{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,7]],"date-time":"2026-03-07T00:14:41Z","timestamp":1772842481411,"version":"3.50.1"},"reference-count":12,"publisher":"Elsevier BV","issue":"1","license":[{"start":{"date-parts":[[2023,1,1]],"date-time":"2023-01-01T00:00:00Z","timestamp":1672531200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,1,1]],"date-time":"2023-01-01T00:00:00Z","timestamp":1672531200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"vor","delay-in-days":365,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Transplantation and Cellular Therapy"],"published-print":{"date-parts":[[2023,1]]},"DOI":"10.1016\/j.jtct.2022.10.016","type":"journal-article","created":{"date-parts":[[2022,10,23]],"date-time":"2022-10-23T19:56:51Z","timestamp":1666555011000},"page":"5-9","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":9,"title":["Bringing Patient and Caregivers Voices to the Clinical Trial Chorus: A Report From the BMT CTN Patient and Caregiver Advocacy Task Force"],"prefix":"10.1016","volume":"29","author":[{"given":"Sumithira","family":"Vasu","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5054-9419","authenticated-orcid":false,"given":"Shernan G.","family":"Holtan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Akiko","family":"Shimamura","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Todd","family":"Burnworth","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shauna","family":"Whisenton","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sanderson","family":"Adams","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1235-1812","authenticated-orcid":false,"given":"Brandon","family":"Nuechterlein","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nicole","family":"Mortier","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jackie","family":"Foster","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nancy","family":"DiFronzo","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mary","family":"Horowitz","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Doug","family":"Rizzo","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"Foley","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.jtct.2022.10.016_bib0001","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1177\/1740774518755055","article-title":"Patient engagement in clinical trials: The Clinical Trials Transformation Initiative's leadership from theory to practical implementation","volume":"15","author":"Patrick-Lake","year":"2018","journal-title":"Clin Trials"},{"key":"10.1016\/j.jtct.2022.10.016_bib0002","doi-asserted-by":"crossref","first-page":"206","DOI":"10.1177\/2168479017720247","article-title":"The rules of engagement: CTTI recommendations for successful collaborations between sponsors and patient groups around clinical trials","volume":"52","author":"Bloom","year":"2018","journal-title":"Ther Innov Regul Sci"},{"key":"10.1016\/j.jtct.2022.10.016_bib0003","doi-asserted-by":"crossref","first-page":"220","DOI":"10.1177\/2168479017716715","article-title":"Assessing the financial value of patient engagement: a quantitative approach from CTTI's Patient Groups and Clinical Trials Project","volume":"52","author":"Levitan","year":"2018","journal-title":"Ther Innov Regul Sci"},{"key":"10.1016\/j.jtct.2022.10.016_bib0004","doi-asserted-by":"crossref","first-page":"1543","DOI":"10.1016\/j.bbmt.2009.07.023","article-title":"Race and socioeconomic status influence outcomes of unrelated donor hematopoietic cell transplantation","volume":"15","author":"Baker","year":"2009","journal-title":"Biol Blood Marrow Transplant"},{"key":"10.1016\/j.jtct.2022.10.016_bib0005","doi-asserted-by":"crossref","first-page":"24","DOI":"10.21037\/sci-2021-058","article-title":"Racial disparities in hematopoietic stem cell transplant: a systematic review of the literature","volume":"8","author":"Landry","year":"2021","journal-title":"Stem Cell Invest"},{"key":"10.1016\/j.jtct.2022.10.016_bib0006","doi-asserted-by":"crossref","first-page":"1385","DOI":"10.1038\/bmt.2011.214","article-title":"Racial disparities in hematopoietic cell transplantation in the United States","volume":"47","author":"Majhail","year":"2012","journal-title":"Bone Marrow Transplant"},{"key":"10.1016\/j.jtct.2022.10.016_bib0007","doi-asserted-by":"crossref","first-page":"1070","DOI":"10.1016\/j.bbmt.2009.12.529","article-title":"Access to hematopoietic cell transplantation in the United States","volume":"16","author":"Majhail","year":"2010","journal-title":"Biol Blood Marrow Transplant"},{"key":"10.1016\/j.jtct.2022.10.016_bib0008","doi-asserted-by":"crossref","first-page":"275","DOI":"10.1182\/hematology.2021000259","article-title":"Increasing access to allotransplants in the United States: the impact of race, geography, and socioeconomics","volume":"2021","author":"Hong","year":"2021","journal-title":"Hematology Am Soc Hematol Educ Program"},{"key":"10.1016\/j.jtct.2022.10.016_bib0009","doi-asserted-by":"crossref","first-page":"523","DOI":"10.1016\/S0140-6736(20)31787-6","article-title":"COVID-19 and readjusting clinical trials","volume":"396","author":"van Dorn","year":"2020","journal-title":"Lancet"},{"key":"10.1016\/j.jtct.2022.10.016_bib0010","doi-asserted-by":"crossref","first-page":"562","DOI":"10.1038\/s41581-020-00336-9","article-title":"Impact of the COVID-19 pandemic on clinical research","volume":"16","author":"Tuttle","year":"2020","journal-title":"Nat Rev Nephrol"},{"key":"10.1016\/j.jtct.2022.10.016_bib0011","doi-asserted-by":"crossref","first-page":"1111","DOI":"10.1016\/j.bbmt.2018.01.029","article-title":"Engaging patients in setting a patient-centered outcomes research agenda in hematopoietic cell transplantation","volume":"24","author":"Burns","year":"2018","journal-title":"Biol Blood Marrow Transplant"},{"key":"10.1016\/j.jtct.2022.10.016_bib0012","doi-asserted-by":"crossref","first-page":"2145","DOI":"10.1016\/j.bbmt.2018.04.014","article-title":"Easy-to-read informed consent form for hematopoietic cell transplantation clinical trials: results from the Blood and Marrow Transplant Clinical Trials Network 1205 Study","volume":"24","author":"Spellecy","year":"2018","journal-title":"Biol Blood Marrow Transplant"}],"container-title":["Transplantation and Cellular Therapy"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2666636722017110?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2666636722017110?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,11,13]],"date-time":"2025-11-13T03:10:47Z","timestamp":1763003447000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2666636722017110"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,1]]},"references-count":12,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,1]]}},"alternative-id":["S2666636722017110"],"URL":"https:\/\/doi.org\/10.1016\/j.jtct.2022.10.016","relation":{},"ISSN":["2666-6367"],"issn-type":[{"value":"2666-6367","type":"print"}],"subject":[],"published":{"date-parts":[[2023,1]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Bringing Patient and Caregivers Voices to the Clinical Trial Chorus: A Report From the BMT CTN Patient and Caregiver Advocacy Task Force","name":"articletitle","label":"Article Title"},{"value":"Transplantation and Cellular Therapy","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jtct.2022.10.016","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2022 The American Society for Transplantation and Cellular Therapy. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}]}}