossref","first-page":"241","DOI":"10.1111\/wvn.12134","article-title":"A guide to writing a qualitative systematic review protocol to enhance evidence-based practice in nursing and health care","volume":"13","author":"Butler","year":"2016","journal-title":"Worldviews Evid-Based Nurs."},{"issue":"5-6","key":"10.1016\/j.ijgc.2026.104687_bib21","doi-asserted-by":"crossref","first-page":"1262","DOI":"10.1111\/jocn.14173","article-title":"Exploring communication during the journey from noticing bodily changes to a diagnosis of endometrial cancer","volume":"27","author":"Cook","year":"2018","journal-title":"J Clin Nurs"},{"issue":"6","key":"10.1016\/j.ijgc.2026.104687_bib22","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2018-026872","article-title":"Barriers to care for women with low-grade endometrial cancer and morbid obesity: a qualitative study","volume":"9","author":"Cusimano","year":"2019","journal-title":"BMJ Open"},{"issue":"1","key":"10.1016\/j.ijgc.2026.104687_bib23","doi-asserted-by":"crossref","DOI":"10.1080\/0167482X.2024.2340465","article-title":"Barriers and facilitators for healthy lifestyle and recommendations for counseling in endometrial cancer follow-up care: a qualitative study","volume":"45","author":"de Korte","year":"2024","journal-title":"J Psychosom Obstet Gynaecol"},{"issue":"5","key":"10.1016\/j.ijgc.2026.104687_bib24","doi-asserted-by":"crossref","DOI":"10.1001\/jamanetworkopen.2020.4954","article-title":"Assessment of prediagnostic experiences of Black women with endometrial cancer in the United States","volume":"3","author":"Doll","year":"2020","journal-title":"JAMA Netw Open"},{"issue":"2","key":"10.1016\/j.ijgc.2026.104687_bib25","doi-asserted-by":"crossref","first-page":"318","DOI":"10.1016\/j.ygyno.2021.11.010","article-title":"A conceptual model of vulnerability to care delay among women at risk for endometrial cancer","volume":"164","author":"Doll","year":"2022","journal-title":"Gynecol Oncol"},{"key":"10.1016\/j.ijgc.2026.104687_bib26","article-title":"Attitudes, beliefs and preferences surrounding home-based exercise programs in endometrial cancer patients receiving treatment","volume":"57","author":"Gorzelitz","year":"2025","journal-title":"Gynecol Oncol Rep"},{"issue":"2","key":"10.1016\/j.ijgc.2026.104687_bib27","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1097\/NCC.0000000000000260","article-title":"The experience of robotic-assisted laparoscopic hysterectomy for women treated for early-stage endometrial cancer: a qualitative study","volume":"39","author":"Herling","year":"2016","journal-title":"Cancer Nurs"},{"key":"10.1016\/j.ijgc.2026.104687_bib28","article-title":"Understanding the patient experience in nonsurgical management of endometrial cancer and complex atypical hyperplasia due to obesity: a qualitative analysis","volume":"54","author":"Kailasam","year":"2024","journal-title":"Gynecol Oncol Rep"},{"issue":"6","key":"10.1016\/j.ijgc.2026.104687_bib29","article-title":"Attitudes, challenges and needs about diet and physical activity in endometrial cancer survivors: a qualitative study","volume":"26","author":"Koutoukidis","year":"2017","journal-title":"Eur J Cancer Care"},{"key":"10.1016\/j.ijgc.2026.104687_bib30","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1016\/j.ejogrb.2018.03.002","article-title":"Knowledge of the risk factors and symptoms associated with endometrial cancer in British South Asian and British White women","volume":"224","author":"Kumarakulasingam","year":"2018","journal-title":"Eur J Obstet Gynecol Reprod Biol"},{"key":"10.1016\/j.ijgc.2026.104687_bib31","doi-asserted-by":"crossref","first-page":"166","DOI":"10.1016\/j.ygyno.2022.11.008","article-title":"\u201cYou start feeling comfortable, you just start sharing:\u201d a qualitative study of patient distress screening in Black and White patients with endometrial cancer","volume":"168","author":"Reid","year":"2023","journal-title":"Gynecol Oncol"},{"issue":"4","key":"10.1016\/j.ijgc.2026.104687_bib32","article-title":"Patient acceptability of circulating tumour DNA testing in endometrial cancer follow-up","volume":"30","author":"Relton","year":"2021","journal-title":"Eur J Cancer Care"},{"issue":"1-2","key":"10.1016\/j.ijgc.2026.104687_bib33","doi-asserted-by":"crossref","first-page":"245","DOI":"10.1111\/jocn.14615","article-title":"\u201cBut this is a good cancer:\u201d patient perceptions of endometrial cancer in Denmark","volume":"28","author":"Sidenius","year":"2019","journal-title":"J Clin Nurs"},{"issue":"5","key":"10.1016\/j.ijgc.2026.104687_bib34","doi-asserted-by":"crossref","first-page":"950","DOI":"10.1111\/1467-9566.12875","article-title":"Feeling lucky: hierarchies of suffering and stories of endometrial cancer in a Danish context","volume":"41","author":"Sidenius","year":"2019","journal-title":"Sociol Health Illn"},{"issue":"1","key":"10.1016\/j.ijgc.2026.104687_bib35","doi-asserted-by":"crossref","first-page":"156","DOI":"10.1111\/ajo.13875","article-title":"\u201cIt\u2019s not a solution to keep telling me to lose weight!\u201d exploring endometrial cancer survivors\u2019 experiences of nutrition and well-being advice: a qualitative study","volume":"65","author":"Williams","year":"2025","journal-title":"Aust N Z J Obstet Gynaecol"},{"key":"10.1016\/j.ijgc.2026.104687_bib36","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1016\/j.ejon.2018.02.005","article-title":"Telephone follow-up after treatment for endometrial cancer: a qualitative study of patients\u2018 and clinical nurse specialists\u2018 experiences in the ENDCAT trial","volume":"34","author":"Williamson","year":"2018","journal-title":"Eur J Oncol Nurs"},{"issue":"1","key":"10.1016\/j.ijgc.2026.104687_bib37","doi-asserted-by":"crossref","first-page":"pkad001","DOI":"10.1093\/jncics\/pkad001","article-title":"Differential trends in rising endometrial cancer incidence by age, race, and ethnicity","volume":"7","author":"Liu","year":"2023","journal-title":"JNCI Cancer Spectr"},{"issue":"3","key":"10.1016\/j.ijgc.2026.104687_bib38","first-page":"202","article-title":"Cancer statistics for African American\/black people 2022","volume":"72","author":"Giaquinto","year":"2022","journal-title":"CA Cancer J Clin"},{"issue":"3","key":"10.1016\/j.ijgc.2026.104687_bib39","doi-asserted-by":"crossref","first-page":"396.e1","DOI":"10.1016\/j.ajog.2020.02.021","article-title":"Impact of quality of care on racial disparities in survival for endometrial cancer","volume":"223","author":"Huang","year":"2020","journal-title":"Am J Obstet Gynecol"},{"issue":"3","key":"10.1016\/j.ijgc.2026.104687_bib40","doi-asserted-by":"crossref","first-page":"511","DOI":"10.1016\/j.ygyno.2019.03.244","article-title":"Time to surgery and its impact on survival in patients with endometrial cancer: a National cancer database study","volume":"153","author":"AlHilli","year":"2019","journal-title":"Gynecol Oncol"},{"issue":"12","key":"10.1016\/j.ijgc.2026.104687_bib41","doi-asserted-by":"crossref","DOI":"10.1016\/j.jogc.2024.102707","article-title":"Recognizing endometrial cancer risks in perimenopausal and postmenopausal experiences: insights from community qualitative interviews and workshop","volume":"46","author":"Ibrahim","year":"2024","journal-title":"J Obstet Gynaecol Can"},{"key":"10.1016\/j.ijgc.2026.104687_bib42","doi-asserted-by":"crossref","first-page":"132","DOI":"10.1016\/j.ygyno.2023.11.030","article-title":"Exploring the perspectives of underrepresented voices: perceptions and experiences of uterine cancer for black African, Caribbean, black British, and mixed-black women in the UK to develop strategies for early symptom presentation, Caribbean","volume":"180","author":"Darko","year":"2024","journal-title":"Gynecol Oncol"},{"issue":"2","key":"10.1016\/j.ijgc.2026.104687_bib43","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1200\/CCI.17.00148","article-title":"What is the effectiveness of patient decision Aids for cancer-related decisions? A systematic review subanalysis","volume":"2","author":"McAlpine","year":"2018","journal-title":"JCO Clin Cancer Inform"},{"key":"10.1016\/j.ijgc.2026.104687_bib44","series-title":"Survivorship Care for Cancer Patients: A Clinician\u2019s Handbook","first-page":"345","article-title":"Psychological issues and care of cancer survivors","author":"Zomerdijk","year":"2021"},{"issue":"3","key":"10.1016\/j.ijgc.2026.104687_bib45","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2017-019576","article-title":"Understanding the role of health information in patients\u2019 experiences: secondary analysis of qualitative narrative interviews with people diagnosed with cancer in Germany","volume":"8","author":"Bl\u00f6dt","year":"2018","journal-title":"BMJ Open"},{"issue":"2","key":"10.1016\/j.ijgc.2026.104687_bib46","doi-asserted-by":"crossref","first-page":"e36","DOI":"10.3802\/jgo.2023.34.e36","article-title":"Levonorgestrel-releasing intrauterine system-based therapies for early-stage endometrial cancer: a systematic review and meta-analysis","volume":"34","author":"Wei","year":"2023","journal-title":"J Gynecol Oncol"},{"issue":"5","key":"10.1016\/j.ijgc.2026.104687_bib47","doi-asserted-by":"crossref","first-page":"403","DOI":"10.1016\/j.jpsychores.2008.12.012","article-title":"Social support and cancer progression: a systematic review","volume":"67","author":"Nausheen","year":"2009","journal-title":"J Psychosom Res"},{"issue":"6","key":"10.1016\/j.ijgc.2026.104687_bib48","first-page":"342","article-title":"Efficacy of exercise interventions for women during and after gynaecological cancer treatment - a systematic scoping review","volume":"31","author":"Rose","year":"2023","journal-title":"Support Care Cancer"},{"issue":"8","key":"10.1016\/j.ijgc.2026.104687_bib49","doi-asserted-by":"crossref","first-page":"842","DOI":"10.1093\/abm\/kaab078","article-title":"Physical activity adoption and maintenance among breast cancer survivors: a randomized trial of peer mentoring","volume":"56","author":"Pinto","year":"2022","journal-title":"Ann Behav Med"}],"container-title":["International Journal of Gynecological Cancer"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1048891X26002185?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1048891X26002185?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T09:33:56Z","timestamp":1780306436000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1048891X26002185"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6]]},"references-count":49,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2026,6]]}},"alternative-id":["S1048891X26002185"],"URL":"https:\/\/doi.org\/10.1016\/j.ijgc.2026.104687","relation":{},"ISSN":["1048-891X"],"issn-type":[{"value":"1048-891X","type":"print"}],"subject":[],"published":{"date-parts":[[2026,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Women\u2019s lived experiences of being diagnosed with early-stage endometrial cancer and making treatment decisions: A systematic review and thematic synthesis","name":"articletitle","label":"Article Title"},{"value":"International Journal of Gynecological Cancer","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ijgc.2026.104687","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Authors. Published by Elsevier Inc. on behalf of European Society of Gynaecological Oncology and the International Gynecologic Cancer Society.","name":"copyright","label":"Copyright"}],"article-number":"104687"}}