{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T20:26:37Z","timestamp":1790799997350,"version":"4.1.0"},"reference-count":30,"publisher":"Elsevier BV","issue":"6","license":[{"start":{"date-parts":[[2024,12,1]],"date-time":"2024-12-01T00:00:00Z","timestamp":1733011200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,12,1]],"date-time":"2024-12-01T00:00:00Z","timestamp":1733011200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,11,26]],"date-time":"2025-11-26T00:00:00Z","timestamp":1764115200000},"content-version":"am","delay-in-days":360,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"publisher","award":["UL1TR002529"],"award-info":[{"award-number":["UL1TR002529"]}],"id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006975","name":"Indiana Clinical and Translational Sciences Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100006975","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000062","name":"National Institute of Diabetes and Digestive and Kidney Diseases","doi-asserted-by":"publisher","award":["3K23DK111987-04S1"],"award-info":[{"award-number":["3K23DK111987-04S1"]}],"id":[{"id":"10.13039\/100000062","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.fr","clinicalkey.jp","clinicalkey.es","clinicalkey.com.au","jpurol.com","clinicalkey.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Urology"],"published-print":{"date-parts":[[2024,12]]},"DOI":"10.1016\/j.jpurol.2024.07.028","type":"journal-article","created":{"date-parts":[[2024,8,3]],"date-time":"2024-08-03T01:19:05Z","timestamp":1722647945000},"page":"1072-1081","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":4,"title":["Development of a prototype of a patient-reported outcomes measure for hypospadias care, the Patient Assessment Tool for Hypospadias (PATH)"],"prefix":"10.1016","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8986-8639","authenticated-orcid":false,"given":"Charlene","family":"Brown","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2837-0006","authenticated-orcid":false,"given":"Kristen","family":"Larson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3560-5566","authenticated-orcid":false,"given":"Brandon","family":"Cockrum","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-6330-6114","authenticated-orcid":false,"given":"Bridget","family":"Hawryluk","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3563-0259","authenticated-orcid":false,"given":"Courtney M.","family":"Moore","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8148-0848","authenticated-orcid":false,"given":"Sarah E.","family":"Wiehe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9124-1704","authenticated-orcid":false,"given":"Katherine H.","family":"Chan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jpurol.2024.07.028_bib1","doi-asserted-by":"crossref","first-page":"482","DOI":"10.1016\/j.eururo.2019.06.027","article-title":"Hypospadias prevalence and trends in international birth defect surveillance systems, 1980-2010","volume":"76","author":"Yu","year":"2019","journal-title":"Eur Urol"},{"issue":"1","key":"10.1016\/j.jpurol.2024.07.028_bib2","doi-asserted-by":"crossref","first-page":"33.e1-7","DOI":"10.1016\/j.jpurol.2015.10.010","article-title":"Penile appearance after hypospadias correction from a parent\u2019s point of view: comparison of the hypospadias objective penile evaluation score and parents penile perception score","volume":"12","author":"Haid","year":"2016","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib3","doi-asserted-by":"crossref","first-page":"4745","DOI":"10.1097\/MS9.0000000000001136","article-title":"Assessment of functional and cosmetic outcomes of Extended-Tubularized incised plate for mid-shaft and distal hypospadias as a modification of Snodgrass repair: a cross-sectional study","volume":"85","author":"Alwaeli","year":"2023","journal-title":"Ann Med Surg (Lond)."},{"key":"10.1016\/j.jpurol.2024.07.028_bib4","doi-asserted-by":"crossref","first-page":"504","DOI":"10.1186\/s12887-023-04339-w","article-title":"Risk factors for postoperative complications following one-stage proximal hypospadias repair involving the disconnection of the urethral plate: a retrospective study","volume":"23","author":"Hu","year":"2023","journal-title":"BMC Pediatr"},{"key":"10.1016\/j.jpurol.2024.07.028_bib5","doi-asserted-by":"crossref","first-page":"2071","DOI":"10.1016\/j.jpedsurg.2015.08.047","article-title":"Assessment of postoperative outcomes of hypospadias repair with validated questionnaires","volume":"50","author":"Liu","year":"2015","journal-title":"J Pediatr Surg"},{"key":"10.1016\/j.jpurol.2024.07.028_bib6","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1016\/j.jpurol.2020.11.043","article-title":"Evaluating quality of patient-reported outcome measures in patients with hypospadias","volume":"17","author":"Bhatia","year":"2021","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib7","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1159\/000430500","article-title":"Long-term functional, cosmetic and sexual outcomes of hypospadias correction performed in childhood","volume":"95","author":"Thiry","year":"2015","journal-title":"Urol Int"},{"key":"10.1016\/j.jpurol.2024.07.028_bib8","doi-asserted-by":"crossref","first-page":"504","DOI":"10.1016\/j.jpurol.2011.02.008","article-title":"Functional, cosmetic and psychosexual results in adult men who underwent hypospadias correction in childhood","volume":"7","author":"Rynja","year":"2011","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib9","doi-asserted-by":"crossref","first-page":"1556","DOI":"10.1016\/j.juro.2012.12.104","article-title":"Objective and subjective sexual outcomes in adult patients after hypospadias repair performed in childhood","volume":"190","author":"Chertin","year":"2013","journal-title":"J Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib10","doi-asserted-by":"crossref","first-page":"975","DOI":"10.1016\/j.juro.2014.09.103","article-title":"Long-term followup of men born with hypospadias: urological and cosmetic results","volume":"193","author":"Ortqvist","year":"2015","journal-title":"J Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib11","doi-asserted-by":"crossref","first-page":"1537","DOI":"10.1007\/s11136-021-02773-w","article-title":"The hypospadias-specific health-related quality of life conceptual framework: a scoping review of the literature","volume":"30","author":"Bhatia","year":"2021","journal-title":"Qual Life Res"},{"key":"10.1016\/j.jpurol.2024.07.028_bib12","doi-asserted-by":"crossref","first-page":"165","DOI":"10.1159\/000504973","article-title":"A systematic review of core outcomes for hypospadias surgery","volume":"13","author":"Leunbach","year":"2019","journal-title":"Sex Dev"},{"key":"10.1016\/j.jpurol.2024.07.028_bib13","doi-asserted-by":"crossref","first-page":"822","DOI":"10.1016\/S0090-4295(97)00238-0","article-title":"The international index of erectile function (IIEF): a multidimensional scale for assessment of erectile dysfunction","volume":"49","author":"Rosen","year":"1997","journal-title":"Urology"},{"key":"10.1016\/j.jpurol.2024.07.028_bib14","doi-asserted-by":"crossref","first-page":"1080","DOI":"10.1016\/j.juro.2008.05.060","article-title":"The Pediatric Penile Perception Score: an instrument for patient self-assessment and surgeon evaluation after hypospadias repair","volume":"180","author":"Weber","year":"2008","journal-title":"J Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib15","doi-asserted-by":"crossref","first-page":"255","DOI":"10.1046\/j.1464-410x.2001.02280.x","article-title":"HOSE: an objective scoring system for evaluating the results of hypospadias surgery","volume":"88","author":"Holland","year":"2001","journal-title":"BJU Int"},{"key":"10.1016\/j.jpurol.2024.07.028_bib16","doi-asserted-by":"crossref","first-page":"448 e1","DOI":"10.1016\/j.jpurol.2019.04.011","article-title":"Community engagement of adolescents in the development of a patient-centered outcome tool for adolescents with a history of hypospadias repair","volume":"15","author":"Chan","year":"2019","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib17","doi-asserted-by":"crossref","first-page":"e17","DOI":"10.1017\/cts.2022.498","article-title":"\"Research Jam\": engaging patients and other stakeholders through human-centered design to improve translational research","volume":"7","author":"Wiehe","year":"2023","journal-title":"J Clin Transl Sci"},{"key":"10.1016\/j.jpurol.2024.07.028_bib18","doi-asserted-by":"crossref","first-page":"703","DOI":"10.1177\/1740774520946314","article-title":"User-centered design principles in the development of clinical research tools","volume":"17","author":"Walden","year":"2020","journal-title":"Clin Trials"},{"key":"10.1016\/j.jpurol.2024.07.028_bib19","doi-asserted-by":"crossref","first-page":"967","DOI":"10.1016\/j.jval.2011.06.014","volume":"14","author":"Patrick","year":"2011","journal-title":"Value Health"},{"key":"10.1016\/j.jpurol.2024.07.028_bib20","doi-asserted-by":"crossref","first-page":"978","DOI":"10.1016\/j.jval.2011.06.013","article-title":"Content validity--establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force report: part 2--assessing respondent understanding","volume":"14","author":"Patrick","year":"2011","journal-title":"Value Health"},{"key":"10.1016\/j.jpurol.2024.07.028_bib21","series-title":"Exposing the magic of design: a practitioner's guide to the methods and theory of synthesis (Human technology interaction series)","author":"J","year":"2011"},{"key":"10.1016\/j.jpurol.2024.07.028_bib22","doi-asserted-by":"crossref","first-page":"1215","DOI":"10.1016\/j.juro.2015.11.066","article-title":"Patient reported outcomes in preoperative and postoperative patients with hypospadias","volume":"195","author":"Keays","year":"2016","journal-title":"J Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib23","doi-asserted-by":"crossref","first-page":"1006","DOI":"10.1016\/j.jpurol.2013.01.015","article-title":"Introducing the HOPE (Hypospadias Objective Penile Evaluation)-score: a validation study of an objective scoring system for evaluating cosmetic appearance in hypospadias patients","volume":"9","author":"van der Toorn","year":"2013","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib24","doi-asserted-by":"crossref","first-page":"33 e1","DOI":"10.1016\/j.jpurol.2016.10.011","article-title":"The SIGHT questionnaire: a novel assessment tool for Satisfaction in Genital Hypospadias Treatment","volume":"13","author":"Ardelt","year":"2017","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib25","doi-asserted-by":"crossref","DOI":"10.2196\/14080","article-title":"Youth study recruitment using paid advertising on Instagram, Snapchat, and Facebook: cross-sectional survey study","volume":"5","author":"Ford","year":"2019","journal-title":"JMIR Public Health Surveill"},{"key":"10.1016\/j.jpurol.2024.07.028_bib26","series-title":"Teens, social media and technology 2022","author":"Vogels","year":"2022"},{"key":"10.1016\/j.jpurol.2024.07.028_bib27","doi-asserted-by":"crossref","DOI":"10.1007\/s11934-019-0928-y","article-title":"The use of social media in pediatric urology-forging new paths or crossing boundaries?","volume":"20","author":"Truong","year":"2019","journal-title":"Curr Urol Rep"},{"key":"10.1016\/j.jpurol.2024.07.028_bib28","doi-asserted-by":"crossref","first-page":"567 e1","DOI":"10.1016\/j.jpurol.2020.06.020","article-title":"Patient-reported outcomes in adult females with bladder exstrophy: a study of long-term sexual, reproductive and urinary outcomes using social media","volume":"16","author":"Canalichio","year":"2020","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib29","doi-asserted-by":"crossref","first-page":"672","DOI":"10.1016\/j.jpurol.2014.01.024","article-title":"Do adult men with untreated hypospadias have adverse outcomes? A pilot study using a social media advertised survey","volume":"10","author":"Schlomer","year":"2014","journal-title":"J Pediatr Urol"},{"key":"10.1016\/j.jpurol.2024.07.028_bib30","doi-asserted-by":"crossref","first-page":"178","DOI":"10.1016\/j.urology.2015.09.027","article-title":"Quality of life assessment in Spina bifida for children (QUALAS-C): development and validation of a novel health-related quality of life instrument","volume":"87","author":"Szymanski","year":"2016","journal-title":"Urology"}],"container-title":["Journal of Pediatric Urology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1477513124004236?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1477513124004236?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,11,26]],"date-time":"2024-11-26T11:07:52Z","timestamp":1732619272000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1477513124004236"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,12]]},"references-count":30,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2024,12]]}},"alternative-id":["S1477513124004236"],"URL":"https:\/\/doi.org\/10.1016\/j.jpurol.2024.07.028","relation":{},"ISSN":["1477-5131"],"issn-type":[{"value":"1477-5131","type":"print"}],"subject":[],"published":{"date-parts":[[2024,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Development of a prototype of a patient-reported outcomes measure for hypospadias care, the Patient Assessment Tool for Hypospadias (PATH)","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Urology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jpurol.2024.07.028","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 Journal of Pediatric Urology Company. Published by Elsevier Ltd. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}