{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T18:56:59Z","timestamp":1793386619734,"version":"4.5.0"},"reference-count":132,"publisher":"Elsevier BV","issue":"4","license":[{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T00:00:00Z","timestamp":1782950400000},"content-version":"vor","delay-in-days":731,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","cysticfibrosisjournal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Cystic Fibrosis"],"published-print":{"date-parts":[[2024,7]]},"DOI":"10.1016\/j.jcf.2024.02.011","type":"journal-article","created":{"date-parts":[[2024,2,29]],"date-time":"2024-02-29T16:40:39Z","timestamp":1709224839000},"page":"725-733","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":6,"title":["Remote endpoints for clinical trials in cystic fibrosis: Report from the U.S. CF foundation remote endpoints task force"],"prefix":"10.1016","volume":"23","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1588-4852","authenticated-orcid":false,"given":"Jordana E.","family":"Hoppe","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacquelyn","family":"Sjoberg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9321-8399","authenticated-orcid":false,"given":"Gina","family":"Hong","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katie","family":"Poch","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7507-9337","authenticated-orcid":false,"given":"Edith T.","family":"Zemanick","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie","family":"Thee","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4170-2327","authenticated-orcid":false,"given":"Claire","family":"Edmondson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4611-0814","authenticated-orcid":false,"given":"Dhiren","family":"Patel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7088-8530","authenticated-orcid":false,"given":"Meghana","family":"Sathe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3685-4078","authenticated-orcid":false,"given":"Drucy","family":"Borowitz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7655-8954","authenticated-orcid":false,"given":"Melissa S.","family":"Putman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9088-8749","authenticated-orcid":false,"given":"Noah","family":"Lechtzin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6892-3512","authenticated-orcid":false,"given":"Kristin A.","family":"Riekert","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa","family":"Basile","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christopher H.","family":"Goss","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-4040-0926","authenticated-orcid":false,"given":"Mary Elizabeth","family":"Jarosz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8105-614X","authenticated-orcid":false,"given":"Margaret","family":"Rosenfeld","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jcf.2024.02.011_bib0001","doi-asserted-by":"crossref","DOI":"10.3389\/fped.2023.1111088","article-title":"Adherence, reliability, and variability of home spirometry telemonitoring in cystic fibrosis","volume":"11","author":"Beaufils","year":"2023","journal-title":"Front Pediatr"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0002","doi-asserted-by":"crossref","DOI":"10.3390\/bioengineering10020242","article-title":"Home spirometry in children with cystic fibrosis","volume":"10","author":"Berlinski","year":"2023","journal-title":"Bioengineering"},{"issue":"12","key":"10.1016\/j.jcf.2024.02.011_bib0003","doi-asserted-by":"crossref","first-page":"3129","DOI":"10.1002\/ppul.26147","article-title":"Real-world feasibility of short-term, unsupervised home spirometry in CF","volume":"57","author":"Davis","year":"2022","journal-title":"Pediatr Pulmonol"},{"issue":"9","key":"10.1016\/j.jcf.2024.02.011_bib0004","doi-asserted-by":"crossref","first-page":"1144","DOI":"10.1164\/rccm.201610-2172OC","article-title":"Home monitoring of patients with cystic fibrosis to identify and treat acute pulmonary exacerbations. EICE study results","volume":"196","author":"Lechtzin","year":"2017","journal-title":"Am J Respir Crit Care Med"},{"key":"10.1016\/j.jcf.2024.02.011_bib0005","doi-asserted-by":"crossref","DOI":"10.1177\/17534666211070133","article-title":"A prospective randomised controlled mixed-methods pilot study of home monitoring in adults with cystic fibrosis","volume":"16","author":"Nash","year":"2022","journal-title":"Ther Adv Respir Dis"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0006","doi-asserted-by":"crossref","first-page":"78","DOI":"10.1016\/j.jcf.2021.08.013","article-title":"A comparison of clinic and home spirometry as longtudinal outcomes in cystic fibrosis","volume":"21","author":"Paynter","year":"2022","journal-title":"J Cyst Fibros"},{"key":"10.1016\/j.jcf.2024.02.011_bib0007","first-page":"22S2","article-title":"How accurate is home spirometry? Comparison of home to office spirometry in the PROMISE study","author":"Rosenfeld","year":"2023","journal-title":"J Cystic Fibrosis"},{"issue":"6","key":"10.1016\/j.jcf.2024.02.011_bib0008","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.00208-2021","article-title":"Clinical validation of digital biomarkers for paediatric patients with asthma and cystic fibrosis: potential for clinical trials and clinical care","volume":"59","author":"Kruizinga","year":"2022","journal-title":"Eur Respir J"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0009","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1016\/j.jcf.2021.09.018","article-title":"The feasibility of home monitoring of young people with cystic fibrosis: results from CLIMB-CF","volume":"21","author":"Edmondson","year":"2022","journal-title":"J Cyst Fibros"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0010","doi-asserted-by":"crossref","first-page":"131","DOI":"10.1186\/s12890-021-01500-y","article-title":"A multi-centre, randomized, controlled trial on coaching and telemonitoring in patients with cystic fibrosis: conneCT CF","volume":"21","author":"Thee","year":"2021","journal-title":"BMC Pulm Med"},{"issue":"10","key":"10.1016\/j.jcf.2024.02.011_bib0011","doi-asserted-by":"crossref","first-page":"1152","DOI":"10.5588\/ijtld.18.0129","article-title":"Something so hard': a mixed-methods study of home sputum collection for tuberculosis contact investigation in Uganda","volume":"22","author":"Armstrong-Hough","year":"2018","journal-title":"Int J Tuberc Lung Dis"},{"key":"10.1016\/j.jcf.2024.02.011_bib0012","unstructured":"The Home Sputum Collection Project https:\/\/www.copdfoundation.org\/Research\/Research-Projects-and-Consortia\/Sputum-Home-Collection.aspx2023."},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0013","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1016\/j.jcf.2021.08.035","article-title":"Remote monitoring in telehealth care delivery across the U.S. cystic fibrosis care network","volume":"20","author":"Ong","year":"2021","journal-title":"J Cyst Fibros"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0014","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.00238-2018","article-title":"The clinical significance of oropharyngeal cultures in young children with cystic fibrosis","volume":"51","author":"Breuer","year":"2018","journal-title":"Eur Respir J"},{"issue":"7","key":"10.1016\/j.jcf.2024.02.011_bib0015","doi-asserted-by":"crossref","first-page":"2043","DOI":"10.1002\/ppul.25421","article-title":"Detection of bacterial pathogens using home oropharyngeal swab collection in children with cystic fibrosis","volume":"56","author":"Lenhart-Pendergrass","year":"2021","journal-title":"Pediatr Pulmonol"},{"issue":"8","key":"10.1016\/j.jcf.2024.02.011_bib0016","doi-asserted-by":"crossref","first-page":"3011","DOI":"10.1128\/JCM.00764-14","article-title":"Time between collection and storage significantly influences bacterial sequence composition in sputum samples from cystic fibrosis respiratory infections","volume":"52","author":"Cuthbertson","year":"2014","journal-title":"J Clin Microbiol"},{"key":"10.1016\/j.jcf.2024.02.011_bib0017","doi-asserted-by":"crossref","DOI":"10.1016\/j.jcf.2023.03.008","article-title":"Effects of postage on recovery of pathogens from cystic fibrosis sputum samples","author":"Hatfield","year":"2023","journal-title":"J Cyst Fibros"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0018","doi-asserted-by":"crossref","first-page":"272","DOI":"10.1111\/j.1472-765X.2010.02891.x","article-title":"Assessment of sample handling practices on microbial activity in sputum samples from patients with cystic fibrosis","volume":"51","author":"Nelson","year":"2010","journal-title":"Lett Appl Microbiol"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0019","doi-asserted-by":"crossref","first-page":"353","DOI":"10.1016\/j.jcf.2017.01.004","article-title":"Effect of freezing sputum on Pseudomonas aeruginosa population heterogeneity","volume":"16","author":"Poonja","year":"2017","journal-title":"J Cyst Fibros"},{"key":"10.1016\/j.jcf.2024.02.011_bib0020","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1186\/s40168-015-0074-9","article-title":"The daily dynamics of cystic fibrosis airway microbiota during clinical stability and at exacerbation","volume":"3","author":"Carmody","year":"2015","journal-title":"Microbiome"},{"issue":"10290","key":"10.1016\/j.jcf.2024.02.011_bib0021","doi-asserted-by":"crossref","first-page":"2195","DOI":"10.1016\/S0140-6736(20)32542-3","article-title":"Cystic fibrosis","volume":"397","author":"Shteinberg","year":"2021","journal-title":"Lancet"},{"key":"10.1016\/j.jcf.2024.02.011_bib0022","doi-asserted-by":"crossref","DOI":"10.3389\/fped.2021.649904","article-title":"Sweat Testing and Recent Advances","volume":"9","author":"Gokdemir","year":"2021","journal-title":"Front Pediatr"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0023","doi-asserted-by":"crossref","first-page":"545","DOI":"10.1542\/peds.23.3.545","article-title":"A test for concentration of electrolytes in sweat in cystic fibrosis of the pancreas utilizing pilocarpine by iontophoresis","volume":"23","author":"Gibson","year":"1959","journal-title":"Pediatrics"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0024","doi-asserted-by":"crossref","first-page":"255","DOI":"10.1016\/S0022-3476(94)70314-0","article-title":"Clinical evaluation of the macroduct sweat collection system and conductivity analyzer in the diagnosis of cystic fibrosis","volume":"124","author":"Hammond","year":"1994","journal-title":"J Pediatr"},{"key":"10.1016\/j.jcf.2024.02.011_bib0025","series-title":"Sweat testing: specimen collection and quantitative chloride analysis","year":"2019"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0026","doi-asserted-by":"crossref","first-page":"580","DOI":"10.1016\/j.jcf.2015.01.005","article-title":"Association of sweat chloride concentration at time of diagnosis and CFTR genotype with mortality and cystic fibrosis phenotype","volume":"14","author":"McKone","year":"2015","journal-title":"J Cyst Fibros"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0027","doi-asserted-by":"crossref","first-page":"34","DOI":"10.1016\/j.jcf.2017.11.002","article-title":"The relationship between sweat chloride levels and mortality in cystic fibrosis varies by individual genotype","volume":"17","author":"Espel","year":"2018","journal-title":"J Cyst Fibros"},{"issue":"9","key":"10.1016\/j.jcf.2024.02.011_bib0028","doi-asserted-by":"crossref","first-page":"1116","DOI":"10.1164\/rccm.201901-0145OC","article-title":"Correlating cystic fibrosis transmembrane conductance regulator function with clinical features to inform precision treatment of cystic fibrosis","volume":"199","author":"McCague","year":"2019","journal-title":"Am J Respir Crit Care Med"},{"issue":"10212","key":"10.1016\/j.jcf.2024.02.011_bib0029","doi-asserted-by":"crossref","first-page":"1940","DOI":"10.1016\/S0140-6736(19)32597-8","article-title":"Efficacy and safety of the elexacaftor plus tezacaftor plus ivacaftor combination regimen in people with cystic fibrosis homozygous for the F508del mutation: a double-blind, randomised, phase 3 trial","volume":"394","author":"Heijerman","year":"2019","journal-title":"Lancet"},{"issue":"18","key":"10.1016\/j.jcf.2024.02.011_bib0030","doi-asserted-by":"crossref","first-page":"1663","DOI":"10.1056\/NEJMoa1105185","article-title":"A CFTR potentiator in patients with cystic fibrosis and the G551D mutation","volume":"365","author":"Ramsey","year":"2011","journal-title":"N Engl J Med"},{"issue":"19","key":"10.1016\/j.jcf.2024.02.011_bib0031","doi-asserted-by":"crossref","first-page":"1809","DOI":"10.1056\/NEJMoa1908639","article-title":"Elexacaftor-tezacaftor-ivacaftor for cystic fibrosis with a single Phe508del allele","volume":"381","author":"Middleton","year":"2019","journal-title":"N Engl J Med"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0032","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1016\/j.jcf.2013.09.007","article-title":"Sweat chloride as a biomarker of CFTR activity: proof of concept and ivacaftor clinical trial data","volume":"13","author":"Accurso","year":"2014","journal-title":"J Cyst Fibros"},{"key":"10.1016\/j.jcf.2024.02.011_bib0033","doi-asserted-by":"crossref","DOI":"10.1016\/j.bios.2020.112750","article-title":"Wearable electrochemical biosensors in North America","volume":"172","author":"Min","year":"2021","journal-title":"Biosens Bioelectron"},{"key":"10.1016\/j.jcf.2024.02.011_bib0034","doi-asserted-by":"crossref","first-page":"49","DOI":"10.1038\/s41746-020-0257-z","article-title":"Out-of-clinic measurement of sweat chloride using a wearable sensor during low-intensity exercise","volume":"3","author":"Choi","year":"2020","journal-title":"NPJ Digit Med"},{"issue":"18","key":"10.1016\/j.jcf.2024.02.011_bib0035","doi-asserted-by":"crossref","first-page":"4625","DOI":"10.1073\/pnas.1701740114","article-title":"Autonomous sweat extraction and analysis applied to cystic fibrosis and glucose monitoring using a fully integrated wearable platform","volume":"114","author":"Emaminejad","year":"2017","journal-title":"Proc Natl Acad Sci USA"},{"key":"10.1016\/j.jcf.2024.02.011_bib0036","article-title":"Sweat induction using Pilocarpine microneedle patches for sweat testing in healthy adults","author":"Chen","year":"2023","journal-title":"J Cyst Fibros"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0037","doi-asserted-by":"crossref","first-page":"14","DOI":"10.1378\/chest.12-1430","article-title":"Change in sweat chloride as a clinical end point in cystic fibrosis clinical trials: the ivacaftor experience","volume":"143","author":"Durmowicz","year":"2013","journal-title":"Chest"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0038","doi-asserted-by":"crossref","first-page":"529","DOI":"10.1164\/rccm.202108-1986OC","article-title":"Clinical effectiveness of elexacaftor\/tezacaftor\/ivacaftor in people with cystic fibrosis: a clinical trial","volume":"205","author":"Nichols","year":"2022","journal-title":"Am J Respir Crit Care Med"},{"issue":"6","key":"10.1016\/j.jcf.2024.02.011_bib0039","doi-asserted-by":"crossref","first-page":"436","DOI":"10.1002\/ppul.1072","article-title":"Defining an exacerbation of pulmonary disease in cystic fibrosis","volume":"31","author":"Dakin","year":"2001","journal-title":"Pediatr Pulmonol"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0040","doi-asserted-by":"crossref","first-page":"425","DOI":"10.1136\/thx.2005.050963","article-title":"Objective measurement of cough during pulmonary exacerbations in adults with cystic fibrosis","volume":"61","author":"Smith","year":"2006","journal-title":"Thorax"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0041","doi-asserted-by":"crossref","first-page":"131","DOI":"10.1007\/s00408-021-00435-9","article-title":"Morice AH. domiciliary cough monitoring for the prediction of COPD exacerbations","volume":"199","author":"Crooks","year":"2021","journal-title":"Lung"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0042","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1002\/ppul.1950150405","article-title":"Poor agreement between reported and recorded nocturnal cough in asthma","volume":"15","author":"Falconer","year":"1993","journal-title":"Pediatr Pulmonol"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0043","doi-asserted-by":"crossref","first-page":"223","DOI":"10.1016\/j.jcf.2011.12.003","article-title":"Determining presence of lung disease in young children with cystic fibrosis: lung clearance index, oxygen saturation and cough frequency","volume":"11","author":"Bakker","year":"2012","journal-title":"J Cyst Fibros"},{"issue":"9","key":"10.1016\/j.jcf.2024.02.011_bib0044","doi-asserted-by":"crossref","first-page":"859","DOI":"10.1002\/ppul.21004","article-title":"Nocturnal cough in children with stable cystic fibrosis","volume":"44","author":"van der Giessen","year":"2009","journal-title":"Pediatr Pulmonol"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0045","doi-asserted-by":"crossref","first-page":"60","DOI":"10.1159\/000493323","article-title":"Comparison of nocturnal cough analysis in healthy subjects and in patients with cystic fibrosis and primary ciliary dyskinesia: a prospective observational study","volume":"97","author":"Radine","year":"2019","journal-title":"Respiration"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0046","doi-asserted-by":"crossref","DOI":"10.1183\/23120541.00031-2022","article-title":"Chronic cough in cystic fibrosis: the effect of modulator therapy on objective 24-h cough monitoring","volume":"8","author":"Zhang","year":"2022","journal-title":"ERJ Open Res"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0047","doi-asserted-by":"crossref","DOI":"10.1183\/23120541.00001-2022","article-title":"Longitudinal passive cough monitoring and its implications for detecting changes in clinical status","volume":"8","author":"Gabaldon-Figueira","year":"2022","journal-title":"ERJ Open Res"},{"key":"10.1016\/j.jcf.2024.02.011_bib0048","doi-asserted-by":"crossref","DOI":"10.1016\/j.bspc.2020.102205","article-title":"Alert system design based on experimental findings from long-term unobtrusive monitoring in COPD","volume":"63","author":"den Brinker","year":"2021","journal-title":"Biomed Signal Process Control"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0049","doi-asserted-by":"crossref","first-page":"59","DOI":"10.1186\/s12890-022-01855-w","article-title":"Investigation of respiratory rate in patients with cystic fibrosis using a minimal-impact biomotion system","volume":"22","author":"Strassburg","year":"2022","journal-title":"BMC Pulm Med"},{"key":"10.1016\/j.jcf.2024.02.011_bib0050","doi-asserted-by":"crossref","unstructured":"Sutcliffe DaU, Emem, Ryan, Judy, Allen, Janet, Brown, Karen, Bell, Nicholas, Bilton, Diana, Daniels, Thomas, Elston, Caroline, Haworth, Charles, Jones, Andrew, Orchard, Chris, Peckham, Daniel, Winn, John, Floto, Rodrigo A., Gillgrass, Lindsey, Wood, Anne, Millward, Abigail, Harris, Andrew, Aaron-Stear, Chloe, Coplowe, Sally, Taveira, Marlene, Machine learning predicts acute pulmonary exacerbations in cystic fibrosis. 2021 Available at SSRN: https:\/\/ssrn.com\/abstract=3750683 or DOI: 10.2139\/ssrn.3750683.","DOI":"10.2139\/ssrn.3750683"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0051","doi-asserted-by":"crossref","first-page":"e49","DOI":"10.1016\/j.jcf.2021.05.005","article-title":"Actigraphic and patient and family reported sleep outcomes in children and youth with cystic fibrosis: a systematic review","volume":"21","author":"McMurray","year":"2022","journal-title":"J Cyst Fibros"},{"issue":"23","key":"10.1016\/j.jcf.2024.02.011_bib0052","doi-asserted-by":"crossref","DOI":"10.3390\/s23239498","article-title":"The emergence of AI-based wearable sensors for digital health technology: a review","volume":"23","author":"Shajari","year":"2023","journal-title":"Sensors"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0053","doi-asserted-by":"crossref","first-page":"419","DOI":"10.1007\/s40271-019-00361-2","article-title":"Validity and reliability of a novel multimodal questionnaire for the assessment of abdominal symptoms in people with cystic fibrosis (CFAbd-Score)","volume":"12","author":"Jaudszus","year":"2019","journal-title":"Patient"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0054","doi-asserted-by":"crossref","first-page":"598","DOI":"10.1016\/j.jcf.2020.12.021","article-title":"Designing the GALAXY study: partnering with the cystic fibrosis community to optimize assessment of gastrointestinal symptoms","volume":"20","author":"Freeman","year":"2021","journal-title":"J Cyst Fibros"},{"key":"10.1016\/j.jcf.2024.02.011_bib0055","article-title":"Multicenter prospective study showing a high gastrointestinal symptom burden in cystic fibrosis","author":"Moshiree","year":"2022","journal-title":"J Cyst Fibros"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0056","doi-asserted-by":"crossref","first-page":"605","DOI":"10.1016\/j.jcf.2021.07.002","article-title":"Utilization of electronic patient-reported outcome measures in cystic fibrosis research: application to the GALAXY study","volume":"20","author":"Sathe","year":"2021","journal-title":"J Cyst Fibros"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0057","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0174463","article-title":"Abdominal symptoms in cystic fibrosis and their relation to genotype, history, clinical and laboratory findings","volume":"12","author":"Tabori","year":"2017","journal-title":"PLoS One"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0058","doi-asserted-by":"crossref","first-page":"832","DOI":"10.1016\/j.jada.2008.02.020","article-title":"Clinical Practice Guidelines on G, et al. Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review","volume":"108","author":"Stallings","year":"2008","journal-title":"J Am Diet Assoc"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0059","doi-asserted-by":"crossref","first-page":"530","DOI":"10.1016\/j.jpeds.2012.08.040","article-title":"Better nutritional status in early childhood is associated with improved clinical outcomes and survival in patients with cystic fibrosis","volume":"162","author":"Yen","year":"2013","journal-title":"J Pediatr"},{"key":"10.1016\/j.jcf.2024.02.011_bib0060","doi-asserted-by":"crossref","first-page":"33","DOI":"10.3389\/fped.2014.00033","article-title":"Body composition and pulmonary function in cystic fibrosis","volume":"2","author":"Sheikh","year":"2014","journal-title":"Front Pediatr"},{"key":"10.1016\/j.jcf.2024.02.011_bib0061","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1016\/j.nut.2017.10.026","article-title":"Association between body composition and pulmonary function in children and young people with cystic fibrosis","volume":"48","author":"Calella","year":"2018","journal-title":"Nutrition"},{"issue":"6","key":"10.1016\/j.jcf.2024.02.011_bib0062","doi-asserted-by":"crossref","first-page":"1110","DOI":"10.1002\/ncp.10583","article-title":"The association of grip strength, body mass index, and lung function in youth with cystic fibrosis","volume":"35","author":"Bouma","year":"2020","journal-title":"Nutr Clin Pract"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0063","doi-asserted-by":"crossref","first-page":"153","DOI":"10.1016\/j.jcf.2019.05.018","article-title":"Non-fasting bioelectrical impedance analysis in cystic fibrosis: implications for clinical practice and research","volume":"19","author":"Hollander-Kraaijeveld","year":"2020","journal-title":"J Cyst Fibros"},{"issue":"6","key":"10.1016\/j.jcf.2024.02.011_bib0064","doi-asserted-by":"crossref","first-page":"10895","DOI":"10.3390\/s140610895","article-title":"The theory and fundamentals of bioimpedance analysis in clinical status monitoring and diagnosis of diseases","volume":"14","author":"Khalil","year":"2014","journal-title":"Sensors"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0065","doi-asserted-by":"crossref","first-page":"e22487","DOI":"10.2196\/22487","article-title":"Accuracy of smart scales on weight and body composition: observational study","volume":"9","author":"Frija-Masson","year":"2021","journal-title":"JMIR Mhealth Uhealth"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0066","doi-asserted-by":"crossref","first-page":"1","DOI":"10.5223\/pghn.2022.25.1.1","article-title":"Fecal calprotectin and phenotype severity in patients with cystic fibrosis: a systematic review and meta-analysis","volume":"25","author":"Talebi","year":"2022","journal-title":"Pediatr Gastroenterol Hepatol Nutr"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0067","doi-asserted-by":"crossref","first-page":"282","DOI":"10.1097\/MPG.0000000000002197","article-title":"Decreased fecal calprotectin levels in cystic fibrosis patients after antibiotic treatment for respiratory exacerbation","volume":"68","author":"Schnapp","year":"2019","journal-title":"J Pediatr Gastroenterol Nutr"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0068","doi-asserted-by":"crossref","DOI":"10.3390\/jcm11030649","article-title":"Intestinal inflammation and alterations in the gut microbiota in cystic fibrosis: a review of the current evidence, pathophysiology and future directions","volume":"11","author":"Tam","year":"2022","journal-title":"J Clin Med"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0069","doi-asserted-by":"crossref","first-page":"42","DOI":"10.1016\/S2213-8587(22)00319-9","article-title":"Continuous glucose monitoring and metrics for clinical trials: an international consensus statement","volume":"11","author":"Battelino","year":"2023","journal-title":"Lancet Diabetes Endocrinol"},{"issue":"10270","key":"10.1016\/j.jcf.2024.02.011_bib0070","doi-asserted-by":"crossref","first-page":"208","DOI":"10.1016\/S0140-6736(20)32514-9","article-title":"A comparison of two hybrid closed-loop systems in adolescents and young adults with type 1 diabetes (FLAIR): a multicentre, randomised, crossover trial","volume":"397","author":"Bergenstal","year":"2021","journal-title":"Lancet"},{"issue":"7","key":"10.1016\/j.jcf.2024.02.011_bib0071","doi-asserted-by":"crossref","first-page":"1630","DOI":"10.2337\/dc21-0172","article-title":"Multicenter trial of a tubeless, on-body automated insulin delivery system with customizable glycemic targets in pediatric and adult participants with type 1 diabetes","volume":"44","author":"Brown","year":"2021","journal-title":"Diabetes Care"},{"issue":"18","key":"10.1016\/j.jcf.2024.02.011_bib0072","doi-asserted-by":"crossref","first-page":"1707","DOI":"10.1056\/NEJMoa1907863","article-title":"Six-month randomized, multicenter trial of closed-loop control in type 1 diabetes","volume":"381","author":"Brown","year":"2019","journal-title":"N Engl J Med"},{"issue":"6","key":"10.1016\/j.jcf.2024.02.011_bib0073","doi-asserted-by":"crossref","first-page":"1020","DOI":"10.2337\/dc08-1925","article-title":"Validation of continuous glucose monitoring in children and adolescents with cystic fibrosis: a prospective cohort study","volume":"32","author":"O'Riordan","year":"2009","journal-title":"Diabetes Care"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0074","doi-asserted-by":"crossref","first-page":"478","DOI":"10.1016\/j.jcf.2013.11.005","article-title":"Early assessment of glucose abnormalities during continuous glucose monitoring associated with lung function impairment in cystic fibrosis patients","volume":"13","author":"Leclercq","year":"2014","journal-title":"J Cyst Fibros"},{"issue":"6","key":"10.1016\/j.jcf.2024.02.011_bib0075","doi-asserted-by":"crossref","first-page":"869","DOI":"10.1016\/j.jcf.2019.03.010","article-title":"Early glucose abnormalities are associated with pulmonary inflammation in young children with cystic fibrosis","volume":"18","author":"Prentice","year":"2019","journal-title":"J Cyst Fibros"},{"issue":"6","key":"10.1016\/j.jcf.2024.02.011_bib0076","doi-asserted-by":"crossref","first-page":"783","DOI":"10.1016\/j.jcf.2018.03.008","article-title":"Continuous glucose monitoring abnormalities in cystic fibrosis youth correlate with pulmonary function decline","volume":"17","author":"Chan","year":"2018","journal-title":"J Cyst Fibros"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0077","doi-asserted-by":"crossref","first-page":"258","DOI":"10.1016\/j.jcf.2021.09.001","article-title":"The effect of elexacaftor\/tezacaftor\/ivacaftor (ETI) on glycemia in adults with cystic fibrosis","volume":"21","author":"Scully","year":"2022","journal-title":"J Cyst Fibros"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0078","doi-asserted-by":"crossref","first-page":"e1444","DOI":"10.1210\/clinem\/dgab857","article-title":"Continuous glucose monitoring and HbA1c in cystic fibrosis: clinical correlations and implications for CFRD diagnosis","volume":"107","author":"Scully","year":"2022","journal-title":"J Clin Endocrinol Metab"},{"key":"10.1016\/j.jcf.2024.02.011_bib0079","doi-asserted-by":"crossref","first-page":"S6","DOI":"10.1016\/S1569-1993(22)00700-7","article-title":"Automated insulin delivery with the ilet bionic pancreas for the management of cystic fibrosis-related diabetes","volume":"21","author":"Sherwood","year":"2022","journal-title":"J Cystic Fibrosis"},{"issue":"13","key":"10.1016\/j.jcf.2024.02.011_bib0080","doi-asserted-by":"crossref","first-page":"1161","DOI":"10.1056\/NEJMoa2205225","article-title":"Multicenter, randomized trial of a bionic pancreas in type 1 diabetes","volume":"387","author":"Bionic Pancreas Research","year":"2022","journal-title":"N Engl J Med"},{"issue":"11","key":"10.1016\/j.jcf.2024.02.011_bib0081","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0257154","article-title":"Comparison of central laboratory HbA1c measurements obtained from a capillary collection versus a standard venous whole blood collection in the GRADE and EDIC studies","volume":"16","author":"Nathan","year":"2021","journal-title":"PLoS One"},{"issue":"11","key":"10.1016\/j.jcf.2024.02.011_bib0082","doi-asserted-by":"crossref","first-page":"789","DOI":"10.1089\/dia.2022.0187","article-title":"Accuracy of three commercial home-use hemoglobin A1c tests","volume":"24","author":"Jacobsen","year":"2022","journal-title":"Diabetes Technol Ther"},{"issue":"8","key":"10.1016\/j.jcf.2024.02.011_bib0083","doi-asserted-by":"crossref","first-page":"537","DOI":"10.1089\/dia.2021.0023","article-title":"An evaluation of two capillary sample collection kits for laboratory measurement of HbA1c","volume":"23","author":"Beck","year":"2021","journal-title":"Diabetes Technol Ther"},{"issue":"7","key":"10.1016\/j.jcf.2024.02.011_bib0084","doi-asserted-by":"crossref","first-page":"1406","DOI":"10.2337\/dc17-2419","article-title":"Hemoglobin A1c accurately predicts continuous glucose monitoring-derived average glucose in youth and young adults with cystic fibrosis","volume":"41","author":"Chan","year":"2018","journal-title":"Diabetes Care"},{"key":"10.1016\/j.jcf.2024.02.011_bib0085","unstructured":"Administration USFD. Patient-reported outcome measures: use in medical product development to support labeling claims 2009 [Available from: https:\/\/www.fda.gov\/regulatory-information\/search-fda-guidance-documents\/patient-reported-outcome-measures-use-medical-product-development-support-labeling-claims."},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0086","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1016\/j.jcf.2015.11.001","article-title":"Web-based symptom screening in cystic fibrosis patients: a feasibility study","volume":"15","author":"Balzano","year":"2016","journal-title":"J Cyst Fibros"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0087","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2017-019305","article-title":"Online versus paper-based screening for depression and anxiety in adults with cystic fibrosis in Ireland: a cross-sectional exploratory study","volume":"8","author":"Cronly","year":"2018","journal-title":"BMJ Open"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0088","doi-asserted-by":"crossref","first-page":"301","DOI":"10.1007\/s40271-014-0090-z","article-title":"Capturing patient-reported outcome (PRO) data electronically: the past, present, and promise of EPRO measurement in clinical trials","volume":"8","author":"Coons","year":"2015","journal-title":"Patient"},{"key":"10.1016\/j.jcf.2024.02.011_bib0089","unstructured":"Nebeker. What are IRBs thinking about tech-enabled research? : Recode | health; 2018 [Available from: https:\/\/recode.health\/2018\/05\/03\/irbs-thinking-tech-enabled-research\/."},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0090","doi-asserted-by":"crossref","first-page":"e15","DOI":"10.1016\/j.jcf.2021.06.007","article-title":"Satisfaction and effectiveness of opioid pain management among adults with cystic fibrosis: a mixed methods study","volume":"21","author":"Allgood","year":"2022","journal-title":"J Cyst Fibros"},{"issue":"12","key":"10.1016\/j.jcf.2024.02.011_bib0091","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2016-012303","article-title":"Perception of first respiratory infection with Pseudomonas aeruginosa by people with cystic fibrosis and those close to them: an online qualitative study","volume":"6","author":"Palser","year":"2016","journal-title":"BMJ Open"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0092","article-title":"How can we relieve gastrointestinal symptoms in people with cystic fibrosis? An international qualitative survey","volume":"7","author":"Smith","year":"2020","journal-title":"BMJ Open Respir Res"},{"key":"10.1016\/j.jcf.2024.02.011_bib0093","article-title":"Development of a cystic fibrosis primary palliative care intervention: qualitative analysis of patient and family caregiver preferences","volume":"10","author":"Basile","year":"2023","journal-title":"J Patient Exp"},{"issue":"8","key":"10.1016\/j.jcf.2024.02.011_bib0094","doi-asserted-by":"crossref","first-page":"644","DOI":"10.1089\/tmj.2014.0125","article-title":"Attitudes toward telemedicine in urban, rural, and highly rural communities","volume":"21","author":"Call","year":"2015","journal-title":"Telemed J E Health"},{"key":"10.1016\/j.jcf.2024.02.011_bib0095","unstructured":"eCFR Title 21, Chapter 1, Subchapter 4, Part 312 investigational new drug applications us health and human services: food and drug administration; [Available from: https:\/\/www.ecfr.gov\/current\/title-21\/chapter-I\/subchapter-D."},{"issue":"13","key":"10.1016\/j.jcf.2024.02.011_bib0096","doi-asserted-by":"crossref","first-page":"3100","DOI":"10.1158\/1078-0432.CCR-20-1364","article-title":"Adapting to a Pandemic - conducting oncology trials during the SARS-CoV-2 pandemic","volume":"26","author":"Tan","year":"2020","journal-title":"Clin Cancer Res"},{"key":"10.1016\/j.jcf.2024.02.011_bib0097","doi-asserted-by":"crossref","DOI":"10.1136\/bmjebm-2023-112253","article-title":"Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observational studies","author":"Aiyegbusi","year":"2023","journal-title":"BMJ Evid Based Med"},{"issue":"10385","key":"10.1016\/j.jcf.2024.02.011_bib0098","doi-asserted-by":"crossref","first-page":"1339","DOI":"10.1016\/S0140-6736(23)00463-4","article-title":"Decentralised Clinical Trials Task F. Decentralised elements in clinical trials: recommendations from the European Medicines Regulatory Network","volume":"401","author":"Al","year":"2023","journal-title":"Lancet"},{"key":"10.1016\/j.jcf.2024.02.011_bib0099","series-title":"Administration FAD","article-title":"FDA guidance on conduct of clinical trials of medical products during the COVID-19 public health emergency","year":"2021"},{"key":"10.1016\/j.jcf.2024.02.011_bib0100","series-title":"Administration FAD","article-title":"Biological products, and devices","year":"2023"},{"key":"10.1016\/j.jcf.2024.02.011_bib0101","series-title":"Administration FAD","article-title":"FDA Digital health technologies for remote data acquisition in clinical investigations draft guidance for industry, investigators, and other stakeholders","year":"2021"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0102","doi-asserted-by":"crossref","first-page":"338","DOI":"10.1016\/j.clinbiochem.2009.08.016","article-title":"Biological variability of blood omega-3 biomarkers","volume":"43","author":"Harris","year":"2010","journal-title":"Clin Biochem"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0103","first-page":"53","article-title":"Sensitivity and specificity of quantitative determination of pancreatic elastase 1 in feces of children","volume":"24","author":"Soldan","year":"1997","journal-title":"J Pediatr Gastroenterol Nutr"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0104","doi-asserted-by":"crossref","first-page":"631","DOI":"10.1016\/j.jcf.2017.03.010","article-title":"Age-dependent variation of fecal calprotectin in cystic fibrosis and healthy children","volume":"16","author":"Garg","year":"2017","journal-title":"J Cyst Fibros"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0105","doi-asserted-by":"crossref","first-page":"215","DOI":"10.1038\/s41591-019-0714-x","article-title":"Fecal dysbiosis in infants with cystic fibrosis is associated with early linear growth failure","volume":"26","author":"Hayden","year":"2020","journal-title":"Nat Med"},{"key":"10.1016\/j.jcf.2024.02.011_bib0106","series-title":"Colorectal cancer screening in cystic fibrosis (NICE-CF)","year":"2023"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0107","doi-asserted-by":"crossref","first-page":"672","DOI":"10.1016\/j.jcf.2017.10.015","article-title":"Development and electronic validation of the revised Cystic Fibrosis Questionnaire (CFQ-R Teen\/Adult): new tool for monitoring psychosocial health in CF","volume":"17","author":"Sole","year":"2018","journal-title":"J Cyst Fibros"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0108","doi-asserted-by":"crossref","first-page":"108","DOI":"10.1186\/s12931-017-0592-z","article-title":"Electronic applications for the CFQ-R scoring","volume":"18","author":"Ronit","year":"2017","journal-title":"Respir Res"},{"issue":"7","key":"10.1016\/j.jcf.2024.02.011_bib0109","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0199235","article-title":"Factorial validity and invariance of the Patient Health Questionnaire (PHQ)-9 among clinical and non-clinical populations","volume":"13","author":"Doi","year":"2018","journal-title":"PLoS One"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0110","doi-asserted-by":"crossref","first-page":"1238","DOI":"10.1002\/ppul.25850","article-title":"Food insecurity and mental health during the COVID-19 pandemic in cystic fibrosis households","volume":"57","author":"Lim","year":"2022","journal-title":"Pediatr Pulmonol"},{"issue":"5","key":"10.1016\/j.jcf.2024.02.011_bib0111","doi-asserted-by":"crossref","first-page":"696","DOI":"10.1016\/j.jcf.2016.02.011","article-title":"Disease disclosure in individuals with cystic fibrosis: association with psychosocial and health outcomes","volume":"15","author":"Borschuk","year":"2016","journal-title":"J Cyst Fibros"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0112","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1136\/thoraxjnl-2015-207488","article-title":"International Committee on Mental Health in Cystic Fibrosis: cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety","volume":"71","author":"Quittner","year":"2016","journal-title":"Thorax"},{"issue":"12","key":"10.1016\/j.jcf.2024.02.011_bib0113","doi-asserted-by":"crossref","first-page":"4805","DOI":"10.1007\/s00405-021-06752-2","article-title":"How face masks influence the sinonasal quality of life during the COVID-19 pandemic","volume":"278","author":"Primov-Fever","year":"2021","journal-title":"Eur Arch Otorhinolaryngol"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0114","doi-asserted-by":"crossref","first-page":"282","DOI":"10.1016\/j.jcf.2022.10.003","article-title":"Elexacaftor\/tezacaftor\/ivacaftor and gastrointestinal outcomes in cystic fibrosis: report of promise-GI","volume":"22","author":"Schwarzenberg","year":"2023","journal-title":"J Cyst Fibros"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0115","doi-asserted-by":"crossref","DOI":"10.3390\/ijns8030038","article-title":"Newborn screening for cystic fibrosis: a qualitative study of successes and challenges from universal screening in the United States","volume":"8","author":"Sontag","year":"2022","journal-title":"Int J Neonatal Screen"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0116","doi-asserted-by":"crossref","first-page":"377","DOI":"10.1177\/1742395319881182","article-title":"Health care provider's experiences, practices, and recommendations for interventions and screening of cystic fibrosis patients with disordered eating: a qualitative analysis","volume":"17","author":"Quick","year":"2021","journal-title":"Chron Illn"},{"issue":"10","key":"10.1016\/j.jcf.2024.02.011_bib0117","doi-asserted-by":"crossref","DOI":"10.3390\/ijerph19106114","article-title":"Evaluating the effect of Kaftrio on perspectives of health and wellbeing in individuals with cystic fibrosis","volume":"19","author":"Aspinall","year":"2022","journal-title":"Int J Environ Res Public Health"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0118","doi-asserted-by":"crossref","first-page":"657","DOI":"10.1016\/j.jcf.2022.02.002","article-title":"Men's sexual and reproductive health in cystic fibrosis in the era of highly effective modulator therapies-A qualitative study","volume":"21","author":"Clarke","year":"2022","journal-title":"J Cyst Fibros"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0119","doi-asserted-by":"crossref","first-page":"36","DOI":"10.1186\/s41687-020-00199-5","article-title":"The cystic fibrosis impact questionnaire: qualitative development and cognitive evaluation of a new patient-reported outcome instrument to assess the life impacts of cystic fibrosis","volume":"4","author":"McCarrier","year":"2020","journal-title":"J Patient Rep Outcomes"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0120","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1093\/jamia\/ocac176","article-title":"Take on transplant: human-centered design of a patient education tool to facilitate informed discussions about lung transplant among people with cystic fibrosis","volume":"30","author":"Hartzler","year":"2022","journal-title":"J Am Med Inform Assoc"},{"issue":"3","key":"10.1016\/j.jcf.2024.02.011_bib0121","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1016\/j.jcf.2021.09.004","article-title":"Barriers and facilitators to implementing telehealth services during the COVID-19 pandemic: a qualitative analysis of interviews with cystic fibrosis care team members","volume":"20","author":"Van Citters","year":"2021","journal-title":"J Cyst Fibros"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0122","doi-asserted-by":"crossref","first-page":"e19413","DOI":"10.2196\/19413","article-title":"A mobile health platform for self-management of pediatric cystic fibrosis: qualitative study of adaptation to stakeholder needs and integration in clinical settings","volume":"5","author":"Rutland","year":"2021","journal-title":"JMIR Form Res"},{"issue":"11","key":"10.1016\/j.jcf.2024.02.011_bib0123","doi-asserted-by":"crossref","first-page":"1985","DOI":"10.1016\/j.pec.2019.06.007","article-title":"Using qualitative methods to inform the design of a decision aid for people with advanced cystic fibrosis: the InformedChoices CF patient decision aid","volume":"102","author":"Basile","year":"2019","journal-title":"Patient Educ Couns"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0124","doi-asserted-by":"crossref","first-page":"532","DOI":"10.1111\/jan.15099","article-title":"Fertility preservation in women with cystic fibrosis pre-lung transplantation: a mixed methods study","volume":"78","author":"Ladores","year":"2022","journal-title":"J Adv Nurs"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0125","doi-asserted-by":"crossref","first-page":"401","DOI":"10.1111\/scd.12773","article-title":"Self-reported dental attendance, oral hygiene habits, and dietary habits of adults with cystic fibrosis","volume":"43","author":"Coffey","year":"2023","journal-title":"Spec Care Dentist"},{"issue":"11c","key":"10.1016\/j.jcf.2024.02.011_bib0126","doi-asserted-by":"crossref","first-page":"318","DOI":"10.1111\/j.1365-2702.2008.02581.x","article-title":"I have cystic fibrosis': an analysis of web-based disclosures of a chronic illness","volume":"17","author":"Ravert","year":"2008","journal-title":"J Clin Nurs"},{"key":"10.1016\/j.jcf.2024.02.011_bib0127","doi-asserted-by":"crossref","first-page":"269","DOI":"10.3389\/fpubh.2018.00269","article-title":"Tele-exercise as a promising tool to promote exercise in children with cystic fibrosis","volume":"6","author":"Chen","year":"2018","journal-title":"Front Public Health"},{"issue":"4","key":"10.1016\/j.jcf.2024.02.011_bib0128","doi-asserted-by":"crossref","first-page":"354","DOI":"10.3109\/17538157.2013.812646","article-title":"Pilot evaluation of web enabled symptom monitoring in cystic fibrosis","volume":"38","author":"Roehrer","year":"2013","journal-title":"Inform Health Soc Care"},{"issue":"2","key":"10.1016\/j.jcf.2024.02.011_bib0129","doi-asserted-by":"crossref","first-page":"e21270","DOI":"10.2196\/21270","article-title":"Developing a decision aid to facilitate informed decision making about invasive mechanical ventilation and lung transplantation among adults with cystic fibrosis: usability testing","volume":"8","author":"Dauber-Decker","year":"2021","journal-title":"JMIR Hum Factors"},{"issue":"8","key":"10.1016\/j.jcf.2024.02.011_bib0130","doi-asserted-by":"crossref","first-page":"e14552","DOI":"10.2196\/14552","article-title":"Use of home-based connected devices in patients with cystic fibrosis for the early detection and treatment of pulmonary exacerbations: protocol for a qualitative study","volume":"10","author":"Morsa","year":"2021","journal-title":"JMIR Res Protoc"},{"key":"10.1016\/j.jcf.2024.02.011_bib0131","doi-asserted-by":"crossref","DOI":"10.1016\/j.eujim.2020.101229","article-title":"Learning to breathe with Tai Chi online - qualitative data from a randomized controlled feasibility study of patients with cystic fibrosis","volume":"40","author":"Ronan","year":"2020","journal-title":"Eur J Integr Med"},{"issue":"1","key":"10.1016\/j.jcf.2024.02.011_bib0132","doi-asserted-by":"crossref","first-page":"22","DOI":"10.1186\/s12890-017-0366-x","article-title":"A prospective pilot study of home monitoring in adults with cystic fibrosis (HOME-CF): protocol for a randomised controlled trial","volume":"17","author":"Choyce","year":"2017","journal-title":"BMC Pulm Med"}],"container-title":["Journal of Cystic Fibrosis"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1569199324000237?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1569199324000237?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T19:08:26Z","timestamp":1783019306000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1569199324000237"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,7]]},"references-count":132,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2024,7]]}},"alternative-id":["S1569199324000237"],"URL":"https:\/\/doi.org\/10.1016\/j.jcf.2024.02.011","relation":{},"ISSN":["1569-1993"],"issn-type":[{"value":"1569-1993","type":"print"}],"subject":[],"published":{"date-parts":[[2024,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Remote endpoints for clinical trials in cystic fibrosis: Report from the U.S. CF foundation remote endpoints task force","name":"articletitle","label":"Article Title"},{"value":"Journal of Cystic Fibrosis","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jcf.2024.02.011","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 Published by Elsevier B.V. on behalf of European Cystic Fibrosis Society.","name":"copyright","label":"Copyright"}]}}