{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T20:00:55Z","timestamp":1761163255839,"version":"build-2065373602"},"reference-count":20,"publisher":"Elsevier BV","issue":"1","license":[{"start":{"date-parts":[[2020,11,1]],"date-time":"2020-11-01T00:00:00Z","timestamp":1604188800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2020,11,1]],"date-time":"2020-11-01T00:00:00Z","timestamp":1604188800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2021,11,1]],"date-time":"2021-11-01T00:00:00Z","timestamp":1635724800000},"content-version":"vor","delay-in-days":365,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/100003161","name":"National Alopecia Areata Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100003161","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000069","name":"National Institute of Arthritis and Musculoskeletal and Skin Diseases","doi-asserted-by":"publisher","award":["R13AR074890"],"award-info":[{"award-number":["R13AR074890"]}],"id":[{"id":"10.13039\/100000069","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["jidsponline.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Investigative Dermatology Symposium Proceedings"],"published-print":{"date-parts":[[2020,11]]},"DOI":"10.1016\/j.jisp.2020.05.004","type":"journal-article","created":{"date-parts":[[2020,10,21]],"date-time":"2020-10-21T05:10:44Z","timestamp":1603257044000},"page":"S80-S83","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"title":["Report from the International Dermatology Outcome Measures Initiative"],"prefix":"10.1016","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7724-7309","authenticated-orcid":false,"given":"Lourdes M.","family":"Perez-Chada","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6514-4353","authenticated-orcid":false,"given":"Joseph F.","family":"Merola","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0064-8707","authenticated-orcid":false,"given":"April W.","family":"Armstrong","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0886-6856","authenticated-orcid":false,"given":"Amit","family":"Garg","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John","family":"Latella","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2927-8618","authenticated-orcid":false,"given":"Alice B.","family":"Gottlieb","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.jisp.2020.05.004_bib2","first-page":"198","article-title":"The OMERACT filter for outcome measures in rheumatology","volume":"25","author":"Boers","year":"1998","journal-title":"J\u00a0Rheumatol"},{"key":"10.1016\/j.jisp.2020.05.004_bib3","doi-asserted-by":"crossref","first-page":"745","DOI":"10.1016\/j.jclinepi.2013.11.013","article-title":"Developing core outcome measurement sets for clinical trials: OMERACT filter 2.0","volume":"67","author":"Boers","year":"2014","journal-title":"J\u00a0Clin Epidemiol"},{"key":"10.1016\/j.jisp.2020.05.004_bib4","doi-asserted-by":"crossref","first-page":"1137","DOI":"10.1001\/jamadermatol.2018.1165","article-title":"Identifying a core domain set to assess psoriasis in clinical trials","volume":"154","author":"Callis Duffin","year":"2018","journal-title":"JAMA Dermatol"},{"key":"10.1016\/j.jisp.2020.05.004_bib5","doi-asserted-by":"crossref","first-page":"823","DOI":"10.1016\/j.jaad.2018.09.017","article-title":"A\u00a0provider global assessment quality measure for clinical practice for inflammatory skin disorders","volume":"80","author":"Gottlieb","year":"2019","journal-title":"J\u00a0Am Acad Dermatol"},{"key":"10.1016\/j.jisp.2020.05.004_bib6","doi-asserted-by":"crossref","first-page":"1227","DOI":"10.3899\/jrheum.140176","article-title":"The International Dermatology Outcome Measures initiative as applied to psoriatic disease outcomes: a report from the GRAPPA 2013 meeting","volume":"41","author":"Gottlieb","year":"2014","journal-title":"J\u00a0Rheumatol"},{"key":"10.1016\/j.jisp.2020.05.004_bib7","doi-asserted-by":"crossref","first-page":"345","DOI":"10.1016\/j.jaad.2014.11.002","article-title":"The International Dermatology Outcome Measures Group: formation of patient-centered outcome measures in dermatology","volume":"72","author":"Gottlieb","year":"2015","journal-title":"J\u00a0Am Acad Dermatol"},{"key":"10.1016\/j.jisp.2020.05.004_bib8","doi-asserted-by":"crossref","first-page":"1759","DOI":"10.1002\/acr.22404","article-title":"Qualifying unmet needs and improving standards of care in psoriatic arthritis","volume":"66","author":"Helliwell","year":"2014","journal-title":"Arthritis Care Res (Hoboken)"},{"key":"10.1016\/j.jisp.2020.05.004_bib9","doi-asserted-by":"crossref","first-page":"91","DOI":"10.1007\/s40744-016-0029-z","article-title":"Psoriatic arthritis and burden of disease: patient perspectives from the population-based multinational assessment of psoriasis and psoriatic arthritis (MAPP) survey","volume":"3","author":"Kavanaugh","year":"2016","journal-title":"Rheumatol Ther"},{"key":"10.1016\/j.jisp.2020.05.004_bib10","doi-asserted-by":"crossref","first-page":"545","DOI":"10.1016\/j.rdc.2015.07.001","article-title":"The epidemiology of psoriatic arthritis","volume":"41","author":"Ogdie","year":"2015","journal-title":"Rheum Dis Clin North Am"},{"key":"10.1016\/j.jisp.2020.05.004_bib11","doi-asserted-by":"crossref","first-page":"701","DOI":"10.1007\/s00403-018-1855-3","article-title":"Achieving international consensus on the assessment of psoriatic arthritis in psoriasis clinical trials: an International Dermatology Outcome Measures (IDEOM) initiative","volume":"310","author":"Perez-Chada","year":"2018","journal-title":"Arch Dermatol Res"},{"key":"10.1016\/j.jisp.2020.05.004_bib12","doi-asserted-by":"crossref","first-page":"2477","DOI":"10.1056\/NEJMp1011024","article-title":"What is value in health care?","volume":"363","author":"Porter","year":"2010","journal-title":"N\u00a0Engl J Med"},{"key":"10.1016\/j.jisp.2020.05.004_bib13","doi-asserted-by":"crossref","first-page":"504","DOI":"10.1056\/NEJMp1511701","article-title":"Standardizing patient outcomes measurement","volume":"374","author":"Porter","year":"2016","journal-title":"N\u00a0Engl J Med"},{"key":"10.1016\/j.jisp.2020.05.004_bib14","doi-asserted-by":"crossref","first-page":"449","DOI":"10.1186\/s13063-016-1555-2","article-title":"How to select outcome measurement instruments for outcomes included in a \u201cCore Outcome Set\u201d - a practical guideline","volume":"17","author":"Prinsen","year":"2016","journal-title":"Trials"},{"key":"10.1016\/j.jisp.2020.05.004_bib15","doi-asserted-by":"crossref","first-page":"222","DOI":"10.2340\/00015555-2129","article-title":"Disutility in patients with hidradenitis suppurativa: a cross-sectional study using EuroQoL-5D","volume":"96","author":"Riis","year":"2016","journal-title":"Acta Derm Venereol"},{"key":"10.1016\/j.jisp.2020.05.004_bib16","doi-asserted-by":"crossref","first-page":"157","DOI":"10.1159\/000490413","article-title":"Are your patients satisfied a systematic review of treatment satisfaction measures in psoriasis","volume":"234","author":"Salame","year":"2018","journal-title":"Dermatology"},{"key":"10.1016\/j.jisp.2020.05.004_bib17","doi-asserted-by":"crossref","first-page":"204","DOI":"10.1111\/j.1524-4733.2004.72252.x","article-title":"Satisfaction with medication: an overview of conceptual, methodologic, and regulatory issues","volume":"7","author":"Shikiar","year":"2004","journal-title":"Value Health"},{"key":"10.1016\/j.jisp.2020.05.004_bib18","doi-asserted-by":"crossref","first-page":"152","DOI":"10.1177\/1203475416677721","article-title":"Development of a quality-of-life measure for hidradenitis suppurativa","volume":"21","author":"Sisic","year":"2017","journal-title":"J\u00a0Cutan Med Surg"},{"key":"10.1016\/j.jisp.2020.05.004_bib19","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2016-014733","article-title":"Protocol for the development of a core domain set for hidradenitis suppurativa trial outcomes","volume":"7","author":"Thorlacius","year":"2017","journal-title":"BMJ, Open"},{"key":"10.1016\/j.jisp.2020.05.004_bib20","doi-asserted-by":"crossref","first-page":"642","DOI":"10.1111\/bjd.16672","article-title":"A\u00a0core domain set for hidradenitis suppurativa trial outcomes: an international Delphi process","volume":"179","author":"Thorlacius","year":"2018","journal-title":"Br J Dermatol"},{"issue":"Suppl. 3","key":"10.1016\/j.jisp.2020.05.004_bib21","doi-asserted-by":"crossref","first-page":"280","DOI":"10.1186\/s13063-017-1978-4","article-title":"The COMET handbook: version 1.0","volume":"18","author":"Williamson","year":"2017","journal-title":"Trials"}],"container-title":["Journal of Investigative Dermatology Symposium Proceedings"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1087002420300149?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1087002420300149?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T17:21:28Z","timestamp":1761067288000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1087002420300149"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,11]]},"references-count":20,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2020,11]]}},"alternative-id":["S1087002420300149"],"URL":"https:\/\/doi.org\/10.1016\/j.jisp.2020.05.004","relation":{},"ISSN":["1087-0024"],"issn-type":[{"type":"print","value":"1087-0024"}],"subject":[],"published":{"date-parts":[[2020,11]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Report from the International Dermatology Outcome Measures Initiative","name":"articletitle","label":"Article Title"},{"value":"Journal of Investigative Dermatology Symposium Proceedings","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jisp.2020.05.004","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2020 The Authors. Published by Elsevier, Inc. on behalf of the Society for Investigative Dermatology.","name":"copyright","label":"Copyright"}]}}