{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,22]],"date-time":"2026-09-22T06:35:18Z","timestamp":1790058918192,"version":"4.0.1"},"reference-count":37,"publisher":"Elsevier BV","issue":"21","license":[{"start":{"date-parts":[[2020,6,1]],"date-time":"2020-06-01T00:00:00Z","timestamp":1590969600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2020,6,1]],"date-time":"2020-06-01T00:00:00Z","timestamp":1590969600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2021,6,2]],"date-time":"2021-06-02T00:00:00Z","timestamp":1622592000000},"content-version":"vor","delay-in-days":366,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/501100001515","name":"Cure Kids","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001515","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","jacc.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of the American College of Cardiology"],"published-print":{"date-parts":[[2020,6]]},"DOI":"10.1016\/j.jacc.2020.04.004","type":"journal-article","created":{"date-parts":[[2020,5,25]],"date-time":"2020-05-25T15:47:46Z","timestamp":1590421666000},"page":"2698-2707","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":43,"title":["A Population-Based Registry of Patients With Inherited Cardiac Conditions and Resuscitated Cardiac Arrest"],"prefix":"10.1016","volume":"75","author":[{"given":"Cynthia","family":"Rucinski","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annika","family":"Winbo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Luciana","family":"Marcondes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nikki","family":"Earle","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martin","family":"Stiles","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachael","family":"Stiles","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Darren","family":"Hooks","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kate","family":"Neas","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ian","family":"Hayes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jackie","family":"Crawford","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Martin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan R.","family":"Skinner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jacc.2020.04.004_bib1","doi-asserted-by":"crossref","first-page":"2441","DOI":"10.1056\/NEJMoa1510687","article-title":"A\u00a0prospective study of sudden cardiac death among children and young adults","volume":"374","author":"Bagnall","year":"2016","journal-title":"N\u00a0Engl J Med"},{"key":"10.1016\/j.jacc.2020.04.004_bib2","doi-asserted-by":"crossref","first-page":"983","DOI":"10.1093\/eurheartj\/ehq428","article-title":"Nationwide study of sudden cardiac death in persons aged 1-35 years","volume":"32","author":"Winkel","year":"2011","journal-title":"Eur Heart J"},{"key":"10.1016\/j.jacc.2020.04.004_bib3","doi-asserted-by":"crossref","first-page":"1876","DOI":"10.1161\/CIRCULATIONAHA.114.009711","article-title":"Recent trends in survival from out-of-hospital cardiac arrest in the United States","volume":"130","author":"Chan","year":"2014","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.04.004_bib4","doi-asserted-by":"crossref","first-page":"1377","DOI":"10.1001\/jama.2013.278483","article-title":"Association of national initiatives to improve cardiac arrest management with rates of bystander intervention and patient survival after out-of-hospital cardiac arrest","volume":"310","author":"Wissenberg","year":"2013","journal-title":"JAMA"},{"key":"10.1016\/j.jacc.2020.04.004_bib5","doi-asserted-by":"crossref","first-page":"2108","DOI":"10.1016\/j.jacc.2016.02.062","article-title":"Etiology of sudden death in sports: insights from a United Kingdom Regional Registry","volume":"67","author":"Finocchiaro","year":"2016","journal-title":"J\u00a0Am Coll Cardiol"},{"key":"10.1016\/j.jacc.2020.04.004_bib6","doi-asserted-by":"crossref","first-page":"1212","DOI":"10.1016\/j.resuscitation.2014.06.008","article-title":"Survival after out-of-hospital cardiac arrest in relation to sex: a nationwide registry-based study","volume":"85","author":"Wissenberg","year":"2014","journal-title":"Resuscitation"},{"key":"10.1016\/j.jacc.2020.04.004_bib7","doi-asserted-by":"crossref","first-page":"1383","DOI":"10.1016\/j.hrthm.2010.05.036","article-title":"Diagnostic yield in sudden unexplained death and aborted cardiac arrest in the young: the experience of a tertiary referral center in The Netherlands","volume":"7","author":"van der Werf","year":"2010","journal-title":"Heart Rhythm"},{"key":"10.1016\/j.jacc.2020.04.004_bib8","doi-asserted-by":"crossref","first-page":"1653","DOI":"10.1016\/j.hrthm.2013.08.022","article-title":"Familial cardiological and targeted genetic evaluation: low yield in sudden unexplained death and high yield in unexplained cardiac arrest syndromes","volume":"10","author":"Kumar","year":"2013","journal-title":"Heart Rhythm"},{"key":"10.1016\/j.jacc.2020.04.004_bib9","doi-asserted-by":"crossref","first-page":"233","DOI":"10.1016\/j.hrthm.2012.10.043","article-title":"Community detection of long QT syndrome with a clinical registry: an alternative to ECG screening programs?","volume":"10","author":"Earle","year":"2013","journal-title":"Heart Rhythm"},{"key":"10.1016\/j.jacc.2020.04.004_bib10","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1016\/j.ahj.2018.11.013","article-title":"Development of a cardiac inherited disease service and clinical registry: a 15-year perspective","volume":"209","author":"Earle","year":"2019","journal-title":"Am Heart J"},{"key":"10.1016\/j.jacc.2020.04.004_bib11","doi-asserted-by":"crossref","first-page":"412","DOI":"10.1016\/j.hrthm.2010.11.016","article-title":"Prospective, population-based long QT molecular autopsy study of postmortem negative sudden death in 1 to 40 year olds","volume":"8","author":"Skinner","year":"2011","journal-title":"Heart Rhythm"},{"key":"10.1016\/j.jacc.2020.04.004_bib12","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1016\/j.resuscitation.2019.02.022","article-title":"Relationship between socioeconomic factors, distribution of public access defibrillators and incidence of out-of-hospital cardiac arrest","volume":"138","author":"Dicker","year":"2019","journal-title":"Resuscitation"},{"key":"10.1016\/j.jacc.2020.04.004_bib13","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0196078","article-title":"Long QT molecular autopsy in sudden unexplained death in the young (1-40 years old): lessons learnt from an eight year experience in New Zealand","volume":"13","author":"Marcondes","year":"2018","journal-title":"PLoS One"},{"key":"10.1016\/j.jacc.2020.04.004_bib14","doi-asserted-by":"crossref","first-page":"275","DOI":"10.1016\/j.hlc.2015.08.019","article-title":"Cardiac Inherited Diseases Group. High arrhythmic burden but low mortality during long-term follow-up in arrhythmogenic right ventricular cardiomyopathy","volume":"25","author":"Martin","year":"2016","journal-title":"Heart Lung Circ"},{"key":"10.1016\/j.jacc.2020.04.004_bib15","first-page":"67","article-title":"Detection of sudden death syndromes in New Zealand","volume":"129","author":"Earle","year":"2016","journal-title":"N\u00a0Z Med J"},{"key":"10.1016\/j.jacc.2020.04.004_bib16","doi-asserted-by":"crossref","first-page":"22","DOI":"10.1016\/j.hlc.2018.09.007","article-title":"Channelopathies that lead to sudden cardiac death: clinical and genetic aspects","volume":"28","author":"Skinner","year":"2019","journal-title":"Heart Lung Circ"},{"key":"10.1016\/j.jacc.2020.04.004_bib17","doi-asserted-by":"crossref","first-page":"769","DOI":"10.1016\/j.hlc.2016.01.020","article-title":"Update on the diagnosis and management of familial long QT syndrome","volume":"25","author":"Waddell-Smith","year":"2016","journal-title":"Heart Lung Circ"},{"key":"10.1016\/j.jacc.2020.04.004_bib18","doi-asserted-by":"crossref","DOI":"10.1136\/openhrt-2015-000329","article-title":"Inpatient detection of cardiac-inherited disease: the impact of improving family history taking","volume":"3","author":"Waddell-Smith","year":"2016","journal-title":"Open Heart"},{"key":"10.1016\/j.jacc.2020.04.004_bib20","doi-asserted-by":"crossref","first-page":"405","DOI":"10.1038\/gim.2015.30","article-title":"Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology","volume":"17","author":"Richards","year":"2015","journal-title":"Genet Med"},{"key":"10.1016\/j.jacc.2020.04.004_bib21","doi-asserted-by":"crossref","first-page":"278","DOI":"10.1161\/CIRCULATIONAHA.109.853143","article-title":"Systematic assessment of patients with unexplained cardiac arrest: Cardiac Arrest Survivors With Preserved Ejection Fraction Registry (CASPER)","volume":"120","author":"Krahn","year":"2009","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.04.004_bib22","doi-asserted-by":"crossref","first-page":"66","DOI":"10.1136\/archdischild-2011-301515","article-title":"Investigation following resuscitated cardiac arrest","volume":"98","author":"Skinner","year":"2013","journal-title":"Arch Dis Child"},{"key":"10.1016\/j.jacc.2020.04.004_bib23","doi-asserted-by":"crossref","first-page":"595","DOI":"10.1111\/jpc.12787","article-title":"Dilated cardiomyopathy in children: review of all presentations to a children's hospital over a 5-year period and the impact of family cardiac screening","volume":"51","author":"Herath","year":"2015","journal-title":"J\u00a0Paediatr Child Health"},{"key":"10.1016\/j.jacc.2020.04.004_bib24","first-page":"B5321","article-title":"Sudden cardiac death: a nationwide cohort study among the young","volume":"63","author":"Risgaard","year":"2016","journal-title":"Danish Medical J"},{"key":"10.1016\/j.jacc.2020.04.004_bib25","doi-asserted-by":"crossref","DOI":"10.1161\/CIRCGENETICS.116.001686","article-title":"Genetic testing in the evaluation of unexplained cardiac arrest: from the CASPER (Cardiac Arrest Survivors With Preserved Ejection Fraction Registry)","volume":"10","author":"Mellor","year":"2017","journal-title":"Circ Cardiovasc Genet"},{"key":"10.1016\/j.jacc.2020.04.004_bib26","doi-asserted-by":"crossref","first-page":"1636","DOI":"10.1016\/j.jacc.2014.01.041","article-title":"Incidence and causes of sudden death in U.S. college athletes","volume":"63","author":"Maron","year":"2014","journal-title":"J\u00a0Am Coll Cardiol"},{"key":"10.1016\/j.jacc.2020.04.004_bib27","doi-asserted-by":"crossref","first-page":"218","DOI":"10.1161\/01.CIR.62.2.218","article-title":"Sudden death in young athletes","volume":"62","author":"Maron","year":"1980","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.04.004_bib28","doi-asserted-by":"crossref","first-page":"1170","DOI":"10.1016\/j.amjmed.2016.02.031","article-title":"Demographics and epidemiology of sudden deaths in young competitive athletes: from the United States National Registry","volume":"129","author":"Maron","year":"2016","journal-title":"Am J Med"},{"key":"10.1016\/j.jacc.2020.04.004_bib29","doi-asserted-by":"crossref","first-page":"1493","DOI":"10.1016\/j.mayocp.2016.07.021","article-title":"Incidence and etiology of sudden cardiac arrest and death in high school athletes in the United States","volume":"91","author":"Harmon","year":"2016","journal-title":"Mayo Clin Proc"},{"key":"10.1016\/j.jacc.2020.04.004_bib30","doi-asserted-by":"crossref","first-page":"35","DOI":"10.1007\/s12471-010-0050-8","article-title":"Sex-based differences in cardiac arrhythmias, ICD utilisation and cardiac resynchronisation therapy","volume":"19","author":"Ghani","year":"2011","journal-title":"Neth Heart J"},{"key":"10.1016\/j.jacc.2020.04.004_bib31","doi-asserted-by":"crossref","DOI":"10.3390\/biology6010007","article-title":"Cardiac channelopathies and sudden death: recent clinical and genetic advances","volume":"6","author":"Fernandez-Falgueras","year":"2017","journal-title":"Biology"},{"key":"10.1016\/j.jacc.2020.04.004_bib32","doi-asserted-by":"crossref","first-page":"197","DOI":"10.1097\/CRD.0000000000000108","article-title":"Influence of pregnancy in patients with congenital long QT syndrome","volume":"25","author":"Garg","year":"2017","journal-title":"Cardiol Rev"},{"key":"10.1016\/j.jacc.2020.04.004_bib33","doi-asserted-by":"crossref","first-page":"1322","DOI":"10.1001\/jama.285.10.1322","article-title":"Drug-induced QT prolongation in women during the menstrual cycle","volume":"285","author":"Rodriguez","year":"2001","journal-title":"JAMA"},{"key":"10.1016\/j.jacc.2020.04.004_bib34","doi-asserted-by":"crossref","first-page":"541","DOI":"10.1093\/europace\/euw389","article-title":"The clinical and genetic spectrum of catecholaminergic polymorphic ventricular tachycardia: findings from an international multicentre registry","volume":"20","author":"Roston","year":"2018","journal-title":"Europace"},{"key":"10.1016\/j.jacc.2020.04.004_bib35","doi-asserted-by":"crossref","first-page":"660","DOI":"10.1007\/s00246-003-0668-z","article-title":"Cost-effectiveness of Project ADAM: a project to prevent sudden cardiac death in high school students","volume":"25","author":"Berger","year":"2004","journal-title":"Pediatr Cardiol"},{"key":"10.1016\/j.jacc.2020.04.004_bib36","doi-asserted-by":"crossref","first-page":"339","DOI":"10.1016\/j.ahj.2015.03.022","article-title":"Survival from sports-related sudden cardiac arrest: In sports facilities versus outside of sports facilities","volume":"170","author":"Marijon","year":"2015","journal-title":"Am Heart J"},{"key":"10.1016\/j.jacc.2020.04.004_bib37","doi-asserted-by":"crossref","first-page":"722","DOI":"10.1161\/CIRCRESAHA.117.309711","article-title":"Classification, epidemiology, and global burden of\u00a0cardiomyopathies","volume":"121","author":"McKenna","year":"2017","journal-title":"Circ Res"},{"key":"10.1016\/j.jacc.2020.04.004_bib38","doi-asserted-by":"crossref","first-page":"1981","DOI":"10.1093\/eurheartj\/ehy098","article-title":"Characteristics and clinical assessment of unexplained sudden cardiac arrest in the real-world setting: focus on idiopathic ventricular fibrillation","volume":"39","author":"Waldmann","year":"2018","journal-title":"Eur Heart J"}],"container-title":["Journal of the American College of Cardiology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0735109720348713?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0735109720348713?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,9]],"date-time":"2025-10-09T13:33:06Z","timestamp":1760016786000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0735109720348713"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,6]]},"references-count":37,"journal-issue":{"issue":"21","published-print":{"date-parts":[[2020,6]]}},"alternative-id":["S0735109720348713"],"URL":"https:\/\/doi.org\/10.1016\/j.jacc.2020.04.004","relation":{},"ISSN":["0735-1097"],"issn-type":[{"value":"0735-1097","type":"print"}],"subject":[],"published":{"date-parts":[[2020,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"A Population-Based Registry of Patients With Inherited Cardiac Conditions and Resuscitated Cardiac Arrest","name":"articletitle","label":"Article Title"},{"value":"Journal of the American College of Cardiology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jacc.2020.04.004","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2020 by the American College of Cardiology Foundation. Published by Elsevier.","name":"copyright","label":"Copyright"}]}}