{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T09:37:09Z","timestamp":1790761029079,"version":"4.1.0"},"reference-count":15,"publisher":"Elsevier BV","issue":"2","license":[{"start":{"date-parts":[[2009,4,1]],"date-time":"2009-04-01T00:00:00Z","timestamp":1238544000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2009,4,1]],"date-time":"2009-04-01T00:00:00Z","timestamp":1238544000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","jaapos.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of American Association for Pediatric Ophthalmology and Strabismus"],"published-print":{"date-parts":[[2009,4]]},"DOI":"10.1016\/j.jaapos.2008.10.008","type":"journal-article","created":{"date-parts":[[2009,1,21]],"date-time":"2009-01-21T15:38:13Z","timestamp":1232552293000},"page":"191-195","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":19,"title":["Evaluation of vision-specific quality-of-life in albinism"],"prefix":"10.1016","volume":"13","author":[{"given":"Beth R.","family":"Kutzbach","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kimberly S.","family":"Merrill","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathy M.","family":"Hogue","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sara J.","family":"Downes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ann M.","family":"Holleschau","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John T.","family":"MacDonald","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C. Gail","family":"Summers","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jaapos.2008.10.008_bib1","doi-asserted-by":"crossref","first-page":"565","DOI":"10.1097\/00008480-199912000-00016","article-title":"Albinism","volume":"11","author":"Oetting","year":"1999","journal-title":"Current Opinion in Pediatrics"},{"key":"10.1016\/j.jaapos.2008.10.008_bib2","doi-asserted-by":"crossref","first-page":"1050","DOI":"10.1001\/archopht.119.7.1050","article-title":"National Eye Institute Visual Function Questionnaire Field Test Investigators. Development of the 25-item National Eye Institute Visual Function Questionnaire","volume":"119","author":"Mangione","year":"2001","journal-title":"Arch Ophthalmol"},{"key":"10.1016\/j.jaapos.2008.10.008_bib3","doi-asserted-by":"crossref","first-page":"622","DOI":"10.7326\/0003-4819-118-8-199304150-00009","article-title":"Measuring health-related quality of life","volume":"118","author":"Guyatt","year":"1993","journal-title":"Annals of Internal Medicine"},{"key":"10.1016\/j.jaapos.2008.10.008_bib4","doi-asserted-by":"crossref","first-page":"1496","DOI":"10.1001\/archopht.116.11.1496","article-title":"Psychometric properties of the National Eye Institute Visual Function Questionnaire (NEI-VFQ)","volume":"116","author":"Mangione","year":"1998","journal-title":"Arch Ophthalmol"},{"key":"10.1016\/j.jaapos.2008.10.008_bib5","doi-asserted-by":"crossref","first-page":"1450","DOI":"10.1016\/j.ophtha.2006.02.060","article-title":"Evaluation of the National Eye Institute Visual Function Questionnaire in Graves' Ophthalmopathy","volume":"113","author":"Bradley","year":"2006","journal-title":"Ophthalmology"},{"key":"10.1016\/j.jaapos.2008.10.008_bib6","doi-asserted-by":"crossref","first-page":"841","DOI":"10.1001\/archopht.119.6.841","article-title":"Visual functioning and general health status in patients with uveitis","volume":"119","author":"Schiffman","year":"2001","journal-title":"Arch Ophthalmol"},{"key":"10.1016\/j.jaapos.2008.10.008_bib7","unstructured":"Rand Health. Version 2000, The National Eye Institute 25-item Visual Function Questionnaire (VFQ-25). Available at: http:\/\/www.rand.org\/health\/surveys_tools\/vfq\/vfq25_manual.pdf. Accessed April 2, 2006."},{"key":"10.1016\/j.jaapos.2008.10.008_bib8","series-title":"Metabolic and Molecular Basis of Inherited Disease","first-page":"43","article-title":"Albinism","author":"King","year":"1995"},{"key":"10.1016\/j.jaapos.2008.10.008_bib9","first-page":"1064","article-title":"Evidence for two forms of autosomal recessive albinism","volume":"2","author":"Witkop","year":"1961","journal-title":"In Man Proc Second Intern Cogn Hum Genet"},{"key":"10.1016\/j.jaapos.2008.10.008_bib10","doi-asserted-by":"crossref","first-page":"1846","DOI":"10.1016\/j.ophtha.2006.04.028","article-title":"Impact of severity and bilaterality of visual impairment on health-related quality of life","volume":"113","author":"Varma","year":"2006","journal-title":"Ophthalmology"},{"key":"10.1016\/j.jaapos.2008.10.008_bib11","doi-asserted-by":"crossref","first-page":"1307","DOI":"10.1016\/j.ophtha.2003.10.031","volume":"111","author":"Maguire","year":"2004","journal-title":"Ophthalmology"},{"key":"10.1016\/j.jaapos.2008.10.008_bib12","doi-asserted-by":"crossref","first-page":"733","DOI":"10.1001\/archopht.119.5.733","article-title":"The NEI-VFQ-25 in people with long-term type I diabetes mellitus","volume":"119","author":"Klein","year":"2001","journal-title":"Arch Ophthalmol"},{"key":"10.1016\/j.jaapos.2008.10.008_bib13","first-page":"1017","article-title":"The National Eye Institute Visual Function Questionnaire: Experience of the ONTT","volume":"41","author":"Cole","year":"2000","journal-title":"IOVS"},{"key":"10.1016\/j.jaapos.2008.10.008_bib14","doi-asserted-by":"crossref","first-page":"2097","DOI":"10.1016\/S0161-6420(03)00802-9","article-title":"Horizontal rectus tenotomy in patients with congenital nystagmus","volume":"110","author":"Hertle","year":"2003","journal-title":"Ophthalmology"},{"key":"10.1016\/j.jaapos.2008.10.008_bib15","doi-asserted-by":"crossref","first-page":"362","DOI":"10.1016\/j.ajo.2004.05.010","article-title":"Development of an instrument to assess vision-related quality of life in young children","volume":"138","author":"Felius","year":"2004","journal-title":"Am J Ophthalmol"}],"container-title":["Journal of American Association for Pediatric Ophthalmology and Strabismus"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1091853108004084?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1091853108004084?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T20:16:59Z","timestamp":1761077819000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1091853108004084"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2009,4]]},"references-count":15,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2009,4]]}},"alternative-id":["S1091853108004084"],"URL":"https:\/\/doi.org\/10.1016\/j.jaapos.2008.10.008","relation":{},"ISSN":["1091-8531"],"issn-type":[{"value":"1091-8531","type":"print"}],"subject":[],"published":{"date-parts":[[2009,4]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Evaluation of vision-specific quality-of-life in albinism","name":"articletitle","label":"Article Title"},{"value":"Journal of American Association for Pediatric Ophthalmology and Strabismus","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jaapos.2008.10.008","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2009 American Association for Pediatric Ophthalmology and Strabismus. Published by Mosby, Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}