{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,8]],"date-time":"2026-05-08T03:52:58Z","timestamp":1778212378911,"version":"3.51.4"},"reference-count":79,"publisher":"Elsevier BV","issue":"10","license":[{"start":{"date-parts":[[2023,12,1]],"date-time":"2023-12-01T00:00:00Z","timestamp":1701388800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,12,1]],"date-time":"2023-12-01T00:00:00Z","timestamp":1701388800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,10,21]],"date-time":"2023-10-21T00:00:00Z","timestamp":1697846400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["jacc.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["JACC: Advances"],"published-print":{"date-parts":[[2023,12]]},"DOI":"10.1016\/j.jacadv.2023.100716","type":"journal-article","created":{"date-parts":[[2023,11,17]],"date-time":"2023-11-17T21:02:45Z","timestamp":1700254965000},"page":"100716","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":10,"title":["Sexual Health and Well-Being in Adults With Congenital Heart Disease"],"prefix":"10.1016","volume":"2","author":[{"given":"Lorna","family":"Swan","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jonathan","family":"Windram","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Luke","family":"Burchill","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laila Akbar","family":"Ladak","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Leigh C.","family":"Reardon","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Beatriz","family":"Fernandez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Roni M.","family":"Jacobsen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maggie","family":"Simpson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"David","family":"Harrison","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Liza","family":"Morton","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"12","key":"10.1016\/j.jacadv.2023.100716_bib1","doi-asserted-by":"crossref","first-page":"e81","DOI":"10.1016\/j.jacc.2018.08.1029","article-title":"2018 AHA\/ACC guideline for the management of adults with congenital heart disease: a report of the American College of Cardiology\/American Heart Association Task Force on Clinical Practice Guidelines","volume":"73","author":"Stout","year":"2019","journal-title":"J\u00a0Am Coll Cardiol"},{"issue":"10","key":"10.1016\/j.jacadv.2023.100716_bib2","first-page":"2640","article-title":"Is sex just fun? How sexual activity improves health","volume":"6","author":"Jannini","year":"2009","journal-title":"J\u00a0Sex Med"},{"issue":"3","key":"10.1016\/j.jacadv.2023.100716_bib3","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1111\/psyg.12381","article-title":"Sexual activity and life satisfaction in older adults","volume":"19","author":"Skalacka","year":"2019","journal-title":"Psychogeriatrics"},{"issue":"2","key":"10.1016\/j.jacadv.2023.100716_bib4","doi-asserted-by":"crossref","first-page":"313","DOI":"10.1093\/ageing\/afv197","article-title":"Sex on the brain! Associations between sexual activity and cognitive function in older age","volume":"45","author":"Wright","year":"2016","journal-title":"Age Ageing"},{"issue":"6","key":"10.1016\/j.jacadv.2023.100716_bib5","first-page":"1615","article-title":"Enjoyment of sexuality and longevity in late midlife and older adults: the Longitudinal Ageing Study Amsterdam","volume":"41","author":"Beerepoot","year":"2022","journal-title":"J\u00a0Appl Gerontol"},{"issue":"6","key":"10.1016\/j.jacadv.2023.100716_bib6","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0252747","article-title":"Trauma informed interventions: a systematic review","volume":"16","author":"Han","year":"2021","journal-title":"PLoS One"},{"issue":"4","key":"10.1016\/j.jacadv.2023.100716_bib7","doi-asserted-by":"crossref","first-page":"373","DOI":"10.1111\/j.1365-2648.2006.04018.x","article-title":"Heterosexual assumptions in verbal and non-verbal communication in nursing","volume":"56","author":"Rondahl","year":"2006","journal-title":"J\u00a0Adv Nurs"},{"issue":"3","key":"10.1016\/j.jacadv.2023.100716_bib8","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1016\/0891-5245(89)90063-1","article-title":"Health education needs of adolescents with congenital heart disease","volume":"3","author":"Uzark","year":"1989","journal-title":"J\u00a0Pediatr Health Care"},{"issue":"9","key":"10.1016\/j.jacadv.2023.100716_bib9","doi-asserted-by":"crossref","first-page":"1317","DOI":"10.1016\/j.amjcard.2010.06.060","article-title":"Contraception in women with congenital heart disease","volume":"106","author":"Vigl","year":"2010","journal-title":"Am J Cardiol"},{"issue":"11","key":"10.1016\/j.jacadv.2023.100716_bib10","doi-asserted-by":"crossref","first-page":"901","DOI":"10.1007\/s00392-012-0474-9","article-title":"Counseling reproductive health issues in women with congenital heart disease","volume":"101","author":"Kaemmerer","year":"2012","journal-title":"Clin Res Cardiol"},{"key":"10.1016\/j.jacadv.2023.100716_bib11","article-title":"Transition readiness in congenital heart disease: are teens and young adults getting the recommended information?","volume":"7","author":"Harrison","year":"2022","journal-title":"Int J Cardiol Congenit Heart Dis"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib12","doi-asserted-by":"crossref","first-page":"20","DOI":"10.1111\/j.1747-0803.2012.00677.x","article-title":"Reproductive and contraceptive counseling received by adult women with congenital heart disease: a risk-based analysis","volume":"8","author":"Hinze","year":"2013","journal-title":"Congenit Heart Dis"},{"issue":"5","key":"10.1016\/j.jacadv.2023.100716_bib13","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0251155","article-title":"Sexual health knowledge and needs among young adults with congenital heart disease","volume":"16","author":"Kwon","year":"2021","journal-title":"PLoS One"},{"issue":"6","key":"10.1016\/j.jacadv.2023.100716_bib14","doi-asserted-by":"crossref","first-page":"E172","DOI":"10.1097\/JCN.0000000000000838","article-title":"Adolescents with congenital heart disease: what do they know about reproductive health and risks?","volume":"37","author":"Burstrom","year":"2022","journal-title":"J\u00a0Cardiovasc Nurs"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib15","first-page":"74","article-title":"What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education","volume":"86","author":"Moons","year":"2001","journal-title":"Heart"},{"issue":"12","key":"10.1016\/j.jacadv.2023.100716_bib16","doi-asserted-by":"crossref","first-page":"1803","DOI":"10.1016\/j.amjcard.2010.08.020","article-title":"Adolescents' understanding of their congenital heart disease on transfer to adult-focused care","volume":"106","author":"Van Deyk","year":"2010","journal-title":"Am J Cardiol"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib17","doi-asserted-by":"crossref","first-page":"31","DOI":"10.4065\/75.1.31","article-title":"Psychosocial profile of adults with complex congenital heart disease","volume":"75","author":"Horner","year":"2000","journal-title":"Mayo Clin Proc"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib18","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1111\/chd.12168","article-title":"Addressing sexual health in congenital heart disease: when being the same isn't the same","volume":"10","author":"Loomba","year":"2015","journal-title":"Congenit Heart Dis"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib19","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1016\/j.ijcard.2006.10.020","article-title":"Sexual functioning and congenital heart disease: something to worry about?","volume":"121","author":"Moons","year":"2007","journal-title":"Int J Cardiol"},{"issue":"11","key":"10.1016\/j.jacadv.2023.100716_bib20","doi-asserted-by":"crossref","first-page":"1657","DOI":"10.1016\/j.amjcard.2012.01.397","article-title":"Social burden and lifestyle in adults with congenital heart disease","volume":"109","author":"Zomer","year":"2012","journal-title":"Am J Cardiol"},{"issue":"4","key":"10.1016\/j.jacadv.2023.100716_bib21","doi-asserted-by":"crossref","first-page":"3872","DOI":"10.1016\/j.ijcard.2013.06.029","article-title":"Sexual functioning is impaired in adults with congenital heart disease","volume":"168","author":"Opic","year":"2013","journal-title":"Int J Cardiol"},{"issue":"8","key":"10.1016\/j.jacadv.2023.100716_bib22","doi-asserted-by":"crossref","first-page":"1163","DOI":"10.1016\/j.amjcard.2010.06.027","article-title":"Sexuality in adult patients with congenital heart disease and their partners","volume":"106","author":"Winter","year":"2010","journal-title":"Am J Cardiol"},{"issue":"4","key":"10.1016\/j.jacadv.2023.100716_bib23","doi-asserted-by":"crossref","first-page":"396","DOI":"10.1016\/j.jadohealth.2014.12.013","article-title":"Lifetime prevalence of sexual intercourse and contraception use at last sex among adolescents and young adults with congenital heart disease","volume":"56","author":"Fry","year":"2015","journal-title":"J\u00a0Adolesc Health"},{"issue":"3","key":"10.1016\/j.jacadv.2023.100716_bib24","doi-asserted-by":"crossref","first-page":"332","DOI":"10.1016\/j.ijcard.2007.02.040","article-title":"Sexual behavior and reproductive concerns among adolescents and young adults with congenital heart disease","volume":"125","author":"Reid","year":"2008","journal-title":"Int J Cardiol"},{"key":"10.1016\/j.jacadv.2023.100716_bib25","first-page":"347","article-title":"Chronic illness and sexual functioning","volume":"67","author":"Nusbaum","year":"2003","journal-title":"Am Fam Physician"},{"issue":"14","key":"10.1016\/j.jacadv.2023.100716_bib26","doi-asserted-by":"crossref","first-page":"1179","DOI":"10.1136\/hrt.2008.156695","article-title":"Sexuality and subjective wellbeing in male patients with congenital heart disease","volume":"95","author":"Vigl","year":"2009","journal-title":"Heart"},{"issue":"8","key":"10.1016\/j.jacadv.2023.100716_bib27","doi-asserted-by":"crossref","first-page":"e356","DOI":"10.1016\/S2468-2667(17)30118-4","article-title":"The effect of multiple adverse childhood experiences on health: a systematic review and meta-analysis","volume":"2","author":"Hughes","year":"2017","journal-title":"Lancet Public Health"},{"issue":"7","key":"10.1016\/j.jacadv.2023.100716_bib28","doi-asserted-by":"crossref","first-page":"440","DOI":"10.1136\/heartjnl-2012-303121","article-title":"Loss to follow-up of adults with repaired congenital heart disease","volume":"99","author":"Wren","year":"2013","journal-title":"Heart"},{"issue":"3","key":"10.1016\/j.jacadv.2023.100716_bib29","doi-asserted-by":"crossref","first-page":"452","DOI":"10.1111\/bjhp.12416","article-title":"Baring all: the impact of the hospital gown on patient well-being","volume":"25","author":"Morton","year":"2020","journal-title":"Br J Health Psychol"},{"issue":"2","key":"10.1016\/j.jacadv.2023.100716_bib30","doi-asserted-by":"crossref","first-page":"269","DOI":"10.1080\/17437199.2019.1625281","article-title":"Self-esteem and sexual health: a multilevel meta-analytic review","volume":"14","author":"Sakaluk","year":"2020","journal-title":"Health Psychol Rev"},{"key":"10.1016\/j.jacadv.2023.100716_bib31","series-title":"Healing Hearts and Minds","author":"Livecchi","year":"2023"},{"issue":"4","key":"10.1016\/j.jacadv.2023.100716_bib32","doi-asserted-by":"crossref","first-page":"515","DOI":"10.1016\/j.ccl.2006.08.004","article-title":"Adult congenital heart disease: the patient's perspective","volume":"24","author":"Verstappen","year":"2006","journal-title":"Cardiol Clin"},{"issue":"6","key":"10.1016\/j.jacadv.2023.100716_bib33","doi-asserted-by":"crossref","first-page":"971","DOI":"10.1016\/S0277-9536(01)00069-7","article-title":"Body image and physical disability\u2014personal perspectives","volume":"54","author":"Taleporos","year":"2002","journal-title":"Soc Sci Med"},{"issue":"2","key":"10.1016\/j.jacadv.2023.100716_bib34","doi-asserted-by":"crossref","first-page":"105","DOI":"10.1067\/mhl.2003.26","article-title":"Depression and anxiety in adults with congenital heart disease: a pilot study","volume":"32","author":"Bromberg","year":"2003","journal-title":"Heart Lung"},{"issue":"5","key":"10.1016\/j.jacadv.2023.100716_bib35","doi-asserted-by":"crossref","first-page":"853","DOI":"10.1016\/j.amjcard.2015.11.065","article-title":"Prevalence and correlates of post-traumatic stress disorder in adults with congenital heart disease","volume":"117","author":"Deng","year":"2016","journal-title":"Am J Cardiol"},{"issue":"2","key":"10.1016\/j.jacadv.2023.100716_bib36","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1111\/chd.12201","article-title":"Increasing mortality burden among adults with complex congenital heart disease","volume":"10","author":"Greutmann","year":"2015","journal-title":"Congenit Heart Dis"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib37","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1037\/rep0000166","article-title":"Disability pride protects self-esteem through the rejection-identification model","volume":"63","author":"Bogart","year":"2018","journal-title":"Rehabil Psychol"},{"issue":"11","key":"10.1016\/j.jacadv.2023.100716_bib38","doi-asserted-by":"crossref","first-page":"1143","DOI":"10.1001\/archpedi.156.11.1143","article-title":"Employment in adults with congenital heart disease","volume":"156","author":"Kamphuis","year":"2002","journal-title":"Arch Pediatr Adolesc Med"},{"key":"10.1016\/j.jacadv.2023.100716_bib39","article-title":"Adult congenital heart disease: looking back, moving forward","volume":"2","author":"Ntiloudi","year":"2021","journal-title":"Int J Cardiol Congenit Heart Dis"},{"issue":"6","key":"10.1016\/j.jacadv.2023.100716_bib40","doi-asserted-by":"crossref","first-page":"455","DOI":"10.1016\/j.annepidem.2015.03.017","article-title":"The association between disability and intimate partner violence in the United States","volume":"25","author":"Breiding","year":"2015","journal-title":"Ann Epidemiol"},{"issue":"8","key":"10.1016\/j.jacadv.2023.100716_bib41","doi-asserted-by":"crossref","first-page":"1737","DOI":"10.1016\/S0277-9536(02)00169-7","article-title":"Self-esteem and women with disabilities","volume":"56","author":"Nosek","year":"2003","journal-title":"Soc Sci Med"},{"issue":"8","key":"10.1016\/j.jacadv.2023.100716_bib42","doi-asserted-by":"crossref","first-page":"977","DOI":"10.1016\/S0277-9536(98)00411-0","article-title":"The disability paradox: high quality of life against all odds","volume":"48","author":"Albrecht","year":"1999","journal-title":"Soc Sci Med"},{"key":"10.1016\/j.jacadv.2023.100716_bib43","doi-asserted-by":"crossref","first-page":"953","DOI":"10.1016\/j.ijcard.2016.11.192","article-title":"The prevalence of sexual dysfunction and its association with quality of life in adults with\u00a0congenital heart disease","volume":"228","author":"Neiman","year":"2017","journal-title":"Int J Cardiol"},{"issue":"12","key":"10.1016\/j.jacadv.2023.100716_bib44","doi-asserted-by":"crossref","first-page":"1728","DOI":"10.1016\/j.amjcard.2008.08.017","article-title":"Erectile dysfunction in men with congenital heart disease","volume":"102","author":"Cook","year":"2008","journal-title":"Am J Cardiol"},{"issue":"11","key":"10.1016\/j.jacadv.2023.100716_bib45","doi-asserted-by":"crossref","first-page":"993","DOI":"10.1056\/NEJMoa1409077","article-title":"Angiotensin-neprilysin inhibition versus enalapril\u00a0in heart failure","volume":"371","author":"McMurray","year":"2014","journal-title":"N\u00a0Engl J Med"},{"issue":"3","key":"10.1016\/j.jacadv.2023.100716_bib46","doi-asserted-by":"crossref","first-page":"233","DOI":"10.4070\/kcj.2021.0184","article-title":"Erectile dysfunction in men with adult congenital heart disease: a prevalent but neglected issue","volume":"52","author":"Fischer","year":"2022","journal-title":"Korean Circ J"},{"issue":"10","key":"10.1016\/j.jacadv.2023.100716_bib47","doi-asserted-by":"crossref","first-page":"93","DOI":"10.1007\/s11886-018-1029-0","article-title":"It is not taboo: addressing sexual function in adults with congenital heart disease","volume":"20","author":"Huang","year":"2018","journal-title":"Curr Cardiol Rep"},{"issue":"6","key":"10.1016\/j.jacadv.2023.100716_bib48","doi-asserted-by":"crossref","first-page":"686","DOI":"10.1016\/j.jpag.2020.08.012","article-title":"Menstrual dysfunction and treatment among adolescents with congenital heart disease","volume":"33","author":"Leroy-Melamed","year":"2020","journal-title":"J\u00a0Pediatr Adolesc Gynecol"},{"issue":"9","key":"10.1016\/j.jacadv.2023.100716_bib49","doi-asserted-by":"crossref","first-page":"1745","DOI":"10.1001\/archinte.1984.00350210057007","article-title":"Heart rate, rate-pressure product, and oxygen uptake during four sexual activities","volume":"144","author":"Bohlen","year":"1984","journal-title":"Arch Intern Med"},{"issue":"3","key":"10.1016\/j.jacadv.2023.100716_bib50","first-page":"247","article-title":"Human sexual inadequacy","volume":"6","author":"Brecher","year":"1970","journal-title":"J\u00a0Sex Res"},{"issue":"3","key":"10.1016\/j.jacadv.2023.100716_bib51","doi-asserted-by":"crossref","first-page":"469","DOI":"10.1152\/jappl.1956.9.3.469","article-title":"Physiologic responses during coitus","volume":"9","author":"Bartlett","year":"1956","journal-title":"J\u00a0Appl Physiol"},{"issue":"6","key":"10.1016\/j.jacadv.2023.100716_bib52","doi-asserted-by":"crossref","first-page":"987","DOI":"10.1001\/archinte.1970.00310060065006","article-title":"Sexual activity and the postcoronary patient","volume":"125","author":"Hellerstein","year":"1970","journal-title":"Arch Intern Med"},{"issue":"3","key":"10.1016\/j.jacadv.2023.100716_bib53","doi-asserted-by":"crossref","first-page":"274","DOI":"10.1016\/S0002-8703(76)80106-8","article-title":"Heart rate and blood pressure responses during sexual activity in normal males","volume":"92","author":"Nemec","year":"1976","journal-title":"Am Heart J"},{"issue":"2","key":"10.1016\/j.jacadv.2023.100716_bib54","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1385\/FSMP:2:2:109","article-title":"Sudden cardiovascular death associated with sexual activity: a forensic autopsy study (1972-2004)","volume":"2","author":"Parzeller","year":"2006","journal-title":"Forensic Sci Med Pathol"},{"issue":"6","key":"10.1016\/j.jacadv.2023.100716_bib55","doi-asserted-by":"crossref","first-page":"995","DOI":"10.3346\/jkms.2006.21.6.995","article-title":"Causes of sudden death related to sexual activity: results of a medicolegal postmortem study from 2001 to 2005","volume":"21","author":"Lee","year":"2006","journal-title":"J\u00a0Korean Med Sci"},{"issue":"18","key":"10.1016\/j.jacadv.2023.100716_bib56","doi-asserted-by":"crossref","first-page":"1405","DOI":"10.1001\/jama.1996.03530420033032","article-title":"Triggering myocardial infarction by sexual activity. Low absolute risk and prevention by regular physical exertion. Determinants of Myocardial Infarction Onset Study Investigators","volume":"275","author":"Muller","year":"1996","journal-title":"JAMA"},{"issue":"13","key":"10.1016\/j.jacadv.2023.100716_bib57","doi-asserted-by":"crossref","first-page":"1516","DOI":"10.1016\/j.jacc.2015.07.053","article-title":"Sexual activity patterns before myocardial infarction and risk of subsequent cardiovascular adverse events","volume":"66","author":"Rothenbacher","year":"2015","journal-title":"J\u00a0Am Coll Cardiol"},{"issue":"8","key":"10.1016\/j.jacadv.2023.100716_bib58","doi-asserted-by":"crossref","first-page":"766","DOI":"10.1016\/j.mayocp.2012.06.015","article-title":"The Princeton III consensus recommendations for the management of erectile dysfunction and cardiovascular disease","volume":"87","author":"Nehra","year":"2012","journal-title":"Mayo Clin Proc"},{"issue":"4","key":"10.1016\/j.jacadv.2023.100716_bib59","doi-asserted-by":"crossref","first-page":"538","DOI":"10.1016\/j.amjcard.2009.10.025","article-title":"Sexuality and reproductive health in women with congenital heart disease","volume":"105","author":"Vigl","year":"2010","journal-title":"Am J Cardiol"},{"key":"10.1016\/j.jacadv.2023.100716_bib60","author":"Jones"},{"issue":"19","key":"10.1016\/j.jacadv.2023.100716_bib61","doi-asserted-by":"crossref","first-page":"e321","DOI":"10.1161\/CIR.0000000000000914","article-title":"Assessing and addressing cardiovascular health in LGBTQ adults: a scientific statement from the American Heart Association","volume":"142","author":"Caceres","year":"2020","journal-title":"Circulation"},{"issue":"32","key":"10.1016\/j.jacadv.2023.100716_bib62","doi-asserted-by":"crossref","first-page":"888","DOI":"10.15585\/mmwr.mm6732a4","article-title":"Prevalence of five health-related behaviors for chronic disease prevention among sexual and gender minority adults - 25 U.S. States and Guam, 2016","volume":"67","author":"Cunningham","year":"2018","journal-title":"MMWR Morb Mortal Wkly Rep"},{"issue":"2","key":"10.1016\/j.jacadv.2023.100716_bib63","first-page":"25","article-title":"The interaction of drugs to treat cardiovascular diseases and testosterone therapy, their effects and characteristics","volume":"17","author":"Aykan","year":"2021","journal-title":"J\u00a0Mens Health"},{"key":"10.1016\/j.jacadv.2023.100716_bib64","series-title":"The Report of the 2015 U.S. Transgender Survey","author":"James","year":"2016"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib65","doi-asserted-by":"crossref","first-page":"135","DOI":"10.1186\/s12913-019-3959-7","article-title":"The challenge of cultural competence in the workplace: perspectives of healthcare providers","volume":"19","author":"Shepherd","year":"2019","journal-title":"BMC Health Serv Res"},{"key":"10.1016\/j.jacadv.2023.100716_bib66","series-title":"Handbook of Quality of Life in Cancer","first-page":"189","article-title":"Cross-cultural considerations in health-related quality of life in cancer","author":"Ladak","year":"2022"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib67","doi-asserted-by":"crossref","first-page":"106","DOI":"10.1080\/14681811.2020.1753032","article-title":"Perceptions of Muslim parents and teachers towards sex education in Pakistan","volume":"21","author":"Nadeem","year":"2020","journal-title":"Sex Educ"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib68","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1080\/01443610701577107","article-title":"Women's reproductive autonomy and barriers to contraceptive use in Pakistan","volume":"13","author":"Saleem","year":"2008","journal-title":"Eur J Contracept Reprod Health Care"},{"issue":"4","key":"10.1016\/j.jacadv.2023.100716_bib69","doi-asserted-by":"crossref","first-page":"393","DOI":"10.1007\/s13178-016-0267-4","article-title":"The sexual health knowledge of people with intellectual disabilities: a review","volume":"14","author":"Borawska-Charko","year":"2016","journal-title":"Sex Res Soc Pol"},{"issue":"5","key":"10.1016\/j.jacadv.2023.100716_bib70","doi-asserted-by":"crossref","first-page":"430","DOI":"10.1111\/jir.12040","article-title":"Sexual understanding, sources of information and social networks; the reports of young people with intellectual disabilities and their non-disabled peers","volume":"58","author":"Jahoda","year":"2014","journal-title":"J\u00a0Intellect Disabil Res"},{"issue":"1","key":"10.1016\/j.jacadv.2023.100716_bib71","doi-asserted-by":"crossref","first-page":"132","DOI":"10.1097\/MOP.0000000000000177","article-title":"Health risk behaviors in adolescents and young adults with special health care needs","volume":"27","author":"Pilapil","year":"2015","journal-title":"Curr Opin Pediatr"},{"issue":"2","key":"10.1016\/j.jacadv.2023.100716_bib72","doi-asserted-by":"crossref","first-page":"152","DOI":"10.1002\/bsl.2447","article-title":"Sex and genes, part 2: a biopsychosocial approach to assess and treat challenging sexual behavior in persons with intellectual disabilities including fragile X syndrome and 22q11.2 deletion syndrome","volume":"38","author":"Miodrag","year":"2020","journal-title":"Behav Sci Law"},{"key":"10.1016\/j.jacadv.2023.100716_bib73","first-page":"163","article-title":"Sex, consent and intellectual disability","volume":"34","author":"Eastgate","year":"2005","journal-title":"Aust Fam Physician"},{"issue":"5","key":"10.1016\/j.jacadv.2023.100716_bib74","doi-asserted-by":"crossref","first-page":"999","DOI":"10.1016\/j.apmr.2020.09.379","article-title":"Addressing sexuality among people living with chronic disease and disability: a systematic mixed methods review of knowledge, attitudes, and practices of health care professionals","volume":"102","author":"McGrath","year":"2021","journal-title":"Arch Phys Med Rehabil"},{"issue":"2","key":"10.1016\/j.jacadv.2023.100716_bib75","doi-asserted-by":"crossref","first-page":"197","DOI":"10.1177\/1359105319826354","article-title":"Using psychologically informed care to improve mental health and wellbeing for people living with a heart condition from birth: a statement paper","volume":"25","author":"Morton","year":"2020","journal-title":"J\u00a0Health Psychol"},{"issue":"7","key":"10.1016\/j.jacadv.2023.100716_bib76","article-title":"Advances in managing transition to adulthood for adolescents with congenital heart disease: a practical approach to transition program design: a scientific statement from the American Heart Association","volume":"11","author":"John","year":"2022","journal-title":"J\u00a0Am Heart Assoc"},{"key":"10.1016\/j.jacadv.2023.100716_bib77","series-title":"Programme of Action. Adopted at the International Conference on Population and Development","year":"1994"},{"issue":"10140","key":"10.1016\/j.jacadv.2023.100716_bib78","doi-asserted-by":"crossref","first-page":"2642","DOI":"10.1016\/S0140-6736(18)30293-9","article-title":"Accelerate progress-sexual and reproductive health and rights for all: report of the Guttmacher-Lancet Commission","volume":"391","author":"Starrs","year":"2018","journal-title":"Lancet"},{"key":"10.1016\/j.jacadv.2023.100716_bib79","series-title":"WHO Guideline on Self-Care Interventions for Health and Well-Being, 2022 revision","year":"2022"}],"container-title":["JACC: Advances"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2772963X23007378?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2772963X23007378?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,11,9]],"date-time":"2025-11-09T00:38:10Z","timestamp":1762648690000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2772963X23007378"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,12]]},"references-count":79,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2023,12]]}},"alternative-id":["S2772963X23007378"],"URL":"https:\/\/doi.org\/10.1016\/j.jacadv.2023.100716","relation":{},"ISSN":["2772-963X"],"issn-type":[{"value":"2772-963X","type":"print"}],"subject":[],"published":{"date-parts":[[2023,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Sexual Health and Well-Being in Adults With Congenital Heart Disease","name":"articletitle","label":"Article Title"},{"value":"JACC: Advances","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jacadv.2023.100716","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 The Authors. Published by Elsevier on behalf of the American College of Cardiology Foundation.","name":"copyright","label":"Copyright"}],"article-number":"100716"}}