{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,2]],"date-time":"2026-04-02T23:45:42Z","timestamp":1775173542142,"version":"3.50.1"},"reference-count":19,"publisher":"Elsevier BV","issue":"7","license":[{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.fr","jhandsurg.org","clinicalkey.jp","clinicalkey.es","clinicalkey.com.au","clinicalkey.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["The Journal of Hand Surgery"],"published-print":{"date-parts":[[2024,7]]},"DOI":"10.1016\/j.jhsa.2024.02.011","type":"journal-article","created":{"date-parts":[[2024,4,17]],"date-time":"2024-04-17T07:26:58Z","timestamp":1713338818000},"page":"681-689","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":6,"title":["The Impact on Families of Children With Congenital Upper Extremity Differences"],"prefix":"10.1016","volume":"49","author":[{"given":"Sarah","family":"Ballatori","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrea","family":"Bauer","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Angela","family":"Wang","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julie","family":"Samora","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Suzanne","family":"Steinman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Claire","family":"Manske","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Apurva","family":"Shah","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lindley B.","family":"Wall","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.jhsa.2024.02.011_bib1","doi-asserted-by":"crossref","first-page":"144","DOI":"10.1097\/BPO.0000000000000748","article-title":"The prevalence of congenital hand and upper extremity anomalies based upon the New York Congenital Malformations Registry","volume":"37","author":"Goldfarb","year":"2017","journal-title":"J\u00a0Pediatr Orthop"},{"key":"10.1016\/j.jhsa.2024.02.011_bib2","doi-asserted-by":"crossref","first-page":"1058","DOI":"10.1016\/j.jhsa.2011.03.015","article-title":"Congenital upper limb deficiencies and associated malformations in Finland: a population-based study","volume":"36","author":"Koskimies","year":"2011","journal-title":"J\u00a0Hand Surg Am"},{"key":"10.1016\/j.jhsa.2024.02.011_bib3","doi-asserted-by":"crossref","first-page":"628","DOI":"10.1053\/jhsu.2001.26121","article-title":"The incidence and epidemiology of congenital upper limb anomalies: a total population study","volume":"26","author":"Giele","year":"2001","journal-title":"J\u00a0Hand Surg Am"},{"key":"10.1016\/j.jhsa.2024.02.011_bib4","doi-asserted-by":"crossref","first-page":"2066","DOI":"10.1016\/j.jhsa.2010.09.031","article-title":"Developmental biology and classification of congenital anomalies of the hand and upper extremity","volume":"35","author":"Oberg","year":"2010","journal-title":"J\u00a0Hand Surg Am"},{"key":"10.1016\/j.jhsa.2024.02.011_bib5","doi-asserted-by":"crossref","first-page":"465","DOI":"10.1097\/00005650-198004000-00010","article-title":"The development of an impact-on-family scale: preliminary findings","volume":"18","author":"Stein","year":"1980","journal-title":"Med Care"},{"key":"10.1016\/j.jhsa.2024.02.011_bib6","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1097\/00004703-200302000-00004","article-title":"The impact on family scale revisited: further psychometric data","volume":"24","author":"Stein","year":"2003","journal-title":"J\u00a0Dev Behav Pediatr"},{"key":"10.1016\/j.jhsa.2024.02.011_bib7","doi-asserted-by":"crossref","first-page":"1190","DOI":"10.1016\/j.jhsa.2015.03.020","article-title":"The impact of pediatric brachial plexus injury on families","volume":"40","author":"Louden","year":"2015","journal-title":"J\u00a0Hand Surg Am"},{"key":"10.1016\/j.jhsa.2024.02.011_bib8","doi-asserted-by":"crossref","first-page":"1202","DOI":"10.3109\/09638288.2011.638035","article-title":"Indicators of distress in families of children with cerebral palsy","volume":"34","author":"Majnemer","year":"2012","journal-title":"Disabil Rehabil"},{"key":"10.1016\/j.jhsa.2024.02.011_bib9","doi-asserted-by":"crossref","first-page":"1845","DOI":"10.1016\/j.jpedsurg.2007.07.010","article-title":"Impact on family of survivors of congenital diaphragmatic hernia repair: a pilot study","volume":"42","author":"Chen","year":"2007","journal-title":"J\u00a0Pediatr Surg"},{"key":"10.1016\/j.jhsa.2024.02.011_bib10","doi-asserted-by":"crossref","first-page":"140","DOI":"10.5144\/0256-4947.2013.140","article-title":"Social impact on families of children with complex congenital heart disease","volume":"33","author":"Almesned","year":"2013","journal-title":"Ann Saudi Med"},{"key":"10.1016\/j.jhsa.2024.02.011_bib11","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1097\/BPO.0000000000000732","article-title":"Intraobserver and interobserver reliability of the Oberg-Manske-Tonkin (OMT) classification: establishing a registry on congenital upper limb differences","volume":"38","author":"Bae","year":"2018","journal-title":"J\u00a0Pediatr Orthop"},{"key":"10.1016\/j.jhsa.2024.02.011_bib12","doi-asserted-by":"crossref","first-page":"377","DOI":"10.1016\/j.jbi.2008.08.010","article-title":"Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support","volume":"42","author":"Harris","year":"2009","journal-title":"J\u00a0Biomed Inform"},{"key":"10.1016\/j.jhsa.2024.02.011_bib13","doi-asserted-by":"crossref","first-page":"881","DOI":"10.1111\/j.1442-200X.2012.03734.x","article-title":"Impact of obstetrical brachial plexus injury on parents","volume":"54","author":"Firat","year":"2012","journal-title":"Pediatr Int"},{"key":"10.1016\/j.jhsa.2024.02.011_bib14","doi-asserted-by":"crossref","first-page":"323","DOI":"10.1093\/jpepsy\/25.5.323","article-title":"The Impact-on-Family Scale: a test of invariance across culture","volume":"25","author":"Kolk","year":"2000","journal-title":"J\u00a0Pediatr Psychol"},{"key":"10.1016\/j.jhsa.2024.02.011_bib15","first-page":"373","article-title":"The child with a tracheostomy and gastrostomy: parental stress and coping in the home--a pilot study","volume":"30","author":"Montagnino","year":"2004","journal-title":"Pediatr Nurs"},{"key":"10.1016\/j.jhsa.2024.02.011_bib16","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1016\/j.jaad.2010.02.060","article-title":"Patient-reported outcomes in pediatric patients with psoriasis undergoing etanercept treatment: 12-week results from a phase III randomized controlled trial","volume":"64","author":"Langley","year":"2011","journal-title":"J\u00a0Am Acad Dermatol"},{"key":"10.1016\/j.jhsa.2024.02.011_bib17","doi-asserted-by":"crossref","first-page":"795","DOI":"10.1177\/1753193411412869","article-title":"Children with surgically corrected hand deformities and upper limb deficiencies: self-concept and psychological well-being","volume":"36","author":"Andersson","year":"2011","journal-title":"J\u00a0Hand Surg Eur Vol"},{"key":"10.1016\/j.jhsa.2024.02.011_bib18","doi-asserted-by":"crossref","first-page":"381","DOI":"10.1016\/j.jhsa.2015.12.004","article-title":"Parental assessment of status of congenital upper limb differences: analysis of the pediatric outcomes data collection instrument","volume":"41","author":"Wall","year":"2016","journal-title":"J\u00a0Hand Surg Am"},{"key":"10.1016\/j.jhsa.2024.02.011_bib19","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1016\/j.jhsa.2020.08.017","article-title":"Social deprivation and congenital upper extremity differences-an assessment using PROMIS","volume":"46","author":"Wall","year":"2021","journal-title":"J\u00a0Hand Surg Am"}],"container-title":["The Journal of Hand Surgery"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0363502324000959?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0363502324000959?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T09:12:10Z","timestamp":1719825130000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0363502324000959"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,7]]},"references-count":19,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2024,7]]}},"alternative-id":["S0363502324000959"],"URL":"https:\/\/doi.org\/10.1016\/j.jhsa.2024.02.011","relation":{},"ISSN":["0363-5023"],"issn-type":[{"value":"0363-5023","type":"print"}],"subject":[],"published":{"date-parts":[[2024,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The Impact on Families of Children With Congenital Upper Extremity Differences","name":"articletitle","label":"Article Title"},{"value":"The Journal of Hand Surgery","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jhsa.2024.02.011","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 by the American Society for Surgery of the Hand. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}