{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T02:14:46Z","timestamp":1783476886591,"version":"3.55.0"},"reference-count":33,"publisher":"Elsevier BV","issue":"2","license":[{"start":{"date-parts":[[2021,4,1]],"date-time":"2021-04-01T00:00:00Z","timestamp":1617235200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2021,4,1]],"date-time":"2021-04-01T00:00:00Z","timestamp":1617235200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"funder":[{"DOI":"10.13039\/501100004963","name":"Seventh Framework Programme","doi-asserted-by":"publisher","award":["305373"],"award-info":[{"award-number":["305373"]}],"id":[{"id":"10.13039\/501100004963","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100011102","name":"Seventh Framework Programme","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100011102","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","jpagonline.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric and Adolescent Gynecology"],"published-print":{"date-parts":[[2021,4]]},"DOI":"10.1016\/j.jpag.2020.11.012","type":"journal-article","created":{"date-parts":[[2020,11,25]],"date-time":"2020-11-25T02:04:53Z","timestamp":1606269893000},"page":"168-175","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":12,"title":["Participant- and Clinician-Reported Long-Term Outcomes After Surgery in Individuals with Complete Androgen Insensitivity Syndrome"],"prefix":"10.1016","volume":"34","author":[{"given":"Lise","family":"Duranteau","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marion","family":"Rapp","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tim C.","family":"van de Grift","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angelica L.","family":"Hirschberg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Agneta","family":"Nordenskj\u00f6ld","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jpag.2020.11.012_bib1","doi-asserted-by":"crossref","first-page":"1419","DOI":"10.1016\/S0140-6736(12)60071-3","article-title":"Androgen insensitivity syndrome","volume":"380","author":"Hughes","year":"2012","journal-title":"Lancet"},{"key":"10.1016\/j.jpag.2020.11.012_bib2","doi-asserted-by":"crossref","first-page":"1268","DOI":"10.3390\/ijerph16071268","article-title":"Different clinical presentations and management in complete androgen insensitivity syndrome (CAIS)","volume":"16","author":"Lanciotti","year":"2019","journal-title":"Int J Environ Res Public Health"},{"key":"10.1016\/j.jpag.2020.11.012_bib3","doi-asserted-by":"crossref","first-page":"554","DOI":"10.1136\/adc.2006.098319","article-title":"ESPE Consensus Group: consensus statement on management of intersex disorders","volume":"91","author":"Hughes","year":"2006","journal-title":"Arch Dis Child"},{"key":"10.1016\/j.jpag.2020.11.012_bib4","doi-asserted-by":"crossref","first-page":"158","DOI":"10.1159\/000442975","article-title":"Global disorders of sex development update since 2006: perceptions, approach and care","volume":"85","author":"Lee","year":"2016","journal-title":"Horm Res Paediatr"},{"key":"10.1016\/j.jpag.2020.11.012_bib5","first-page":"1","article-title":"Disorders or differences of sex development? Views of affected individuals on DSD terminology","volume":"27","author":"Bennecke","year":"2020","journal-title":"J Sex Res"},{"key":"10.1016\/j.jpag.2020.11.012_bib6","doi-asserted-by":"crossref","first-page":"415","DOI":"10.1038\/s41574-018-0010-8","article-title":"Caring for individuals with a difference\/disorder of sex development (DSD) across the life span: an expert opinion","volume":"14","author":"Cools","year":"2018","journal-title":"Nat Rev Endocrinol"},{"key":"10.1016\/j.jpag.2020.11.012_bib7","doi-asserted-by":"crossref","first-page":"775","DOI":"10.1093\/humupd\/dmu024","article-title":"An update on surgical and non-surgical treatments for vaginal hypoplasia","volume":"20","author":"Callens","year":"2014","journal-title":"Hum Reprod Update"},{"key":"10.1016\/j.jpag.2020.11.012_bib8","doi-asserted-by":"crossref","first-page":"292","DOI":"10.1159\/000316231","article-title":"Management of vaginal hypoplasia in disorders of sexual development: surgical and non-surgical options","volume":"4","author":"Deans","year":"2010","journal-title":"Sex Dev"},{"key":"10.1016\/j.jpag.2020.11.012_bib9","doi-asserted-by":"crossref","first-page":"894","DOI":"10.1111\/j.1365-2265.2012.04330.x","article-title":"Timing of gonadectomy in adult women with complete androgen insensitivity syndrome (CAIS): patient preferences and clinical evidence","volume":"76","author":"Deans","year":"2012","journal-title":"Clin Endocrinol (Oxf)"},{"key":"10.1016\/j.jpag.2020.11.012_bib10","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1016\/j.jpurol.2016.04.001","article-title":"Surgery in disorders of sex development (DSD) with a gender issue: if (why), when, and how?","volume":"12","author":"Mouriquand","year":"2016","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpag.2020.11.012_bib11","doi-asserted-by":"crossref","first-page":"686","DOI":"10.1016\/j.fertnstert.2011.12.038","article-title":"Mayer-Rokitansky-K\u00fcster-Hauser syndrome: a review of 245 consecutive cases managed by a multidisciplinary approach with vaginal dilators","volume":"97","author":"Edmonds","year":"2012","journal-title":"Fertil Steril"},{"key":"10.1016\/j.jpag.2020.11.012_bib12","doi-asserted-by":"crossref","first-page":"611","DOI":"10.1016\/j.jpurol.2012.10.017","article-title":"Review of recent outcome data of disorders of sex development (DSD): emphasis on surgical and sexual outcomes","volume":"8","author":"Lee","year":"2012","journal-title":"J Ped Urol"},{"key":"10.1016\/j.jpag.2020.11.012_bib13","doi-asserted-by":"crossref","first-page":"175","DOI":"10.1159\/000477921","article-title":"Update on the pathophysiology and risk factors for the development of malignant testicular germ cell tumors in compete androgen insensitivity syndrome","volume":"11","author":"Cools","year":"2017","journal-title":"Sex Dev"},{"key":"10.1016\/j.jpag.2020.11.012_bib14","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1016\/j.jpurol.2018.10.008","article-title":"Variations of sex development: the first German interdisciplinary consensus paper","volume":"15","author":"Krege","year":"2019","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpag.2020.11.012_bib15","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1080\/00224499.2014.1002124","article-title":"Gender role, gender identity and sexual orientation in CAIS (\u2018XY-women\u2019) compared with subfertile and infertile 46,XX women","volume":"53","author":"Brunner","year":"2016","journal-title":"J Sex Res"},{"key":"10.1016\/j.jpag.2020.11.012_bib16","doi-asserted-by":"crossref","first-page":"729","DOI":"10.1111\/jsm.12321","article-title":"Sexual life and sexual wellness in individuals with complete androgen insensitivity syndrome (CAIS) and Mayer-Rokitansky-K\u00fcster Hauser Syndrome (MRKHS)","volume":"11","author":"Fliegner","year":"2014","journal-title":"J Sex Med"},{"key":"10.1016\/j.jpag.2020.11.012_bib17","doi-asserted-by":"crossref","first-page":"577","DOI":"10.1210\/jc.2011-1441","article-title":"Satisfaction with genital surgery and sexual life of adults with XY disorders of sex development: results from the German clinical evaluation study","volume":"97","author":"K\u00f6hler","year":"2012","journal-title":"J Clin Endocrinol Metab"},{"key":"10.1016\/j.jpag.2020.11.012_bib18","doi-asserted-by":"crossref","first-page":"1842","DOI":"10.1111\/j.1743-6109.2012.02747.x","article-title":"Long-term psychosexual and anatomical outcome after vaginal dilation or vaginoplasty: a comparative study","volume":"9","author":"Callens","year":"2012","journal-title":"J Sex Med"},{"key":"10.1016\/j.jpag.2020.11.012_bib19","doi-asserted-by":"crossref","first-page":"52","DOI":"10.1186\/s12902-017-0198-y","article-title":"Participation of adults with disorders\/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population","volume":"17","author":"R\u00f6hle","year":"2017","journal-title":"BMC Endocr Disord"},{"key":"10.1016\/j.jpag.2020.11.012_bib20","doi-asserted-by":"crossref","first-page":"639","DOI":"10.1007\/BF01544272","article-title":"Body image scale for evaluating transsexuals","volume":"4","author":"Lindgren","year":"1975","journal-title":"Arch Sex Behav"},{"key":"10.1016\/j.jpag.2020.11.012_bib21","doi-asserted-by":"crossref","first-page":"101800","DOI":"10.1016\/j.canep.2020.101800","article-title":"Risk of gonadal neoplasia in patients with disorders\/differences of sex development","volume":"69","author":"Slowikowska-Hilczer","year":"2020","journal-title":"Cancer Epidemiol"},{"key":"10.1016\/j.jpag.2020.11.012_bib22","doi-asserted-by":"crossref","first-page":"227","DOI":"10.20945\/2359-3997000000031","article-title":"Androgen insensitivity syndrome: a review","volume":"62","author":"Batista","year":"2018","journal-title":"Arch Endocrinol Metab"},{"key":"10.1016\/j.jpag.2020.11.012_bib23","doi-asserted-by":"crossref","first-page":"2561","DOI":"10.1093\/humrep\/dex300","article-title":"Malignant testicular germ cell tumors in postpubertal individuals with androgen insensitivity: prevalence, pathology and relevance of single nucleotide polymorphism-based susceptibility profiling","volume":"32","author":"Cools","year":"2017","journal-title":"Hum Reprod"},{"key":"10.1016\/j.jpag.2020.11.012_bib24","doi-asserted-by":"crossref","first-page":"498.e1","DOI":"10.1016\/j.jpurol.2017.02.013","article-title":"Frequency of gonadal tumours in complete androgen insensitivity syndrome (CAIS): a retrospective case-series analysis","volume":"13","author":"Chaudhry","year":"2017","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpag.2020.11.012_bib25","doi-asserted-by":"crossref","first-page":"692","DOI":"10.1016\/j.eururo.2014.07.011","article-title":"Gonadal male development as a risk factor for germ cell cancer: towards a clinical decision model","volume":"67","author":"vd Zwan","year":"2015","journal-title":"Eur Urol"},{"key":"10.1016\/j.jpag.2020.11.012_bib26","doi-asserted-by":"crossref","first-page":"577","DOI":"10.1016\/j.jpag.2016.03.007","article-title":"Utility of ultrasound and magnetic resonance imaging in patients with disorders of sex development who undergo prophylactic gonadectomy","volume":"29","author":"Alaniz","year":"2016","journal-title":"J Pediatr Adolesc Gynecol"},{"key":"10.1016\/j.jpag.2020.11.012_bib27","doi-asserted-by":"crossref","first-page":"153","DOI":"10.1148\/radiol.13121068","article-title":"Evaluation of retained testes in adolescent girls and women with complete androgen insensitivity syndrome","volume":"268","author":"Nakhal","year":"2013","journal-title":"Radiology"},{"key":"10.1016\/j.jpag.2020.11.012_bib28","doi-asserted-by":"crossref","first-page":"375","DOI":"10.1530\/EC-17-0083","article-title":"Hormone replacement treatment choices in complete androgen insensitivity syndrome: an audit of an adult clinic","volume":"6","author":"Ko","year":"2017","journal-title":"Endocr Connect"},{"key":"10.1016\/j.jpag.2020.11.012_bib29","doi-asserted-by":"crossref","first-page":"771","DOI":"10.1016\/S2213-8587(18)30197-9","article-title":"Oestrogen versus androgen in hormone-replacement therapy for complete androgen insensitivity syndrome: a multicentre, randomised, double-dummy, double-blind crossover trial","volume":"6","author":"Birnbaum","year":"2018","journal-title":"Lancet Diabetes Endocrinol"},{"key":"10.1016\/j.jpag.2020.11.012_bib30","doi-asserted-by":"crossref","first-page":"643","DOI":"10.1111\/j.1471-0528.2004.00517.x","article-title":"Female genital appearance: \u201cnormality\u201d unfolds","volume":"112","author":"Lloyd","year":"2005","journal-title":"BJOG"},{"key":"10.1016\/j.jpag.2020.11.012_bib31","doi-asserted-by":"crossref","first-page":"4532","DOI":"10.1210\/jc.2016-2248","article-title":"Incidence, prevalence, diagnostic delay, and clinical presentation of female 46,XY disorders of sex development","volume":"101","author":"Berglund","year":"2016","journal-title":"J Clin Endocrinol Metab"},{"key":"10.1016\/j.jpag.2020.11.012_bib32","doi-asserted-by":"crossref","first-page":"157","DOI":"10.1016\/S0015-0282(03)00501-6","article-title":"Sexual function in women with complete androgen insensitivity syndrome","volume":"80","author":"Minto","year":"2003","journal-title":"Fertil Steril"},{"key":"10.1016\/j.jpag.2020.11.012_bib33","doi-asserted-by":"crossref","first-page":"2410","DOI":"10.1093\/humrep\/dez230","article-title":"on behalf of the dsd-LIFE group: Breast development and satisfaction in women with disorders\/differences of sex development","volume":"34","author":"van de Grift","year":"2019","journal-title":"Hum Reprod"}],"container-title":["Journal of Pediatric and Adolescent Gynecology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S108331882030365X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S108331882030365X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T13:47:27Z","timestamp":1761054447000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S108331882030365X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,4]]},"references-count":33,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2021,4]]}},"alternative-id":["S108331882030365X"],"URL":"https:\/\/doi.org\/10.1016\/j.jpag.2020.11.012","relation":{},"ISSN":["1083-3188"],"issn-type":[{"value":"1083-3188","type":"print"}],"subject":[],"published":{"date-parts":[[2021,4]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Participant- and Clinician-Reported Long-Term Outcomes After Surgery in Individuals with Complete Androgen Insensitivity Syndrome","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric and Adolescent Gynecology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jpag.2020.11.012","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2020 North American Society for Pediatric and Adolescent Gynecology. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}]}}