{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,25]],"date-time":"2026-03-25T18:51:00Z","timestamp":1774464660804,"version":"3.50.1"},"reference-count":49,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2021,7,1]],"date-time":"2021-07-01T00:00:00Z","timestamp":1625097600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2021,7,1]],"date-time":"2021-07-01T00:00:00Z","timestamp":1625097600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["International Journal of Orthopaedic and Trauma Nursing"],"published-print":{"date-parts":[[2021,7]]},"DOI":"10.1016\/j.ijotn.2020.100831","type":"journal-article","created":{"date-parts":[[2020,11,7]],"date-time":"2020-11-07T18:33:55Z","timestamp":1604774035000},"page":"100831","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":8,"special_numbering":"C","title":["The voices of people with an intellectual disability and a carer about orthopaedic and trauma hospital care in the UK: An interpretative phenomenological study"],"prefix":"10.1016","volume":"42","author":[{"given":"Mary","family":"Drozd","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Darren","family":"Chadwick","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Jester","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.ijotn.2020.100831_bib1","series-title":"Oxford Handbook of Learning and Intellectual Disability Nursing","article-title":"\u2018Principles and values of social policy and their effects on intellectual disability\u2019 Chapter 1","author":"Barr","year":"2019"},{"key":"10.1016\/j.ijotn.2020.100831_bib2","first-page":"37","article-title":"Diagnostic overshadowing: see beyond the diagnosis","author":"Blair","year":"2017","journal-title":"British Journal of Family Medicine"},{"issue":"4","key":"10.1016\/j.ijotn.2020.100831_bib3","doi-asserted-by":"crossref","first-page":"351","DOI":"10.1177\/1744987110370019","article-title":"\u2018Equality and access to general health care for people with learning disabilities: reality or rhetoric\u2019?","volume":"15","author":"Brown","year":"2010","journal-title":"J. Res. Nurs."},{"issue":"7","key":"10.1016\/j.ijotn.2020.100831_bib4","doi-asserted-by":"crossref","first-page":"511","DOI":"10.1016\/S2215-0366(14)00078-9","article-title":"Practice nurse health checks for adults with intellectual disabilities: a cluster-design, randomised controlled trial","volume":"1","author":"Cooper","year":"2014","journal-title":"The Lancet Psychiatry"},{"key":"10.1016\/j.ijotn.2020.100831_bib5","series-title":"Oxford Handbook of Learning and Intellectual Disability Nursing","article-title":"\u2018Changes across the Lifespan\u2019 Chapter 5 in Barr, O., and Gates, B","author":"Crickmore","year":"2019"},{"key":"10.1016\/j.ijotn.2020.100831_bib6","doi-asserted-by":"crossref","first-page":"pp130","DOI":"10.1111\/bld.12120","article-title":"So often they do not get recruited: exploring service user and staff perspectives on participation in learning disability research and the barriers that inhibit it","volume":"44","author":"Crook","year":"2015","journal-title":"Br. J. Learn. Disabil."},{"key":"10.1016\/j.ijotn.2020.100831_bib7","series-title":"The NHS Constitution: the NHS Belongs to Us All","author":"Department of Health","year":"2009"},{"key":"10.1016\/j.ijotn.2020.100831_bib54","doi-asserted-by":"crossref","DOI":"10.1016\/j.ijotn.2020.100795","article-title":"An integrative review of the hospital experiences of people with an intellectual disability: Lack of orthopaedic and trauma perspectives","volume":"39","author":"Drozd","year":"2020","journal-title":"International Journal of Orthopaedic and Trauma Nursing"},{"key":"10.1016\/j.ijotn.2020.100831_bib55","article-title":"A cross-case comparison of the trauma and orthopaedic hospital experiences of adults with intellectual disabilities using interpretative phenomenological analysis","author":"Drozd","year":"2020","journal-title":"Nursing Open"},{"key":"10.1016\/j.ijotn.2020.100831_bib8","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1348\/147608305X41100","article-title":"I feel like a scrambled egg in my head: an idiographic case study of meaning making and anger using interpretative phenomenological analysis","volume":"79","author":"Eatough","year":"2006","journal-title":"Psychol. Psychother. Theor. Res. Pract."},{"key":"10.1016\/j.ijotn.2020.100831_bib9","series-title":"Improving Health and Lives: Learning Disabilities Observatory. People with Learning Disabilities in England 2012","author":"Emerson","year":"2012"},{"key":"10.1016\/j.ijotn.2020.100831_bib10","series-title":"Health Inequalities & People with Learning Disabilities in the UK: 2012. Improving Health and Lives","author":"Emerson","year":"2012"},{"key":"10.1016\/j.ijotn.2020.100831_bib13","series-title":"Phenomenology for Therapists: Researching the Lived World","article-title":"\u2018Interpretative phenomenological analysis\u2019 in findlay, L","author":"Finlay","year":"2011"},{"key":"10.1016\/j.ijotn.2020.100831_bib14","series-title":"Healthcare Research: a Handbook for Students and Practitioners","article-title":"Involving people with intellectual disabilities in research: participation and emancipation","author":"Gibbs","year":"2010"},{"issue":"4","key":"10.1016\/j.ijotn.2020.100831_bib15","doi-asserted-by":"crossref","first-page":"298","DOI":"10.1111\/j.1365-2524.2004.00499.x","article-title":"Involving people with learning disabilities in research: issues andPossibilities","volume":"12","author":"Gilbert","year":"2004","journal-title":"Health Soc. Care Community"},{"issue":"1","key":"10.1016\/j.ijotn.2020.100831_bib16","doi-asserted-by":"crossref","first-page":"62","DOI":"10.1111\/jir.12314","article-title":"Mortality in people with intellectual disabilities in England","volume":"61","author":"Glover","year":"2017","journal-title":"J. Intellect. Disabil. Res."},{"key":"10.1016\/j.ijotn.2020.100831_bib17","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1016\/j.ijotn.2016.08.004","article-title":"Initial testing of a behavioural pain assessment tool within trauma units","volume":"24","author":"Gregory","year":"2017","journal-title":"International Journal of Orthopaedic and Trauma Nursing"},{"key":"10.1016\/j.ijotn.2020.100831_bib18","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1016\/j.ijotn.2015.10.001","article-title":"The assessment and management of pain in an orthopaedic out-patient setting: a Case study","volume":"22","author":"Hall","year":"2016","journal-title":"International Journal of Orthopaedic and Trauma Nursing"},{"issue":"10","key":"10.1016\/j.ijotn.2020.100831_bib19","first-page":"756","article-title":"Interpretative phenomenological analysis","volume":"24","author":"Hefferon","year":"2011","journal-title":"Psychol."},{"key":"10.1016\/j.ijotn.2020.100831_bib20","author":"Heslop"},{"issue":"9","key":"10.1016\/j.ijotn.2020.100831_bib21","doi-asserted-by":"crossref","first-page":"34","DOI":"10.7748\/ldp.18.9.34.s27","article-title":"Experiences of acute hospital services among people with mild to moderate learning disabilities","volume":"18","author":"Howieson","year":"2015","journal-title":"Learn. Disabil. Pract."},{"issue":"3","key":"10.1016\/j.ijotn.2020.100831_bib22","doi-asserted-by":"crossref","first-page":"4","DOI":"10.7748\/nr2010.04.17.3.4.c7740","article-title":"Giving them a voice: the value of qualitative research","volume":"17","author":"Jack","year":"2010","journal-title":"Nurse Res."},{"issue":"5","key":"10.1016\/j.ijotn.2020.100831_bib23","doi-asserted-by":"crossref","first-page":"6","DOI":"10.7748\/nr.23.5.6.s2","article-title":"Undertaking healthcare research with vulnerable populations: lessons to share","volume":"23","author":"Jack","year":"2016","journal-title":"Nurse Res."},{"key":"10.1016\/j.ijotn.2020.100831_bib24","article-title":"Prevalence of physical conditions and multimorbidity in a cohort of adults with intellectual disabilities with and without Down syndrome: cross sectional study","volume":"8","author":"Kinnear","year":"2018","journal-title":"British Medical Journal Open"},{"key":"10.1016\/j.ijotn.2020.100831_bib26","series-title":"Learning to Listen: Positive Approaches and People with Difficult Behaviour","author":"Lovett","year":"1996"},{"issue":"7","key":"10.1016\/j.ijotn.2020.100831_bib27","doi-asserted-by":"crossref","first-page":"1552","DOI":"10.1111\/jan.12629","article-title":"Making reasonable and achievable adjustments: the contributions of learning disability liaison nurses in 'Getting it right' for people with learning disabilities receiving general hospitals care","volume":"71","author":"MacArthur","year":"2015","journal-title":"J. Adv. Nurs."},{"key":"10.1016\/j.ijotn.2020.100831_bib28","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.ijotn.2018.09.002","article-title":"Prevention of chronic pain: an acute pain management imperative","volume":"31","author":"Mackintosh-Franklin","year":"2018","journal-title":"International Journal of Orthopaedic and Trauma Nursing"},{"key":"10.1016\/j.ijotn.2020.100831_bib29","series-title":"Orthopaedic and Trauma Nursing. An Evidence-Based Approach to Musculoskeletal Care","article-title":"\u2018Pain assessment and management in orthopaedic and trauma care\u2019","author":"Mackintosh-Franklin","year":"2014"},{"key":"10.1016\/j.ijotn.2020.100831_bib30","series-title":"Growing Older with an Intellectual Disability in Ireland 2011: First Results from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDSTILDA)","author":"McCarron","year":"2011"},{"key":"10.1016\/j.ijotn.2020.100831_bib31","series-title":"Person-Centred Nursing. Theory and Practice","author":"McCormack","year":"2010"},{"key":"10.1016\/j.ijotn.2020.100831_bib32","author":"McDonald"},{"key":"10.1016\/j.ijotn.2020.100831_bib33","series-title":"Mencap (2012) Death By Indifference: 74 Deaths and Counting","author":"Mencap","year":"2012"},{"key":"10.1016\/j.ijotn.2020.100831_bib34","author":"Michael"},{"key":"10.1016\/j.ijotn.2020.100831_bib36","first-page":"1","article-title":"Nursing care at end of life: a UK-based survey of the deaths of people living in care settings for people with intellectual disability","author":"Northway","year":"2018","journal-title":"J. Res. Nurs."},{"key":"10.1016\/j.ijotn.2020.100831_bib37","series-title":"Learning Disabilities: towards Inclusion","first-page":"3","article-title":"The Social Construct of Learning Disability","author":"Nunkoosing","year":"2012"},{"key":"10.1016\/j.ijotn.2020.100831_bib38","series-title":"The Needs of People with Learning Disabilities","year":"2017"},{"key":"10.1016\/j.ijotn.2020.100831_bib39","series-title":"A Competence Framework for Orthopaedic and Trauma Practitioners","year":"2019"},{"issue":"5","key":"10.1016\/j.ijotn.2020.100831_bib40","doi-asserted-by":"crossref","first-page":"704","DOI":"10.1177\/1049732310391273","article-title":"The involvement of users and carers in health and social research: the realities of inclusion and engagement","volume":"21","author":"Read","year":"2011","journal-title":"Qual. Health Res."},{"issue":"3","key":"10.1016\/j.ijotn.2020.100831_bib41","doi-asserted-by":"crossref","first-page":"173","DOI":"10.12968\/ijpn.2003.9.4.11501","article-title":"Difficulties in identifying distress and its causes in people with severe communication problems","volume":"9","author":"Regnard","year":"2003","journal-title":"Int. J. Palliat. Nurs."},{"issue":"4","key":"10.1016\/j.ijotn.2020.100831_bib42","doi-asserted-by":"crossref","first-page":"277","DOI":"10.1111\/j.1365-2788.2006.00875.x","article-title":"Understanding distress in people with severe communication difficulties: developing and assessing the Disability Distress Assessment Tool (DisDAT)","volume":"51","author":"Regnard","year":"2007","journal-title":"J. Intellect. Disabil. Res."},{"key":"10.1016\/j.ijotn.2020.100831_bib43","series-title":"Dignity in Health Care for People with Learning Disabilities","year":"2013"},{"key":"10.1016\/j.ijotn.2020.100831_bib44","article-title":"Access to healthcare for men and women with disabilities in the UK: secondary analysis of cross-sectional data","volume":"7","author":"Sakellariou","year":"2017","journal-title":"British Medical Journal Open"},{"key":"10.1016\/j.ijotn.2020.100831_bib45","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1016\/j.joon.2005.02.003","article-title":"A Competency framework for orthopaedic and trauma nursing","volume":"9","author":"Santy","year":"2005","journal-title":"J. Orthop. Nurs."},{"key":"10.1016\/j.ijotn.2020.100831_bib46","series-title":"Qualitative Psychology: A Practical Guide to Research Methods","first-page":"53","article-title":"\u2018Interpretative phenomenological analysis\u2019","author":"Smith","year":"2008"},{"key":"10.1016\/j.ijotn.2020.100831_bib47","series-title":"Interpretative Phenomenological Analysis. Theory, Method and Research","author":"Smith","year":"2009"},{"key":"10.1016\/j.ijotn.2020.100831_bib48","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1016\/j.ijotn.2018.08.002","article-title":"\u2018Patients\u2019 experiences during the first 12 weeks after discharge in fast-track hip and knee arthroplasty\u2013a qualitative study\u2019","volume":"31","author":"Specht","year":"2018","journal-title":"International Journal of Orthopaedic and Trauma Nursing"},{"key":"10.1016\/j.ijotn.2020.100831_bib49","first-page":"4","article-title":"The barriers to and enablers of providing reasonably adjusted health services to people with intellectual disabilities in acute hospitals: evidence from a mixed-methods study","volume":"4","author":"Tuffrey-Wijne","year":"2014","journal-title":"British Medical Journal Open"},{"key":"10.1016\/j.ijotn.2020.100831_bib50","series-title":"The challenges in monitoring and preventing patient safety incidents for people with intellectual disabilities in NHS acute hospitals: evidence from a mixed-methods study","first-page":"432","volume":"14","author":"Tuffrey-Wijne","year":"2014"},{"key":"10.1016\/j.ijotn.2020.100831_bib52","series-title":"ICD-10 Version: 2010","year":"2010"}],"container-title":["International Journal of Orthopaedic and Trauma Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1878124120301428?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1878124120301428?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,30]],"date-time":"2025-10-30T05:53:30Z","timestamp":1761803610000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1878124120301428"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,7]]},"references-count":49,"alternative-id":["S1878124120301428"],"URL":"https:\/\/doi.org\/10.1016\/j.ijotn.2020.100831","relation":{},"ISSN":["1878-1241"],"issn-type":[{"value":"1878-1241","type":"print"}],"subject":[],"published":{"date-parts":[[2021,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The voices of people with an intellectual disability and a carer about orthopaedic and trauma hospital care in the UK: An interpretative phenomenological study","name":"articletitle","label":"Article Title"},{"value":"International Journal of Orthopaedic and Trauma Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ijotn.2020.100831","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Crown Copyright \u00a9 2020 Published by Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}],"article-number":"100831"}}