{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T18:30:55Z","timestamp":1786991455824,"version":"build-2736575974"},"reference-count":19,"publisher":"Elsevier BV","issue":"12","license":[{"start":{"date-parts":[[2023,12,1]],"date-time":"2023-12-01T00:00:00Z","timestamp":1701388800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,12,1]],"date-time":"2023-12-01T00:00:00Z","timestamp":1701388800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,7,25]],"date-time":"2023-07-25T00:00:00Z","timestamp":1690243200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","jamda.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of the American Medical Directors Association"],"published-print":{"date-parts":[[2023,12]]},"DOI":"10.1016\/j.jamda.2023.07.006","type":"journal-article","created":{"date-parts":[[2023,8,13]],"date-time":"2023-08-13T07:44:27Z","timestamp":1691912667000},"page":"1843-1848.e1","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"title":["Advance Care Planning in Huntington Disease: The Elderly Care Physician's Perspective"],"prefix":"10.1016","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1606-694X","authenticated-orcid":false,"given":"Marina R.","family":"Ekkel","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marja F.I.A.","family":"Depla","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zahra","family":"Sakhizadah","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Els M.L.","family":"Verschuur","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ruth B.","family":"Veenhuizen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bregje D.","family":"Onwuteaka-Philipsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cees M.P.M.","family":"Hertogh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jamda.2023.07.006_bib1","doi-asserted-by":"crossref","first-page":"218","DOI":"10.1016\/S0140-6736(07)60111-1","article-title":"Huntington's disease","volume":"369","author":"Walker","year":"2007","journal-title":"Lancet"},{"key":"10.1016\/j.jamda.2023.07.006_bib2","first-page":"2406","article-title":"End-of-life measures in Huntington disease: HDQLIFE meaning and purpose, concern with death and dying, and end of life planning","volume":"266","author":"Carlozzi","year":"2019","journal-title":"J\u00a0Neurol"},{"key":"10.1016\/j.jamda.2023.07.006_bib3","doi-asserted-by":"crossref","first-page":"e543","DOI":"10.1016\/S1470-2045(17)30582-X","article-title":"Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care","volume":"18","author":"Rietjens","year":"2017","journal-title":"Lancet Oncol"},{"key":"10.1016\/j.jamda.2023.07.006_bib4","doi-asserted-by":"crossref","first-page":"1994","DOI":"10.1001\/jamainternmed.2014.5271","article-title":"Communication about serious illness care goals: a review and synthesis of best practices","volume":"174","author":"Bernacki","year":"2014","journal-title":"JAMA Intern Med"},{"key":"10.1016\/j.jamda.2023.07.006_bib5","first-page":"2184","article-title":"Thinking about the end of life: a common issue for patients with Huntington's disease","volume":"261","author":"Booij","year":"2014","journal-title":"J\u00a0Neurol"},{"key":"10.1016\/j.jamda.2023.07.006_bib6","doi-asserted-by":"crossref","first-page":"454","DOI":"10.5334\/tohm.375","article-title":"Palliative care in Huntington disease: personal reflections and a review of the literature","volume":"7","author":"Tarolli","year":"2017","journal-title":"Tremor Other Hyperkinet Mov"},{"key":"10.1016\/j.jamda.2023.07.006_bib7","first-page":"323","article-title":"Euthanasia and advance directives in Huntington's disease: qualitative analysis of interviews with patients","volume":"2","author":"Booij","year":"2013","journal-title":"J\u00a0Huntingtons Dis"},{"key":"10.1016\/j.jamda.2023.07.006_bib8","doi-asserted-by":"crossref","first-page":"621","DOI":"10.1136\/medethics-2011-100369","article-title":"A\u00a0plea for end-of-life discussions with patients suffering from Huntington's disease: the role of the physician","volume":"39","author":"Booij","year":"2013","journal-title":"J\u00a0Med Ethics"},{"key":"10.1016\/j.jamda.2023.07.006_bib9","doi-asserted-by":"crossref","first-page":"192","DOI":"10.1016\/j.brainresbull.2009.06.017","article-title":"Coordinated multidisciplinary care for Huntington's disease. An outpatient department","volume":"80","author":"Veenhuizen","year":"2009","journal-title":"Brain Res Bull"},{"issue":"4","key":"10.1016\/j.jamda.2023.07.006_bib10","doi-asserted-by":"crossref","first-page":"565","DOI":"10.1016\/j.jpainsymman.2011.01.011","article-title":"Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners","volume":"42","author":"Meeussen","year":"2011","journal-title":"J\u00a0Pain Symptom Manage"},{"key":"10.1016\/j.jamda.2023.07.006_bib11","doi-asserted-by":"crossref","first-page":"244","DOI":"10.1002\/gps.816","article-title":"The role of the specialist physician in nursing homes: The Netherlands' experience","volume":"18","author":"Hoek","year":"2003","journal-title":"Int J Geriatr Psychiatry"},{"key":"10.1016\/j.jamda.2023.07.006_bib12","first-page":"68","article-title":"Memoing in qualitative research: probing data and processes","volume":"13","author":"Birks","year":"2008","journal-title":"J\u00a0Res Nurs"},{"key":"10.1016\/j.jamda.2023.07.006_bib13","series-title":"The SAGE encyclopedia of qualitative research methods","first-page":"506","article-title":"Memos and memoing","author":"Groenewald","year":"2008"},{"key":"10.1016\/j.jamda.2023.07.006_bib14","doi-asserted-by":"crossref","first-page":"1745","DOI":"10.1177\/1049732315614579","article-title":"Parallel-serial memoing: a novel approach to analyzing qualitative data","volume":"26","author":"Patel","year":"2016","journal-title":"Qual Health Res"},{"key":"10.1016\/j.jamda.2023.07.006_bib15","doi-asserted-by":"crossref","first-page":"979","DOI":"10.1016\/j.jamda.2015.06.015","article-title":"Advance care planning in nursing home patients with dementia: a qualitative interview study among family and professional Caregivers","volume":"16","author":"van Soest-Poortvliet","year":"2015","journal-title":"J\u00a0Am Med Dir Assoc"},{"key":"10.1016\/j.jamda.2023.07.006_bib16","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1186\/s12904-020-0535-1","article-title":"Underlying goals of advance care planning (ACP): a qualitative analysis of the literature","volume":"19","author":"Fleuren","year":"2020","journal-title":"BMC Palliat Care"},{"key":"10.1016\/j.jamda.2023.07.006_bib17","doi-asserted-by":"crossref","first-page":"101","DOI":"10.1186\/s12910-022-00838-0","article-title":"Patient perspectives on advance euthanasia directives in Huntington's disease. A qualitative interview study","volume":"23","author":"Ekkel","year":"2022","journal-title":"BMC Med Ethics"},{"key":"10.1016\/j.jamda.2023.07.006_bib18","doi-asserted-by":"crossref","first-page":"66","DOI":"10.1186\/s12910-019-0401-y","article-title":"Euthanasia requests in dementia cases; what are experiences and needs of Dutch physicians? A qualitative interview study","volume":"20","author":"Schuurmans","year":"2019","journal-title":"BMC Med Ethics"},{"key":"10.1016\/j.jamda.2023.07.006_bib19","series-title":"Termination of life on request and assisted suicide (review procedures) Act. [Wet\u00a0Toetsing Levensbe\u00ebindiging op verzoek en hulp bij zelfdoding]. [Internet]","year":"2002"}],"container-title":["Journal of the American Medical Directors Association"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525861023006357?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525861023006357?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,26]],"date-time":"2025-10-26T19:32:24Z","timestamp":1761507144000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525861023006357"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,12]]},"references-count":19,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2023,12]]}},"alternative-id":["S1525861023006357"],"URL":"https:\/\/doi.org\/10.1016\/j.jamda.2023.07.006","relation":{},"ISSN":["1525-8610"],"issn-type":[{"value":"1525-8610","type":"print"}],"subject":[],"published":{"date-parts":[[2023,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Advance Care Planning in Huntington Disease: The Elderly Care Physician's Perspective","name":"articletitle","label":"Article Title"},{"value":"Journal of the American Medical Directors Association","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jamda.2023.07.006","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 The Authors. Published by Elsevier Inc. on behalf of AMDA - The Society for Post-Acute and Long-Term Care Medicine.","name":"copyright","label":"Copyright"}]}}