{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T16:04:40Z","timestamp":1787069080006,"version":"build-2736575974"},"reference-count":46,"publisher":"Elsevier BV","issue":"4","content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Communication Disorders"],"published-print":{"date-parts":[[2013,7]]},"DOI":"10.1016\/j.jcomdis.2013.03.001","type":"journal-article","created":{"date-parts":[[2013,3,15]],"date-time":"2013-03-15T20:39:42Z","timestamp":1363379982000},"page":"321-329","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":11,"title":["Parental satisfaction in Ugandan children with cleft lip and palate following synchronous lip and palatal repair"],"prefix":"10.1016","volume":"46","author":[{"given":"Anke","family":"Luyten","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Evelien","family":"D\u2019haeseleer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dorte","family":"Budolfsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Hodges","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"George","family":"Galiwango","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hubert","family":"Vermeersch","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristiane","family":"Van Lierde","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jcomdis.2013.03.001_bib0005","doi-asserted-by":"crossref","DOI":"10.3402\/gha.v4i0.7117","article-title":"Profiles and outcome of traditional healing practices for severe mental illnesses in two districts of Eastern Uganda","volume":"4","author":"Abbo","year":"2011","journal-title":"Global Health Action"},{"issue":"1","key":"10.1016\/j.jcomdis.2013.03.001_bib0010","doi-asserted-by":"crossref","first-page":"82","DOI":"10.1597\/08-094","article-title":"Coping with a cleft II: Factors associated with psychosocial adjustment of adolescents with a cleft lip and palate and their parents","volume":"48","author":"Berger","year":"2011","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"8","key":"10.1016\/j.jcomdis.2013.03.001_bib0015","doi-asserted-by":"crossref","first-page":"697","DOI":"10.1016\/S0033-3182(81)73469-8","article-title":"Adolescents with cleft palate: Body-image and psychosocial problems","volume":"22","author":"Bernstein","year":"1981","journal-title":"Psychosomatics"},{"issue":"3","key":"10.1016\/j.jcomdis.2013.03.001_bib0020","doi-asserted-by":"crossref","first-page":"262","DOI":"10.1597\/1545-1569(1992)029<0262:HOPWCP>2.3.CO;2","article-title":"Habilitation of patients with clefts: Parent and child ratings of satisfaction with appearance and speech","volume":"29","author":"Broder","year":"1992","journal-title":"The Cleft Palate-Craniofacial Journal"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0025","series-title":"The social psychology of facial appearance","author":"Bull","year":"1988"},{"issue":"Suppl. 1","key":"10.1016\/j.jcomdis.2013.03.001_bib0030","doi-asserted-by":"crossref","first-page":"s32","DOI":"10.1111\/j.1524-475X.2010.00607.x","article-title":"Recommendations on clinical proof of efficacy for potential scar prevention and reduction therapies","volume":"19","author":"Bush","year":"2011","journal-title":"Wound Repair and Regeneration"},{"issue":"4","key":"10.1016\/j.jcomdis.2013.03.001_bib0035","doi-asserted-by":"crossref","first-page":"273","DOI":"10.1007\/s00238-011-0620-z","article-title":"Malnutrition in cleft lip and palate children in Uganda","volume":"35","author":"Cubitt","year":"2011","journal-title":"European Journal of Plastic Surgery"},{"issue":"5","key":"10.1016\/j.jcomdis.2013.03.001_bib0040","doi-asserted-by":"crossref","first-page":"461","DOI":"10.1597\/03-153.1","article-title":"Approaches of South African traditional healers regarding the treatment of cleft lip and palate","volume":"41","author":"Dagher","year":"2004","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"2","key":"10.1016\/j.jcomdis.2013.03.001_bib0045","doi-asserted-by":"crossref","first-page":"156","DOI":"10.1597\/09-076","article-title":"Incidence of cleft lip and palate in Uganda","volume":"48","author":"Dreise","year":"2011","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"2","key":"10.1016\/j.jcomdis.2013.03.001_bib0050","article-title":"Survey of ENT services in Africa: Need for a comprehensive intervention","volume":"19","author":"Fagan","year":"2009","journal-title":"Global Health Action"},{"issue":"1","key":"10.1016\/j.jcomdis.2013.03.001_bib0055","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1597\/07-124.1","article-title":"Social experience in 10-year-old children born with a cleft: Exploring psychosocial resilience","volume":"46","author":"Feragen","year":"2009","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"3","key":"10.1016\/j.jcomdis.2013.03.001_bib0060","doi-asserted-by":"crossref","first-page":"272","DOI":"10.1597\/06-195","article-title":"Mandibular morphology and spatial position following one-stage simultaneous repair of complete unilateral cleft lip and palate","volume":"45","author":"Fudalej","year":"2008","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"1","key":"10.1016\/j.jcomdis.2013.03.001_bib0065","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1111\/j.1600-0528.1994.tb01568.x","article-title":"Social-factors and self-assessed oral health in South-Africa","volume":"22","author":"Gilbert","year":"1994","journal-title":"Community Densistry and Oral Epidemiology"},{"issue":"11","key":"10.1016\/j.jcomdis.2013.03.001_bib0070","doi-asserted-by":"crossref","first-page":"1813","DOI":"10.1016\/j.bjps.2009.10.033","article-title":"Combined early cleft lip and palate repair in children under 10 months \u2013 a series of 106 patients","volume":"63","author":"Hodges","year":"2010","journal-title":"Journal of Plastic, Reconstructive & Aesthetic Surgery"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0075","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1054\/bjps.1999.3238","article-title":"A rural cleft project in Uganda","volume":"53","author":"Hodges","year":"2000","journal-title":"British Journal of Plastic Surgery"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0080","unstructured":"Human Rights Watch. (2010). \u201cAs if we weren\u2019t human\u201d: Discrimination and violence against women with disabilities in northern Uganda. Retrieved November 2012 from http:\/\/www.hrw.org\/node\/92611"},{"issue":"3","key":"10.1016\/j.jcomdis.2013.03.001_bib0085","doi-asserted-by":"crossref","first-page":"274","DOI":"10.1093\/ejo\/cji004","article-title":"The psychosocial effects of cleft lip and palate: A systematic review","volume":"27","author":"Hunt","year":"2005","journal-title":"The European Journal of Orthodontics"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0090","unstructured":"International Labour Organization. (2009). Inclusion of people with disabilities in Uganda. Retrieved November 2012 from http:\/\/www.ilo.org\/"},{"issue":"4","key":"10.1016\/j.jcomdis.2013.03.001_bib0095","first-page":"379","article-title":"Weight gain and feeding in the neonate with cleft: A three-center study","volume":"25","author":"Jones","year":"1988","journal-title":"Cleft Palate Journal"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0100","first-page":"1","article-title":"Adult patients with treated complete cleft lip and palate. Methodological and clinical studies","volume":"145","author":"Marcusson","year":"2001","journal-title":"Swedish Dental Journal Supplement"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0105","series-title":"Human communication disorders: An introduction","first-page":"438","article-title":"Cleft palate","author":"McWilliams","year":"1994"},{"issue":"5","key":"10.1016\/j.jcomdis.2013.03.001_bib0110","first-page":"409","article-title":"Syndromes, communicative disorders, and black children","volume":"78","author":"Meyerson","year":"1986","journal-title":"Journal of the National Medical Association"},{"issue":"2","key":"10.1016\/j.jcomdis.2013.03.001_bib0115","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1055\/s-0031-1277714","article-title":"Feeding issues and interventions in infants and children with clefts and craniofacial syndromes [Review]","volume":"32","author":"Miller","year":"2011","journal-title":"Seminars in Speech and Language"},{"issue":"1","key":"10.1016\/j.jcomdis.2013.03.001_bib0120","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1111\/j.1365-2214.2011.01244.x","article-title":"Parents\u2019 experiences of caring for a child with a cleft lip and\/or palate: A review of the literature","volume":"38","author":"Nelson","year":"2012","journal-title":"Child: Care, Health and Development"},{"issue":"3","key":"10.1016\/j.jcomdis.2013.03.001_bib0125","doi-asserted-by":"crossref","first-page":"325","DOI":"10.1597\/10-145","article-title":"Application of the international classification of functioning, disability, and health-children and youth version (ICF-CY) to cleft lip and palate","volume":"49","author":"Neumann","year":"2012","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"3","key":"10.1016\/j.jcomdis.2013.03.001_bib0130","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1597\/1545-1569(1991)028<0279:QSOAAC>2.3.CO;2","article-title":"Questionnaire survey of attitudes and concerns of patients with cleft lip and palate and their parents","volume":"28","author":"Noar","year":"1991","journal-title":"Cleft Palate-Craniofac Journal"},{"issue":"3","key":"10.1016\/j.jcomdis.2013.03.001_bib0135","doi-asserted-by":"crossref","first-page":"292","DOI":"10.1597\/05-151","article-title":"Assessment of patients\u2019 level of satisfaction with cleft treatment using the Cleft Evaluation Profile","volume":"44","author":"Noor","year":"2007","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"8","key":"10.1016\/j.jcomdis.2013.03.001_bib0140","doi-asserted-by":"crossref","first-page":"879","DOI":"10.1016\/j.bjps.2007.06.002","article-title":"Cleft lip and palate repair: The experience from two West African sub-regional centres","volume":"61","author":"Onah","year":"2008","journal-title":"Journal of Plastic, Reconstructive & Aesthetic Surgery"},{"issue":"10","key":"10.1016\/j.jcomdis.2013.03.001_bib0145","doi-asserted-by":"crossref","first-page":"890","DOI":"10.1016\/j.ijom.2007.07.008","article-title":"Satisfaction with treatment outcome in bilateral cleft lip and palate patients","volume":"36","author":"Oosterkamp","year":"2007","journal-title":"International Journal of Oral and Maxillofacial Surgery"},{"issue":"6","key":"10.1016\/j.jcomdis.2013.03.001_bib0150","doi-asserted-by":"crossref","first-page":"471","DOI":"10.1054\/bjps.2001.3618","article-title":"Failure to thrive in babies with cleft lip and palate","volume":"54","author":"Pandya","year":"2001","journal-title":"British Journal of Plastic Surgery"},{"issue":"3","key":"10.1016\/j.jcomdis.2013.03.001_bib0155","doi-asserted-by":"crossref","first-page":"229","DOI":"10.4103\/0970-4388.85831","article-title":"Post-surgical dentofacial deformities and dental treatment needs in cleft-lip-palate children: A clinical study","volume":"29","author":"Priya","year":"2011","journal-title":"Journal of Indian Society of Pedodontics and Preventive Dentistry"},{"issue":"2","key":"10.1016\/j.jcomdis.2013.03.001_bib0160","doi-asserted-by":"crossref","first-page":"189","DOI":"10.1016\/j.bjps.2010.04.012","article-title":"The effect of South Asian ethnicity on satisfaction with primary cleft lip and or palate repair","volume":"64","author":"Reekie","year":"2011","journal-title":"Journal of Plastic, Reconstructive & Aesthetic Surgery"},{"issue":"5","key":"10.1016\/j.jcomdis.2013.03.001_bib0165","doi-asserted-by":"crossref","first-page":"390","DOI":"10.1597\/1545-1569(1997)034<0390:FASRTB>2.3.CO;2","article-title":"Facial and speech relationships to behavior of children with clefts across three age levels","volume":"34","author":"Richman","year":"1997","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"5","key":"10.1016\/j.jcomdis.2013.03.001_bib0170","doi-asserted-by":"crossref","first-page":"443","DOI":"10.1111\/j.1365-2648.2004.03227.x","article-title":"Altered body image: appearance-related concerns of people with visible disfigurement","volume":"48","author":"Rumsey","year":"2004","journal-title":"Journal of Advanced Nursing"},{"issue":"1","key":"10.1016\/j.jcomdis.2013.03.001_bib0175","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1597\/02-119.4.1","article-title":"The Eurocleft study: Intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 4: Relationship among treatment outcome, patient or parent satisfaction, and the burden of care","volume":"42","author":"Semb","year":"2005","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"Suppl.","key":"10.1016\/j.jcomdis.2013.03.001_bib0180","doi-asserted-by":"crossref","first-page":"S144","DOI":"10.4103\/0970-0358.57198","article-title":"Problems of middle ear and hearing in cleft children","volume":"42","author":"Sharma","year":"2009","journal-title":"Indian Journal of Plastic Surgery"},{"issue":"4","key":"10.1016\/j.jcomdis.2013.03.001_bib0185","doi-asserted-by":"crossref","first-page":"355","DOI":"10.1597\/03-142.1","article-title":"Evaluation of esthetic, functional, and quality-of-life outcome in adult cleft lip and palate patients","volume":"42","author":"Sinko","year":"2005","journal-title":"The Cleft Palate-Craniofacial Journal"},{"issue":"3","key":"10.1016\/j.jcomdis.2013.03.001_bib0190","doi-asserted-by":"crossref","first-page":"226","DOI":"10.1597\/1545-1569(1997)034<0226:SWFAAS>2.3.CO;2","article-title":"Satisfaction with facial appearance among subjects affected by a cleft","volume":"34","author":"Thomas","year":"1997","journal-title":"The Cleft Palate-Craniofacial Journal"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0195","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/S0007-1226(97)91275-3","article-title":"Psychological outcomes amongst cleft patients and their families","volume":"50","author":"Turner","year":"1997","journal-title":"British Journal of Plastic Surgery"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0200","unstructured":"UNICEF. (2003). Retrieved November 2012 from http:\/\/www.unicef.org\/infobycountry\/uganda_statistics.html#90"},{"issue":"2","key":"10.1016\/j.jcomdis.2013.03.001_bib0205","doi-asserted-by":"crossref","first-page":"192","DOI":"10.1016\/j.ijom.2011.10.030","article-title":"Parent and child ratings of satisfaction with speech and facial appearance in Flemish pre-pubescent boys and girls with unilateral cleft lip and palate","volume":"41","author":"Van Lierde","year":"2012","journal-title":"International Journal of Oral and Maxillofacial Surgery"},{"issue":"12","key":"10.1016\/j.jcomdis.2013.03.001_bib0210","doi-asserted-by":"crossref","first-page":"897","DOI":"10.2471\/BLT.10.076703","article-title":"Paediatric surgery and anaesthesia in south-western Uganda: a cross-sectional survey","volume":"88","author":"Walker","year":"2010","journal-title":"Bulletin of the World Health Organization"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0215","doi-asserted-by":"crossref","DOI":"10.1136\/bmj.e25","article-title":"Uganda is left with fewer than 5000 doctors and no strategic plan to retain them","volume":"344","author":"Wasswa","year":"2012","journal-title":"British Medical Journal"},{"issue":"1","key":"10.1016\/j.jcomdis.2013.03.001_bib0220","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1597\/1545-1569(2001)038<0024:CLAPCI>2.0.CO;2","article-title":"Cleft lip and palate care in the United Kingdom \u2013 the Clinical Standards Advisory Group (CSAG) study. Part 2: Dentofacial outcomes and patient satisfaction","volume":"38","author":"Williams","year":"2001","journal-title":"The Cleft Palate-Craniofacial Journal"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0225","series-title":"WHO policy perspective on medicines \u2013 Traditional medicine, growing needs and potential","author":"World Health Organisation","year":"2002"},{"key":"10.1016\/j.jcomdis.2013.03.001_bib0230","series-title":"International classification of functioning, disability, and health, children and youth version","author":"World Health Organisation","year":"2007"}],"container-title":["Journal of Communication Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0021992413000099?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0021992413000099?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2018,10,17]],"date-time":"2018-10-17T21:31:39Z","timestamp":1539811899000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0021992413000099"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,7]]},"references-count":46,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2013,7]]}},"alternative-id":["S0021992413000099"],"URL":"https:\/\/doi.org\/10.1016\/j.jcomdis.2013.03.001","relation":{},"ISSN":["0021-9924"],"issn-type":[{"value":"0021-9924","type":"print"}],"subject":[],"published":{"date-parts":[[2013,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Parental satisfaction in Ugandan children with cleft lip and palate following synchronous lip and palatal repair","name":"articletitle","label":"Article Title"},{"value":"Journal of Communication Disorders","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jcomdis.2013.03.001","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2013 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}