{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,9]],"date-time":"2025-11-09T02:16:40Z","timestamp":1762654600453,"version":"build-2065373602"},"reference-count":25,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,2,1]],"date-time":"2025-02-01T00:00:00Z","timestamp":1738368000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,2,1]],"date-time":"2025-02-01T00:00:00Z","timestamp":1738368000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,12,1]],"date-time":"2024-12-01T00:00:00Z","timestamp":1733011200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100008376","name":"Helsingin ja Uudenmaan Sairaanhoitopiiri","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008376","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["jhltopen.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["JHLT Open"],"published-print":{"date-parts":[[2025,2]]},"DOI":"10.1016\/j.jhlto.2024.100191","type":"journal-article","created":{"date-parts":[[2024,12,4]],"date-time":"2024-12-04T12:19:12Z","timestamp":1733314752000},"page":"100191","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"special_numbering":"C","title":["Pulmonary hypertension in Finland 2008-2020: A descriptive real-world cohort study (FINPAH)"],"prefix":"10.1016","volume":"7","author":[{"ORCID":"https:\/\/orcid.org\/0009-0008-5393-6255","authenticated-orcid":false,"given":"Markku","family":"Pentik\u00e4inen","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Piia","family":"Simonen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helena","family":"Tuunanen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pauliina","family":"Leskel\u00e4","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Terttu","family":"Harju","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pertti","family":"J\u00e4\u00e4skel\u00e4inen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christian","family":"Asseburg","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Minna","family":"Oksanen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erkki","family":"Soini","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christina","family":"Wennerstr\u00f6m","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Airi","family":"Puhakka","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Terttu","family":"Harju","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elina","family":"Heli\u00f6vaara","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pertti","family":"J\u00e4\u00e4skel\u00e4inen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katriina","family":"Kahlos","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pentti","family":"Korhonen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tiina","family":"Kyll\u00f6nen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pauliina","family":"Leskel\u00e4","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kirsi","family":"Majamaa-Voltti","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Piia","family":"Simonen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anu","family":"Turpeinen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helena","family":"Tuunanen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ville","family":"Veps\u00e4l\u00e4inen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tapani","family":"Vihinen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.jhlto.2024.100191_bib1","doi-asserted-by":"crossref","first-page":"3618","DOI":"10.1093\/eurheartj\/ehac237","volume":"43","author":"Humbert","year":"2022","journal-title":"Eur Heart J"},{"key":"10.1016\/j.jhlto.2024.100191_bib2","doi-asserted-by":"crossref","first-page":"343","DOI":"10.7326\/0003-4819-115-5-343","article-title":"Survival in patients with primary pulmonary hypertension","volume":"115","author":"D'Alonzo","year":"1991","journal-title":"Ann Intern Med"},{"key":"10.1016\/j.jhlto.2024.100191_bib3","doi-asserted-by":"crossref","first-page":"243","DOI":"10.1080\/14017431.2016.1185532","article-title":"Characteristics and survival of adult Swedish PAH and CTEPH patients 2000\u20132014","volume":"50","author":"R\u00e5degran","year":"2016","journal-title":"Scand Cardiovasc J"},{"key":"10.1016\/j.jhlto.2024.100191_bib4","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1183\/13993003.02311-2021","article-title":"COMPERA 2.0: a refined four-stratum risk assessment model for pulmonary arterial hypertension","volume":"60","author":"Hoeper","year":"2022","journal-title":"Eur Respir J"},{"key":"10.1016\/j.jhlto.2024.100191_bib5","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1016\/j.chest.2020.08.2069","article-title":"Development and validation of an abridged version of the REVEAL 2.0 risk score calculator, REVEAL Lite 2, for use in patients with pulmonary arterial hypertension","volume":"159","author":"Benza","year":"2021","journal-title":"Chest"},{"key":"10.1016\/j.jhlto.2024.100191_bib6","doi-asserted-by":"crossref","first-page":"119","DOI":"10.1002\/humu.20200","article-title":"BMPR2 mutations have short lifetime expectancy in primary pulmonary hypertension","volume":"26","author":"Sankelo","year":"2005","journal-title":"Hum Mutat"},{"key":"10.1016\/j.jhlto.2024.100191_bib7","first-page":"2515","article-title":"Keuhkovaltimoiden verenpainetauti ja krooninen tromboembolinen keuhkoverenpainetauti [Pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension in Finland]","volume":"68","author":"Kahlos","year":"2013","journal-title":"Suom l\u00e4\u00e4k"},{"key":"10.1016\/j.jhlto.2024.100191_bib8","doi-asserted-by":"crossref","first-page":"26405","DOI":"10.3402\/ecrj.v3.26405","article-title":"Quality of life among pulmonary hypertension patients in Finland","volume":"3","author":"Kukkonen","year":"2016","journal-title":"Eur Clin Respir J"},{"key":"10.1016\/j.jhlto.2024.100191_bib9","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1093\/eurheartj\/ehv317","volume":"37","author":"Gali\u00e8","year":"2015","journal-title":"Eur Heart J"},{"key":"10.1016\/j.jhlto.2024.100191_bib10","doi-asserted-by":"crossref","first-page":"4175","DOI":"10.1093\/eurheartj\/ehx257","article-title":"A comprehensive risk stratification at early follow-up determines prognosis in pulmonary arterial hypertension","volume":"39","author":"Kylhammar","year":"2017","journal-title":"Eur Heart J"},{"key":"10.1016\/j.jhlto.2024.100191_bib11","doi-asserted-by":"crossref","first-page":"1435","DOI":"10.1016\/j.healun.2020.09.011","article-title":"Idiopathic pulmonary arterial hypertension phenotypes determined by cluster analysis from the COMPERA registry","volume":"39","author":"Hoeper","year":"2020","journal-title":"J Heart Lung Transplant"},{"key":"10.1016\/j.jhlto.2024.100191_bib12","unstructured":"Statistics Finland. Population structure; 2023.\u00a0Available at: https:\/\/stat.fi\/en\/statistics\/vaerak, accessed April 18, 2023."},{"key":"10.1016\/j.jhlto.2024.100191_bib13","doi-asserted-by":"crossref","first-page":"604","DOI":"10.7326\/0003-4819-150-9-200905050-00006","article-title":"A new equation to estimate glomerular filtration rate","volume":"150","author":"Levey","year":"2009","journal-title":"Ann Intern Med"},{"key":"10.1016\/j.jhlto.2024.100191_bib14","doi-asserted-by":"crossref","first-page":"387","DOI":"10.1378\/chest.123.2.387","article-title":"The 6-min walk test: a quick measure of functional status in elderly adults","volume":"123","author":"Enright","year":"2003","journal-title":"Chest"},{"key":"10.1016\/j.jhlto.2024.100191_bib15","unstructured":"Findata. Producing anonymous results; 2022. Available at: https:\/\/findata.fi\/en\/services-and-instructions\/producing-anonymous-results\/, accessed September 26, 2023."},{"key":"10.1016\/j.jhlto.2024.100191_bib16","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1177\/2045894020977300","article-title":"Epidemiology of pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension: identification of the most accurate estimates from a systematic literature review","volume":"11","author":"Leber","year":"2021","journal-title":"Pulm Circ"},{"key":"10.1016\/j.jhlto.2024.100191_bib17","unstructured":"Svensk F\u00f6rening f\u00f6r Pulmonell Hypertension. Svenska PAH & CTEPH registret (SPAHR) \u00c5rsrapport 2022 [Annual report]. Svensk F\u00f6rening f\u00f6r Pulmonell Hypertension; 2023."},{"key":"10.1016\/j.jhlto.2024.100191_bib18","doi-asserted-by":"crossref","first-page":"1368","DOI":"10.1016\/j.hlc.2017.08.018","article-title":"Survival of idiopathic pulmonary arterial hypertension patients in the modern era in Australia and New Zealand","volume":"27","author":"Strange","year":"2018","journal-title":"Heart Lung Circ"},{"key":"10.1016\/j.jhlto.2024.100191_bib19","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.02310-2017","article-title":"Impact of age and comorbidity on risk stratification in idiopathic pulmonary arterial hypertension","volume":"51","author":"Hjalmarsson","year":"2018","journal-title":"Eur Respir J"},{"key":"10.1016\/j.jhlto.2024.100191_bib20","doi-asserted-by":"crossref","first-page":"680","DOI":"10.1002\/ehf2.13162","article-title":"Longitudinal changes in risk status in pulmonary arterial hypertension","volume":"8","author":"Bouzina","year":"2021","journal-title":"ESC Heart Fail"},{"key":"10.1016\/j.jhlto.2024.100191_bib21","doi-asserted-by":"crossref","first-page":"311","DOI":"10.1086\/675994","article-title":"Impact of Diabetes on survival and right ventricular compensation in pulmonary arterial hypertension","volume":"4","author":"Benson","year":"2014","journal-title":"Pulm Circ"},{"key":"10.1016\/j.jhlto.2024.100191_bib22","doi-asserted-by":"crossref","first-page":"128","DOI":"10.1186\/s12890-021-01495-6","article-title":"Risk prediction in medically treated chronic thromboembolic pulmonary hypertension","volume":"21","author":"Quan","year":"2021","journal-title":"BMC Pulm Med"},{"key":"10.1016\/j.jhlto.2024.100191_bib23","doi-asserted-by":"crossref","first-page":"208","DOI":"10.1136\/heartjnl-2022-321475","article-title":"Role of the electrocardiogram in the risk stratification of pulmonary hypertension","volume":"109","author":"Hendriks","year":"2023","journal-title":"Heart"},{"key":"10.1016\/j.jhlto.2024.100191_bib24","doi-asserted-by":"crossref","first-page":"272","DOI":"10.1016\/j.ijcard.2008.11.051","article-title":"Prognostic relevance of the echocardiographic assessment of right ventricular function in patients with idiopathic pulmonary arterial hypertension","volume":"140","author":"Ghio","year":"2010","journal-title":"Int J Cardiol"},{"key":"10.1016\/j.jhlto.2024.100191_bib25","doi-asserted-by":"crossref","DOI":"10.1002\/pul2.12150","article-title":"Safety of macitentan for the treatment of pulmonary hypertension: real-world experience from the OPsumit\u00ae USers Registry (OPUS) and OPsumit\u00ae Historical USers cohort (OrPHeUS)","volume":"12","author":"McLaughlin","year":"2022","journal-title":"Pulm Circ"}],"container-title":["JHLT Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S295013342400140X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S295013342400140X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,11,9]],"date-time":"2025-11-09T02:14:11Z","timestamp":1762654451000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S295013342400140X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,2]]},"references-count":25,"alternative-id":["S295013342400140X"],"URL":"https:\/\/doi.org\/10.1016\/j.jhlto.2024.100191","relation":{},"ISSN":["2950-1334"],"issn-type":[{"type":"print","value":"2950-1334"}],"subject":[],"published":{"date-parts":[[2025,2]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Pulmonary hypertension in Finland 2008-2020: A descriptive real-world cohort study (FINPAH)","name":"articletitle","label":"Article Title"},{"value":"JHLT Open","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jhlto.2024.100191","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 The Authors. Published by Elsevier Inc. on behalf of International Society for Heart and Lung Transplantation.","name":"copyright","label":"Copyright"}],"article-number":"100191"}}