{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,8]],"date-time":"2026-02-08T07:27:45Z","timestamp":1770535665076,"version":"3.49.0"},"reference-count":20,"publisher":"Elsevier BV","issue":"6","license":[{"start":{"date-parts":[[2022,12,1]],"date-time":"2022-12-01T00:00:00Z","timestamp":1669852800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2022,12,1]],"date-time":"2022-12-01T00:00:00Z","timestamp":1669852800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"funder":[{"DOI":"10.13039\/100002759","name":"CARES Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100002759","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","jpurol.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Urology"],"published-print":{"date-parts":[[2022,12]]},"DOI":"10.1016\/j.jpurol.2022.05.016","type":"journal-article","created":{"date-parts":[[2022,5,30]],"date-time":"2022-05-30T20:47:20Z","timestamp":1653943640000},"page":"775-783","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":10,"title":["Growing up with clitoromegaly: experiences of North American women with congenital adrenal hyperplasia"],"prefix":"10.1016","volume":"18","author":[{"given":"Konrad M.","family":"Szymanski","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0751-5595","authenticated-orcid":false,"given":"Paul","family":"Kokorowski","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Luis H.","family":"Braga","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Heather","family":"Frady","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6881-5706","authenticated-orcid":false,"given":"Benjamin","family":"Whittam","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Devon J.","family":"Hensel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.jpurol.2022.05.016_bib1","doi-asserted-by":"crossref","first-page":"264","DOI":"10.1210\/js.2018-00316","article-title":"Baseline characteristics of infants with atypical genital development: phenotypes, diagnoses, and sex of rearing","volume":"3","author":"Finlayson","year":"2019","journal-title":"J Endocr Soc"},{"key":"10.1016\/j.jpurol.2022.05.016_bib2","doi-asserted-by":"crossref","first-page":"52","DOI":"10.1186\/s12902-017-0198-y","article-title":"Participation of adults with disorders\/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population","volume":"17","author":"Rohle","year":"2017","journal-title":"BMC Endocr Disord"},{"key":"10.1016\/j.jpurol.2022.05.016_bib3","doi-asserted-by":"crossref","first-page":"341","DOI":"10.1007\/s10508-016-0862-8","article-title":"Syndrome-related stigma in the general social environment as reported by women with classical congenital adrenal hyperplasia","volume":"46","author":"Meyer-Bahlburg","year":"2017","journal-title":"Arch Sex Behav"},{"key":"10.1016\/j.jpurol.2022.05.016_bib4","doi-asserted-by":"crossref","first-page":"943","DOI":"10.1007\/s10508-017-1003-8","article-title":"Stigma associated with classical congenital adrenal hyperplasia in women's sexual lives","volume":"47","author":"Meyer-Bahlburg","year":"2018","journal-title":"Arch Sex Behav"},{"key":"10.1016\/j.jpurol.2022.05.016_bib5","doi-asserted-by":"crossref","first-page":"1529","DOI":"10.1016\/j.jsxm.2019.07.009","article-title":"Influence of genotype and hyperandrogenism on sexual function in women with congenital adrenal hyperplasia","volume":"16","author":"Schernthaner-Reiter","year":"2019","journal-title":"J Sex Med"},{"key":"10.1016\/j.jpurol.2022.05.016_bib6","doi-asserted-by":"crossref","first-page":"380","DOI":"10.1210\/jc.2007-0556","article-title":"Type of mutation and surgical procedure affect long-term quality of life for women with congenital adrenal hyperplasia","volume":"93","author":"Nordenskjold","year":"2008","journal-title":"J Clin Endocrinol Metab"},{"key":"10.1016\/j.jpurol.2022.05.016_bib7","doi-asserted-by":"crossref","first-page":"5110","DOI":"10.1210\/jc.2010-0917","article-title":"Health status of adults with congenital adrenal hyperplasia: a cohort study of 203 patients","volume":"95","author":"Arlt","year":"2010","journal-title":"J Clin Endocrinol Metab"},{"key":"10.1016\/j.jpurol.2022.05.016_bib8","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1530\/EJE-17-0895","article-title":"Poor compliance and increased mortality, depression and healthcare costs in patients with congenital adrenal hyperplasia","volume":"178","author":"Jenkins-Jones","year":"2018","journal-title":"Eur J Endocrinol"},{"key":"10.1016\/j.jpurol.2022.05.016_bib9","unstructured":"SB 201 California: Medical procedures: treatment or intervention: sex characteristics of a minor. 2019-2020 ed2020."},{"key":"10.1016\/j.jpurol.2022.05.016_bib10","author":"SB 408 Nevada","year":"2017"},{"key":"10.1016\/j.jpurol.2022.05.016_bib11","series-title":"An act concerning a person's intersex status or characteristics","year":"2019"},{"key":"10.1016\/j.jpurol.2022.05.016_bib12","series-title":"Promoting the human rights of and eliminating discrimination against intersex people","year":"2017"},{"key":"10.1016\/j.jpurol.2022.05.016_bib13","series-title":"Human.Rights.Office. United nations for intersex awareness: intersex babies are perfect just as they are","year":"2020"},{"key":"10.1016\/j.jpurol.2022.05.016_bib14","unstructured":"Government.of.Malta. Gender identity, Gender Expression and Sex Characteristics Act."},{"key":"10.1016\/j.jpurol.2022.05.016_bib15","series-title":"Portugal approves law to boost transgender rights, protect intersex infants","author":"Guilbert","year":"2018"},{"key":"10.1016\/j.jpurol.2022.05.016_bib16","doi-asserted-by":"crossref","first-page":"1770","DOI":"10.1097\/JU.0000000000001573","article-title":"What do patients and parents say about parents' ability to choose early genital surgery for girls with congenital adrenal hyperplasia?","volume":"205","author":"Szymanski","year":"2021","journal-title":"J Urol"},{"key":"10.1016\/j.jpurol.2022.05.016_bib17","doi-asserted-by":"crossref","first-page":"210","DOI":"10.1016\/j.jpurol.2020.12.009","article-title":"Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex","volume":"17","author":"Szymanski","year":"2021","journal-title":"J Pediatr Urol"},{"issue":"4","key":"10.1016\/j.jpurol.2022.05.016_bib18","doi-asserted-by":"crossref","first-page":"835","DOI":"10.1097\/JU.0000000000001076","article-title":"Patient and caregiver attitudes toward disorders of sex development nomenclature","volume":"204","author":"D\u2019Oro","year":"2020","journal-title":"J Urol"},{"key":"10.1016\/j.jpurol.2022.05.016_bib19","author":"UnitedStatesCensusBureau"},{"key":"10.1016\/j.jpurol.2022.05.016_bib20","doi-asserted-by":"crossref","first-page":"123","DOI":"10.1016\/0960-0760(93)90131-F","article-title":"Partnership and sexuality in adult female patients with congenital adrenal hyperplasia. First results of a cross-sectional quality-of-life evaluation","volume":"45","author":"Kuhnle","year":"1993","journal-title":"J Steroid Biochem Mol Biol"}],"container-title":["Journal of Pediatric Urology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1477513122002169?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1477513122002169?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,26]],"date-time":"2025-10-26T13:54:05Z","timestamp":1761486845000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1477513122002169"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,12]]},"references-count":20,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2022,12]]}},"alternative-id":["S1477513122002169"],"URL":"https:\/\/doi.org\/10.1016\/j.jpurol.2022.05.016","relation":{},"ISSN":["1477-5131"],"issn-type":[{"value":"1477-5131","type":"print"}],"subject":[],"published":{"date-parts":[[2022,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Growing up with clitoromegaly: experiences of North American women with congenital adrenal hyperplasia","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Urology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jpurol.2022.05.016","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2022 Journal of Pediatric Urology Company. Published by Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}]}}