{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,6]],"date-time":"2026-05-06T08:13:46Z","timestamp":1778055226589,"version":"3.51.4"},"reference-count":241,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,5,1]],"date-time":"2025-05-01T00:00:00Z","timestamp":1746057600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,5,1]],"date-time":"2025-05-01T00:00:00Z","timestamp":1746057600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,2,10]],"date-time":"2025-02-10T00:00:00Z","timestamp":1739145600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","jpain.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["The Journal of Pain"],"published-print":{"date-parts":[[2025,5]]},"DOI":"10.1016\/j.jpain.2025.105334","type":"journal-article","created":{"date-parts":[[2025,2,8]],"date-time":"2025-02-08T18:19:18Z","timestamp":1739038758000},"page":"105334","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"special_numbering":"C","title":["Exploring the emotional impact of pain on children and adolescents: A poetic meta-ethnography"],"prefix":"10.1016","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8144-6519","authenticated-orcid":false,"given":"Francine","family":"Toye","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"Woolverton","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1422-4625","authenticated-orcid":false,"given":"Erin","family":"Hannink","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Miguel Rivera","family":"Ruiz","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karen L.","family":"Barker","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib1","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1016\/S2352-4642(20)30277-7","article-title":"Delivering transformative action in paediatric pain: a\u00a0lancet child & adolescent health commission","volume":"5","author":"Eccleston","year":"2021","journal-title":"The Lancet Child & Adolescent Health"},{"issue":"10224","key":"10.1016\/j.jpain.2025.105334_bib2","doi-asserted-by":"crossref","first-page":"605","DOI":"10.1016\/S0140-6736(19)32540-1","article-title":"A future for the world's children? A WHO-UNICEF-Lancet Commission","volume":"395","author":"Clark","year":"2020","journal-title":"Lancet"},{"key":"10.1016\/j.jpain.2025.105334_bib3","doi-asserted-by":"crossref","first-page":"332","DOI":"10.1136\/adc.2003.038778","article-title":"Managing chronic pain in children: the challenge of delivering chronic care in a \u2018\u2018modernising\u2019\u2019 healthcare system","volume":"90","author":"Eccleston","year":"2005","journal-title":"Archives of Disease in Childhood"},{"issue":"10","key":"10.1016\/j.jpain.2025.105334_bib4","doi-asserted-by":"crossref","first-page":"2215","DOI":"10.1097\/j.pain.0000000000003267","article-title":"The prevalence of chronic pain in children and adolescents: a systematic review update and meta-analysis","volume":"165","author":"Chambers","year":"2024","journal-title":"Pain"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib5","doi-asserted-by":"crossref","first-page":"187","DOI":"10.1016\/j.ejpain.2003.08.001","article-title":"Do pain problems in young school children persist into early adulthood? A 13-year follow-up","volume":"8","author":"Brattberg","year":"2004","journal-title":"European Journal of Pain"},{"issue":"7","key":"10.1016\/j.jpain.2025.105334_bib6","doi-asserted-by":"crossref","first-page":"1198","DOI":"10.1097\/j.pain.0000000000001180","article-title":"Perceived diagnostic uncertainty in pediatric chronic pain","volume":"159","author":"Pincus","year":"2018","journal-title":"Pain"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib7","doi-asserted-by":"crossref","first-page":"1798","DOI":"10.1016\/j.pain.2012.03.026","article-title":"Functional abdominal pain patient subtypes in childhood predict functional gastrointestinal disorders with chronic pain and psychiatric comorbidities in adolescence and adulthood","volume":"153","author":"Walker","year":"2012","journal-title":"Pain"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib8","doi-asserted-by":"crossref","first-page":"28","DOI":"10.1097\/j.pain.0000000000001390","article-title":"The IASP classification of chronic pain for ICD-11: chronic primary pain","volume":"160","author":"Nicholas","year":"2019","journal-title":"Pain"},{"key":"10.1016\/j.jpain.2025.105334_bib9","series-title":"Phenomenology of Illness","author":"Cavel","year":"2016"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib10","doi-asserted-by":"crossref","first-page":"1612","DOI":"10.11124\/JBISRIR-2016-003029","article-title":"Experiences of acute pain in children who present to a healthcare facility for treatment: a systematic review of qualitative evidence","volume":"15","author":"Pope","year":"2017","journal-title":"JBI Database Of Systematic Reviews And Implementation Reports"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib11","doi-asserted-by":"crossref","first-page":"46","DOI":"10.1111\/wvn.12185","article-title":"A meta-synthesis of children's experiences of postoperative pain management","volume":"14","author":"Sng","year":"2017","journal-title":"Worldviews on evidence-based nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib12","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1097\/j.pain.0000000000003420","article-title":"Understanding what it is like to experience pain as you grow up: a poetic meta-ethnography","volume":"166","author":"Toye","year":"2025","journal-title":"Pain"},{"key":"10.1016\/j.jpain.2025.105334_bib13","doi-asserted-by":"crossref","DOI":"10.1080\/17533015.2025.2454586","article-title":"The presentation of self in everyday young lives with pain: a poetic meta-ethnography","author":"Toye","year":"2025","journal-title":"Arts and Health"},{"key":"10.1016\/j.jpain.2025.105334_bib14","doi-asserted-by":"crossref","unstructured":"Noblit G., Hare R. Meta-ethnography: Synthesising Qualitative Studies. California: Sage Publications 1988.","DOI":"10.4135\/9781412985000"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib15","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1080\/17533015.2011.561357","article-title":"Arts-based methods in health research: a systematic review of the literature","volume":"3","author":"Fraser","year":"2011","journal-title":"Arts & Health"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib16","doi-asserted-by":"crossref","first-page":"795","DOI":"10.1111\/hex.13705","article-title":"The use of arts-based methodologies and methods with young people with complex psychosocial needs: a systematic narrative review","volume":"26","author":"Nathan","year":"2023","journal-title":"Health Expectations"},{"key":"10.1016\/j.jpain.2025.105334_bib17","doi-asserted-by":"crossref","first-page":"34","DOI":"10.1016\/j.edurev.2017.08.003","article-title":"Researchers under the spell of the arts: two decades of using arts-based methods in community-based inquiry with vulnerable populations","volume":"22","author":"Coemans","year":"2017","journal-title":"Educational Research Review"},{"key":"10.1016\/j.jpain.2025.105334_bib18","first-page":"13","article-title":"The production and dissemination of knowledge: a scoping review of arts-based health research","author":"Boydell","year":"2012","journal-title":"Forum: Qualitative Social Research"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib19","doi-asserted-by":"crossref","first-page":"266","DOI":"10.1136\/medhum-2020-011845","article-title":"The rationales for and challenges with employing arts-based health services research (ABHSR): a qualitative systematic review of primary studies","volume":"47","author":"Majid","year":"2021","journal-title":"Medical Humanities"},{"key":"10.1016\/j.jpain.2025.105334_bib20","series-title":"Narrative Medicine: Honoring the Stories of Illness","author":"Charon","year":"2006"},{"key":"10.1016\/j.jpain.2025.105334_bib21","doi-asserted-by":"crossref","first-page":"214","DOI":"10.1186\/s12909-015-0491-2","article-title":"Exploring the value of qualitative research films in clinical education","volume":"15","author":"Toye","year":"2015","journal-title":"BMC medical education"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib22","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1093\/ageing\/afad051","article-title":"Will I wear purple?'-a school arts-based research project in the UK to disseminate findings from a qualitative evidence synthesis about living to an extreme age","volume":"52","author":"Toye","year":"2023","journal-title":"Age and ageing"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib23","first-page":"61","article-title":"\"It's like she's talking about me\" - Exploring the value and potential impact of a YouTube film presenting a qualitative evidence synthesis about chronic pain: An analysis of online comments","volume":"4","author":"Toye","year":"2020","journal-title":"Canadian journal of pain = Revue canadienne de la douleur"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib24","doi-asserted-by":"crossref","first-page":"127","DOI":"10.1177\/0825859719865545","article-title":"Impact of poetry on empathy and professional burnout of health-care workers: a systematic review","volume":"35","author":"Schoonover","year":"2020","journal-title":"Journal of palliative care"},{"issue":"11","key":"10.1016\/j.jpain.2025.105334_bib25","doi-asserted-by":"crossref","first-page":"2129","DOI":"10.1177\/1077801220963860","article-title":"The use of autobiographical poetry to process trauma, promote awareness, and shift views on sexual violence: exploring the \"Against Our Will\" campaign","volume":"27","author":"Hand","year":"2021","journal-title":"Violence against women"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib26","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1186\/s12874-018-0600-0","article-title":"Improving reporting of meta-ethnography: the eMERGe reporting guidance","volume":"19","author":"France","year":"2019","journal-title":"BMC Medical Research Methodology"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib27","doi-asserted-by":"crossref","first-page":"116","DOI":"10.1186\/s12874-017-0392-7","article-title":"A mega-ethnography of eleven qualitative evidence syntheses exploring the experience of living with chronic non-malignant pain","volume":"17","author":"Toye","year":"2017","journal-title":"BMC Medical Research Methodology"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib28","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2020-043776","article-title":"Experiences of a non-clinical set of adolescents and young adults living with persistent pain: a qualitative metasynthesis","volume":"11","author":"Fegran","year":"2021","journal-title":"BMJ Open"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib29","doi-asserted-by":"crossref","first-page":"303","DOI":"10.1037\/cpp0000215","article-title":"Interpersonal relationships in adolescent chronic pain: a qualitative synthesis","volume":"5","author":"Jordan","year":"2017","journal-title":"Clinical Practice in Pediatric Psychology"},{"key":"10.1016\/j.jpain.2025.105334_bib30","first-page":"29","article-title":"A systematic review of the impact of chronic pain on adolescents' school functioning and school personnel responses to managing pain in the schools","volume":"29","author":"Alsaggaf","year":"2020","journal-title":"Journal of Advanced Nursing"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib31","doi-asserted-by":"crossref","first-page":"225","DOI":"10.1136\/archdischild-2022-324874","article-title":"School lives of adolescent school students living with chronic physical health conditions: a qualitative evidence synthesis","volume":"108","author":"Spencer","year":"2023","journal-title":"Archives of Disease in Childhood"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib32","doi-asserted-by":"crossref","first-page":"645","DOI":"10.1186\/s12891-020-03627-1","article-title":"Adolescents' experiences of fluctuating pain in musculoskeletal disorders: a qualitative systematic review and thematic synthesis","volume":"21","author":"Khanom","year":"2020","journal-title":"BMC musculoskeletal disorders"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib33","doi-asserted-by":"crossref","first-page":"439","DOI":"10.1016\/j.pmn.2021.04.010","article-title":"Over-the-counter analgesics: a meta-synthesis of pain self-management in adolescents","volume":"22","author":"Kiza","year":"2021","journal-title":"Pain Management Nursing"},{"issue":"9-10","key":"10.1016\/j.jpain.2025.105334_bib34","doi-asserted-by":"crossref","first-page":"1451","DOI":"10.1111\/jocn.14801","article-title":"How do parents influence their adolescents' use of over-the-counter analgesics: a review of the current literature","volume":"28","author":"Skarstein","year":"2019","journal-title":"Journal of Clinical Nursing"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib35","doi-asserted-by":"crossref","first-page":"271","DOI":"10.1097\/AJP.0000000000000395","article-title":"Pain experiences of children and adolescents with osteogenesis imperfecta: an integrative review","volume":"33","author":"Nghiem","year":"2017","journal-title":"Clinical Journal of Pain"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib36","doi-asserted-by":"crossref","first-page":"1392","DOI":"10.1002\/acr.21695","article-title":"Children's experiences of living with juvenile idiopathic arthritis: a thematic synthesis of qualitative studies","volume":"64","author":"Tong","year":"2012","journal-title":"Arthritis care & research"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib37","doi-asserted-by":"crossref","first-page":"60","DOI":"10.11124\/JBIES-21-00139","article-title":"Experiences of living with juvenile idiopathic arthritis: a qualitative systematic review","volume":"20","author":"Min","year":"2022","journal-title":"JBI Evidence Synthesis"},{"key":"10.1016\/j.jpain.2025.105334_bib38","doi-asserted-by":"crossref","first-page":"20","DOI":"10.1016\/j.ijnurstu.2017.12.008","article-title":"Adolescents' experiences of living with sickle cell disease: an integrative narrative review of the literature","volume":"80","author":"Poku","year":"2018","journal-title":"International Journal of Nursing Studies"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib39","doi-asserted-by":"crossref","first-page":"36","DOI":"10.7748\/ncyp.2018.e935","article-title":"Sickle cell anaemia and the experiences of young people living with the condition","volume":"30","author":"Foster","year":"2018","journal-title":"Nursing Children and Young People"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib40","doi-asserted-by":"crossref","first-page":"153","DOI":"10.1111\/cch.12309","article-title":"Child and youth experiences and perspectives of cerebral palsy: a qualitative systematic review","volume":"42","author":"Lindsay","year":"2016","journal-title":"Child: Care, Health & Development"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib41","doi-asserted-by":"crossref","first-page":"123","DOI":"10.1016\/j.ijnurstu.2013.02.001","article-title":"Adolescents' and young adults' transition experiences when transferring from paediatric to adult care: a qualitative metasynthesis","volume":"51","author":"Fegran","year":"2014","journal-title":"International Journal of Nursing Studies"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib42","doi-asserted-by":"crossref","first-page":"231","DOI":"10.1080\/09687599.2020.1822785","article-title":"Transitioning from adolescence to adulthood for young people living with cerebral palsy: a meta-ethnography","volume":"37","author":"Boyle","year":"2022","journal-title":"Disability & Society"},{"issue":"12","key":"10.1016\/j.jpain.2025.105334_bib43","doi-asserted-by":"crossref","first-page":"3737","DOI":"10.1093\/rheumatology\/keaa168","article-title":"Patients' attitudes and experiences of transition from paediatric to adult healthcare in rheumatology: a qualitative systematic review","volume":"59","author":"Kelly","year":"2020","journal-title":"Rheumatology"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib44","doi-asserted-by":"crossref","first-page":"42","DOI":"10.1258\/135581907779497486","article-title":"Appraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methods","volume":"12","author":"Dixon-Woods","year":"2007","journal-title":"Journal of Health Services and Research Policy"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib45","doi-asserted-by":"crossref","first-page":"383","DOI":"10.1186\/s12887-022-03442-8","article-title":"\"One time I fell, but I didn't have to cry.\" A qualitative study on everyday physical complaints in children","volume":"22","author":"van der Ziel","year":"2022","journal-title":"BMC Pediatrics"},{"key":"10.1016\/j.jpain.2025.105334_bib46","doi-asserted-by":"crossref","DOI":"10.3389\/fpain.2022.857624","article-title":"Clinical strategies to develop connections, promote health and address pain from the perspectives of indigenous youth, elders, and clinicians","volume":"3","author":"VanEvery","year":"2022","journal-title":"Frontiers in Pain Research"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib47","doi-asserted-by":"crossref","first-page":"614","DOI":"10.1016\/j.jpedsurg.2020.06.041","article-title":"Why adolescents delay with presentation to hospital with acute testicular pain: a qualitative study","volume":"56","author":"MacDonald","year":"2021","journal-title":"Journal of Pediatric Surgery"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib48","doi-asserted-by":"crossref","first-page":"208","DOI":"10.1097\/NMC.0000000000000627","article-title":"Adolescents' perceptions of childbirth","volume":"45","author":"Anderson","year":"2020","journal-title":"MCN, American Journal of Maternal Child Nursing"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib49","doi-asserted-by":"crossref","first-page":"235","DOI":"10.1080\/00016357.2022.2119163","article-title":"A grounded theory study on Swedish 10 to 16-year-olds' perceptions of pain in conjunction with orthodontically indicated tooth extraction","volume":"81","author":"Berlin","year":"2023","journal-title":"Acta Odontologica Scandinavica"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib50","doi-asserted-by":"crossref","first-page":"327","DOI":"10.1111\/ipd.12186","article-title":"The impact of dental caries on children and young people: what they have to say?","volume":"25","author":"Gilchrist","year":"2015","journal-title":"International Journal of Paediatric Dentistry"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib51","doi-asserted-by":"crossref","first-page":"245","DOI":"10.1016\/j.pmn.2018.12.003","article-title":"The experience of pain and pain tool preferences of hospitalized youth","volume":"20","author":"Becker","year":"2019","journal-title":"Pain Management Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib52","first-page":"19","article-title":"The experience of critically ill children: a phenomenological study of discomfort and comfort","volume":"24","author":"Carnevale","year":"2013","journal-title":"Dynamics (Pembroke, Ont)"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib53","doi-asserted-by":"crossref","first-page":"241","DOI":"10.1097\/01.JNR.0000347643.27628.e1","article-title":"A qualitative inquiry of Taiwanese children's pain experiences","volume":"11","author":"Cheng","year":"2003","journal-title":"Journal of Nursing Research"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib54","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1177\/1367493507079561","article-title":"Adolescents' experiences of emergency admission to children's wards","volume":"11","author":"Clift","year":"2007","journal-title":"Journal of Child Health Care"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib55","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1053\/jpmn.2002.126070","article-title":"The pain experience of adolescents after acute blunt traumatic injury","volume":"3","author":"Crandall","year":"2002","journal-title":"Pain Management Nursing"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib56","doi-asserted-by":"crossref","first-page":"224","DOI":"10.1111\/j.1744-6155.2007.00118.x","article-title":"Adolescents' pain experiences following acute blunt traumatic injury: struggle for internal control","volume":"12","author":"Crandall","year":"2007","journal-title":"Journal for Specialists in Pediatric Nursing: JSPN"},{"key":"10.1016\/j.jpain.2025.105334_bib57","doi-asserted-by":"crossref","first-page":"2464","DOI":"10.1177\/1359105318800826","article-title":"The aftermath of burn injury from the child's perspective: a qualitative study. [References]","volume":"25","author":"Egberts","year":"2020","journal-title":"Journal of Health Psychology"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib58","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1177\/1367493518778389","article-title":"Using drawings to understand the child's experience of child-centred care on admission to a paediatric high dependency unit","volume":"23","author":"Foster","year":"2019","journal-title":"Journal of Child Health Care"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib59","first-page":"207","article-title":"A qualitative study of the at-home pain experience for children with an arm fracture","volume":"22","author":"Hanson","year":"2017","journal-title":"Paediatrics & Child Health (1205-7088"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib60","doi-asserted-by":"crossref","first-page":"210","DOI":"10.1177\/1367493504045822","article-title":"I had this horrible pain': the sources and causes of pain experiences in 4- to 11-year-old hospitalized children","volume":"8","author":"Kortesluoma","year":"2004","journal-title":"Journal of Child Health Care"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib61","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1177\/1367493506066482","article-title":"The most disgusting ever': children's pain descriptions and views of the purpose of pain","volume":"10","author":"Kortesluoma","year":"2006","journal-title":"Journal of Child Health Care"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib62","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1016\/j.pmn.2008.07.002","article-title":"\"You just have to make the pain go away\"--children's experiences of pain management","volume":"9","author":"Kortesluoma","year":"2008","journal-title":"Pain Management Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib63","doi-asserted-by":"crossref","first-page":"529","DOI":"10.1186\/s12887-020-02399-w","article-title":"Dynamics on the field: a focused study on the culture and context of pediatric pain management at four Ghanaian hospitals","volume":"20","author":"Kusi Amponsah","year":"2020","journal-title":"BMC Pediatrics"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib64","first-page":"73","article-title":"The use of kinetic children's drawings to explore the pain experiences of children in hospital","volume":"39","author":"Mares","year":"1996","journal-title":"Acta Medica (Hradec Kralove)"},{"key":"10.1016\/j.jpain.2025.105334_bib65","doi-asserted-by":"crossref","DOI":"10.1016\/j.drugalcdep.2022.109480","article-title":"Using prescription opioids throughout a traumatic injury recovery: a qualitative exploratory study of adolescents in a Midwestern state","volume":"236","author":"Mazurenko","year":"2022","journal-title":"Drug & Alcohol Dependence"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib66","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1046\/j.1440-172x.1999.00151.x","article-title":"Pain in children: qualitative research of Finnish school-aged children's experiences of pain in hospital","volume":"5","author":"Polkki","year":"1999","journal-title":"International Journal of Nursing Practice"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib67","article-title":"Ask me: children's experiences of pain explored using the draw, write, and tell method","volume":"23","author":"Pope","year":"2018","journal-title":"Journal for Specialists in Pediatric Nursing: JSPN"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib68","doi-asserted-by":"crossref","first-page":"301","DOI":"10.1177\/1367493504047320","article-title":"Young people's experience of emergency medical services as road traffic accident victims: a pilot qualitative study","volume":"8","author":"Salter","year":"2004","journal-title":"Journal of Child Health Care"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib69","doi-asserted-by":"crossref","first-page":"105","DOI":"10.12707\/RIV14041","article-title":"Adolescents' experiences during hospitalisation in a paediatric unit","volume":"4","author":"Sousa Figueiredo","year":"2015","journal-title":"Revista de Enfermagem Refer\u00eancia"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib70","doi-asserted-by":"crossref","first-page":"95","DOI":"10.1016\/j.pedhc.2009.02.008","article-title":"The voices of children: stories about hospitalization","volume":"24","author":"Wilson","year":"2010","journal-title":"Journal of Pediatric Health Care"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib71","doi-asserted-by":"crossref","first-page":"184","DOI":"10.1177\/104973239600600204","article-title":"My hurts': hospitalized young children's perceptions of acute pain","volume":"6","author":"Woodgate","year":"1996","journal-title":"Qualitative Health Research"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib72","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1097\/DBP.0000000000000240","article-title":"Pain assessment of children with autism spectrum disorders","volume":"37","author":"Ely","year":"2016","journal-title":"Journal of Developmental & Behavioral Pediatrics"},{"issue":"Pt 2","key":"10.1016\/j.jpain.2025.105334_bib73","doi-asserted-by":"crossref","first-page":"329","DOI":"10.1348\/135910710X506895","article-title":"Understanding needle-related distress in children with cystic fibrosis","volume":"16","author":"Ayers","year":"2011","journal-title":"British Journal of Health Psychology"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib74","doi-asserted-by":"crossref","first-page":"667","DOI":"10.1016\/j.pedn.2016.06.004","article-title":"Experiencing support during needle-related medical procedures: a hermeneutic study with young children (3-7Years)","volume":"31","author":"Karlsson","year":"2016","journal-title":"Journal of Pediatric Nursing"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib75","doi-asserted-by":"crossref","first-page":"e109","DOI":"10.1016\/j.pedn.2015.09.008","article-title":"Consequences of needle-related medical procedures: a hermeneutic study with young children (3-7 years)","volume":"31","author":"Karlsson","year":"2016","journal-title":"Journal of Pediatric Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib76","doi-asserted-by":"crossref","first-page":"46","DOI":"10.1111\/1753-6405.12737","article-title":"Aboriginal children and penicillin injections for rheumatic fever: how much of a problem is injection pain?","volume":"42","author":"Mitchell","year":"2018","journal-title":"Australian & New Zealand Journal of Public Health"},{"issue":"7","key":"10.1016\/j.jpain.2025.105334_bib77","doi-asserted-by":"crossref","first-page":"1449","DOI":"10.1111\/j.1365-2648.2010.05590.x","article-title":"Children's experiences of procedural pain management in conjunction with trauma wound dressings","volume":"67","author":"Nilsson","year":"2011","journal-title":"Journal of Advanced Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib78","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1186\/s12969-021-00495-4","article-title":"I don't want to think about it: a qualitative study of children (6-18 years) with rheumatic diseases and parents' experiences with regular needle injections at home","volume":"19","author":"Sorensen","year":"2021","journal-title":"Pediatric Rheumatology Online Journal"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib79","doi-asserted-by":"crossref","DOI":"10.1111\/jspn.12396","article-title":"Children's and adolescent's narratives about pain and negative experiences in diabetes treatment","volume":"28","author":"Gothesson","year":"2023","journal-title":"Journal for Specialists in Pediatric Nursing: JSPN"},{"issue":"3-4","key":"10.1016\/j.jpain.2025.105334_bib80","doi-asserted-by":"crossref","first-page":"558","DOI":"10.1111\/jocn.16318","article-title":"Interactions between children, parents and nurses during postoperative pain management: a grounded theory study","volume":"32","author":"Bakir","year":"2023","journal-title":"Journal of Clinical Nursing"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib81","doi-asserted-by":"crossref","first-page":"565","DOI":"10.1016\/j.pmn.2020.04.003","article-title":"Adolescent Patients' Management of Postoperative Pain after Discharge: A Qualitative Study","volume":"21","author":"Dagg","year":"2020","journal-title":"Pain Management Nursing"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib82","doi-asserted-by":"crossref","first-page":"196","DOI":"10.1177\/1367493505054417","article-title":"Pain experiences and non-pharmacological strategies for pain management after tonsillectomy: a qualitative interview study of children and parents","volume":"9","author":"Idvall","year":"2005","journal-title":"Journal of Child Health Care"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib83","doi-asserted-by":"crossref","first-page":"493","DOI":"10.1111\/scs.13046","article-title":"Adolescents' perioperative experiences in relation to inpatient and outpatient elective surgery - a qualitative study","volume":"36","author":"Pestana-Santos","year":"2022","journal-title":"Scandinavian Journal of Caring Sciences"},{"issue":"11-12","key":"10.1016\/j.jpain.2025.105334_bib84","doi-asserted-by":"crossref","first-page":"2157","DOI":"10.1111\/jocn.14788","article-title":"Children's views on postsurgical pain in recovery units in Norway: a qualitative study","volume":"28","author":"Smeland","year":"2019","journal-title":"Journal of Clinical Nursing"},{"issue":"7-8","key":"10.1016\/j.jpain.2025.105334_bib85","doi-asserted-by":"crossref","first-page":"958","DOI":"10.1111\/jocn.12052","article-title":"Postoperative pain management experiences among school-aged children: a qualitative study","volume":"22","author":"Sng","year":"2013","journal-title":"J Clin Nurs"},{"issue":"7","key":"10.1016\/j.jpain.2025.105334_bib86","doi-asserted-by":"crossref","first-page":"29","DOI":"10.7748\/ncyp.2016.e726","article-title":"Patients' experience of adolescent idiopathic scoliosis surgery: a phenomenological analysis","volume":"28","author":"Honeyman","year":"2016","journal-title":"Nursing Children and Young People"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib87","doi-asserted-by":"crossref","first-page":"225","DOI":"10.1093\/jpepsy\/jsab095","article-title":"Adolescents' experiences of idiopathic scoliosis in the presurgical period: a qualitative study","volume":"47","author":"Motyer","year":"2022","journal-title":"Journal of Pediatric Psychology"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib88","first-page":"297","article-title":"Painful experience in adolescents undergoing surgical correction of scoliosis","volume":"29","author":"Navarrete-Zampana","year":"2019","journal-title":"Enfermeria Clinica"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib89","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1016\/j.pmn.2010.07.005","article-title":"Adolescents' experience with scoliosis surgery: a qualitative study","volume":"14","author":"Rullander","year":"2013","journal-title":"Pain Management Nursing"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib90","doi-asserted-by":"crossref","DOI":"10.1111\/jspn.12323","article-title":"Youngsters' perceptions of the experience of pain and utilisation of over-the-counter pain medication as needed in community: a qualitative study","volume":"26","author":"Ndengeyingoma","year":"2021","journal-title":"Journal for Specialists in Pediatric Nursing: JSPN"},{"key":"10.1016\/j.jpain.2025.105334_bib91","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2020.113022","article-title":"The socio-material self-care practices of children living with hemophilia or juvenile idiopathic arthritis in Denmark","volume":"255","author":"Bagge-Petersen","year":"2020","journal-title":"Social Science & Medicine"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib92","doi-asserted-by":"crossref","first-page":"424","DOI":"10.1016\/j.pedhc.2015.01.012","article-title":"The daily experiences of adolescents in lebanon with sickle cell disease","volume":"29","author":"Atoui","year":"2015","journal-title":"Journal of Pediatric Health Care"},{"issue":"23","key":"10.1016\/j.jpain.2025.105334_bib93","doi-asserted-by":"crossref","first-page":"1981","DOI":"10.3109\/09638288.2013.770080","article-title":"The bodily experience of cerebral palsy: a journey to self-awareness","volume":"35","author":"Brunton","year":"2013","journal-title":"Disability & Rehabilitation"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib94","doi-asserted-by":"crossref","first-page":"445","DOI":"10.1111\/j.1469-8749.2007.00445.x","article-title":"Being in pain: a phenomenological study of young people with cerebral palsy","volume":"49","author":"Castle","year":"2007","journal-title":"Developmental Medicine & Child Neurology"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib95","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1111\/j.1469-8749.2008.03194.x","article-title":"Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents","volume":"51","author":"Davis","year":"2009","journal-title":"Developmental Medicine & Child Neurology"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib96","doi-asserted-by":"crossref","DOI":"10.1016\/j.rehab.2020.10.002","article-title":"No pain, no gain? Children with cerebral palsy and their experience with physiotherapy","volume":"64","author":"Houx","year":"2021","journal-title":"Annals of Physical & Rehabilitation Medicine"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib97","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1186\/s12887-020-2011-8","article-title":"The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy","volume":"20","author":"McKinnon","year":"2020","journal-title":"BMC Pediatrics"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib98","doi-asserted-by":"crossref","first-page":"364","DOI":"10.1111\/dmcn.15061","article-title":"Lived experiences of pain in children and young people with cerebral palsy","volume":"64","author":"Ostojic","year":"2022","journal-title":"Developmental Medicine & Child Neurology"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib99","doi-asserted-by":"crossref","first-page":"182","DOI":"10.3109\/17518421003606151","article-title":"Rehabilitation after multilevel surgery in ambulant spastic children with cerebral palsy: children and parent experiences","volume":"13","author":"Capjon","year":"2010","journal-title":"Developmental neurorehabilitation"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib100","doi-asserted-by":"crossref","first-page":"e157","DOI":"10.1016\/j.pedn.2015.05.018","article-title":"Health care transition experiences of young adults with cerebral palsy","volume":"30","author":"Carroll","year":"2015","journal-title":"Journal of Pediatric Nursing"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib101","doi-asserted-by":"crossref","first-page":"143","DOI":"10.2340\/00015555-0376","article-title":"Main problems experienced by children with epidermolysis bullosa: a qualitative study with semi-structured interviews","volume":"88","author":"van Scheppingen","year":"2008","journal-title":"Acta Dermato-Venereologica"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib102","doi-asserted-by":"crossref","first-page":"2796","DOI":"10.1007\/s12325-022-02096-3","article-title":"\"I can't take off my shirt or do my own hair\"-A qualitative investigation of the symptoms and impact experience of children and adolescents with fibrodysplasia ossificans progressiva (FOP)","volume":"39","author":"Markowitz","year":"2022","journal-title":"Advances in Therapy"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib103","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1177\/105477389300200102","article-title":"The significance of pain in children's experiences of hemophilia","volume":"2","author":"Spitzer","year":"1993","journal-title":"Clinical Nursing Research"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib104","doi-asserted-by":"crossref","first-page":"36","DOI":"10.1186\/s42358-020-00138-4","article-title":"Adolescents' social needs living with juvenile idiopathic arthritis and their views about digital resources","volume":"60","author":"Beneitez","year":"2020","journal-title":"Advances in Rheumatology"},{"issue":"8","key":"10.1016\/j.jpain.2025.105334_bib105","doi-asserted-by":"crossref","first-page":"374","DOI":"10.1177\/030802260206500805","article-title":"Views from the inside, part 1: routes to diagnosis - families' experience of living with a child with arthritis","volume":"65","author":"Britton","year":"2002","journal-title":"British Journal of Occupational Therapy"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib106","doi-asserted-by":"crossref","first-page":"413","DOI":"10.1177\/030802260206500904","article-title":"Views from the Inside, Part 2: what the children with arthritis said, and the experiences of siblings, mothers, fathers and grandparents","volume":"65","author":"Britton","year":"2002","journal-title":"British Journal of Occupational Therapy"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib107","doi-asserted-by":"crossref","first-page":"734","DOI":"10.1111\/cch.12206","article-title":"Journeys of adjustment: the experiences of adolescents living with juvenile idiopathic arthritis","volume":"41","author":"Cartwright","year":"2015","journal-title":"Child: Care, Health & Development"},{"issue":"8","key":"10.1016\/j.jpain.2025.105334_bib108","doi-asserted-by":"crossref","first-page":"357","DOI":"10.1177\/030802260907200806","article-title":"Living with Juvenile idiopathic arthritis: children's experiences of participating in home exercise programmes","volume":"72","author":"De Monte","year":"2009","journal-title":"British Journal of Occupational Therapy"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib109","doi-asserted-by":"crossref","first-page":"459","DOI":"10.1007\/s10067-010-1444-0","article-title":"What does it mean to grow up with juvenile idiopathic arthritis? A qualitative study on the perspectives of patients","volume":"30","author":"Eyckmans","year":"2011","journal-title":"Clinical Rheumatology"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib110","doi-asserted-by":"crossref","first-page":"96","DOI":"10.1002\/pne2.12069","article-title":"\"I just want to be normal\": a qualitative investigation of adolescents' coping goals when dealing with pain related to arthritis and the underlying parent\u2010adolescent personal models","volume":"4","author":"Ghio","year":"2022","journal-title":"Paediatric & Neonatal Pain"},{"key":"10.1016\/j.jpain.2025.105334_bib111","doi-asserted-by":"crossref","first-page":"30518","DOI":"10.3402\/qhw.v11.30518","article-title":"Promoting participation in healthcare situations for children with JIA: a grounded theory study","volume":"11","author":"Gilljam","year":"2016","journal-title":"International Journal of Qualitative Studies on Health and Well-being"},{"issue":"7","key":"10.1016\/j.jpain.2025.105334_bib112","doi-asserted-by":"crossref","first-page":"884","DOI":"10.1177\/1049732307305883","article-title":"Painful childhood: children living with juvenile arthritis","volume":"17","author":"Guell","year":"2007","journal-title":"Qual Health Res"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib113","doi-asserted-by":"crossref","first-page":"1288","DOI":"10.1002\/acr.22832","article-title":"Being as normal as possible: how young people ages 16-25 years evaluate the risks and benefits of treatment for inflammatory arthritis","volume":"68","author":"Hart","year":"2016","journal-title":"Arthritis Care & Research"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib114","doi-asserted-by":"crossref","first-page":"1785","DOI":"10.1002\/ejp.1626","article-title":"Characterizing pain flares in adolescent inflammatory and non-inflammatory musculoskeletal disorders: a qualitative study using an interpretative phenomenological approach","volume":"24","author":"Khanom","year":"2020","journal-title":"European Journal of Pain"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib115","doi-asserted-by":"crossref","first-page":"156","DOI":"10.1186\/s12969-021-00642-x","article-title":"How children with juvenile idiopathic arthritis view participation and communication in healthcare encounters: a qualitative study","volume":"19","author":"Lundberg","year":"2021","journal-title":"Pediatric Rheumatology Online Journal"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib116","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1186\/s12969-016-0117-1","article-title":"\"Sometimes I feel like a pharmacist\": identity and medication use among adolescents with juvenile arthritis","volume":"14","author":"McDonagh","year":"2016","journal-title":"Pediatric Rheumatology Online Journal"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib117","doi-asserted-by":"crossref","first-page":"428","DOI":"10.1177\/1367493516632616","article-title":"It might hurt, but you have to push through the pain\u2019: perspectives on physical activity from children with juvenile idiopathic arthritis and their parents","volume":"20","author":"Race","year":"2016","journal-title":"Journal of Child Health Care"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib118","doi-asserted-by":"crossref","first-page":"106","DOI":"10.1080\/17482620802431862","article-title":"Fitting into the prevailing teenage culture: a grounded theory on female adolescents with chronic arthritis","volume":"4","author":"S\u00e4llfors","year":"2009","journal-title":"International Journal of Qualitative Studies on Health and Well-being"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib119","doi-asserted-by":"crossref","first-page":"495","DOI":"10.1046\/j.1365-2214.2002.00300.x","article-title":"Oscillating between hope and despair--a qualitative study","volume":"28","author":"Sallfors","year":"2002","journal-title":"Child: Care, Health & Development"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib120","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1080\/15017410109510765","article-title":"Coping with chronic pain: in\u2010depth interviews with children suffering from Juvenile Chronic Arthritis","volume":"3","author":"S\u00e4llfors","year":"2001","journal-title":"Scandinavian Journal of Disability Research"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib121","doi-asserted-by":"crossref","first-page":"302","DOI":"10.1016\/j.pedhc.2010.06.004","article-title":"Living with juvenile arthritis: adolescents' challenges and experiences","volume":"25","author":"Secor-Turner","year":"2011","journal-title":"Journal of pediatric health care: official publication of National Association of Pediatric Nurse Associates & Practitioners"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib122","doi-asserted-by":"crossref","first-page":"124","DOI":"10.1177\/1367493511430679","article-title":"Jointly managing arthritis: Information needs of children with juvenile idiopathic arthritis (JIA) and their parents","volume":"16","author":"Stinson","year":"2012","journal-title":"Journal of Child Health Care"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib123","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1002\/art.23244","article-title":"Asking the experts: exploring the self-management needs of adolescents with arthritis","volume":"59","author":"Stinson","year":"2008","journal-title":"Arthritis and rheumatism"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib124","doi-asserted-by":"crossref","first-page":"33","DOI":"10.1186\/s12969-020-00429-6","article-title":"Experiences, perspectives and expectations of adolescents with juvenile idiopathic arthritis regarding future work participation; a qualitative study","volume":"18","author":"van Gulik","year":"2020","journal-title":"Pediatr Rheumatol Online J"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib125","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1186\/s41927-022-00316-5","article-title":"Transitions from pediatric to adult rheumatology care for juvenile idiopathic arthritis: a patient led qualitative study","volume":"6","author":"Currie","year":"2022","journal-title":"Bmc Rheumatology"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib126","first-page":"2","article-title":"Moving on: the experience of young people with juvenile idiopathic arthritis transferring from paediatric to adult services","volume":"16","author":"Dickinson","year":"2013","journal-title":"Neonatal, Paediatric & Child Health Nursing"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib127","doi-asserted-by":"crossref","first-page":"575","DOI":"10.1007\/s10067-012-2135-9","article-title":"Transfer from paediatric rheumatology to the adult rheumatology setting: experiences and expectations of young adults with juvenile idiopathic arthritis","volume":"32","author":"Hilderson","year":"2013","journal-title":"Clinical Rheumatology"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib128","doi-asserted-by":"crossref","first-page":"445","DOI":"10.1080\/09638280600835994","article-title":"From childhood to adult life with juvenile idiopathic arthritis (JIA): a pilot study","volume":"29","author":"Ostlie","year":"2007","journal-title":"Disability & Rehabilitation"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib129","doi-asserted-by":"crossref","first-page":"770","DOI":"10.1093\/rheumatology\/keh175","article-title":"User perspectives of transitional care for adolescents with juvenile idiopathic arthritis","volume":"43","author":"Shaw","year":"2004","journal-title":"Rheumatology"},{"issue":"20","key":"10.1016\/j.jpain.2025.105334_bib130","doi-asserted-by":"crossref","first-page":"1736","DOI":"10.3109\/09638288.2012.662260","article-title":"Indignity, exclusion, pain and hunger: the impact of musculoskeletal impairments in the lives of children in Malawi","volume":"34","author":"Alavi","year":"2012","journal-title":"Disability & Rehabilitation"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib131","doi-asserted-by":"crossref","first-page":"111","DOI":"10.1002\/ejp.2043","article-title":"That's what makes me better': investigating children and adolescents' experiences of pain communication with healthcare professionals in paediatric rheumatology","volume":"27","author":"Lee","year":"2023","journal-title":"European Journal of Pain"},{"key":"10.1016\/j.jpain.2025.105334_bib132","doi-asserted-by":"crossref","first-page":"54","DOI":"10.1186\/1477-7525-12-54","article-title":"Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study","volume":"12","author":"Hill","year":"2014","journal-title":"Health & Quality of Life Outcomes"},{"issue":"19","key":"10.1016\/j.jpain.2025.105334_bib133","doi-asserted-by":"crossref","first-page":"2281","DOI":"10.1080\/09638288.2017.1334236","article-title":"Family experience with osteogenesis imperfecta type 1: the most distressing situations","volume":"40","author":"Santos","year":"2018","journal-title":"Disability & Rehabilitation"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib134","doi-asserted-by":"crossref","first-page":"158","DOI":"10.1016\/j.pedn.2013.10.002","article-title":"Transition from pediatric to adult care in sickle cell disease: perspectives on the family role","volume":"29","author":"Porter","year":"2014","journal-title":"Journal of Pediatric Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib135","doi-asserted-by":"crossref","first-page":"17","DOI":"10.12974\/2312-5411.2015.02.01.3","article-title":"Young adult perspectives on a successful transition from pediatric to adult care in sickle cell disease","volume":"2","author":"Sobota","year":"2015","journal-title":"Journal of Hematology Research"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib136","doi-asserted-by":"crossref","first-page":"207","DOI":"10.1016\/j.htct.2017.11.009","article-title":"Barriers experienced in self-care practice by young people with sickle cell disease","volume":"40","author":"Cecilio","year":"2018","journal-title":"Hematology Transfusion & Cell Therapy"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib137","doi-asserted-by":"crossref","first-page":"686","DOI":"10.1177\/0193945915625065","article-title":"Spirituality and religiosity in adolescents living with sickle cell disease","volume":"38","author":"Clayton-Jones","year":"2016","journal-title":"Western Journal of Nursing Research"},{"issue":"8","key":"10.1016\/j.jpain.2025.105334_bib138","doi-asserted-by":"crossref","first-page":"571","DOI":"10.1097\/MPH.0b013e3181acd889","article-title":"Perceived barriers to clinic appointments for adolescents with sickle cell disease","volume":"31","author":"Crosby","year":"2009","journal-title":"Journal of Pediatric Hematology\/Oncology"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib139","doi-asserted-by":"crossref","first-page":"465","DOI":"10.1111\/j.1467-9566.2010.01301.x","article-title":"Sickle cell, habitual dys-positions and fragile dispositions: young people with sickle cell at school","volume":"33","author":"Dyson","year":"2011","journal-title":"Sociology of Health & Illness"},{"issue":"12","key":"10.1016\/j.jpain.2025.105334_bib140","doi-asserted-by":"crossref","first-page":"2036","DOI":"10.1016\/j.socscimed.2010.03.010","article-title":"Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school","volume":"70","author":"Dyson","year":"2010","journal-title":"Social Science & Medicine"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib141","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1177\/1359104511399843","article-title":"Adolescent boys with sickle cell disease: a qualitative study","volume":"17","author":"Erskine","year":"2012","journal-title":"Clinical Child Psychology & Psychiatry"},{"key":"10.1016\/j.jpain.2025.105334_bib142","doi-asserted-by":"crossref","first-page":"28104","DOI":"10.3402\/qhw.v10.28104","article-title":"The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica","volume":"10","author":"Forrester","year":"2015","journal-title":"International Journal of Qualitative Studies on Health and Well-being"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib143","doi-asserted-by":"crossref","first-page":"678","DOI":"10.1016\/j.pedn.2016.06.008","article-title":"Challenges in shifting management responsibility from parents to adolescents with sickle cell disease","volume":"31","author":"Kayle","year":"2016","journal-title":"Journal of Pediatric Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib144","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1177\/1043659615609404","article-title":"Exploring transition to self-management within the culture of sickle cell disease","volume":"28","author":"Labore","year":"2017","journal-title":"Journal of Transcultural Nursing"},{"key":"10.1016\/j.jpain.2025.105334_bib145","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1016\/j.pedn.2019.02.006","article-title":"Developing a problem-solving intervention to improve self-management and transition readiness in adolescents with sickle cell disease","volume":"46","author":"Melita","year":"2019","journal-title":"Journal of Pediatric Nursing"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib146","doi-asserted-by":"crossref","first-page":"319","DOI":"10.1037\/cpp0000212","article-title":"Using qualitative perspectives of adolescents with sickle cell disease and caregivers to develop healthcare transition programming","volume":"5","author":"Porter","year":"2017","journal-title":"Clinical Practice in Pediatric Psychology"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib147","doi-asserted-by":"crossref","first-page":"1016","DOI":"10.1093\/jpepsy\/jsx088","article-title":"Pediatric to adult care transition: perspectives of young adults with sickle cell disease","volume":"42","author":"Porter","year":"2017","journal-title":"Journal of Pediatric Psychology"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib148","doi-asserted-by":"crossref","first-page":"269","DOI":"10.1177\/1043454213493508","article-title":"Using photovoice to explore the unique life perspectives of youth with sickle cell disease: a pilot study","volume":"30","author":"Stegenga","year":"2013","journal-title":"Journal of Pediatric Oncology Nursing"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib149","doi-asserted-by":"crossref","first-page":"97","DOI":"10.1097\/FCH.0b013e318282b2f2","article-title":"Understanding the experiences of youth living with sickle cell disease: a photovoice pilot","volume":"36","author":"Valenzuela","year":"2013","journal-title":"Family & Community Health"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib150","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1177\/1043659619896837","article-title":"Social and psychological factors associated with health care transition for young adults living with sickle cell disease","volume":"32","author":"Clayton-Jones","year":"2021","journal-title":"Journal of Transcultural Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib151","doi-asserted-by":"crossref","first-page":"876","DOI":"10.1186\/s12913-019-4726-5","article-title":"Not being heard: barriers to high quality unplanned hospital care during young people's transition to adult services - evidence from 'this sickle cell life' research","volume":"19","author":"Renedo","year":"2019","journal-title":"BMC Health Services Research"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib152","doi-asserted-by":"crossref","first-page":"873","DOI":"10.1111\/cch.12018","article-title":"Respect for autonomy in the healthcare context: observations from a qualitative study of young adults with cerebral palsy","volume":"39","author":"Racine","year":"2013","journal-title":"Child: Care, Health & Development"},{"issue":"3 82","key":"10.1016\/j.jpain.2025.105334_bib153","first-page":"S122","article-title":"The invisible part of the iceberg: qualitative aspects of childhood vasculitis","volume":"32","author":"Fidanci","year":"2014","journal-title":"Clinical & Experimental Rheumatology"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib154","doi-asserted-by":"crossref","first-page":"557","DOI":"10.1111\/j.1365-2214.2008.00844.x","article-title":"Transition to adult care: experiences and expectations of adolescents with a chronic illness","volume":"34","author":"Tuchman","year":"2008","journal-title":"Child: Care, Health & Development"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib155","doi-asserted-by":"crossref","DOI":"10.1080\/24740527.2022.2146489","article-title":"Understand me: youth with chronic pain on how knowledge gaps influence their pain experience","volume":"7","author":"Brown","year":"2023","journal-title":"Canadian Journal of Pain"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib156","doi-asserted-by":"crossref","first-page":"753","DOI":"10.1046\/j.1365-2702.2002.00642.x","article-title":"A pain workshop: an approach to eliciting the views of young people with chronic pain","volume":"11","author":"Carter","year":"2002","journal-title":"Journal of Clinical Nursing"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib157","doi-asserted-by":"crossref","first-page":"269","DOI":"10.1177\/1367493507082756","article-title":"Childhood chronic pain and health care professional interactions: shaping the chronic pain experiences of children","volume":"11","author":"Dell'Api","year":"2007","journal-title":"Journal of Child Health Care"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib158","doi-asserted-by":"crossref","first-page":"e115","DOI":"10.1155\/2013\/120632","article-title":"Living with difference: exploring the social self of adolescents with chronic pain","volume":"18","author":"Forgeron","year":"2013","journal-title":"Pain Research & Management"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib159","doi-asserted-by":"crossref","first-page":"1044","DOI":"10.1093\/jpepsy\/jsac043","article-title":"Establishing the content validity of a modified bank of school anxiety inventory items for use among adolescents with chronic pain","volume":"47","author":"Gibler","year":"2022","journal-title":"Journal of Pediatric Psychology"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib160","doi-asserted-by":"crossref","first-page":"301","DOI":"10.1089\/chi.2021.0208","article-title":"Effects of weight and pain on physical activity: insights from the lived experiences of youth with co-occurring chronic pain and obesity","volume":"18","author":"Gremillion","year":"2022","journal-title":"Childhood Obesity"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib161","doi-asserted-by":"crossref","first-page":"459","DOI":"10.1093\/pm\/pnaa245","article-title":"\"Why isn't it going away?\": a qualitative exploration of worry and pain experiences in adolescents with chronic pain","volume":"22","author":"Heffernan","year":"2021","journal-title":"Pain Medicine"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib162","doi-asserted-by":"crossref","first-page":"341","DOI":"10.1177\/20494637211061970","article-title":"Trusting in the online 'community': an interview study exploring internet use in young people with chronic pain","volume":"16","author":"Hurley-Wallace","year":"2022","journal-title":"British Journal of Pain"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib163","first-page":"1","article-title":"Youth and parent perceptions on participating in specialized multidisciplinary pain rehabilitation options: a qualitative timeline effect analysis","volume":"5","author":"Hurtubise","year":"2021","journal-title":"Canadian journal of pain = Revue canadienne de la douleur"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib164","doi-asserted-by":"crossref","first-page":"577","DOI":"10.1016\/j.jpain.2021.10.006","article-title":"PAINSTORIES - exploring the temporal developments in the challenges, barriers, and self-management needs of adolescents with longstanding knee pain: a qualitative, retrospective interview study with young adults experiencing knee pain since adolescence","volume":"23","author":"Johansen","year":"2022","journal-title":"Journal of Pain"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib165","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1002\/pne2.12071","article-title":"The sands of time: adolescents' temporal perceptions of peer relationships and autonomy in the context of living with chronic pain","volume":"4","author":"Jones","year":"2022","journal-title":"Paediatric & Neonatal Pain"},{"issue":"12","key":"10.1016\/j.jpain.2025.105334_bib166","doi-asserted-by":"crossref","first-page":"932","DOI":"10.1097\/AJP.0000000000000880","article-title":"Loss-adjusting: young people's constructions of a future living with complex regional pain syndrome","volume":"36","author":"Jones","year":"2020","journal-title":"Clinical Journal of Pain"},{"issue":"12","key":"10.1016\/j.jpain.2025.105334_bib167","doi-asserted-by":"crossref","first-page":"10","DOI":"10.3390\/children8121170","article-title":"Exploring the outcomes that matter most to young people treated for chronic pain: a qualitative study","volume":"8","author":"Joslin","year":"2021","journal-title":"Children"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib168","doi-asserted-by":"crossref","first-page":"07","DOI":"10.3390\/children6090101","article-title":"Adolescent and parent experiences of acceptance and commitment therapy for pediatric chronic pain: an interpretative phenomenological analysis","volume":"6","author":"Kanstrup","year":"2019","journal-title":"Children"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib169","article-title":"\"We survived the pandemic together\": the impact of the COVID-19 pandemic on Canadian families living with chronic pain","volume":"7","author":"Killackey","year":"2023","journal-title":"Canadian journal of pain = Revue canadienne de la douleur"},{"issue":"10","key":"10.1016\/j.jpain.2025.105334_bib170","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2020-037315","article-title":"What are important consequences in children with non-specific spinal pain? A qualitative study of Danish children aged 9-12 years","volume":"10","author":"Lauridsen","year":"2020","journal-title":"BMJ Open"},{"key":"10.1016\/j.jpain.2025.105334_bib171","doi-asserted-by":"crossref","first-page":"424","DOI":"10.1002\/ejp.2069","article-title":"How does pain work? A qualitative analysis of how young adults with chronic pain conceptualize the biology of pain","volume":"2023","author":"Leake","year":"2023","journal-title":"European Journal of Pain"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib172","first-page":"1","article-title":"Social participation in college students with chronic pain","volume":"9","author":"McCarthy","year":"2021","journal-title":"Open Journal of Occupational Therapy ((OJOT))"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib173","doi-asserted-by":"crossref","first-page":"1018","DOI":"10.1111\/j.1526-4637.2009.00650.x","article-title":"\"I can't be what I want to be\": children's narratives of chronic pain experiences and treatment outcomes","volume":"10","author":"Meldrum","year":"2009","journal-title":"Pain Medicine"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib174","doi-asserted-by":"crossref","first-page":"1080","DOI":"10.1016\/j.jpain.2019.03.004","article-title":"Diagnostic uncertainty in youth with chronic pain and their parents","volume":"20","author":"Neville","year":"2019","journal-title":"The journal of pain"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib175","doi-asserted-by":"crossref","first-page":"841","DOI":"10.1016\/j.jpain.2021.11.012","article-title":"Pediatric chronic pain in the midst of the COVID-19 pandemic: lived experiences of youth and parents","volume":"23","author":"Neville","year":"2022","journal-title":"Journal of Pain"},{"key":"10.1016\/j.jpain.2025.105334_bib176","doi-asserted-by":"crossref","DOI":"10.1016\/j.jpain.2023.02.025","article-title":"Distress and resilience narratives within pain memories of adolescents and young adults with complex regional pain syndrome: a multi-method study","author":"Nimbley","year":"2023","journal-title":"Journal of Pain"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib177","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1093\/ohr\/ohm002","article-title":"Diagnosis versus dialogue: oral testimony and the study of pediatric pain","volume":"35","author":"Nutkiewicz","year":"2008","journal-title":"Oral History Review"},{"key":"10.1016\/j.jpain.2025.105334_bib178","first-page":"22","article-title":"Understanding how college students characterise and cope with chronic pain: a thematic analysis of expressive writing samples","volume":"22","author":"Root","year":"2022","journal-title":"Medical Humanities"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib179","doi-asserted-by":"crossref","first-page":"02","DOI":"10.1136\/bmjpo-2021-001201","article-title":"Experiences of pain in paediatric chronic fatigue syndrome\/myalgic encephalomyelitis: a single-centre qualitative study","volume":"6","author":"Serafimova","year":"2022","journal-title":"BMJ Paediatrics Open"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib180","doi-asserted-by":"crossref","first-page":"554","DOI":"10.1186\/s12887-022-03617-3","article-title":"The experience of chronic pain among adolescents: suffering and attempt to overcome pain?","volume":"22","author":"Shaygan","year":"2022","journal-title":"BMC Pediatrics"},{"issue":"12","key":"10.1016\/j.jpain.2025.105334_bib181","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2016-014007","article-title":"Young people's experiences of persistent musculoskeletal pain, needs, gaps and perceptions about the role of digital technologies to support their co-care: a qualitative study","volume":"6","author":"Slater","year":"2016","journal-title":"BMJ Open"},{"key":"10.1016\/j.jpain.2025.105334_bib182","doi-asserted-by":"crossref","first-page":"106","DOI":"10.1016\/j.sjpain.2017.02.002","article-title":"Adolescents' experience of complex persistent pain","volume":"15","author":"Sorensen","year":"2017","journal-title":"Scandinavian Journal of Pain"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib183","first-page":"84","article-title":"Understanding the use of over-the-counter pain treatments in adolescents with chronic pain","volume":"1","author":"Stinson","year":"2017","journal-title":"Canadian journal of pain = Revue canadienne de la douleur"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib184","doi-asserted-by":"crossref","first-page":"470","DOI":"10.1016\/j.pedhc.2020.05.004","article-title":"A phenomenological exploration of the personal implications of female adolescents living with chronic pain","volume":"34","author":"Szwimer","year":"2020","journal-title":"Journal of Pediatric Health Care"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib185","doi-asserted-by":"crossref","first-page":"456","DOI":"10.1093\/jpepsy\/jsab122","article-title":"\"There's nothing wrong with you\": pain-related stigma in adolescents with chronic pain","volume":"47","author":"Wakefield","year":"2022","journal-title":"Journal of Pediatric Psychology"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib186","first-page":"85","article-title":"Moving on: transition experiences of young adults with chronic pain","volume":"3","author":"Higginson","year":"2019","journal-title":"Canadian journal of pain = Revue canadienne de la douleur"},{"key":"10.1016\/j.jpain.2025.105334_bib187","doi-asserted-by":"crossref","first-page":"1358","DOI":"10.1016\/j.jpain.2022.02.010","article-title":"Healthcare transition among young adults with childhood-onset chronic pain: a mixed methods study and proposed framework","volume":"2022","author":"Murray","year":"2022","journal-title":"The Journal of Pain"},{"issue":"7","key":"10.1016\/j.jpain.2025.105334_bib188","doi-asserted-by":"crossref","first-page":"1217","DOI":"10.1093\/pm\/pnac058","article-title":"Defining success in transitions from pediatric to adult chronic pain care: a descriptive qualitative study of perspectives of young adults living with chronic pain","volume":"23","author":"Oreper","year":"2022","journal-title":"Pain Medicine"},{"issue":"9","key":"10.1016\/j.jpain.2025.105334_bib189","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2021-048949","article-title":"Children's and adolescents' experiences with functional abdominal pain: a qualitative study in Norway","volume":"11","author":"Brodwall","year":"2021","journal-title":"BMJ Open"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib190","doi-asserted-by":"crossref","first-page":"e135","DOI":"10.1016\/j.pmn.2011.09.002","article-title":"A qualitative analysis of adolescent, caregiver, and clinician perceptions of the impact of migraines on adolescents' social functioning. [References]","volume":"14","author":"Donovan","year":"2013","journal-title":"Pain Management Nursing"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib191","doi-asserted-by":"crossref","first-page":"515","DOI":"10.1111\/hsc.12109","article-title":"Diverse pathways to care for children with stomach pain in a Canadian cosmopolitan city","volume":"22","author":"Fortin","year":"2014","journal-title":"Health & Social Care in the Community"},{"key":"10.1016\/j.jpain.2025.105334_bib192","doi-asserted-by":"crossref","first-page":"28","DOI":"10.1186\/1477-7525-5-28","article-title":"Challenges and strategies of children and adolescents with inflammatory bowel disease: a qualitative examination","volume":"5","author":"Nicholas","year":"2007","journal-title":"Health & Quality of Life Outcomes"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib193","doi-asserted-by":"crossref","first-page":"162","DOI":"10.1097\/AJP.0000000000000530","article-title":"The experience of pain dismissal in adolescence","volume":"34","author":"Defenderfer","year":"2018","journal-title":"Clinical Journal of Pain"},{"key":"10.1016\/j.jpain.2025.105334_bib194","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1186\/1471-2431-8-2","article-title":"The role of peer communication in the socialization of adolescents' pain experiences: a qualitative investigation","volume":"8","author":"Hatchette","year":"2008","journal-title":"BMC Pediatrics"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib195","doi-asserted-by":"crossref","first-page":"412","DOI":"10.1177\/1367493513509420","article-title":"An online adolescent message board discussion about the internet: use for pain","volume":"19","author":"Henderson","year":"2015","journal-title":"Journal of child health care: for professionals working with children in the hospital and community"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib196","doi-asserted-by":"crossref","first-page":"572","DOI":"10.1111\/cch.12072","article-title":"Why go online when you have pain? A qualitative analysis of teenagers' use of the Internet for pain management advice","volume":"40","author":"Henderson","year":"2014","journal-title":"Child: Care, Health & Development"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib197","doi-asserted-by":"crossref","first-page":"408","DOI":"10.1016\/j.sapharm.2013.06.004","article-title":"Swedish teenagers and over-the-counter analgesics \u2013 responsible, casual or careless use","volume":"10","author":"Holmstr\u00f6m","year":"2014","journal-title":"Research in Social and Administrative Pharmacy"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib198","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2015-010184","article-title":"How adolescents experience and cope with pain in daily life: a qualitative study on ways to cope and the use of over-the-counter analgesics","volume":"6","author":"Lagerlov","year":"2016","journal-title":"BMJ Open"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib199","doi-asserted-by":"crossref","first-page":"909","DOI":"10.1111\/apa.15493","article-title":"Schoolchildren's experience of pain-a focus group interview study","volume":"110","author":"Persson","year":"2021","journal-title":"Acta Paediatrica"},{"issue":"19-20","key":"10.1016\/j.jpain.2025.105334_bib200","doi-asserted-by":"crossref","first-page":"3583","DOI":"10.1111\/jocn.14513","article-title":"Pain and development of identity in adolescents who frequently use over-the-counter analgesics: a qualitative study","volume":"27","author":"Skarstein","year":"2018","journal-title":"Journal of Clinical Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib201","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1186\/s12912-016-0135-9","article-title":"High use of over-the-counter analgesic; possible warnings of reduced quality of life in adolescents - a qualitative study","volume":"15","author":"Skarstein","year":"2016","journal-title":"BMC Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib202","doi-asserted-by":"crossref","first-page":"112","DOI":"10.1186\/s40359-020-00478-2","article-title":"It hurts inside: a qualitative study investigating social exclusion and bullying among adolescents reporting frequent pain and high use of non-prescription analgesics","volume":"8","author":"Skarstein","year":"2020","journal-title":"BMC psychology"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib203","doi-asserted-by":"crossref","first-page":"184","DOI":"10.1186\/s12887-022-03261-x","article-title":"Pain management after third molar extractions in adolescents: a qualitative study","volume":"22","author":"Mitchell","year":"2022","journal-title":"BMC Pediatrics"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib204","doi-asserted-by":"crossref","first-page":"127","DOI":"10.11607\/ofph.1450","article-title":"Treatment seeking and self-constructed explanations of pain and pain management strategies among adolescents with temporomandibular disorder pain","volume":"30","author":"Nilsson","year":"2016","journal-title":"Journal of Oral & Facial Pain and Headache"},{"issue":"10","key":"10.1016\/j.jpain.2025.105334_bib205","doi-asserted-by":"crossref","first-page":"2637","DOI":"10.1111\/jan.14460","article-title":"\"Tomorrow, I'll Be Fine\": impacts and coping mechanisms in adolescents and young adults with primary dysmenorrhoea","volume":"76","author":"Allyn","year":"2020","journal-title":"Journal of Advanced Nursing"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib206","doi-asserted-by":"crossref","first-page":"163","DOI":"10.1016\/j.jpag.2014.07.002","article-title":"Dysmenorrhea management and coping among students in ghana: a qualitative exploration","volume":"28","author":"Aziato","year":"2015","journal-title":"Journal of Pediatric & Adolescent Gynecology"},{"key":"10.1016\/j.jpain.2025.105334_bib207","doi-asserted-by":"crossref","first-page":"58","DOI":"10.1186\/1742-4755-11-58","article-title":"The experience of dysmenorrhoea among Ghanaian senior high and university students: pain characteristics and effects","volume":"11","author":"Aziato","year":"2014","journal-title":"Reproductive Health"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib208","doi-asserted-by":"crossref","first-page":"418","DOI":"10.1080\/07399330600629583","article-title":"The self-care strategies of girls with primary dysmenorrhea: a focus group study in Taiwan","volume":"27","author":"Chen","year":"2006","journal-title":"Health Care for Women International"},{"issue":"22","key":"10.1016\/j.jpain.2025.105334_bib209","first-page":"17","article-title":"Living with restrictions. The perspective of nursing students with primary dysmenorrhea","volume":"17","author":"Fernandez-Martinez","year":"2020","journal-title":"International Journal of Environmental Research & Public Health [Electronic Resource]"},{"issue":"18","key":"10.1016\/j.jpain.2025.105334_bib210","first-page":"13","article-title":"Living with pain and looking for a safe environment: a qualitative study among nursing students with dysmenorrhea","volume":"17","author":"Fernandez-Martinez","year":"2020","journal-title":"International Journal of Environmental Research & Public Health [Electronic Resource]"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib211","doi-asserted-by":"crossref","first-page":"637","DOI":"10.1002\/nop2.1111","article-title":"Pain management and coping strategies for primary dysmenorrhea: a qualitative study among female nursing students","volume":"9","author":"Fernandez-Martinez","year":"2022","journal-title":"Nursing Open"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib212","doi-asserted-by":"crossref","first-page":"278","DOI":"10.1016\/j.jpag.2019.11.007","article-title":"Unmet needs and experiences of adolescent girls with heavy menstrual bleeding and dysmenorrhea: a qualitative study","volume":"33","author":"Li","year":"2020","journal-title":"Journal of Pediatric & Adolescent Gynecology"},{"issue":"21","key":"10.1016\/j.jpain.2025.105334_bib213","first-page":"05","article-title":"Why do some spanish nursing students with menstrual pain fail to consult healthcare professionals","volume":"17","author":"Ramos-Pichardo","year":"2020","journal-title":"International Journal of Environmental Research & Public Health [Electronic Resource]"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib214","first-page":"181","article-title":"Menstrual discomfort and its influence on daily academic activities and psychosocial relationship among undergraduate female students in Nigeria","volume":"11","author":"Titilayo","year":"2009","journal-title":"Tanzania journal of health research"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib215","doi-asserted-by":"crossref","first-page":"262","DOI":"10.1016\/j.pmn.2016.04.001","article-title":"Self-care strategies among chinese adolescent girls with dysmenorrhea: a qualitative study","volume":"17","author":"Wong","year":"2016","journal-title":"Pain Management Nursing"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib216","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1300\/J013v46n01_04","article-title":"Is my period normal? How college-aged women determine the normality or abnormality of their menstrual cycles","volume":"46","author":"Wood","year":"2007","journal-title":"Women & Health"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib217","first-page":"1343","article-title":"Dysmenorrhea experiences of young girls: a phenomenological study","volume":"14","author":"Yasar","year":"2021","journal-title":"International Journal of Caring Sciences"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib218","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1093\/pm\/pny056","article-title":"Pediatric irritable bowel syndrome: perspectives on pain and adolescent social functioning","volume":"20","author":"Donovan","year":"2019","journal-title":"Pain Medicine"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib219","doi-asserted-by":"crossref","first-page":"234","DOI":"10.1177\/1049732307312303","article-title":"Using analgesics as tools: young women's treatment for headache","volume":"18","author":"Hansen","year":"2008","journal-title":"Qual Health Res"},{"issue":"6","key":"10.1016\/j.jpain.2025.105334_bib220","doi-asserted-by":"crossref","first-page":"829","DOI":"10.1177\/1049732309335447","article-title":"\"I'd rather not take it, but \u2026\": young women's perceptions of medicines","volume":"19","author":"Hansen","year":"2009","journal-title":"Qual Health Res"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib221","first-page":"19","article-title":"Adolescents and headaches: maintaining control","volume":"39","author":"Helvig","year":"2013","journal-title":"Pediatric Nursing"},{"issue":"7","key":"10.1016\/j.jpain.2025.105334_bib222","doi-asserted-by":"crossref","first-page":"337","DOI":"10.12968\/bjsn.2011.6.7.337","article-title":"A qualitative study of headache in school children","volume":"6","author":"Kernick","year":"2011","journal-title":"British Journal of School Nursing"},{"issue":"5","key":"10.1016\/j.jpain.2025.105334_bib223","doi-asserted-by":"crossref","first-page":"588","DOI":"10.1111\/head.14315","article-title":"Beyond pain control: outcome and treatment preferences in pediatric migraine","volume":"62","author":"Khayata","year":"2022","journal-title":"Headache"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib224","doi-asserted-by":"crossref","DOI":"10.1002\/pri.1778","article-title":"Chronic tension-type headache and coping strategies in adolescents: a qualitative interview study","volume":"24","author":"Skogvold","year":"2019","journal-title":"Physiotherapy Research International"},{"key":"10.1016\/j.jpain.2025.105334_bib225","first-page":"24","article-title":"\"I had already tried that before going to the doctor\" - exploring adolescents' with knee pain perspectives on 'wait and see' as a management strategy in primary care; a study with brief semi-structured qualitative interviews","volume":"24","author":"Andreucci","year":"2022","journal-title":"Scandinavian Journal of Pain"},{"issue":"17","key":"10.1016\/j.jpain.2025.105334_bib226","doi-asserted-by":"crossref","first-page":"1695","DOI":"10.1080\/09638288.2016.1207107","article-title":"It just feels weird!: a qualitative study of how children aged 10-18 years describe neuropathic pain","volume":"39","author":"Yeung","year":"2017","journal-title":"Disability & Rehabilitation"},{"key":"10.1016\/j.jpain.2025.105334_bib227","doi-asserted-by":"crossref","DOI":"10.1590\/1980-220x-reeusp-2020-0490","article-title":"Chronic pain following inguinal herniorrhaphy: perceptions of children and adolescents","volume":"55","author":"de Moura","year":"2021","journal-title":"Revista Da Escola de Enfermagem Da Usp"},{"issue":"4","key":"10.1016\/j.jpain.2025.105334_bib228","first-page":"320","article-title":"Post-discharge experiences of children and their families following children's surgery","volume":"16","author":"Ford","year":"2012","journal-title":"[References]: Journal of Child Health Care"},{"issue":"7","key":"10.1016\/j.jpain.2025.105334_bib229","doi-asserted-by":"crossref","first-page":"778","DOI":"10.1016\/j.jpain.2017.02.423","article-title":"Long-term pain and recovery after major pediatric surgery: a qualitative study with teens, parents, and perioperative care providers","volume":"18","author":"Rabbitts","year":"2017","journal-title":"The journal of pain"},{"issue":"2","key":"10.1016\/j.jpain.2025.105334_bib230","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1080\/17450120600872332","article-title":"Maternal influences in adolescents' pain self-management: a qualitative investigation","volume":"1","author":"Hatchette","year":"2006","journal-title":"Vulnerable Children and Youth Studies"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib231","doi-asserted-by":"crossref","first-page":"311","DOI":"10.1080\/13648470.2013.853026","article-title":"Uncertainty, culture and pathways to care in paediatric functional gastrointestinal disorders","volume":"20","author":"Fortin","year":"2013","journal-title":"Anthropology & Medicine"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib232","doi-asserted-by":"crossref","first-page":"156","DOI":"10.1111\/j.1442-2018.2006.00273.x","article-title":"The meanings of pain: a qualitative study of the perspectives of children living with pain in north-eastern Thailand","volume":"8","author":"Jongudomkarn","year":"2006","journal-title":"Nursing & Health Sciences"},{"key":"10.1016\/j.jpain.2025.105334_bib233","doi-asserted-by":"crossref","first-page":"1","DOI":"10.3402\/qhw.v7i0.15471","article-title":"Experiences of low back pain in adolescents in relation to physiotherapy intervention","volume":"7","author":"Ahlqwist","year":"2012","journal-title":"International Journal of Qualitative Studies on Health & Well-Being"},{"key":"10.1016\/j.jpain.2025.105334_bib234","unstructured":"Davey N., Nielsen C. Gadamer\u2019s Aesthetics. The Stanford Encyclopedia of Philosophy 2023;(Fall Edition):https:\/\/plato.stanford.edu\/archives\/fall2023\/entries\/gadamer-aesthetics\/."},{"key":"10.1016\/j.jpain.2025.105334_bib235","doi-asserted-by":"crossref","DOI":"10.1016\/j.eclinm.2022.101296","article-title":"Paediatric chronic pain prevalence in low- and middle-income countries: a systematic review and meta-analysis","volume":"45","author":"Liao","year":"2022","journal-title":"eClinicalMedicine"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib236","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1108\/QRJ-12-2019-0093","article-title":"Cross-language qualitative research studies dilemmas: a research review","volume":"21","author":"Mohamad Nasri","year":"2020","journal-title":"Qualitative Research Journal"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib237","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1108\/QRJ-12-2019-0093","article-title":"Cross-language qualitative research studies dilemmas: a research review","volume":"21","author":"Mohamad Nasri","year":"2021","journal-title":"Qualitative Research Journal"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib238","doi-asserted-by":"crossref","first-page":"318","DOI":"10.1177\/1468794112446104","article-title":"If you can call it a poem\u2019: toward a framework for the assessment of arts-based works","volume":"13","author":"Lafreni\u00e8re","year":"2012","journal-title":"Qualitative Research"},{"issue":"1","key":"10.1016\/j.jpain.2025.105334_bib239","article-title":"The production and dissemination of knowledge: a scoping review of arts-based health research","volume":"13","author":"Boydell","year":"2012","journal-title":"Forum: Qualitative Social Research Sozialforschung"},{"issue":"3","key":"10.1016\/j.jpain.2025.105334_bib240","doi-asserted-by":"crossref","first-page":"170","DOI":"10.3109\/13561820.2011.647128","article-title":"Arts-based research and knowledge translation: some key concerns for health-care professionals","volume":"26","author":"Parsons","year":"2012","journal-title":"Journal of Interprofessional Care"},{"issue":"10","key":"10.1016\/j.jpain.2025.105334_bib241","first-page":"1","article-title":"A meta\u2010ethnography of how children and young people with chronic non\u2010cancer pain and their families experience and understand their condition, pain services, and treatments","author":"France","year":"2023","journal-title":"Cochrane Database of Systematic Reviews"}],"container-title":["The Journal of Pain"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1526590025005619?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1526590025005619?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,5,6]],"date-time":"2026-05-06T07:26:59Z","timestamp":1778052419000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1526590025005619"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,5]]},"references-count":241,"alternative-id":["S1526590025005619"],"URL":"https:\/\/doi.org\/10.1016\/j.jpain.2025.105334","relation":{},"ISSN":["1526-5900"],"issn-type":[{"value":"1526-5900","type":"print"}],"subject":[],"published":{"date-parts":[[2025,5]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Exploring the emotional impact of pain on children and adolescents: A poetic meta-ethnography","name":"articletitle","label":"Article Title"},{"value":"The Journal of Pain","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jpain.2025.105334","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 The Author(s). Published by Elsevier Inc. on behalf of United States Association for the Study of Pain, Inc","name":"copyright","label":"Copyright"}],"article-number":"105334"}}