{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T18:05:13Z","timestamp":1791223513286,"version":"4.1.0"},"reference-count":35,"publisher":"Elsevier BV","issue":"2","license":[{"start":{"date-parts":[[2020,7,1]],"date-time":"2020-07-01T00:00:00Z","timestamp":1593561600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2020,7,1]],"date-time":"2020-07-01T00:00:00Z","timestamp":1593561600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2021,7,14]],"date-time":"2021-07-14T00:00:00Z","timestamp":1626220800000},"content-version":"vor","delay-in-days":378,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","jacc.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of the American College of Cardiology"],"published-print":{"date-parts":[[2020,7]]},"DOI":"10.1016\/j.jacc.2020.05.025","type":"journal-article","created":{"date-parts":[[2020,7,6]],"date-time":"2020-07-06T14:29:02Z","timestamp":1594045742000},"page":"175-182","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":66,"title":["Characteristics of Adults With Congenital Heart Defects in the United States"],"prefix":"10.1016","volume":"76","author":[{"given":"Michelle","family":"Gurvitz","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie E.","family":"Dunn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ami","family":"Bhatt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wendy M.","family":"Book","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jill","family":"Glidewell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carol","family":"Hogue","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angela E.","family":"Lin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"George","family":"Lui","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claire","family":"McGarry","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cheryl","family":"Raskind-Hood","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alissa","family":"Van Zutphen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ali","family":"Zaidi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathy","family":"Jenkins","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tiffany","family":"Riehle-Colarusso","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jacc.2020.05.025_bib1","doi-asserted-by":"crossref","first-page":"807","DOI":"10.1016\/j.jpeds.2008.05.059","article-title":"Prevalence of congenital heart defects in metropolitan Atlanta, 1998-2005","volume":"153","author":"Reller","year":"2008","journal-title":"J\u00a0Pediatr"},{"key":"10.1016\/j.jacc.2020.05.025_bib2","doi-asserted-by":"crossref","first-page":"1170","DOI":"10.1016\/S0735-1097(01)01272-4","article-title":"Task force 1: the changing profile of congenital heart disease in adult life","volume":"37","author":"Warnes","year":"2001","journal-title":"J\u00a0Am Coll Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib3","doi-asserted-by":"crossref","first-page":"2254","DOI":"10.1161\/CIRCULATIONAHA.110.947002","article-title":"Mortality resulting from congenital heart disease among children and adults in the United States, 1999 to 2006","volume":"122","author":"Gilboa","year":"2010","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.05.025_bib4","doi-asserted-by":"crossref","first-page":"101","DOI":"10.1161\/CIRCULATIONAHA.115.019307","article-title":"Congenital heart defects in the United States: estimating the magnitude of the affected population in 2010","volume":"134","author":"Gilboa","year":"2016","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.05.025_bib5","doi-asserted-by":"crossref","first-page":"749","DOI":"10.1161\/CIRCULATIONAHA.113.008396","article-title":"Lifetime prevalence of congenital heart disease in the general population from 2000 to 2010","volume":"130","author":"Marelli","year":"2014","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.05.025_bib6","doi-asserted-by":"crossref","DOI":"10.1016\/j.jacc.2008.10.002","volume":"52","author":"Warnes","year":"2008","journal-title":"J\u00a0Am Coll Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib7","doi-asserted-by":"crossref","first-page":"875","DOI":"10.1016\/j.jacc.2006.09.051","article-title":"Changes in hospitalization patterns among patients with congenital heart disease during the transition from adolescence to adulthood","volume":"49","author":"Gurvitz","year":"2007","journal-title":"J\u00a0Am Coll Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib8","doi-asserted-by":"crossref","first-page":"1509","DOI":"10.1016\/j.jacc.2011.06.041","article-title":"Geriatric congenital heart disease: burden of disease and predictors of mortality","volume":"58","author":"Afilalo","year":"2011","journal-title":"J\u00a0Am Coll Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib9","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1111\/chd.12169","article-title":"High resource use among adult congenital heart surgery admissions in adult hospitals: risk factors and association with death and comorbidities","volume":"10","author":"Bhatt","year":"2015","journal-title":"Congenit Heart Dis"},{"key":"10.1016\/j.jacc.2020.05.025_bib10","doi-asserted-by":"crossref","first-page":"1657","DOI":"10.1016\/j.amjcard.2012.01.397","article-title":"Social burden and lifestyle in adults with congenital heart disease","volume":"109","author":"Zomer","year":"2012","journal-title":"Am J Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib11","doi-asserted-by":"crossref","first-page":"86","DOI":"10.1177\/1474515113481908","article-title":"Illness perceptions of adults with congenital heart disease and their predictive value for quality of life two years later","volume":"13","author":"Schoormans","year":"2014","journal-title":"Eur J Cardiovasc Nursing"},{"key":"10.1016\/j.jacc.2020.05.025_bib12","doi-asserted-by":"crossref","first-page":"1295","DOI":"10.1007\/s11136-012-0241-4","article-title":"Perceived health is partially associated with the symptomatological profile in patients with benign and severe conditions: the case of congenital heart disease","volume":"22","author":"Schoormans","year":"2013","journal-title":"Qual Life Res"},{"key":"10.1016\/j.jacc.2020.05.025_bib13","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1093\/ehjqcco\/qcx031","article-title":"New York Heart Association (NYHA) classification in adults with congenital heart disease: relation to objective measures of exercise and outcome","volume":"4","author":"Bredy","year":"2018","journal-title":"Eur Heart J Qual Care Clin Outcomes"},{"key":"10.1016\/j.jacc.2020.05.025_bib14","doi-asserted-by":"crossref","first-page":"302","DOI":"10.1161\/CIRCULATIONAHA.108.839464","article-title":"Children and adults with congenital heart disease lost to follow-up: who and when?","volume":"120","author":"Mackie","year":"2009","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.05.025_bib15","doi-asserted-by":"crossref","first-page":"2180","DOI":"10.1016\/j.jacc.2013.02.048","article-title":"Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (The Health, Education, and Access Research Trial)","volume":"61","author":"Gurvitz","year":"2013","journal-title":"J\u00a0Am Coll Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib16","doi-asserted-by":"crossref","first-page":"460","DOI":"10.1016\/j.jacc.2009.04.037","article-title":"Trends in hospitalizations for adults with congenital heart disease in the U.S","volume":"54","author":"Opotowsky","year":"2009","journal-title":"J\u00a0Am Coll Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib17","doi-asserted-by":"crossref","first-page":"827696","DOI":"10.1155\/2013\/827696","article-title":"Adequacy of cancer screening in adult women with congenital heart disease","volume":"2013","author":"Christman","year":"2013","journal-title":"ISRN Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib18","doi-asserted-by":"crossref","first-page":"e348","DOI":"10.1161\/CIR.0000000000000535","article-title":"Diagnosis and management of noncardiac complications in adults with congenital heart disease: a scientific statement from the American Heart Association","volume":"136","author":"Lui","year":"2017","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.05.025_bib19","doi-asserted-by":"crossref","first-page":"511","DOI":"10.1007\/s00246-009-9629-5","article-title":"Care of the adult congenital heart disease patient in the United States: a summary of the current system","volume":"31","author":"Patel","year":"2010","journal-title":"Pediatr Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib20","doi-asserted-by":"crossref","first-page":"1395","DOI":"10.1002\/bdr2.1400","article-title":"Population-based surveillance of congenital heart defects among adolescents and adults: surveillance methodology","volume":"110","author":"Glidewell","year":"2018","journal-title":"Birth Defects Res"},{"key":"10.1016\/j.jacc.2020.05.025_bib21","doi-asserted-by":"crossref","first-page":"163","DOI":"10.1161\/CIRCULATIONAHA.106.627224","article-title":"Congenital heart disease in the general population: changing prevalence and age distribution","volume":"115","author":"Marelli","year":"2007","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.05.025_bib22","doi-asserted-by":"crossref","first-page":"59","DOI":"10.1111\/chd.12563","article-title":"The 745.5 issue in code-based, adult congenital heart disease population studies: relevance to current and future ICD-9-CM and ICD-10-CM studies","volume":"13","author":"Rodriguez","year":"2018","journal-title":"Congenit Heart Dis"},{"key":"10.1016\/j.jacc.2020.05.025_bib23","series-title":"Clinical Classification Software","author":"Elixhauser","year":"2014"},{"key":"10.1016\/j.jacc.2020.05.025_bib25","doi-asserted-by":"crossref","first-page":"2325","DOI":"10.1093\/eurheartj\/ehi396","article-title":"The spectrum of adult congenital heart disease in Europe: morbidity and mortality in a 5 year follow-up period. The Euro Heart Survey on adult congenital heart disease","volume":"26","author":"Engelfriet","year":"2005","journal-title":"Eur Heart J"},{"key":"10.1016\/j.jacc.2020.05.025_bib26","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1186\/s12875-016-0440-0","article-title":"The influence of gender and other patient characteristics on health care-seeking behaviour: a QUALICOPC study","volume":"17","author":"Thompson","year":"2016","journal-title":"BMC Fam Pract"},{"key":"10.1016\/j.jacc.2020.05.025_bib27","doi-asserted-by":"crossref","first-page":"2385","DOI":"10.1161\/CIRCULATIONAHA.115.011241","article-title":"Stroke in adults with congenital heart disease: incidence, cumulative risk, and predictors","volume":"132","author":"Lanz","year":"2015","journal-title":"Circulation"},{"key":"10.1016\/j.jacc.2020.05.025_bib28","doi-asserted-by":"crossref","first-page":"148","DOI":"10.1016\/j.ijcard.2019.01.079","article-title":"Atrial fibrillation in adults with congenital heart disease","volume":"287","author":"Waldmann","year":"2019","journal-title":"Int J Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib29","doi-asserted-by":"crossref","first-page":"247","DOI":"10.1007\/s11897-016-0301-0","article-title":"Burden of heart failure in adults with congenital heart disease","volume":"13","author":"Alshawabkeh","year":"2016","journal-title":"Curr Heart Fail Rep"},{"key":"10.1016\/j.jacc.2020.05.025_bib30","article-title":"Population-based data on congenital heart disease and stroke","volume":"5","author":"Opotowsky","year":"2016","journal-title":"J\u00a0Am Heart Assoc"},{"key":"10.1016\/j.jacc.2020.05.025_bib31","doi-asserted-by":"crossref","first-page":"308","DOI":"10.1001\/jamacardio.2018.0125","article-title":"Association of albuminuria with major adverse outcomes in adults with congenital heart disease: results from the Boston Adult Congenital Heart Biobank","volume":"3","author":"Rajpal","year":"2018","journal-title":"JAMA Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib32","doi-asserted-by":"crossref","first-page":"134","DOI":"10.1111\/j.1747-0803.2011.00498.x","article-title":"Assessment of electronic health information system use and need in US adult congenital heart disease centers","volume":"6","author":"Weiss","year":"2011","journal-title":"Congenit Heart Dis"},{"key":"10.1016\/j.jacc.2020.05.025_bib33","doi-asserted-by":"crossref","first-page":"719","DOI":"10.1007\/s00246-014-1068-2","article-title":"Accuracy of administrative data for detection and categorization of adult congenital heart disease patients from an electronic medical record","volume":"36","author":"Broberg","year":"2015","journal-title":"Pediatr Cardiol"},{"key":"10.1016\/j.jacc.2020.05.025_bib34","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1111\/chd.12524","article-title":"Identification of adults with congenital heart disease of moderate or great complexity from administrative data","volume":"13","author":"Steiner","year":"2018","journal-title":"Congenit Heart Dis"},{"key":"10.1016\/j.jacc.2020.05.025_bib35","article-title":"Limited accuracy of administrative data for the identification and classification of adult congenital heart disease","volume":"7","author":"Khan","year":"2018","journal-title":"J\u00a0Am Heart Assoc"},{"key":"10.1016\/j.jacc.2020.05.025_bib36","first-page":"29","article-title":"Benchmarking variation in coding accuracy across the United States","volume":"29","author":"Lorence","year":"2003","journal-title":"J\u00a0Health Care Finance"}],"container-title":["Journal of the American College of Cardiology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0735109720353134?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0735109720353134?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,9]],"date-time":"2025-10-09T13:33:55Z","timestamp":1760016835000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0735109720353134"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,7]]},"references-count":35,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2020,7]]}},"alternative-id":["S0735109720353134"],"URL":"https:\/\/doi.org\/10.1016\/j.jacc.2020.05.025","relation":{},"ISSN":["0735-1097"],"issn-type":[{"value":"0735-1097","type":"print"}],"subject":[],"published":{"date-parts":[[2020,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Characteristics of Adults With Congenital Heart Defects in the United States","name":"articletitle","label":"Article Title"},{"value":"Journal of the American College of Cardiology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jacc.2020.05.025","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2020 the American College of Cardiology Foundation. Published by Elsevier.","name":"copyright","label":"Copyright"}]}}